Billy Hanlon
@bhanlon15.bsky.social
ME/CFS | Long COVID | IACC
Pinned
Hanging with ChatGPT tonight, hope you're right virtual buddy
Reposted by Billy Hanlon
I am grateful for Billy relaying so much important information on Long Covid/MECFS and connecting people together.
Made my day to receive this kind & thoughtful gift today from the one & only @atranscendedman.bsky.social.
Really appreciate you thinking of me & making me feel special.
Thankful for all you do right back & more. And for reinforcing the good in humanity like this act of kindness reflects!
Really appreciate you thinking of me & making me feel special.
Thankful for all you do right back & more. And for reinforcing the good in humanity like this act of kindness reflects!
January 6, 2026 at 3:25 AM
I am grateful for Billy relaying so much important information on Long Covid/MECFS and connecting people together.
Reposted by Billy Hanlon
A federal appeals court ruled US President Donald Trump's administration cannot carry out steep cuts to federal grant funding provided by the National Institutes of Health to universities engaged in scientific and medical research reut.rs/3N7WzZk
January 5, 2026 at 10:05 PM
A federal appeals court ruled US President Donald Trump's administration cannot carry out steep cuts to federal grant funding provided by the National Institutes of Health to universities engaged in scientific and medical research reut.rs/3N7WzZk
Reposted by Billy Hanlon
JUST IN: Trump administration cannot slash NIH research funding, court rules reut.rs/3N7WzZk
January 5, 2026 at 10:02 PM
JUST IN: Trump administration cannot slash NIH research funding, court rules reut.rs/3N7WzZk
Made my day to receive this kind & thoughtful gift today from the one & only @atranscendedman.bsky.social.
Really appreciate you thinking of me & making me feel special.
Thankful for all you do right back & more. And for reinforcing the good in humanity like this act of kindness reflects!
Really appreciate you thinking of me & making me feel special.
Thankful for all you do right back & more. And for reinforcing the good in humanity like this act of kindness reflects!
January 6, 2026 at 2:14 AM
Made my day to receive this kind & thoughtful gift today from the one & only @atranscendedman.bsky.social.
Really appreciate you thinking of me & making me feel special.
Thankful for all you do right back & more. And for reinforcing the good in humanity like this act of kindness reflects!
Really appreciate you thinking of me & making me feel special.
Thankful for all you do right back & more. And for reinforcing the good in humanity like this act of kindness reflects!
Reposted by Billy Hanlon
2/
“The NINDS Director had periodically been criticized, particularly by those with long COVID or myalgic encephalomyelitis/chronic fatigue syndrome, for what they saw as a disregard for these conditions.”
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
“The NINDS Director had periodically been criticized, particularly by those with long COVID or myalgic encephalomyelitis/chronic fatigue syndrome, for what they saw as a disregard for these conditions.”
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
January 5, 2026 at 6:21 PM
2/
“The NINDS Director had periodically been criticized, particularly by those with long COVID or myalgic encephalomyelitis/chronic fatigue syndrome, for what they saw as a disregard for these conditions.”
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
“The NINDS Director had periodically been criticized, particularly by those with long COVID or myalgic encephalomyelitis/chronic fatigue syndrome, for what they saw as a disregard for these conditions.”
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Reposted by Billy Hanlon
"Re-analysis: 200 treatments by 4000 Long Covid/ME patients" by Siebe Rozendal (January 4, 2026)
viralpersistence.substack.com/p/re-analyzi...
#LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
viralpersistence.substack.com/p/re-analyzi...
#LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
January 5, 2026 at 8:31 PM
"Re-analysis: 200 treatments by 4000 Long Covid/ME patients" by Siebe Rozendal (January 4, 2026)
viralpersistence.substack.com/p/re-analyzi...
#LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
viralpersistence.substack.com/p/re-analyzi...
#LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Reposted by Billy Hanlon
Next Wednesday’s APPG ME meeting will focus on what members could do to promote two key issues:
1. Provision of specialist services for v severe ME
2. Better research funding.
Hoping that MPs will respond to constituents’ concerns and turn out as they did for the debate on ME. Nudges welcome 😉.
1. Provision of specialist services for v severe ME
2. Better research funding.
Hoping that MPs will respond to constituents’ concerns and turn out as they did for the debate on ME. Nudges welcome 😉.
December 4, 2025 at 10:45 PM
Next Wednesday’s APPG ME meeting will focus on what members could do to promote two key issues:
1. Provision of specialist services for v severe ME
2. Better research funding.
Hoping that MPs will respond to constituents’ concerns and turn out as they did for the debate on ME. Nudges welcome 😉.
1. Provision of specialist services for v severe ME
2. Better research funding.
Hoping that MPs will respond to constituents’ concerns and turn out as they did for the debate on ME. Nudges welcome 😉.
Reposted by Billy Hanlon
After 3+ years of waiting the Final Delivery Plan for ME is being released today.
Our comment 👇
Our comment 👇
July 22, 2025 at 8:09 AM
After 3+ years of waiting the Final Delivery Plan for ME is being released today.
Our comment 👇
Our comment 👇
Hanging with ChatGPT tonight, hope you're right virtual buddy
January 6, 2026 at 1:17 AM
Hanging with ChatGPT tonight, hope you're right virtual buddy
Reposted by Billy Hanlon
Cort reports on 3 long COVID patients who made a rapid recovery from a monoclonal antibody (maB). Another trial is underway and if successful, should open the door to similar immune drug trials in ME/CFS.
tinyurl.com/3sdz8u3t
tinyurl.com/3sdz8u3t
Three Long-term Long COVID Patients - Three Rapid Recoveries: The Monoclonal Antibodies Strike Again! - Health Rising
Check out 3 long COVID patients who recovered after receiving a monoclonal antibody (mAB) and the state of the mAB field today in long COVID and ME/CFS.
tinyurl.com
December 19, 2025 at 9:56 AM
Cort reports on 3 long COVID patients who made a rapid recovery from a monoclonal antibody (maB). Another trial is underway and if successful, should open the door to similar immune drug trials in ME/CFS.
tinyurl.com/3sdz8u3t
tinyurl.com/3sdz8u3t
Reposted by Billy Hanlon
The New Scientist assesses the significance of recent research from Precision Life into genetic variants in ME/CFS called single nucleotide polymorphisms (SNPs). The researchers believe they are opening up new avenues for novel therapy development or for drug repurposing."
archive.ph/wCNMm
archive.ph/wCNMm
archive.ph
December 19, 2025 at 10:34 AM
The New Scientist assesses the significance of recent research from Precision Life into genetic variants in ME/CFS called single nucleotide polymorphisms (SNPs). The researchers believe they are opening up new avenues for novel therapy development or for drug repurposing."
archive.ph/wCNMm
archive.ph/wCNMm
Reposted by Billy Hanlon
Cort highlights Hanson's research that found that Exercise appears to produce inflammation & oxidative stress, which plugs up the small blood vessels and reduces blood flows to the muscles. The muscles are not damaged – they’re just not functioning.
tinyurl.com/5cthtrrk
tinyurl.com/5cthtrrk
Exercise is Not Producing Muscle Damage in ME/CFS: PEM May All Be About Muscle Repair - Health Rising
The Hanson group strikes again! Maureen Hanson is clearly determined to get at what happens during exercise in ME/CFS. Not only does she regularly employ exercise stressors (wake up, long-COVID resear...
tinyurl.com
December 22, 2025 at 11:15 AM
Cort highlights Hanson's research that found that Exercise appears to produce inflammation & oxidative stress, which plugs up the small blood vessels and reduces blood flows to the muscles. The muscles are not damaged – they’re just not functioning.
tinyurl.com/5cthtrrk
tinyurl.com/5cthtrrk
Reposted by Billy Hanlon
Mark Isherwood MS talks about the need for Welsh Government to improve support, training and awareness for people with ME and stroke survivors.
tinyurl.com/2v9yvxa3
tinyurl.com/2v9yvxa3
A view from Mark Isherwood – Welsh Conservative North Wales Member of the Senedd
Wrexham.com has invited the four North Wales Members of the Senedd to write a monthly column with updates on their work. You can find their updates – along with contributions from the Wrexham and Clwy...
tinyurl.com
January 5, 2026 at 12:23 PM
Mark Isherwood MS talks about the need for Welsh Government to improve support, training and awareness for people with ME and stroke survivors.
tinyurl.com/2v9yvxa3
tinyurl.com/2v9yvxa3
Reposted by Billy Hanlon
ME/CFS Science Blog reviews the most interesting ME/CFS studies in 2025, including DecodeME, the daratumumab trial, autopsy findings from the Netherlands, and the most extensive study on antibodies in ME/CFS to date.
tinyurl.com/25wjuc3m
tinyurl.com/25wjuc3m
2025: looking back on a year of ME/CFS research - ME/CFS Science
In 2025, scientists made a significant step towards understanding the pathophysiology of ME/CFS. It mayContinue reading2025: looking back on a year of ME/CFS research
tinyurl.com
January 5, 2026 at 12:25 PM
ME/CFS Science Blog reviews the most interesting ME/CFS studies in 2025, including DecodeME, the daratumumab trial, autopsy findings from the Netherlands, and the most extensive study on antibodies in ME/CFS to date.
tinyurl.com/25wjuc3m
tinyurl.com/25wjuc3m
Reposted by Billy Hanlon
AfME CEO Sonya Chowdhury calls for research & treatment to build on recent development & for funding for ME research to be equitable with other illnesses. That would mean £18.5 million instead of the £8.05 million spent on ME research over the last 10 years.
tinyurl.com/bdzb8efw
tinyurl.com/bdzb8efw
Treatment for ME has turned a corner - the UK must not leave patients waiting | LBC
Let’s make this the decade we finally develop treatments for this condition, writes Sonya Chowdhury
tinyurl.com
January 5, 2026 at 12:28 PM
AfME CEO Sonya Chowdhury calls for research & treatment to build on recent development & for funding for ME research to be equitable with other illnesses. That would mean £18.5 million instead of the £8.05 million spent on ME research over the last 10 years.
tinyurl.com/bdzb8efw
tinyurl.com/bdzb8efw
Reposted by Billy Hanlon
Drs Cheney and Peterson led the search for the cause of the Tahoe illness outbreak in California in the 1980s, which they first thought was mononucleosis (glandular fever). They were successful in getting a new illness recognised in the US in 1988 - chronic fatigue syndrome.
tinyurl.com/nnabf7n3
tinyurl.com/nnabf7n3
Forty Years Ago, a Mysterious Outbreak Plagued Tahoe/Truckee - Moonshine Ink
In 1985, a strange illness swept through North Tahoe and Truckee. Thanks to the diligence of two Incline Village doctors, a new condition was eventually recognized by the medical community — chronic f...
tinyurl.com
December 18, 2025 at 11:17 AM
Drs Cheney and Peterson led the search for the cause of the Tahoe illness outbreak in California in the 1980s, which they first thought was mononucleosis (glandular fever). They were successful in getting a new illness recognised in the US in 1988 - chronic fatigue syndrome.
tinyurl.com/nnabf7n3
tinyurl.com/nnabf7n3
Health Rising: 'An Enigma No More? Is ME/CFS an Acquired Muscle Myopathy Disease?'
'The authors believe all the different types of ME/CFS probably converge on the same central problem: poor blood flows which trigger mitochondrial damage in the muscles...'
www.healthrising.org/blog/2026/01...
'The authors believe all the different types of ME/CFS probably converge on the same central problem: poor blood flows which trigger mitochondrial damage in the muscles...'
www.healthrising.org/blog/2026/01...
An Enigma No More? Is ME/CFS an Acquired Muscle Myopathy Disease? - Health Rising
Klaus Wirth shows how ME/CFS and long COVID may be acquired muscle diseases caused by poor blood flows and mitochondrial dysfunction
www.healthrising.org
January 6, 2026 at 12:34 AM
Health Rising: 'An Enigma No More? Is ME/CFS an Acquired Muscle Myopathy Disease?'
'The authors believe all the different types of ME/CFS probably converge on the same central problem: poor blood flows which trigger mitochondrial damage in the muscles...'
www.healthrising.org/blog/2026/01...
'The authors believe all the different types of ME/CFS probably converge on the same central problem: poor blood flows which trigger mitochondrial damage in the muscles...'
www.healthrising.org/blog/2026/01...
CIDRAP: 'In utero COVID exposure linked to brain changes, developmental delays, anxiety, and depression'
“Further studies into the longitudinal effects of this exposure are currently ongoing. Further work is required to see how children exposed to the virus.."
www.cidrap.umn.edu/covid-19/ute...
“Further studies into the longitudinal effects of this exposure are currently ongoing. Further work is required to see how children exposed to the virus.."
www.cidrap.umn.edu/covid-19/ute...
In utero COVID exposure linked to brain changes, developmental delays, anxiety, and depression
www.cidrap.umn.edu
January 5, 2026 at 11:58 PM
CIDRAP: 'In utero COVID exposure linked to brain changes, developmental delays, anxiety, and depression'
“Further studies into the longitudinal effects of this exposure are currently ongoing. Further work is required to see how children exposed to the virus.."
www.cidrap.umn.edu/covid-19/ute...
“Further studies into the longitudinal effects of this exposure are currently ongoing. Further work is required to see how children exposed to the virus.."
www.cidrap.umn.edu/covid-19/ute...
Reposted by Billy Hanlon
Nothing like getting ready for in-person doctor’s appt with #MECFS
Subjecting myself to (likely) more medical trauma for little reward and knowing I’ll be in even worse shape until March 🫠
Subjecting myself to (likely) more medical trauma for little reward and knowing I’ll be in even worse shape until March 🫠
Im Having A Lot Fun This Is Really Fun For Me Dan Levy GIF
Alt: GIF of Dan Levy in Schitt’s Creek saying “I’m having a lot of fun.
media.tenor.com
January 5, 2026 at 5:18 PM
Nothing like getting ready for in-person doctor’s appt with #MECFS
Subjecting myself to (likely) more medical trauma for little reward and knowing I’ll be in even worse shape until March 🫠
Subjecting myself to (likely) more medical trauma for little reward and knowing I’ll be in even worse shape until March 🫠
Reposted by Billy Hanlon
Economic instability and poor social or community context, including food insecurity or discrimination, were associated with increased odds of pediatric #LongCOVID in the RECOVER-Pediatrics cohort.
ja.ma/49Dv6Y9
ja.ma/49Dv6Y9
January 5, 2026 at 5:00 PM
Economic instability and poor social or community context, including food insecurity or discrimination, were associated with increased odds of pediatric #LongCOVID in the RECOVER-Pediatrics cohort.
ja.ma/49Dv6Y9
ja.ma/49Dv6Y9
SELF: 'This Is How Long It Takes to Recover From the ‘Super Flu,’ According to Doctors'
'The flu is a serious illness, and recovery can take time.'
'..Dr. Adalja says...there’s even something called long influenza syndrome..(Think long COVID, but with the flu.)'
www.self.com/story/flu-ho...
'The flu is a serious illness, and recovery can take time.'
'..Dr. Adalja says...there’s even something called long influenza syndrome..(Think long COVID, but with the flu.)'
www.self.com/story/flu-ho...
This Is How Long It Takes to Recover From the ‘Super Flu,’ According to Doctors
The flu is a serious illness, and recovery can take time.
www.self.com
January 5, 2026 at 10:35 PM
SELF: 'This Is How Long It Takes to Recover From the ‘Super Flu,’ According to Doctors'
'The flu is a serious illness, and recovery can take time.'
'..Dr. Adalja says...there’s even something called long influenza syndrome..(Think long COVID, but with the flu.)'
www.self.com/story/flu-ho...
'The flu is a serious illness, and recovery can take time.'
'..Dr. Adalja says...there’s even something called long influenza syndrome..(Think long COVID, but with the flu.)'
www.self.com/story/flu-ho...
AJMC: 'Adequately Addressing SDOH Could Alter Risk of Pediatric Long COVID'
www.ajmc.com/view/adequat...
www.ajmc.com/view/adequat...
Adequately Addressing SDOH Could Alter Risk of Pediatric Long COVID | AJMC
Economic stability and social factors significantly influence the risk of pediatric long COVID, highlighting the need for targeted health interventions.
www.ajmc.com
January 5, 2026 at 10:33 PM
AJMC: 'Adequately Addressing SDOH Could Alter Risk of Pediatric Long COVID'
www.ajmc.com/view/adequat...
www.ajmc.com/view/adequat...
CIDRAP: 'Study outlines recurring symptom clusters that define long COVID'
'A team led by Lanzhou University researchers in Gansu, China, analyzed 64 studies from 20 countries involving 2.4 million people.'
'Fatigue the most frequently identified symptom'
www.cidrap.umn.edu/covid-19/stu...
'A team led by Lanzhou University researchers in Gansu, China, analyzed 64 studies from 20 countries involving 2.4 million people.'
'Fatigue the most frequently identified symptom'
www.cidrap.umn.edu/covid-19/stu...
Study outlines recurring symptom clusters that define long COVID
www.cidrap.umn.edu
January 5, 2026 at 10:32 PM
CIDRAP: 'Study outlines recurring symptom clusters that define long COVID'
'A team led by Lanzhou University researchers in Gansu, China, analyzed 64 studies from 20 countries involving 2.4 million people.'
'Fatigue the most frequently identified symptom'
www.cidrap.umn.edu/covid-19/stu...
'A team led by Lanzhou University researchers in Gansu, China, analyzed 64 studies from 20 countries involving 2.4 million people.'
'Fatigue the most frequently identified symptom'
www.cidrap.umn.edu/covid-19/stu...
Reposted by Billy Hanlon
In a study following 23 million people age 18-59 (pretty young) for 4 years…despite the fact that the ones who got the COVID vaccine were overall older and sicker at baseline, they not only had 74% lower risk of dying from COVID than the unvaccinated but 25% lower risk of dying from any other cause!
January 4, 2026 at 8:59 PM
In a study following 23 million people age 18-59 (pretty young) for 4 years…despite the fact that the ones who got the COVID vaccine were overall older and sicker at baseline, they not only had 74% lower risk of dying from COVID than the unvaccinated but 25% lower risk of dying from any other cause!
Reposted by Billy Hanlon
Interesting reanalysis of the TREATME data weighted for effect size. However, it was done with AI and not systematically checked for accuracy, so it may not be reliable. It’s an interesting concept tho.
#MECFS #LongCovid
#MECFS #LongCovid
Re-analysis: 200 treatments by 4000 Long Covid/ME patients
I ranked 200+ treatments by effect scores and got a new Top 5
viralpersistence.substack.com
January 4, 2026 at 9:49 PM
Interesting reanalysis of the TREATME data weighted for effect size. However, it was done with AI and not systematically checked for accuracy, so it may not be reliable. It’s an interesting concept tho.
#MECFS #LongCovid
#MECFS #LongCovid