Julia MV
@julialmv.bsky.social
Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
@ Scripps Research & Patient-Led Research Collaborative
1,000 - half will receive the drug and half will receive placbo
November 3, 2025 at 6:41 PM
1,000 - half will receive the drug and half will receive placbo
Yes - folks are welcome to enroll anytime here:
longcovid.scripps.edu/locitt-t/?ut...
The webinar is completely optional.
longcovid.scripps.edu/locitt-t/?ut...
The webinar is completely optional.
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
longcovid.scripps.edu
November 3, 2025 at 6:23 PM
Yes - folks are welcome to enroll anytime here:
longcovid.scripps.edu/locitt-t/?ut...
The webinar is completely optional.
longcovid.scripps.edu/locitt-t/?ut...
The webinar is completely optional.
Yes - please see this case series re: MCAS:
pubmed.ncbi.nlm.nih.gov/40675372/
And @kaufmanmd.bsky.social recent talk re: Long COVID and ME (he's also discussed this in other forums):
youtu.be/Cev3v-O82f0?...
pubmed.ncbi.nlm.nih.gov/40675372/
And @kaufmanmd.bsky.social recent talk re: Long COVID and ME (he's also discussed this in other forums):
youtu.be/Cev3v-O82f0?...
Utility of glucagon-like-peptide-1-receptor agonists in mast cell activation syndrome - PubMed
GLP-1RAs may have substantial benefit in MCAS. Randomized controlled trials are needed to assess the efficacy, and identify optimal dosing, of GLP-1RA treatment in MCAS.
pubmed.ncbi.nlm.nih.gov
October 31, 2025 at 7:36 PM
Yes - please see this case series re: MCAS:
pubmed.ncbi.nlm.nih.gov/40675372/
And @kaufmanmd.bsky.social recent talk re: Long COVID and ME (he's also discussed this in other forums):
youtu.be/Cev3v-O82f0?...
pubmed.ncbi.nlm.nih.gov/40675372/
And @kaufmanmd.bsky.social recent talk re: Long COVID and ME (he's also discussed this in other forums):
youtu.be/Cev3v-O82f0?...
The trial is now open to all US states except for Hawaii (due to shipping constraints); people in Washington DC and Puerto Rico are also eligible
October 31, 2025 at 4:09 PM
The trial is now open to all US states except for Hawaii (due to shipping constraints); people in Washington DC and Puerto Rico are also eligible
We are using dosing that's FDA approved for other indications. MDs will work with each participant on individualized dosing plans.
October 31, 2025 at 4:08 PM
We are using dosing that's FDA approved for other indications. MDs will work with each participant on individualized dosing plans.
Yes, and we'd love to do a follow-on pediatric trial if this one goes well
October 30, 2025 at 11:23 PM
Yes, and we'd love to do a follow-on pediatric trial if this one goes well
We are adding states when we can and if you sign up for the waitlist here, we'll let you know when your state ready:
mydatahelps.org/e/LOCITT/Wai...
mydatahelps.org/e/LOCITT/Wai...
Survey -
MyDataHelps
mydatahelps.org
October 30, 2025 at 7:56 PM
We are adding states when we can and if you sign up for the waitlist here, we'll let you know when your state ready:
mydatahelps.org/e/LOCITT/Wai...
mydatahelps.org/e/LOCITT/Wai...
So glad this line resonated with you ❤️🩹
October 30, 2025 at 7:25 PM
So glad this line resonated with you ❤️🩹
Reposted by Julia MV
Lots more background on this trial, including where the wonderful study team is coming from:
“When you are dealing with relentless, debilitating symptoms — each day matters. It can be the difference between experiencing life’s most meaningful events up close and seeing photos of them from afar.” 💔❤️
“When you are dealing with relentless, debilitating symptoms — each day matters. It can be the difference between experiencing life’s most meaningful events up close and seeing photos of them from afar.” 💔❤️
A new at home clinical trial for #LongCOVID launches today to test tirzepitide.
Co-lead @julialmv.bsky.social, argues in a new op-ed that decentralized trials will accelerate research and make clinical trials more accessible for people with Long COVID.
thesicktimes.org/2025/10/30/w...
Co-lead @julialmv.bsky.social, argues in a new op-ed that decentralized trials will accelerate research and make clinical trials more accessible for people with Long COVID.
thesicktimes.org/2025/10/30/w...
We need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet. - The Sick Times
We are now recruiting for the Long COVID Treatment Trial-Tirzepatide (LoCITT-T), which participants can complete entirely from bed.
thesicktimes.org
October 30, 2025 at 7:23 PM
Lots more background on this trial, including where the wonderful study team is coming from:
“When you are dealing with relentless, debilitating symptoms — each day matters. It can be the difference between experiencing life’s most meaningful events up close and seeing photos of them from afar.” 💔❤️
“When you are dealing with relentless, debilitating symptoms — each day matters. It can be the difference between experiencing life’s most meaningful events up close and seeing photos of them from afar.” 💔❤️
Good point - shared this with the team
October 30, 2025 at 7:12 PM
Good point - shared this with the team
Confirming we are actively working on NY!
October 30, 2025 at 7:11 PM
Confirming we are actively working on NY!
Reposted by Julia MV
There are findings about GLP-1RA’s benefits in so many diseases, including MCAS ( www.amjmedsci.com/article/S000... ).
I’m so thrilled we’re getting such a robust trial to see what one can do in Long Covid.
I’m so thrilled we’re getting such a robust trial to see what one can do in Long Covid.
October 30, 2025 at 7:08 PM
There are findings about GLP-1RA’s benefits in so many diseases, including MCAS ( www.amjmedsci.com/article/S000... ).
I’m so thrilled we’re getting such a robust trial to see what one can do in Long Covid.
I’m so thrilled we’re getting such a robust trial to see what one can do in Long Covid.