Elke Hausmann
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drelke.bsky.social
Elke Hausmann
@drelke.bsky.social
340 followers 390 following 990 posts
German, English, Spanish
Sociology, Medicine, General Practice
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drelke.bsky.social
Elke Hausmann @drelke.bsky.social · Jul 24
It’s a lengthy read, but that’s what we‘ll get to:

‚We need a greater recognition from society and politics of what the Covid virus can do to bodies, long-term.

Above all, what we need is liberation from judgements.‘

#LongCovid
bjgp.bsky.social BJGP @bjgp.bsky.social · Jul 24
BJGPLife: Long Covid and the body: can we move beyond judgements?
bjgplife.com/long-co...

#GeneralPractice #PrimaryCare #FamilyMedicine
Reposted by Elke Hausmann
medidier.bsky.social
#FundThePlan! The price of inaction will be much worse on this. Autoimnunity will only grow in time...

@ashleydaltonmp.bsky.social
November 14, 2025 at 8:37 AM
drelke.bsky.social
England, UK - please follow Germany‘s lead!!!

#LongCovid
#ME
medidier.bsky.social Didier @medidier.bsky.social · 2h
Germany. In 4 years. From absolutely nothing, to world leader in this space. Also in terms of framing, not only money and funding.

When there is a will, there is a way.
It can be done. (Most intelligent long-term investment ever as well).

THANK YOU.
abrokenbattery.bsky.social Adam @abrokenbattery.bsky.social · 3h
Germany pledges €500 million for research through the “National Decade Against Post-Infectious Diseases” (2026-2036), including #MECFS and #LongCOVID.

Addressing what they call “one of the greatest public health challenges of the 21st century.”

www.zeit.de/politik/deut...
November 14, 2025 at 8:33 AM
drelke.bsky.social
Ich kann zwar nicht einschätzen, ob das genug Geld ist, um das hinzukriegen, aber alleine, dass unser Leid anerkannt wird, dass man da was machen will, dass ich wieder hoffen darf, dass vielleicht, vielleicht in 10 Jahren diese Hölle vorbei sein könnte - das ist BIG!

#LongCovid
#ME
Heilung soll bis Mitte der 2030er-Jahre möglich sein In einem Eckpunktepapier der Koalition, das dem Spiegel vorliegt, bezeichnen der frühere Gesundheitsminister Karl Lauterbach (SPD) und der CDU-Abgeordnete Stephan Albani die Erkrankungen als "eine der größten gesundheitspolitischen Herausforderungen des 21. Jahrhunderts" '. In Deutschland seien mehr als 1,5 Millionen Menschen betroffen, vor allem durch die vielen Fälle nach der Coronapandemie. Nach Angaben von Lauterbach sind für 2026 im Bundeshaushalt 15 Millionen Euro für die Erforschung der Krankheiten vorgesehen. "Von 2027 bis 2036 geben wir jedes Jahr 50 Millionen Euro aus", zitiert der Spiegel Lauterbach. Damit könne Deutschland zum Vorreiter im Kampf gegen Long Covid und ME/CFS werden, sagt er. Das Ziel müsse sein, die Diagnose und Behandlung der Erkrankungen so weit zu erforschen, dass sie bis spätestens Mitte der Dreißigerjahre geheilt werden können.
November 14, 2025 at 8:32 AM
Reposted by Elke Hausmann
tomkindlon.bsky.social
British Psychological Society (BPS) ME/CFS Guidelines October 2025 Update

meassociation.org.uk/wp-content/u...

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

1/
3 logos: the British Psychological Society Action for ME ME Association British Psychological Society (BPS) ME/CFS Guidelines October 2025 Update Welcome to the second BPS ME/CFS Guidelines update. We’ve made some great progress since last time. We had such a huge response to the survey that we have secured funding from the BPS Division of Clinical Psychologists and recruited an Assistant Psychologist to help us process the data. Hopefully we’ll be able to include more about that in our next update. We can’t share too much just yet as we’re planning to write a research paper to share your views with the wider community and it could affect our chances of getting it published. Your comments have been really useful to help us shape the guidelines. We’re including lots of quotes like the ones below.
November 13, 2025 at 1:29 AM
Reposted by Elke Hausmann
scribblerpen.bsky.social
Doctors who had contracted #Covid after working without PPE in the pandemic and have developed #LongCovid are still denied justice and support. And doctors are *still* working without PPE in the #NHS, they are still catching Covid, developing LC.
Via @bma.org.uk
thedoctor.bma.org.uk/articles/lif...
Long Covid – the fight for justice
The first scandal was that doctors were exposed to COVID due to failings in government PPE provision. The second was that those with Long Covid have been denied the support they need, causing huge fin...
thedoctor.bma.org.uk
November 13, 2025 at 11:20 AM
Reposted by Elke Hausmann
rcn.org.uk
Alongside @bma.org.uk, we've written to the Secretary of State for Work & Pensions urging Long COVID and severe post Covid-19 complications be recognised as an industrial disease.

This change would ensure health and social care workers with Long COVID can access the financial support they need.
November 13, 2025 at 11:37 AM
Reposted by Elke Hausmann
dramysmall.bsky.social
We continue to fight for people who got sick at work during a pandemic.
#longcovid has not gone away.

I started this fight in 2020 and I'm not giving up. 💪
bma.org.uk The BMA @bma.org.uk · 1d
Health and care workers worked tirelessly throughout the COVID-19 pandemic to care for their patients, yet many were not adequately protected.

Together with the @rcn.org.uk we are calling on the UK Government to take a first step in recognising Long COVID as an occupational disease.
Today, the BMA and RCN have written to the Secretary of State for Work and Pensions, Pat McFadden, to urge the Government to accept the recommendations of the Industrial Injuries Advisory Council as a first step to recognising Long Covid as an occupational disease. Today, the BMA and RCN have written to the Secretary of State for Work and Pensions, Pat McFadden, to urge the Government to accept the recommendations of the Industrial Injuries Advisory Council as a first step to recognising Long Covid as an occupational disease.
November 13, 2025 at 1:32 PM
drelke.bsky.social
#LongCovid
"I want other people to realise that this actually is quite life changing and it's quite serious, I couldn't be independent now whereas before I was a very independent person," said Ms Lunt Davies. In a recent open letter to health secretary Wes Streeting, Long Covid SOS called for the government to "get [the] Long Covid crisis on the health agenda" and fund further research.
November 13, 2025 at 4:47 PM
drelke.bsky.social
The growth in support for the Greens and Zohran Mamdani's recent mayoral victory in New York suggests voters are beginning to question the idea that positive change is unattainable. Policies that are dismissed by the establishment as radical and unworkable, from rent controls to nationalised energy (both of which the majority of Britons support), are seen by much of the public as mainstream and logical. That's the thing about the narrative that Britain is falling apart. There are indeed many problems facing the country. But rather than immigrants and disabled people, the culprit is a social and economic structure that needs transforming. Most voters don't need convincing the system is broken - they need inspiration that it can be fixed. The ideas dismissed as "undeliverable" are the very ones we most require.
November 12, 2025 at 7:06 PM
Reposted by Elke Hausmann
atranscendedman.bsky.social
Germany’s Schön Klinik surveyed 3,345 people with long COVID.

Only 36% saw improvement after nearly 3 years of symptoms.

Almost 90% were on long-term sick leave and 97% rated their care as poor or very poor.

www.thieme-connect.de/products/ejo...
Thieme E-Journals - Pneumologie / Abstract
Thieme E-Books & E-Journals
www.thieme-connect.de
November 12, 2025 at 4:15 PM
Reposted by Elke Hausmann
bma.org.uk
Health and care workers worked tirelessly throughout the COVID-19 pandemic to care for their patients, yet many were not adequately protected.

Together with the @rcn.org.uk we are calling on the UK Government to take a first step in recognising Long COVID as an occupational disease.
Today, the BMA and RCN have written to the Secretary of State for Work and Pensions, Pat McFadden, to urge the Government to accept the recommendations of the Industrial Injuries Advisory Council as a first step to recognising Long Covid as an occupational disease. Today, the BMA and RCN have written to the Secretary of State for Work and Pensions, Pat McFadden, to urge the Government to accept the recommendations of the Industrial Injuries Advisory Council as a first step to recognising Long Covid as an occupational disease.
November 12, 2025 at 1:08 PM
Reposted by Elke Hausmann
atranscendedman.bsky.social
England’s top medical unions warn it’s unacceptable that Long COVID still isn’t classed as an occupational disease.

Three years after official advice, frontline health workers are still waiting for recognition and financial support.

www.bma.org.uk/bma-media-ce...
‘Unconscionable’ that the Government has not recognised Long COVID as an occupational disease, warns BMA and RCN - BMA media centre - BMA
Press release from the BMA. 
www.bma.org.uk
November 12, 2025 at 4:25 PM
Reposted by Elke Hausmann
bhanlon15.bsky.social
Systrom: "Many of us in the field..believe that ME/CFS is often, but not always..post-infectious..for not totally clear reasons, there is autoimmunity, which may run amuck on overdrive with associated inflammation...then downstream.those pathways, we think there are some issues with oxygen supply.."
November 11, 2025 at 5:44 PM
Reposted by Elke Hausmann
pflegeherz.bsky.social
1/1 Argumentationsgrundlage zur Post-Exertionellen Malaise (PEM):
Evidenzbasierte Grundlage zur medizinischen und sozialrechtlichen Bewertung von ME/CFS.

www.millionsmissing.de/argumentatio...
Argumentationsgrundlage zur Post-Exertionellen Malaise (PEM)
NEU: Evidenzbasierte Argumentationsgrundlage zur Post-Exertionellen Malaise (PEM) – dem krankheitsdefinierenden Mechanismus von ME/CFS. Handout & Blog bündeln aktuelle Wissenschaft (u. a. D-A-CH, NICE...
www.millionsmissing.de
November 11, 2025 at 8:50 AM
Reposted by Elke Hausmann
drrachelclarke.com
"The hard truth about underfunding palliative care is that people who are at their most vulnerable – the dying – suffer more pain, more indignity, less choice & less autonomy than they might have."

Incredibly, only 30% of hospice care is NHS funded.

Pls read my piece in today’s @theguardian.com.
Photo of Rachel’s piece in print, link to online version in next post
November 11, 2025 at 1:05 PM
Reposted by Elke Hausmann
longcovidadvoc.com
💚 OPEN LETTER TO @zackpolanski.bsky.social 💚

Long Covid is a crisis being silenced. Government denial is harming lives & livelihoods.

We call for bold system change: patient-led care, biomedical research, centres of excellence & hope for those left behind.

Full open letter 👇
Open Letter to Zack Polanski from Long Covid Advocacy (Nov 11, 2025). The letter congratulates Polanski (Greens) for his voice on clean air and Long Covid, noting his commitment to systemic change resonates with their work. It states people with infection-associated chronic illness (Long Covid, ME) face deep inequality in treatment and care due to fragmented services and widespread disbelief. This requires structural change, similar to the climate crisis, demanding honesty, evidence, and reform. Long Covid Advocacy calls for BOLD POLITICS to champion: * Co-produced, trauma-informed NHS care for severe ME/Long Covid. * Quality, evidence-based medical education. * Biomedical research and patient-developed RECOVERY-style trials. * Centres of Excellence. * Public health leadership connecting clean air, infection control, and equitable care. They ask Polanski to help drive compassionate system change—a shift towards justice, science, and care—to restore hope.
November 11, 2025 at 11:11 AM
Reposted by Elke Hausmann
longcovidadvoc.com
🔬🧠Brain‑training games for LC cognitive dysfunction? The RECOVER‑NEURO trial shows they don’t address the underlying pathology. Games can’t fix inflammation, microvascular issues, or neuro‑immune dysfunction - we need interventions that understand the biology not candy crush 🍭
November 10, 2025 at 9:25 PM
Reposted by Elke Hausmann
rippermd41.bsky.social
A long excerpt from this 1987 interview with Beth Bighley, a patient with chronic EBV, now known as #MECFS

This could’ve been written by someone last year with #LongCovid and/or ME.

“My parents' reaction was one of relief that I did have something physically. But also frustration, 1/
rfh1955.bsky.social Royal Free 1955 @rfh1955.bsky.social · 6d
The Olathe Daily News, Kansas, US. Thirty-eight years ago today - 8th November 1987.

A relatively early reference to 'chronic fatigue syndrome' in the US press.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 8, 2025 at 11:48 PM
drelke.bsky.social
‚But when the unproven theory can‘t deliver on the claims, then what?‘

#ME
Perhaps part of why psychologically-based rationales for disease can be widely accepted is because the harm this can do is underappreciated. Miller et al argued that their narrative inspires hope, and people with severe ME/CFS deserve that. But when the unproven theory can't deliver on the claims, what then? In a study Miller et al cited, researchers found that being told the disease was psychosomatic was the most common reason for suicidal thoughts for people with ME/CFS. [9] It's not the first study to suggest that being told they are effectively to blame for not recovering is a contributing factor to the increased risk of suicidality in people with ME/CFS. [10] A critical part of hope for people suffering illness is being able to trust that the medical community will work objectively to find better treatments and ways to support them, rather than promote unproven theories. People with ME/CFS deserve better than being told that their minds can overcome what's the matter with their bodies - if only they try hard enough, for long enough.
November 9, 2025 at 6:30 AM
Reposted by Elke Hausmann
spichaksimon.bsky.social
In a statement, CBC told me:

"After reviewing the interview, we concluded that it needed to be re-edited and re-posted to include further context and questions around the procedure and treatment Deacon experienced. That has now been done."

Will update the story with this soon.
spichaksimon.bsky.social Simon Spichak @spichaksimon.bsky.social · 13d
Earlier this week, the CBC broadcast an interview with Gill Deacon, discussing her Long COVID recovery using brain retraining.

They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.

simonspichak.beehiiv.com/p/cbc-flagsh...

1/n
CBC’s Flagship Program Platforms “Quackery” for Long COVID
CBC's national broadcast aired an interview with Gill Deacon about her Long COVID recovery. Deacon used an unproven program called the Lightning Process that's been criticized for exploiting patients ...
simonspichak.beehiiv.com
November 7, 2025 at 7:17 PM
Reposted by Elke Hausmann
nisreenalwan.bsky.social
Unlike politics, there’s no such thing as public health centrism. It’s evidence-based radicalism. It’s all about change towards health justice and equity, not tinkering around the edges trying to keep everyone happy. Such notions, my friends, are rather radical and there’s no shame in that.
November 8, 2025 at 9:47 AM
drelke.bsky.social
Get your flu jab ASAP this year - if you’re not eligible on the NHS, it‘s thankfully much cheaper privately than the COVID vaccine.

Appointment today ✅
cvcev.bsky.social Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 5d
🧵 This autumn the UKHSA is rightly worried, as 'flu is a real risk...

TLDR:
Clinically Vulnerable people ALL need 'flu vaccines + antivirals this year (if symptomatic or exposed) + confused infection control guidance.

If you are Clinically Vulnerable, please read on...

1/
Graph showing the early rise of flu in the UK.
November 8, 2025 at 2:44 PM
Reposted by Elke Hausmann
toveharris.bsky.social
1/2 Vielleicht ein Hörtipp?
"Die teure Epidemie – Wie Long Covid und ME/CFS die Gesellschaft belasten"

#LongCOVID kommt übrigens von #COVID19, der Krankheit, die SARS-CoV-2 (auch gern verniedlichend "Corona" genannt) auslöst. Und #COVID ist nicht vorbei.

#MECFS

www.swr.de/swrkultur/wi...
Die teure Epidemie – Wie Long Covid und ME/CFS die Gesellschaft belasten
1,5 Mio. Menschen in Deutschland haben Long Covid oder ME/CFS. Das erzeugt nicht nur Leiden, sondern auch hohe Kosten für die Gesellschaft.
www.swr.de
November 7, 2025 at 9:06 PM
Reposted by Elke Hausmann
longcovidadvoc.com
🧵 Important new study out in Cell Reports Medicine (Shahbaz et al. 2025):
👉 Long Covid with ME/CFS isn’t the same in women and men - biologically.
👉 And it’s not “fatigue.” It’s immune, hormonal, and neurological chaos.

Let’s break it down layperson style 👇
A young woman sits on the edge of her bed in a slightly cluttered room decorated with string lights. She is wearing a tank top and shorts and looks pensive or unwell. The text on the image reads "LATEST RESEARCH," "LONG COVID," "SEX SPECIFIC DIFFERENCES," and below the image, "Long COVID patients with ME/CFS show sex-specific immune, hormonal, and neuroinflammatory disruptions, with women exhibiting stronger inflammation, gut dysfunction, cognitive gene changes, and lower testosterone/cortisol." The source is listed as "Shahbaz et al 2025, Cell."
November 8, 2025 at 11:47 AM
Reposted by Elke Hausmann
neurostingl.bsky.social
Man muss sich bei #MECFS vom Hilflosigkeitsnarrativ lösen, das manche Stakeholder vor sich herschieben, um sich vor der Verantwortung einer normalen Versorgung zu drücken.

"Man weiß zu wenig", um systematische Angebote zu schaffen, ist letztlich vor allem eines: lächerlich.

1/7
November 8, 2025 at 12:20 PM