(mostly in bed, mostly homebound)
ME/CFS and probable LC
😷😷😷
Interests: climate, COVID, disability justice, parenting
Ltd cog energy, don't tend to follow back.
Toronto, Canada
She/her/they
- kind of a mess
- parent of middle grade kids (10&12yrs)
- have myalgic encephalomyelitis probably triggered by COVID before community spread was recognized, mostly housebound and only a few hours out of bed a day
- still a climate person in my heart but no energy to activism
That was straight up the choice they made to advertise. This is the userbase they very specifically pandered to.
That was straight up the choice they made to advertise. This is the userbase they very specifically pandered to.
This is what happens when you plan a trial that meets participants where they are, is not overly onerous, and tests something people think is worth trying.
longcovid.scripps.edu/locitt-t/
This is what happens when you plan a trial that meets participants where they are, is not overly onerous, and tests something people think is worth trying.
And yet at Christmas she would bake cookies and mail them to me—such was her desire to provide care for the people she loved.
That’s what my husband asked me.
He’d seen me struggle with insomnia our whole marriage, but #MECFS upped the ante.
Fractured, unrefreshing sleep night after night.
“Maybe you should stop fighting it.”
1/
That’s what my husband asked me.
He’d seen me struggle with insomnia our whole marriage, but #MECFS upped the ante.
Fractured, unrefreshing sleep night after night.
“Maybe you should stop fighting it.”
1/
“When I am in public spaces and see most people unmasked either because they think the virus is a hoax, that masking is virtue signaling & a sign of weakness, aren't thinking about it, or that they simply don’t care, I feel like an expendable burden not worth saving.”
“When I am in public spaces and see most people unmasked either because they think the virus is a hoax, that masking is virtue signaling & a sign of weakness, aren't thinking about it, or that they simply don’t care, I feel like an expendable burden not worth saving.”
good work, John Roberts
How the Swiss convinced Trump to drop tariffs with gifts of a Rolex desk clock and a 1 kg gold bar.
www.axios.com/2025/11/14/t...
good work, John Roberts
Good night Alice. Rest in power, pending justice & peace
Good night Alice. Rest in power, pending justice & peace
I learned so much from her.
She was a bright light in a dark world, & she will always shine.
May her memory forever be a blessing.
I'm so grateful to have known her on social media, and so grateful for all the words she shared with us and all the actions she encouraged us into making.
May we live up to her example.
(so you don't have to go to Instagram)
I learned so much from her.
She was a bright light in a dark world, & she will always shine.
May her memory forever be a blessing.
And I do mean everyone, not just the people who "deserve" it.
That's enough. We've had enough people indulging in the "thrill of a little conservatism", as a treat. Of considering reactionary thought to be a salacious and taboo in a world descending into reactionary mania.
Give me your MOST woke opinions. We're bringing it back.
And I do mean everyone, not just the people who "deserve" it.
Diapers are not “for babies” and you don’t need to tell your kids that at any point.
That's enough. We've had enough people indulging in the "thrill of a little conservatism", as a treat. Of considering reactionary thought to be a salacious and taboo in a world descending into reactionary mania.
Give me your MOST woke opinions. We're bringing it back.
Diapers are not “for babies” and you don’t need to tell your kids that at any point.
Getting mono is no longer the laughing matter that it used to be treated as when I was in highschool.
#disability #healthcare #lupus
'Early findings indicate that Epstein-Barr Virus may also cause the autoimmune disease lupus'
www.scientificamerican.com/article/the-...
Btwn things like this and govt women’s health efforts, I think we’re likely leaving a lot of $ on the table (relative to the nothing we currently get.)
Btwn things like this and govt women’s health efforts, I think we’re likely leaving a lot of $ on the table (relative to the nothing we currently get.)