Elke Hausmann
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drelke.bsky.social
Elke Hausmann
@drelke.bsky.social
370 followers 420 following 1.1K posts
German, English, Spanish
Sociology, Medicine, General Practice
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drelke.bsky.social
Elke Hausmann @drelke.bsky.social · Jul 24
It’s a lengthy read, but that’s what we‘ll get to:

‚We need a greater recognition from society and politics of what the Covid virus can do to bodies, long-term.

Above all, what we need is liberation from judgements.‘

#LongCovid
bjgp.bsky.social BJGP @bjgp.bsky.social · Jul 24
BJGPLife: Long Covid and the body: can we move beyond judgements?
bjgplife.com/long-co...

#GeneralPractice #PrimaryCare #FamilyMedicine
drelke.bsky.social
Brilliant - the profound versus the profane 😂

www.theguardian.com/travel/2025/...
As the mob approaches, a shed door creaks open behind me, and a dragon-prowed, glacial blue longship emerges, pulled on ropes by a team dozens strong. This beautiful galley will be paraded through the streets of Lerwick today before being ritualistically set ablaze - the centrepiece of Up Helly Aa, Shetland's riotous fire festival. As an act of ritual destruction it evokes the sand mandala, the Tibetan Buddhist practice of creating ornate cosmological artworks only to sweep them away as a metaphor for non-attachment and impermanence. "It's a symbol of renewal," says Lyall Gair, who has led the Up Helly Aa procession in years past and retains an impressive, Viking-worthy beard. A man standing next to us in the crowd has an alternative explanation. "There's fuck all else to do around here all winter," he says, shivering against the morning breeze.
January 2, 2026 at 7:55 AM
drelke.bsky.social
More on integrity in public life…

www.theguardian.com/us-news/2026...
• What I don't have in experience, I make up for in integrity. And what you don't have in integrity, you could never make up for with experience.
January 2, 2026 at 7:47 AM
Reposted by Elke Hausmann
tomkindlon.bsky.social
Interesting finding from #LongCovid study by a CDC team

“Our finding that a lower MVPA [moderate-vigorous physical activity] level was associated with more improvements in outcomes in the long-term seems to suggest some benefit from reduced activity.”

formative.jmir.org/2025/1/e77644

#PostCovid
Characterization of Post-Viral Infection Behaviors Among Patients With Long COVID: Prospective, Observational, Longitudinal Cohort Analyses of Fitbit Data and Patient-Reported Outcomes
Background: Long COVID encompasses a range of health problems that can be highly debilitating. While some research has relied on self-reported measures of symptoms and functioning, few studies have ch...
formative.jmir.org
January 1, 2026 at 10:36 PM
drelke.bsky.social
Respect. Declining an offer of personal recognition and using it to highlight the plight of disabled people, many of whom have no voice. That’s integrity. We need so much more of it in public life.

Disability charity chief condemns UK government as she rejects MBE www.bbc.co.uk/news/article...
Disability charity chief condemns UK government as she rejects MBE
Tressa Burke, chief executive officer of the Glasgow Disability Alliance, says the situation facing disabled people in the UK is
www.bbc.co.uk
January 2, 2026 at 6:22 AM
drelke.bsky.social
The ‚choices‘ Americans have to make in relation to healthcare insurance. ‚Choosing‘ not to pay for healthcare insurance ‚we barely use‘ - in effect gambling that you won‘t get ill. Anyone can get ill. Terrifying.

Americans brace to start New Year without healthcare www.bbc.co.uk/news/article...
"So many people are going to choose to be uninsured because it's cheaper to pay a penalty for being uninsured than it is to have healthcare," she said. For Ms Bannister's family, the increased cost of healthcare means putting off other spending: "We were saving for a home, and saving money for that is going to take way longer if we have to spend $11,000 a year on healthcare that we barely use."
January 2, 2026 at 5:55 AM
Reposted by Elke Hausmann
neurostingl.bsky.social
Beginnen wir 2026 mit der wiederholten Erinnerung an die Stakeholder, dass #MECFS eine in allen Aspekten beeinträchtigende Erkrankung ist.

Manche medizinische, präventive und soziale Maßnahmen könnten aber schon *jetzt* helfen.

Man muss nur wollen.

journals.plos.org/plosone/arti...
Sustained illness burden over time among Australians with myalgic encephalomyelitis/chronic fatigue syndrome
Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling chronic illness. Many people with ME/CFS (pwME/CFS) are unable to continue employment and require support to compl...
journals.plos.org
January 1, 2026 at 9:21 AM
Reposted by Elke Hausmann
tomkindlon.bsky.social
A big thank you to everyone who did anything, big or small, for the Myalgic Encephalomyelitis / Chronic Fatigue Syndrome +/or Long Covid cause in 2025 (including simply sharing messages on social media). 👏

Together we can make a difference. 👍

#MEcfs #LongCovid
Image showing “thank you” in lots of different languages
December 30, 2025 at 2:49 PM
Reposted by Elke Hausmann
mecfsskeptic.bsky.social
1) We’ve just published our review of the most interesting ME/CFS studies of 2025.

It feels like this year, we’ve made a significant step towards understanding the pathophysiology of ME/CFS.

A brief overview of the studies that caught our eye.
December 30, 2025 at 11:02 AM
drelke.bsky.social
#LongCovid
#ME
darthfoo.bsky.social Fred Rossi @darthfoo.bsky.social · 7d
“I am aware that I am arriving late to a story others have been living for decades. I am aware that much of what helps me now exists because others endured without recognition, without support, and without relief. Being welcomed into that shared knowledge carries weight.”
December 27, 2025 at 9:51 AM
drelke.bsky.social
For me as a ‚foreign medic‘, one of the most rewarding aspects of working in the NHS has been the opportunity to meet people from around the world. Where else do you get such direct exposure to so many other cultures. Shame on those who want to destroy all that.

www.theguardian.com/society/2025...
Foreign medics shunning NHS because of anti-migrant rhetoric, says top doctor
Exclusive: UK now an ‘unwelcoming, racist’ country for overseas health workers, according to medical colleges leader
www.theguardian.com
December 27, 2025 at 9:22 AM
drelke.bsky.social
#LongCovid
"The way our culture approaches stuff like (the pandemic), it's like: 'Are we done yet? Are we done yet? Can we move on?' That's just not how life works," she said. • "There's this desire to have closure and understanding, and that's, in my mind, kind of a fantasy."
December 27, 2025 at 6:40 AM
drelke.bsky.social
Not directly about #LongCovid, but relevant…

www.theguardian.com/lifeandstyle...
Quote from article: In my vertigo-addled state, I attempted to explain all of this to the doctor. I wasn't claiming I had been dragged into a dastardly spy plot. More, I wondered if somehow I had imagined myself into sickness. Could something a person had read about take possession of their body? When I finished this spiel, she looked at me politely, said, "Right, yes," and explained it wasn't an unusual affliction. The pills should do the trick after a week, she told me, and if it happened again I would need vestibular physiotherapy. Interesting article from a patient's point of view showing how vulnerable patients are to suggestions that their illness could have been generated by their mind - patients want to know WHY they are ill. Even more important that particularly doctors are not promoting these kinds of ideas, but are clear that a lot of illness just happens (and if it happens to many people at once, the culprit is NEVER ,mass hysteria'!)
December 26, 2025 at 5:41 AM
Reposted by Elke Hausmann
tomkindlon.bsky.social
Elke Hausmann @drelke.bsky.social on Exercise and “The Salt Path”

bjgplife.com/what-does-th...

Screenshot from AMMES December 2025 newsletter

#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Image of a woman running on a road Elke Hausmann on Exercise and “The Salt Path” Our societal bias that exercise can only ever heal, never harm, is incredibly pervasive. It is playing out right now in how we understand and discuss Long Covid, and as we have done in relation to ME for decades. I think one of the main reasons for why we are no further in finding a cure for those conditions is that so many don’t believe that exercise can ever harm. Read more here>>
December 21, 2025 at 1:36 AM
Reposted by Elke Hausmann
covidmemorialwall.bsky.social
After a hard day's work putting up the Christmas lights - the reward! Turning them on.

We will never forget our lost loved ones. ❤️
December 20, 2025 at 5:33 PM
drelke.bsky.social
Reading this excellent book by @bmhughes.bsky.social , particularly Part III is highly recommended to anyone with an interest in #LongCovid and #ME, with @georgemonbiot.bsky.social getting more than one mention 🙏
Book Cover: PSYCHOLOGY'S QUIET CONSERVATISM How a Supposedly Woke Science Promotes Capitalism and Protects Privilege BRIAN M. HUGHES Extract from Contents page: 12 Psychology's Conservative Paradigms 93 13 From Conservative Past to Neoliberal Present 109 Part III Psychology, Capitalism, and Human Welfare 111 14 Hierarchies and Hysteria 113 15 The Contrivance of Capitalist Minds 119 16 Capitalist Psychology 125 17 The Capitalist Denial of Illness 133 18 'Personality Is Bad for You' 137 19 The Psychologising of the Sick 141 20 Unidentified Psychic Objects 151 21 Pathology and Protectionism
December 20, 2025 at 7:39 PM
Reposted by Elke Hausmann
mecfsskeptic.bsky.social
1) This factsheet for medical professionals received a lot of response and discussion.

Some people felt it was dismissive of several findings in the ME/CFS field, so I want to give some more background and context.
mecfsskeptic.bsky.social ME/CFS Science @mecfsskeptic.bsky.social · 18d
1) New factsheet: ME/CFS - information for medical professionals (6 pages).

Written by Prof. Emeritus Jonathon Edwards and members of the Science for ME forum. A valuable text, useful to bookmark. A couple of quotes from key paragraphs 👇
December 18, 2025 at 12:09 PM
Reposted by Elke Hausmann
greendarrenshipley.bsky.social
This time last year I lost my job due to #LongCovid.

Unsurprisingly it was an extremely difficult time.

I'd worked for the NHS as a Learning Disability Nurse for 20yrs.

Long Covid ended my career.

It also drastically altered my life.

Some reflections 👇
December 18, 2025 at 1:58 PM
Reposted by Elke Hausmann
neurostingl.bsky.social
Dass im Dt. Ärzteblatt ohne Einordnung veraltete Meinungen zu GET und CBT bei #MECFS gebracht werden, hat eher was mit Eminenz als Expertise zu ME/CFS zu tun.

Das ist wider jede moderne Leitlinie und sollte 2025 nicht mehr passieren.

www.aerzteblatt.de/archiv/titel...
Rehabilitation: Ist eine Reha bei ME/CFS sinnvoll? – Deutsches Ärzteblatt
www.aerzteblatt.de
December 19, 2025 at 4:35 PM
drelke.bsky.social
The genocide of Europe's elderly Jews went "to the heart of what Nazi ideology was about," says Stone, "which is the elimination of the weak and the elimination of people who represent the values of a community."
December 19, 2025 at 4:37 PM
drelke.bsky.social
#LongCovid
#ME

Oh und die Hoffnung! Wir wollen den Leuten ja nicht die Hoffnung nehmen!
Zusammenfassung: PEM kann nicht mehr ignoriert werden, wird aber so umgedeutet, dass es kein Hindernis mehr für Rehabilitation ist, pacing wird missverstanden als etwas, was man Patienten machen lässt (pacing up??), man kann sich nicht davon trennen, dass da eine psychische Komponente sein muss (wie kann es nur sein, dass die Menschen einfach nicht gesund werden - klar, ist ein psychisches Problem!) - diese Männer haben nichts verstanden!
December 19, 2025 at 4:05 PM
Reposted by Elke Hausmann
bhanlon15.bsky.social
Science Direct: "Recommended long COVID outcome measures and their implications for clinical trial design, with a focus on post-exertional malaise"

By Letícia Soares, Hannah Davis, Ezra Spier, Tiffany Walker, Todd Davenport, David Putrino, Michael Peluso & ...

www.sciencedirect.com/science/arti...
Recommended long COVID outcome measures and their implications for clinical trial design, with a focus on post-exertional malaise
Long COVID has created a worldwide public health crisis and has no approved treatments or validated biomarkers. We summarize the current challenges an…
www.sciencedirect.com
December 19, 2025 at 3:19 PM
Reposted by Elke Hausmann
sueponcin.com
Welcome to living with a dynamic disability compliments of Long Covid.

Sometimes I can walk, sometimes I need a cane, sometimes I need a wheelchair, sometimes I can’t move at all.

Talk about a mind-fuck.

What I don’t need is to worry about being judged.

dynamically-disabled.printify.me
Front of a black tee with a baseball-ish type logo Dynamically Disabled in all caps A tail off the last letter with the chronic condition - this version is “Long Covid”
December 19, 2025 at 2:52 AM
drelke.bsky.social
A new line of attack on disabled people. First BJ in the Daily M***, now this.

More of us are disabled. Some of us, because of deliberate policy decisions. So they‘re starting to notice.

But the reaction is not: we’re sorry, how can we help now? The reaction is: you are all fakers!

#LongCovid
niais.bsky.social Sarah Tuttle @niais.bsky.social · 14d
YOU DUMB FUCKS. THIS IS ME.

I have a scooter. I can walk. I can't, however, walk through 80 miles of airport. I can walk onto an airplane or through hallways. I can't walk the .5 mile to the convention center.

People, get smarter, it's embarrassing at this point.
wsj.com The Wall Street Journal @wsj.com · 15d
Travelers bemoan a rise of able-bodied passengers who game the system to skip the lines. on.wsj.com/3N6apva
December 19, 2025 at 6:54 AM
drelke.bsky.social
#LongCovid
#ME
The minutes of a recent All-Party Parliamentary Group meeting highlighted the stark reality of this situation, when a respiratory consultant detailed a case of an 18-year-old who has been bedbound for nearly 3 years due to long COVID and myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS).? Fed through a tube and unable to sit up for more than a few minutes without losing consciousness, they have no regular NHS support apart from occasional contact with a general practitioner (GP) and dietician. As one of my interviewees, also living with ME/CFS, put it: 'to have your life absolutely turned upside down and kind of be left, really. it's just really awful and could be so much better, and should be so much better'.
December 17, 2025 at 5:48 PM
drelke.bsky.social
#GeneralPractice
Conclusion There is no evidence that using Google Translate to synchronously communicate medical information to refugees and migrants has been tested for patient safety, highlighting potential for translation inaccuracies impacting patient safety. In clinical settings, where the high stakes of failure are ever-present, such inaccuracies can result in misdiagnosis, inappropriate treatment, and serious harm.
December 17, 2025 at 1:44 PM