María Richardson
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Pinned
María Richardson
@diatoma.bsky.social
· May 11
For the folks asking "What can I do to help people with #MyalgicEncephalomyelitis?", here's an Action Bingo for #MEAwarenessMonth ❤️.
Comment below when you've covered one or many of these boxes so I can rejoice with you! (1/4)
#MillionsMissing #WorldMEDay #DisabilitySOS #GreatestMEdicalScandal
Comment below when you've covered one or many of these boxes so I can rejoice with you! (1/4)
#MillionsMissing #WorldMEDay #DisabilitySOS #GreatestMEdicalScandal
Reposted by María Richardson
The Messenger-Inquirer, Kentucky, US. 10th November 1988 - thirty-seven years ago today. #myalgicencephalomyelitis #ebv #epsteinbarr #myalgice #mecfs #cfsme
November 10, 2025 at 11:53 AM
The Messenger-Inquirer, Kentucky, US. 10th November 1988 - thirty-seven years ago today. #myalgicencephalomyelitis #ebv #epsteinbarr #myalgice #mecfs #cfsme
Reposted by María Richardson
Twenty years ago today. The Asheville Citizen-Times, North Carolina, US. 10th November 2005. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
November 10, 2025 at 12:01 PM
Twenty years ago today. The Asheville Citizen-Times, North Carolina, US. 10th November 2005. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
Reposted by María Richardson
Sign up for these 2 workshops for #caregivers.
1. Nov. 16 @ 3 pm ET: 10 Lessons from 20 Years of Caregiving — Kim Moya
ow.ly/gtAP50XlbZb
2. Nov. 22 @ 3 pm ET: Chronic Illness Caregiving for Youth, Teen, & Adult Children — Denise Lopez-Majano ow.ly/3IcV50XlbZh
#pwME #ChronicIllness
1. Nov. 16 @ 3 pm ET: 10 Lessons from 20 Years of Caregiving — Kim Moya
ow.ly/gtAP50XlbZb
2. Nov. 22 @ 3 pm ET: Chronic Illness Caregiving for Youth, Teen, & Adult Children — Denise Lopez-Majano ow.ly/3IcV50XlbZh
#pwME #ChronicIllness
November 10, 2025 at 6:23 PM
Sign up for these 2 workshops for #caregivers.
1. Nov. 16 @ 3 pm ET: 10 Lessons from 20 Years of Caregiving — Kim Moya
ow.ly/gtAP50XlbZb
2. Nov. 22 @ 3 pm ET: Chronic Illness Caregiving for Youth, Teen, & Adult Children — Denise Lopez-Majano ow.ly/3IcV50XlbZh
#pwME #ChronicIllness
1. Nov. 16 @ 3 pm ET: 10 Lessons from 20 Years of Caregiving — Kim Moya
ow.ly/gtAP50XlbZb
2. Nov. 22 @ 3 pm ET: Chronic Illness Caregiving for Youth, Teen, & Adult Children — Denise Lopez-Majano ow.ly/3IcV50XlbZh
#pwME #ChronicIllness
Reposted by María Richardson
#NEISvoid PSA
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
November 10, 2025 at 7:45 PM
#NEISvoid PSA
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
Reposted by María Richardson
Without going into detail, #pwME #LongCovid ME (because I do not want to inflame an already overly inflamed situtation) the extent of the treachery & exploitation of medical neglect in post infection diseases is EXTRAORDINARY.
People who start out being respectable become corruptible. Why? How? Why?
People who start out being respectable become corruptible. Why? How? Why?
November 10, 2025 at 7:51 PM
Without going into detail, #pwME #LongCovid ME (because I do not want to inflame an already overly inflamed situtation) the extent of the treachery & exploitation of medical neglect in post infection diseases is EXTRAORDINARY.
People who start out being respectable become corruptible. Why? How? Why?
People who start out being respectable become corruptible. Why? How? Why?
Reposted by María Richardson
💙Continuing Nevra's advocacy work💙
Weakness and paralysis are not the same.
In Severe ME/CFS, paralysis isn’t just “feeling weak” — it’s the body’s loss of nerve control over the muscles.
Patients describe moments when the brain sends signals to move… but the body simply can’t.
Weakness and paralysis are not the same.
In Severe ME/CFS, paralysis isn’t just “feeling weak” — it’s the body’s loss of nerve control over the muscles.
Patients describe moments when the brain sends signals to move… but the body simply can’t.
November 10, 2025 at 7:53 PM
💙Continuing Nevra's advocacy work💙
Weakness and paralysis are not the same.
In Severe ME/CFS, paralysis isn’t just “feeling weak” — it’s the body’s loss of nerve control over the muscles.
Patients describe moments when the brain sends signals to move… but the body simply can’t.
Weakness and paralysis are not the same.
In Severe ME/CFS, paralysis isn’t just “feeling weak” — it’s the body’s loss of nerve control over the muscles.
Patients describe moments when the brain sends signals to move… but the body simply can’t.
Reposted by María Richardson
10) The interview can be rewatched here:
Interview with Brian Hughes, professor of psychology and University of Galway in Ireland.
This is a crowdfunding period at UC Berkeley. If you'd like to support my work with a donation to Berkeley (tax-deductible to U.S. taxpayers), here's the link: https://crowdfund.berkeley.edu/project/47768
*****
My friend and occasional co-author Brian Hughes, a psychology professor at the Universi
www.youtube.com
November 6, 2025 at 8:30 AM
10) The interview can be rewatched here:
Reposted by María Richardson
9) Prof. Hughes wrote a new book about this called 'Psychology’s Quiet Conservatism' which can be found here:
link.springer.com/bo...
You can support David Tuller's work (only 1 day left to donate for his fundraiser) using this link:
crowdfund.berkeley.e...
link.springer.com/bo...
You can support David Tuller's work (only 1 day left to donate for his fundraiser) using this link:
crowdfund.berkeley.e...
Psychology’s Quiet Conservatism
Psychology’s Quiet Conservatism reveals how psychology reinforces conservative norms and challenges claims of liberal bias in the field.
link.springer.com
November 6, 2025 at 8:30 AM
9) Prof. Hughes wrote a new book about this called 'Psychology’s Quiet Conservatism' which can be found here:
link.springer.com/bo...
You can support David Tuller's work (only 1 day left to donate for his fundraiser) using this link:
crowdfund.berkeley.e...
link.springer.com/bo...
You can support David Tuller's work (only 1 day left to donate for his fundraiser) using this link:
crowdfund.berkeley.e...
Reposted by María Richardson
7) So rather than providing social safety nets, illness benefits, and medical services to people who have suffering in their lives, psychology participates in this bureaucratic effort to avoid those commitments.
November 6, 2025 at 8:30 AM
7) So rather than providing social safety nets, illness benefits, and medical services to people who have suffering in their lives, psychology participates in this bureaucratic effort to avoid those commitments.
Reposted by María Richardson
6) Psychologists and their psychiatrist cousins have been at the forefront of characterising unexplained illnesses as psychiatric problems.
This then becomes a political question as such explanations are popular among people who are concerned about spending money on disability.
This then becomes a political question as such explanations are popular among people who are concerned about spending money on disability.
November 6, 2025 at 8:30 AM
6) Psychologists and their psychiatrist cousins have been at the forefront of characterising unexplained illnesses as psychiatric problems.
This then becomes a political question as such explanations are popular among people who are concerned about spending money on disability.
This then becomes a political question as such explanations are popular among people who are concerned about spending money on disability.
Reposted by María Richardson
5) Prof. Hughes then applies this to ME/CFS and medically unexplained conditions. The idea in psychology is that if a person cannot be established to be physically ill through some kind of biomarker, then it must be psychological.
November 6, 2025 at 8:30 AM
5) Prof. Hughes then applies this to ME/CFS and medically unexplained conditions. The idea in psychology is that if a person cannot be established to be physically ill through some kind of biomarker, then it must be psychological.
Reposted by María Richardson
4) Psychology identifies disability in terms of a person's ability to participate in the norms of society without ever questioning those norms.
It focuses on individuals and the deficits in their repertoire of behavior.
It focuses on individuals and the deficits in their repertoire of behavior.
November 6, 2025 at 8:29 AM
4) Psychology identifies disability in terms of a person's ability to participate in the norms of society without ever questioning those norms.
It focuses on individuals and the deficits in their repertoire of behavior.
It focuses on individuals and the deficits in their repertoire of behavior.
Reposted by María Richardson
3) He explains: "By encouraging people to look inside themselves for a change, you are guaranteeing that the world will carry on the way it is, which, of course, is deeply unjust and unequal. "
November 6, 2025 at 8:29 AM
3) He explains: "By encouraging people to look inside themselves for a change, you are guaranteeing that the world will carry on the way it is, which, of course, is deeply unjust and unequal. "
Reposted by María Richardson
2) Hughes argues that the problems people encounter are usually systemic and require social and structural solutions. But psychology promotes a personal, libertarian view that blames the victim rather than the system.
November 6, 2025 at 8:29 AM
2) Hughes argues that the problems people encounter are usually systemic and require social and structural solutions. But psychology promotes a personal, libertarian view that blames the victim rather than the system.
Reposted by María Richardson
1) Interesting interview of Prof. Brian Hughes by David Tuller.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
November 6, 2025 at 8:29 AM
1) Interesting interview of Prof. Brian Hughes by David Tuller.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
Reposted by María Richardson
This is a very deft thread. A concise precis of our conversation on conservatism, capitalism, and disability
Thank you @mecfsskeptic.bsky.social
#MECFS #LongCovid @davetuller1.bsky.social
Thank you @mecfsskeptic.bsky.social
#MECFS #LongCovid @davetuller1.bsky.social
1) Interesting interview of Prof. Brian Hughes by David Tuller.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
November 7, 2025 at 10:18 PM
This is a very deft thread. A concise precis of our conversation on conservatism, capitalism, and disability
Thank you @mecfsskeptic.bsky.social
#MECFS #LongCovid @davetuller1.bsky.social
Thank you @mecfsskeptic.bsky.social
#MECFS #LongCovid @davetuller1.bsky.social
Reposted by María Richardson
Yes, it's excellent! I've just seen it. Thanks to @mecfsskeptic.bsky.social for applying his usual care in highlighting @bmhughes.bsky.social's key points!!!
This is a very deft thread. A concise precis of our conversation on conservatism, capitalism, and disability
Thank you @mecfsskeptic.bsky.social
#MECFS #LongCovid @davetuller1.bsky.social
Thank you @mecfsskeptic.bsky.social
#MECFS #LongCovid @davetuller1.bsky.social
1) Interesting interview of Prof. Brian Hughes by David Tuller.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
November 8, 2025 at 9:42 PM
Yes, it's excellent! I've just seen it. Thanks to @mecfsskeptic.bsky.social for applying his usual care in highlighting @bmhughes.bsky.social's key points!!!
Reposted by María Richardson
A long excerpt from this 1987 interview with Beth Bighley, a patient with chronic EBV, now known as #MECFS
This could’ve been written by someone last year with #LongCovid and/or ME.
“My parents' reaction was one of relief that I did have something physically. But also frustration, 1/
This could’ve been written by someone last year with #LongCovid and/or ME.
“My parents' reaction was one of relief that I did have something physically. But also frustration, 1/
The Olathe Daily News, Kansas, US. Thirty-eight years ago today - 8th November 1987.
A relatively early reference to 'chronic fatigue syndrome' in the US press.
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
A relatively early reference to 'chronic fatigue syndrome' in the US press.
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 8, 2025 at 11:48 PM
A long excerpt from this 1987 interview with Beth Bighley, a patient with chronic EBV, now known as #MECFS
This could’ve been written by someone last year with #LongCovid and/or ME.
“My parents' reaction was one of relief that I did have something physically. But also frustration, 1/
This could’ve been written by someone last year with #LongCovid and/or ME.
“My parents' reaction was one of relief that I did have something physically. But also frustration, 1/
Reposted by María Richardson
Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.
November 6, 2025 at 5:48 PM
Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.
Reposted by María Richardson
An early reference to 'myalgic encephalomyelitis' in the Australian press from this day forty-four years ago.
The Age, 7th November 1981. #mecfs #myalgicencephalomyelitis #myalgice #cfsme
The Age, 7th November 1981. #mecfs #myalgicencephalomyelitis #myalgice #cfsme
November 7, 2025 at 6:11 AM
An early reference to 'myalgic encephalomyelitis' in the Australian press from this day forty-four years ago.
The Age, 7th November 1981. #mecfs #myalgicencephalomyelitis #myalgice #cfsme
The Age, 7th November 1981. #mecfs #myalgicencephalomyelitis #myalgice #cfsme
Reposted by María Richardson
ADVICE WANTED:
If you're an ME/CFS, spoonies chronic pain person, do you have any resources for completely over hauling self-expectations and managing/planning a limited energy budget?
I'm confronted with the reality that I'm no longer capable of what I was or want to be and it's Fing awful.
If you're an ME/CFS, spoonies chronic pain person, do you have any resources for completely over hauling self-expectations and managing/planning a limited energy budget?
I'm confronted with the reality that I'm no longer capable of what I was or want to be and it's Fing awful.
November 7, 2025 at 2:26 PM
ADVICE WANTED:
If you're an ME/CFS, spoonies chronic pain person, do you have any resources for completely over hauling self-expectations and managing/planning a limited energy budget?
I'm confronted with the reality that I'm no longer capable of what I was or want to be and it's Fing awful.
If you're an ME/CFS, spoonies chronic pain person, do you have any resources for completely over hauling self-expectations and managing/planning a limited energy budget?
I'm confronted with the reality that I'm no longer capable of what I was or want to be and it's Fing awful.
Reposted by María Richardson
Hi all, across our six centers serving people with spinal cord injury, stroke, TBI, #LongCOVID, #MECFS, chronic #lyme, new parents, cerebral palsy and many other conditions, roughly 20% are dependent on SNAP benefits for survival. So we're trying to pull together a food drive! 1/
November 7, 2025 at 3:29 PM
Hi all, across our six centers serving people with spinal cord injury, stroke, TBI, #LongCOVID, #MECFS, chronic #lyme, new parents, cerebral palsy and many other conditions, roughly 20% are dependent on SNAP benefits for survival. So we're trying to pull together a food drive! 1/
Reposted by María Richardson
Berkeley's crowdfunding campaign for Trial By Error, which investigates problematic psycho-behavioral research involving ME, ME/CFS, Long COVID, etc., has reached 98% of the goal, with one day remaining:
crowdfund.berkeley.edu/project/47768
crowdfund.berkeley.edu/project/47768
David Tuller's Trial by Error Fall 2025
Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!
crowdfund.berkeley.edu
November 7, 2025 at 4:50 PM
Berkeley's crowdfunding campaign for Trial By Error, which investigates problematic psycho-behavioral research involving ME, ME/CFS, Long COVID, etc., has reached 98% of the goal, with one day remaining:
crowdfund.berkeley.edu/project/47768
crowdfund.berkeley.edu/project/47768
Reposted by María Richardson
🔥This is a killer quote by @tinywriterlaura.bsky.social in 'Awakened':
👉denoting when the CDC 'renamed' ME to CFS in 1988 after the outbreak in Lake Tahoe.
#pedanticzebra
👉denoting when the CDC 'renamed' ME to CFS in 1988 after the outbreak in Lake Tahoe.
#pedanticzebra
November 7, 2025 at 7:03 PM
🔥This is a killer quote by @tinywriterlaura.bsky.social in 'Awakened':
👉denoting when the CDC 'renamed' ME to CFS in 1988 after the outbreak in Lake Tahoe.
#pedanticzebra
👉denoting when the CDC 'renamed' ME to CFS in 1988 after the outbreak in Lake Tahoe.
#pedanticzebra