Adam
@abrokenbattery.bsky.social
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
https://linktr.ee/abrokenbattery
Pinned
ME/CFS Scandal Follow up
The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introduction — how for decades patients were told…
medium.com
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Dr. Anne MacIntyre speaks about the importance of early diagnosis of #MECFS so patients can get appropriate rest. She also raises concerns about children being forced into things such as exercise programmes. Clip from Kilroy, early 1990s.
January 31, 2026 at 7:38 AM
Dr. Anne MacIntyre speaks about the importance of early diagnosis of #MECFS so patients can get appropriate rest. She also raises concerns about children being forced into things such as exercise programmes. Clip from Kilroy, early 1990s.
New article on Savannah’s case.
Queen Elizabeth Hospital has declined to take up Sonya Chowdhury’s offer to advocate.
Savannah remains without nutrition. Fluids restored after pressure, pain meds reduced, and she is still at serious risk.
www.thecanary.co/uk/analysis/...
Queen Elizabeth Hospital has declined to take up Sonya Chowdhury’s offer to advocate.
Savannah remains without nutrition. Fluids restored after pressure, pain meds reduced, and she is still at serious risk.
www.thecanary.co/uk/analysis/...
January 30, 2026 at 6:24 PM
New article on Savannah’s case.
Queen Elizabeth Hospital has declined to take up Sonya Chowdhury’s offer to advocate.
Savannah remains without nutrition. Fluids restored after pressure, pain meds reduced, and she is still at serious risk.
www.thecanary.co/uk/analysis/...
Queen Elizabeth Hospital has declined to take up Sonya Chowdhury’s offer to advocate.
Savannah remains without nutrition. Fluids restored after pressure, pain meds reduced, and she is still at serious risk.
www.thecanary.co/uk/analysis/...
“Is it any wonder that people in this room, people who are watching at home get so angry with GPs who dismiss it, with people who say it's psychiatric… they don’t want to be ill” Nicky Campbell talking about his first wife’s #MECFS on Kilroy in the early 1990s.
January 30, 2026 at 8:23 AM
“Is it any wonder that people in this room, people who are watching at home get so angry with GPs who dismiss it, with people who say it's psychiatric… they don’t want to be ill” Nicky Campbell talking about his first wife’s #MECFS on Kilroy in the early 1990s.
Nicky Campbell talking about his first wife’s #MECFS on Kilroy in the early 1990s. There is no treatment, no cure, just coping as best you can, and trying to create a stress free environment.
Nothing has changed.
Nothing has changed.
January 29, 2026 at 7:42 AM
Nicky Campbell talking about his first wife’s #MECFS on Kilroy in the early 1990s. There is no treatment, no cure, just coping as best you can, and trying to create a stress free environment.
Nothing has changed.
Nothing has changed.
Update shared by Action for ME: their Chief Executive, Sonya Chowdhury, is personally advocating for Savannah and supporting her case.
January 28, 2026 at 2:40 PM
Update shared by Action for ME: their Chief Executive, Sonya Chowdhury, is personally advocating for Savannah and supporting her case.
Reposted by Adam
Description from @scienceforme.bsky.social update:
Article with additional info to the YouTube video "ME/CFS Scandal Explainer". Both the video & the article provide overview & important details of the psychologisation of ME in the UK & the consequences for the patient group.
#MEcfs #PwME #CFS
Article with additional info to the YouTube video "ME/CFS Scandal Explainer". Both the video & the article provide overview & important details of the psychologisation of ME in the UK & the consequences for the patient group.
#MEcfs #PwME #CFS
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
ME/CFS Scandal Follow up
The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introduction — how for decades patients were told…
medium.com
January 25, 2026 at 11:40 PM
Description from @scienceforme.bsky.social update:
Article with additional info to the YouTube video "ME/CFS Scandal Explainer". Both the video & the article provide overview & important details of the psychologisation of ME in the UK & the consequences for the patient group.
#MEcfs #PwME #CFS
Article with additional info to the YouTube video "ME/CFS Scandal Explainer". Both the video & the article provide overview & important details of the psychologisation of ME in the UK & the consequences for the patient group.
#MEcfs #PwME #CFS
Severe #MECFS can often feel like your body is a war zone. I can’t imagine living with it and being in a war zone aswell - with bombs falling outside your home. I’ve just donated to help Daryna escape from Ukraine to Germany.
January 25, 2026 at 11:21 AM
Severe #MECFS can often feel like your body is a war zone. I can’t imagine living with it and being in a war zone aswell - with bombs falling outside your home. I’ve just donated to help Daryna escape from Ukraine to Germany.
TW: Medical neglect, severe ME/CFS
An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids.
www.thecanary.co/uk/analysis/...
An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids.
www.thecanary.co/uk/analysis/...
https://www.thecanary.co/uk/analysis/2026/01/22/severe-me-savannah/
January 23, 2026 at 12:37 PM
TW: Medical neglect, severe ME/CFS
An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids.
www.thecanary.co/uk/analysis/...
An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids.
www.thecanary.co/uk/analysis/...
Reposted by Adam
Dr Diane O'Leary has made an excellent comment on Emily Mendenhall's Substack, revealing she had a similar experience with Wessely.
We agree that the world would be a better place if the silenced material could be published.
We agree that the world would be a better place if the silenced material could be published.
January 21, 2026 at 4:20 PM
Dr Diane O'Leary has made an excellent comment on Emily Mendenhall's Substack, revealing she had a similar experience with Wessely.
We agree that the world would be a better place if the silenced material could be published.
We agree that the world would be a better place if the silenced material could be published.
Reposted by Adam
This was my favorite part 😆
(I was surprised to find myself grinning while reading such a shameful compilation, but this section brought me joy)
(thank you @abrokenbattery.bsky.social for compiling all of this!)
#MyalgicEncephalomyelitis #pwME #SevereME #MedSky #ChronicIllness #Disability
(I was surprised to find myself grinning while reading such a shameful compilation, but this section brought me joy)
(thank you @abrokenbattery.bsky.social for compiling all of this!)
#MyalgicEncephalomyelitis #pwME #SevereME #MedSky #ChronicIllness #Disability
![“Medium
June 2018
Following a Twitter exchange about the PACE trial, Simon Wessely tags his old school friend Mike Godwin, suggesting that a critic's tweet is an example of his famous law [35]. After examining the evidence, Godwin concludes that PACE is
"so profoundly flawed that it cannot be trusted". He also signs David Tuller's open letter requesting an independent reanalysis of the trial [36].”](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:hcna5ngafyx3bmh4ky27nj6h/bafkreigzcoz22y3xldxt3472276boxhipnjieuvepo73lpkzzu5hugo7ji@jpeg)
January 20, 2026 at 9:36 AM
This was my favorite part 😆
(I was surprised to find myself grinning while reading such a shameful compilation, but this section brought me joy)
(thank you @abrokenbattery.bsky.social for compiling all of this!)
#MyalgicEncephalomyelitis #pwME #SevereME #MedSky #ChronicIllness #Disability
(I was surprised to find myself grinning while reading such a shameful compilation, but this section brought me joy)
(thank you @abrokenbattery.bsky.social for compiling all of this!)
#MyalgicEncephalomyelitis #pwME #SevereME #MedSky #ChronicIllness #Disability
Reposted by Adam
Can't recommend this article highly enough.
Seeing key events listed chronologically clearly shows how much work remains to be done if there is to be justice for #pwME & an end to the relentless corruption.
#ME #MEAwareness #MedSky
medium.com/@abrokenbatt...
Seeing key events listed chronologically clearly shows how much work remains to be done if there is to be justice for #pwME & an end to the relentless corruption.
#ME #MEAwareness #MedSky
medium.com/@abrokenbatt...
ME/CFS Scandal Follow up
The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introduction — how for decades patients were told…
medium.com
January 20, 2026 at 8:50 AM
Can't recommend this article highly enough.
Seeing key events listed chronologically clearly shows how much work remains to be done if there is to be justice for #pwME & an end to the relentless corruption.
#ME #MEAwareness #MedSky
medium.com/@abrokenbatt...
Seeing key events listed chronologically clearly shows how much work remains to be done if there is to be justice for #pwME & an end to the relentless corruption.
#ME #MEAwareness #MedSky
medium.com/@abrokenbatt...
Content warning: assisted dying, severe ME/CFS
A 21-year-old man in Austria has shared a post on Reddit describing life with severe ME/CFS and his decision to pursue assisted dying. In the post, he asks for his story to be shared to help raise awareness.
www.reddit.com/r/Austria/co...
A 21-year-old man in Austria has shared a post on Reddit describing life with severe ME/CFS and his decision to pursue assisted dying. In the post, he asks for his story to be shared to help raise awareness.
www.reddit.com/r/Austria/co...
From the Austria community on Reddit: Ich bin Samuel, 21, leide an ME/CFS und in 12 Tagen sterbe ich.
Explore this post and more from the Austria community
www.reddit.com
January 19, 2026 at 8:33 PM
Content warning: assisted dying, severe ME/CFS
A 21-year-old man in Austria has shared a post on Reddit describing life with severe ME/CFS and his decision to pursue assisted dying. In the post, he asks for his story to be shared to help raise awareness.
www.reddit.com/r/Austria/co...
A 21-year-old man in Austria has shared a post on Reddit describing life with severe ME/CFS and his decision to pursue assisted dying. In the post, he asks for his story to be shared to help raise awareness.
www.reddit.com/r/Austria/co...
Reposted by Adam
“Wessely read a version of the writing & threatened to sue me if it didn’t include the other side.” - Mendenhall
This raises serious questions about academic pressure, power, and whose voices shape the narrative around ME and Long Covid.
This raises serious questions about academic pressure, power, and whose voices shape the narrative around ME and Long Covid.
🗞️We have a fascinating article by guest writer @drelke.bsky.social on Mendenhall's new book 'Invisible Illness'.
Suffice to say there are complexities & controversies...
🖇️ tinyurl.com/vct9n5ez
Suffice to say there are complexities & controversies...
🖇️ tinyurl.com/vct9n5ez
January 18, 2026 at 5:20 PM
“Wessely read a version of the writing & threatened to sue me if it didn’t include the other side.” - Mendenhall
This raises serious questions about academic pressure, power, and whose voices shape the narrative around ME and Long Covid.
This raises serious questions about academic pressure, power, and whose voices shape the narrative around ME and Long Covid.
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
ME/CFS Scandal Follow up
The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introduction — how for decades patients were told…
medium.com
January 19, 2026 at 7:53 AM
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
🚨Looking for recommendations for a UK doctor with experience in ME/CFS who may be willing to act as an expert witness in a legal case.
Unfortunately, Nigel Speight, William Weir, Claire Taylor, Binita Kane and Dr Bansal are not eligible. DMs open.
Unfortunately, Nigel Speight, William Weir, Claire Taylor, Binita Kane and Dr Bansal are not eligible. DMs open.
January 16, 2026 at 2:43 PM
🚨Looking for recommendations for a UK doctor with experience in ME/CFS who may be willing to act as an expert witness in a legal case.
Unfortunately, Nigel Speight, William Weir, Claire Taylor, Binita Kane and Dr Bansal are not eligible. DMs open.
Unfortunately, Nigel Speight, William Weir, Claire Taylor, Binita Kane and Dr Bansal are not eligible. DMs open.
A powerful German film about friendship. Tom lives in darkness and isolation with ME/CFS, unable to see his best friend Jonas, who sends him a postcard every week. Also featuring @anilvanderzee.bsky.social. (18 mins)
youtu.be/XTWIWqzaG2c?...
youtu.be/XTWIWqzaG2c?...
Unsichtbar krank: Mein bester Freund hat ME/CFS I 37 Grad
YouTube video by 37 Grad
youtu.be
January 14, 2026 at 6:57 PM
A powerful German film about friendship. Tom lives in darkness and isolation with ME/CFS, unable to see his best friend Jonas, who sends him a postcard every week. Also featuring @anilvanderzee.bsky.social. (18 mins)
youtu.be/XTWIWqzaG2c?...
youtu.be/XTWIWqzaG2c?...
“I’ve met people who have had it for 10 years, 25 years. Some are bedridden, some can’t walk across the street. It’s stupid to call it chronic fatigue syndrome. It should be called the forever dead syndrome.”
Quote from Keith Jarrett on ME/CFS (more in image)
Quote from Keith Jarrett on ME/CFS (more in image)
January 13, 2026 at 3:14 AM
“I’ve met people who have had it for 10 years, 25 years. Some are bedridden, some can’t walk across the street. It’s stupid to call it chronic fatigue syndrome. It should be called the forever dead syndrome.”
Quote from Keith Jarrett on ME/CFS (more in image)
Quote from Keith Jarrett on ME/CFS (more in image)
Edited clips of Keith Jarrett, American jazz pianist and composer, talking about #MECFS, which he developed in 1996.
“I couldn’t uncover the piano — it took too much energy… At the time everybody thought it was a psychosomatic thing.”
“I couldn’t uncover the piano — it took too much energy… At the time everybody thought it was a psychosomatic thing.”
January 12, 2026 at 1:30 PM
Edited clips of Keith Jarrett, American jazz pianist and composer, talking about #MECFS, which he developed in 1996.
“I couldn’t uncover the piano — it took too much energy… At the time everybody thought it was a psychosomatic thing.”
“I couldn’t uncover the piano — it took too much energy… At the time everybody thought it was a psychosomatic thing.”
Over the last five years of working on #LongCOVID “we were to some extent reinventing the wheel and finding things out that people had talked about in ME for years before and felt they hadn't been listened to” Professor Danny Altmann on BBC Inside Science #MECFS
January 8, 2026 at 6:40 PM
Over the last five years of working on #LongCOVID “we were to some extent reinventing the wheel and finding things out that people had talked about in ME for years before and felt they hadn't been listened to” Professor Danny Altmann on BBC Inside Science #MECFS
BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid.
youtu.be/eu8Lj_R-OtQ?...
youtu.be/eu8Lj_R-OtQ?...
BBC Inside Science - £1.1M ME/CFS and Long Covid Study
YouTube video by Broken Battery
youtu.be
January 8, 2026 at 5:20 PM
BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid.
youtu.be/eu8Lj_R-OtQ?...
youtu.be/eu8Lj_R-OtQ?...
Reposted by Adam
Remarkably, Alem Matthees, the Australian patient whose freedom of information request liberated the raw data from the PACE TRIAL, has reported some improvements in his condition: virology.ws/2026/01/02/t...
Trial By Error: My Unexpected E-Mail Exchange with Alem Matthees | Virology Blog
By David Tuller, DrPH In recent months, one of the most high-profile people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)—Australian Alem ...
virology.ws
January 3, 2026 at 1:08 AM
Remarkably, Alem Matthees, the Australian patient whose freedom of information request liberated the raw data from the PACE TRIAL, has reported some improvements in his condition: virology.ws/2026/01/02/t...
Reposted by Adam
1) We’ve just published our review of the most interesting ME/CFS studies of 2025.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
December 30, 2025 at 11:02 AM
1) We’ve just published our review of the most interesting ME/CFS studies of 2025.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.
A brief overview of the studies that caught our eye.
Edited clip from ITV News about #MECFS (thought to be 2013).
Michelle is severely affected, largely bed-bound, with light and sound sensitivity.
Her mum says: “Healthcare is horrendous and social services haven’t got a clue… they don’t know how to help.”
Michelle is severely affected, largely bed-bound, with light and sound sensitivity.
Her mum says: “Healthcare is horrendous and social services haven’t got a clue… they don’t know how to help.”
December 29, 2025 at 7:07 AM
Edited clip from ITV News about #MECFS (thought to be 2013).
Michelle is severely affected, largely bed-bound, with light and sound sensitivity.
Her mum says: “Healthcare is horrendous and social services haven’t got a clue… they don’t know how to help.”
Michelle is severely affected, largely bed-bound, with light and sound sensitivity.
Her mum says: “Healthcare is horrendous and social services haven’t got a clue… they don’t know how to help.”
Christmas can be a difficult time for people with chronic illness. Thinking of everyone with severe #MECFS and #LongCovid, particularly those who are living alone or isolated in darkened rooms.
December 25, 2025 at 10:17 AM
Christmas can be a difficult time for people with chronic illness. Thinking of everyone with severe #MECFS and #LongCovid, particularly those who are living alone or isolated in darkened rooms.