Miles W. Griffis
@mileswgriffis.bsky.social
Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
An honest, heartwarming, and full of laughs tribute to Alice Wong by @thrasherxy.bsky.social.
"giving pleasure, joy, affirmation and care to people you only meet once—or who you might never meet all, such as all the Palestinians Alice cared for these last two years—is the very meaning of love."
"giving pleasure, joy, affirmation and care to people you only meet once—or who you might never meet all, such as all the Palestinians Alice cared for these last two years—is the very meaning of love."
"Remembering Alice Wong: Writer, Advocate, Friend"
Steven W. Thrasher on Meeting and Collaborating with the Outspoken Founder of the Disability Visibility Project
published by @literaryhub.bsky.social | art by @mollycrabapple.bsky.social lithub.com/remembering-...
Steven W. Thrasher on Meeting and Collaborating with the Outspoken Founder of the Disability Visibility Project
published by @literaryhub.bsky.social | art by @mollycrabapple.bsky.social lithub.com/remembering-...
Remembering Alice Wong: Writer, Advocate, Friend
Though we were in frequent conversation for a decade, I only got to meet my friend Alice Wong in person just once. And when I did, I was a bundle of nerves—and that was before she cussed me out wi…
lithub.com
November 17, 2025 at 10:14 PM
An honest, heartwarming, and full of laughs tribute to Alice Wong by @thrasherxy.bsky.social.
"giving pleasure, joy, affirmation and care to people you only meet once—or who you might never meet all, such as all the Palestinians Alice cared for these last two years—is the very meaning of love."
"giving pleasure, joy, affirmation and care to people you only meet once—or who you might never meet all, such as all the Palestinians Alice cared for these last two years—is the very meaning of love."
"Her radicalism was nowhere more apparent than in her commitment to a free Palestine and her understanding of Palestinian liberation and the liberation of all people struggling to survive war, occupation, colonization and genocide as at the heart of disability justice."
substack.com/home/post/p-...
substack.com/home/post/p-...
Alice Wong was Crips for eSims for Gaza, and Everything to Us
by Jane Shi and Leah Lakshmi Piepzna-Samarasinha
substack.com
November 17, 2025 at 9:37 PM
"Her radicalism was nowhere more apparent than in her commitment to a free Palestine and her understanding of Palestinian liberation and the liberation of all people struggling to survive war, occupation, colonization and genocide as at the heart of disability justice."
substack.com/home/post/p-...
substack.com/home/post/p-...
Reposted by Miles W. Griffis
I especially appreciated that Miles’s obituary recorded how much Alice did for people with Long Covid.
November 17, 2025 at 7:22 AM
I especially appreciated that Miles’s obituary recorded how much Alice did for people with Long Covid.
Reposted by Miles W. Griffis
Hi, folks. I wrote about my buddy @leslieleeiii.bsky.social. He had #LongCOVID and passed away this week. Thanks for reading. adamumak.medium.com/leslie-lee-i...
Leslie Lee III: Funeral for a Friend
Explaining the one important lesson that he wanted you to learn.
adamumak.medium.com
November 15, 2025 at 9:54 PM
Hi, folks. I wrote about my buddy @leslieleeiii.bsky.social. He had #LongCOVID and passed away this week. Thanks for reading. adamumak.medium.com/leslie-lee-i...
Reposted by Miles W. Griffis
This is a great obit, and I appreciated Alice’s fight for Palestinians in Gaza being highlighted. I also want to give a shout out to Miles for asking permission to cite my post when technically you don’t have to do that re media law but still an ethical thing to do.
November 16, 2025 at 10:38 PM
This is a great obit, and I appreciated Alice’s fight for Palestinians in Gaza being highlighted. I also want to give a shout out to Miles for asking permission to cite my post when technically you don’t have to do that re media law but still an ethical thing to do.
Reposted by Miles W. Griffis
Obit from @thesicktimes.org by Alice’s friend @mileswgriffis.bsky.social thesicktimes.org/2025/11/15/a...
Alice Wong, disability activist and luminary, dies at 51 - The Sick Times
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
thesicktimes.org
November 16, 2025 at 6:01 AM
Obit from @thesicktimes.org by Alice’s friend @mileswgriffis.bsky.social thesicktimes.org/2025/11/15/a...
Reposted by Miles W. Griffis
Alice Wong helped me accept my disabilities.
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
Thank You Alice Wong
Alice Wong has passed away and the disability community has lost a leader. I lost a mentor and a friend. The Disabled Ginger wouldn't exist without Alice and everything she taught me.
www.disabledginger.com
November 16, 2025 at 12:16 AM
Alice Wong helped me accept my disabilities.
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
She taught me there’s no social justice without disability justice.
She encouraged me to start The Disabled Ginger and was a friend & mentor.
She won’t be forgotten.
Don’t let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
Reposted by Miles W. Griffis
Alice Wong was a luminary, and her light will shine on for many years to come. this is a beautiful tribute from @thesicktimes.org co-founder @mileswgriffis.bsky.social
November 16, 2025 at 1:08 AM
Alice Wong was a luminary, and her light will shine on for many years to come. this is a beautiful tribute from @thesicktimes.org co-founder @mileswgriffis.bsky.social
Reposted by Miles W. Griffis
"Alice supported and took many people with Long COVID under her wing — I was honored to call her a colleague and friend."
@mileswgriffis.bsky.social in @thesicktimes.org's obituary for the great Alice Wong: thesicktimes.org/2025/11/15/a...
@mileswgriffis.bsky.social in @thesicktimes.org's obituary for the great Alice Wong: thesicktimes.org/2025/11/15/a...
Alice Wong, disability activist and luminary, dies at 51 - The Sick Times
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
thesicktimes.org
November 16, 2025 at 12:09 AM
"Alice supported and took many people with Long COVID under her wing — I was honored to call her a colleague and friend."
@mileswgriffis.bsky.social in @thesicktimes.org's obituary for the great Alice Wong: thesicktimes.org/2025/11/15/a...
@mileswgriffis.bsky.social in @thesicktimes.org's obituary for the great Alice Wong: thesicktimes.org/2025/11/15/a...
Reposted by Miles W. Griffis
One way I have found to mourn someone is to set up a monthly sustaining donation to a mutual aid effort they cared about. If you can join me in honoring Alice Wong, @sfdirewolf.bsky.social with a sustaining donation today, please do. Thank you Alice, and I will not let the bastards grind me down.
November 15, 2025 at 12:34 PM
One way I have found to mourn someone is to set up a monthly sustaining donation to a mutual aid effort they cared about. If you can join me in honoring Alice Wong, @sfdirewolf.bsky.social with a sustaining donation today, please do. Thank you Alice, and I will not let the bastards grind me down.
Reposted by Miles W. Griffis
“With so many marginalized communities, we’re basically the oracles…we’re the ones who see shit before it happens.” In June 2020, I interviewed Alice Wong for TVU before she lost her ability to speak. I asked her how she’d first learned of SARS-CoV-2. She began with the 2016 election of Trump:
November 15, 2025 at 10:36 AM
“With so many marginalized communities, we’re basically the oracles…we’re the ones who see shit before it happens.” In June 2020, I interviewed Alice Wong for TVU before she lost her ability to speak. I asked her how she’d first learned of SARS-CoV-2. She began with the 2016 election of Trump:
Reposted by Miles W. Griffis
🧵 Rest in power, Alice Wong. @sfdirewolf.bsky.social A trailblazer, a fierce advocate, and a relentless voice for disability rights. Her work changed the landscape for so many. /1
November 15, 2025 at 7:52 AM
🧵 Rest in power, Alice Wong. @sfdirewolf.bsky.social A trailblazer, a fierce advocate, and a relentless voice for disability rights. Her work changed the landscape for so many. /1
Reposted by Miles W. Griffis
I got to “honored to be your ancestor” and started sobbing. I don’t even know what to say. It’s cliche to say that someone was a light, but Alice was, in both the sense of being a warm glow to find your way home and bright sun to burn the fuck out of the unwary. I hope we can honor her legacy.
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Alice Wong on Instagram: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it ...
423 likes, 73 comments - alicatsamurai on November 14, 2025: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the t...
www.instagram.com
November 15, 2025 at 6:24 AM
I got to “honored to be your ancestor” and started sobbing. I don’t even know what to say. It’s cliche to say that someone was a light, but Alice was, in both the sense of being a warm glow to find your way home and bright sun to burn the fuck out of the unwary. I hope we can honor her legacy.
Reposted by Miles W. Griffis
Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated
November 15, 2025 at 6:09 AM
Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated
Reposted by Miles W. Griffis
I’m heartbroken at the loss of Leslie & for YB who he loved deeply & fiercely. For seven years, I had the privilege of knowing him—his mind, his humor, his boundless creativity, & unflinching political clarity. The world is immeasurably poorer without his voice. All gfm will cover funeral & expenses
I've been struggling with Long COVID for about three years. I'm seeking support to access new treatments and daily maintenance. Please consider donating or sharing. Every bit helps, and thank you all so much for the support. It has meant the world to me. gofund.me/d0a10512b
Donate to Support Leslie Lee III's Long COVID Recovery, organized by Leslie Lee III
Short version: I'm a teacher and writer seeking support for medical and ot… Leslie Lee III needs your support for Support Leslie Lee III's Long COVID Recovery
gofund.me
November 14, 2025 at 10:15 PM
I’m heartbroken at the loss of Leslie & for YB who he loved deeply & fiercely. For seven years, I had the privilege of knowing him—his mind, his humor, his boundless creativity, & unflinching political clarity. The world is immeasurably poorer without his voice. All gfm will cover funeral & expenses
Reposted by Miles W. Griffis
NEW from the PolyBio Symposium: UCSF is launching a combination trial for Long COVID, called COMBAT-LC. It will include Paxlovid (antiviral) and Pemgarda (monoclonal antibody). thesicktimes.org/2025/11/14/l...
November 14, 2025 at 11:04 PM
NEW from the PolyBio Symposium: UCSF is launching a combination trial for Long COVID, called COMBAT-LC. It will include Paxlovid (antiviral) and Pemgarda (monoclonal antibody). thesicktimes.org/2025/11/14/l...
NEW: Michael Peluso announced a new #LongCOVID clinical trial, COMBAT-LC, that will test the combination of Pemgarda & Paxlovid, "significant step toward understanding viral persistence," he said.
Check out our full live blog of the Polybio Fall 2025 symposium!
thesicktimes.org/2025/11/14/l...
Check out our full live blog of the Polybio Fall 2025 symposium!
thesicktimes.org/2025/11/14/l...
Live blog: PolyBio’s Fall 2025 Symposium shares Long COVID and related disease research updates - The Sick Times
Leading Long COVID and related disease researchers are set to present updates to their work today at the PolyBio Research Foundation’s Fall 2025 Symposium. PolyBio supports some of the most highly-ant...
thesicktimes.org
November 14, 2025 at 11:03 PM
NEW: Michael Peluso announced a new #LongCOVID clinical trial, COMBAT-LC, that will test the combination of Pemgarda & Paxlovid, "significant step toward understanding viral persistence," he said.
Check out our full live blog of the Polybio Fall 2025 symposium!
thesicktimes.org/2025/11/14/l...
Check out our full live blog of the Polybio Fall 2025 symposium!
thesicktimes.org/2025/11/14/l...
Reposted by Miles W. Griffis
As usual, @thesicktimes.org is live blogging today's PolyBio Fall 2025 Symposium, where leading Long COVID and IACC researchers will share updates on their work. Check this article throughout the day for our summaries of the presentations. thesicktimes.org/2025/11/14/l...
Live blog: PolyBio’s Fall 2025 Symposium shares Long COVID and related disease research updates - The Sick Times
Leading Long COVID and related disease researchers are set to present updates to their work today at the PolyBio Research Foundation’s Fall 2025 Symposium. PolyBio supports some of the most highly-ant...
thesicktimes.org
November 14, 2025 at 4:42 PM
As usual, @thesicktimes.org is live blogging today's PolyBio Fall 2025 Symposium, where leading Long COVID and IACC researchers will share updates on their work. Check this article throughout the day for our summaries of the presentations. thesicktimes.org/2025/11/14/l...
Reposted by Miles W. Griffis
STAT is compiling our favorite health journalism for the year. What were your favorite #disability and mental health stories/op-eds/essays from this year?
November 12, 2025 at 2:39 PM
STAT is compiling our favorite health journalism for the year. What were your favorite #disability and mental health stories/op-eds/essays from this year?
Reposted by Miles W. Griffis
Vinay Prasad and Tracy Beth Høeg have no business being anywhere near decisions on vaccines.
RFK Jr. has said he does not want to take vaccines away from Americans. But at a closed-door meeting of vaccine scientists in September, a top official at the FDA suggested doing just that. Here's how Vinay Prasad and Tracy Beth Høeg are reshaping vaccine regulation:
www.statnews.com/2025/11/12/f...
www.statnews.com/2025/11/12/f...
How two top FDA officials are quietly upending vaccine regulations
Vinay Prasad and Tracy Beth Høeg mix skepticism with new ways to define risk in pursuing sweeping changes to vaccine policy at the FDA.
www.statnews.com
November 12, 2025 at 9:18 PM
Vinay Prasad and Tracy Beth Høeg have no business being anywhere near decisions on vaccines.
Reposted by Miles W. Griffis
Living with Long COVID often feels like living in a horror movie. Along with your disease comes a creepy Hive Mind refusal to acknowledge the dangers of COVID infection. In Vince Gilligan's new Apple TV show Pluribus, the Hive Mind comes to life:
www.thegauntlet.news/p/pluribus-c...
www.thegauntlet.news/p/pluribus-c...
"Pluribus" captures the isolation of COVID-awareness in a COVID denialist world
For years I've described having Long COVID as living in a horror movie. Now that horror movie (well, prestige Apple TV show) is here.
www.thegauntlet.news
November 10, 2025 at 6:41 PM
Living with Long COVID often feels like living in a horror movie. Along with your disease comes a creepy Hive Mind refusal to acknowledge the dangers of COVID infection. In Vince Gilligan's new Apple TV show Pluribus, the Hive Mind comes to life:
www.thegauntlet.news/p/pluribus-c...
www.thegauntlet.news/p/pluribus-c...
Reposted by Miles W. Griffis
For my first piece in @thesicktimes.org, I wrote about why mask bans matter for climate politics.
thesicktimes.org/2025/11/07/a...
thesicktimes.org/2025/11/07/a...
As the American West faces increasing air pollution, protecting the right to mask is vital - The Sick Times
Utah’s proposed ban became an important case study demonstrating the overlapping concerns between airborne pathogens and environmental air pollution. It highlighted the necessity of building coalition...
thesicktimes.org
November 11, 2025 at 9:17 PM
For my first piece in @thesicktimes.org, I wrote about why mask bans matter for climate politics.
thesicktimes.org/2025/11/07/a...
thesicktimes.org/2025/11/07/a...
Reposted by Miles W. Griffis
Mega🧵 CDC IGNORES URGENT EPI AID REQUESTS
1/9 🚨 Maine is facing the largest HIV outbreak in its history.
It asked CDC for help.
😡 CDC is ignoring the request.
This is not getting enough attention in the news — and it should be.
🔗👇
1/9 🚨 Maine is facing the largest HIV outbreak in its history.
It asked CDC for help.
😡 CDC is ignoring the request.
This is not getting enough attention in the news — and it should be.
🔗👇
Maine sought federal help amid its largest HIV outbreak in state history. It’s still waiting
After initially approving Penobscot County's request for CDC aid, the agency put it on hold. Meanwhile, the virus spreads.
web.archive.org
November 10, 2025 at 4:11 PM
Mega🧵 CDC IGNORES URGENT EPI AID REQUESTS
1/9 🚨 Maine is facing the largest HIV outbreak in its history.
It asked CDC for help.
😡 CDC is ignoring the request.
This is not getting enough attention in the news — and it should be.
🔗👇
1/9 🚨 Maine is facing the largest HIV outbreak in its history.
It asked CDC for help.
😡 CDC is ignoring the request.
This is not getting enough attention in the news — and it should be.
🔗👇
Reposted by Miles W. Griffis
I really do think The Sick Times is doing some of the most important journalism of our generation. And I can tell you firsthand that Miles and Betsy are the real deal. They care so, so much about getting it right. They’re incredible humans in addition to being such good journalists.
Our #LongCOVID journalism requires reader support — with your help, we can prepare our non-profit newsroom for whatever 2026 brings.
Will you donate today and help us keep this vital work going? the-sick-times.fundjournalism.org/donate/
Will you donate today and help us keep this vital work going? the-sick-times.fundjournalism.org/donate/
November 7, 2025 at 8:50 PM
I really do think The Sick Times is doing some of the most important journalism of our generation. And I can tell you firsthand that Miles and Betsy are the real deal. They care so, so much about getting it right. They’re incredible humans in addition to being such good journalists.