María Richardson
@diatoma.bsky.social
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Pinned
María Richardson
@diatoma.bsky.social
· May 11
For the folks asking "What can I do to help people with #MyalgicEncephalomyelitis?", here's an Action Bingo for #MEAwarenessMonth ❤️.
Comment below when you've covered one or many of these boxes so I can rejoice with you! (1/4)
#MillionsMissing #WorldMEDay #DisabilitySOS #GreatestMEdicalScandal
Comment below when you've covered one or many of these boxes so I can rejoice with you! (1/4)
#MillionsMissing #WorldMEDay #DisabilitySOS #GreatestMEdicalScandal
Reposted by María Richardson
Not knowing about PEM is proof positive you don't know IACCs.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
November 21, 2025 at 3:56 PM
Not knowing about PEM is proof positive you don't know IACCs.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
Reposted by María Richardson
This is not specific PT/OT, it's telling the person to walk more steps tomorrow than today, as if it's something that would not have occurred to the patient without help.
It's astonishing hubris.
And it is harmful, especially when it comes with the adjuration to ignore resultant symptoms.
It's astonishing hubris.
And it is harmful, especially when it comes with the adjuration to ignore resultant symptoms.
November 21, 2025 at 3:56 PM
This is not specific PT/OT, it's telling the person to walk more steps tomorrow than today, as if it's something that would not have occurred to the patient without help.
It's astonishing hubris.
And it is harmful, especially when it comes with the adjuration to ignore resultant symptoms.
It's astonishing hubris.
And it is harmful, especially when it comes with the adjuration to ignore resultant symptoms.
Reposted by María Richardson
...of the presumption that gradually increasing exercise is a rehabilitative for people with infection-associated chronic conditions like #MECFS and #LongCOVID.
The idea of graded exercise as a special therapy your doctor has to help you carry out is absurd.
The idea of graded exercise as a special therapy your doctor has to help you carry out is absurd.
November 21, 2025 at 3:56 PM
...of the presumption that gradually increasing exercise is a rehabilitative for people with infection-associated chronic conditions like #MECFS and #LongCOVID.
The idea of graded exercise as a special therapy your doctor has to help you carry out is absurd.
The idea of graded exercise as a special therapy your doctor has to help you carry out is absurd.
Reposted by María Richardson
Just a note to say: if you hear anything about #MECFS or #PEM and related on radio or TV, let me know and I’ll do my best to record it. I missed the Celebrity Catchphrase clip and don’t want to miss any more.
And if you have any old clips on VHS, I’ll try and get them digitised.
And if you have any old clips on VHS, I’ll try and get them digitised.
November 18, 2025 at 8:42 PM
Reposted by María Richardson
🚨 ANSWERED: Can COVID-19 Be Prevented?
A compilation of over 40 studies on how to best prevent COVID-19, from respirators to vaccines to other interventions.
👇 READ, SUBSCRIBE, SHARE WIDELY: www.panaccindex.info/p/answered-c...
A compilation of over 40 studies on how to best prevent COVID-19, from respirators to vaccines to other interventions.
👇 READ, SUBSCRIBE, SHARE WIDELY: www.panaccindex.info/p/answered-c...
ANSWERED: Can COVID-19 Be Prevented?
A Collection of Peer-Reviewed Scientific Research (40+ Studies)
www.panaccindex.info
November 14, 2025 at 8:14 PM
🚨 ANSWERED: Can COVID-19 Be Prevented?
A compilation of over 40 studies on how to best prevent COVID-19, from respirators to vaccines to other interventions.
👇 READ, SUBSCRIBE, SHARE WIDELY: www.panaccindex.info/p/answered-c...
A compilation of over 40 studies on how to best prevent COVID-19, from respirators to vaccines to other interventions.
👇 READ, SUBSCRIBE, SHARE WIDELY: www.panaccindex.info/p/answered-c...
Reposted by María Richardson
Reposted by María Richardson
Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated
November 15, 2025 at 6:09 AM
Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated
Reposted by María Richardson
Alice in her own words: bsky.app/profile/thra...
“With so many marginalized communities, we’re basically the oracles…we’re the ones who see shit before it happens.” In June 2020, I interviewed Alice Wong for TVU before she lost her ability to speak. I asked her how she’d first learned of SARS-CoV-2. She began with the 2016 election of Trump:
November 15, 2025 at 10:58 AM
Alice in her own words: bsky.app/profile/thra...
Reposted by María Richardson
“With so many marginalized communities, we’re basically the oracles…we’re the ones who see shit before it happens.” In June 2020, I interviewed Alice Wong for TVU before she lost her ability to speak. I asked her how she’d first learned of SARS-CoV-2. She began with the 2016 election of Trump:
November 15, 2025 at 10:36 AM
“With so many marginalized communities, we’re basically the oracles…we’re the ones who see shit before it happens.” In June 2020, I interviewed Alice Wong for TVU before she lost her ability to speak. I asked her how she’d first learned of SARS-CoV-2. She began with the 2016 election of Trump:
Reposted by María Richardson
“Don’t let the bastards grind you down. I love you all.”
November 15, 2025 at 6:15 AM
“Don’t let the bastards grind you down. I love you all.”
Reposted by María Richardson
The Messenger-Inquirer, Kentucky, US. 10th November 1988 - thirty-seven years ago today. #myalgicencephalomyelitis #ebv #epsteinbarr #myalgice #mecfs #cfsme
November 10, 2025 at 11:53 AM
The Messenger-Inquirer, Kentucky, US. 10th November 1988 - thirty-seven years ago today. #myalgicencephalomyelitis #ebv #epsteinbarr #myalgice #mecfs #cfsme
Reposted by María Richardson
Twenty years ago today. The Asheville Citizen-Times, North Carolina, US. 10th November 2005. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
November 10, 2025 at 12:01 PM
Twenty years ago today. The Asheville Citizen-Times, North Carolina, US. 10th November 2005. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
Reposted by María Richardson
Sign up for these 2 workshops for #caregivers.
1. Nov. 16 @ 3 pm ET: 10 Lessons from 20 Years of Caregiving — Kim Moya
ow.ly/gtAP50XlbZb
2. Nov. 22 @ 3 pm ET: Chronic Illness Caregiving for Youth, Teen, & Adult Children — Denise Lopez-Majano ow.ly/3IcV50XlbZh
#pwME #ChronicIllness
1. Nov. 16 @ 3 pm ET: 10 Lessons from 20 Years of Caregiving — Kim Moya
ow.ly/gtAP50XlbZb
2. Nov. 22 @ 3 pm ET: Chronic Illness Caregiving for Youth, Teen, & Adult Children — Denise Lopez-Majano ow.ly/3IcV50XlbZh
#pwME #ChronicIllness
November 10, 2025 at 6:23 PM
Sign up for these 2 workshops for #caregivers.
1. Nov. 16 @ 3 pm ET: 10 Lessons from 20 Years of Caregiving — Kim Moya
ow.ly/gtAP50XlbZb
2. Nov. 22 @ 3 pm ET: Chronic Illness Caregiving for Youth, Teen, & Adult Children — Denise Lopez-Majano ow.ly/3IcV50XlbZh
#pwME #ChronicIllness
1. Nov. 16 @ 3 pm ET: 10 Lessons from 20 Years of Caregiving — Kim Moya
ow.ly/gtAP50XlbZb
2. Nov. 22 @ 3 pm ET: Chronic Illness Caregiving for Youth, Teen, & Adult Children — Denise Lopez-Majano ow.ly/3IcV50XlbZh
#pwME #ChronicIllness
Reposted by María Richardson
#NEISvoid PSA
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
November 10, 2025 at 7:45 PM
#NEISvoid PSA
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
TIL patients and caregivers can get free access to Elsevier papers!
Email your request to patientaccess@elsevier.com and include confirmation you are a patient. Turnaround is 48 hours.
#LongCovid #MECFS
Reposted by María Richardson
Without going into detail, #pwME #LongCovid ME (because I do not want to inflame an already overly inflamed situtation) the extent of the treachery & exploitation of medical neglect in post infection diseases is EXTRAORDINARY.
People who start out being respectable become corruptible. Why? How? Why?
People who start out being respectable become corruptible. Why? How? Why?
November 10, 2025 at 7:51 PM
Without going into detail, #pwME #LongCovid ME (because I do not want to inflame an already overly inflamed situtation) the extent of the treachery & exploitation of medical neglect in post infection diseases is EXTRAORDINARY.
People who start out being respectable become corruptible. Why? How? Why?
People who start out being respectable become corruptible. Why? How? Why?
Reposted by María Richardson
💙Continuing Nevra's advocacy work💙
Weakness and paralysis are not the same.
In Severe ME/CFS, paralysis isn’t just “feeling weak” — it’s the body’s loss of nerve control over the muscles.
Patients describe moments when the brain sends signals to move… but the body simply can’t.
Weakness and paralysis are not the same.
In Severe ME/CFS, paralysis isn’t just “feeling weak” — it’s the body’s loss of nerve control over the muscles.
Patients describe moments when the brain sends signals to move… but the body simply can’t.
November 10, 2025 at 7:53 PM
💙Continuing Nevra's advocacy work💙
Weakness and paralysis are not the same.
In Severe ME/CFS, paralysis isn’t just “feeling weak” — it’s the body’s loss of nerve control over the muscles.
Patients describe moments when the brain sends signals to move… but the body simply can’t.
Weakness and paralysis are not the same.
In Severe ME/CFS, paralysis isn’t just “feeling weak” — it’s the body’s loss of nerve control over the muscles.
Patients describe moments when the brain sends signals to move… but the body simply can’t.
Reposted by María Richardson
10) The interview can be rewatched here:
Interview with Brian Hughes, professor of psychology and University of Galway in Ireland.
This is a crowdfunding period at UC Berkeley. If you'd like to support my work with a donation to Berkeley (tax-deductible to U.S. taxpayers), here's the link: https://crowdfund.berkeley.edu/project/47768
*****
My friend and occasional co-author Brian Hughes, a psychology professor at the Universi
www.youtube.com
November 6, 2025 at 8:30 AM
10) The interview can be rewatched here:
Reposted by María Richardson
9) Prof. Hughes wrote a new book about this called 'Psychology’s Quiet Conservatism' which can be found here:
link.springer.com/bo...
You can support David Tuller's work (only 1 day left to donate for his fundraiser) using this link:
crowdfund.berkeley.e...
link.springer.com/bo...
You can support David Tuller's work (only 1 day left to donate for his fundraiser) using this link:
crowdfund.berkeley.e...
Psychology’s Quiet Conservatism
Psychology’s Quiet Conservatism reveals how psychology reinforces conservative norms and challenges claims of liberal bias in the field.
link.springer.com
November 6, 2025 at 8:30 AM
9) Prof. Hughes wrote a new book about this called 'Psychology’s Quiet Conservatism' which can be found here:
link.springer.com/bo...
You can support David Tuller's work (only 1 day left to donate for his fundraiser) using this link:
crowdfund.berkeley.e...
link.springer.com/bo...
You can support David Tuller's work (only 1 day left to donate for his fundraiser) using this link:
crowdfund.berkeley.e...
Reposted by María Richardson
7) So rather than providing social safety nets, illness benefits, and medical services to people who have suffering in their lives, psychology participates in this bureaucratic effort to avoid those commitments.
November 6, 2025 at 8:30 AM
7) So rather than providing social safety nets, illness benefits, and medical services to people who have suffering in their lives, psychology participates in this bureaucratic effort to avoid those commitments.
Reposted by María Richardson
6) Psychologists and their psychiatrist cousins have been at the forefront of characterising unexplained illnesses as psychiatric problems.
This then becomes a political question as such explanations are popular among people who are concerned about spending money on disability.
This then becomes a political question as such explanations are popular among people who are concerned about spending money on disability.
November 6, 2025 at 8:30 AM
6) Psychologists and their psychiatrist cousins have been at the forefront of characterising unexplained illnesses as psychiatric problems.
This then becomes a political question as such explanations are popular among people who are concerned about spending money on disability.
This then becomes a political question as such explanations are popular among people who are concerned about spending money on disability.
Reposted by María Richardson
5) Prof. Hughes then applies this to ME/CFS and medically unexplained conditions. The idea in psychology is that if a person cannot be established to be physically ill through some kind of biomarker, then it must be psychological.
November 6, 2025 at 8:30 AM
5) Prof. Hughes then applies this to ME/CFS and medically unexplained conditions. The idea in psychology is that if a person cannot be established to be physically ill through some kind of biomarker, then it must be psychological.
Reposted by María Richardson
4) Psychology identifies disability in terms of a person's ability to participate in the norms of society without ever questioning those norms.
It focuses on individuals and the deficits in their repertoire of behavior.
It focuses on individuals and the deficits in their repertoire of behavior.
November 6, 2025 at 8:29 AM
4) Psychology identifies disability in terms of a person's ability to participate in the norms of society without ever questioning those norms.
It focuses on individuals and the deficits in their repertoire of behavior.
It focuses on individuals and the deficits in their repertoire of behavior.
Reposted by María Richardson
3) He explains: "By encouraging people to look inside themselves for a change, you are guaranteeing that the world will carry on the way it is, which, of course, is deeply unjust and unequal. "
November 6, 2025 at 8:29 AM
3) He explains: "By encouraging people to look inside themselves for a change, you are guaranteeing that the world will carry on the way it is, which, of course, is deeply unjust and unequal. "
Reposted by María Richardson
2) Hughes argues that the problems people encounter are usually systemic and require social and structural solutions. But psychology promotes a personal, libertarian view that blames the victim rather than the system.
November 6, 2025 at 8:29 AM
2) Hughes argues that the problems people encounter are usually systemic and require social and structural solutions. But psychology promotes a personal, libertarian view that blames the victim rather than the system.
Reposted by María Richardson
1) Interesting interview of Prof. Brian Hughes by David Tuller.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
November 6, 2025 at 8:29 AM
1) Interesting interview of Prof. Brian Hughes by David Tuller.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.