#pwLC
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belasco.bsky.social
Like most #pwME & #pwLC it’s not good for my health when I get angry. Emotional energy is expensive.
But OMFG I am so over ppl who aren’t sick using Long Covid to castigate the political left. Yeah, asshole, there are huge issues but they aren’t actively trying to kill ppl so maybe shut the fuck up.
November 10, 2025 at 5:07 AM
litsadremousis.bsky.social
An example of the CRUSHING fatigue that's one of 200 symptoms that accompanies post-infectious illnesses like #MyalgicEncephalomyelitis and #LongCovid:

Today I picked up a scrip and got a few groceries.

Haven't been able to move in five hours.

I'm one of the lucky ones.

#pwME #pwLC
November 6, 2025 at 1:12 AM
stevefifield.bsky.social
At last a political party that recognises that the correct way to get people working again is to invest in research for treatments and stop them from getting sick in the first place 👍

#pwME
#pwLC
#BoldPolitics
jaxtait.bsky.social Dr Jackie Turvey Tait @jaxtait.bsky.social · 5d
The @greenparty.org.uk are not afraid to face up to the long-term harms of #Covid & commit to rational public health solutions. 💚
Labour can't #KeepPeopleWorking by erasing the suffering of workers with #LongCovid & ignoring our right to a safe working environment.

Time for #BoldPolitics! 💚
longcovidadvoc.com Long Covid Advocacy @longcovidadvoc.com · 5d
1️⃣1️⃣ 💬 The UK needs honest policymaking not PR.

We can’t “keep Britain working” while erasing the pandemic’s impact.

We need clean air, infection prevention, and recognition for those disabled by Long Covid.

Otherwise, you’re just keeping people sick.
#KeepBritainWorking
November 5, 2025 at 4:54 PM
stevefifield.bsky.social
www.theguardian.com/australia-ne...

#pwME
#pwLC
Australian scientist who alerted world that Covid is airborne wins top science prize
Prof Lidia Morawska says recognition of her research comes at a fraught time – an ‘age of anti-science’
www.theguardian.com
November 4, 2025 at 1:54 PM
belasco.bsky.social
I’m trying to decide how I feel about having to take off my #mask for today’s testing.
1st test was in a closed room w/a good air filter & I had to breathe into a tube, so no 😷 makes sense.
2nd test was walking a set distance in a back hall of the hospital w/unmasked employees walking by…

#pwlc
November 7, 2025 at 9:48 PM
openmedf.bsky.social
🌟Triple Giving November is back! From November 1 to December 2, all gifts to OMF will be tripled, up to $500,000, thanks to generous matching donors.

👉 Triple your gift today and learn about other ways to support OMF: ow.ly/6RrM50XlkLk.

#pwME #MECFS #pwLC #LongCOVID
A bright, warm-toned photo of a smiling woman standing outdoors in sunlight. She is wearing a white tank top and a colorful headband. On the left side of the image, there is a text box: #TRIPLE GIVING NOVEMBER OMFAU Imagine life when there is a CURE Now, imagine it 3x faster Donate now for a 3x match
November 1, 2025 at 2:19 PM
belasco.bsky.social
My dog has recently started going to sleep with his head on my lap when I’m stuck in bed (especially if I’m in a crash). As he falls asleep in this new configuration he turns on his back & slowly morphs from dignified to full derp.
#pwme
#pwlc
#dogsky
Head of a black lab mix as he’s falling asleep on his human’s lap. Ears are perked up, eyes half lidded, mouth closed. Black lab mix halfway moving from doze to full snore, laying on his back w/his head on his human’s lap. Ears are a perky but a bit squished, eyes kind of crossed & mostly closed, lips closed but relaxed. Black lab mix fully asleep. Laying on his back with his head on his human’s lap, one ear squished & the other half flopped towards his face. One eye fully closed, the other open a sliver. His lips are fully flappy & his front teeth are showing. The over all vibe is of some self styled dapper gentleman who has had way too much to drink & is in the process of falling over as he inappropriately winks at a coworker.
October 30, 2025 at 7:08 PM
belasco.bsky.social
Being a chronically ill parent is hard, being a chronically ill parent with a chronically ill child is even harder.

I’m very grateful for how much support we have, & especially grateful to have found a community of other #pwme & #pwlc & people who really get it on here 💜💙
October 24, 2025 at 5:04 AM
rubyslippahs.bsky.social
#COVID #ongCOVID #NEISVoid #MECFS there's gonna be a virtual rally for #NoKings where #pwLC will say we do NOT support #RFK. We're trying to get as many people as possible to sign our letter to the Senate HELP Committee asking them to fire RFK and restore lost programs.

firerfk.wordpress.com
1/2
#FRFK
Visit the post for more.
firerfk.wordpress.com
October 16, 2025 at 6:06 PM
openmedf.bsky.social
🧬Science Wednesdays

A signaling pathway is a series of events on and within a cell that conveys information and leads to a specific function or response.

Learn more about signaling pathways and a study investigating the tetrahydrobiopterin (BH4) pathway: ow.ly/2i6A50XbPsq

#pwME #pwLC #BH4
Signaling pathway - Open Medicine Foundation
Learn about signaling pathways and why studying pathways abnormalities is important in ME/CFS research.
ow.ly
October 15, 2025 at 2:58 PM
stevefifield.bsky.social
#pwME #pwLC
#CPET
#PEM
batemanhornecenter.bsky.social Bateman Horne Center @batemanhornecenter.bsky.social · 27d
Milestone moment for ME/CFS awareness!
The American College of Sports Medicine has added a section on ME/CFS to its Exercise Guidelines for the first time ever, thanks to @workwellfoundation.bsky.social and collaborators.

Read more: https://bit.ly/46P31vP
#MECFS #ACSM @acsm1954.bsky.social
"History Made! The American College of Sports Medicine includes ME/CFS in global exercise guidelines for the first time."
October 15, 2025 at 12:58 PM
hardwaterhacker.bsky.social
I just found out that this photo was selected as the grand champion in the Friends of the Prairie Wetlands Learning Center annual photo contest. A large metal print of this photo will be hanging in the USFWS PWLC in Fergus Falls, MN, for the next year.

#landscape #sunset #PhotographersUnited
A sunset scene. In the foreground, a barbed wire fence extends from the bottom left towards a windmill and stock tank in the center. Lush green grasses fill a meadow. At the back of the meadow, oak trees grow on gently sloping hills. The sky is partly cloudy. The sun, already below the horizon, lights wispy higher clouds in pale orange and yellow, while lower clouds appear darker and blue.
October 14, 2025 at 2:32 AM
drinfosec.bsky.social
🎯🧵 by Dr. Dr Asad Khan FRCP FRACP pwLC:

"It is not a few months of lockdown or masking that has damaged the health of our children. It is the recurrent exposure to a deadly vascular virus which continues to kill & disable millions."

Full🧵
threadreaderapp.com/thread/19762...

H/t @VSicaKasabach
It is not a few months of lockdown or masking that has damaged the health of our children. It is the recurrent exposure to a deadly vascular virus which continues to kill & disable millions. Covid never went away; we know that the risk of Long Covid is cumulative (5% with each infection). The risk of acquiring it can be dramatically reduced by cleaning the air in indoor spaces; yet there is zero investment into this area, and children continued to be forced back to unsafe classrooms. This is despite the evidence that apart from reducing the risk of respiratory infections, ventilation improves academic performance and attendance.
October 10, 2025 at 10:07 PM
thrivingplanet.bsky.social
Can't think what to write here right now, my head hurts.

Solidarity #pwLC - Long Covid.

✊
Degenbrain Fire Degenbrains GIF
ALT: Degenbrain Fire Degenbrains GIF
media.tenor.com
October 10, 2025 at 12:19 PM
longcovidadvoc.com
To make this easy we'll start! We are a non-profit social enterprise dedicated to #pwLC & #pwME
We raise awareness, offer resources & offer a guide to the history, culture & philosophy of medicine
Here we are! 👇 #FBLC #FBME
www.longcovidadvoc.com
Home | Long Covid Advocacy
Long Covid Advocacy: the place to go for info, resources, support & more... a non-profit social enterprise for those with Long Covid, ME/CFS & IACC
www.longcovidadvoc.com
October 10, 2025 at 11:35 AM
belasco.bsky.social
#chronicillness
#spoonies
#pwme
#pwlc
juliametraux.bsky.social Julia Métraux @juliametraux.bsky.social · Oct 8
If you've fallen down inflammation-type wellness circle rabbit holes, hmu for a @motherjones.com essay I'm working on. My email is jmetraux@motherjones.com. I can you your first name only.
October 8, 2025 at 10:35 PM
belasco.bsky.social
Professional haircut achieved!
I went super short 😁
It was so nice to meet someone new outside of a dr’s office, & who understands #pwlc & #pwme! The stylist said she’d be happy to come back out whenever. I was completely relaxed w/ her, & we all had a great time.
It sounded like our house used to 💜
October 9, 2025 at 2:18 AM
litsadremousis.bsky.social
Oooh, this is really smart.

When I still had the physical strength to attend protests, I carried my own #MyalgicEncephalomyelitis kit w/ me.

Great to see our most prominent advocacy group laying out a blueprint for everyone w/ post-infectious illnesses.

#pwME #pwLC #LongCovid
meactnet.bsky.social #MEAction Network @meactnet.bsky.social · Oct 3
We know that there are a lot of protests happening. Stay safe everyone! We have a protest guide available! www.meaction.net/_files/ugd/b...

It includes planning an accessible protest & attending an in person protest when you have ME or similar.

#pwME #Protest #MECFS #ChronicIllness
Photo from #MEAction Still Sick Still Fighting protest in front of the White House showing protesters lying on the sidewalk. Text above: MEAction protest guide available. Text below: Part 1: For people who are planning a protest/activism to include people with ME Part 2: For those planning to attend an in-person protest that have complex chronic illness
October 3, 2025 at 5:43 PM
ehlersdanlos.bsky.social
"Try RTHM’s new intelligence platform today." www.rthm.com
⁠
#sponsored #POTS #MCAS #EDS #MECFS #LongCOVID #RTHM_health #ChronicIllness #pwLC #pwME #IACC
RTHM
Accessible care from RTHM
www.rthm.com
October 3, 2025 at 3:17 PM
truthbytwoheart.bsky.social
$0 in 5 days, new monthly needs=$1630, sales & tips urgently needed! #PWLC #BIPOCMA #TransCrowdfund #HelpSky
#Art mayasdivinedesignstoo.square.site
#WearableArt legaleriste.com/mayas.divine.designs
#DigitalArt: Ko-Fi mayasdivinedesigns (also P/C/V)
Tips linktr.ee/mxmd1
#Music truthbytwo.bandcamp.com
A painting on canvas by me, depicting a large blue bird perched in a flowering tree.
October 2, 2025 at 10:40 PM
meactnet.bsky.social
We know there is a lot going on in the world right now! This is your reminder to stop and take at least 3 deep breaths.

Feel the surface beneath you. Sink into it. Inhale for 4, exhale for 6. Repeat as often as needed.

#pwME #pwLC #Spoonie #SelfCare
Simple graphic with green background and a note in white with black writing. Text: This is your reminder to stop and take 3 deep breaths! #MEAction logo in bottom center.
October 1, 2025 at 8:50 PM
tomkindlon.bsky.social
Genome-wide association studies of Long COVID and post-acute complications of SARS-CoV-2 in the UK Biobank Data

www.researchsquare.com/article/rs-7...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome
Genome-wide association studies of Long COVID and post-acute complications of SARS-CoV-2 in the UK Biobank Data — Daniel Prieto-Alhambra et al. "Our genome-wide association study of Long COVID in the UK Biobank identified 15 lead genetic variants that reached suggestive statistical significance (p-value < 5×10⁻⁶) in the discovery cohort. Among these, eleven variants (73.3%) demonstrated robustness during validation analysis, with one variant (rs12335232 in the ADCY8 gene) achieving full validation"
September 30, 2025 at 1:33 AM
valebodi.bsky.social
PwME & pwLC, once again:

Metabolic adaptation and fragility in healthy 3D in vitro skeletal muscle tissues exposed to chronic fatigue syndrome and Long COVID-19 sera

Sheeza Mughal et al. August 2025

#ME/CFS #LongCOVID

@sheezamughal.bsky.social
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iopscience.iop.org
September 25, 2025 at 4:47 PM
belasco.bsky.social
That awful nagging suspicion when someone has made all the right sounds about believing you’re sick but there’s just something in your interactions that tells you, really, they don’t

#pwme
#pwlc
#chronicillness
September 23, 2025 at 2:28 AM
anyaphenix.bsky.social
I'm playing the Symptom or Side Effect game today.

How's everybody else doing?

#pwLC #LongCovid #meCFS #pasc #NeisVoid
September 20, 2025 at 6:03 PM