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caringmrising.bsky.social
Caring Majority Rising
@caringmrising.bsky.social
2.3K followers 550 following 220 posts
Caring Majority Rising is a political movement of people with disabilities, older adults, family caregivers, and home care workers.
Join us: linktr.ee/caringmajorityrising
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caringmrising.bsky.social
Caring Majority Rising @caringmrising.bsky.social · Dec 26
NYS’s plan to transition CDPAP home care for 250k+ NYers could lead to tens of thousands of people losing their home care & workers losing their jobs.

Do you or a loved one use CDPAP home care or work as a personal assistant? Please fill out this form for 🔑 updates actionnetwork.org/forms/cdpap-...
Caring Majority Rising: Receive Key Updates on Fight To Save CDPAP!
New York State’s plan to transition consumer-directed (CDPAP) home care for 250k+ New Yorkers could lead to tens of thousands of people losing their home care and workers losing their jobs. Will you b...
actionnetwork.org
caringmrising.bsky.social
🧵🔥 Brilliant zinger article by Caring Majority advocates @bobbiesackman.bsky.social, @lizzieknock.bsky.social, and Michael Solow addressing why “Gov Hochul, DOH, & legislators must address this self-created [PPL] crisis now, or thousands of our fellow citizens will continue to needlessly suffer.” ⬇️⬇️
Page 1: Title: Spending More for Less: H one Care in New York State. By Elise Nakhnikian, Michael Solow, and Bobbie Sackman (Nov 3 2025). There are two photos. One of a NYT article with the headline: “Questions Arise Over Hiring of firm to run $11 Billion Health Care Program” and a cut-off photo of Commissioner McDonald. The other is a screenshot from the hearing of the DOH Commissioner MacDonald, and there is a caption of him saying, “I have no…no way to know that.” The beginning of the article says: “A turbulent hearing held by the State Senate in August examined mismanagement of the state’s Consumer Directed Personal Assistance Program (CDPAP). A private equity-backed corporation, PPL, was brought in early this year to run the popular home care program, replacing hundreds of smaller companies.” Page 2. “But the transition to PPL has been plagued by problems. In a recent survey, 55% of CDPAP workers were not fully paid and 20% of consumers had gone without approved services. There are two lawsuits pending over wage theft. At the hearing, Department of Health Commissioner Dr. James McDonald said the key reason for changing CDPAP was “lowering administrative costs,” claiming the state would save $500 million a year. Yet when asked about those savings, or his department’s supposed oversight, he could not give any answers.” Photos of home care consumers who use wheelchairs and home care workers holding signs that say, “Save CDPAP NOW!” “250,000 Workers Unpaid,” PPL Doesn’t Pay” “Hochul! Our Lives are on the line” Page 3. When CDPAP began 30 years ago, disabled people designed a program that gave them control over who comes into their home to help with intimate tasks. By allowing relatives to become paid caregivers, CDPAP addressed the growing need for home care while helping solve both the shortage of home care workers and the desire of families to give their disabled loved ones care without going broke. It also cost the state less than the home care agencies – New York’s other option for Medicaid-funded care – by cutting administrative overhead because consumers (or their representatives) could direct their own care.” Below there is a photo with the caption “Defending the hard-won CDPAP program (Caring Majority Rising, Albany, 2025)” The photo is of home care consumers blocking escalators in the capital with their wheelchairs, one with her fist in the air. In the foreground, there is a capital police officer. Page 4. Not surprisingly, CDPAP grew in popularity. But instead of celebrating its success in meeting an essential need, the Governor saw an opportunity to make cuts, citing “waste, fraud and abuse” that barely exists as a justification. Enter PPL, a corporation designed to profit off publicly-funded home care. Is PPL, in fact, saving the state taxpayers money? The early evidence is an emphatic no. PPL’s incompetent handling of the transition has led to roughly 80,000 CDPAP consumers fleeing the program, most to sign up with licensed home care agencies. According to testimony at the hearing, based on the Department of Health’s own numbers, that switch will cost taxpayers $550 million more per year. There’s a photo of a home care worker, pointer finger in the air, standing behind hand-painted cardboard flames with signs that say, “Hochul! CDPAP is in flames.” And “Hochul! This is your fault”
November 13, 2025 at 6:38 PM
caringmrising.bsky.social
🔥WHAT POWER!!!🔥 100+ Caring Majority advocates +
@delgadoforny.bsky.social
discuss the fight to defend care in NY & #SaveCDPAP!

"Caring Majority, thanks for your persistence. That we're handing over CDPAP to private equity is VERY flawed... We must cancel PPL's contract & restore trusted FIs."
October 8, 2025 at 11:33 PM
caringmrising.bsky.social
CALL TO ACTION! Complete our August PPL survey to tell us how you've been impacted by the transition to PPL! forms.gle/gmXZyzGZWux1...

Past surveys have allowed us to alert electeds just how bad this transition has been. We hope this survey will play the same role @ the 8/21 Senate CDPAP hearing
Cartoon-style speech bubble. Inside, it says, "Calling All consumers, PAs, and Designated Representatives!" Underneath, it says, "Help us track and bring to light issues New Yorkers are facing with PPL! Fill out our August CDPAP survey!" At the bottom is the Caring Majority Rising Logo.
August 6, 2025 at 6:01 PM
caringmrising.bsky.social
Are you a consumer or PA who has been harmed by the transition to PPL?

It's really important that you make your voice heard & submit a written testimony for the State Senate CDPAP hearing! It doesn't need to be long or perfectly written – it just matters that it's personal to you. Instructions ⬇️
CALL TO ACTION! Submit a written testimony for the state senate CDPAP hearing. Instructions in the post below. Two red arrows pointing downwards and the Caring Majority Rising Logo.
July 29, 2025 at 7:42 PM
Reposted by Caring Majority Rising
domesticemployers.bsky.social
Hand in Hand and @caringmrising.bsky.social member Julie Farrar participated in the Capital Crawl. In a recent interview with NPR she described the experience. Read the full interview 👇 www.btpm.org/disabilities...
Voices of Disability Pride: 'Your disability is part of that power' says Julie Farrar
This week on Voices of Disability Pride, we feature disability rights activist Julie Farrar. We discuss the importance of mentorship, confidence and connection in self-advocacy and activism.
www.btpm.org
July 26, 2025 at 2:37 PM
caringmrising.bsky.social
PPL puts profit over people, and home care consumers and workers pay the price.

It’s time to end this contract. NOW.

Join us for a virtual rally this Weds @1 to demand that Gov. Hochul terminate PPL’s contract & restore the trusted providers that have kept CDPAP going for years.

RSVP below:
Virtual rally: how many more scandals? How many more lives? End PPL’s contract NOW! Newspaper clippings, taped photos of Governor Hochul and Health Commissioner Jim McDonald. Headlines include, “Worker at Hochul’s hand-picked homecare payment firm allegedly siphons off cash meant for participants,” “PPL president resigns amid troubled Medicaid home care transition,” “News 10NBC Investigates: Caregivers face uphill battle getting health insurance through state’s new PPL program,” and “Lawmakers questions leadership swap at company managing CDPAP home care program.”
July 21, 2025 at 5:47 PM
caringmrising.bsky.social
Come record video testimony with us! It'll be fun 🙂 (and it's a critical part of our strategy to get out the word about the PPL disaster) #SaveCDPAP

RSVP: actionnetwork.org/events/zoom-...
July 16, 2025 at 7:06 PM
caringmrising.bsky.social
New York's home care system is in freefall:

🚨PPL's top executives are jumping ship
🚨Their systems are still broken
🚨Workers aren't getting paid
🚨And now PPL employees are stealing from the NYers they're supposed to serve

Gov Hochul: DO YOUR JOB. Terminate the contract and end the chaos.
July 15, 2025 at 10:13 PM
caringmrising.bsky.social
🚨🚨🚨 BREAKING: PPL employee caught stealing from THOUSANDS of home care workers.

This is Governor Hochul's "solution" to fraud in CDPAP? PPL IS the fraud.

End PPL's contract @speakercarlheastie.bsky.social @leaderasc.bsky.social

NOW.

nypost.com/2025/07/15/u...
Exclusive | Worker at Hochul’s hand-picked homecare payment firm allegedly siphons off cash meant for participants
An employee of Public Partnerships, LLC — the company hand-picked by Hochul’s administration to act as the sole payment go-between for the state and participants in the Consumer Directe…
nypost.com
July 15, 2025 at 10:11 PM
caringmrising.bsky.social
🧵BREAKING: PPL's President, CEO, and CFO all left the company in recent weeks. That’s not a routine handover - that’s a company in crisis:

www.timesunion.com/state/articl...
NY Lawmakers question CEO swap at company managing CDPAP home care program
The new CEO also operates a private equity firm that shares ownership of the company.
www.timesunion.com
July 15, 2025 at 4:59 PM
caringmrising.bsky.social
When it comes to home care, there are 2 paths for legislators to take: #SaveCDPAP or #PPLHell

Pass S1189/A2735 & S7954/A8355 before the end of session! 100,000s of disabled, aging, & home care worker NYers are counting on you to do the right thing!

CALL YOUR REPS: actionnetwork.org/forms/call-y...
June 4, 2025 at 3:25 PM
caringmrising.bsky.social
NYC! Tomorrow @ 11am we're joining Downstate NY ADAPT to blow the whistle on PPL at their midtown office. Meet up at Starbucks near 1411 Broadway!

If you have a PPL horror story & want to share it tomorrow - please DM us ❤️

RSVP HERE:
actionnetwork.org/events/hey-p...
Hey PPL! Hands off Our Care!
Join with Caring Majority Rising, Downstate NY ADAPT and allies to blow the whistle on PPL at a rally outside PPL's Manhattan office! We will meet up at a Starbucks nearby and go to the action locatio...
actionnetwork.org
June 1, 2025 at 10:17 PM
caringmrising.bsky.social
Happy Friday!

Angela needs PPL to pay her correctly so she can pay her rent. And you need to call your representatives before the weekend so we can pass the #SaveCDPAP Act!

Linked below is a script and legislator lookup tool — this should take 5 mins tops!

actionnetwork.org/forms/call-y...
May 30, 2025 at 4:35 PM
caringmrising.bsky.social
Caring Majority Rising Up! (Music Video WORLD PREMIERE) 🔥🔥🔥 – Caring Majority Team feat. Renee Christian

Please donate to CMR today to fund our advocacy in Albany to pass the #SaveCDPAP Act!

actionnetwork.org/fundraising/...
May 28, 2025 at 2:18 PM
caringmrising.bsky.social
Carol Gray is providing live-saving care for her son. PPL only paid her $3.77 for weeks of labor.

CALL your state reps to pass the #SaveCDPAP Act to save home care in NY and stop the PPL monopoly!

We've made it easy with this call script and legislator lookup:

actionnetwork.org/forms/call-y...
May 27, 2025 at 5:47 PM
caringmrising.bsky.social
“Since April, my husband and I have had to have constant conversations about what’s going to happen if either one of us as disabled people are put into a facility.” —Erica Glick, Consumer

📣 Call your reps at link below to pass the #SaveCDPAP Act!

spectrumlocalnews.com/nys/central-...
May 23, 2025 at 5:21 PM
caringmrising.bsky.social
🗞 Last Week with Caring Majority from @lizzieknock.bsky.social

Advocating for the #SaveCDPAP bill, fighting to save Medicaid, and countering smears against us by PPL

nycaringmajority.substack.com/p/last-week-...
Last Week with Caring Majority
Advocating for the #SaveCDPAP bill, fighting to save Medicaid, and countering smears against us by PPL
nycaringmajority.substack.com
May 23, 2025 at 5:18 PM
caringmrising.bsky.social
It’s PPL's Sixth Pay Day! Were you paid? How will PPL's health insurance policy impact you?

Please let us know! Your story has and will continue to make a difference.

docs.google.com/forms/d/e/1F...
It’s PPL's Sixth Pay Day! Were you paid?
PPL's sixth pay day was on May 15th. Caring Majority Rising, Consumer Directed Personal Assistance Association of New York State and NY Association on Independent Living are continuing to track who do...
docs.google.com
May 19, 2025 at 5:45 PM
caringmrising.bsky.social
‼️ GOOD NEWS: WE HAVE A #SaveCDPAP BILL NUMBER (A8355/S7954)!!!

Join us in community on Zoom today at 2PM to make calls to your legislators and drum up support.

RSVP HERE: actionnetwork.org/events/may-1...

See you soon
CDPAP Advocacy Zap!
Join Caring Majority Rising on Friday, May 16 at 2PM on ZOOM - Make calls, post on social media and take action together to #SaveCDPAP! RSVP now!
actionnetwork.org
May 16, 2025 at 2:09 PM
Reposted by Caring Majority Rising
Please support @caringmrising.bsky.social as we fight until we win a more just LTC system in NYS!
caringmrising.bsky.social Caring Majority Rising @caringmrising.bsky.social · May 15
Renee & Larissa here! We're two advocates who rely on the CDPAP program to lead fully independent lives, and we can honestly say there's hope for CDPAP because of Caring Majority's work.

💪 Please consider DONATING to Caring Majority Rising today!

actionnetwork.org/fundraising/...
Donate to Caring Majority Rising. Two home care consumers and Caring Majority Rising organizers, Larissa Martin and Renee Christian. Renee is a young white woman with red hair, uses a wheelchair, smiling, wearing a red Hand in Hand t shirt and Fair Pay for Home Care button. Larissa is a young biracial woman, also uses a wheelchair, glasses, smiling with a thumbs up, wearing a black Caring Majority rising hoodie.
May 15, 2025 at 10:39 PM
caringmrising.bsky.social
Renee & Larissa here! We're two advocates who rely on the CDPAP program to lead fully independent lives, and we can honestly say there's hope for CDPAP because of Caring Majority's work.

💪 Please consider DONATING to Caring Majority Rising today!

actionnetwork.org/fundraising/...
Donate to Caring Majority Rising. Two home care consumers and Caring Majority Rising organizers, Larissa Martin and Renee Christian. Renee is a young white woman with red hair, uses a wheelchair, smiling, wearing a red Hand in Hand t shirt and Fair Pay for Home Care button. Larissa is a young biracial woman, also uses a wheelchair, glasses, smiling with a thumbs up, wearing a black Caring Majority rising hoodie.
May 15, 2025 at 8:05 PM
caringmrising.bsky.social
If you employ someone in your home in NY, sign onto this
@domesticemployers.bsky.social letter to protect immigrant domestic workers ✊♥️

SIGN ON HERE: secure.everyaction.com/r86Glpc1o0GO...

www.cityandstateny.com/politics/202...
Employers of domestic workers push for legislation to protect immigrants
In addition to spreading fear in immigrant communities, the Trump administration’s mass deportation plans could hurt the state’s economy.
www.cityandstateny.com
May 14, 2025 at 6:13 PM
caringmrising.bsky.social
🆘⏳ 17 days left in legislative session to #SaveCDPAP!

TAG and CALL your state representatives to let them know we need them to immediately pass #SaveCDPAP legislation! Time is running out!

Call script & representative lookup linked here!

actionnetwork.org/forms/call-y...
May 13, 2025 at 3:11 PM
caringmrising.bsky.social
Survey for PPL Week 5 is up!

Please fill this out if you're a CDPAP consumer or worker & share your experience with us. This data has been crucial to show legislators & press how disastrous this transition has been!

docs.google.com/forms/d/e/1F...
It’s PPL's Fifth Pay Day! Were you paid?
PPL's fifth pay day was on May 8th. Caring Majority Rising, Consumer Directed Personal Assistance Association of New York State and NY Association on Independent Living are continuing to track who doe...
docs.google.com
May 9, 2025 at 7:45 PM
caringmrising.bsky.social
⚡️WYD next Tuesday??

Join us for an Advocacy Zap on Zoom! At 11a, 11:30a, 12a, and 12:30a, we'll be taking action together from our own homes!

We're fighting to pass legislation to #SaveCDPAP before the end of the legislative session, and together we will win!

actionnetwork.org/events/may-1...
CDPAP Advocacy Zap!
Join Caring Majority Rising on Tuesday, May 13 at 11am, 11:30am, 12pm or 12:30PM on ZOOM - Make calls, post on social media and take action together to #SaveCDPAP! RSVP now!
actionnetwork.org
May 9, 2025 at 7:15 PM