Miles W. Griffis
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mileswgriffis.bsky.social
Miles W. Griffis
@mileswgriffis.bsky.social
5.7K followers 600 following 470 posts
Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
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Reposted by Miles W. Griffis
madelinemiller.bsky.social
Thrilled to get to be part of this!
thesicktimes.org The Sick Times @thesicktimes.org · 4h
Join us for a free webinar! The Sick Times editors @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social — plus special guest speakers — will demystify the process of writing and pitching op-eds and essays on Long COVID. Register now: us06web.zoom.us/meeting/regi...
ID: A flier for the event reads, "The Sick Times: Free Webinar, The Long COVID Op-Ed. Help Break the Stigma. February 19th, 7-8:15pm ET. Learn how to pitch and share your story with tips from expert guests. Hosted by Miles Griffis and Betsy Ladyzhets. Below are the headshots of three guests, Torie Bosch, First Opinion Editor, STAT. Madeline Miller, Best-selling author. Funmi Okunola, MD, Co-founder Long COVID the Answers. A button at the bottom reads, "Comment "RSVP" for a registration link!"
February 10, 2026 at 12:14 AM
Reposted by Miles W. Griffis
jojofoshosho.bsky.social
Re-upping an older piece to illustrate that Covid precautions - especially for athletes - are not “extreme”. It’s not just about performance on the day of competition; long Covid can literally cost athletes their careers
February 9, 2026 at 5:53 PM
Reposted by Miles W. Griffis
sharpflower.bsky.social
It's Black History Month! If you'd like to support a Black creator making critical public health content please support my work! There are so few Black podcasters and even fewer in science comms. Making "Public Health is Dead" is a lot of labour I do for free 💚💖💀
www.publichealthisdead.com/support
Support the Show — Public Health is Dead | Podcast
www.publichealthisdead.com
February 9, 2026 at 10:13 PM
Reposted by Miles W. Griffis
julialmv.bsky.social
This study is so well done and I can't wait to see the results.

Highly encourage people with ME and those who provide health care for them to participat:
restandmecfs.com
February 9, 2026 at 6:33 PM
mileswgriffis.bsky.social
Join us for this exciting event!
thesicktimes.org The Sick Times @thesicktimes.org · 4h
Join us for a free webinar! The Sick Times editors @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social — plus special guest speakers — will demystify the process of writing and pitching op-eds and essays on Long COVID. Register now: us06web.zoom.us/meeting/regi...
ID: A flier for the event reads, "The Sick Times: Free Webinar, The Long COVID Op-Ed. Help Break the Stigma. February 19th, 7-8:15pm ET. Learn how to pitch and share your story with tips from expert guests. Hosted by Miles Griffis and Betsy Ladyzhets. Below are the headshots of three guests, Torie Bosch, First Opinion Editor, STAT. Madeline Miller, Best-selling author. Funmi Okunola, MD, Co-founder Long COVID the Answers. A button at the bottom reads, "Comment "RSVP" for a registration link!"
February 9, 2026 at 9:27 PM
Reposted by Miles W. Griffis
thrasherxy.bsky.social
For the Interept, I reported from Uganda about the effects of USAID cuts on LGBTQ people, HIV prevention activists and sex workers—and tried to tell the story from the POV of these important but criminalized communities. Please read and share.
theintercept.com/2026/02/09/t...
By Slashing Foreign Aid, Trump Is Fueling the Spread of HIV in Uganda
Reporting from Uganda, The Intercept saw how Trump’s effort to slash foreign aid is encouraging the transmission of HIV.
theintercept.com
February 9, 2026 at 4:16 PM
Reposted by Miles W. Griffis
rosesbloom24.bsky.social
Two active cases of tuberculosis and 18 cases of COVID-19 have been identified at a massive immigration detention center in El Paso, according to the local Democratic member of Congress.

www.texastribune.org/2026/02/07/i...
Two tuberculosis cases detected at Camp East Montana ICE facility
Eighteen cases of COVID-19 were also identified. U.S. Rep. Veronica Escobar on Friday visited the 5,000-bed tent facility on the Fort Bliss Army base and said she saw many "chronic issues."
www.texastribune.org
February 7, 2026 at 8:54 PM
Reposted by Miles W. Griffis
daviss.org
The community gathered this afternoon at Powderhorn Park for a memorial ceremony 1 month after Renee Good was shot and killed by an ICE agent on Portland Avenue.

Minneapolis February 7, 2026
February 8, 2026 at 2:49 AM
Reposted by Miles W. Griffis
mskellymhayes.bsky.social
My latest: Applauding community defense is not enough. We are organizing resistance to a concentration camp regime. The front lines are everywhere.

(Plus resources and my must-reads list!)
When the Headlines Change but the Violence Doesn’t
“This is not a cruel novelty project. It’s infrastructure, designed for permanence and expansion.”
organizingmythoughts.org
February 7, 2026 at 3:52 PM
Reposted by Miles W. Griffis
betsyladyzhets.bsky.social
Maryland's legislature is considering a bill that would support grants and loans for Long COVID research and development, building on an existing state program. Hearings are happening next week!

More from me @thesicktimes.org: thesicktimes.org/2026/02/06/m...
Maryland considers Long COVID innovation bill - The Sick Times
Maryland may soon become the first U.S. state to directly support Long COVID research and development. The state’s government is considering a bill that would establish a grant and loan program dedica...
thesicktimes.org
February 6, 2026 at 2:02 PM
Reposted by Miles W. Griffis
publichealthaction.bsky.social
Join PHAN and @airsupportproject.bsky.social on Feb 5 at 12 noon ET for a discussion led by Long COVID advocate Chimére L. Sweeney, founder of The Black Long COVID Experience, on how Long COVID is affecting Black people and how Black leaders and advocates are shaping COVID-aware responses today.
Long COVID and the Black community Join us for a focused discussion led by Chimére L. Sweeney founder of The Black Long COVID Experience on how Long COVID is continuing to affect Black people and how The Black Long COVID Experience is shaping Long COVID aware responses today. Logo for The Black Long COVID Experience 12p ET/5p GMT Zoom Feb 5th Stylized image of red, yellow, and green rays coming up from the bottom right phan.global/events PHAN logo Air Support Project Logo phan.global/events
February 2, 2026 at 12:42 AM
Reposted by Miles W. Griffis
vashetc.bsky.social
Hi everyone, I wanted to share a research study I just launched on rest, energy, & ME/CFS, open to people with ME/CFS & medical or healthcare providers who are currently practicing or conducting research & have had at least 1 patient or participant with ME/CFS. Visit restandmecfs.com for more.
This is a flyer for the Rest & ME/CFS research study, IRB number 26-6. It says "participate in a survey about rest, energy, and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". In the upper right corner it says Questions? Email Study Co-PI Victoria: empwrtc@protonmail.com Below the header is interwoven circles, one is black with text that says Fully Virtual, low- energy version included. The circle behind is an image of white silk wrinkled. Next to it text says To participate you must be: Over the age of 18 AND EITHER Have ME/CFS worked with at research. (self or professionally diagnosed) or be A medical/healthcare provider who has least one person with ME/CFS, currently practicing or conducting Below this it says learn more at www.restandmecfs.com There are two icons on the bottom left corner. One says ETC and above it are six icon-stick figure people holding hands in a circle. Next to it is Cal Poly Pomona's logo, a diamond with an orangey yellow background and palm trees and a building inside. The Cal Poly Pomona Institutional Review Board has reviewed and approved for conduct this research involving human subjects under protocol IRB 26-6
February 4, 2026 at 4:05 PM
Reposted by Miles W. Griffis
thesicktimes.org
💉 FDA granted expanded access to the stem cell infusion RegeneCyte for Long COVID

🌍 New study found that Long COVID isn’t being consistently captured around the world

💊 A phase two trial for LC-associated POTS is testing 2-HOBA

#LongCOVID research updates: bit.ly/4qfLpzC
A Black doctor in a white coat and blue shirt wearing a surgical mask stands before seated, elderly patients in Lagos, Nigeria. The text reads, “The Sick Times. Long COVID research updates. The FDA granted expanded access to the stem cell infusion RegeneCyte for Long COVID. A new observational study found that Long COVID isn’t being consistently captured around the world. A phase two trial for Long COVID-associated POTS is testing 2-hydroxybenzylamine (2-HOBA).” The Food and Drug Administration (FDA) has granted expanded access to the stem cell infusion RegeneCytefor Long COVID. The investigational treatment is derived from human umbilical cord blood and is produced by the company Stemcyte Inc. Expanded access, sometimes called “compassionate use,” is a potential way for people with life-threatening diseases to access a treatment still being researched, in the absence of other options. A small phase two trial of the intervention that included 30 participants recently found “statistically significant reductions in fatigue symptoms” in people with Long COVID. Long COVID isn’t being consistently captured around the world due to differences in sociological factors, diagnostic tools, and healthcare access. A new observational study in Frontiers of Human Neuroscience assessed the neurological symptoms of over 3,000 people with the disease from Colombia, India, Nigeria, and the U.S., and found a higher frequency of symptoms in Colombia and the U.S. The authors concluded that the study demonstrates the challenge of comparing the burden of neurological symptoms “across diverse settings when using different assessment methods.” Still, they found one common theme: Long COVID “affects young and middle-aged adults in their prime, causing significant detrimental impact on the workforce, productivity, and innovation all over the world.” A phase two trial for Long COVID-associated postural orthostatic tachycardia syndrome (POTS) is testing a product called 2-hydroxybenzylamine (2-HOBA). The natural compound comes from Himalayan buckwheat seeds and is being studied in other diseases to address inflammation and oxidative stress. The small study will enroll 50 participants in Nashville, Tennessee. Participants will take 500 milligrams of the drug three times per day for 28 days, or receive a placebo. Contact: Marwa Mohamed, marwa.mohamed@vumc.org.
February 4, 2026 at 3:41 PM
mileswgriffis.bsky.social
"It bothers me that people often don’t even blink at what I share, glossing over the serious ramifications of what one SARS-CoV-2 infection did to my life. I hold years of knowledge, research, & pain inside me."

Powerful new essay by @wanderingkayli.bsky.social 🙌

thesicktimes.org/2026/02/02/s...
Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition - The Sick Times
Art offers a way to translate lived experience into shared understanding. Some of these efforts are already in progress: in October 2025, my research team launched a photo exhibition called Living wit...
thesicktimes.org
February 3, 2026 at 9:35 PM
mileswgriffis.bsky.social
Despite Long COVID's toll on millions of children, there are only a handful of clinical trials that include them. @spichaksimon.bsky.social reported on three upcoming pediatric trials.

Co-published with @19thnews.org!

thesicktimes.org/2026/02/03/l...
Long COVID affects millions of children. The largest pediatric trial so far launches this year. - The Sick Times
One NIH study will test low-dose naltrexone, while other upcoming trials will test larozitide and taurine.
thesicktimes.org
February 3, 2026 at 7:18 PM
Reposted by Miles W. Griffis
19thnews.org
There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon.

This article was published with @thesicktimes.org, a nonprofit newsroom covering long COVID:
Long COVID affects millions of children. The largest pediatric trial so far launches this year.
There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon.
19thnews.org
February 3, 2026 at 5:50 PM
Reposted by Miles W. Griffis
thesicktimes.org
Trends suggest we may be in for a second round of this winter’s COVID-19 wave after the initial peak in early January. Flu levels increased this week, too, likely due to more influenza B spread. Read this week's full COVID-19 trends report: bit.ly/4tgFVqY
Graphic from The Sick Times sharing the latest COVID-19 trends for February 3, 2026. The graphic presents trends for three metrics: WastewaterSCAN category for SARS-CoV-2, which is "high" (represented with an orange color) and reports a slight decrease (represented with a diagonal down arrow); CDC wastewater viral activity level for SARS-Cov-2, which is "moderate*" (orange) and reports a slight decrease; and CDC COVID-19 test positivity, which is moderate (darker yellow) and stable (side to side arrow). Text below these metrics reads: "*CDC wastewater viral activity levels are calculated based on measurements in the last two years only. They do not account for the lower spread that could be possible with more widespread precautions." The middle text reads, “COVID-19 levels are going up in parts of the South, West, and possibly the Midwest, while continuing to decline elsewhere. Trends suggest we may be in for a second round of this winter’s COVID-19 wave after the initial peak in early January. Flu levels increased this week, too, likely due to more influenza B spread. — Betsy Ladyzhets.”
February 3, 2026 at 6:55 PM
Reposted by Miles W. Griffis
marisakabas.bsky.social
New — I spoke to eight people who were present at the ICE protest on Saturday in Portland, Oregon when federal agents deployed tear gas and rubber bullets into a crowd of families, children, elderly and disabled people, and their pets.

These are their stories:
What it's like to see ICE tear gas kids
Attendees at a Portland, OR protest describe a vicious, unprovoked and sudden attack
www.thehandbasket.co
February 3, 2026 at 1:25 AM
Reposted by Miles W. Griffis
thesicktimes.org
One of the greatest barriers for addressing the #LongCOVID crisis is public invisibility. To make the illness more legible to the public, Kayli Jamieson’s research team has launched a photo exhibition called Living with Long COVID at the Museum of Vancouver. bit.ly/4byOFlX
A young person wears a black respirator and looks at a panel at the Living with Long COVID photography exhibit at the Museum of Vancouver. The panel the look at features photos of people with Long COVID. The text reads, “The Sick Times. Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition. By Kayli Jamieson.” Four photos: 1) 2) Many people in high quality masks explore the Living with Long COVID photography exhibit at the Museum of Vancouver. On person stands out in the middle of the photo wearing bright green and yellow clothes with a bright green respirator. 3) Twelve pillows are displayed on a pink wall at the Living with Long COVID exhibit at the Museum of Vancouver. Each pillowcase contains writings about Long COVID from a March 2025 demonstration for Long COVID Awareness Day. 4) A man wears a respirator and looks at a panel at the Living with Long COVID photography exhibit at the Museum of Vancouver. The colorful panel includes text and features photos of people with Long COVID.
February 3, 2026 at 3:00 PM
Reposted by Miles W. Griffis
danwyke.bsky.social
Three deaths in three days. How many more #MyalgicEncephalomyelitis patients must die before governments, health agencies and medical professionals do something? #MECFS
February 2, 2026 at 11:59 AM
Reposted by Miles W. Griffis
thesicktimes.org
Last week, bedroom producer and electronic musician Sebastian “Sebass” Gisperg released his third album. The EP, titled “700,” takes its name from the 700+ days Sebastian has spent 99% bedbound with myalgic encephalomyelitis (ME). Check him out on our IG: www.instagram.com/p/DT-2geSD-_q/
A young white man with brown hair, brown eyes, a short beard and mustache sits in his bed holding a laptop open to Spotify. On the wall behind him are two posters that read, “Tried 30 meds. None worked. #curemecfs.” And, “Not tired. Sick. #curemecfs.” The text reads, “The Sick Times. Sebass releases new EP inspired by 700 days bedbound with ME.” quotes inside purple speech bubbles. They reads, “ [Music is] a way for me to let my emotions out, be creative and to actually almost take part in normal life somehow. Its the only hobby I can do.”
January 30, 2026 at 3:55 PM
Reposted by Miles W. Griffis
crookedneighbor.bsky.social
I’m working on a story for @thesicktimes.org about things people with Long Covid and other energy-limiting illnesses (as well as their caregivers) can do to protect themselves and their communities from ICE. I’d love to speak with any of the following:

(1/3)
February 2, 2026 at 6:20 PM
Reposted by Miles W. Griffis
jasonkoebler.bsky.social
Very excited to say that 404 Media's zine about ICE Surveillance is here. If you ordered a print copy, I put it in the mail last week. If not, we of course think the info inside is very important so here's a free PDF. We also translated it into Spanish:

www.404media.co/icezine/
Our Zine About ICE Surveillance Is Here
Download a PDF of our first ever zine here.
www.404media.co
February 2, 2026 at 3:04 PM
Reposted by Miles W. Griffis
togetherwemask.bsky.social
Miles W. Griffis @mileswgriffis.bsky.social, editors/co-founders of @thesicktimes.org shared his lived experience with #LongCOVID at #MaskTogetherAmerica Long COVID Defense Series II forum.
February 1, 2026 at 4:16 AM
Reposted by Miles W. Griffis
couts.bsky.social
NEW: The @wired.com Security desk put together a comprehensive guide to filming ICE—with tips for reducing risk at the forefront. No paywall, but please consider subscribing to help find these kinds of resources. And stay safe out there. www.wired.com/story/how-to...

www.wired.com/v2/offers/wi...
How to Film ICE
Filming federal agents in public is legal, but avoiding a dangerous—even deadly—confrontation isn’t guaranteed. Here’s how to record ICE and CBP agents as safely as possible and have an impact.
www.wired.com
January 31, 2026 at 10:55 AM