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rfh1955.bsky.social
Royal Free 1955
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. No hugs, heart emojis, art because it doesn't work.

https://rfh1955.blogspot.com/
Reposted by Royal Free 1955
At Beth Israel Lahey Health, a study of 2,740 patients with immunodeficiency found that those who took nirmatrelvir/ritonavir after COVID-19 were 57% less likely to develop long COVID.

rupress.org/jhi/article/...
Nirmatrelvir/ritonavir use reduces risk for long COVID in patients with immunodeficiency
Our retrospective study highlights that acute use of nirmatrelvir/ritonavir significantly reduces the risk of post-acute sequelae of SARS-CoV-2 infection (
rupress.org
January 29, 2026 at 5:10 PM
Reposted by Royal Free 1955
We will be mindful of this: “In designing a study, a goal of ME/CFS researchers should be to determine if a significant result can actually inform disease mechanisms, or if it is simply a reportable difference between patients and controls.” VanElzakker et al. www.frontiersin.org/journals/neu...
January 29, 2026 at 7:34 PM
Reposted by Royal Free 1955
Your wish is our command! Next year, the PRIME network intends to organise a (hybrid) Symposium exactly on the topic of biomarkers and diagnostic tests. Who should we invite? #MEcfs
bionow.co.uk/news/prime-b...
PRIME – building infrastructure for Patients, Researchers and Industry for Myalgic Encephalomyelitis | Bionow
PRIME is a new MRC-funded project aimed at bringing together patients/patient groups, academic & clinical researchers and industry to make progress in the understanding and treatment of Myalgic Enceph...
bionow.co.uk
January 29, 2026 at 7:32 PM
Reposted by Royal Free 1955
😷 A study found that a majority of people with Long COVID did not recover

💰 Some researchers in Australia are getting a small boost in Long COVID funding

💊 The biotech company Invivyd is advancing research of a COVID-19 monoclonal antibody

#LongCOVID research updates: bit.ly/49QCdNm
January 29, 2026 at 4:24 PM
Expert reaction to study using population whole genome sequencing data to find genetic determinants of persistent EBV DNA and associations with chronic conditions.

www.sciencemediacentre.org/expert-react...
expert reaction to study using population whole genome sequencing data to find genetic determinants of persistent EBV DNA and associations with chronic conditions | Science Media Centre
www.sciencemediacentre.org
January 29, 2026 at 1:14 PM
The Burlington Free Press, US.
29th January 2001.

About #lymedisease #lyme but mentions #multiplesclerosis #ms #fibromyalgia #myalgicencephalomyelitis #cfsme #myalgice #mecfs
January 29, 2026 at 8:25 AM
About an anti-malaria drug. Mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice.

The Vancouver Sun, Canada.
29th January 2016.
January 29, 2026 at 8:23 AM
The Philadelphia Inquirer, US.
29th January 2016.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:22 AM
The Santa Fe New Mexican, US.
29th January 2001.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:21 AM
The Red Deer Advocate, Canada.
29th January 1997.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:20 AM
The Huddersfield Daily Examiner, England.
29th January 1998.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:18 AM
The Liverpool Echo, England.
29th January 1999.

About #gulfwarsyndrome #gws but mentions #cfsme #myalgicencephalomyelitis #myalgice #mecfs
January 29, 2026 at 8:17 AM
The Sunday Sun, Newcastle, England.
29th January 1995.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:16 AM
The Reading Evening Post, England.
29th January 1993.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice
January 29, 2026 at 8:10 AM
Daily Telegraph, UK.
29th January 2009.

The announcement of death and funeral service of Lynn Gilderdale.
January 29, 2026 at 8:07 AM
Reposted by Royal Free 1955
People with ME/CFS and Long COVID experience a disruption to their brain connectivity during a mentally demanding task.
Altered brain connection found in people with ME/CFS and Long COVID - Griffith News
People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID experience a disruption to their brain connectivity during a
news.griffith.edu.au
January 28, 2026 at 12:15 AM
Reposted by Royal Free 1955
🧪New research from Marshall-Gradisnik and team in Australia that shows altered brain connectivity in Long Covid and ME patients. Subjects were scanned using Tesla-7 MRI whilst doing mental tasks.
January 28, 2026 at 9:10 PM
Reposted by Royal Free 1955
In an international survey (n=1534) www.mdpi.com/2075-4418/9/..., 67% of those with ME/CFS reported they never recovered from a crash (that caused postexertional malaise).

Patients & professionals should be informed of this risk.

Exertion has ruined some people's health

#MEcfs #CFS #PwME #PEM
January 28, 2026 at 9:12 PM
Reposted by Royal Free 1955
"Ohne ihn [Freund] und meine Freundinnen wäre ich vermutlich nicht mehr am Leben." Margarete Stockowski @marga_owski gibt berührende Einblicke in ein Leben mit #MECFS. Niemand von uns hat vorher gewusst, dass man so schwer erkranken kann. Tragt konsequent Maske!! 😷
www.brigitte.de/gesund/gesun...
Margarete Stokowski: "Ohne meinen Partner und meine Freundinnen wäre ich vermutlich nicht mehr am Leben"
Viele kennen Margarete Stokowski (39) aus ihren Kolumnen oder von Bestseller-Büchern wie "Untenrum frei". Seit einer Covid-Infektion verbringt die Journalistin einen großen Teil des Tages liegend. Den...
www.brigitte.de
January 28, 2026 at 7:17 PM
Reposted by Royal Free 1955
ME/CFS-Erkrankte erstatteten Anzeige gegen Gutachter – Behörde leitet kein Verfahren ein.

www.derstandard.at/story/300000...
January 28, 2026 at 7:52 PM
ME/CFS sufferers filed a complaint against the expert – the authority does not initiate any proceedings.

lnginnorthernbc.ca/2026/01/27/m...
ME/CFS sufferers filed a complaint against the expert - the authority does not initiate any proceedings - News Room USA | LNG in Northern BC
Nine people who unsuccessfully applied for an occupational disability pension from the Pension Insurance Agency (PVA) are making allegations against the PVA and its experts. These are people who are m...
lnginnorthernbc.ca
January 28, 2026 at 1:39 PM
January 28, 2026 at 1:37 PM