Julia MV
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julialmv.bsky.social
Julia MV
@julialmv.bsky.social
2.1K followers 72 following 230 posts
Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
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julialmv.bsky.social
Julia MV @julialmv.bsky.social · 27d
Thanks to the Long COVID community, eligibility screening for LoCITT-T is now closed, 41 days after it oopened.

We'll share more about what's ahead on 12/17 at 2:30 eastern / 11:30 pacific.
scrippsresearch.zoom.us/webinar/regi...

For those who have taken the screener but not consented yet...

1/2
You are invited to join a webinar: Long COVID Treatment Trial-Tirzepatide (LoCITT-T): TBD. Registration is required and after registering, you will receive a confirmation email about joining the webin...
In this session, we will share updates on how the Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is progressing and discuss why continued engagement from all study participants is important for gen...
scrippsresearch.zoom.us
julialmv.bsky.social
Podcasters & social media folks - take a look at this opportunity to do important work with amazing humans!
thesicktimes.org The Sick Times @thesicktimes.org · 3h
The Sick Times is looking for a new podcast and social media producer to join our remote team part-time!

This producer will revive our weekly podcast, Still Here, help expand our social media presence, and assist with other editorial tasks.

Deadline: Jan 20

Details: bit.ly/4prJkjy
A graphic of a person holding a The Sick Times tote bag while wearing black Chuck Taylors and wide-legged pants. The text reads, “We are hiring. Podcast + social media producer. Join our remote part-time team. Revive our weekly podcast, Still Here. Help expand our social media presence. Assist with other editorial tasks.” Black text on a purple background reads, “The Sick Times. Potential podcast and social media producer duties include: * Coordinating with editors to plan a “season two” (and beyond) of the podcast Still Here, including potential adaptations to the podcast’s schedule and editorial, social, and promotional strategy; * Planning regular episodes, booking guests, and writing interview questions and scripts, with room for occasional special/themed episodes based on interest; * Recording and editing podcast audio (experience with Riverside.fm, Adobe Audition, Audacity, or a similar tool preferred); * * * Uploading podcast episodes on our RSS feed and website and writing accompanying blurbs;” Black text on a purple background reads, “The Sick Times. Potential podcast and social media producer duties include: * Editing podcast transcripts for clarity; * Coordinating with our engagement editor to produce short videos from podcast recordings to share on our social media channels; * Producing other short videos based on web stories; * Contributing to coverage of major Long COVID and IACC research events, such as scientific meetings and online symposia; * Writing and editing web stories based on interest and capacity. Black text on a purple background reads, “The Sick Times. An ideal applicant will have experience covering science and health topics in addition to audio and video production. We strongly encourage applicants who have personal experience with Long COVID and related diseases, as well as applicants with other marginalized identities, to apply. We’re open to international applicants who can be available for occasional meetings on U.S. time zones and who live in countries supported by Gusto, the HR platform that our fiscal sponsor uses. To apply: Please send your resume and a brief email (3-4 paragraphs) detailing your applicable experience and work samples to editors@thesicktimes.org by 11:59 p.m. ET on Tuesday, January 20. Include “podcast producer application” in the subject line. We will not review any applications that were drafted with AI.:”
January 7, 2026 at 5:11 PM
julialmv.bsky.social
Important safety update among the info synthesized here:

"...these analyses do not demonstrate an increased risk of suicidal ideation with use of GLP-1 medicines, with the majority of analyses revealing a similar or lower risk for incident or recurrent suicidal ideation..."

doi.org/10.1038/s415...
The expanding landscape of GLP-1 medicines - Nature Medicine
This Review discusses the expansion of glucagon-like peptide-1 (GLP-1) medicines beyond type 2 diabetes and obesity, outlining opportunities for new indications, key questions around benefits and long...
doi.org
January 5, 2026 at 8:11 PM
Reposted by Julia MV
emilyesfraser.bsky.social
Meighan fights SO hard for the Long Covid community—please share/boost/donate if you’re able 🩵
January 5, 2026 at 4:39 PM
Reposted by Julia MV
kristinwrites.bsky.social
Excellent paper. I really hope #LongCovid researchers implement these recommendations.
December 20, 2025 at 2:18 AM
julialmv.bsky.social
Out today - our recommendations for Long COVID clinical trial design, focusing on currently available outcome measures:
www.sciencedirect.com/science/arti...

We make 5 overarching recommendations for Long COVID clinical trials:
1) thorough characterisation of baseline disease

1/3
Recommended long COVID outcome measures and their implications for clinical trial design, with a focus on post-exertional malaise
Long COVID has created a worldwide public health crisis and has no approved treatments or validated biomarkers. We summarize the current challenges an…
www.sciencedirect.com
December 19, 2025 at 5:00 PM
Reposted by Julia MV
chromatowski.bsky.social
Holiday gathering reminder 🎁

If your guests test w/rapids twice before the event, 48 hours apart, it’ll catch 63% of Covid cases even if they have no symptoms. Testing 3x improves that to 79%!

This is how we curb the annual January surge that gave me Long Covid—thanks for protecting yr community 🤍
Study Examines Performance of Serial COVID Testing - News Center
Testing performance of rapid antigen tests for SARS-CoV-2 improved for both asymptomatic and symptomatic patients after testing multiple times in 48-hour intervals, according to findings published in ...
news.feinberg.northwestern.edu
December 14, 2025 at 10:57 PM
Reposted by Julia MV
vashetc.bsky.social
At 27 responses! I am aiming for at least 50, 100 would be great. Here's a sneak peek of some of the ratings.

I also spoke with a few doctors running LC & ME trials to get their take on legislative priorities!

Please keep sharing :)
A bar graph showing some results from the survey. This is for the question ranking priorities. Funding for clinical trials has 19 high priority votes, 4 medium, 3 low. Physician training has 25 high, 1 medium, no low. Awareness campaigns has 16 high, 4 medium, 5 low. SSDI/SSI assistance 15 high, 8 medium.. and screenshot is cropped there.
December 16, 2025 at 4:12 AM
Reposted by Julia MV
kaufmanmd.bsky.social
Great piece by Eric Topol!! A must read.
December 15, 2025 at 6:21 AM
Reposted by Julia MV
erictopol.bsky.social
Important new, large (N>28,000 women) randomized clinical trial of breast cancer screening: age-based vs risk-based by polygenic risk score, genomics
"opportunity to modernize screening"
jamanetwork.com/journals/jam...
Risk-Based vs Annual Breast Cancer Screening
This randomized clinical trial examines whether risk-based screening is a safe and effective alternative to annual mammography for detecting breast cancer in women 40 years and older.
jamanetwork.com
December 12, 2025 at 5:00 PM
Reposted by Julia MV
vashetc.bsky.social
If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues.

Responses are anonymous!

cryptpad.fr/form/#/2/for...
Encrypted Form
CryptPad: end-to-end encrypted collaboration suite
cryptpad.fr
December 12, 2025 at 5:31 PM
julialmv.bsky.social
Thanks to the Long COVID community, eligibility screening for LoCITT-T is now closed, 41 days after it oopened.

We'll share more about what's ahead on 12/17 at 2:30 eastern / 11:30 pacific.
scrippsresearch.zoom.us/webinar/regi...

For those who have taken the screener but not consented yet...

1/2
You are invited to join a webinar: Long COVID Treatment Trial-Tirzepatide (LoCITT-T): TBD. Registration is required and after registering, you will receive a confirmation email about joining the webin...
In this session, we will share updates on how the Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is progressing and discuss why continued engagement from all study participants is important for gen...
scrippsresearch.zoom.us
December 10, 2025 at 10:05 PM
julialmv.bsky.social
I'm consistently impressed by the crucial content @thesicktimes.org publishes

(yes, their end of year fundraiser is still going on if you want to support and/or share the-sick-times.fundjournalism.org/donate/)
December 10, 2025 at 5:46 PM
julialmv.bsky.social
There are a lot of horrifying things happening in the world, but it is a special kind of infuriating that someone in an official government role would waste time on this "petty" (as Rachel Levine called it) act when they should be addressing the numerous legitimate challenges our nation is facing.
munkeatlooi.bsky.social Mun-Keat Looi @munkeatlooi.bsky.social · 29d
HHS changed the name of transgender health leader on her official portrait buff.ly/OvneUg9
Outrageous thing to do to Rachel Levine, one of the nicest people I've interviewed.
HHS changed the name of transgender health leader on her official portrait
www.npr.org
December 9, 2025 at 4:05 PM
julialmv.bsky.social
We're hosting a LoCITT-T update webinar on 12/17 at 2:30 eastern / 11:30 pacific.

We've received a lot of questions about what the experience might be like for those who believe they're receiving the placebo. We'll answer those & more.

Register here: scrippsresearch.zoom.us/webinar/regi...

1/2
You are invited to join a webinar: Long COVID Treatment Trial-Tirzepatide (LoCITT-T): TBD. Registration is required and after registering, you will receive a confirmation email about joining the webin...
In this session, we will share updates on how the Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is progressing and discuss why continued engagement from all study participants is important for gen...
scrippsresearch.zoom.us
December 9, 2025 at 3:35 PM
Reposted by Julia MV
chromatowski.bsky.social
Fewer than 50 slots left in this Long Covid trial (down from 1000!)

They’re especially hoping to enroll folks from North Dakota, Mississippi and Puerto Rico, as well as more BIPOC participants.

To sign up: longcovid.scripps.edu/locitt-t/?ut...
December 4, 2025 at 8:56 PM
Reposted by Julia MV
chromatowski.bsky.social
Note also there are quite a lot of people who started but not yet finished enrollment, so if that’s you and you do want to participate, now’s the time!
julialmv.bsky.social Julia MV @julialmv.bsky.social · Nov 26
There are >800 LoCITT-T participants, & >200 people who are eligible & just need to take one more step to claim their spot.

There's time for new folks to join!

We're particularly hoping to enroll folks from ND, MS, & PR & more BIPOC participants:
longcovid.scripps.edu/locitt-t/?ut...
Map of the US with states colored by the number of LoCITT participants per state: States with 20+ are WA, OR, CA, CO, TX, MD, MO, IL, MI, OH, PA, NY, MA, MD, VA, NC, FL States with 0 are ND, MS, HI The rest have between 1 and 19 participants
December 4, 2025 at 11:55 PM
julialmv.bsky.social
“You are wasting taxpayer dollars by not having a scientific discussion...

The best thing you can do is adjourn the meeting and discuss vaccine issues that actually need to be taken up.

...

Your job as a committee is to look at the totality of the risks and benefits, the harms, the equity…"
kgandersen.bsky.social Kristian G. Andersen @kgandersen.bsky.social · Dec 4
As for the #ACIP meeting today, this is the only thing you need to watch.

And, to be clear, you do need to watch this.
December 4, 2025 at 6:50 PM
Reposted by Julia MV
julialmv.bsky.social
Now >900 LoCITT-T participants.

We're close to a last call for participants!

Still hoping to enroll folks from ND, MS, & PR & more BIPOC participants:
longcovid.scripps.edu/locitt-t/?ut...
December 1, 2025 at 5:20 PM
Reposted by Julia MV
erictopol.bsky.social
A new review of post-infection syndromes, including #LongCovid, and its diverse immunologic manifestations www.cell.com/trends/immun... by @virusesimmunity.bsky.social and colleagues
December 4, 2025 at 3:47 PM
Reposted by Julia MV
epiellie.bsky.social
If I had all the resources of the federal government and a particular interest in long-term follow-up studies of vaccine trials, I would simply DO long-term follow-up studies of all the vaccine trials we’ve already done.
December 4, 2025 at 4:31 PM
julialmv.bsky.social
This was surprisingly fun!

Love that they included what proportion of your images have alt text (100% here!)
Word cloud visualization for 2025 showing your 50 most-used words, sized by frequency. Top 10: "covid" (52×), "trial" (29×), "trials" (23×), "participants" (21×), "research" (18×), "health" (14×), "clinical" (13×), "hope" (12×), "locittt" (11×), "folks" (11×) (from Anisota's Annual Bluesky Harvest) Emoji bubble chart for 2025 showing 13 different emojis used 27 times total, visualized as bubbles sized by frequency. Top 10: 😭 (8×), ❤‍🩹 (6×), ❤ (2×), 🔥 (2×), 😅 (1×), ⬇ (1×), 💯 (1×), 😬 (1×), 🌟 (1×), 🌼 (1×) (from Anisota's Annual Bluesky Harvest)
December 4, 2025 at 3:47 PM
Reposted by Julia MV
patientled.bsky.social
We're thrilled to announce that thanks to two generous donors, the Silver Giving Foundation and Lunardelli-McRee family, all donations made to PLRC will be matched up to $100K through January 1 of next year!

Support our work: patientresearchcovid19.com/donate/
PLRC logo on the top left, large decorative PLRC logo on the white background, text in the middle on a purple background that reads, "YOUR GIFT GOES TWICE AS FAR (in white font), We're thrilled to announce that thanks to two generous donors, all donations made to PLRC will be matched up to $100K through January 1. (in black font with gold highlight), patientresearchcovid19.com/donate (at the bottom in blue)
December 2, 2025 at 8:56 PM
Reposted by Julia MV
betsyladyzhets.bsky.social
Speaking of clinical trials, we were thrilled to help announce a new all-remote trial -- led by @julialmv.bsky.social, who is also one of our advisors. (5/10) thesicktimes.org/2025/10/30/w...
We need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet. - The Sick Times
We are now recruiting for the Long COVID Treatment Trial-Tirzepatide (LoCITT-T), which participants can complete entirely from bed.
thesicktimes.org
December 2, 2025 at 4:52 PM
Reposted by Julia MV
thesicktimes.org
It’s #GivingTuesday! Will you help us get our fundraiser back on track and keep our #LongCOVID journalism going? the-sick-times.fundjournalism.org/donate/
The Sick Times News Match It's Giving Tuesday! Our end-of-year fundraiser has been moving more slowly than we planned. To help us get back on track, we're hoping to raise $10,000 and gain 50 new monthly supporters (at any amount!) by the end of the day today. Since Betsy and Miles launched this nonprofit publication in 2023, we've made it our mission to provide essential news and information to people with Long COVID, related diseases, and their loved ones during the ongoing pandemic - and we're not slowing down any time soon. Whether you're following for our COVID-19 trends, research explainers, clinical trial updates, or personal essays, our fact-based reporting helps you better understand the continuing Long COVID crisis. Can you help power our Long COVID reporting! DONATE TODAY The Sick Times News Match Other ways to support us We understand that many people in our community aren't able to donate. This is why we'll never have a paywall — our stories will always be completely free to read. If you aren't in a position to donate yourself, here are a few ways you can help: • Share this email/this post with a friend/family member • Tell us why you find our work valuable • Send any ideas you have for potential funding sources The Sick Times News Match
December 2, 2025 at 2:57 PM
julialmv.bsky.social
Now >900 LoCITT-T participants.

We're close to a last call for participants!

Still hoping to enroll folks from ND, MS, & PR & more BIPOC participants:
longcovid.scripps.edu/locitt-t/?ut...
December 1, 2025 at 5:20 PM