Billy Hanlon
@bhanlon15.bsky.social
ME/CFS | Long COVID | IACC
Reposted by Billy Hanlon
Amy mentions that she’s pretty sure that the White House has put in Far-UVC systems in addition to good air ventilation and purification. I would love to find a source confirming this.
#cleanair
www.existentialhope.com/podcasts/amy...
#cleanair
www.existentialhope.com/podcasts/amy...
Amy Proal | Rethinking chronic disease
www.existentialhope.com
November 21, 2025 at 7:18 PM
Amy mentions that she’s pretty sure that the White House has put in Far-UVC systems in addition to good air ventilation and purification. I would love to find a source confirming this.
#cleanair
www.existentialhope.com/podcasts/amy...
#cleanair
www.existentialhope.com/podcasts/amy...
Reposted by Billy Hanlon
What a shame there was no one qualified in charge of this research. My heart goes out to all the people whose hopes were raised by thinking this urgent health issue might actually be about to be researched, and possibly yield something positive to help them. Such a disappointment😒
November 21, 2025 at 6:38 PM
What a shame there was no one qualified in charge of this research. My heart goes out to all the people whose hopes were raised by thinking this urgent health issue might actually be about to be researched, and possibly yield something positive to help them. Such a disappointment😒
Reposted by Billy Hanlon
I remember looking at the grant funding from RECOVER and thinking the grant review process was faulty. So many of the proposals included graded exercices.
November 21, 2025 at 5:36 PM
I remember looking at the grant funding from RECOVER and thinking the grant review process was faulty. So many of the proposals included graded exercices.
Health Rising: “A Long COVID Autoimmune Subset Coming into View? (and Why ME/CFS May be Next)”
“The good news.. is that SOLVE M.E.’s new Catalyst award will allow Dr Iwasaki to replicate her work in ME/CFS and prepare the path…”
www.healthrising.org/blog/2025/11...
“The good news.. is that SOLVE M.E.’s new Catalyst award will allow Dr Iwasaki to replicate her work in ME/CFS and prepare the path…”
www.healthrising.org/blog/2025/11...
A Long COVID Autoimmune Subset Coming into View? ( and Why ME/CFS May be Next) - Health Rising
Solve ME Catalyst Award winner Dr. Iwasaki explains a subset of long COVID patients may have an autoimmune disease. Now she moves onto ME/CFS.
www.healthrising.org
November 22, 2025 at 12:03 AM
Health Rising: “A Long COVID Autoimmune Subset Coming into View? (and Why ME/CFS May be Next)”
“The good news.. is that SOLVE M.E.’s new Catalyst award will allow Dr Iwasaki to replicate her work in ME/CFS and prepare the path…”
www.healthrising.org/blog/2025/11...
“The good news.. is that SOLVE M.E.’s new Catalyst award will allow Dr Iwasaki to replicate her work in ME/CFS and prepare the path…”
www.healthrising.org/blog/2025/11...
Reposted by Billy Hanlon
We are up to 688 LoCITT participants!
If we could enroll all 1,000 participants within a month of launch (by 11/30), it would send a powerful message about the demand for remote Long COVID clinical trials.
We appreciate the community's help to spread the word:
longcovid.scripps.edu/locitt-t/?ut...
If we could enroll all 1,000 participants within a month of launch (by 11/30), it would send a powerful message about the demand for remote Long COVID clinical trials.
We appreciate the community's help to spread the word:
longcovid.scripps.edu/locitt-t/?ut...
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
longcovid.scripps.edu
November 21, 2025 at 7:59 PM
We are up to 688 LoCITT participants!
If we could enroll all 1,000 participants within a month of launch (by 11/30), it would send a powerful message about the demand for remote Long COVID clinical trials.
We appreciate the community's help to spread the word:
longcovid.scripps.edu/locitt-t/?ut...
If we could enroll all 1,000 participants within a month of launch (by 11/30), it would send a powerful message about the demand for remote Long COVID clinical trials.
We appreciate the community's help to spread the word:
longcovid.scripps.edu/locitt-t/?ut...
Reposted by Billy Hanlon
!! Thank you so much to everyone who’s volunteering for this, and who’s been sharing with their friends. It’s so exciting to see science move forward this fast!
We are up to 688 LoCITT participants!
If we could enroll all 1,000 participants within a month of launch (by 11/30), it would send a powerful message about the demand for remote Long COVID clinical trials.
We appreciate the community's help to spread the word:
longcovid.scripps.edu/locitt-t/?ut...
If we could enroll all 1,000 participants within a month of launch (by 11/30), it would send a powerful message about the demand for remote Long COVID clinical trials.
We appreciate the community's help to spread the word:
longcovid.scripps.edu/locitt-t/?ut...
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
longcovid.scripps.edu
November 21, 2025 at 8:32 PM
!! Thank you so much to everyone who’s volunteering for this, and who’s been sharing with their friends. It’s so exciting to see science move forward this fast!
Mass General Brigham: 'Research Spotlight: Trial Evaluates a Vitamin B3 Derivative in People with Long COVID'
'Millions of people worldwide continue to experience lingering symptoms after COVID-19, a condition known as long COVID.'
www.massgeneralbrigham.org/en/about/new...
'Millions of people worldwide continue to experience lingering symptoms after COVID-19, a condition known as long COVID.'
www.massgeneralbrigham.org/en/about/new...
Research Spotlight: Trial Evaluates a Vitamin B3 Derivative in People with Long COVID | Mass General Brigham
Chao-Yi Wu, PhD, OT and Edmarie Guzmán-Vélez, PhD are the lead and senior authors of a paper published in eClinicalMedicine, “Effects of Nicotinamide Riboside on NAD+ Levels, Cognition, and Symptom Re...
www.massgeneralbrigham.org
November 21, 2025 at 10:04 PM
Mass General Brigham: 'Research Spotlight: Trial Evaluates a Vitamin B3 Derivative in People with Long COVID'
'Millions of people worldwide continue to experience lingering symptoms after COVID-19, a condition known as long COVID.'
www.massgeneralbrigham.org/en/about/new...
'Millions of people worldwide continue to experience lingering symptoms after COVID-19, a condition known as long COVID.'
www.massgeneralbrigham.org/en/about/new...
Reposted by Billy Hanlon
✨ICYMI: Dr. Ron Davis and Dr. David Systrom discuss how problems with oxygen supply and energy production may underlie #MECFS. All donations to OMF are TRIPLED until December 2.
🎥 Watch the interview and support OMF's research: ow.ly/e4Y850Xq26J.
🎥 Watch the interview and support OMF's research: ow.ly/e4Y850Xq26J.
November 21, 2025 at 6:00 PM
✨ICYMI: Dr. Ron Davis and Dr. David Systrom discuss how problems with oxygen supply and energy production may underlie #MECFS. All donations to OMF are TRIPLED until December 2.
🎥 Watch the interview and support OMF's research: ow.ly/e4Y850Xq26J.
🎥 Watch the interview and support OMF's research: ow.ly/e4Y850Xq26J.
Reposted by Billy Hanlon
New from the The Sick Times
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
November 21, 2025 at 5:54 PM
New from the The Sick Times
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
‘Testing exercise is “money down the drain” and won’t advance understanding of Long COVID, experts say’
thesicktimes.org/2025/11/21/l...
Journal of General Internal Medicine: 'Putting the PASC Score to the Test: Clinical vs. Statistical Accuracy in Long COVID Diagnosis'
'We call for national efforts to develop readily implementable clinical tools for LC diagnosis.'
link.springer.com/article/10.1...
'We call for national efforts to develop readily implementable clinical tools for LC diagnosis.'
link.springer.com/article/10.1...
Putting the PASC Score to the Test: Clinical vs. Statistical Accuracy in Long COVID Diagnosis - Journal of General Internal Medicine
Objective To validate the RECOVER Post-Acute Sequelae of SARS-CoV-2 infection (PASC) score in a cohort of patients who develop long COVID (LC) or fully recover while iteratively improving the tool’s s...
link.springer.com
November 21, 2025 at 6:04 PM
Journal of General Internal Medicine: 'Putting the PASC Score to the Test: Clinical vs. Statistical Accuracy in Long COVID Diagnosis'
'We call for national efforts to develop readily implementable clinical tools for LC diagnosis.'
link.springer.com/article/10.1...
'We call for national efforts to develop readily implementable clinical tools for LC diagnosis.'
link.springer.com/article/10.1...
Reposted by Billy Hanlon
Researchers analyzed symptoms from 1,661 long COVID patients and found at least 10 biological subtypes and 3 severity levels.
Machine learning predicted recovery and even linked symptoms to antibody levels.
www.medrxiv.org/content/10.1...
Machine learning predicted recovery and even linked symptoms to antibody levels.
www.medrxiv.org/content/10.1...
Machine Learning Analysis of Post-Acute COVID Symptoms Identifies Distinct Clusters and Severity Groups
Questionnaires that capture patient-reported symptomatology provide low-cost but potentially high-value data for the de novo discovery of disease phenotype, severity, and responsiveness to interventio...
www.medrxiv.org
November 19, 2025 at 4:32 AM
Researchers analyzed symptoms from 1,661 long COVID patients and found at least 10 biological subtypes and 3 severity levels.
Machine learning predicted recovery and even linked symptoms to antibody levels.
www.medrxiv.org/content/10.1...
Machine learning predicted recovery and even linked symptoms to antibody levels.
www.medrxiv.org/content/10.1...
Reposted by Billy Hanlon
Maybe if Batman had Long COVID, we'd finally believe it was a villain worth fighting.
In a Milan metro study of 138 rides, passengers were 3 times more likely to offer their seat to a pregnant woman when a person dressed as Batman was nearby, even though 44% of them didn’t notice him.
www.nature.com/articles/s44...
www.nature.com/articles/s44...
Unexpected events and prosocial behavior: the Batman effect - npj Mental Health Research
npj Mental Health Research - Unexpected events and prosocial behavior: the Batman effect
www.nature.com
November 21, 2025 at 3:33 PM
Maybe if Batman had Long COVID, we'd finally believe it was a villain worth fighting.
Reposted by Billy Hanlon
Sungkyunkwan University researchers gave Korean red ginseng to mice infected with a SARS-CoV-2 mimic.
The saponin-rich extract eased lung damage, reduced harmful immune overactivation, and boosted long-term antiviral immunity.
www.sciencedirect.com/science/arti...
The saponin-rich extract eased lung damage, reduced harmful immune overactivation, and boosted long-term antiviral immunity.
www.sciencedirect.com/science/arti...
Korean red ginseng mitigates pulmonary injury and enhances antiviral immunity in a low-dose pseudo-type SARS-CoV-2 infection model
and design: This research was conducted to investigate the immunomodulatory and anti-inflammatory effects of Korean red ginseng in a low-dose pseudo-t…
www.sciencedirect.com
November 21, 2025 at 3:36 PM
Sungkyunkwan University researchers gave Korean red ginseng to mice infected with a SARS-CoV-2 mimic.
The saponin-rich extract eased lung damage, reduced harmful immune overactivation, and boosted long-term antiviral immunity.
www.sciencedirect.com/science/arti...
The saponin-rich extract eased lung damage, reduced harmful immune overactivation, and boosted long-term antiviral immunity.
www.sciencedirect.com/science/arti...
Stanford Medicine: 'Infection Connections'
'How past microbial incursions can lead to neurodegenerative diseases'
' Each such discovery is a concrete step toward finding a way to relieve humanity of the burden of chronic disease...'
stanmed.stanford.edu/infections-l...
'How past microbial incursions can lead to neurodegenerative diseases'
' Each such discovery is a concrete step toward finding a way to relieve humanity of the burden of chronic disease...'
stanmed.stanford.edu/infections-l...
Why acute infections can lead to neurodegeneration
Researchers are uncovering the mysteries of why early-in-life acute infections can lead to neurodegenerative diseases in later years.
stanmed.stanford.edu
November 21, 2025 at 6:02 PM
Stanford Medicine: 'Infection Connections'
'How past microbial incursions can lead to neurodegenerative diseases'
' Each such discovery is a concrete step toward finding a way to relieve humanity of the burden of chronic disease...'
stanmed.stanford.edu/infections-l...
'How past microbial incursions can lead to neurodegenerative diseases'
' Each such discovery is a concrete step toward finding a way to relieve humanity of the burden of chronic disease...'
stanmed.stanford.edu/infections-l...
'Testing nicotinamide riboside as a potential aid for long COVID recovery'
Chao-Yi Wu, PhD, Mass General Brigham: 'We ran a 24-week clinical trial at Massachusetts General Hospital between August 2021 and September 2023. We enrolled 58 people with long COVID..'
www.news-medical.net/news/2025111...
Chao-Yi Wu, PhD, Mass General Brigham: 'We ran a 24-week clinical trial at Massachusetts General Hospital between August 2021 and September 2023. We enrolled 58 people with long COVID..'
www.news-medical.net/news/2025111...
Testing nicotinamide riboside as a potential aid for long COVID recovery
Chao-Yi Wu, PhD, OT, from the Department of Neurology and Edmarie Guzmán-Vélez, PhD, of the Department of Psychiatry at Mass General Brigham, are the lead and senior authors of a paper published in eC...
www.news-medical.net
November 21, 2025 at 4:34 PM
'Testing nicotinamide riboside as a potential aid for long COVID recovery'
Chao-Yi Wu, PhD, Mass General Brigham: 'We ran a 24-week clinical trial at Massachusetts General Hospital between August 2021 and September 2023. We enrolled 58 people with long COVID..'
www.news-medical.net/news/2025111...
Chao-Yi Wu, PhD, Mass General Brigham: 'We ran a 24-week clinical trial at Massachusetts General Hospital between August 2021 and September 2023. We enrolled 58 people with long COVID..'
www.news-medical.net/news/2025111...
Labour Party: 'Heartless refusal of Government to consider new long covid scheme'
'Heartless decision by Government not to put in place a new scheme for...essential healthcare workers whose lives have been turned upside down by long-covid'
labour.ie/news/2025/11...
'Heartless decision by Government not to put in place a new scheme for...essential healthcare workers whose lives have been turned upside down by long-covid'
labour.ie/news/2025/11...
Heartless refusal of Government to consider new long covid scheme - The Labour Party
Heartless refusal of Government to consider new long covid scheme - The Labour Party 159 healthcare workers with long-covid will be abandoned as workers lose full pay due to winding down of special sc...
labour.ie
November 21, 2025 at 4:31 PM
Labour Party: 'Heartless refusal of Government to consider new long covid scheme'
'Heartless decision by Government not to put in place a new scheme for...essential healthcare workers whose lives have been turned upside down by long-covid'
labour.ie/news/2025/11...
'Heartless decision by Government not to put in place a new scheme for...essential healthcare workers whose lives have been turned upside down by long-covid'
labour.ie/news/2025/11...
Neurology Live: 'Multi-Arm Phase 2 Trial Fails to Show Efficacy for Cognitive Programs in Treating Long COVID'
'The RECOVER-NEURO trial tested three interventions for long COVID but found no efficacy in improving cognitive symptoms.'
www.neurologylive.com/view/multi-a...
'The RECOVER-NEURO trial tested three interventions for long COVID but found no efficacy in improving cognitive symptoms.'
www.neurologylive.com/view/multi-a...
Multi-Arm Phase 2 Trial Fails to Show Efficacy for Cognitive Programs in Treating Long COVID | NeurologyLive - Clinical Neurology News and Neurology Expert Insights
A recent trial reveals that online cognitive training and other interventions are ineffective for treating long COVID cognitive symptoms, highlighting treatment challenges.
www.neurologylive.com
November 21, 2025 at 4:30 PM
Neurology Live: 'Multi-Arm Phase 2 Trial Fails to Show Efficacy for Cognitive Programs in Treating Long COVID'
'The RECOVER-NEURO trial tested three interventions for long COVID but found no efficacy in improving cognitive symptoms.'
www.neurologylive.com/view/multi-a...
'The RECOVER-NEURO trial tested three interventions for long COVID but found no efficacy in improving cognitive symptoms.'
www.neurologylive.com/view/multi-a...
Reposted by Billy Hanlon
5 years in I still have Long Covid. And it made my ME/CFS and other pre-existing conditions worse. An interesting discovery though - sometime in the year or two following the initial Covid infection (pre vaccines) I had multiple strokes in the basal ganglia area.
November 18, 2025 at 2:21 PM
5 years in I still have Long Covid. And it made my ME/CFS and other pre-existing conditions worse. An interesting discovery though - sometime in the year or two following the initial Covid infection (pre vaccines) I had multiple strokes in the basal ganglia area.
Reposted by Billy Hanlon
News Release 17-Nov-2025
From USA:
"10.3% had symptoms consistent with long COVID three months after infection, 81% of whom continued to experience persistent or intermittent symptoms a year later"
www.eurekalert.org/news-release...
#LongCovid #PASC #postcovid #postcovid19 #novid #COVID19 #COVID
From USA:
"10.3% had symptoms consistent with long COVID three months after infection, 81% of whom continued to experience persistent or intermittent symptoms a year later"
www.eurekalert.org/news-release...
#LongCovid #PASC #postcovid #postcovid19 #novid #COVID19 #COVID
November 18, 2025 at 1:09 PM
News Release 17-Nov-2025
From USA:
"10.3% had symptoms consistent with long COVID three months after infection, 81% of whom continued to experience persistent or intermittent symptoms a year later"
www.eurekalert.org/news-release...
#LongCovid #PASC #postcovid #postcovid19 #novid #COVID19 #COVID
From USA:
"10.3% had symptoms consistent with long COVID three months after infection, 81% of whom continued to experience persistent or intermittent symptoms a year later"
www.eurekalert.org/news-release...
#LongCovid #PASC #postcovid #postcovid19 #novid #COVID19 #COVID
Pharmaceutical Commerce: 'Pharma Pulse: Long COVID's Enduring Challenge Amid Major US Manufacturing Surge'
'First up, a look at an ongoing public health concern: Long COVID.'
www.pharmaceuticalcommerce.com/view/pharma-...
'First up, a look at an ongoing public health concern: Long COVID.'
www.pharmaceuticalcommerce.com/view/pharma-...
Pharma Pulse: Long COVID's Enduring Challenge Amid Major US Manufacturing Surge | Pharmaceutical Commerce
While studies reveal the complex, varying, and long-lasting burden of Long COVID symptoms, biopharma giants Novartis and Moderna commit significant capital to new facilities, reinforcing US drug suppl...
www.pharmaceuticalcommerce.com
November 21, 2025 at 4:20 PM
Pharmaceutical Commerce: 'Pharma Pulse: Long COVID's Enduring Challenge Amid Major US Manufacturing Surge'
'First up, a look at an ongoing public health concern: Long COVID.'
www.pharmaceuticalcommerce.com/view/pharma-...
'First up, a look at an ongoing public health concern: Long COVID.'
www.pharmaceuticalcommerce.com/view/pharma-...
Yahoo Life UK: '8 Different Trajectories Long COVID Can Take'
'The Results Can Help in Treating Long COVID'
'The researchers responsible hope the study will contribute to better treatment for affected patients'
uk.style.yahoo.com/8-different-...
'The Results Can Help in Treating Long COVID'
'The researchers responsible hope the study will contribute to better treatment for affected patients'
uk.style.yahoo.com/8-different-...
8 Different Trajectories Long COVID Can Take
A recent study shows that around ten percent of COVID-19 patients suffer from long COVID for months afterward. However, researchers have also identified eight different courses that long COVID can tak...
uk.style.yahoo.com
November 21, 2025 at 4:14 PM
Yahoo Life UK: '8 Different Trajectories Long COVID Can Take'
'The Results Can Help in Treating Long COVID'
'The researchers responsible hope the study will contribute to better treatment for affected patients'
uk.style.yahoo.com/8-different-...
'The Results Can Help in Treating Long COVID'
'The researchers responsible hope the study will contribute to better treatment for affected patients'
uk.style.yahoo.com/8-different-...
Reposted by Billy Hanlon
The rationale behind these studies, Seltzer contests, is [that] “it presumes that the patient had never heard of exercise until a doctor told them [it] exists.”
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
“People who are performing these studies are extraordinarily ignorant, and their ignorance is dangerous,” said @exceedhergrasp1.bsky.social. She and other experts agree these trials are a waste of $$ and will not advance our biological understanding of Long COVID. thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 3:56 PM
The rationale behind these studies, Seltzer contests, is [that] “it presumes that the patient had never heard of exercise until a doctor told them [it] exists.”
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
BBC: 'Family 'turned around' by multiple ME diagnoses'
'The ME Association said there are an estimated 1.35 million people with ME..including some with Long Covid, in the UK.'
'"Our new ME/CFS final delivery plan set out clear steps for transforming care..'
www.bbc.com/news/article...
'The ME Association said there are an estimated 1.35 million people with ME..including some with Long Covid, in the UK.'
'"Our new ME/CFS final delivery plan set out clear steps for transforming care..'
www.bbc.com/news/article...
Somerset family struggling as three members have ME
Julie Heath's husband and two children now all have the syndrome, which can cause chronic fatigue.
www.bbc.com
November 21, 2025 at 4:01 PM
BBC: 'Family 'turned around' by multiple ME diagnoses'
'The ME Association said there are an estimated 1.35 million people with ME..including some with Long Covid, in the UK.'
'"Our new ME/CFS final delivery plan set out clear steps for transforming care..'
www.bbc.com/news/article...
'The ME Association said there are an estimated 1.35 million people with ME..including some with Long Covid, in the UK.'
'"Our new ME/CFS final delivery plan set out clear steps for transforming care..'
www.bbc.com/news/article...
Reposted by Billy Hanlon
Please fill in this survey if you are a HCP with #longcovid or #ME. Please share widely thank you
🚨New survey alert 🚨
The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME
All information can be found on the landing page here.
www.physiosforme.com/hcpwithmesur...
The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME
All information can be found on the landing page here.
www.physiosforme.com/hcpwithmesur...
hcps with ME survey | Physiosforme
www.physiosforme.com
November 18, 2025 at 8:00 PM
Please fill in this survey if you are a HCP with #longcovid or #ME. Please share widely thank you
Reposted by Billy Hanlon
Today @thesicktimes.org: big story from @spichaksimon.bsky.social examining exercise trials for Long COVID. His analysis found that, among LC exercise trials registered on clinicaltrials.gov, less than 20% even *mention* PEM in their trial registration. thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 3:02 PM
Today @thesicktimes.org: big story from @spichaksimon.bsky.social examining exercise trials for Long COVID. His analysis found that, among LC exercise trials registered on clinicaltrials.gov, less than 20% even *mention* PEM in their trial registration. thesicktimes.org/2025/11/21/l...