Julia MV
julialmv.bsky.social
Julia MV
@julialmv.bsky.social
Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
1,000 - half will receive the drug and half will receive placbo
November 3, 2025 at 6:41 PM
Yes - folks are welcome to enroll anytime here:
longcovid.scripps.edu/locitt-t/?ut...

The webinar is completely optional.
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
longcovid.scripps.edu
November 3, 2025 at 6:23 PM
Yes - please see this case series re: MCAS:
pubmed.ncbi.nlm.nih.gov/40675372/

And @kaufmanmd.bsky.social recent talk re: Long COVID and ME (he's also discussed this in other forums):
youtu.be/Cev3v-O82f0?...
Utility of glucagon-like-peptide-1-receptor agonists in mast cell activation syndrome - PubMed
GLP-1RAs may have substantial benefit in MCAS. Randomized controlled trials are needed to assess the efficacy, and identify optimal dosing, of GLP-1RA treatment in MCAS.
pubmed.ncbi.nlm.nih.gov
October 31, 2025 at 7:36 PM
The trial is now open to all US states except for Hawaii (due to shipping constraints); people in Washington DC and Puerto Rico are also eligible
October 31, 2025 at 4:09 PM
We are using dosing that's FDA approved for other indications. MDs will work with each participant on individualized dosing plans.
October 31, 2025 at 4:08 PM
Yes, and we'd love to do a follow-on pediatric trial if this one goes well
October 30, 2025 at 11:23 PM
We are adding states when we can and if you sign up for the waitlist here, we'll let you know when your state ready:
mydatahelps.org/e/LOCITT/Wai...
Survey - MyDataHelps
mydatahelps.org
October 30, 2025 at 7:56 PM
So glad this line resonated with you ❤️‍🩹
October 30, 2025 at 7:25 PM
Reposted by Julia MV
Lots more background on this trial, including where the wonderful study team is coming from:

“When you are dealing with relentless, debilitating symptoms — each day matters. It can be the difference between experiencing life’s most meaningful events up close and seeing photos of them from afar.” 💔❤️
October 30, 2025 at 7:23 PM
Good point - shared this with the team
October 30, 2025 at 7:12 PM
Confirming we are actively working on NY!
October 30, 2025 at 7:11 PM
Reposted by Julia MV
There are findings about GLP-1RA’s benefits in so many diseases, including MCAS ( www.amjmedsci.com/article/S000... ).

I’m so thrilled we’re getting such a robust trial to see what one can do in Long Covid.
October 30, 2025 at 7:08 PM