C.H. Romatowski
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.9). No unsolicited advice please!
ME ‘05, LC ‘23, many of their friends along the way. Very severe (FUNCAP 0.9). No unsolicited advice please!
Pinned
If you like this feeling: there’s so much more where that came from.
This, from @alexanderchee.bsky.social, is so much what I want for the Long Covid and ME/CFS movements…
From: querent.substack.com/p/he-loves-n...
From: querent.substack.com/p/he-loves-n...
November 11, 2025 at 6:13 AM
This, from @alexanderchee.bsky.social, is so much what I want for the Long Covid and ME/CFS movements…
From: querent.substack.com/p/he-loves-n...
From: querent.substack.com/p/he-loves-n...
Note this is free to read if you register!
New Comment
Negative results in long COVID clinical trials: choosing outcome measures for a heterogeneous disease
www.thelancet.com/journals/lan...
Negative results in long COVID clinical trials: choosing outcome measures for a heterogeneous disease
www.thelancet.com/journals/lan...
Negative results in long COVID clinical trials: choosing outcome measures for a heterogeneous disease
Long COVID is an umbrella term for the heterogeneous long-term consequences of SARS-CoV-2
infection. It encompasses a wide spectrum of phenotypes (sometimes overlapping), and
its underlying mechanisms...
www.thelancet.com
November 11, 2025 at 12:24 AM
Note this is free to read if you register!
Reposted by C.H. Romatowski
Tim Kaine is probably the most prominent elected official talking about the very real threat and struggle of long COVID and he just consigned millions to being screwed with ACA subsidies expiring.
Sen. Kaine on his vote for funding deal
“I got the first good night's sleep last night that I've gotten since Oct. 1, because I wasn't worried about being able to look Capitol Police in the eye when I walked in, or what a furloughed federal worker would say to me at church”
“I got the first good night's sleep last night that I've gotten since Oct. 1, because I wasn't worried about being able to look Capitol Police in the eye when I walked in, or what a furloughed federal worker would say to me at church”
November 10, 2025 at 9:38 PM
Tim Kaine is probably the most prominent elected official talking about the very real threat and struggle of long COVID and he just consigned millions to being screwed with ACA subsidies expiring.
Reposted by C.H. Romatowski
With the RECOVER-NEURO clinical trial study results published today, looking forward to these RECOVER pathology studies planned for publication in 2026-2027
November 10, 2025 at 8:38 PM
With the RECOVER-NEURO clinical trial study results published today, looking forward to these RECOVER pathology studies planned for publication in 2026-2027
#NEISvoid PSA
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
November 10, 2025 at 7:45 PM
#NEISvoid PSA
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
Unbelievable waste of resources.
Unsurprisingly, none of the “brain training interventions” tested in the RECOVER-NEURO Long Covid trial showed efficacy
jamanetwork.com/journals/jam...
jamanetwork.com/journals/jam...
Interventions for Cognitive Symptoms in Long COVID
This randomized clinical trial investigates if evidence-based rehabilitation strategies improve cognitive symptoms in persons with long COVID.
jamanetwork.com
November 10, 2025 at 7:42 PM
Unbelievable waste of resources.
I think we need to be really clear that this is yet another Democratic betrayal of the Long Covid community.
This is what makes people vulnerable to MAHA.
This is what makes people vulnerable to MAHA.
Kaine, who has experienced Long Covid, is abandoning those with Long Covid who have to work as contractors who are too sick to work full-time.
Rosen makes 7 Dem Caucus yes votes, joining ->
Cortez Masto
Shaheen
Hassan
Durbin
Kaine
King
If Fetterman is here and full GOP attendance minus Rand, gets to 60
Cortez Masto
Shaheen
Hassan
Durbin
Kaine
King
If Fetterman is here and full GOP attendance minus Rand, gets to 60
November 10, 2025 at 5:27 AM
I think we need to be really clear that this is yet another Democratic betrayal of the Long Covid community.
This is what makes people vulnerable to MAHA.
This is what makes people vulnerable to MAHA.
Reposted by C.H. Romatowski
We...desperately need more low-income people in Congress who know what it's like to navigate health insurance problems. But we live in an ableist society where it's hard for younger disabled and chronically ill politicians to get elected.
November 10, 2025 at 3:18 AM
We...desperately need more low-income people in Congress who know what it's like to navigate health insurance problems. But we live in an ableist society where it's hard for younger disabled and chronically ill politicians to get elected.
Reposted by C.H. Romatowski
"Shame" doesn't stop people from dying. Being able to afford private health insurance so they can go get care can though.
Agree.
Sen Hassan, asked what will happen if Republicans don't carry out the deal, "Well, shame on them."
This is not what people were mobilizing for on Oct 18.
Sen Hassan, asked what will happen if Republicans don't carry out the deal, "Well, shame on them."
This is not what people were mobilizing for on Oct 18.
November 10, 2025 at 3:16 AM
"Shame" doesn't stop people from dying. Being able to afford private health insurance so they can go get care can though.
Reposted by C.H. Romatowski
Senate Democrats voting to dismantle the ACA to avoid any problems with their Thanksgiving travel is tragically on brand.
November 9, 2025 at 11:21 PM
Senate Democrats voting to dismantle the ACA to avoid any problems with their Thanksgiving travel is tragically on brand.
Reposted by C.H. Romatowski
Subsidized insurance costs matter for chronically ill contractors. A lot.
November 10, 2025 at 1:56 AM
Subsidized insurance costs matter for chronically ill contractors. A lot.
Reposted by C.H. Romatowski
Kaine, who has experienced Long Covid, is abandoning those with Long Covid who have to work as contractors who are too sick to work full-time.
Rosen makes 7 Dem Caucus yes votes, joining ->
Cortez Masto
Shaheen
Hassan
Durbin
Kaine
King
If Fetterman is here and full GOP attendance minus Rand, gets to 60
Cortez Masto
Shaheen
Hassan
Durbin
Kaine
King
If Fetterman is here and full GOP attendance minus Rand, gets to 60
November 10, 2025 at 1:56 AM
Kaine, who has experienced Long Covid, is abandoning those with Long Covid who have to work as contractors who are too sick to work full-time.
Reposted by C.H. Romatowski
My patients whose chronic brain disease has deadly symptoms only relieved by care they *won’t get* without the ACA subsidies @democrats.senate.gov surrender on will be delighted to know of Dems’ “victory”.
And they will forever hate every pol & pundit who tells them to believe it, much less like it.
And they will forever hate every pol & pundit who tells them to believe it, much less like it.
Health care isn’t negotiable.
We need to both reopen the government and work together to protect access to affordable health care by extending the ACA enhanced premium tax credits.
We need to both reopen the government and work together to protect access to affordable health care by extending the ACA enhanced premium tax credits.
November 10, 2025 at 2:06 AM
My patients whose chronic brain disease has deadly symptoms only relieved by care they *won’t get* without the ACA subsidies @democrats.senate.gov surrender on will be delighted to know of Dems’ “victory”.
And they will forever hate every pol & pundit who tells them to believe it, much less like it.
And they will forever hate every pol & pundit who tells them to believe it, much less like it.
Reposted by C.H. Romatowski
I bought this book for $4 for research. Imagine, as a Black person, specifically a Black woman, seeing this. It's not that old, it's from 1990. Imagine not only seeing this but hearing it said by the CDC.
To not see this travesty spoken about more in IACC spaces is... well there are no words.
To not see this travesty spoken about more in IACC spaces is... well there are no words.
November 10, 2025 at 1:33 AM
I bought this book for $4 for research. Imagine, as a Black person, specifically a Black woman, seeing this. It's not that old, it's from 1990. Imagine not only seeing this but hearing it said by the CDC.
To not see this travesty spoken about more in IACC spaces is... well there are no words.
To not see this travesty spoken about more in IACC spaces is... well there are no words.
Reposted by C.H. Romatowski
Major concession from Democrats here is enhanced ACA funds aren’t extended. Preserving them was Dems’ central demand in this fight. They secured a promise of a vote (which Thune has been offering for weeks), but that could still fail. Even if it passes, Johnson has made no promise of a House vote.
Tentative Senate deal to end shutdown, multiple sources tell me & @frankthorp.bsky.social:
—CR through Jan 30
—Approps minibus
—Fully funds SNAP
—Reverses Trump’s shutdown RIFs
—Promise of Senate vote on ACA subsidies by Dec second week (details/outcome uncertain)
—Led by King/Shaheen/Hassan
—CR through Jan 30
—Approps minibus
—Fully funds SNAP
—Reverses Trump’s shutdown RIFs
—Promise of Senate vote on ACA subsidies by Dec second week (details/outcome uncertain)
—Led by King/Shaheen/Hassan
November 10, 2025 at 12:54 AM
Major concession from Democrats here is enhanced ACA funds aren’t extended. Preserving them was Dems’ central demand in this fight. They secured a promise of a vote (which Thune has been offering for weeks), but that could still fail. Even if it passes, Johnson has made no promise of a House vote.
Reposted by C.H. Romatowski
This is not a deal — it's an empty promise.
Trump and his Republican Congress are making healthcare more expensive for the middle class and ending it for working families.
Time for Democrats to stand tall for affordable healthcare. www.politico.com/news/2025/11...
Trump and his Republican Congress are making healthcare more expensive for the middle class and ending it for working families.
Time for Democrats to stand tall for affordable healthcare. www.politico.com/news/2025/11...
Senate reaches deal on ending the shutdown
Democrats are coalescing around a bipartisan agreement to fund the government.
www.politico.com
November 10, 2025 at 12:50 AM
This is not a deal — it's an empty promise.
Trump and his Republican Congress are making healthcare more expensive for the middle class and ending it for working families.
Time for Democrats to stand tall for affordable healthcare. www.politico.com/news/2025/11...
Trump and his Republican Congress are making healthcare more expensive for the middle class and ending it for working families.
Time for Democrats to stand tall for affordable healthcare. www.politico.com/news/2025/11...
Reposted by C.H. Romatowski
“We’re going to help Americans with their ACA premiums by sending everyone a paper bag of ripe bananas.”
"A development that appeared to break the logjam: Republicans proposed that healthcare funding be provided directly to households rather than used to pay for a 1-year extension of ACA subsidies. That involves sending federal money into FSAs instead of insurance companies" www.wsj.com/politics/pol...
Republicans Pitch Alternative to ACA Extension to End Government Shutdown
A proposal by GOP senators to send money directly to consumers’ health accounts rather than to insurance companies showed signs of breaking a stalemate on negotiations.
www.wsj.com
November 9, 2025 at 11:16 PM
“We’re going to help Americans with their ACA premiums by sending everyone a paper bag of ripe bananas.”
Reposted by C.H. Romatowski
This is a horrible idea.
"A development that appeared to break the logjam: Republicans proposed that healthcare funding be provided directly to households rather than used to pay for a 1-year extension of ACA subsidies. That involves sending federal money into FSAs instead of insurance companies" www.wsj.com/politics/pol...
Republicans Pitch Alternative to ACA Extension to End Government Shutdown
A proposal by GOP senators to send money directly to consumers’ health accounts rather than to insurance companies showed signs of breaking a stalemate on negotiations.
www.wsj.com
November 9, 2025 at 11:39 PM
This is a horrible idea.
If you want this, we really need you to join an org like DSA.
Doesn’t have to be DSA specifically, there are many other terrific orgs it works in coalition with (WFP, JFREJ, more!), but the hard truth is unorganized people don’t win statewide elections.
Get organized!
Doesn’t have to be DSA specifically, there are many other terrific orgs it works in coalition with (WFP, JFREJ, more!), but the hard truth is unorganized people don’t win statewide elections.
Get organized!
November 9, 2025 at 10:51 PM
If you want this, we really need you to join an org like DSA.
Doesn’t have to be DSA specifically, there are many other terrific orgs it works in coalition with (WFP, JFREJ, more!), but the hard truth is unorganized people don’t win statewide elections.
Get organized!
Doesn’t have to be DSA specifically, there are many other terrific orgs it works in coalition with (WFP, JFREJ, more!), but the hard truth is unorganized people don’t win statewide elections.
Get organized!
Reposted by C.H. Romatowski
Suggestion:
Even if your senators are not on the list, call them and tell them how much you support their decision to hold steady. It will have an impact. The overwhelming response will make its way to everyone they know.
Word of mouth is very effective.
Even if your senators are not on the list, call them and tell them how much you support their decision to hold steady. It will have an impact. The overwhelming response will make its way to everyone they know.
Word of mouth is very effective.
Here's a partial list of suspected guilty parties. Call them if they're your senators, friends, right now.
blacksky.community/profile/did:...
blacksky.community/profile/did:...
John Fetterman, Angus King, Maggie Hassan, Dick Durbin, Jon Ossoff, Jeanne Shaheen, Kirsten Gillibrand, Catherine Cortez Masto, Mark Warner, Cory Booker, and of course Chuck Schumer. Maybe others not top of mind. Not all responsible will publicly vote for the cave - that's not how this works.
November 9, 2025 at 10:43 PM
Suggestion:
Even if your senators are not on the list, call them and tell them how much you support their decision to hold steady. It will have an impact. The overwhelming response will make its way to everyone they know.
Word of mouth is very effective.
Even if your senators are not on the list, call them and tell them how much you support their decision to hold steady. It will have an impact. The overwhelming response will make its way to everyone they know.
Word of mouth is very effective.
Reposted by C.H. Romatowski
Thank you, Violet Affleck, for using your voice at the United Nations to call for clean air and masking — and especially for naming children with #LongCOVID. Too often, kids are left out of these conversations. Families are grateful to see their children’s realities recognized on the global stage.
Violet Affleck, Ben Affleck and Jennifer Garner’s Daughter, Speaks About the Impacts of COVID in U.N. Address
Violet Affleck, the daughter of Ben Affleck and Jennifer Garner, delivered an impassioned speech in favor of clean air and masking to prevent the transmission of long COVID-19 in an address at the Uni...
people.com
September 24, 2025 at 3:42 PM
Thank you, Violet Affleck, for using your voice at the United Nations to call for clean air and masking — and especially for naming children with #LongCOVID. Too often, kids are left out of these conversations. Families are grateful to see their children’s realities recognized on the global stage.
Reposted by C.H. Romatowski
my ACA plan is already backbreakingly expensive and i need it to access the little long covid care i have. idk what ill do if it goes up like 200% suddenly. this country is a lemon
November 9, 2025 at 7:49 PM
my ACA plan is already backbreakingly expensive and i need it to access the little long covid care i have. idk what ill do if it goes up like 200% suddenly. this country is a lemon
Reposted by C.H. Romatowski
"We found that individuals who received at least three vaccine doses before getting infected were less likely to report long COVID symptoms and had better quality of life. In contrast, vaccination after infection showed no benefit."
#LongCovid #PASC #PostCovid
#LongCovid #PASC #PostCovid
Optimizing the schedule of BNT162b2 COVID-19 against long COVID and associated quality of life losses
->Nature | More from Lil Dr Glen EcoChat at BigEarthData.ai
->Nature | More from Lil Dr Glen EcoChat at BigEarthData.ai
Optimizing the schedule of BNT162b2 COVID-19 against long COVID and associated quality of life losses
Our study showed a clear protective effect of pre-infection vaccination on reporting of long COVID symptoms and associated losses of QoL: individuals who received three doses of a COVID-19 vaccine prior to infection were 34% less likely to report long...
www.nature.com
November 9, 2025 at 6:05 PM
"We found that individuals who received at least three vaccine doses before getting infected were less likely to report long COVID symptoms and had better quality of life. In contrast, vaccination after infection showed no benefit."
#LongCovid #PASC #PostCovid
#LongCovid #PASC #PostCovid
Reposted by C.H. Romatowski
Personal news: We got a heat pump! This seizes on the last days of the clean energy tax credits and eliminates our direct household fossil fuel burning. The big ugly bill will have huge costs for the US energy system, but I'm grateful for US progress and momentum so far. blog.ucs.org/julie-mcnama...
November 9, 2025 at 7:19 PM
Personal news: We got a heat pump! This seizes on the last days of the clean energy tax credits and eliminates our direct household fossil fuel burning. The big ugly bill will have huge costs for the US energy system, but I'm grateful for US progress and momentum so far. blog.ucs.org/julie-mcnama...
Capitol switchboard: (202) 224-3121
Sounds like the squishes in the senate caucus are ready to pull the plug with no ACA changes. This is real. If you want to register your opinion you shld call yr senator in the next hour. They not only want to reopen w/nothing. They want cover from their colleagues who still want to hold out.
November 9, 2025 at 9:49 PM
Capitol switchboard: (202) 224-3121