C.H. Romatowski
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Pinned
When I see losses like this, I’m so frustrated by what could have been. What if we did something as simple as tripling the budget for medical research like Dr. Williams himself did? Could he have been saved? And how many others like him?
A total tragedy. He developed a treatment that has proven life saving for so many patients with previously intractable depression, then himself succumbed to the same disease.
Nolan Williams, Who Stimulated the Brain to Treat Depression, Dies at 43 www.nytimes.com/2025/11/11/h...
Nolan Williams, Who Stimulated the Brain to Treat Depression, Dies at 43 www.nytimes.com/2025/11/11/h...
I’m just gonna keep saying “triple the NIH budget” until it sounds like common sense.
Reposted by C.H. Romatowski
I really try to keep an even keel, and self-regulate because it’s the only way to be in this for the long haul, but sometimes the fury overtakes you for a bit.
January 30, 2026 at 1:16 PM
I really try to keep an even keel, and self-regulate because it’s the only way to be in this for the long haul, but sometimes the fury overtakes you for a bit.
It’s one of those things that 99% of people will not understand until they learn the hard way, but like. For the 1%—
I wish healthy people understood that if you develop a medical condition that doctors don’t understand, you’re gonna be TREATED BADLY BY DOCTORS. And there’s a widely circulating virus that leaves people with incurable medical conditions that doctors don’t understand.
January 30, 2026 at 5:41 AM
It’s one of those things that 99% of people will not understand until they learn the hard way, but like. For the 1%—
Reposted by C.H. Romatowski
realizing that democrats could be using their ginormous fundraising apparatus to send out links to rent funds or even, hell, frontline orgs is just so annoying
January 30, 2026 at 1:04 AM
realizing that democrats could be using their ginormous fundraising apparatus to send out links to rent funds or even, hell, frontline orgs is just so annoying
An Indonesian study of 5,735 adults found that compared to unvaccinated individuals, people who received mRNA Covid vaccines had significantly lower odds of Long Covid, while recipients of non-mRNA Covid vaccines had increased odds.
Study: www.frontiersin.org/journals/pub...
Study: www.frontiersin.org/journals/pub...
January 30, 2026 at 3:22 AM
An Indonesian study of 5,735 adults found that compared to unvaccinated individuals, people who received mRNA Covid vaccines had significantly lower odds of Long Covid, while recipients of non-mRNA Covid vaccines had increased odds.
Study: www.frontiersin.org/journals/pub...
Study: www.frontiersin.org/journals/pub...
Reposted by C.H. Romatowski
lolololol
January 30, 2026 at 1:21 AM
lolololol
Reposted by C.H. Romatowski
Democrats Condemn ICE For Murdering Without Proper Warrants https://theonion.com/democrats-condemn-ice-for-murdering-without-proper-warrants/
January 30, 2026 at 2:01 AM
Democrats Condemn ICE For Murdering Without Proper Warrants https://theonion.com/democrats-condemn-ice-for-murdering-without-proper-warrants/
Reposted by C.H. Romatowski
People are asking a lot “how is this happening?” It’s happening the way abolitionists have warned you for decades it’s happening — you can’t dehumanize whole groups of people, pay for their brutalization & not expect for more bounty hunters to come.
January 30, 2026 at 1:15 AM
People are asking a lot “how is this happening?” It’s happening the way abolitionists have warned you for decades it’s happening — you can’t dehumanize whole groups of people, pay for their brutalization & not expect for more bounty hunters to come.
Abolition is a disability issue
Nearly 1 in 4 people killed by Maryland police was in mental health crisis, AG finds
Nearly 1 in 4 people killed by Maryland police was in mental health crisis, AG finds
Since 2021, the Maryland Office of the Attorney General has reviewed 86 cases in which someone was killed by police — and 20 of those cases involved mental health crises, according to a report released...
buff.ly
January 30, 2026 at 1:45 AM
Abolition is a disability issue
Reposted by C.H. Romatowski
Sadly, the push for anti-mask laws is back. The Alabama House has passed a bill that would criminalize protesting in a mask without a doctor’s note.
House passes bill that would criminalize protesting in a mask without a doctor's note
Anti-masking laws have never been taken up by the U.S. Supreme Court and have had mixed results in lower courts.
www.alreporter.com
January 29, 2026 at 10:52 PM
Sadly, the push for anti-mask laws is back. The Alabama House has passed a bill that would criminalize protesting in a mask without a doctor’s note.
Reposted by C.H. Romatowski
Write your senators! This form from @meactnet.bsky.social and @longcovidjustice.org makes it so easy. #mecfs #longcovid actionnetwork.org/campaigns/ic...
ICE Makes Me Sick—Fund Healthcare, Not Violence!
Tell Congress to stop bankrolling ICE violence while slashing our healthcare and home care.
actionnetwork.org
January 29, 2026 at 9:42 PM
Write your senators! This form from @meactnet.bsky.social and @longcovidjustice.org makes it so easy. #mecfs #longcovid actionnetwork.org/campaigns/ic...
Reposted by C.H. Romatowski
"This delay leaves millions of children without treatment during crucial developmental years."
What have we done to the next generation.
#LongCovidKids
What have we done to the next generation.
#LongCovidKids
“Finding a cure for long COVID needs to become a top research and health-care priority. Although clinical trials in adults are ongoing and increasing in numbers, none have yet been launched for children….This delay leaves millions of children without treatment during crucial developmental years.”
Long COVID is here to stay—even in children
Post-acute sequelae of SARS-CoV-2 infection (PASC, also known as long COVID) are complex,
multisystem, long-lasting complications of SARS-CoV-2 infection that profoundly impact
the daily life of those...
www.thelancet.com
January 29, 2026 at 9:18 PM
"This delay leaves millions of children without treatment during crucial developmental years."
What have we done to the next generation.
#LongCovidKids
What have we done to the next generation.
#LongCovidKids
Reposted by C.H. Romatowski
I haven’t really experienced SI since I was put on strong mast cell stabilizers and I genuinely can’t believe that. I wonder how many others are suffering without help specifically for this.
January 29, 2026 at 9:56 PM
I haven’t really experienced SI since I was put on strong mast cell stabilizers and I genuinely can’t believe that. I wonder how many others are suffering without help specifically for this.
Reposted by C.H. Romatowski
long covid often presents as mecfs or similarly, which patient surveys have indicated carries a poorer quality of life than literally every type of cancer. it’s decimated my quality of life since contracting it in late 2022. exposing children to that fate for your own comfort is unconscionable
“Reinfection was associated with more than double the risk of a long COVID diagnosis” in a large study of children and adolescents.
🧪 #LongCOVID is here to stay—even in children - The Lancet Infectious Diseases www.thelancet.com/journals/lan...
January 29, 2026 at 8:10 PM
long covid often presents as mecfs or similarly, which patient surveys have indicated carries a poorer quality of life than literally every type of cancer. it’s decimated my quality of life since contracting it in late 2022. exposing children to that fate for your own comfort is unconscionable
“Reinfection was associated with more than double the risk of a long COVID diagnosis” in a large study of children and adolescents.
🧪 #LongCOVID is here to stay—even in children - The Lancet Infectious Diseases www.thelancet.com/journals/lan...
Long COVID is here to stay—even in children
Post-acute sequelae of SARS-CoV-2 infection (PASC, also known as long COVID) are complex,
multisystem, long-lasting complications of SARS-CoV-2 infection that profoundly impact
the daily life of those...
www.thelancet.com
January 29, 2026 at 7:59 PM
“Reinfection was associated with more than double the risk of a long COVID diagnosis” in a large study of children and adolescents.
Reposted by C.H. Romatowski
Discovery of an entirely new potential approach to atherosclerotic heart disease: targeted immunotherapy!
Studies in human coronary arteries to reduce plaque and the mouse experimental model. Another win for spatial multiomics @science.org
www.science.org/doi/10.1126/...
Studies in human coronary arteries to reduce plaque and the mouse experimental model. Another win for spatial multiomics @science.org
www.science.org/doi/10.1126/...
Targeting modulated vascular smooth muscle cells in atherosclerosis via FAP-directed immunotherapy
Vascular smooth muscle cell (VSMC) diversification drives atherosclerotic coronary artery disease (CAD). Mechanisms governing these cell state transitions remain unclear. We applied multiomic single-c...
www.science.org
January 29, 2026 at 7:12 PM
Discovery of an entirely new potential approach to atherosclerotic heart disease: targeted immunotherapy!
Studies in human coronary arteries to reduce plaque and the mouse experimental model. Another win for spatial multiomics @science.org
www.science.org/doi/10.1126/...
Studies in human coronary arteries to reduce plaque and the mouse experimental model. Another win for spatial multiomics @science.org
www.science.org/doi/10.1126/...
Reposted by C.H. Romatowski
Did you know? Anyone can develop Long COVID, and your risk increases each time you have COVID-19. Protect yourself from Long COVID by avoiding COVID-19, and talk to your doctor if you have new or long-term symptoms after having COVID-19. Learn more about Long COVID:
www.cdc.gov/long-covid/a...
www.cdc.gov/long-covid/a...
January 28, 2026 at 11:53 PM
Did you know? Anyone can develop Long COVID, and your risk increases each time you have COVID-19. Protect yourself from Long COVID by avoiding COVID-19, and talk to your doctor if you have new or long-term symptoms after having COVID-19. Learn more about Long COVID:
www.cdc.gov/long-covid/a...
www.cdc.gov/long-covid/a...
Reposted by C.H. Romatowski
memo to all my friends who say that their allergists are baffled by new onset allergies
“We have seen asthma, allergic rhinitis, hives/urticaria, environmental and food allergies, with the most common being asthma. But then there is also a good subset of patients developing mast cell activation symptoms,” -me
www.medscape.com/viewarticle/...
www.medscape.com/viewarticle/...
Long COVID Linked to New-Onset Allergies
Mounting evidence points to a link between new-onset allergies and Long COVID, with mast cell activation syndrome as a potential culprit.
www.medscape.com
January 29, 2026 at 4:15 AM
memo to all my friends who say that their allergists are baffled by new onset allergies
Reposted by C.H. Romatowski
Like you, we have been watching horrors unfold especially in Minnesota. We have been checking on our #MEAction Minnesota community and sending all our love and support. This situation is heartbreaking and sickening.
Take action: makesmesick.org
#pwME #Disability #DisabilityJustice #pwLC
Take action: makesmesick.org
#pwME #Disability #DisabilityJustice #pwLC
January 29, 2026 at 5:25 PM
Like you, we have been watching horrors unfold especially in Minnesota. We have been checking on our #MEAction Minnesota community and sending all our love and support. This situation is heartbreaking and sickening.
Take action: makesmesick.org
#pwME #Disability #DisabilityJustice #pwLC
Take action: makesmesick.org
#pwME #Disability #DisabilityJustice #pwLC
Reposted by C.H. Romatowski
“We have seen asthma, allergic rhinitis, hives/urticaria, environmental and food allergies, with the most common being asthma. But then there is also a good subset of patients developing mast cell activation symptoms,” -me
www.medscape.com/viewarticle/...
www.medscape.com/viewarticle/...
Long COVID Linked to New-Onset Allergies
Mounting evidence points to a link between new-onset allergies and Long COVID, with mast cell activation syndrome as a potential culprit.
www.medscape.com
January 29, 2026 at 2:19 AM
“We have seen asthma, allergic rhinitis, hives/urticaria, environmental and food allergies, with the most common being asthma. But then there is also a good subset of patients developing mast cell activation symptoms,” -me
www.medscape.com/viewarticle/...
www.medscape.com/viewarticle/...
Reposted by C.H. Romatowski
i just want to cry. i have literally just spent the last 6 hours responding to email after email of people begging for rent money or for me to point them in the direction of help, which does not exist.
please @governorwalz.mn.gov. we need an eviction moratorium. there is no other solution.
please @governorwalz.mn.gov. we need an eviction moratorium. there is no other solution.
January 28, 2026 at 8:45 PM
i just want to cry. i have literally just spent the last 6 hours responding to email after email of people begging for rent money or for me to point them in the direction of help, which does not exist.
please @governorwalz.mn.gov. we need an eviction moratorium. there is no other solution.
please @governorwalz.mn.gov. we need an eviction moratorium. there is no other solution.
Reposted by C.H. Romatowski
I watched Jennifer Brea’s excellent documentary Unrest today and I highly recommend it for anyone interested in learning more about ME/CFS and the medical dismissal and gaslighting ME patients face
youtu.be/RLQNfsTih10
youtu.be/RLQNfsTih10
Unrest Feature Documentary (Original with English subtitles)
YouTube video by Unrest Film
youtu.be
January 28, 2026 at 9:48 PM
I watched Jennifer Brea’s excellent documentary Unrest today and I highly recommend it for anyone interested in learning more about ME/CFS and the medical dismissal and gaslighting ME patients face
youtu.be/RLQNfsTih10
youtu.be/RLQNfsTih10
Reposted by C.H. Romatowski
If you’re someone with an autoimmune disorder who has trouble getting your methotrexate filled in a state with tough abortion laws, please email me at jmetraux@motherjones.com.
January 28, 2026 at 7:20 PM
If you’re someone with an autoimmune disorder who has trouble getting your methotrexate filled in a state with tough abortion laws, please email me at jmetraux@motherjones.com.
Reposted by C.H. Romatowski
The Trump administration formally withdrew federal guidance that required pharmacies to dispense methotrexate. Chronically ill people may face more challenges in getting this drug for their health. My latest for @motherjones.com. www.motherjones.com/politics/202...
HHS will allow pharmacies to boycott lifesaving drugs used in medication abortion
Misoprostol and methotrexate do more than end pregnancies—but anti-abortion pharmacists can now refuse to offer them and still get federal funds.
www.motherjones.com
January 28, 2026 at 7:20 PM
The Trump administration formally withdrew federal guidance that required pharmacies to dispense methotrexate. Chronically ill people may face more challenges in getting this drug for their health. My latest for @motherjones.com. www.motherjones.com/politics/202...
It doesn’t happen to me that often anymore, thankfully, but it does feel real bad when I have to convince other disabled people that no, with disabilities like ME/CFS, we typically don’t have quality of life comparable to non-disabled people. Not by a long shot.
January 28, 2026 at 4:23 AM
It doesn’t happen to me that often anymore, thankfully, but it does feel real bad when I have to convince other disabled people that no, with disabilities like ME/CFS, we typically don’t have quality of life comparable to non-disabled people. Not by a long shot.
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Agreed. I think it's even worse: many politicians don't WANT people to do more than give money and vote. They don't want people calling them about issues, questioning their decisions. I strongly prefer politicians who come out of activism, actually care about things, and want to involve community.
100%. I honestly believe political leaders ask too little of people. The thinking is you need an extraordinarily low bar - so ask people for money or to sign something. People want to be part of something and they're eager to do real meaningful work in defense of their community and their rights.
January 28, 2026 at 3:54 AM
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