Adam
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
https://linktr.ee/abrokenbattery
Pinned
Adam
@abrokenbattery.bsky.social
· Dec 12
New Trailer for the #MECFS #GreatestMedicalScandal Explainer Video.
Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.
Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.
Reposted by Adam
Remarkably, Alem Matthees, the Australian patient whose freedom of information request liberated the raw data from the PACE TRIAL, has reported some improvements in his condition: virology.ws/2026/01/02/t...
Trial By Error: My Unexpected E-Mail Exchange with Alem Matthees | Virology Blog
By David Tuller, DrPH In recent months, one of the most high-profile people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)—Australian Alem ...
virology.ws
January 3, 2026 at 1:08 AM
Remarkably, Alem Matthees, the Australian patient whose freedom of information request liberated the raw data from the PACE TRIAL, has reported some improvements in his condition: virology.ws/2026/01/02/t...
Reposted by Adam
1) We’ve just published our review of the most interesting ME/CFS studies of 2025.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
December 30, 2025 at 11:02 AM
1) We’ve just published our review of the most interesting ME/CFS studies of 2025.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
Edited clip from ITV News about #MECFS (thought to be 2013).
Michelle is severely affected, largely bed-bound, with light and sound sensitivity.
Her mum says: “Healthcare is horrendous and social services haven’t got a clue… they don’t know how to help.”
Michelle is severely affected, largely bed-bound, with light and sound sensitivity.
Her mum says: “Healthcare is horrendous and social services haven’t got a clue… they don’t know how to help.”
December 29, 2025 at 7:07 AM
Edited clip from ITV News about #MECFS (thought to be 2013).
Michelle is severely affected, largely bed-bound, with light and sound sensitivity.
Her mum says: “Healthcare is horrendous and social services haven’t got a clue… they don’t know how to help.”
Michelle is severely affected, largely bed-bound, with light and sound sensitivity.
Her mum says: “Healthcare is horrendous and social services haven’t got a clue… they don’t know how to help.”
Christmas can be a difficult time for people with chronic illness. Thinking of everyone with severe #MECFS and #LongCovid, particularly those who are living alone or isolated in darkened rooms.
December 25, 2025 at 10:17 AM
Christmas can be a difficult time for people with chronic illness. Thinking of everyone with severe #MECFS and #LongCovid, particularly those who are living alone or isolated in darkened rooms.
Reposted by Adam
1) Moving paper by young ME/CFS researcher Katherine Cheston. She was aware of the great disability it causes but "encountering the reality of this suffering first-hand was still shocking and deeply saddening."
She gives examples of patients who do not get appropriate care.
She gives examples of patients who do not get appropriate care.
December 24, 2025 at 9:15 AM
1) Moving paper by young ME/CFS researcher Katherine Cheston. She was aware of the great disability it causes but "encountering the reality of this suffering first-hand was still shocking and deeply saddening."
She gives examples of patients who do not get appropriate care.
She gives examples of patients who do not get appropriate care.
Short German TV report on children in Hamburg with ME/CFS following Covid.
Families say hospital services believe it has a psychological component, and the lack of diagnosis has resulted in child welfare reports when children are unable to attend school.
Families say hospital services believe it has a psychological component, and the lack of diagnosis has resulted in child welfare reports when children are unable to attend school.
December 17, 2025 at 8:16 PM
Short German TV report on children in Hamburg with ME/CFS following Covid.
Families say hospital services believe it has a psychological component, and the lack of diagnosis has resulted in child welfare reports when children are unable to attend school.
Families say hospital services believe it has a psychological component, and the lack of diagnosis has resulted in child welfare reports when children are unable to attend school.
Sioned Williams in Welsh Parliament talking about severe and very severe ME/CFS. It can be “as disabling as late-stage MS or advanced cancer but doesn't get a fraction of the acknowledgement, understanding or funding”.
December 13, 2025 at 6:39 AM
Sioned Williams in Welsh Parliament talking about severe and very severe ME/CFS. It can be “as disabling as late-stage MS or advanced cancer but doesn't get a fraction of the acknowledgement, understanding or funding”.
Rhys ab Owen MS shares the story of a woman with #MECFS who spent decades housebound & bedbound. Her mother describes >30 years of neglect, abuse & being ignored because professionals would not set aside their beliefs, e.g. a child protection referral that caused years of stress.
December 12, 2025 at 7:35 AM
Rhys ab Owen MS shares the story of a woman with #MECFS who spent decades housebound & bedbound. Her mother describes >30 years of neglect, abuse & being ignored because professionals would not set aside their beliefs, e.g. a child protection referral that caused years of stress.
Highlights - Mark Isherwood MS shares the story of a constituent whose life was transformed by a virus, becoming severely affected and housebound with #MECFS. It has “stripped away their independence and hope”, yet support, research and funding in Wales remain minimal.
December 11, 2025 at 5:52 PM
Highlights - Mark Isherwood MS shares the story of a constituent whose life was transformed by a virus, becoming severely affected and housebound with #MECFS. It has “stripped away their independence and hope”, yet support, research and funding in Wales remain minimal.
Highlights — Adam Price warns that the failures in Maeve Boothby O’Neill’s case could happen in Wales, and asks the Cabinet Secretary to respond to the Prevention of Future Deaths Report and implement lessons learned from the Devon Trust into an all-Wales protocol.
December 11, 2025 at 6:37 AM
Highlights — Adam Price warns that the failures in Maeve Boothby O’Neill’s case could happen in Wales, and asks the Cabinet Secretary to respond to the Prevention of Future Deaths Report and implement lessons learned from the Devon Trust into an all-Wales protocol.
Adam Price MS opens the Welsh Parliament debate on severe and very severe ME/CFS.
We never see thousands of people in Wales because “they must live in darkness, behind blackout blinds, away from noise, unable to bear light, sound or even touch.”
We never see thousands of people in Wales because “they must live in darkness, behind blackout blinds, away from noise, unable to bear light, sound or even touch.”
December 10, 2025 at 6:23 PM
Adam Price MS opens the Welsh Parliament debate on severe and very severe ME/CFS.
We never see thousands of people in Wales because “they must live in darkness, behind blackout blinds, away from noise, unable to bear light, sound or even touch.”
We never see thousands of people in Wales because “they must live in darkness, behind blackout blinds, away from noise, unable to bear light, sound or even touch.”
The Welsh Parliament debate on ME/CFS is now on YouTube. Adam Price MS led the debate, calling for better care, recognition, and support across Wales
youtu.be/akICL-DXfp8?...
Link the motion
record.senedd.wales/Motion/8884
youtu.be/akICL-DXfp8?...
Link the motion
record.senedd.wales/Motion/8884
Welsh Parliament Debate on ME/CFS December 2025
YouTube video by Broken Battery
youtu.be
December 10, 2025 at 5:48 PM
The Welsh Parliament debate on ME/CFS is now on YouTube. Adam Price MS led the debate, calling for better care, recognition, and support across Wales
youtu.be/akICL-DXfp8?...
Link the motion
record.senedd.wales/Motion/8884
youtu.be/akICL-DXfp8?...
Link the motion
record.senedd.wales/Motion/8884
Reposted by Adam
1) Iwasaki's group has published a historical review of post-infectious syndromes.
Infections are traditionally viewed as having two outcomes: you either die or fully recover. But there are reports of post-acute sequelae after multiple infections, not just after COVID-19...
Infections are traditionally viewed as having two outcomes: you either die or fully recover. But there are reports of post-acute sequelae after multiple infections, not just after COVID-19...
December 9, 2025 at 8:46 AM
1) Iwasaki's group has published a historical review of post-infectious syndromes.
Infections are traditionally viewed as having two outcomes: you either die or fully recover. But there are reports of post-acute sequelae after multiple infections, not just after COVID-19...
Infections are traditionally viewed as having two outcomes: you either die or fully recover. But there are reports of post-acute sequelae after multiple infections, not just after COVID-19...
The ME Association is investing £1.1m in the largest charity-funded biomedical study in ME/CFS. Imperial College London, co-led by Professor Danny Altmann, will compare immune and metabolic pathways in ME/CFS and Long Covid to uncover shared mechanisms.
meassociation.org.uk/2025/12/driv...
meassociation.org.uk/2025/12/driv...
Driving discovery: The ME Association invests £1.1m into pioneering research programme! - The ME Association
Today, we are incredibly proud to unveil news of our […]
meassociation.org.uk
December 10, 2025 at 11:37 AM
The ME Association is investing £1.1m in the largest charity-funded biomedical study in ME/CFS. Imperial College London, co-led by Professor Danny Altmann, will compare immune and metabolic pathways in ME/CFS and Long Covid to uncover shared mechanisms.
meassociation.org.uk/2025/12/driv...
meassociation.org.uk/2025/12/driv...
Apologies are extremely rare in the world of ME/CFS, so it’s encouraging to see such a good example of someone acknowledging a mistake, taking responsibility and implementing a solution. This is how you write an apology. I’d like to see more of this, please.
🙏Thank you for listening Visible and for prioritising patient safety.
💙 This is ace trauma-aware governance.
💪 When digital health treats UX as curated space and epistemic harm as real, we all move forward - and Visible becomes an even stronger community partner.
💙 This is ace trauma-aware governance.
💪 When digital health treats UX as curated space and epistemic harm as real, we all move forward - and Visible becomes an even stronger community partner.
December 9, 2025 at 5:33 PM
Apologies are extremely rare in the world of ME/CFS, so it’s encouraging to see such a good example of someone acknowledging a mistake, taking responsibility and implementing a solution. This is how you write an apology. I’d like to see more of this, please.
Video clip of Natasha Devon raising concerns about Simon Wessely being involved in the government’s ADHD review.
She says it feels like a foregone conclusion because Wessely has already made comments about young people “overdiagnosing” their own mental health.
She says it feels like a foregone conclusion because Wessely has already made comments about young people “overdiagnosing” their own mental health.
December 8, 2025 at 7:01 PM
Video clip of Natasha Devon raising concerns about Simon Wessely being involved in the government’s ADHD review.
She says it feels like a foregone conclusion because Wessely has already made comments about young people “overdiagnosing” their own mental health.
She says it feels like a foregone conclusion because Wessely has already made comments about young people “overdiagnosing” their own mental health.
John Rutter’s response to Rod Liddle, in a letter in The Spectator
“Sorry to spoil a good polemic with facts that don’t fit”
ME is a physical illness. It began with chickenpox, followed by cycles of relapse, sensitivity to light and sound. I had it for seven years.
“Sorry to spoil a good polemic with facts that don’t fit”
ME is a physical illness. It began with chickenpox, followed by cycles of relapse, sensitivity to light and sound. I had it for seven years.
December 7, 2025 at 4:02 PM
John Rutter’s response to Rod Liddle, in a letter in The Spectator
“Sorry to spoil a good polemic with facts that don’t fit”
ME is a physical illness. It began with chickenpox, followed by cycles of relapse, sensitivity to light and sound. I had it for seven years.
“Sorry to spoil a good polemic with facts that don’t fit”
ME is a physical illness. It began with chickenpox, followed by cycles of relapse, sensitivity to light and sound. I had it for seven years.
Clip from BBC Composer of the Week: John Rutter speaks about composing his Requiem while battling #MECFS after chickenpox. It “disturbed my physical energy, my mental acuity and my whole mood.”
December 7, 2025 at 2:19 PM
Clip from BBC Composer of the Week: John Rutter speaks about composing his Requiem while battling #MECFS after chickenpox. It “disturbed my physical energy, my mental acuity and my whole mood.”
Highlights from Natasha Devon on LBC yesterday, where she discussed the government’s ADHD review and mentioned concerns about vice-chair Sir Simon Wessely, because of his controversial comments on young people “overdiagnosing” their mental health.
December 7, 2025 at 11:13 AM
Highlights from Natasha Devon on LBC yesterday, where she discussed the government’s ADHD review and mentioned concerns about vice-chair Sir Simon Wessely, because of his controversial comments on young people “overdiagnosing” their mental health.
Reposted by Adam
1) 🧬 New results from the LOCOME project. It applied the combinatorial analytics of PrecisionLife on data from DecodeME.
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
December 5, 2025 at 8:45 AM
1) 🧬 New results from the LOCOME project. It applied the combinatorial analytics of PrecisionLife on data from DecodeME.
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
The 259 genes that were most associated with ME/CFS pointed to "neurological dysregulation, inflammation, cellular stress responses, and calcium signaling"
Clip from a German RTL news mini doc (auto-dubbed by YouTube).
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
December 5, 2025 at 10:26 AM
Clip from a German RTL news mini doc (auto-dubbed by YouTube).
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
Jonas explains he has to spend a lot of time lying down and is often told it’s “psychosomatic”. Yet Germany reports ~650k ME/CFS patients with no approved treatments and almost no medical expertise.
Reposted by Adam
It seems so silly but it’s really uplifting to see a celebrity fundraise and advocate for #MECFS
Mark Bonnar posted this 2 days ago.
He’s still fundraising for @actionforme.bsky.social as part of the Big Give Christmas Challenge.
I’ll link the video below
Mark Bonnar posted this 2 days ago.
He’s still fundraising for @actionforme.bsky.social as part of the Big Give Christmas Challenge.
I’ll link the video below
December 4, 2025 at 4:51 PM
It seems so silly but it’s really uplifting to see a celebrity fundraise and advocate for #MECFS
Mark Bonnar posted this 2 days ago.
He’s still fundraising for @actionforme.bsky.social as part of the Big Give Christmas Challenge.
I’ll link the video below
Mark Bonnar posted this 2 days ago.
He’s still fundraising for @actionforme.bsky.social as part of the Big Give Christmas Challenge.
I’ll link the video below
Clip from The Nightmare Neighbour Next Door (S2E3), where Laurel Wingfield who has #MECFS talks about her life before, how she struggles now and how gardening has been a focus.
December 4, 2025 at 9:09 AM
Clip from The Nightmare Neighbour Next Door (S2E3), where Laurel Wingfield who has #MECFS talks about her life before, how she struggles now and how gardening has been a focus.
TW: Euthanasia
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
December 3, 2025 at 9:17 AM
TW: Euthanasia
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
Clip from a NOS news report about Marjon Lindeboom who became severely ill with long COVID. Includes powerful interview with her daughter Kirsten talking about her mother’s isolation, deterioration and the fight to be seen and believed.
Clip from an NOS news report about the PAIS protest in The Hague. Wheelchairs symbolised those too ill to attend. Patients with post-infectious illnesses: long COVID, ME/CFS, Lyme, Q-fever and sepsis are calling for proper research and treatment.
December 2, 2025 at 1:30 PM
Clip from an NOS news report about the PAIS protest in The Hague. Wheelchairs symbolised those too ill to attend. Patients with post-infectious illnesses: long COVID, ME/CFS, Lyme, Q-fever and sepsis are calling for proper research and treatment.