vee.soy
@vashetc.bsky.social
doktora. perpetually horizontal. writer, researcher, simmer.
pfp: brown skin lady with black curly hair wearing a white knit vest smiles. banner: same lady holds megaphone wearing a cops off campus shirt at protest
vashetc.com
pfp: brown skin lady with black curly hair wearing a white knit vest smiles. banner: same lady holds megaphone wearing a cops off campus shirt at protest
vashetc.com
Pinned
vee.soy
@vashetc.bsky.social
· 13d
Encrypted Form
CryptPad: end-to-end encrypted collaboration suite
cryptpad.fr
If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues.
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Responses are anonymous!
cryptpad.fr/form/#/2/for...
I know it’s bad but I keep eating these sugar cookies with vanilla icing on it… I can’t stop 😭 they’re so good lmao
December 26, 2025 at 12:15 AM
I know it’s bad but I keep eating these sugar cookies with vanilla icing on it… I can’t stop 😭 they’re so good lmao
A lovely family from my local ME Action chapter came to help make my lunch yesterday and they bought me a gift… it turns out it was one of those expensive large ugg fuzzy throw blankets 😭 I’m currently drinking tea under it right now. So grateful for kind strangers!
December 25, 2025 at 11:24 PM
A lovely family from my local ME Action chapter came to help make my lunch yesterday and they bought me a gift… it turns out it was one of those expensive large ugg fuzzy throw blankets 😭 I’m currently drinking tea under it right now. So grateful for kind strangers!
I’m starting to get crows feet and honestly, I love it. 🥹 a reminder that I have smiled so often in life.
December 25, 2025 at 11:17 PM
I’m starting to get crows feet and honestly, I love it. 🥹 a reminder that I have smiled so often in life.
It’s my first Christmas alone and conscious (prior years I was alone but had v severe me) and I felt lonely last night but feeling much better today. I enjoyed the sun, called my friends and family, and made vegan sugar cookies with vanilla icing. watched corny rom coms and am at peace ❤️
December 25, 2025 at 9:30 PM
It’s my first Christmas alone and conscious (prior years I was alone but had v severe me) and I felt lonely last night but feeling much better today. I enjoyed the sun, called my friends and family, and made vegan sugar cookies with vanilla icing. watched corny rom coms and am at peace ❤️
my mom insisting they come when they're sick bc "i cant spend christmas alone". girl IM CHILLIN id rather spend every single christmas alone then have covid over christmas EVER again tf. lmao. talm bout "we will just come in side masked". girl what D: not in this apartment
protect ur boundaries lol
protect ur boundaries lol
December 23, 2025 at 5:24 AM
my mom insisting they come when they're sick bc "i cant spend christmas alone". girl IM CHILLIN id rather spend every single christmas alone then have covid over christmas EVER again tf. lmao. talm bout "we will just come in side masked". girl what D: not in this apartment
protect ur boundaries lol
protect ur boundaries lol
good news, my siblings care enough about my health to tell me my nieces are sick and they wont be coming to visit. bad news is they exposed everyone in the family so NO ONE is coming. i cant get caregiving last min and have to figure out how to take care of myself for a few days over Christmas. 😭
December 23, 2025 at 4:34 AM
good news, my siblings care enough about my health to tell me my nieces are sick and they wont be coming to visit. bad news is they exposed everyone in the family so NO ONE is coming. i cant get caregiving last min and have to figure out how to take care of myself for a few days over Christmas. 😭
had a convo with my caregiver about body dysmorphia and struggling as someone who became a non ambulatory wheelchair user & she told me about how it felt transitioning. and it was just such a beautiful conversation on disability, being trans, and self love/hate. feeling like ur body is not urs
December 22, 2025 at 3:20 AM
had a convo with my caregiver about body dysmorphia and struggling as someone who became a non ambulatory wheelchair user & she told me about how it felt transitioning. and it was just such a beautiful conversation on disability, being trans, and self love/hate. feeling like ur body is not urs
these LDN trials are so indicative of some of the root issues of clinical design for lc :( having LDN trials at even 1.5mg is so far removed from the actual process for people w lc or me. Patients are having to be their own chemists titrating up from .1mg... meanwhile trials are not reflecting that
December 21, 2025 at 6:56 PM
these LDN trials are so indicative of some of the root issues of clinical design for lc :( having LDN trials at even 1.5mg is so far removed from the actual process for people w lc or me. Patients are having to be their own chemists titrating up from .1mg... meanwhile trials are not reflecting that
My best friend/ex roommates engagement went well, she said yes 😍😍😍 beaming with joy
December 21, 2025 at 7:08 AM
My best friend/ex roommates engagement went well, she said yes 😍😍😍 beaming with joy
Reposted by vee.soy
If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues.
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Encrypted Form
CryptPad: end-to-end encrypted collaboration suite
cryptpad.fr
December 12, 2025 at 5:31 PM
If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues.
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Reposted by vee.soy
for ppl filling out the survey, pls dont forget that its for people with ME. 💙 if you have LC, but not ME, this one isnt for you I am sad to say! But if you have LC AND ME, please do fill it out!
If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues.
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Encrypted Form
CryptPad: end-to-end encrypted collaboration suite
cryptpad.fr
December 18, 2025 at 6:51 AM
for ppl filling out the survey, pls dont forget that its for people with ME. 💙 if you have LC, but not ME, this one isnt for you I am sad to say! But if you have LC AND ME, please do fill it out!
Reposted by vee.soy
Good day. We're at $75/$260. If you could RT that would be awesome. Would love to wrap this up for them.🙂
Good day, this week's mutual aid request is help with a medical bill and groceries for a DV family. We're at $25/$260. Please RT for reach. Thank you. 😍🙂 If you'd like to support:
C: $Lockdownyourlife
V: lockdownyourlife
www.ko-fi.com/lockdownyour...
C: $Lockdownyourlife
V: lockdownyourlife
www.ko-fi.com/lockdownyour...
December 19, 2025 at 4:08 PM
Good day. We're at $75/$260. If you could RT that would be awesome. Would love to wrap this up for them.🙂
me after spending hours trying to write bill language that is going to get chopped n skr3wed by the assembly committees anyways
a cartoon dog is laying on a green bean bag chair
ALT: a cartoon dog is laying on a green bean bag chair
media.tenor.com
December 19, 2025 at 6:02 AM
me after spending hours trying to write bill language that is going to get chopped n skr3wed by the assembly committees anyways
you guys idk how are we gonna do this for another three years?
December 19, 2025 at 2:18 AM
you guys idk how are we gonna do this for another three years?
Can someone please tell me what brand of eggs to buy in California that doesnt taste like fish 😭😭 it’s so gnarly and it’s been the last three brands. I can’t take it!! it’s so gross
December 18, 2025 at 11:05 PM
Can someone please tell me what brand of eggs to buy in California that doesnt taste like fish 😭😭 it’s so gnarly and it’s been the last three brands. I can’t take it!! it’s so gross
three things i learned today from my medicaid hearing:
1. apparently medicaid benefits are doled out sequentially meaning if you are eligible for full scope MAGI medicaid you are automatically NOT eligible for wdp 250%?...
2. medicaid state hearings do NOT let you retrospectively enroll in wdp 250%
1. apparently medicaid benefits are doled out sequentially meaning if you are eligible for full scope MAGI medicaid you are automatically NOT eligible for wdp 250%?...
2. medicaid state hearings do NOT let you retrospectively enroll in wdp 250%
i have a medicaid hearing right now. No one sent me a link. The email they gave me returns an error. And they say to call ten minutes before your hearing and put you on hold. I am so fucking mad.
December 18, 2025 at 9:51 PM
three things i learned today from my medicaid hearing:
1. apparently medicaid benefits are doled out sequentially meaning if you are eligible for full scope MAGI medicaid you are automatically NOT eligible for wdp 250%?...
2. medicaid state hearings do NOT let you retrospectively enroll in wdp 250%
1. apparently medicaid benefits are doled out sequentially meaning if you are eligible for full scope MAGI medicaid you are automatically NOT eligible for wdp 250%?...
2. medicaid state hearings do NOT let you retrospectively enroll in wdp 250%
i have a medicaid hearing right now. No one sent me a link. The email they gave me returns an error. And they say to call ten minutes before your hearing and put you on hold. I am so fucking mad.
December 18, 2025 at 9:00 PM
i have a medicaid hearing right now. No one sent me a link. The email they gave me returns an error. And they say to call ten minutes before your hearing and put you on hold. I am so fucking mad.
Reposted by vee.soy
So the guy down the street replaced a shift sensor but the car still will not operate in reverse so I need to start raising funds for either someone to assess the transmission in my 20 year old car or to put toward a new car. 😔🫠😩😭
V: colocha_rachel
$: ColochaRachel
Paypal via DM
V: colocha_rachel
$: ColochaRachel
Paypal via DM
Got my car stuck in the snow and fucked up either the shift connector or the transmission and it’s gonna become a cascade if I can’t raise the funds for the repair.
Just a garbage way of living where everyone can just be crushed to slow death by billionaires.
Just a garbage way of living where everyone can just be crushed to slow death by billionaires.
December 18, 2025 at 7:34 PM
So the guy down the street replaced a shift sensor but the car still will not operate in reverse so I need to start raising funds for either someone to assess the transmission in my 20 year old car or to put toward a new car. 😔🫠😩😭
V: colocha_rachel
$: ColochaRachel
Paypal via DM
V: colocha_rachel
$: ColochaRachel
Paypal via DM
the absolute anxiety and dread i have attending this court hearing without legal representation. im going to crash for like a month. im so over this shit. i hate being poor and i hate medicaid
December 18, 2025 at 8:05 PM
the absolute anxiety and dread i have attending this court hearing without legal representation. im going to crash for like a month. im so over this shit. i hate being poor and i hate medicaid
tw: su*cide 🧵
Folks need to examine philosophically why it is that—in the span of just a couple of years—the leaders of the American Democratic, Canadian Liberal & British Labour Parties have all gone all in on assisred suicide (while making healthcsre harder to attain) www.cityandstateny.com/policy/2025/...
December 18, 2025 at 7:19 PM
tw: su*cide 🧵
writing policy is so hard bc you are trying to work within this bureaucratic legalistic framework that does not allow for the creativity & imagination you so want + that people need
i have had a headache for a week over this fr. feels like ur just like adding a splash of water onto a roaring fire
i have had a headache for a week over this fr. feels like ur just like adding a splash of water onto a roaring fire
December 18, 2025 at 7:03 PM
writing policy is so hard bc you are trying to work within this bureaucratic legalistic framework that does not allow for the creativity & imagination you so want + that people need
i have had a headache for a week over this fr. feels like ur just like adding a splash of water onto a roaring fire
i have had a headache for a week over this fr. feels like ur just like adding a splash of water onto a roaring fire
for ppl filling out the survey, pls dont forget that its for people with ME. 💙 if you have LC, but not ME, this one isnt for you I am sad to say! But if you have LC AND ME, please do fill it out!
If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues.
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Encrypted Form
CryptPad: end-to-end encrypted collaboration suite
cryptpad.fr
December 18, 2025 at 6:51 AM
for ppl filling out the survey, pls dont forget that its for people with ME. 💙 if you have LC, but not ME, this one isnt for you I am sad to say! But if you have LC AND ME, please do fill it out!
today, i sat in my wheelchair for 3 meetings. i wanted to look professional for my meeting with staffers.
the good news is i think our bill package will be introduced in January (i could weep). this is the first bill i've ever sponsored
the bad news is girl wtf was i thinking sittin in that chair
the good news is i think our bill package will be introduced in January (i could weep). this is the first bill i've ever sponsored
the bad news is girl wtf was i thinking sittin in that chair
December 18, 2025 at 5:50 AM
today, i sat in my wheelchair for 3 meetings. i wanted to look professional for my meeting with staffers.
the good news is i think our bill package will be introduced in January (i could weep). this is the first bill i've ever sponsored
the bad news is girl wtf was i thinking sittin in that chair
the good news is i think our bill package will be introduced in January (i could weep). this is the first bill i've ever sponsored
the bad news is girl wtf was i thinking sittin in that chair