Alex
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admiringbog.bsky.social
Alex
@admiringbog.bsky.social
570 followers 490 following 740 posts
person with ME/CFS
professional slug
Posts Replies Media Videos
Reposted by Alex
litsadremousis.bsky.social
Hey, #MedSky.

For reasons that elude comprehension, too many drs still wrongly believe #MyalgicEncephalomyelitis isn’t potentially fatal when it’s very much just that.

Four more of us dead just in the past week.

For the love of god, please read the research and listen to your patients.

#pwME
February 3, 2026 at 8:09 PM
admiringbog.bsky.social
My building takes elevator maintenance really seriously and I love that about them. My last building had a broken elevator all the time.
February 3, 2026 at 2:47 PM
Reposted by Alex
katybrc.bsky.social
Four people with #ME have died over the past few days,
it's devastating & deeply shocking that Eric Vanessa Jennifer & Samuel who should have had their whole lives ahead of them have died in this way in 2026
Until #ME & #LC are taken seriously this will keep happening
🕯️🕯️🕯️🕯️
February 3, 2026 at 11:35 AM
Reposted by Alex
ladylettera32.bsky.social
Fuck yah!! 🎉

UBI when??
ubiworks.bsky.social UBI Works @ubiworks.bsky.social · 1d
CANADA NEWS: University of Toronto Family Medicine Chair and basic income advocate Dr. Danielle Martin has been nominated to replace former Deputy PM Chrystia Freeland in upcoming Toronto by-election (University-Rosedale)

The healthcare case for guaranteed income security is overwhelming.
February 3, 2026 at 3:46 AM
admiringbog.bsky.social
I feel like the media called it “the jab” can’t be helping.
February 2, 2026 at 3:20 PM
admiringbog.bsky.social
Really a stunning quote. Framing COVID is terms of individual risk has really cooked people’s brains because everyone is at risk.
February 2, 2026 at 3:14 PM
admiringbog.bsky.social
You’re welcome. Happens to me all the time!
February 2, 2026 at 3:00 PM
admiringbog.bsky.social
Yes it’s Savannah, quoted in this article.
www.thecanary.co/uk/analysis/...
London hospital STILL starving severe ME patient, Savannah — biased medical approach to blame
A South London hospital is still putting severe ME patient Savannah's life at risk and a clinician who psychologises ME might be why.
www.thecanary.co
February 2, 2026 at 2:20 PM
admiringbog.bsky.social
I tend to assume that people who developed #ME/CFS recently got it from #COVID. I need to work on that.

It’s such a funny assumption because I didn’t get ME from COVID.
February 1, 2026 at 4:21 PM
admiringbog.bsky.social
It’s still startling to see public health agency talking like this.
durhamhealthnc.bsky.social Durham County Department of Public Health (DCoDPH) @durhamhealthnc.bsky.social · 26d
We don’t know who needs to hear this, but the flu is getting out of hand. And we needed to make a post about it. Here are our pretty direct thoughts, because sometimes our social media manager/infographic designer is tired & can’t think of a way to put it more gently. Please make good choices. (1/2)
Here’s the thing: Ridiculous numbers of people are getting the flu right now. Cases, hospitalizations, and deaths are reaching or have already reached record-breaking numbers. People of all ages are getting sick, being hospitalized, and dying, even if they had no other health conditions. And lots of people who are “ok” and don’t require hospitalization are feeling terrible and probably wish they were not sick. You should really be trying not to get the flu (and COVID-19 and RSV and more). This means, yes, you should really get vaccinated….Vaccines teach your body how to recognize and respond to the particular viruses they were created for. No amount of washing your hands, eating healthy, sleeping, or exercising can do this for you. Sorry. These are all important for your immune system and other reasons, but they cannot replace the work of vaccines. People of all ages, with or without other health issues, should get vaccinated. Vaccines help prevent infection and severe illness in people of all ages (yes, even kids. Healthy children can and do die from the flu. And most children who die are unvaccinated*). *Sources if you don’t believe us: bit.ly/428YhOU, tinyurl.com/4tmv8km8, bit.ly/mm7241a2. ... and you should wear masks. If you don’t want to get or spread the flu (or COVID-19 or other things) you should really wear masks. Seriously, people. Yes, we know, some of you love them and some of you hate them. But we’re a health agency so we’re here to share the things that work to protect your health. Masks keep you from breathing in, or breathing out into the air, virus particles that make you and others sick, even if you don’t know you or the people around you are sick (and honestly you often won’t know). You should wash your hands frequently, eat healthy foods, and get plenty of sleep, but no amount of any of this is going to keep you from breathing in virus particles in the air. Definitely wash your hands. Please. Viruses can spread in multiple ways, and handwashing helps prevent some of those ways. But you can’t wash away a virus you’ve breathed in. There’s a reason masks often become required again at doctors’ offices and hospitals whenever virus spread gets bad (like now). It’s because they work. Also, it’s very unkind to choose to be unmasked around others if you know you’re sick (and if there’s no reason you can’t wear a mask). For you, maybe it’s “just” the flu or a mild case of another illness, and you don’t care if you’re sick. But for the person you pass it to, it could be: Too much for their body to handle in addition to their chronic illness | The illness they pass to a loved one who has cancer | The reason they are sick on the day of an important life event | A hospital stay for a child | The infection that leads to a disability | Their cause of death. If you are sick, please be kind and stay away from others as much as possible, and wear a mask if you have to spend time away from home. PS: A lot of cases of illness spread by people who don’t have symptoms, so if you want to be even more considerate, it’s a good idea to mask around other people even if you don’t think you’re sick.
February 1, 2026 at 3:45 PM
Reposted by Alex
dcapto.bsky.social
Comic-Con fans, you have the power to get clean air at events that most celebrities don’t because of their “contractual restrictions, such as non‑disparagement clauses” that limit what they can publicly say about exposure or illness. You love their characters, protect them, YOU & all from viruses ✊😷
Screenshot from linked article in quote post: Fandom is not just a consumer base, it is an affective economy that platforms and studios actively mine for revenue. That emotional investment, when organised, can become leverage. The same online infrastructure used to amplify loyalty and drive monetisation can also be used to demand transparency, accountability and shift norms around health and safety. Fans have the potential to act as one of the most-if not the most-effective power base within platform capitalism, not just to protect one another and below-the-line workers, but to model care for the performers they admire.
February 1, 2026 at 2:39 PM
Reposted by Alex
andreastudiescovid.bsky.social
I was just thinking today that there should be a database of all of us who got COVID in 2020. They need to compare it to the general population. What are we dying from, and at what age? I feel like an hourglass that's running out of sand. ⏳🦠⏱️
dcapto.bsky.social DCapTO @dcapto.bsky.social · 3d
And Covid is still causing millions more deaths thru heart attacks & strokes, and more slowly thru liver disease, organ damage, cancer etc—with no acknowledgment to their connection to Covid. Most people will never know as long as Public Health is muzzled by govts protecting economy instead of us 😷
mcollinsmorton.bsky.social Michael Collins Morton @mcollinsmorton.bsky.social · 21d
Since 2020, at least 27 million people have perished from Covid-19, with the actual number probably being much higher.

#COVID19 #mortality
February 1, 2026 at 9:58 AM
Reposted by Alex
veganmua.bsky.social
Please use this template to advocate for Savannah, a #SevereME patient in grave danger, being mistreated in Queen Elizabeth hospital Lewisham! #SevereMErgency #pwME #MECFS scroll to bottom for short email for low energy www.reddit.com/r/cfs/s/sVmw... pls share #saveME #CanYouSeeMEnow
Chronic Fatigue Syndrome / Myalgic Encephalomyelitis
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue ...
https://reddit.com/r/cfs/s/6v2njz…
January 31, 2026 at 6:25 PM
Reposted by Alex
nlizaki.bsky.social
‼️ 🚨 Emergency funding update for Nevra 🚨 ‼️

Nevra is currently in hospital, which costs £260 GPB/day. Please help Nevra access life saving treatments. If you can't donate, please like, comment, or share!

PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra
‼️ 🚨 Emergency funding update for Nevra 🚨 ‼️ Screenshot from @ quella_the_dizzy_octopus on Instagram Nevra is currently in hospital awaiting doctors and specialist to review her condition. Ideally we want the hospital stay to be a long one. As discharging and coming back for short term stays is dangerous exertion for Nevra. However, it costs £260 GPB/day. It is essential we do our best to keep Nevra's GFM in cash flow so they don't discharge her unecessarily + before she accesses life saving treatments. As Nevra has very severe ME and is immunocompromised she is in a private room- which is lovely and warm and mould free!!
February 1, 2026 at 2:17 AM
Reposted by Alex
drelke.bsky.social
When will it become normal in the service of public education for articles extolling the benefits of exercise for ‚everyone‘ to acknowledge that there is a group of people for whom exercise is detrimental?

My guess is never.

#LongCovid
#ME
January 31, 2026 at 2:50 PM
Reposted by Alex
sabinehermisson.bsky.social
🖤🕯️
#MECFS #SevereME
Blaue Rose mit dem Namen Samuel und dem Todesdatum 30.1.2026
January 31, 2026 at 5:45 AM
Reposted by Alex
chromatowski.bsky.social
Long Covid friends—

A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled.

The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed!

More info:
Sign the Petition
Advocate for Maryland HB 0027 for Long COVID R&D
www.change.org
January 30, 2026 at 8:21 PM
admiringbog.bsky.social
Proponents of “body-mind” theories will usually defend themselves by saying that they think ME is a real illness and not purely psychological. And that’s exactly what the doctors starving Savannah are saying.

#ME/CFS #saveSavannah
They just say they don't believe it's psychological. They say they think it's a real chronic illness. They just...won't feed, hydrate, medicate, treat, listen to or help me.
January 30, 2026 at 9:33 PM
admiringbog.bsky.social
Unsurprising, Savannah’s doctor is a GET quack.
On Monday, Savannah reported that the reason for this persistent gaslighting seemed to finally fall into place. A staff member mentioned Dr Gerald Coakley - a rheumatologist who worked at QEH for over 20 years (until 2023). Coakley is another Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) proponent. He has practiced these at his private 'Fatigue Clinic London' since 2007.
January 30, 2026 at 9:20 PM
Reposted by Alex
veganmua.bsky.social
London hospital STILL starving severe ME patient, Savannah — bias medical approach to blame www.thecanary.co/uk/analysis/... #MECFS #pwME #LongCovid #SevereME
London hospital STILL starving severe ME patient, Savannah — bias medical approach to blame
A South London hospital is still putting severe ME patient Savannah's life at risk and a clinician who psychologises ME might be why.
www.thecanary.co
January 30, 2026 at 9:02 PM
admiringbog.bsky.social
What do they mean by “This insight could reshape public health messaging for FUTURE pandemics.” The article repeatedly states that this information is to be saved for future health messaging—nothing that’s needed now. 😭

open.substack.com/pub/johndupu...
Catching Covid on a plane, Who knew cleaning the air cuts transmission, Phil Collins everything could go wrong, and more
Bonus Long Covid and chronic absenteeism
open.substack.com
January 30, 2026 at 4:24 PM
admiringbog.bsky.social
I love how tsa will act like they’ve never been intense and terrifying in the past.
January 30, 2026 at 1:19 AM
admiringbog.bsky.social
Me double checking the date of the nyt interview because it’s stunning stuff to be publishing now.
joho.bsky.social Jonathan Howard @joho.bsky.social · 5d
Guy who said we basically had herd immunity and covid was seasonal in May 2021, right before Delta, blames others for the lack of trust.

youtu.be/gJZMw2zD3eA
January 29, 2026 at 8:21 PM
Reposted by Alex
donoharmbc.bsky.social
Good news - WorkSafeBC has announced that when the newest edition of CSA standard Z94.4 comes out, they’ll review it for future updates to BC’s workplace safety regulations.

This means we’re one step closer to getting up-to-date rules about workplace N95 use and airborne transmission into BC law!
donoharmbc.bsky.social DoNoHarm BC @donoharmbc.bsky.social · Sep 15
ADVOCACY OPPORTUNITY: WorkSafeBC is revising some regulations, including its standard on respirators! However, it plans to use an outdated edition on N95s.

Background and how you can help 🧵:
An illustration of three masked workers. Text reads, "Tell WorkSafeBC to use the newest standard for N95s and other respirators. Give written feedback by September 26, 2025. Register for the virtual public hearings on Sept. 24." More info and talking points: DoNoHarmBC.ca
January 29, 2026 at 2:18 AM
Reposted by Alex
dylantus.bsky.social
Video shows ICE leaving behind an infant and broken glass after arresting a man with no criminal history.
“There was a car seat in the back... There were broken glass shards all over it... There was just this tiny peanut of a baby. He was crying.”
My latest: www.pressherald.com/2026/01/28/i...
ICE agents shatter window, leave 1-month-old baby, mother in car after Portland arrest
Video shows federal immigration agents leaving behind an infant and broken glass after detaining a Guinean immigrant with no known criminal history.
www.pressherald.com
January 29, 2026 at 6:05 PM