Royal Free 1955
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements.
https://rfh1955.blogspot.com/
https://rfh1955.blogspot.com/
Germany Declares ‘National Decade’ to Solve the Mystery of Long Covid and ME/CFS.
rtvonline.com/english/inte...
rtvonline.com/english/inte...
Germany Declares ‘National Decade’ to Solve the Mystery of Long Covid and ME/CFS
Germany Declares ‘National Decade’ to Solve the Mystery of Long Covid and ME/CFS
rtvonline.com
January 31, 2026 at 1:25 PM
Germany Declares ‘National Decade’ to Solve the Mystery of Long Covid and ME/CFS.
rtvonline.com/english/inte...
rtvonline.com/english/inte...
Reposted by Royal Free 1955
afaik the NICE guideline referred to in Hannah Sharland's article is this one: NG193
nice.org.uk/guidance/ng1...
This review in Pain Reports (2021) called it "pernicious":
pmc.ncbi.nlm.nih.gov/articles/PMC...
#SevereMErgency
nice.org.uk/guidance/ng1...
This review in Pain Reports (2021) called it "pernicious":
pmc.ncbi.nlm.nih.gov/articles/PMC...
#SevereMErgency
January 31, 2026 at 12:45 PM
afaik the NICE guideline referred to in Hannah Sharland's article is this one: NG193
nice.org.uk/guidance/ng1...
This review in Pain Reports (2021) called it "pernicious":
pmc.ncbi.nlm.nih.gov/articles/PMC...
#SevereMErgency
nice.org.uk/guidance/ng1...
This review in Pain Reports (2021) called it "pernicious":
pmc.ncbi.nlm.nih.gov/articles/PMC...
#SevereMErgency
Reposted by Royal Free 1955
Mein Vortrag zur Stigmatisierung bei #LongCOVID und #MEcfs (inklusive technischer Pannen 😅) ist online; ebenso der Vortrag von Mareike aus der Betroffenenperspektive.
💙lichen Dank dem Frauenmuseum & allen Betroffenen, die ihre Erfahrungen beigesteuert haben!
bremer-frauenmuseum.de/2026/01/28/l...
💙lichen Dank dem Frauenmuseum & allen Betroffenen, die ihre Erfahrungen beigesteuert haben!
bremer-frauenmuseum.de/2026/01/28/l...
January 30, 2026 at 7:49 AM
Mein Vortrag zur Stigmatisierung bei #LongCOVID und #MEcfs (inklusive technischer Pannen 😅) ist online; ebenso der Vortrag von Mareike aus der Betroffenenperspektive.
💙lichen Dank dem Frauenmuseum & allen Betroffenen, die ihre Erfahrungen beigesteuert haben!
bremer-frauenmuseum.de/2026/01/28/l...
💙lichen Dank dem Frauenmuseum & allen Betroffenen, die ihre Erfahrungen beigesteuert haben!
bremer-frauenmuseum.de/2026/01/28/l...
The Mercury, Kansas, US.
31st January 1997.
Again about #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
31st January 1997.
Again about #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
January 31, 2026 at 8:12 AM
The Mercury, Kansas, US.
31st January 1997.
Again about #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
31st January 1997.
Again about #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
About #gulfwarsyndrome #gws but #myalgice #cfsme ##myalgicencephalomyelitis #mecfs also features.
The Public Opinion, Pennsylvania, US.
31st January 2000.
The Public Opinion, Pennsylvania, US.
31st January 2000.
January 31, 2026 at 8:10 AM
About #gulfwarsyndrome #gws but #myalgice #cfsme ##myalgicencephalomyelitis #mecfs also features.
The Public Opinion, Pennsylvania, US.
31st January 2000.
The Public Opinion, Pennsylvania, US.
31st January 2000.
Forty years ago today.
The Ayrshire Post, Scotland.
31st January 1986.
A relatively early mention of the term #myalgicencephalomyelitis in the UK press.
#cfsme #mecfs #myalgice
The Ayrshire Post, Scotland.
31st January 1986.
A relatively early mention of the term #myalgicencephalomyelitis in the UK press.
#cfsme #mecfs #myalgice
January 31, 2026 at 12:08 AM
Forty years ago today.
The Ayrshire Post, Scotland.
31st January 1986.
A relatively early mention of the term #myalgicencephalomyelitis in the UK press.
#cfsme #mecfs #myalgice
The Ayrshire Post, Scotland.
31st January 1986.
A relatively early mention of the term #myalgicencephalomyelitis in the UK press.
#cfsme #mecfs #myalgice
About #gulfwarsyndrome #gws but mentions #cfsme #myalgicencephalomyelitis #myalgice #mecfs
The Guardian, UK.
31st January 1996.
The Guardian, UK.
31st January 1996.
January 31, 2026 at 12:06 AM
About #gulfwarsyndrome #gws but mentions #cfsme #myalgicencephalomyelitis #myalgice #mecfs
The Guardian, UK.
31st January 1996.
The Guardian, UK.
31st January 1996.
31st January 1993.
The Guardian, UK. Not RFH related.
The Guardian, UK. Not RFH related.
January 31, 2026 at 12:05 AM
31st January 1993.
The Guardian, UK. Not RFH related.
The Guardian, UK. Not RFH related.
Reposted by Royal Free 1955
6/
ScienceNorway: Almost no ME/CFS patients return to work
www.sciencenorway.no/chronic-fati...
Image is from the latest Science for ME weekly update
#MEcfs #CFS
ScienceNorway: Almost no ME/CFS patients return to work
www.sciencenorway.no/chronic-fati...
Image is from the latest Science for ME weekly update
#MEcfs #CFS
March 31, 2025 at 1:28 AM
6/
ScienceNorway: Almost no ME/CFS patients return to work
www.sciencenorway.no/chronic-fati...
Image is from the latest Science for ME weekly update
#MEcfs #CFS
ScienceNorway: Almost no ME/CFS patients return to work
www.sciencenorway.no/chronic-fati...
Image is from the latest Science for ME weekly update
#MEcfs #CFS
Reposted by Royal Free 1955
5/
“We need more research to understand the disease mechanisms behind ME and develop more targeted treatments. The healthcare system should listen more to patients,”
#MyalgicEncehalomyelitis #ChronicFatigueSyndrome
“We need more research to understand the disease mechanisms behind ME and develop more targeted treatments. The healthcare system should listen more to patients,”
#MyalgicEncehalomyelitis #ChronicFatigueSyndrome
March 21, 2025 at 5:53 PM
5/
“We need more research to understand the disease mechanisms behind ME and develop more targeted treatments. The healthcare system should listen more to patients,”
#MyalgicEncehalomyelitis #ChronicFatigueSyndrome
“We need more research to understand the disease mechanisms behind ME and develop more targeted treatments. The healthcare system should listen more to patients,”
#MyalgicEncehalomyelitis #ChronicFatigueSyndrome
Reposted by Royal Free 1955
Quelle surprise.
January 30, 2026 at 10:18 PM
Quelle surprise.
Reposted by Royal Free 1955
Great! One thing I said to my GP re vaccine eligibility was “the WHO and DWP class ME as neurological, so I don’t see why the NHS can’t”. She wrote it in my notes!
January 30, 2026 at 5:51 PM
Great! One thing I said to my GP re vaccine eligibility was “the WHO and DWP class ME as neurological, so I don’t see why the NHS can’t”. She wrote it in my notes!
January 30, 2026 at 8:28 AM
January 30, 2026 at 8:26 AM
The Ardrossan and Saltcoats Herald, Scotland.
30th January 2019.
#cfsme #mecfs #myalgicencephalomyelitis #myalgice
30th January 2019.
#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 30, 2026 at 8:25 AM
The Ardrossan and Saltcoats Herald, Scotland.
30th January 2019.
#cfsme #mecfs #myalgicencephalomyelitis #myalgice
30th January 2019.
#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 30, 2026 at 8:25 AM
The Daily Telegraph, UK.
30th January 1992.
An article by Dr. Anthony Daniels which mentions #myalgicencephalomyelitis.
It is thought that two years later Daniels wrote about #mecfs in the same paper, this time calling himself 'Dr. Rodney Silver'.
#cfsme #myalgice
30th January 1992.
An article by Dr. Anthony Daniels which mentions #myalgicencephalomyelitis.
It is thought that two years later Daniels wrote about #mecfs in the same paper, this time calling himself 'Dr. Rodney Silver'.
#cfsme #myalgice
January 30, 2026 at 8:23 AM
The Daily Telegraph, UK.
30th January 1992.
An article by Dr. Anthony Daniels which mentions #myalgicencephalomyelitis.
It is thought that two years later Daniels wrote about #mecfs in the same paper, this time calling himself 'Dr. Rodney Silver'.
#cfsme #myalgice
30th January 1992.
An article by Dr. Anthony Daniels which mentions #myalgicencephalomyelitis.
It is thought that two years later Daniels wrote about #mecfs in the same paper, this time calling himself 'Dr. Rodney Silver'.
#cfsme #myalgice
The Standard-Freeholder, Ontario, Canada.
30th January 1998.
Not specifically about #mecfs #myalgicencephalomyelitis #cfsme #myalgice but it is mentioned.
30th January 1998.
Not specifically about #mecfs #myalgicencephalomyelitis #cfsme #myalgice but it is mentioned.
January 30, 2026 at 8:22 AM
The Standard-Freeholder, Ontario, Canada.
30th January 1998.
Not specifically about #mecfs #myalgicencephalomyelitis #cfsme #myalgice but it is mentioned.
30th January 1998.
Not specifically about #mecfs #myalgicencephalomyelitis #cfsme #myalgice but it is mentioned.
The Manchester Evening News, England.
30th January 1995.
"'Yuppie flu' man dies in flats fall".
#cfsme #mecfs #myalgicencephalomyelitis #myalgice
30th January 1995.
"'Yuppie flu' man dies in flats fall".
#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 30, 2026 at 8:21 AM
The Manchester Evening News, England.
30th January 1995.
"'Yuppie flu' man dies in flats fall".
#cfsme #mecfs #myalgicencephalomyelitis #myalgice
30th January 1995.
"'Yuppie flu' man dies in flats fall".
#cfsme #mecfs #myalgicencephalomyelitis #myalgice
"nurse claims she contracted chronic fatigue syndrome from the blood of a patient with the illness".
The Charlotte Observer, US.
30th January 1991.
#cfsme #myalgicencephalomyelitis #myalgice #mecfs
The Charlotte Observer, US.
30th January 1991.
#cfsme #myalgicencephalomyelitis #myalgice #mecfs
January 30, 2026 at 8:18 AM
"nurse claims she contracted chronic fatigue syndrome from the blood of a patient with the illness".
The Charlotte Observer, US.
30th January 1991.
#cfsme #myalgicencephalomyelitis #myalgice #mecfs
The Charlotte Observer, US.
30th January 1991.
#cfsme #myalgicencephalomyelitis #myalgice #mecfs
January 30, 2026 at 8:17 AM
January 30, 2026 at 8:16 AM
Kate Rew thinks "chronic fatigue syndrome" (amongst other things) is a "fashionable illness" today, twenty-one years ago.
The Independent, UK.
30th January 2005.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
The Independent, UK.
30th January 2005.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
January 30, 2026 at 8:14 AM
Kate Rew thinks "chronic fatigue syndrome" (amongst other things) is a "fashionable illness" today, twenty-one years ago.
The Independent, UK.
30th January 2005.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
The Independent, UK.
30th January 2005.
#myalgicencephalomyelitis #cfsme #myalgice #mecfs
Earliest use of the phrase “chronic fatigue” that I’ve found so far.
The Courier-Journal, Kentucky, US.
30th January 1870.
The Courier-Journal, Kentucky, US.
30th January 1870.
January 30, 2026 at 8:13 AM
Earliest use of the phrase “chronic fatigue” that I’ve found so far.
The Courier-Journal, Kentucky, US.
30th January 1870.
The Courier-Journal, Kentucky, US.
30th January 1870.
Reposted by Royal Free 1955
🧪 #LongCOVID is here to stay—even in children - The Lancet Infectious Diseases www.thelancet.com/journals/lan...
Long COVID is here to stay—even in children
Post-acute sequelae of SARS-CoV-2 infection (PASC, also known as long COVID) are complex,
multisystem, long-lasting complications of SARS-CoV-2 infection that profoundly impact
the daily life of those...
www.thelancet.com
January 29, 2026 at 7:41 PM
🧪 #LongCOVID is here to stay—even in children - The Lancet Infectious Diseases www.thelancet.com/journals/lan...