Eve
@evenicholls.bsky.social
Queer disabled quilter. She/her. Free Palestine.
Neurodivergent? Queer? Joint pain? Go and read up on Ehlers Danlos Syndrome. Yes, even if you're not all that flexible these days. Even if it's not you, it's probably some of your friends.
Neurodivergent? Queer? Joint pain? Go and read up on Ehlers Danlos Syndrome. Yes, even if you're not all that flexible these days. Even if it's not you, it's probably some of your friends.
Reposted by Eve
So, out of botanical curiosity, what sort of mushrooms are these? Edinburgh area
(No I'm not going to pick, eat, or feed them to anyone)
(No I'm not going to pick, eat, or feed them to anyone)
November 15, 2025 at 2:53 PM
So, out of botanical curiosity, what sort of mushrooms are these? Edinburgh area
(No I'm not going to pick, eat, or feed them to anyone)
(No I'm not going to pick, eat, or feed them to anyone)
Reposted by Eve
One way I have found to mourn someone is to set up a monthly sustaining donation to a mutual aid effort they cared about. If you can join me in honoring Alice Wong, @sfdirewolf.bsky.social with a sustaining donation today, please do. Thank you Alice, and I will not let the bastards grind me down.
November 15, 2025 at 12:34 PM
One way I have found to mourn someone is to set up a monthly sustaining donation to a mutual aid effort they cared about. If you can join me in honoring Alice Wong, @sfdirewolf.bsky.social with a sustaining donation today, please do. Thank you Alice, and I will not let the bastards grind me down.
Good afternoon, here is a loooong cat.
November 15, 2025 at 2:04 PM
Good afternoon, here is a loooong cat.
Reposted by Eve
It's a great cosmic joke that neurodivergence both runs in families and gets diagnosed based on parent reports. I was diagnosed at 30 because a man who has eaten potatoes every day for 57 years and a woman who collects loose buttons decided I was a perfectly normal child.
November 15, 2025 at 5:10 AM
It's a great cosmic joke that neurodivergence both runs in families and gets diagnosed based on parent reports. I was diagnosed at 30 because a man who has eaten potatoes every day for 57 years and a woman who collects loose buttons decided I was a perfectly normal child.
With full alt text this time.
Also to anyone making "hot priest" jokes, please stop sexualising an assault victim. Wtaf.
Also to anyone making "hot priest" jokes, please stop sexualising an assault victim. Wtaf.
November 15, 2025 at 9:14 AM
With full alt text this time.
Also to anyone making "hot priest" jokes, please stop sexualising an assault victim. Wtaf.
Also to anyone making "hot priest" jokes, please stop sexualising an assault victim. Wtaf.
Reposted by Eve
I'm still extremely excited about this research! The muddled diagnoses are precisely because we're lacking this sort of thing.
November 15, 2025 at 9:01 AM
I'm still extremely excited about this research! The muddled diagnoses are precisely because we're lacking this sort of thing.
Reposted by Eve
I have a specific pattern of pain I still think of as fibro pain, thankfully infrequent these days. I have no idea what it is. It's related to a subluxation I experienced in 2000, and refers to other areas in a consistent area (left hip and shoulder, sometimes down my leg and up to my nose).
November 15, 2025 at 8:00 AM
I have a specific pattern of pain I still think of as fibro pain, thankfully infrequent these days. I have no idea what it is. It's related to a subluxation I experienced in 2000, and refers to other areas in a consistent area (left hip and shoulder, sometimes down my leg and up to my nose).
Reposted by Eve
I know there's a long history of ME/CFS being labelled fibro, especially in the US. I'm in the UK, was correctly diagnosed with ME in 1997, and then vaguely told I had fibro after some years of complaining about pain. It wasn't until 2022 that I was diagnosed with EDS, which I'd had all along.
November 15, 2025 at 7:35 AM
I know there's a long history of ME/CFS being labelled fibro, especially in the US. I'm in the UK, was correctly diagnosed with ME in 1997, and then vaguely told I had fibro after some years of complaining about pain. It wasn't until 2022 that I was diagnosed with EDS, which I'd had all along.
Reposted by Eve
.
I’m not sure.
I’m more aligned with Dr. Ann Oaklander, the Harvard neurologist, who says fibromyalgia is not a diagnosis, but a label for a collection of symptoms.
Actual diagnoses may be Small Fiber (Poly)Neuropathy, inflammation/infections from #MECFS, EDS, metabolic errors causing lactate.
.
I’m not sure.
I’m more aligned with Dr. Ann Oaklander, the Harvard neurologist, who says fibromyalgia is not a diagnosis, but a label for a collection of symptoms.
Actual diagnoses may be Small Fiber (Poly)Neuropathy, inflammation/infections from #MECFS, EDS, metabolic errors causing lactate.
.
November 14, 2025 at 8:59 AM
.
I’m not sure.
I’m more aligned with Dr. Ann Oaklander, the Harvard neurologist, who says fibromyalgia is not a diagnosis, but a label for a collection of symptoms.
Actual diagnoses may be Small Fiber (Poly)Neuropathy, inflammation/infections from #MECFS, EDS, metabolic errors causing lactate.
.
I’m not sure.
I’m more aligned with Dr. Ann Oaklander, the Harvard neurologist, who says fibromyalgia is not a diagnosis, but a label for a collection of symptoms.
Actual diagnoses may be Small Fiber (Poly)Neuropathy, inflammation/infections from #MECFS, EDS, metabolic errors causing lactate.
.
Reposted by Eve
HOLY SHIT. They found the genes for fibromyalgia - and it's *not* autoimmune, it's the central nervous system. It's very cool to see some progress made on the thing that's ruined my life since late teenage years!
Medical Republic: 'Fibromyalgia finally gets a genetic fingerprint'
'Additionally, certain risk loci overlapped with long covid (BPTF) and ME/CFS (OLFM4, RABGAP1L/GPR52), two poorly characterised disorders, albeit with different lead variants.'
www.medicalrepublic.com.au/fibromyalgia...
'Additionally, certain risk loci overlapped with long covid (BPTF) and ME/CFS (OLFM4, RABGAP1L/GPR52), two poorly characterised disorders, albeit with different lead variants.'
www.medicalrepublic.com.au/fibromyalgia...
Fibromyalgia finally gets a genetic fingerprint - Medical Republic
A massive global study links the chronic pain condition to 26 genes associated with brain signalling, marking a turning point in understanding its biological roots.
www.medicalrepublic.com.au
November 14, 2025 at 4:09 AM
HOLY SHIT. They found the genes for fibromyalgia - and it's *not* autoimmune, it's the central nervous system. It's very cool to see some progress made on the thing that's ruined my life since late teenage years!
Reposted by Eve
Her new harness shows up against any background, I'm delighted to discover! My partner has been carefully documenting this.
November 13, 2025 at 10:55 AM
Her new harness shows up against any background, I'm delighted to discover! My partner has been carefully documenting this.
Reposted by Eve
If a vampire attacks, you can kill it with garlic;
However, that allium won't hurt a Dalek.
It's therefore of tactical value to you
If you're Doctor Van Helsing, but not Doctor Who.
However, that allium won't hurt a Dalek.
It's therefore of tactical value to you
If you're Doctor Van Helsing, but not Doctor Who.
November 12, 2025 at 8:22 PM
If a vampire attacks, you can kill it with garlic;
However, that allium won't hurt a Dalek.
It's therefore of tactical value to you
If you're Doctor Van Helsing, but not Doctor Who.
However, that allium won't hurt a Dalek.
It's therefore of tactical value to you
If you're Doctor Van Helsing, but not Doctor Who.
The world is a bit much right now. Here is a happy little cat being taken for a walk in a local park, and insisting my partner takes her into the labyrinth.
Photos by @robinjohnson.bsky.social, harness made by me.
Photos by @robinjohnson.bsky.social, harness made by me.
November 12, 2025 at 1:18 PM
The world is a bit much right now. Here is a happy little cat being taken for a walk in a local park, and insisting my partner takes her into the labyrinth.
Photos by @robinjohnson.bsky.social, harness made by me.
Photos by @robinjohnson.bsky.social, harness made by me.
Reposted by Eve
Juxtaposition!
November 11, 2025 at 10:40 AM
Juxtaposition!
Morning! My cat is cute.
November 10, 2025 at 11:24 AM
Morning! My cat is cute.
Reposted by Eve
Before ACA, many Americans couldn’t afford insurance
Alex Smith was a diabetic who got kicked off his Mom’s insurance at 26
He made 35k a year which was “too much” for Medicaid, but not nearly enough to cover insurance premiums
He had to ration his insulin & died a month after losing insurance
Alex Smith was a diabetic who got kicked off his Mom’s insurance at 26
He made 35k a year which was “too much” for Medicaid, but not nearly enough to cover insurance premiums
He had to ration his insulin & died a month after losing insurance
Insulin's High Cost Leads To Lethal Rationing
Alec Raeshawn Smith was 23 when diagnosed with Type 1 diabetes and 26 when he died. He couldn't afford $1,300 per month for his insulin and other diabetes supplies, so he tried to stretch the doses.
www.npr.org
November 10, 2025 at 5:01 AM
Before ACA, many Americans couldn’t afford insurance
Alex Smith was a diabetic who got kicked off his Mom’s insurance at 26
He made 35k a year which was “too much” for Medicaid, but not nearly enough to cover insurance premiums
He had to ration his insulin & died a month after losing insurance
Alex Smith was a diabetic who got kicked off his Mom’s insurance at 26
He made 35k a year which was “too much” for Medicaid, but not nearly enough to cover insurance premiums
He had to ration his insulin & died a month after losing insurance
I've just had someone on Reddit tell me I wasn't a proper vegan because *checks notes* my partner isn't a vegan, and that if I was doing my job properly then more people would be vegan by now.
November 8, 2025 at 6:38 PM
I've just had someone on Reddit tell me I wasn't a proper vegan because *checks notes* my partner isn't a vegan, and that if I was doing my job properly then more people would be vegan by now.
Reposted by Eve
Out now on the @midnightpals.bsky.social podcast: "The Tale of the Shadow Over Innsmouth", available on Apple Podcasts, Youtube, Pocket Cast, or wherever you find podcasts!
Howard tells an eldritch space squid story, and goes head to head with Mary Shelley in a high-stakes bet.
Howard tells an eldritch space squid story, and goes head to head with Mary Shelley in a high-stakes bet.
November 7, 2025 at 3:50 PM
Out now on the @midnightpals.bsky.social podcast: "The Tale of the Shadow Over Innsmouth", available on Apple Podcasts, Youtube, Pocket Cast, or wherever you find podcasts!
Howard tells an eldritch space squid story, and goes head to head with Mary Shelley in a high-stakes bet.
Howard tells an eldritch space squid story, and goes head to head with Mary Shelley in a high-stakes bet.
Reposted by Eve
Accessibility is not what it should be.
People will blame you for your disabilities. It won’t matter what you do or how hard you try, you won’t be “good enough”
All the misconceptions you had about disabled people were wrong.
People will blame you for your disabilities. It won’t matter what you do or how hard you try, you won’t be “good enough”
All the misconceptions you had about disabled people were wrong.
November 6, 2025 at 5:04 AM
Accessibility is not what it should be.
People will blame you for your disabilities. It won’t matter what you do or how hard you try, you won’t be “good enough”
All the misconceptions you had about disabled people were wrong.
People will blame you for your disabilities. It won’t matter what you do or how hard you try, you won’t be “good enough”
All the misconceptions you had about disabled people were wrong.
Reposted by Eve
When you become disabled there’s a few things you notice right away:
Ableism is everywhere.
People will abandon you. Even those you were certain would stick by you.
Just because something is illegal or against human rights code doesn’t mean it’s not happening ALL the time
Ableism is everywhere.
People will abandon you. Even those you were certain would stick by you.
Just because something is illegal or against human rights code doesn’t mean it’s not happening ALL the time
November 6, 2025 at 5:04 AM
When you become disabled there’s a few things you notice right away:
Ableism is everywhere.
People will abandon you. Even those you were certain would stick by you.
Just because something is illegal or against human rights code doesn’t mean it’s not happening ALL the time
Ableism is everywhere.
People will abandon you. Even those you were certain would stick by you.
Just because something is illegal or against human rights code doesn’t mean it’s not happening ALL the time
And this is what the loving partner of a diabetic does! Calculating the carbs for me when I'm tired, I mean. And now he's making us delicious stir-fry, yum. I'm so lucky.
Whoever decided to print the nutritional info on these noodles "per 1/5 pack" and divide the noodles into six cakes, please report for a slap
November 6, 2025 at 6:59 PM
And this is what the loving partner of a diabetic does! Calculating the carbs for me when I'm tired, I mean. And now he's making us delicious stir-fry, yum. I'm so lucky.
Reposted by Eve
Reposting because, and I say this with love, some of you are going to see this and go “oh shit, I need to check my bottle” and then immediately forget about it so if this could affect you, go check right now before you even scroll to the next post, I mean it.
As a headsup for anyone on Vyvanse, you should go check your lot numbers.
www.health.com/adhd-medicat...
www.health.com/adhd-medicat...
FDA Announces Nationwide Recall of ADHD Medication—Check Your Cabinets Now
Sun Pharmaceutical Industries has recalled several lots lisdexamfetamine dimesylate capsules, a generic form of Vyvanse, after testing found they failed to dissolve properly.
www.health.com
November 5, 2025 at 8:52 PM
Reposting because, and I say this with love, some of you are going to see this and go “oh shit, I need to check my bottle” and then immediately forget about it so if this could affect you, go check right now before you even scroll to the next post, I mean it.
Reposted by Eve
"Sun Pharmaceutical Industries has recalled several lots of lisdexamfetamine dimesylate capsules, a generic form of Vyvanse.
The FDA classified the recall as Class II, indicating a low risk of serious health consequences but potential temporary or reversible effects."
The FDA classified the recall as Class II, indicating a low risk of serious health consequences but potential temporary or reversible effects."
As a headsup for anyone on Vyvanse, you should go check your lot numbers.
www.health.com/adhd-medicat...
www.health.com/adhd-medicat...
FDA Announces Nationwide Recall of ADHD Medication—Check Your Cabinets Now
Sun Pharmaceutical Industries has recalled several lots lisdexamfetamine dimesylate capsules, a generic form of Vyvanse, after testing found they failed to dissolve properly.
www.health.com
November 5, 2025 at 7:19 PM
"Sun Pharmaceutical Industries has recalled several lots of lisdexamfetamine dimesylate capsules, a generic form of Vyvanse.
The FDA classified the recall as Class II, indicating a low risk of serious health consequences but potential temporary or reversible effects."
The FDA classified the recall as Class II, indicating a low risk of serious health consequences but potential temporary or reversible effects."
Reposted by Eve
*clearing my throat meaningfully at Labour*
This needs more attention: Zohran SPLIT the straights with Cuomo. ALL of his margin was from LGBTQ+ voters. Every Dem who ever said “we should abandon the transes” needs this shoved down their fucking throat with a ramrod.
November 5, 2025 at 1:20 PM
*clearing my throat meaningfully at Labour*
I'm not going to be well enough to go on walks for probably a few months while I'm recovering post-covid, so @robinjohnson.bsky.social sends me lovely photos when he's out walking the cat.
It helps me feel more connected to outside, and gives me hope. I haven't left my flat in nearly four weeks.
It helps me feel more connected to outside, and gives me hope. I haven't left my flat in nearly four weeks.
November 5, 2025 at 10:00 AM
I'm not going to be well enough to go on walks for probably a few months while I'm recovering post-covid, so @robinjohnson.bsky.social sends me lovely photos when he's out walking the cat.
It helps me feel more connected to outside, and gives me hope. I haven't left my flat in nearly four weeks.
It helps me feel more connected to outside, and gives me hope. I haven't left my flat in nearly four weeks.