Miles W. Griffis
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mileswgriffis.bsky.social
Miles W. Griffis
@mileswgriffis.bsky.social
5.7K followers 600 following 470 posts
Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
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Reposted by Miles W. Griffis
betsyladyzhets.bsky.social
Maryland's legislature is considering a bill that would support grants and loans for Long COVID research and development, building on an existing state program. Hearings are happening next week!

More from me @thesicktimes.org: thesicktimes.org/2026/02/06/m...
Maryland considers Long COVID innovation bill - The Sick Times
Maryland may soon become the first U.S. state to directly support Long COVID research and development. The state’s government is considering a bill that would establish a grant and loan program dedica...
thesicktimes.org
February 6, 2026 at 2:02 PM
Reposted by Miles W. Griffis
publichealthaction.bsky.social
Join PHAN and @airsupportproject.bsky.social on Feb 5 at 12 noon ET for a discussion led by Long COVID advocate Chimére L. Sweeney, founder of The Black Long COVID Experience, on how Long COVID is affecting Black people and how Black leaders and advocates are shaping COVID-aware responses today.
Long COVID and the Black community Join us for a focused discussion led by Chimére L. Sweeney founder of The Black Long COVID Experience on how Long COVID is continuing to affect Black people and how The Black Long COVID Experience is shaping Long COVID aware responses today. Logo for The Black Long COVID Experience 12p ET/5p GMT Zoom Feb 5th Stylized image of red, yellow, and green rays coming up from the bottom right phan.global/events PHAN logo Air Support Project Logo phan.global/events
February 2, 2026 at 12:42 AM
Reposted by Miles W. Griffis
vashetc.bsky.social
Hi everyone, I wanted to share a research study I just launched on rest, energy, & ME/CFS, open to people with ME/CFS & medical or healthcare providers who are currently practicing or conducting research & have had at least 1 patient or participant with ME/CFS. Visit restandmecfs.com for more.
This is a flyer for the Rest & ME/CFS research study, IRB number 26-6. It says "participate in a survey about rest, energy, and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". In the upper right corner it says Questions? Email Study Co-PI Victoria: empwrtc@protonmail.com Below the header is interwoven circles, one is black with text that says Fully Virtual, low- energy version included. The circle behind is an image of white silk wrinkled. Next to it text says To participate you must be: Over the age of 18 AND EITHER Have ME/CFS worked with at research. (self or professionally diagnosed) or be A medical/healthcare provider who has least one person with ME/CFS, currently practicing or conducting Below this it says learn more at www.restandmecfs.com There are two icons on the bottom left corner. One says ETC and above it are six icon-stick figure people holding hands in a circle. Next to it is Cal Poly Pomona's logo, a diamond with an orangey yellow background and palm trees and a building inside. The Cal Poly Pomona Institutional Review Board has reviewed and approved for conduct this research involving human subjects under protocol IRB 26-6
February 4, 2026 at 4:05 PM
Reposted by Miles W. Griffis
thesicktimes.org
💉 FDA granted expanded access to the stem cell infusion RegeneCyte for Long COVID

🌍 New study found that Long COVID isn’t being consistently captured around the world

💊 A phase two trial for LC-associated POTS is testing 2-HOBA

#LongCOVID research updates: bit.ly/4qfLpzC
A Black doctor in a white coat and blue shirt wearing a surgical mask stands before seated, elderly patients in Lagos, Nigeria. The text reads, “The Sick Times. Long COVID research updates. The FDA granted expanded access to the stem cell infusion RegeneCyte for Long COVID. A new observational study found that Long COVID isn’t being consistently captured around the world. A phase two trial for Long COVID-associated POTS is testing 2-hydroxybenzylamine (2-HOBA).” The Food and Drug Administration (FDA) has granted expanded access to the stem cell infusion RegeneCytefor Long COVID. The investigational treatment is derived from human umbilical cord blood and is produced by the company Stemcyte Inc. Expanded access, sometimes called “compassionate use,” is a potential way for people with life-threatening diseases to access a treatment still being researched, in the absence of other options. A small phase two trial of the intervention that included 30 participants recently found “statistically significant reductions in fatigue symptoms” in people with Long COVID. Long COVID isn’t being consistently captured around the world due to differences in sociological factors, diagnostic tools, and healthcare access. A new observational study in Frontiers of Human Neuroscience assessed the neurological symptoms of over 3,000 people with the disease from Colombia, India, Nigeria, and the U.S., and found a higher frequency of symptoms in Colombia and the U.S. The authors concluded that the study demonstrates the challenge of comparing the burden of neurological symptoms “across diverse settings when using different assessment methods.” Still, they found one common theme: Long COVID “affects young and middle-aged adults in their prime, causing significant detrimental impact on the workforce, productivity, and innovation all over the world.” A phase two trial for Long COVID-associated postural orthostatic tachycardia syndrome (POTS) is testing a product called 2-hydroxybenzylamine (2-HOBA). The natural compound comes from Himalayan buckwheat seeds and is being studied in other diseases to address inflammation and oxidative stress. The small study will enroll 50 participants in Nashville, Tennessee. Participants will take 500 milligrams of the drug three times per day for 28 days, or receive a placebo. Contact: Marwa Mohamed, marwa.mohamed@vumc.org.
February 4, 2026 at 3:41 PM
mileswgriffis.bsky.social
"It bothers me that people often don’t even blink at what I share, glossing over the serious ramifications of what one SARS-CoV-2 infection did to my life. I hold years of knowledge, research, & pain inside me."

Powerful new essay by @wanderingkayli.bsky.social 🙌

thesicktimes.org/2026/02/02/s...
Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition - The Sick Times
Art offers a way to translate lived experience into shared understanding. Some of these efforts are already in progress: in October 2025, my research team launched a photo exhibition called Living wit...
thesicktimes.org
February 3, 2026 at 9:35 PM
mileswgriffis.bsky.social
Despite Long COVID's toll on millions of children, there are only a handful of clinical trials that include them. @spichaksimon.bsky.social reported on three upcoming pediatric trials.

Co-published with @19thnews.org!

thesicktimes.org/2026/02/03/l...
Long COVID affects millions of children. The largest pediatric trial so far launches this year. - The Sick Times
One NIH study will test low-dose naltrexone, while other upcoming trials will test larozitide and taurine.
thesicktimes.org
February 3, 2026 at 7:18 PM
Reposted by Miles W. Griffis
19thnews.org
There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon.

This article was published with @thesicktimes.org, a nonprofit newsroom covering long COVID:
Long COVID affects millions of children. The largest pediatric trial so far launches this year.
There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon.
19thnews.org
February 3, 2026 at 5:50 PM
Reposted by Miles W. Griffis
thesicktimes.org
Trends suggest we may be in for a second round of this winter’s COVID-19 wave after the initial peak in early January. Flu levels increased this week, too, likely due to more influenza B spread. Read this week's full COVID-19 trends report: bit.ly/4tgFVqY
Graphic from The Sick Times sharing the latest COVID-19 trends for February 3, 2026. The graphic presents trends for three metrics: WastewaterSCAN category for SARS-CoV-2, which is "high" (represented with an orange color) and reports a slight decrease (represented with a diagonal down arrow); CDC wastewater viral activity level for SARS-Cov-2, which is "moderate*" (orange) and reports a slight decrease; and CDC COVID-19 test positivity, which is moderate (darker yellow) and stable (side to side arrow). Text below these metrics reads: "*CDC wastewater viral activity levels are calculated based on measurements in the last two years only. They do not account for the lower spread that could be possible with more widespread precautions." The middle text reads, “COVID-19 levels are going up in parts of the South, West, and possibly the Midwest, while continuing to decline elsewhere. Trends suggest we may be in for a second round of this winter’s COVID-19 wave after the initial peak in early January. Flu levels increased this week, too, likely due to more influenza B spread. — Betsy Ladyzhets.”
February 3, 2026 at 6:55 PM
Reposted by Miles W. Griffis
marisakabas.bsky.social
New — I spoke to eight people who were present at the ICE protest on Saturday in Portland, Oregon when federal agents deployed tear gas and rubber bullets into a crowd of families, children, elderly and disabled people, and their pets.

These are their stories:
What it's like to see ICE tear gas kids
Attendees at a Portland, OR protest describe a vicious, unprovoked and sudden attack
www.thehandbasket.co
February 3, 2026 at 1:25 AM
Reposted by Miles W. Griffis
thesicktimes.org
One of the greatest barriers for addressing the #LongCOVID crisis is public invisibility. To make the illness more legible to the public, Kayli Jamieson’s research team has launched a photo exhibition called Living with Long COVID at the Museum of Vancouver. bit.ly/4byOFlX
A young person wears a black respirator and looks at a panel at the Living with Long COVID photography exhibit at the Museum of Vancouver. The panel the look at features photos of people with Long COVID. The text reads, “The Sick Times. Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition. By Kayli Jamieson.” Four photos: 1) 2) Many people in high quality masks explore the Living with Long COVID photography exhibit at the Museum of Vancouver. On person stands out in the middle of the photo wearing bright green and yellow clothes with a bright green respirator. 3) Twelve pillows are displayed on a pink wall at the Living with Long COVID exhibit at the Museum of Vancouver. Each pillowcase contains writings about Long COVID from a March 2025 demonstration for Long COVID Awareness Day. 4) A man wears a respirator and looks at a panel at the Living with Long COVID photography exhibit at the Museum of Vancouver. The colorful panel includes text and features photos of people with Long COVID.
February 3, 2026 at 3:00 PM
Reposted by Miles W. Griffis
danwyke.bsky.social
Three deaths in three days. How many more #MyalgicEncephalomyelitis patients must die before governments, health agencies and medical professionals do something? #MECFS
February 2, 2026 at 11:59 AM
Reposted by Miles W. Griffis
thesicktimes.org
Last week, bedroom producer and electronic musician Sebastian “Sebass” Gisperg released his third album. The EP, titled “700,” takes its name from the 700+ days Sebastian has spent 99% bedbound with myalgic encephalomyelitis (ME). Check him out on our IG: www.instagram.com/p/DT-2geSD-_q/
A young white man with brown hair, brown eyes, a short beard and mustache sits in his bed holding a laptop open to Spotify. On the wall behind him are two posters that read, “Tried 30 meds. None worked. #curemecfs.” And, “Not tired. Sick. #curemecfs.” The text reads, “The Sick Times. Sebass releases new EP inspired by 700 days bedbound with ME.” quotes inside purple speech bubbles. They reads, “ [Music is] a way for me to let my emotions out, be creative and to actually almost take part in normal life somehow. Its the only hobby I can do.”
January 30, 2026 at 3:55 PM
Reposted by Miles W. Griffis
crookedneighbor.bsky.social
I’m working on a story for @thesicktimes.org about things people with Long Covid and other energy-limiting illnesses (as well as their caregivers) can do to protect themselves and their communities from ICE. I’d love to speak with any of the following:

(1/3)
February 2, 2026 at 6:20 PM
Reposted by Miles W. Griffis
jasonkoebler.bsky.social
Very excited to say that 404 Media's zine about ICE Surveillance is here. If you ordered a print copy, I put it in the mail last week. If not, we of course think the info inside is very important so here's a free PDF. We also translated it into Spanish:

www.404media.co/icezine/
Our Zine About ICE Surveillance Is Here
Download a PDF of our first ever zine here.
www.404media.co
February 2, 2026 at 3:04 PM
Reposted by Miles W. Griffis
togetherwemask.bsky.social
Miles W. Griffis @mileswgriffis.bsky.social, editors/co-founders of @thesicktimes.org shared his lived experience with #LongCOVID at #MaskTogetherAmerica Long COVID Defense Series II forum.
February 1, 2026 at 4:16 AM
Reposted by Miles W. Griffis
couts.bsky.social
NEW: The @wired.com Security desk put together a comprehensive guide to filming ICE—with tips for reducing risk at the forefront. No paywall, but please consider subscribing to help find these kinds of resources. And stay safe out there. www.wired.com/story/how-to...

www.wired.com/v2/offers/wi...
How to Film ICE
Filming federal agents in public is legal, but avoiding a dangerous—even deadly—confrontation isn’t guaranteed. Here’s how to record ICE and CBP agents as safely as possible and have an impact.
www.wired.com
January 31, 2026 at 10:55 AM
Reposted by Miles W. Griffis
betsyladyzhets.bsky.social
I am working on a story about this bill for @thesicktimes.org! DM or email me if you would like to share comments on its significance.
chromatowski.bsky.social C.H. Romatowski @chromatowski.bsky.social · 6d
Long Covid friends—

A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.

The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!

More info:
Sign the Petition
Advocate for Maryland HB 0027 for Long COVID R&D
www.change.org
January 30, 2026 at 11:17 PM
Reposted by Miles W. Griffis
togetherwemask.bsky.social
Miles W. Griffis @mileswgriffis.bsky.social, editors/co-founders of @thesicktimes.org shared his lived experience with #LongCOVID at #MaskTogetherAmerica Long COVID Defense Series II forum.

www.instagram.com/reel/DUI-ZWu...

www.facebook.com/share/v/16vX...
Redirecting...
www.facebook.com
January 30, 2026 at 9:09 PM
Reposted by Miles W. Griffis
primateyell.bsky.social
ah yes, it is famously the role of the L.A. police chief to veto state law because he doesn't like it

that is exactly what we (do not) elect him to do
January 30, 2026 at 5:40 AM
Reposted by Miles W. Griffis
deathpanel.bsky.social
In our latest, we’re joined by @melissagiragrant.com to discuss how Minneapolis is fighting back against state violence with extraordinary acts of community care, Melissa’s reporting on ICE surges across the county, and ICE paying a visit to our own home

soundcloud.com/deathpanel/d...
Dispatch from Occupied Minneapolis w/ Melissa Gira Grant (01/29/26)
Beatrice is joined by Melissa Gira Grant to discuss what’s happening on the ground in Minneapolis, the murders of Renee Good and Alex Pretti, and the broader currents of fascism nationally producing t
soundcloud.com
January 29, 2026 at 2:29 PM
Reposted by Miles W. Griffis
chromatowski.bsky.social
“Reinfection was associated with more than double the risk of a long COVID diagnosis” in a large study of children and adolescents.
January 29, 2026 at 7:59 PM
Reposted by Miles W. Griffis
premthakker.bsky.social
NEW: The Israeli military today accepted the Gaza Health Ministry's estimate of 70,000+ killed.

But in 2024, 62 Dems joined 207 Republicans to ban the State Dept. from citing the Ministry's stats.

Now, even Israel accepts them — perhaps because they realize what is feared: the toll is even higher.
List of Dems that supported suppressing the Gaza death toll Allred, Texas Gottheimer, New Jersey Norcross, New Jersey Stevens, Michigan Auchincloss, Massachusetts Harder, California Pallone, New Jersey Strickland, Washington Boyle, Pennsylvania Hoyer, Maryland Panetta, California Suozzi, New York Caraveo, Colorado Jackson, Illinois Pappas, New Hampshire Swalwell, California Cohen, Tennessee Kennedy, New York Perez, Washington Thanedar, Michigan Correa, California Kilmer, Washington Pettersen, Colorado Torres, California Costa, California Craig, Minnesota Landsman, Ohio Ryan, New York Torres, New York Cuellar, Texas Lee, Nevada Schiff, California Trone, Maryland Davis, North Carolina Levin, California Schneider, Illinois Vargas, California Espaillat, New York Lieu, California Scholten, Michigan Veasey, Texas Manning, North Carolina Schrier, Washington Wasserman Schultz, Florida Fletcher, Texas McBath, Georgia Scott, David, Georgia Frankel, Lois, Florida Meng, New York Sherman, California Gallego, Arizona Morelle, New York Slotkin, Michigan Golden, Maine Moskowitz, Florida Soto, Florida Goldman, New York Mrvan, Indiana Spanberger, Virginia Gonzalez, Vicente, Texas Nickel, North Carolina Stanton, Arizona
January 29, 2026 at 4:19 PM
Reposted by Miles W. Griffis
pbump.com
Finally got around to a bit of research I'd been meaning to explore, and: There is no documented instance of an ICE officer being identified and assaulted while off duty because he wasn't masked. www.pbump.net/o/ices-excus...
ICE’s excuse for wearing masks has never actually manifested
There have been incidents of harassment and threats. But there are no apparent incidents in which identified ICE officers have been assaulted off-duty.
www.pbump.net
January 29, 2026 at 6:05 PM
Reposted by Miles W. Griffis
alexip718.com
Not just any journalist, she won the goddamn Triple Crown of broadcast journalism (an Emmy, a Peabody, and a Murrow) in 2024 for her reporting on Gaza.

This is textbook censorship of the highest degree
aljazeera.com Al Jazeera English @aljazeera.com · 8d
Palestinian journalist Bisan Owda with 1.4m followers reports TikTok ban https://aje.news/ljjuww
Palestinian journalist Bisan Owda with 1.4m followers reports TikTok ban
January 29, 2026 at 4:33 AM