Melissa Mazur
@phillyphile215.bsky.social
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
That’s good to hear! I haven’t seen him speak to disability otherwise—esp around C19. His supporters went after @taylorlorenz.bsky.social for gently calling him in on this issue a few months ago. I do hope he now has more about disability & addressing C19/LC in his platform, esp given rising rates.
October 17, 2025 at 7:15 PM
That’s good to hear! I haven’t seen him speak to disability otherwise—esp around C19. His supporters went after @taylorlorenz.bsky.social for gently calling him in on this issue a few months ago. I do hope he now has more about disability & addressing C19/LC in his platform, esp given rising rates.
What immunomodulators should we be considering? First day antivirals and immunomodulators were the two big things the community wanted tested (alt text below)
September 12, 2025 at 1:51 AM
What immunomodulators should we be considering? First day antivirals and immunomodulators were the two big things the community wanted tested (alt text below)
Also rocked this version at the Shore, which was particularly appropriate given a hurricane rolling thru (analogy for the brutalness of ME?) 🌊🌊🌊
Link here if you want your own, proceeds benefit @openmedf.bsky.social #TreatME #CureME www.bonfire.com/mecfs-surf-c...
Link here if you want your own, proceeds benefit @openmedf.bsky.social #TreatME #CureME www.bonfire.com/mecfs-surf-c...
August 25, 2025 at 3:34 PM
Also rocked this version at the Shore, which was particularly appropriate given a hurricane rolling thru (analogy for the brutalness of ME?) 🌊🌊🌊
Link here if you want your own, proceeds benefit @openmedf.bsky.social #TreatME #CureME www.bonfire.com/mecfs-surf-c...
Link here if you want your own, proceeds benefit @openmedf.bsky.social #TreatME #CureME www.bonfire.com/mecfs-surf-c...
Managed a trip downtheshore last week and had the perfect attire for the occasion. 🌊🏄🏻♀️
If you want your own, here’s the link: www.bonfire.com/long-covid-s...; proceeds benefit @polybiorf.bsky.social #TreatLongCovid #CureLongCovid
If you want your own, here’s the link: www.bonfire.com/long-covid-s...; proceeds benefit @polybiorf.bsky.social #TreatLongCovid #CureLongCovid
August 25, 2025 at 3:31 PM
Managed a trip downtheshore last week and had the perfect attire for the occasion. 🌊🏄🏻♀️
If you want your own, here’s the link: www.bonfire.com/long-covid-s...; proceeds benefit @polybiorf.bsky.social #TreatLongCovid #CureLongCovid
If you want your own, here’s the link: www.bonfire.com/long-covid-s...; proceeds benefit @polybiorf.bsky.social #TreatLongCovid #CureLongCovid
Would love to see any of the following on: Dr Proal from @polybiorf.bsky.social @exceedhergrasp1.bsky.social @georgemonbiot.bsky.social @putrinolab.bsky.social @zalaly.bsky.social @virusesimmunity.bsky.social … to explain how #GreatestMEdicalScandal got us to here 👇 @weeklyshowpodcast.bsky.social
August 13, 2025 at 8:13 PM
Would love to see any of the following on: Dr Proal from @polybiorf.bsky.social @exceedhergrasp1.bsky.social @georgemonbiot.bsky.social @putrinolab.bsky.social @zalaly.bsky.social @virusesimmunity.bsky.social … to explain how #GreatestMEdicalScandal got us to here 👇 @weeklyshowpodcast.bsky.social
August 5, 2025 at 5:13 PM
Philly friends, anyone want to go to this screening of Life After tomorrow night at the Bourse? 👀 Mask encouraged! Also a list of virtual and other screenings in other cities. I see @sfdirewolf.bsky.social & @juliametraux.bsky.social moderating the SF screening talkback lifeafterfilm.com/screenings
July 23, 2025 at 6:05 PM
Philly friends, anyone want to go to this screening of Life After tomorrow night at the Bourse? 👀 Mask encouraged! Also a list of virtual and other screenings in other cities. I see @sfdirewolf.bsky.social & @juliametraux.bsky.social moderating the SF screening talkback lifeafterfilm.com/screenings
July 2, 2025 at 4:40 PM
Glad to see you are looking into this issue—especially now with people continuing to get Long COVID & ME each day and LC becoming the leading chronic condition among children. We are learning so much about how viruses can hijack the immune system for their own purposes in real time …
June 29, 2025 at 8:01 PM
Glad to see you are looking into this issue—especially now with people continuing to get Long COVID & ME each day and LC becoming the leading chronic condition among children. We are learning so much about how viruses can hijack the immune system for their own purposes in real time …
Perfect shirt for hot summer days like today when I wish I were at the Shore but instead surfing never-ending gnarly LC waves. #TreatLongCovid
June 25, 2025 at 9:57 PM
Perfect shirt for hot summer days like today when I wish I were at the Shore but instead surfing never-ending gnarly LC waves. #TreatLongCovid
The rates have fluctuated between 5-7% over the past 5 years. You’re making much more out of this snapshot than you should be. Look at the other sources I shared.
5% is also still larger than our 5 most populous cities combined. That’s a lot of people suffering with NO approved FDA treatments.
5% is also still larger than our 5 most populous cities combined. That’s a lot of people suffering with NO approved FDA treatments.
June 5, 2025 at 4:50 PM
The rates have fluctuated between 5-7% over the past 5 years. You’re making much more out of this snapshot than you should be. Look at the other sources I shared.
5% is also still larger than our 5 most populous cities combined. That’s a lot of people suffering with NO approved FDA treatments.
5% is also still larger than our 5 most populous cities combined. That’s a lot of people suffering with NO approved FDA treatments.
@grittynhl.bsky.social knows “it ME” as famously portrayed years ago on the cover of Time. You’re the perfect person to join our fight against the misogyny and stigma wrapped up in #GreatestMEdicalScandal! Please help change the narrative for #pwME to get real treatments and cures! 🙏
May 23, 2025 at 7:43 PM
@grittynhl.bsky.social knows “it ME” as famously portrayed years ago on the cover of Time. You’re the perfect person to join our fight against the misogyny and stigma wrapped up in #GreatestMEdicalScandal! Please help change the narrative for #pwME to get real treatments and cures! 🙏
Congrats to all @templelaw.bsky.social graduates! 🎓 It was such a joy to meet some of my students’ families today—who travelled from all over the world to join the occasion. I really love the tradition of graduates’ children accompanying them across the stage. 🥹 #TempleMade
May 22, 2025 at 10:36 PM
Congrats to all @templelaw.bsky.social graduates! 🎓 It was such a joy to meet some of my students’ families today—who travelled from all over the world to join the occasion. I really love the tradition of graduates’ children accompanying them across the stage. 🥹 #TempleMade
Philly! Help me out! I wore these owl earrings to @templelaw.bsky.social graduation today and lost one 😭 Not sure if it was somewhere on campus or the commute to/from! If you by some slim chance find an earring like this, lmk 🙏
May 22, 2025 at 8:39 PM
Philly! Help me out! I wore these owl earrings to @templelaw.bsky.social graduation today and lost one 😭 Not sure if it was somewhere on campus or the commute to/from! If you by some slim chance find an earring like this, lmk 🙏
I nominate @zenosfrudakis.bsky.social to join our fight! His Freedom Sculpture epitomizes the experience of ME! Will you look into #GreatestMEdicalScandal and help us bring #MillionsMissing back to safety? 🙏🛟 Learn more at johnvsjon.com @johnvsjonvsme.bsky.social #MyalgicEncephalomyelitis #MEcfs
May 13, 2025 at 3:21 PM
I nominate @zenosfrudakis.bsky.social to join our fight! His Freedom Sculpture epitomizes the experience of ME! Will you look into #GreatestMEdicalScandal and help us bring #MillionsMissing back to safety? 🙏🛟 Learn more at johnvsjon.com @johnvsjonvsme.bsky.social #MyalgicEncephalomyelitis #MEcfs
I’ve always loved St. Rita—patron saint of impossible causes. Please consider praying with me her novena starting today til her feast on May 22nd when there will be a big celebration with roses at the National Shrine in S Philly—an Augustinian parish: www.saintritashrine.org/novena-prayers
May 13, 2025 at 1:34 PM
I’ve always loved St. Rita—patron saint of impossible causes. Please consider praying with me her novena starting today til her feast on May 22nd when there will be a big celebration with roses at the National Shrine in S Philly—an Augustinian parish: www.saintritashrine.org/novena-prayers
“You can’t run away from low blood oxygen levels…literally.” If you aren’t familiar with #MyalgicEncephalomyelitis take 8 min to watch this video in next post. We need biomedical research for effective treatments—especially now with C19 ballooning the number of #pwME. #WorldMEDay
May 12, 2025 at 3:17 PM
“You can’t run away from low blood oxygen levels…literally.” If you aren’t familiar with #MyalgicEncephalomyelitis take 8 min to watch this video in next post. We need biomedical research for effective treatments—especially now with C19 ballooning the number of #pwME. #WorldMEDay
Reaffirmed my commitment to upholding the U.S. and PA Constitutions as a PA attorney with other members of the @phillybarassoc.bsky.social today at Phila’s City Hall—where I was first sworn into the PA Bar over 10 years ago.
May 1, 2025 at 6:47 PM
Reaffirmed my commitment to upholding the U.S. and PA Constitutions as a PA attorney with other members of the @phillybarassoc.bsky.social today at Phila’s City Hall—where I was first sworn into the PA Bar over 10 years ago.
I was fortunate to have enough baseline yesterday to take part in walking Stations of the Cross hosted by my church. I wore my red ME Action shirt and carried my Berlin Buyers LC bag with me, while masked. It felt like a meaningful way to commemorate Good Friday.
April 19, 2025 at 7:49 PM
I was fortunate to have enough baseline yesterday to take part in walking Stations of the Cross hosted by my church. I wore my red ME Action shirt and carried my Berlin Buyers LC bag with me, while masked. It felt like a meaningful way to commemorate Good Friday.
Moment of Zen in spring. #whyilovephilly
April 16, 2025 at 8:34 PM
Moment of Zen in spring. #whyilovephilly
😆 I do love a good pun! Happy Investiture Day President John Fry of @templeunivpress.bsky.social!
#TempleMade
#TempleMade
April 4, 2025 at 11:05 PM
😆 I do love a good pun! Happy Investiture Day President John Fry of @templeunivpress.bsky.social!
#TempleMade
#TempleMade
Last week I attended a @phillybarassoc.bsky.social event in person. The last time I was at the Bar offices was mid March 2020 for a CLE, just before the world shut down and I developed #LongCovid. …
April 2, 2025 at 6:19 PM
Last week I attended a @phillybarassoc.bsky.social event in person. The last time I was at the Bar offices was mid March 2020 for a CLE, just before the world shut down and I developed #LongCovid. …
“Our collective spoons are our greatest asset!” We each are limited but together we have power👇. Do what you can, rest, pace, and stay focused, friends.
Y’all are awesome! Keep it up!👏👏👏
/end
Y’all are awesome! Keep it up!👏👏👏
/end
March 28, 2025 at 4:22 PM
“Our collective spoons are our greatest asset!” We each are limited but together we have power👇. Do what you can, rest, pace, and stay focused, friends.
Y’all are awesome! Keep it up!👏👏👏
/end
Y’all are awesome! Keep it up!👏👏👏
/end
Momentum is building and Congressional leaders on both sides of the aisle ARE taking notice about these nonsensical & disastrous LC funding cuts! Keep it up y’all! #NoLongCOVIDcuts
🧵 with tangible ACTION ITEMS on how YOU can help and stop these cuts from happening…
🧵 with tangible ACTION ITEMS on how YOU can help and stop these cuts from happening…
March 28, 2025 at 4:13 PM
Momentum is building and Congressional leaders on both sides of the aisle ARE taking notice about these nonsensical & disastrous LC funding cuts! Keep it up y’all! #NoLongCOVIDcuts
🧵 with tangible ACTION ITEMS on how YOU can help and stop these cuts from happening…
🧵 with tangible ACTION ITEMS on how YOU can help and stop these cuts from happening…