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rfh1955.bsky.social
Royal Free 1955
@rfh1955.bsky.social
1.1K followers 840 following 2.4K posts
ME/CFS archive, especially RFH 1955. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. No hugs, heart emojis, art because it doesn't work.

https://rfh1955.blogspot.com/
Posts Replies Media Videos
rfh1955.bsky.social
The Burlington Free Press, US.
29th January 2001.

About #lymedisease #lyme but mentions #multiplesclerosis #ms #fibromyalgia #myalgicencephalomyelitis #cfsme #myalgice #mecfs
January 29, 2026 at 8:25 AM
rfh1955.bsky.social
About an anti-malaria drug. Mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice.

The Vancouver Sun, Canada.
29th January 2016.
January 29, 2026 at 8:23 AM
rfh1955.bsky.social
The Philadelphia Inquirer, US.
29th January 2016.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:22 AM
rfh1955.bsky.social
The Santa Fe New Mexican, US.
29th January 2001.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:21 AM
rfh1955.bsky.social
The Red Deer Advocate, Canada.
29th January 1997.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:20 AM
rfh1955.bsky.social
The Huddersfield Daily Examiner, England.
29th January 1998.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:18 AM
rfh1955.bsky.social
The Liverpool Echo, England.
29th January 1999.

About #gulfwarsyndrome #gws but mentions #cfsme #myalgicencephalomyelitis #myalgice #mecfs
January 29, 2026 at 8:17 AM
rfh1955.bsky.social
The Sunday Sun, Newcastle, England.
29th January 1995.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:16 AM
rfh1955.bsky.social
The Reading Evening Post, England.
29th January 1993.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:10 AM
rfh1955.bsky.social
Daily Telegraph, UK.
29th January 2009.

The announcement of death and funeral service of Lynn Gilderdale.
January 29, 2026 at 8:07 AM
Reposted by Royal Free 1955
griffith.edu.au
People with ME/CFS and Long COVID experience a disruption to their brain connectivity during a mentally demanding task.
Altered brain connection found in people with ME/CFS and Long COVID - Griffith News
People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID experience a disruption to their brain connectivity during a
news.griffith.edu.au
January 28, 2026 at 12:15 AM
Reposted by Royal Free 1955
longcovidadvoc.com
🧪New research from Marshall-Gradisnik and team in Australia that shows altered brain connectivity in Long Covid and ME patients. Subjects were scanned using Tesla-7 MRI whilst doing mental tasks.
An educational graphic from Long Covid Advocacy titled "LATEST RESEARCH: LONG COVID - DISRUPTED BRAIN CONNECTIVITY." The image features a blue, translucent digital silhouette of a human head overlaid with glowing neural network lines and a complex frequency waveform. Below the image, text states: "People with ME and Long Covid show disrupted brain connectivity during cognitive fatigue, unlike healthy controls who increase network coordination. Altered subcortical and hippocampal connections correlate with cognitive symptoms, motivation and illness duration." The source is cited as Inderyas et al, 2026, Trans Med.
January 28, 2026 at 9:10 PM
Reposted by Royal Free 1955
tomkindlon.bsky.social
In an international survey (n=1534) www.mdpi.com/2075-4418/9/..., 67% of those with ME/CFS reported they never recovered from a crash (that caused postexertional malaise).

Patients & professionals should be informed of this risk.

Exertion has ruined some people's health

#MEcfs #CFS #PwME #PEM
Table 6. Duration of PEM, illness course, and functioning (N = 1534). Items %(n) Length of prolonged, unpredictable recovery period 95.2 (1460) Within 24 h Between 1 and 2 days Between 3 and 6 days Between 1 week and 1 month Between 1 and 6 months Between 6 months and 1 year Between 1 and 2 years Over 2 years Crash that has never resolved 14.1 (216) 38.9 (596) 58.0 (890) 46.7 (717) 30.3 (465) 13.6 (209) 9.8 (151) 12.3 (189) 67.1 (1029)
January 28, 2026 at 9:12 PM
Reposted by Royal Free 1955
langzeitc.bsky.social
"Ohne ihn [Freund] und meine Freundinnen wäre ich vermutlich nicht mehr am Leben." Margarete Stockowski @marga_owski gibt berührende Einblicke in ein Leben mit #MECFS. Niemand von uns hat vorher gewusst, dass man so schwer erkranken kann. Tragt konsequent Maske!! 😷
www.brigitte.de/gesund/gesun...
Margarete Stokowski: "Ohne meinen Partner und meine Freundinnen wäre ich vermutlich nicht mehr am Leben"
Viele kennen Margarete Stokowski (39) aus ihren Kolumnen oder von Bestseller-Büchern wie "Untenrum frei". Seit einer Covid-Infektion verbringt die Journalistin einen großen Teil des Tages liegend. Den...
www.brigitte.de
January 28, 2026 at 7:17 PM
Reposted by Royal Free 1955
mimi139.bsky.social
Ich wurde im Rahmen eines ME/CFS Specials von der Brigitte interviewt.

www.brigitte.de/gesund/gesun...
"Mein Privileg ist, dass ich als Medizinerin mit ME/CFS wenigstens ernst genommen wurde"
Sie hat nur vier Stunden am Tag, die sie nicht im Bett liegend verbringen muss. Eine dieser kostbaren Stunden schenkt uns die an ME/CFS erkrankte Ärztin Mirja, um ihre Geschichte zu erzählen.
www.brigitte.de
January 28, 2026 at 7:06 PM
rfh1955.bsky.social
ME/CFS-Erkrankte erstatteten Anzeige gegen Gutachter – Behörde leitet kein Verfahren ein.

www.derstandard.at/story/300000...
January 28, 2026 at 7:52 PM
rfh1955.bsky.social
ME/CFS sufferers filed a complaint against the expert – the authority does not initiate any proceedings.

lnginnorthernbc.ca/2026/01/27/m...
ME/CFS sufferers filed a complaint against the expert - the authority does not initiate any proceedings - News Room USA | LNG in Northern BC
Nine people who unsuccessfully applied for an occupational disability pension from the Pension Insurance Agency (PVA) are making allegations against the PVA and its experts. These are people who are m...
lnginnorthernbc.ca
January 28, 2026 at 1:39 PM
rfh1955.bsky.social
www.nzdoctor.co.nz/article/educ...
January 28, 2026 at 1:37 PM
rfh1955.bsky.social
In reply: LP audit evidence strong but overlooked.

Registration required.

www.nzdoctor.co.nz/article/educ...
In reply: LP audit evidence strong but overlooked
Specialist GP Bruce Arroll responds to criticisms of an audit on the use of the Lightning Process for long COVID
www.nzdoctor.co.nz
January 28, 2026 at 1:36 PM
Reposted by Royal Free 1955
thecovidinfoguy.bsky.social
Study: A cross-continental comparative analysis of the neurological manifestations of Long COVID.

Note: The final, formatted version of the article will be published soon.

www.frontiersin.org/journals/hum...
Frontiers | A cross-continental comparative analysis of the neurological manifestations of Long COVID
Objective: To compare demographics, comorbidities, neurologic symptoms, quality of life, and cognitive outcomes among adult individuals with neurologic manif...
www.frontiersin.org
January 28, 2026 at 5:45 AM
rfh1955.bsky.social
The Edmonton Journal, Canada.
28th January 1995.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice
January 28, 2026 at 8:24 AM
rfh1955.bsky.social
The Times, British Columbia, Canada.
28th January 1992.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice
January 28, 2026 at 8:23 AM
rfh1955.bsky.social
The News Tribune, Washington, US.
28th January 1990.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice
January 28, 2026 at 8:22 AM
rfh1955.bsky.social
The Indiana Gazette, US.
28th January 1996.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 28, 2026 at 8:19 AM