Michiel
LightNews LightNews
banner
murtoz.bsky.social
Michiel
@murtoz.bsky.social
910 followers 2.4K following 2.6K posts
Dutchman in Scotland. Lounge based Landscape Photographer. Medically Retired Hardware Engineer. Tired Tinkerer. FOSS Fan. Ally. PwME/LC. Volunteer with #MEAction Scotland. He/Him. #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Posts Replies Media Videos
Pinned
murtoz.bsky.social
Michiel @murtoz.bsky.social · Dec 5
I did an interview last week about living with ME. This article is the result.
Pleased with it overall, no glaring errors, and most of my key messages are in the article even if she didn't put some of the more 'difficult' points in there verbatim.

#mecfs #pwME

www.scotsman.com/health/me-ch...
'My daughter has ME, she went into appointments walking and came out in a wheelchair'
There are an estimated 1.3 million people in the UK with ME 🏥
www.scotsman.com
Reposted by Michiel
zackpolanski.bsky.social
Every personal attack.

Every attempt to distract or to divide.

It energises, strengthens and empowers our movement.

Lower bills. Tax billionaires. Join us.

www.theguardian.com/commentisfre...
The right can mock my teeth all it wants – it shows the Greens have struck a nerve | Zack Polanski
As a politician, I expect opposition and debate. But when it centres on personal insults, not policies, something else is going on, says the leader of the Green party, Zack Polanski
www.theguardian.com
November 10, 2025 at 10:47 AM
Reposted by Michiel
georgemonbiot.bsky.social
Once every 20 years or so, the director-general of the BBC is forced to resign for being insufficiently rightwing. Alastair Milne in 1987. Greg Dyke in 2004. Tim Davie in 2025. The great irony is that the BBC was in all cases profoundly biased towards established power. But just not biased enough …
November 10, 2025 at 5:44 AM
Reposted by Michiel
rachelmillward.bsky.social
Catch me on BBC Newsnight at 10:30pm TONIGHT! 💚
An image of Rachel Millward by the beach. Besides her text says "BBC Newsnight. Rachel Millward. Deputy Leader of the Green Party of England and Wales. Candidate for Mayor of Sussex and Brighton. Tonight, 10:30pm, BBC One." Below there is a green party logo and a Rachel for Sussex logo. There is also a legal imprint.
November 10, 2025 at 7:30 AM
Reposted by Michiel
ottoenglish.bsky.social
Everything on our news agenda is being driven by a corrupted disinformation machine, run by a billionaire who sponsors Tommy Robinson and who keeps trying to foment civil war in the UK.

And incredibly our MPs & news providers stay there.

THAT is the problem. Not some bad editing choice on the BBC.
November 10, 2025 at 9:18 AM
murtoz.bsky.social
please sign and share widely!

A "final" plan without funding is as useful as a chocolate teapot.

#mecfs #me/cfs #myalgice #pwme
November 10, 2025 at 10:21 AM
Reposted by Michiel
punkacademic.bsky.social
We are living in an unreal world.

I stopped appearing on BBC television because of very obvious govt interference in the output.

Was told before one broadcast that 'Downing Street' was unhappy with a particular story, so I shouldn't talk about it.

BBC is fundamentally right-wing in its output /1
punkacademic.bsky.social punkacademic @punkacademic.bsky.social · 1d
Tim Davie, whose BBC cancelled The Mash Report and went after Lineker as part of a 'war on woke', going for not being right-wing enough speaks volumes about where the BBC will go next.

(Don't remember the DG going when they used the wrong footage to make Johnson look better at the Cenotaph)
Tim Davie: BBC director general embroiled in Gary Lineker controversy
Critics claim former marketing man at centre of row over impartiality is too close to the government
www.theguardian.com
November 9, 2025 at 6:23 PM
Reposted by Michiel
cgatist.bsky.social
Thank you to the HCP who wrote to us about the real-world impact of our @decodemestudy.bsky.social study:
“I describe to all the patients I see with ME/CFS/FM this study as a key step in getting to new therapies whilst of course being realistic on expectations…I think even without treatment, knowing that what they have is a biological condition and not something ‘made up’ gives a lot of hope / relief. Similar to the paradigm shift as was seen with schizophrenia when everyone eventually realised it was a neurogenetic/neurodevelopmental condition.”
November 9, 2025 at 10:11 AM
Reposted by Michiel
bmhughes.bsky.social
This is a very deft thread. A concise precis of our conversation on conservatism, capitalism, and disability

Thank you @mecfsskeptic.bsky.social

#MECFS #LongCovid @davetuller1.bsky.social
mecfsskeptic.bsky.social ME/CFS Science @mecfsskeptic.bsky.social · 5d
1) Interesting interview of Prof. Brian Hughes by David Tuller.

In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
November 7, 2025 at 10:18 PM
Reposted by Michiel
rippermd41.bsky.social
A long excerpt from this 1987 interview with Beth Bighley, a patient with chronic EBV, now known as #MECFS

This could’ve been written by someone last year with #LongCovid and/or ME.

“My parents' reaction was one of relief that I did have something physically. But also frustration, 1/
rfh1955.bsky.social Royal Free 1955 @rfh1955.bsky.social · 3d
The Olathe Daily News, Kansas, US. Thirty-eight years ago today - 8th November 1987.

A relatively early reference to 'chronic fatigue syndrome' in the US press.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 8, 2025 at 11:48 PM
Reposted by Michiel
pawlbologna.bsky.social
I remember when I became fully UBI pilled during the worst of covid and that position is a lock for life.
theycallhimbfg.bsky.social Wikipedia Brown @theycallhimbfg.bsky.social · May 28
TL; DR: the study found it motivated people to find work and it instilled confidence in others to leave abusive situations and enroll their children in extracurricular activities.

It also debunks criticisms that it's just a handout that'll make people dependent on the government.
"Participants in the Los Angeles-based program reported that they had better employment outcomes, felt safer at home, enrolled their kids in more extracurriculars, and were more likely to leave domestically abusive situations, according to the pilot study's results. The Basic Income Guaranteed: Los Angeles Economic Assistance Pilot, or BIG:LEAP, gave over 3,200 households $1,000 in monthly no-strings-attached cash payments for 12 months starting in January 2022. Participants had to have or be expecting a dependent child and fall below the federal poverty threshold, with average household incomes of slightly above $14,000 a year. BIG:LEAP compared the outcomes of households receiving cash payments to nearly 5,000 households with similar incomes and family situations in the control group. ""There's this really open question in the research and among policymakers around how much cash does it take over what period of time to create change," said Amy Castro, an associate professor at the University of Pennsylvania who coauthored the study. "What we've seen with BIG:LEAP is that in that 12 months, families really engaged in an accelerated decision-making process to establish safety." The study found that participants were significantly more likely to find full-time jobs than remain unemployed and not looking for work, feel able to cover housing costs, have greater food security, and establish more harmonious home environments compared to the control group. Within the first six months of the program, participants left situations of intimate partner violence more frequently than the control group. In the last six months, participants were more likely to establish proximate safety and work toward protecting themselves in the future. Participants were also significantly more likely than the control group to enroll their kids in enrichment activities. Bo-Kyung Elizabeth Kim, an associate professor at UCLA, told BI this result suggests parents are using the cash to better their children's futures and increasingly have the time to take their kids to these activities. Participants reported significantly fewer worries about their family's safety compared to control participants across all measurement periods — including six months after the last payment. "By establishing that sort of immediate safety right away, participants were then able to engage in their neighborhoods because they had the time to do so," Castro said. "They had the time to parent, and they had the time to build relationships with community leaders." Though many of these effects are significant, the effect sizes aren't large for some variables. For instance, 50% of control group participants reported having to eat less in a day because of a lack of food compared to 42% of recipients. Across the board, the study reported no negative effects of cash payments on participants, who were "significantly more likely to secure full-time employment than to remain unemployed not looking for work" than those in the control group. Castro said this study reveals a wider range of positive impacts on participants receiving unconditional cash payments than many of its predecessors. Overall, it stands in contrast to what some critics of basic income argue, including that cash payments majorly reduce employment or don't prepare participants for the future. Some critics have argued these programs cost millions of dollars, often from taxpayer money, and foster dependency on the government for help.
November 8, 2025 at 7:34 PM
Reposted by Michiel
exceedhergrasp1.bsky.social
This is fucking brilliant, and you should read it: lithub.com/maybe-dont-t...
Maybe Don’t Talk to the New York Times About Zohran Mamdani
It’s remarkable, the people you’ll hear from. Teach for even a little while at an expensive institution—the term they tend to prefer is “elite”—and odds are that eventually someone who was a studen…
lithub.com
November 8, 2025 at 3:24 PM
Reposted by Michiel
clearlight.bsky.social
www.thecanary.co/the-fraud/
The Fraud Archives
The Fraud articles from Canary
www.thecanary.co
November 8, 2025 at 10:26 AM
Reposted by Michiel
soozuk.bsky.social
Both parties actively endorsed Andrew Cuomo and he STILL couldn't beat a vocally pro-Palestine, pro-trans, socialist, Muslim immigrant. The vindication I feel IS a part of that obvs coz I'm a petty little cunt. But I mostly feel intense joy and relief that another way has been shown to be possible.
November 8, 2025 at 10:16 AM
Reposted by Michiel
jenniekermode.bsky.social
When I found out that I'm intersex I knew, statistically, there were lots of other people like me out there, but only about a dozen were publicly visible. It has been a great joy to me to watch this movement grow over the decades and begin to exert real pressure for our human rights to be respected.
A purple circle on a black background, with the words 'Intersex Day of Solidarity' written over it in yellow.
November 8, 2025 at 12:10 PM
Reposted by Michiel
bradfordgreens.bsky.social
📈 The Green surge is real - and it’s shaking up politics.

💚 Join the movement that’s breaking the old parties: Join.greenparty.org.uk
Graphic promoting the Bradford District Green Party. A headline from The New Statesman reads, “The Green surge is about to break Labour,” above a photo of three smiling Green Party figures (Zack polanski, Mothin Ali & Rachel Millward) on stage wearing flower garlands and speaking into a microphone. The background is green with the Green Party logo visible. Text at the bottom reads “Join.greenparty.org.uk,” alongside the Green Party logo
November 8, 2025 at 12:12 PM
Reposted by Michiel
bettinagrande.bsky.social
Meine Expertise reicht für:

– das bundesweite Psychotherapie-Netzwerk #MECFS
– Forschungsbeiräte
– die S2K-Leitlinie Long COVID
– das BMG
– die Charité

Wo sie offenbar nicht reicht:
Für Baden-Württemberg.
Und schon gar nicht für Heidelberg. 😉

Also: Wieder Koffer packen für Berlin! 🧳
November 8, 2025 at 12:57 PM
Reposted by Michiel
thechiller.bsky.social
"Life changing policies"

1. You'll be poorer
2. Or destitute or dead, if you're disabled
3. If you're already poor, we're upping the likelihood that your kid will die
4. We're arresting your gran for terrorism, if she survived winter
5. Make Britain racist & queerphobic again!
6. Ban the trans
November 8, 2025 at 10:50 AM
Reposted by Michiel
longcovidadvoc.com
🧵 Important new study out in Cell Reports Medicine (Shahbaz et al. 2025):
👉 Long Covid with ME/CFS isn’t the same in women and men - biologically.
👉 And it’s not “fatigue.” It’s immune, hormonal, and neurological chaos.

Let’s break it down layperson style 👇
A young woman sits on the edge of her bed in a slightly cluttered room decorated with string lights. She is wearing a tank top and shorts and looks pensive or unwell. The text on the image reads "LATEST RESEARCH," "LONG COVID," "SEX SPECIFIC DIFFERENCES," and below the image, "Long COVID patients with ME/CFS show sex-specific immune, hormonal, and neuroinflammatory disruptions, with women exhibiting stronger inflammation, gut dysfunction, cognitive gene changes, and lower testosterone/cortisol." The source is listed as "Shahbaz et al 2025, Cell."
November 8, 2025 at 11:47 AM
Reposted by Michiel
kayorchison.bsky.social
Then limp away, rattling like half a tin of dried beans
chronicillness.bsky.social Chronic Illness Humor @chronicillness.bsky.social · 2d
I down all my meds at once like a raccoon eating trash
November 8, 2025 at 12:29 PM
Reposted by Michiel
kayorchison.bsky.social
Block on vibes. It'll make your life better.

Someone follows and they vibe wrong? Block.

Seriously. I don't give a shit about what I might miss out on. Life is better here mostly because of block culture.

Echo chamber be damned. The world is saturated in neoliberal and hard right views. I see it.
November 8, 2025 at 10:16 AM
Reposted by Michiel
kdenkwrites.com
How “pro-Britain” Facebook groups run from outside the UK are cashing in on anti-immigrant sentiment & sucking in Reform councillors. My latest for @theleaduk.bsky.social

national.thelead.uk/p/reform-cou...
Bots, AI memes and Reform councillors: How foreign Facebook pages are hijacking UK patriotism
Fake British “patriot” pages run from abroad are fooling thousands – including elected councillors.
national.thelead.uk
November 2, 2025 at 9:42 AM
Reposted by Michiel
adamwong.bsky.social
Hey everyone, I'm excited to share that AirFanta Wear is now live on air-fanta.com/products/air...
You'll find a thorough product breakdown and a detailed video I made explaining a lot of things about it. (1/3)
AirFanta Personal Wearable Laminar Air Purifier
The AirFanta Wear is a personal wearable air purifier. Worn around the neck, it delivers a stream of HEPA-filtered air directly to your breathing zone, creating a personal bubble of clean air. Third-p...
air-fanta.com
November 3, 2025 at 4:51 AM
Reposted by Michiel
nelehelena.bsky.social
Pretty decent article in the dutch magazine for psychiatrists about #POTS

This is important considering POTS is a neurological syndrome that's often mistaken for a psychiatric illness. The article explains this very well.

And it mentions ME + PEM!

www.tijdschriftvoorpsychiatrie.nl/nl/tijdschri...
Tijdschrift voor Psychiatrie
Uitgave van de Stichting Tijdschrift voor Psychiatrie waarin participeren de Nederlandse Vereniging voor Psychiatrie en de Vlaamse Vereniging voor Psychiatrie.
www.tijdschriftvoorpsychiatrie.nl
November 7, 2025 at 2:12 PM