Royal Free 1955
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. No petitions.
https://rfh1955.blogspot.com/
https://rfh1955.blogspot.com/
The #chronicfatiguesyndrome article in Newsweek from 11th November 1990. #myalgicencephalomyelitis #mecfs #cfsme.
www.newsweek.com/chronic-fati...
www.newsweek.com/chronic-fati...
Chronic Fatigue Syndrome
In 1974, Nancy Kaiser made the mistake of coming down with an illness that didn't fit any of the available diagnoses. The Albuquerque housewife was just 38, an avid golfer and swimmer, and under no pa...
www.newsweek.com
November 11, 2025 at 8:17 AM
The #chronicfatiguesyndrome article in Newsweek from 11th November 1990. #myalgicencephalomyelitis #mecfs #cfsme.
www.newsweek.com/chronic-fati...
www.newsweek.com/chronic-fati...
November 11, 2025 at 8:14 AM
The Age, Australia. 11th November 1992 - thirty-three years ago today. #myalgicencephalomyelitis #cfsme #myalgice #mecfs
November 11, 2025 at 7:00 AM
The Age, Australia. 11th November 1992 - thirty-three years ago today. #myalgicencephalomyelitis #cfsme #myalgice #mecfs
A relatively early reference to "myalgic encephalomyelitis" in a UK newspaper. The Chronicle, England. 11th November 1982 - forty-three years ago today. #myalgicencephalomyelitis #myalgice #mecfs #cfsme
November 11, 2025 at 6:58 AM
A relatively early reference to "myalgic encephalomyelitis" in a UK newspaper. The Chronicle, England. 11th November 1982 - forty-three years ago today. #myalgicencephalomyelitis #myalgice #mecfs #cfsme
Same paper, eight days later. The Herald Express, 11th November 1988. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 11, 2025 at 6:55 AM
Same paper, eight days later. The Herald Express, 11th November 1988. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
On this day thirty-two years ago. The Harlow Star, England. 11th November 1993. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 11, 2025 at 6:49 AM
On this day thirty-two years ago. The Harlow Star, England. 11th November 1993. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
Reposted by Royal Free 1955
Without going into detail, #pwME #LongCovid ME (because I do not want to inflame an already overly inflamed situtation) the extent of the treachery & exploitation of medical neglect in post infection diseases is EXTRAORDINARY.
People who start out being respectable become corruptible. Why? How? Why?
People who start out being respectable become corruptible. Why? How? Why?
November 10, 2025 at 7:51 PM
Without going into detail, #pwME #LongCovid ME (because I do not want to inflame an already overly inflamed situtation) the extent of the treachery & exploitation of medical neglect in post infection diseases is EXTRAORDINARY.
People who start out being respectable become corruptible. Why? How? Why?
People who start out being respectable become corruptible. Why? How? Why?
Reposted by Royal Free 1955
The Clinical Relevance of Mast Cell Activation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
by Johanna Rohrhofer Lilian Ebner Johannes Schweighardt @neurostingl.bsky.social and Eva Untersmayr
#ME/CFS #MCAS #POTS #OI #PEM
by Johanna Rohrhofer Lilian Ebner Johannes Schweighardt @neurostingl.bsky.social and Eva Untersmayr
#ME/CFS #MCAS #POTS #OI #PEM
www.mdpi.com
November 10, 2025 at 6:14 AM
Twenty years ago today. The Asheville Citizen-Times, North Carolina, US. 10th November 2005. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
November 10, 2025 at 12:01 PM
Twenty years ago today. The Asheville Citizen-Times, North Carolina, US. 10th November 2005. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
The Messenger-Inquirer, Kentucky, US. 10th November 1988 - thirty-seven years ago today. #myalgicencephalomyelitis #ebv #epsteinbarr #myalgice #mecfs #cfsme
November 10, 2025 at 11:53 AM
The Messenger-Inquirer, Kentucky, US. 10th November 1988 - thirty-seven years ago today. #myalgicencephalomyelitis #ebv #epsteinbarr #myalgice #mecfs #cfsme
November 10, 2025 at 6:14 AM
The Chester Chronicle, England. 10th November 1995.
"Misdiagnosis can lead to setbacks if sufferers are encouraged to exercise to 'shake off' their illness".
#mecfs #myalgice #myalgicencephalomyelitis #cfsme
"Misdiagnosis can lead to setbacks if sufferers are encouraged to exercise to 'shake off' their illness".
#mecfs #myalgice #myalgicencephalomyelitis #cfsme
November 10, 2025 at 6:10 AM
The Chester Chronicle, England. 10th November 1995.
"Misdiagnosis can lead to setbacks if sufferers are encouraged to exercise to 'shake off' their illness".
#mecfs #myalgice #myalgicencephalomyelitis #cfsme
"Misdiagnosis can lead to setbacks if sufferers are encouraged to exercise to 'shake off' their illness".
#mecfs #myalgice #myalgicencephalomyelitis #cfsme
Reposted by Royal Free 1955
Thank you to the HCP who wrote to us about the real-world impact of our @decodemestudy.bsky.social study:
November 9, 2025 at 10:11 AM
Thank you to the HCP who wrote to us about the real-world impact of our @decodemestudy.bsky.social study:
The Calgary Herald, Canada, five years ago today. 9th November 2020. About #longcovid but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
November 9, 2025 at 9:55 AM
The Calgary Herald, Canada, five years ago today. 9th November 2020. About #longcovid but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
On this day thirty-eight years ago. The Independent, UK. 9th November 1987. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 9, 2025 at 8:28 AM
On this day thirty-eight years ago. The Independent, UK. 9th November 1987. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
Reposted by Royal Free 1955
‘Showalter's controversial take on illnesses such as..Gulf War syndrome & chronic fatigue syndrome in her book Hystories: Hysterical Epidemics & Modern Media (1997) has angered some in the health profession & many who suffer from these illnesses. Showalter..has no formal medical training’
Wikipedia
Wikipedia
November 9, 2025 at 8:20 AM
‘Showalter's controversial take on illnesses such as..Gulf War syndrome & chronic fatigue syndrome in her book Hystories: Hysterical Epidemics & Modern Media (1997) has angered some in the health profession & many who suffer from these illnesses. Showalter..has no formal medical training’
Wikipedia
Wikipedia
The Danville News (US) on this day thirty-five years ago - 9th November 1990. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
November 9, 2025 at 8:22 AM
The Danville News (US) on this day thirty-five years ago - 9th November 1990. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
The News-Press, Florida, US. Forty-seven years ago today - 9th November 1978. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
November 9, 2025 at 8:18 AM
The News-Press, Florida, US. Forty-seven years ago today - 9th November 1978. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
Almost a year to the day earlier - another early mention of 'chronic fatigue syndrome'. The Billings Gazette, US. 9th November 1986. #mecfs #cfsme #myalgicencephalomyelitis #myalgice #cebv #epsteinbarr #ebv
November 9, 2025 at 8:15 AM
Almost a year to the day earlier - another early mention of 'chronic fatigue syndrome'. The Billings Gazette, US. 9th November 1986. #mecfs #cfsme #myalgicencephalomyelitis #myalgice #cebv #epsteinbarr #ebv
The Evening Standard, London. 9th November 1998.
Elaine Showalter claims that #gulfwarsyndrome #gws and #myalgicencephalomyelitis #cfsme #myalgice #mecfs are forms of mass hysteria.
Elaine Showalter claims that #gulfwarsyndrome #gws and #myalgicencephalomyelitis #cfsme #myalgice #mecfs are forms of mass hysteria.
November 9, 2025 at 7:58 AM
The Evening Standard, London. 9th November 1998.
Elaine Showalter claims that #gulfwarsyndrome #gws and #myalgicencephalomyelitis #cfsme #myalgice #mecfs are forms of mass hysteria.
Elaine Showalter claims that #gulfwarsyndrome #gws and #myalgicencephalomyelitis #cfsme #myalgice #mecfs are forms of mass hysteria.
The Chase Post, England, on this day thirty-six years ago - 9th November 1989. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
November 9, 2025 at 7:56 AM
The Chase Post, England, on this day thirty-six years ago - 9th November 1989. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
Reposted by Royal Free 1955
4️⃣ Hormones are out of sync too.
🩸 Women had low testosterone and cortisol
🩸 Men had low oestrogen
→ both affect immune balance, energy metabolism, and brain function.
These aren’t “stress hormones gone wrong” - they’re part of the biological disruption.
🩸 Women had low testosterone and cortisol
🩸 Men had low oestrogen
→ both affect immune balance, energy metabolism, and brain function.
These aren’t “stress hormones gone wrong” - they’re part of the biological disruption.
November 8, 2025 at 11:47 AM
4️⃣ Hormones are out of sync too.
🩸 Women had low testosterone and cortisol
🩸 Men had low oestrogen
→ both affect immune balance, energy metabolism, and brain function.
These aren’t “stress hormones gone wrong” - they’re part of the biological disruption.
🩸 Women had low testosterone and cortisol
🩸 Men had low oestrogen
→ both affect immune balance, energy metabolism, and brain function.
These aren’t “stress hormones gone wrong” - they’re part of the biological disruption.
Reposted by Royal Free 1955
3️⃣ There’s also gut barrier dysfunction - meaning particles from the gut leak into the bloodstream, fueling inflammation.
Markers like Galectin-9, Reelin, and Artemin (linked to pain and brain fog) were higher, especially in women.
Markers like Galectin-9, Reelin, and Artemin (linked to pain and brain fog) were higher, especially in women.
November 8, 2025 at 11:47 AM
3️⃣ There’s also gut barrier dysfunction - meaning particles from the gut leak into the bloodstream, fueling inflammation.
Markers like Galectin-9, Reelin, and Artemin (linked to pain and brain fog) were higher, especially in women.
Markers like Galectin-9, Reelin, and Artemin (linked to pain and brain fog) were higher, especially in women.
Reposted by Royal Free 1955
1️⃣ Researchers studied people with Long Covid who meet criteria for ME/CFS i.e. the more severe group, often housebound or unable to work.
They found deep biological differences between women and men - not psychological ones.
They found deep biological differences between women and men - not psychological ones.
November 8, 2025 at 11:47 AM
1️⃣ Researchers studied people with Long Covid who meet criteria for ME/CFS i.e. the more severe group, often housebound or unable to work.
They found deep biological differences between women and men - not psychological ones.
They found deep biological differences between women and men - not psychological ones.
Reposted by Royal Free 1955
🧵 Important new study out in Cell Reports Medicine (Shahbaz et al. 2025):
👉 Long Covid with ME/CFS isn’t the same in women and men - biologically.
👉 And it’s not “fatigue.” It’s immune, hormonal, and neurological chaos.
Let’s break it down layperson style 👇
👉 Long Covid with ME/CFS isn’t the same in women and men - biologically.
👉 And it’s not “fatigue.” It’s immune, hormonal, and neurological chaos.
Let’s break it down layperson style 👇
November 8, 2025 at 11:47 AM
🧵 Important new study out in Cell Reports Medicine (Shahbaz et al. 2025):
👉 Long Covid with ME/CFS isn’t the same in women and men - biologically.
👉 And it’s not “fatigue.” It’s immune, hormonal, and neurological chaos.
Let’s break it down layperson style 👇
👉 Long Covid with ME/CFS isn’t the same in women and men - biologically.
👉 And it’s not “fatigue.” It’s immune, hormonal, and neurological chaos.
Let’s break it down layperson style 👇