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phillyphile215.bsky.social
Melissa Mazur
@phillyphile215.bsky.social
930 followers 1.3K following 1.1K posts
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
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phillyphile215.bsky.social
Melissa Mazur @phillyphile215.bsky.social · Jun 29
Glad to see you are looking into this issue—especially now with people continuing to get Long COVID & ME each day and LC becoming the leading chronic condition among children. We are learning so much about how viruses can hijack the immune system for their own purposes in real time …
Map of the US with different colored symbols representing the following statistics: 1.7 million - cancer 1.2 million - HIV 1 million - multiple sclerosis 16.3 million - Long Covid Graphic from this CNBC story from 2022: https://m.youtube.com/watch?v=RMzoCNPctuo&dp_isNewTab=1&dp_referrer=other&dp_allowFirstVideo=1
Reposted by Melissa Mazur
l0stsect0r.bsky.social
life is a dumpster fire, but im not alone
-alice wong

#alicewong is a fighter

be like alice @teamaoc.bsky.social

www.theguardian.com/society/2025...
MacArthur genius Alice Wong on resistance in the new year: ‘Life is a dumpster fire, but I’m not alone’
The activist and ‘disabled oracle’ reflects on a moment that changed her life – and why she finds solace in sci-fi
www.theguardian.com
January 2, 2025 at 3:26 PM
Reposted by Melissa Mazur
spooniethreads.bsky.social
"Life is a dumpster fire, but I'm not alone." In her latest interview, disability advocate Alice Wong reflects on activism, resilience, and finding hope in sci-fi.
www.theguardian.com/society/2025...
#AliceWong #DisabilityAdvocate #MacArthurFellow #SciFiInspiration #Activism #Resilience #Community
Disability advocate Alice Wong on resistance in the new year: ‘Life is a dumpster fire, but I’m not alone’
The activist, who received a 2024 MacArthur ‘genius’ grant, reflects on a moment that changed her life – and why she finds hope in sci-fi
www.theguardian.com
January 3, 2025 at 4:12 PM
Reposted by Melissa Mazur
bellinissima.bsky.social
COVID Isn’t Going Anywhere. Masking Up Could Save My Life.

Disability Visibility is a column on being disabled in a nondisabled world.

www.teenvogue.com/story/covid-...

#AliceWong #DisabilityVisibility
COVID Isn’t Going Anywhere. Masking Up Could Save My Life.
"When I am in public spaces and see most people unmasked, I feel like an expendable burden not worth saving."
www.teenvogue.com
May 17, 2025 at 3:48 AM
Reposted by Melissa Mazur
piecesofamber.cryptoanarchy.network
Oof. Feeling the first part hard.

From Crip Class by Gabrielle Peters

#CurrentlyReading #DisabilityIntimacy #AliceWong #CripClass #GabriellePeters #books #reading #BookSky
Black text on white background. Transcribed text: I tell myself I need to shut up and stop sharing, and yet talking out loud is my only intimacy and connection with the world, and sometimes a connection to someone who is similarly threatened, not aided by the saviors of the system. Alice Wong Disability Intimacy: Essays on Love, Care, and Desire
July 11, 2025 at 3:58 AM
Reposted by Melissa Mazur
saimarie.bsky.social
Alice Wong is a Chinese American activist and founder of the Disability Visibility Project. Born with SMA, she fights for access, media inclusion, and justice for disabled people of color. Her work uplifts voices too often erased.
#AliceWong #DisabilityPrideMonth #AccessIsLove
July 23, 2025 at 5:23 AM
Reposted by Melissa Mazur
communicationfirst.bsky.social
Our Advisory Council Member #AliceWong appeared on a #Radiolab episode called #Voice! Listen for her amazing insights and a shoutout to CommunicationFIRST (1:00:48): lnk.to/rlab. Alice starts speaking at 00:32:47 and 00:58:45. Transcript here: lnk.to/rlabt.

@sfdirewolf.bsky.social

📷 Photo…

(1/2)
[Image: Alice Wong in her wheelchair with a tracheostomy at her neck connected to a ventilator. A smiling Alice wears a pink plaid shirt and pink pants, and her AAC device is mounted in front of her.]
October 10, 2025 at 4:49 PM
Reposted by Melissa Mazur
sciencenews.bsky.social
People use glue guns to fix lots of things. Now researchers have modified one to help fix broken bones. https://www.snexplores.org/article/glue-gun-heal-broken-bones?utm_source=hootsuite&utm_medium=bluesky&utm_campaign=snesnsocial
A modified glue gun squirts a material to help heal broken bones
The handheld printer might someday apply bone-repair patches directly onto fractures — complete with antibiotics to prevent infection.
www.snexplores.org
November 13, 2025 at 4:35 PM
Reposted by Melissa Mazur
publiccitizen.bsky.social
Wasting a COUPLE OF BILLION of taxpayer dollars on a silly name change for a department that’s already bloated, wasteful, & can’t pass an audit is a fitting symbol of the Trump administration.
November 13, 2025 at 4:35 PM
Reposted by Melissa Mazur
kyledcheney.bsky.social
NEW: Jeffrey Epstein said in emails that he had been advising the Russian government on how to deal with Donald Trump, one of several cases in which he wielded his connections to try to influence the course of foreign affairs. w @nahaltoosi

www.politico.com/news/2025/11...
November 12, 2025 at 8:43 PM
Reposted by Melissa Mazur
publiccitizen.bsky.social
Reacting to the newly revealed messages where sex predator Jeffrey Epstein says Trump “knew about the girls” and had “spent hours” at his house with one of the victims, the White House is decrying “selectively released emails.”

Well then, easy fix: Release the damn Epstein files in full!
November 12, 2025 at 8:07 PM
Reposted by Melissa Mazur
broadwaybabyto.bsky.social
ICE agents in Chicago violently detain a non verbal autistic man for being “non compliant”

He couldn’t “comply” because of his disability…they don’t care

This is not the first time they’ve gone after a disabled person

They target the most vulnerable because it’s an easy way to meet their quota
November 8, 2025 at 8:15 AM
Reposted by Melissa Mazur
adambonica.bsky.social
Did you know gov shutdowns aren’t in the Constitution, any law, or Court ruling?
They exist because of a 1980 OLC memo—a lawyer’s opinion that everyone just went along with. Before 1980, funding gaps didn’t cause shutdowns.

What one memo created, another can undo. How the next D admin can undo it:
Why America’s Government Shutdowns Exist and How to End Them
One Legal Memo Created The Shutdown Era. Another Can End It.
open.substack.com
November 7, 2025 at 9:03 PM
Reposted by Melissa Mazur
coachfinstock.bsky.social
Pope said 6-7
richraho.bsky.social Rich Raho @richraho.bsky.social · 7d
While details are unknown, Leo’s call for Cardinals to gather in Rome Jan 6-7 for Extraordinary Consistory is significant. Jan 6 marks end of Jubilee Year. Francis nor Benedict called zero such meetings. JP2 convened 6 Extraordinary Consistories; the first in 1979 to discuss his upcoming trip to US.
November 8, 2025 at 7:41 PM
Reposted by Melissa Mazur
julialmv.bsky.social
For more info and to enroll check out our website:
longcovid.scripps.edu/locitt-t/?ut...

And/or attend our webinar tomorrow (11/5); registration is required:
scrippsresearch.zoom.us/webinar/regi...
November 4, 2025 at 3:11 PM
phillyphile215.bsky.social
If your response to someone asking you about how C19/LC affect a topic you are presenting on is “we don’t have much research on C19/LC” please stop, admit you just don’t know the answer, and actively learn about C19 and its chronic effects.

Because 5+ years in we do know A LOT. You just don’t.
November 6, 2025 at 7:59 PM
phillyphile215.bsky.social
If you’ve been following the latest research on C19 and its effects, you’ll know this is actually a good thing 👀
November 6, 2025 at 7:56 PM
Reposted by Melissa Mazur
dickzoutman.bsky.social
www.nature.com/articles/d41...
COVID-19 is spreading again — how serious is it and what are the symptoms?
Limited COVID-19 surveillance data are hampering vaccination and health strategies, researchers say.
www.nature.com
November 6, 2025 at 2:57 PM
Reposted by Melissa Mazur
phillyphile215.bsky.social
It’s called term limits. Congress should have them.
November 6, 2025 at 2:43 PM
phillyphile215.bsky.social
Congressional term limits, no pay during shutdowns. Overturn Citizens United/reform campaign finance. Raise the federal minimum wage. Ban insider trading by elected officials. Raise the SS pay cap.

All things Democrats could work on to preserve democracy long-term that most Americans support.
November 6, 2025 at 2:57 PM
phillyphile215.bsky.social
But the latter is key. Dems need to run on actual policies that working class people care about and LEAD when they get power. Not just say “we aren’t the other guy” and keep status quo. All they have done the past few election cycles is to be anti-Trump (and nothing else).
gregsargent.bsky.social Greg Sargent @gregsargent.bsky.social · 9d
The bizarre media narrative that Dems must choose between anti-Trump and affordability politics reflects a broad reluctance to accept that Trump is really unpopular. The way forward is a fusion of the two. They are often one and the same. 8/

(h/t @jamellebouie.net)

newrepublic.com/article/2027...
November 6, 2025 at 2:38 PM
Reposted by Melissa Mazur
rokhanna.bsky.social
Every day, more details come out that show just how deep this plot to protect the wealthy and powerful goes.

They are being shielded from justice. Rep. Thomas Massie and I are fighting to bring them to justice and release the files.
November 1, 2025 at 12:28 PM
Reposted by Melissa Mazur
ffrancavilla.bsky.social
Remember…
They blame immigrants so we won’t blame billionaires
October 28, 2025 at 5:40 PM
Reposted by Melissa Mazur
babadookspinoza.bsky.social
The entire conversation around the minimum wage is framed as a question of entitlements or “handouts” when the issue is really this: of the value produced by a worker per hour, how much should employers be prevented from stealing?
October 28, 2025 at 2:51 AM
phillyphile215.bsky.social
I’ve taken metformin for LC for 2 yrs; it was the only thing my GP would prescribe from a list of possible research-backed treatments. I also took an increased dose for a recent reinfection; no baseline decrease. Thanks to @sweetsciencewriter.bsky.social @thesicktimes.org for a great piece! 👏👏👏
October 28, 2025 at 5:34 PM