Eve
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evenicholls.bsky.social
Eve
@evenicholls.bsky.social
Queer disabled quilter. She/her. Free Palestine.

Neurodivergent? Queer? Joint pain? Go and read up on Ehlers Danlos Syndrome. Yes, even if you're not all that flexible these days. Even if it's not you, it's probably some of your friends.
So after a bit of reading, I think I would be OK with that, only I can't find any small eri silk scarves, let alone affordable ones.

I'm thinking of getting a bit of the fabric instead. I don't know how to dye (except for with Dylon, which seems Wrong for this), but cream suits me.
www.etsy.com
November 16, 2025 at 9:57 AM
She said very firmly that only silk does this, and as she's a professional quilter, I'm going to assume she knows her textiles.
November 16, 2025 at 8:55 AM
I'd heard that "peace silk" is produced by breeding silkworms with no mouths or something, so that they die immediately afterwards anyway?

(would look it up but I need to make breakfast!)
November 16, 2025 at 8:54 AM
I got disabled for life by flu, back in 1997 when I was a healthy teenager. Unfortunately those decades of disability have made me extremely aware of how callous people are.
November 16, 2025 at 8:08 AM
Oh, but disability will never happen to *them*. It happens to those other people. The ones who are silly and don't know how to run their own lives. And vanishingly few of them, of course. Real disability is so rare!

(for anyone in any doubt, YES I'M BEING FACETIOUS.)
November 16, 2025 at 8:06 AM
I figured that word would have spread quickly if they were actually dangerous, yep.

Robin had looked it up and thought it might be hallucinogenic, which really wouldn't have been a good thing to have in that location. But the students would have mobbed it if it was!

Are any fungi toxic to cats?
November 16, 2025 at 7:58 AM
Bones are strictly optional and may turn up in unexpected places.
November 16, 2025 at 7:55 AM
It took me that long to get around to ordering the Lebanese flatbreads! From Lebanon! OK, from Morrisons.
November 15, 2025 at 8:39 PM
They're not as big as they look! It's a really nice portion size. (And that's something I measure carefully, so I can calculate my insulin.)
November 15, 2025 at 8:18 PM
Update: we've just had flatbread pizzas, and they were delicious! Thank you for the recommendation.
November 15, 2025 at 8:09 PM
Great!

If they'd been dangerous I'd have talked to Environmental Health, that's why we asked. Environmental Health have previously removed giant hogweed in a garden next door to the same park, they're definitely not keen on dangerous plants there.
November 15, 2025 at 5:45 PM
I had to go private for the lot, I should mention. A few people get EDS diagnosed on the NHS, but it's hard. The rheumatologist I saw for Sjögren's four years earlier didn't even bother to get me out of my coat to examine me, and then made multiple errors in her report.
November 15, 2025 at 4:15 PM
They're in a busy park, should we worry about dogs or children eating them?
November 15, 2025 at 4:14 PM
I got assessed by a physio who specialises in EDS and scored me at 6/9 on the Beighton scale, then took her report to a video consultation with a geneticist who specialises in EDS. Since it was clear I'm hypermobile type, he didn't run any tests. Those are when the rarer types are suspected.
November 15, 2025 at 4:02 PM
I'm sure I've agreed with my partner about any number of things we wanted which did not come to pass. Scottish independence, for instance.
November 15, 2025 at 3:21 PM
Well, my grandmother had five husbands and still managed to have a child out of wedlock in between. She kind of left her older kids to raise him, she was busy taking up every art and textile craft she could get her hands on.
November 15, 2025 at 1:59 PM
Not me freaking the fuck out whenever I need new glasses, because I can't recognise myself in the mirror for a week if I get a different style!
November 15, 2025 at 1:49 PM
I think the EDS organisations are fine, like this one.

Do you have chronic pain?

I'm bi and AuDHD too. I'm hypermobile at a level I can't see but clinicians can.

www.ehlers-danlos.org
The Ehlers-Danlos Support UK
Our vision is that nobody should be left to fight on their own. Every person with EDS or HSD should have access to the appropriate medical services and care.
www.ehlers-danlos.org
November 15, 2025 at 1:40 PM
If only Pete Postlethwaite had been able to play Killick.
November 15, 2025 at 1:25 PM
Ehlers Danlos Syndrome, the most common type is the hypermobility type. Not everyone realises they're hypermobile, and we stiffen up with age, so don't make assumptions based on whether you're super-bendy or not. It correlates with being neurodivergent, queer and/or trans for some reason.
November 15, 2025 at 1:24 PM