C.H. Romatowski
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Pinned
When I see losses like this, I’m so frustrated by what could have been. What if we did something as simple as tripling the budget for medical research like Dr. Williams himself did? Could he have been saved? And how many others like him?
A total tragedy. He developed a treatment that has proven life saving for so many patients with previously intractable depression, then himself succumbed to the same disease.
Nolan Williams, Who Stimulated the Brain to Treat Depression, Dies at 43 www.nytimes.com/2025/11/11/h...
Nolan Williams, Who Stimulated the Brain to Treat Depression, Dies at 43 www.nytimes.com/2025/11/11/h...
I’m just gonna keep saying “triple the NIH budget” until it sounds like common sense.
Reposted by C.H. Romatowski
I’ve had to fill out the same questionnaire twice a year since 2017 to get my six-month continuous birth control prescription filled. Sometime since July they’ve added POTS to the common patient diagnoses checklist. #LongCOVID
February 4, 2026 at 3:19 AM
I’ve had to fill out the same questionnaire twice a year since 2017 to get my six-month continuous birth control prescription filled. Sometime since July they’ve added POTS to the common patient diagnoses checklist. #LongCOVID
Reposted by C.H. Romatowski
Do I know anyone who could answer a quick question about submitting written testimony in the Maryland legislature?
February 4, 2026 at 2:32 AM
Do I know anyone who could answer a quick question about submitting written testimony in the Maryland legislature?
Reposted by C.H. Romatowski
“30-year-old disabled US citizen dies after father taken by ICE at routine check-in. Wael Tarabishi had Pompe disease and relied on his father, Maher, for daily care.”
abcnews.go.com/US/disabled-...
abcnews.go.com/US/disabled-...
Disabled US citizen's family says ICE stopped his father from attending his funeral
Wael Tarabishi died three months after his caregiver father, Maher Tarabishi, was detained during a routine check-in with ICE in October.
abcnews.go.com
February 3, 2026 at 7:52 PM
“30-year-old disabled US citizen dies after father taken by ICE at routine check-in. Wael Tarabishi had Pompe disease and relied on his father, Maher, for daily care.”
abcnews.go.com/US/disabled-...
abcnews.go.com/US/disabled-...
From the review:
“We review this body of literature and why metformin should now be offered to outpatient adults for treating acute SARS-CoV-2 infection to prevent long COVID.”
academic.oup.com/cid/advance-...
“We review this body of literature and why metformin should now be offered to outpatient adults for treating acute SARS-CoV-2 infection to prevent long COVID.”
academic.oup.com/cid/advance-...
New review highlights growing evidence that diabetes drug metformin can prevent long COVID
The low-cost drug may lower the risk of clinician-diagnosed long COVID by 40% to 60%.
www.cidrap.umn.edu/c...
The low-cost drug may lower the risk of clinician-diagnosed long COVID by 40% to 60%.
www.cidrap.umn.edu/c...
February 3, 2026 at 9:32 PM
From the review:
“We review this body of literature and why metformin should now be offered to outpatient adults for treating acute SARS-CoV-2 infection to prevent long COVID.”
academic.oup.com/cid/advance-...
“We review this body of literature and why metformin should now be offered to outpatient adults for treating acute SARS-CoV-2 infection to prevent long COVID.”
academic.oup.com/cid/advance-...
Reposted by C.H. Romatowski
Snowstorms are more than just an inconvenience for wheelchair users. Inadequate snow clean-ups means a loss of autonomy for many. New for me at @motherjones.com www.motherjones.com/politics/202...
Snowstorms are hell for wheelchair users—but they don't have to be
"You can't physically move. You can't do anything."
www.motherjones.com
February 3, 2026 at 7:50 PM
Snowstorms are more than just an inconvenience for wheelchair users. Inadequate snow clean-ups means a loss of autonomy for many. New for me at @motherjones.com www.motherjones.com/politics/202...
Reposted by C.H. Romatowski
I haven't seen the dunks but I will say that LOCAL CONDITIONS have to determine TACTICS. Folks, whistles are just a tactic and tactics vary according to context. Why waste time on this? If you've organized for 10 minutes, you know this is true. Keep it moving.
People are dunking on the posts from rapid response groups in the DC area about why they don’t use whistles
But those groups are making these kinds of decisions after talking with a whole bunch of people in the targeted communities. They’re not doing it arbitrarily
But those groups are making these kinds of decisions after talking with a whole bunch of people in the targeted communities. They’re not doing it arbitrarily
January 18, 2026 at 4:06 PM
I haven't seen the dunks but I will say that LOCAL CONDITIONS have to determine TACTICS. Folks, whistles are just a tactic and tactics vary according to context. Why waste time on this? If you've organized for 10 minutes, you know this is true. Keep it moving.
Reposted by C.H. Romatowski
Nine U.S. States Attack Section 504 and the Right of Disabled People to Live in their Communities thearc.org/blog/texas-a... #a11y
Texas and Eight Other States Attack Section 504 and the Right of Disabled People to Live in their Communities
The nine states say that a rule about the integration mandate published by the U.S. Department of Health and Human Services (HHS) is unlawful and unconstitutional and should be blocked. If they are…
thearc.org
February 3, 2026 at 7:06 PM
Nine U.S. States Attack Section 504 and the Right of Disabled People to Live in their Communities thearc.org/blog/texas-a... #a11y
Reposted by C.H. Romatowski
Reposted by C.H. Romatowski
You don't have to be in Maryland
"We urge patients and caregivers to submit written testimony describing how Long COVID has affected your life, work, and health"
"We urge patients and caregivers to submit written testimony describing how Long COVID has affected your life, work, and health"
Long Covid friends—
A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info:
A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info:
Sign the Petition
Advocate for Maryland HB 0027 for Long COVID R&D
www.change.org
February 3, 2026 at 1:11 AM
You don't have to be in Maryland
"We urge patients and caregivers to submit written testimony describing how Long COVID has affected your life, work, and health"
"We urge patients and caregivers to submit written testimony describing how Long COVID has affected your life, work, and health"
We really do all have the ability to curb spread.
You cannot talk about the measles outbreak without talking about the widespread erosion of public health - from vaccines to COVID mitigations. ICE facilities have been wracked with TB, measles, and COVID outbreaks. Community spread stops with you. Wear a fit tested N95.
February 2, 2026 at 10:37 PM
We really do all have the ability to curb spread.
Reposted by C.H. Romatowski
I’m working on a story for @thesicktimes.org about things people with Long Covid and other energy-limiting illnesses (as well as their caregivers) can do to protect themselves and their communities from ICE. I’d love to speak with any of the following:
(1/3)
(1/3)
February 2, 2026 at 6:20 PM
I’m working on a story for @thesicktimes.org about things people with Long Covid and other energy-limiting illnesses (as well as their caregivers) can do to protect themselves and their communities from ICE. I’d love to speak with any of the following:
(1/3)
(1/3)
Reposted by C.H. Romatowski
The time of day for cancer immunotherapy is associated with major outcomes. Early is better. Results from a randomized trial of lung cancer, backs up the importance of our circadian rhythm and immune system
www.nature.com/articles/s41...
www.nature.com/articles/s41...
February 2, 2026 at 4:10 PM
The time of day for cancer immunotherapy is associated with major outcomes. Early is better. Results from a randomized trial of lung cancer, backs up the importance of our circadian rhythm and immune system
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Reposted by C.H. Romatowski
Folks, I hate to break it to you, but if you think incontinence signals incompetence? That's ableism. It just is. No ifs. No buts.
And the social shame and other forms used to discipline this is one the first expressions of the shit (hah) Foucault was on about.
And the social shame and other forms used to discipline this is one the first expressions of the shit (hah) Foucault was on about.
February 1, 2026 at 11:13 PM
Folks, I hate to break it to you, but if you think incontinence signals incompetence? That's ableism. It just is. No ifs. No buts.
And the social shame and other forms used to discipline this is one the first expressions of the shit (hah) Foucault was on about.
And the social shame and other forms used to discipline this is one the first expressions of the shit (hah) Foucault was on about.
Reposted by C.H. Romatowski
'measles outbreak at the child prison' seems entirely avoidable, it's really the kind of thing that only happens if you do several unthinkably evil things on purpose all at once
Horrifying. ICE confirms measles outbreak at Dilley family detention center. www.cbsnews.com/news/ice-dil...
ICE halts "all movement" at Texas detention facility due to measles infections
The measles cases at the Dilley Immigration Processing Center were detected Friday, Department of Homeland Security spokesperson Tricia McLaughlin said in a statement to CBS News.
www.cbsnews.com
February 2, 2026 at 4:31 AM
'measles outbreak at the child prison' seems entirely avoidable, it's really the kind of thing that only happens if you do several unthinkably evil things on purpose all at once
Reposted by C.H. Romatowski
No need to imagine. The country incarcerates children as young as 9 years old daily in youth prisons and jails. Those children are routinely sexually and physically assaulted and also emotionally tortured. They are fed terrible food and given barely any education. This country has done this for yrs.
February 1, 2026 at 2:24 AM
No need to imagine. The country incarcerates children as young as 9 years old daily in youth prisons and jails. Those children are routinely sexually and physically assaulted and also emotionally tortured. They are fed terrible food and given barely any education. This country has done this for yrs.
Reposted by C.H. Romatowski
I just got tear gassed along with thousands of union members, many of whom had their families with them. Federal agents at the ICE facility tear gassed children. We must abolish ICE, DHS, and we must have prosecutions. I expect to see enforcement of our city code prohibiting the use of tear gas.
February 1, 2026 at 1:23 AM
I just got tear gassed along with thousands of union members, many of whom had their families with them. Federal agents at the ICE facility tear gassed children. We must abolish ICE, DHS, and we must have prosecutions. I expect to see enforcement of our city code prohibiting the use of tear gas.
Reposted by C.H. Romatowski
Today I saw ICE gas little white kids in the streets of Portland with chemical weapons. Imagine what they're doing to brown and black kids in the detention camps
February 1, 2026 at 2:08 AM
Today I saw ICE gas little white kids in the streets of Portland with chemical weapons. Imagine what they're doing to brown and black kids in the detention camps
Reposted by C.H. Romatowski
The California State University system spent $16.9 million last year giving ChatGPT to all students, faculty, and staff. We are asking the CSU chancellor not to renew the contract with OpenAI when it expires.
Anyone can sign the petition — link below!
Anyone can sign the petition — link below!
The CSU/OpenAI contract is set to expire June 30, 2026.
Sign this petition: https://actionnetwork.org/petitions/cancel-chatgpt-edu-invest-in-humans/ for the CSU NOT to renew the contract and to use the savings to protect jobs at CSU campuses facing layoffs.
Sign this petition: https://actionnetwork.org/petitions/cancel-chatgpt-edu-invest-in-humans/ for the CSU NOT to renew the contract and to use the savings to protect jobs at CSU campuses facing layoffs.
January 31, 2026 at 7:13 PM
The California State University system spent $16.9 million last year giving ChatGPT to all students, faculty, and staff. We are asking the CSU chancellor not to renew the contract with OpenAI when it expires.
Anyone can sign the petition — link below!
Anyone can sign the petition — link below!
Reposted by C.H. Romatowski
I don't like to talk about stories before they are fully reported, but I am writing on ICE in a Minnesota town that isn't Minneapolis. However bad you think it is, it is worse. It is a campaign of pure terror whose only strategic goal is more terror. There is no strategy other than to break people.
January 31, 2026 at 9:03 PM
I don't like to talk about stories before they are fully reported, but I am writing on ICE in a Minnesota town that isn't Minneapolis. However bad you think it is, it is worse. It is a campaign of pure terror whose only strategic goal is more terror. There is no strategy other than to break people.
Reposted by C.H. Romatowski
I do not regret to inform you that we are going to win
More than 34,000 Minnesotans signed up to be trained as ICED observers with various activist groups in recent weeks, many of them since Jan. 7, when a federal agent shot and killed Renée Good.
Thousands of new ICE watchers hit the streets after two killings
Minnesotans outraged by the killings of Renée Good and Alex Pretti have signed up in large numbers to monitor and protest ICE with other activists.
www.washingtonpost.com
January 31, 2026 at 8:56 PM
I do not regret to inform you that we are going to win
Reposted by C.H. Romatowski
So many people with ME have died in the past few months, it’s unbearable.
January 31, 2026 at 9:44 PM
So many people with ME have died in the past few months, it’s unbearable.
“A growing body of research continues to reveal information about the virus and its ability to cause harm long after initial infections resolve, even in some cases when symptoms were mild.
“The discoveries raise fresh concerns about the Trump administration's COVID policies.”
“The discoveries raise fresh concerns about the Trump administration's COVID policies.”
Trump policies at odds with emerging understanding of COVID's long-term harm
Studies offer insights into the health risks and burdens faced by people who have had COVID infections. Meanwhile, the Trump administration has narrowed COVID vaccine recommendations and cut research.
www.cbsnews.com
January 31, 2026 at 9:09 PM
“A growing body of research continues to reveal information about the virus and its ability to cause harm long after initial infections resolve, even in some cases when symptoms were mild.
“The discoveries raise fresh concerns about the Trump administration's COVID policies.”
“The discoveries raise fresh concerns about the Trump administration's COVID policies.”
🔥🔥🔥🔥🔥
BREAKING: Bernie Sanders is introducing an amendment to cut ICE’s $75 billion funding increase, and to use those funds to restore the federal cuts to health care.
January 31, 2026 at 7:21 AM
🔥🔥🔥🔥🔥
Reposted by C.H. Romatowski
I am working on a story about this bill for @thesicktimes.org! DM or email me if you would like to share comments on its significance.
Long Covid friends—
A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info:
A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info:
Sign the Petition
Advocate for Maryland HB 0027 for Long COVID R&D
www.change.org
January 30, 2026 at 11:17 PM
I am working on a story about this bill for @thesicktimes.org! DM or email me if you would like to share comments on its significance.
Long Covid friends—
A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info:
A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info:
Sign the Petition
Advocate for Maryland HB 0027 for Long COVID R&D
www.change.org
January 30, 2026 at 8:21 PM
Long Covid friends—
A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info:
A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info: