#myalgice
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rfh1955.bsky.social
Twenty years ago today. The Asheville Citizen-Times, North Carolina, US. 10th November 2005. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
November 10, 2025 at 12:01 PM
rfh1955.bsky.social
The Calgary Herald, Canada, five years ago today. 9th November 2020. About #longcovid but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
November 9, 2025 at 9:55 AM
rfh1955.bsky.social
Twenty-six years ago today. From The Chicago Tribune, 7th November 1999. Letter in reply to article. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 7, 2025 at 6:52 PM
rfh1955.bsky.social
An early reference to 'myalgic encephalomyelitis' in the Australian press from this day forty-four years ago.

The Age, 7th November 1981. #mecfs #myalgicencephalomyelitis #myalgice #cfsme
November 7, 2025 at 6:11 AM
rfh1955.bsky.social
The Daily Telegraph (UK) today, twenty-seven years ago.
7th November 1998. #mecfs #myalgicencephalomyelitis #myalgice #cfsme
November 7, 2025 at 6:09 AM
rfh1955.bsky.social
Nine years ago today. The Press, York, England. 8th November 2016. #mecfs #myalgicencephalomyelitis #myalgice #cfsme
November 8, 2025 at 3:09 AM
rfh1955.bsky.social
The Loughborough Echo, England. 6th November 1987. A relatively early reference to 'myalgic encephalomyelitis' in the UK press. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

"ME probably starts with a viral infection which, for some reason, the victim cannot throw off".
November 6, 2025 at 7:27 AM
rfh1955.bsky.social
Thirty years ago today. The Birmingham Post, England. 3rd November 1995. #mecfs #myalgicencephalomyelitis #cfsme #myalgice
November 3, 2025 at 8:25 AM
rfh1955.bsky.social
The Alberni Valley Times, Canada. 3rd November 1992 - thirty-three years ago today. #myalgicencephalomyelitis #cfsme #myalgice #mecfs
November 3, 2025 at 7:44 PM
rfh1955.bsky.social
GP Magazine (UK), 4th November 1988. #myalgicencephalomyelitis #myalgice #mecfs
November 4, 2025 at 5:32 AM
rfh1955.bsky.social
The Rock Island Argus, Illinois, US. 2nd November 1992 - thirty-three years ago today.

"The higher prevalence number came from nurses who believed they had the syndrome".

#myalgicencephalomyelitis #cfsme #myalgice #mecfs
November 2, 2025 at 4:20 PM
valebodi.bsky.social
“Scientists identify virus causing fatigue in ME“
“We’ve found defective immunity, evidence of persistent viral infection, ABNORMAL MITOCHONDRIA and the hypothalamus not functioning!” P. Behan et al Glasgow 1990 (!!!) #MyalgicE #MECFS #PwME #Mitochondria #PostViralSequelae
Old newspaper article from the UK dated 1990 Scientists identify virus causing fatigue in ME SCIENTISTS say they have con- Fatigue Syndrome in Los Angeles firmed that ME, or "yuppie flu", By Wilma Patterson has physical causes, and know yesterday. He stressed that the Corsackie virus is not the only vi- why it causes extreme fatigue. A team from the department of neurology at the Southern General Hospital, Glasgow, using the DNA genetic finger printing tech-nique, identified fragments of the Coxsackie virus in the muscle tis-* sue of 30 per cent of sufferers. Previous studies have concentrated on identifying a viral agent in the blood. When the team looked at individual muscle cells. they found that the energy-producing apparatus of the cell - the mitochondria - were abnormal. This may explain the severe fatigue experienced by those with myalgic en-cephalomyelitis. Abnormal mitochondria in other parts of the body, including a part of the brain known as the hypothalamus, which controls sleep, appetite, sexual drive and emotion, would result in other symptoms characteristic of the illness, according to Peter Behan, professor of neurology at Glasgow University, who led the team. Tests on SO patients who took part in the initial study and analysis of more than 1,000 other case histories, suggested abnormal hypothalmic function and a defective immune system. Professor Behan presented his team's findings at the International Meeting on Chronic Viral rus likely to be involved. Future research will look for the herpes zoster virus, which causes chicken pox and shingles in muscle tissue. "We know that there is a persistent virus and with this technique we can take viruses out, and look at them," he said. *We've found defective immunity, evidence of persistent viral infec-tion, abnormal mitochondria and the hypothalamus not function-ing." Medical opinion about ME is • divided and many doctors dismiss the symptoms as psychologi-cal; others say they are part of a recognised co…
November 3, 2025 at 3:13 PM
rfh1955.bsky.social
Thirty years ago today.

The Evening Chronicle, Newcastle, England. 1st November 1995. #mecfs #myalgicencephalomyelitis #cfsme #myalgice
November 1, 2025 at 11:38 AM
rfh1955.bsky.social
Three years ago today. The Boston Globe, US. 31st October 2022. About #longcovid but also says...

"ME/CFS has been ignored and underfunded for years".

#myalgicencephalomyelitis #cfsme #myalgice #mecfs
October 31, 2025 at 9:03 AM
julierehmeyer.bsky.social
How do we love what we can't save — a planet, or a body?

I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis
Two Systems in Collapse
What illness can teach us about responding to climate change
jrehmeyer.substack.com
October 30, 2025 at 3:47 PM
rfh1955.bsky.social
Five years ago today. The Citizens' Voice, Pennsylvania, US. 30th October 2020.

About #longcovid but mentions #mecfs #cfsme #myalgicencephalomyelitis #myalgice
October 30, 2025 at 8:25 AM
meassociation.org.uk
"We’re delighted to share the October 2025 update on the British Psychological Society (BPS) ME/CFS Guidelines.

Since our last update, we’ve made significant progress...."

Read in full: https://meassociation.org.uk/71q6

#MECFS #pwME #MyalgicE
Good Practice Guidelines for Psychologists Working with People with ME/CFS: October 2025 Update - The ME Association
Russell Flemming (ME Association) and Katherine Langford (Action for ME […]
meassociation.org.uk
October 30, 2025 at 10:04 AM
meassociation.org.uk
We believe research is the key to transforming lives. Since 1989/1990, the ME Association’s Ramsay Research Fund has invested £2.6M in ME/CFS research — with £2M more planned. Thank you for helping make this possible!

Find out more: https://meassociation.org.uk/research/

#pwME #MyalgicE #MECFS
October 30, 2025 at 1:32 PM
meassociation.org.uk
Find out more: https://meassociation.org.uk/research/ramsay-research-fund/ramsay-biomedical-3/

#MECFS #pwME #MyalgicE #MEAssociation #RamsayResearchFund #RamsayResearch
Wording - Ramsay Biomedical ● Collaborative Efforts: Partnering with charities to fund larger projects and drive innovation in ME/CFS research. ● Investing in Discoveries: Funding biomedical research to uncover disease mechanisms, develop reliable diagnostic tests and create safe, effective treatments. Wording - Ramsay Biomedical ● Complex Illness, Comprehensive Approach: Tackling the multifaceted nature of ME/CFS by focusing on genetics, endocrinology, immunology, and more. ● Seeking Innovative Researchers: Actively looking for researchers dedicated to understanding disease mechanisms and discovering new treatments. Wording - Ramsay Biomedical These points effectively convey the enthusiasm and commitment to the research initiative at the ME Association. Join the Quest for Answers: Together, we can offer renewed prospects for brighter futures. The MEA Ramsay Research Fund - Leading the way in ME/CFS research A design of hexagons, each with a photo of doctors, nurses or researchers in. Heading - Read more via link in description.
October 27, 2025 at 2:40 PM
lucyainsley.bsky.social
mygivingcircle.org/invest-in-me...

Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #cute #vote #joy #LongCovidKids
October 25, 2025 at 10:48 AM
meassociation.org.uk
Gordon family provide information on Karen’s Mental capacity assessment and response from ESHT solicitors

Read the update on the blog, and sign the petition: https://meassociation.org.uk/yyaq

#MECFS #pwME #SevereME #KarenGordon #NHS #MyalgicE
Gordon family provide information on Karen's Mental capacity assessment and response from ESHT solicitors - The ME Association
Karen has now been in Conquest hospital for 1 year […]
meassociation.org.uk
October 24, 2025 at 8:36 AM
meassociation.org.uk
UK ME/CFS Biobank – Free Sample Competition: Winners

Read about the winners of the UK ME/CFS Biobank free sample competition and Dr Charles Shepherd's comment on the blog! https://meassociation.org.uk/nu8w

#pwME #MyalgicE #MECFS #Research #MECFSBiobank #MyalgicEncephalomyelitis
UK ME/CFS Biobank – Free Sample Competition: Winners - The ME Association
UKMEB says: We are delighted to announce the results of […]
meassociation.org.uk
October 20, 2025 at 2:44 PM
meassociation.org.uk
The 18th October was World Menopause Day, shining a spotlight on the challenges faced by women during menopause.

The ME Association has a free downloadable booklet about menopause, which you can access here: https://meassociation.org.uk/fhrt

#MECFS #pwME #MyalgicE #Menopause #WorldMenopauseDay
IMAGE DESCRIPTION: Heading - Booklet: Menopause. Hormone replacement therapy/HRT and female hormone research in ME/CFS. Photo of a woman fanning herself while sat on the sofa. Photo of our Menopause booklet. ME Association logo.
October 20, 2025 at 11:10 AM
rfh1955.bsky.social
Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome. #myalgicencephalomyelitis #myalgice #mecfs

www.nature.com/articles/s41...
Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome - Nature Communications
Nature Communications - Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome
www.nature.com
October 18, 2025 at 2:23 PM
meassociation.org.uk
ME Medical is our quarterly magazine designed for healthcare professionals, featuring the latest news, research developments, and medical information on ME/CFS. The most recent issue included a copy of our ME/CFS Management poster.

#pwME #MECFS #MyalgicE #HealthcareProfessionals #MedicalEducation
IMAGE DESCRIPTION: Photo of the ME Medical Magazine poster, with the ME/CFS Management Infographic poster behind it. Wording - ME Medical, the magazine for healthcare professionals
October 9, 2025 at 12:30 PM