Miles W. Griffis
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
"It bothers me that people often don’t even blink at what I share, glossing over the serious ramifications of what one SARS-CoV-2 infection did to my life. I hold years of knowledge, research, & pain inside me."
Powerful new essay by @wanderingkayli.bsky.social 🙌
thesicktimes.org/2026/02/02/s...
Powerful new essay by @wanderingkayli.bsky.social 🙌
thesicktimes.org/2026/02/02/s...
Snapshots of the unseen: How we focused Long COVID in a recent photo exhibition - The Sick Times
Art offers a way to translate lived experience into shared understanding. Some of these efforts are already in progress: in October 2025, my research team launched a photo exhibition called Living wit...
thesicktimes.org
February 3, 2026 at 9:35 PM
"It bothers me that people often don’t even blink at what I share, glossing over the serious ramifications of what one SARS-CoV-2 infection did to my life. I hold years of knowledge, research, & pain inside me."
Powerful new essay by @wanderingkayli.bsky.social 🙌
thesicktimes.org/2026/02/02/s...
Powerful new essay by @wanderingkayli.bsky.social 🙌
thesicktimes.org/2026/02/02/s...
Despite Long COVID's toll on millions of children, there are only a handful of clinical trials that include them. @spichaksimon.bsky.social reported on three upcoming pediatric trials.
Co-published with @19thnews.org!
thesicktimes.org/2026/02/03/l...
Co-published with @19thnews.org!
thesicktimes.org/2026/02/03/l...
Long COVID affects millions of children. The largest pediatric trial so far launches this year. - The Sick Times
One NIH study will test low-dose naltrexone, while other upcoming trials will test larozitide and taurine.
thesicktimes.org
February 3, 2026 at 7:18 PM
Despite Long COVID's toll on millions of children, there are only a handful of clinical trials that include them. @spichaksimon.bsky.social reported on three upcoming pediatric trials.
Co-published with @19thnews.org!
thesicktimes.org/2026/02/03/l...
Co-published with @19thnews.org!
thesicktimes.org/2026/02/03/l...
Reposted by Miles W. Griffis
There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon.
This article was published with @thesicktimes.org, a nonprofit newsroom covering long COVID:
This article was published with @thesicktimes.org, a nonprofit newsroom covering long COVID:
Long COVID affects millions of children. The largest pediatric trial so far launches this year.
There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon.
19thnews.org
February 3, 2026 at 5:50 PM
There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon.
This article was published with @thesicktimes.org, a nonprofit newsroom covering long COVID:
This article was published with @thesicktimes.org, a nonprofit newsroom covering long COVID:
Reposted by Miles W. Griffis
Trends suggest we may be in for a second round of this winter’s COVID-19 wave after the initial peak in early January. Flu levels increased this week, too, likely due to more influenza B spread. Read this week's full COVID-19 trends report: bit.ly/4tgFVqY
February 3, 2026 at 6:55 PM
Trends suggest we may be in for a second round of this winter’s COVID-19 wave after the initial peak in early January. Flu levels increased this week, too, likely due to more influenza B spread. Read this week's full COVID-19 trends report: bit.ly/4tgFVqY
Reposted by Miles W. Griffis
New — I spoke to eight people who were present at the ICE protest on Saturday in Portland, Oregon when federal agents deployed tear gas and rubber bullets into a crowd of families, children, elderly and disabled people, and their pets.
These are their stories:
These are their stories:
What it's like to see ICE tear gas kids
Attendees at a Portland, OR protest describe a vicious, unprovoked and sudden attack
www.thehandbasket.co
February 3, 2026 at 1:25 AM
New — I spoke to eight people who were present at the ICE protest on Saturday in Portland, Oregon when federal agents deployed tear gas and rubber bullets into a crowd of families, children, elderly and disabled people, and their pets.
These are their stories:
These are their stories:
Reposted by Miles W. Griffis
One of the greatest barriers for addressing the #LongCOVID crisis is public invisibility. To make the illness more legible to the public, Kayli Jamieson’s research team has launched a photo exhibition called Living with Long COVID at the Museum of Vancouver. bit.ly/4byOFlX
February 3, 2026 at 3:00 PM
One of the greatest barriers for addressing the #LongCOVID crisis is public invisibility. To make the illness more legible to the public, Kayli Jamieson’s research team has launched a photo exhibition called Living with Long COVID at the Museum of Vancouver. bit.ly/4byOFlX
Reposted by Miles W. Griffis
Three deaths in three days. How many more #MyalgicEncephalomyelitis patients must die before governments, health agencies and medical professionals do something? #MECFS
February 2, 2026 at 11:59 AM
Three deaths in three days. How many more #MyalgicEncephalomyelitis patients must die before governments, health agencies and medical professionals do something? #MECFS
Reposted by Miles W. Griffis
Last week, bedroom producer and electronic musician Sebastian “Sebass” Gisperg released his third album. The EP, titled “700,” takes its name from the 700+ days Sebastian has spent 99% bedbound with myalgic encephalomyelitis (ME). Check him out on our IG: www.instagram.com/p/DT-2geSD-_q/
![quotes inside purple speech bubbles. They reads, “ [Music is] a way for me to let my emotions out, be creative and to actually almost take part in normal life somehow. Its the only hobby I can do.”](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:age5xvis2s2vy5qiz2tjxoc6/bafkreig3dr2uunyct3glyjmbc7ysrfmgn63mekveqtdjq774qqnihmny5e@jpeg)
January 30, 2026 at 3:55 PM
Last week, bedroom producer and electronic musician Sebastian “Sebass” Gisperg released his third album. The EP, titled “700,” takes its name from the 700+ days Sebastian has spent 99% bedbound with myalgic encephalomyelitis (ME). Check him out on our IG: www.instagram.com/p/DT-2geSD-_q/
Reposted by Miles W. Griffis
I’m working on a story for @thesicktimes.org about things people with Long Covid and other energy-limiting illnesses (as well as their caregivers) can do to protect themselves and their communities from ICE. I’d love to speak with any of the following:
(1/3)
(1/3)
February 2, 2026 at 6:20 PM
I’m working on a story for @thesicktimes.org about things people with Long Covid and other energy-limiting illnesses (as well as their caregivers) can do to protect themselves and their communities from ICE. I’d love to speak with any of the following:
(1/3)
(1/3)
Reposted by Miles W. Griffis
Very excited to say that 404 Media's zine about ICE Surveillance is here. If you ordered a print copy, I put it in the mail last week. If not, we of course think the info inside is very important so here's a free PDF. We also translated it into Spanish:
www.404media.co/icezine/
www.404media.co/icezine/
Our Zine About ICE Surveillance Is Here
Download a PDF of our first ever zine here.
www.404media.co
February 2, 2026 at 3:04 PM
Very excited to say that 404 Media's zine about ICE Surveillance is here. If you ordered a print copy, I put it in the mail last week. If not, we of course think the info inside is very important so here's a free PDF. We also translated it into Spanish:
www.404media.co/icezine/
www.404media.co/icezine/
Reposted by Miles W. Griffis
Miles W. Griffis @mileswgriffis.bsky.social, editors/co-founders of @thesicktimes.org shared his lived experience with #LongCOVID at #MaskTogetherAmerica Long COVID Defense Series II forum.
February 1, 2026 at 4:16 AM
Miles W. Griffis @mileswgriffis.bsky.social, editors/co-founders of @thesicktimes.org shared his lived experience with #LongCOVID at #MaskTogetherAmerica Long COVID Defense Series II forum.
Reposted by Miles W. Griffis
NEW: The @wired.com Security desk put together a comprehensive guide to filming ICE—with tips for reducing risk at the forefront. No paywall, but please consider subscribing to help find these kinds of resources. And stay safe out there. www.wired.com/story/how-to...
www.wired.com/v2/offers/wi...
www.wired.com/v2/offers/wi...
How to Film ICE
Filming federal agents in public is legal, but avoiding a dangerous—even deadly—confrontation isn’t guaranteed. Here’s how to record ICE and CBP agents as safely as possible and have an impact.
www.wired.com
January 31, 2026 at 10:55 AM
NEW: The @wired.com Security desk put together a comprehensive guide to filming ICE—with tips for reducing risk at the forefront. No paywall, but please consider subscribing to help find these kinds of resources. And stay safe out there. www.wired.com/story/how-to...
www.wired.com/v2/offers/wi...
www.wired.com/v2/offers/wi...
Reposted by Miles W. Griffis
I am working on a story about this bill for @thesicktimes.org! DM or email me if you would like to share comments on its significance.
Long Covid friends—
A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info:
A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.
The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!
More info:
Sign the Petition
Advocate for Maryland HB 0027 for Long COVID R&D
www.change.org
January 30, 2026 at 11:17 PM
I am working on a story about this bill for @thesicktimes.org! DM or email me if you would like to share comments on its significance.
Reposted by Miles W. Griffis
Miles W. Griffis @mileswgriffis.bsky.social, editors/co-founders of @thesicktimes.org shared his lived experience with #LongCOVID at #MaskTogetherAmerica Long COVID Defense Series II forum.
www.instagram.com/reel/DUI-ZWu...
www.facebook.com/share/v/16vX...
www.instagram.com/reel/DUI-ZWu...
www.facebook.com/share/v/16vX...
Redirecting...
www.facebook.com
January 30, 2026 at 9:09 PM
Miles W. Griffis @mileswgriffis.bsky.social, editors/co-founders of @thesicktimes.org shared his lived experience with #LongCOVID at #MaskTogetherAmerica Long COVID Defense Series II forum.
www.instagram.com/reel/DUI-ZWu...
www.facebook.com/share/v/16vX...
www.instagram.com/reel/DUI-ZWu...
www.facebook.com/share/v/16vX...
Reposted by Miles W. Griffis
ah yes, it is famously the role of the L.A. police chief to veto state law because he doesn't like it
that is exactly what we (do not) elect him to do
that is exactly what we (do not) elect him to do
LAPD won’t enforce ban on federal law enforcement officers wearing masks, chief says www.dailynews.com/2026/01/29/l...
LAPD won’t enforce ban on federal law enforcement officers wearing masks, chief says
LAPD Chief Jim McDonnell said the ban is “not a good public policy decision.”
www.dailynews.com
January 30, 2026 at 5:40 AM
ah yes, it is famously the role of the L.A. police chief to veto state law because he doesn't like it
that is exactly what we (do not) elect him to do
that is exactly what we (do not) elect him to do
Reposted by Miles W. Griffis
In our latest, we’re joined by @melissagiragrant.com to discuss how Minneapolis is fighting back against state violence with extraordinary acts of community care, Melissa’s reporting on ICE surges across the county, and ICE paying a visit to our own home
soundcloud.com/deathpanel/d...
soundcloud.com/deathpanel/d...
Dispatch from Occupied Minneapolis w/ Melissa Gira Grant (01/29/26)
Beatrice is joined by Melissa Gira Grant to discuss what’s happening on the ground in Minneapolis, the murders of Renee Good and Alex Pretti, and the broader currents of fascism nationally producing t
soundcloud.com
January 29, 2026 at 2:29 PM
In our latest, we’re joined by @melissagiragrant.com to discuss how Minneapolis is fighting back against state violence with extraordinary acts of community care, Melissa’s reporting on ICE surges across the county, and ICE paying a visit to our own home
soundcloud.com/deathpanel/d...
soundcloud.com/deathpanel/d...
Reposted by Miles W. Griffis
“Reinfection was associated with more than double the risk of a long COVID diagnosis” in a large study of children and adolescents.
🧪 #LongCOVID is here to stay—even in children - The Lancet Infectious Diseases www.thelancet.com/journals/lan...
Long COVID is here to stay—even in children
Post-acute sequelae of SARS-CoV-2 infection (PASC, also known as long COVID) are complex,
multisystem, long-lasting complications of SARS-CoV-2 infection that profoundly impact
the daily life of those...
www.thelancet.com
January 29, 2026 at 7:59 PM
“Reinfection was associated with more than double the risk of a long COVID diagnosis” in a large study of children and adolescents.
Reposted by Miles W. Griffis
NEW: The Israeli military today accepted the Gaza Health Ministry's estimate of 70,000+ killed.
But in 2024, 62 Dems joined 207 Republicans to ban the State Dept. from citing the Ministry's stats.
Now, even Israel accepts them — perhaps because they realize what is feared: the toll is even higher.
But in 2024, 62 Dems joined 207 Republicans to ban the State Dept. from citing the Ministry's stats.
Now, even Israel accepts them — perhaps because they realize what is feared: the toll is even higher.
January 29, 2026 at 4:19 PM
NEW: The Israeli military today accepted the Gaza Health Ministry's estimate of 70,000+ killed.
But in 2024, 62 Dems joined 207 Republicans to ban the State Dept. from citing the Ministry's stats.
Now, even Israel accepts them — perhaps because they realize what is feared: the toll is even higher.
But in 2024, 62 Dems joined 207 Republicans to ban the State Dept. from citing the Ministry's stats.
Now, even Israel accepts them — perhaps because they realize what is feared: the toll is even higher.
Reposted by Miles W. Griffis
Finally got around to a bit of research I'd been meaning to explore, and: There is no documented instance of an ICE officer being identified and assaulted while off duty because he wasn't masked. www.pbump.net/o/ices-excus...
ICE’s excuse for wearing masks has never actually manifested
There have been incidents of harassment and threats. But there are no apparent incidents in which identified ICE officers have been assaulted off-duty.
www.pbump.net
January 29, 2026 at 6:05 PM
Finally got around to a bit of research I'd been meaning to explore, and: There is no documented instance of an ICE officer being identified and assaulted while off duty because he wasn't masked. www.pbump.net/o/ices-excus...
Reposted by Miles W. Griffis
Not just any journalist, she won the goddamn Triple Crown of broadcast journalism (an Emmy, a Peabody, and a Murrow) in 2024 for her reporting on Gaza.
This is textbook censorship of the highest degree
This is textbook censorship of the highest degree
Palestinian journalist Bisan Owda with 1.4m followers reports TikTok ban https://aje.news/ljjuww
January 29, 2026 at 4:33 AM
Not just any journalist, she won the goddamn Triple Crown of broadcast journalism (an Emmy, a Peabody, and a Murrow) in 2024 for her reporting on Gaza.
This is textbook censorship of the highest degree
This is textbook censorship of the highest degree
A consistent theme of ICE: murdering people and/or denying them life-saving care.
“I have learned that Karam’s experience of medical neglect there is pervasive…detainees refer to C.C.D.F. as a “torture chamber” and “hell on Earth””
www.newyorker.com/news/the-led...
“I have learned that Karam’s experience of medical neglect there is pervasive…detainees refer to C.C.D.F. as a “torture chamber” and “hell on Earth””
www.newyorker.com/news/the-led...
The Cruel Conditions of ICE’s Mojave Desert Detention Center
How immigration authorities have weaponized medical neglect to encourage self-deportations.
www.newyorker.com
January 29, 2026 at 4:06 AM
A consistent theme of ICE: murdering people and/or denying them life-saving care.
“I have learned that Karam’s experience of medical neglect there is pervasive…detainees refer to C.C.D.F. as a “torture chamber” and “hell on Earth””
www.newyorker.com/news/the-led...
“I have learned that Karam’s experience of medical neglect there is pervasive…detainees refer to C.C.D.F. as a “torture chamber” and “hell on Earth””
www.newyorker.com/news/the-led...
Reposted by Miles W. Griffis
This is some of the best reporting I've read in years.
Metrodora, a Utah-based clinic that sought to cure “neuroimmune disorders” like #LongCOVID and myalgic encephalomyelitis, promised comprehensive treatment — but within two years, it abruptly closed, leaving former patients feeling betrayed. Read more from @brittashoot.com: bit.ly/46iIGOy
January 28, 2026 at 5:56 PM
This is some of the best reporting I've read in years.
Reposted by Miles W. Griffis
The Trump administration formally withdrew federal guidance that required pharmacies to dispense methotrexate. Chronically ill people may face more challenges in getting this drug for their health. My latest for @motherjones.com. www.motherjones.com/politics/202...
HHS will allow pharmacies to boycott lifesaving drugs used in medication abortion
Misoprostol and methotrexate do more than end pregnancies—but anti-abortion pharmacists can now refuse to offer them and still get federal funds.
www.motherjones.com
January 28, 2026 at 7:20 PM
The Trump administration formally withdrew federal guidance that required pharmacies to dispense methotrexate. Chronically ill people may face more challenges in getting this drug for their health. My latest for @motherjones.com. www.motherjones.com/politics/202...
Reposted by Miles W. Griffis
![Kira Stoops has found that while many specialists understand their patients' conditions, too many build up hope for families seeking answers and treatments that simply don't exist. There aren't any widely accepted biomarkers for ME; there isn't a single drug approved to treat it.
Many patients are in a cycle of seeking help, feeling grateful to be heard, and benefitting from small improvements like a new diagnosis or medication to slightly improve quality of life — and yet they still can't return to work or their previous lives.
"We're grateful for incremental changes because that's what we can get," Stoops said. "But that isn't how practices [like Metrodora] are being marketed."](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:zuo7ttfhdguujnpx22nctb7a/bafkreib2shvcu5y6m5cqbwxhtdfjskrvaau3ddwinwdb2u6shubaahn57y@jpeg)
