Michiel
@murtoz.bsky.social
Dutchman in Scotland. Lounge based Landscape Photographer. Medically Retired Hardware Engineer. Tired Tinkerer. FOSS Fan. Ally. PwME/LC. Volunteer with #MEAction Scotland. He/Him. #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Pinned
Michiel
@murtoz.bsky.social
· Dec 5
'My daughter has ME, she went into appointments walking and came out in a wheelchair'
There are an estimated 1.3 million people in the UK with ME 🏥
www.scotsman.com
I did an interview last week about living with ME. This article is the result.
Pleased with it overall, no glaring errors, and most of my key messages are in the article even if she didn't put some of the more 'difficult' points in there verbatim.
#mecfs #pwME
www.scotsman.com/health/me-ch...
Pleased with it overall, no glaring errors, and most of my key messages are in the article even if she didn't put some of the more 'difficult' points in there verbatim.
#mecfs #pwME
www.scotsman.com/health/me-ch...
Reposted by Michiel
Many diseases were once called “psychological” or “all in the mind”.
Again and again, biology later proved otherwise.
This thread shows clear cases where medicine got it wrong, then changed its mind once real mechanisms were found.
Again and again, biology later proved otherwise.
This thread shows clear cases where medicine got it wrong, then changed its mind once real mechanisms were found.
February 4, 2026 at 12:28 PM
Many diseases were once called “psychological” or “all in the mind”.
Again and again, biology later proved otherwise.
This thread shows clear cases where medicine got it wrong, then changed its mind once real mechanisms were found.
Again and again, biology later proved otherwise.
This thread shows clear cases where medicine got it wrong, then changed its mind once real mechanisms were found.
Reposted by Michiel
Highlighting the speaker who stood in front of the Surprise mayor and told him to consider what the Mayor of Ohrdruf must’ve thought before he died by suicide: “He might have thought ‘how is this my fault I had no jurisdiction over this’ maybe he said ‘this site was not subject to local zoning.’”
February 4, 2026 at 6:43 AM
Highlighting the speaker who stood in front of the Surprise mayor and told him to consider what the Mayor of Ohrdruf must’ve thought before he died by suicide: “He might have thought ‘how is this my fault I had no jurisdiction over this’ maybe he said ‘this site was not subject to local zoning.’”
Reposted by Michiel
We’ve joined Easy Fundraising 🎉💙
You can now support Long Covid Advocacy for free just by doing your usual online shopping - solidarity in action!
All our profit goes to biomedical research! 🧪
🔗 Sign up & choose LCA as your cause:
www.easyfundraising.org.uk/causes/long-...
You can now support Long Covid Advocacy for free just by doing your usual online shopping - solidarity in action!
All our profit goes to biomedical research! 🧪
🔗 Sign up & choose LCA as your cause:
www.easyfundraising.org.uk/causes/long-...
You spend, brands donate to Long Covid Advocacy.
Help us when you shop with 7,000+ brands. Join now.
www.easyfundraising.org.uk
February 4, 2026 at 8:45 AM
We’ve joined Easy Fundraising 🎉💙
You can now support Long Covid Advocacy for free just by doing your usual online shopping - solidarity in action!
All our profit goes to biomedical research! 🧪
🔗 Sign up & choose LCA as your cause:
www.easyfundraising.org.uk/causes/long-...
You can now support Long Covid Advocacy for free just by doing your usual online shopping - solidarity in action!
All our profit goes to biomedical research! 🧪
🔗 Sign up & choose LCA as your cause:
www.easyfundraising.org.uk/causes/long-...
Reposted by Michiel
Be afraid. Be very afraid. Because these people will have been VERY cherry picked.
#disability #mecfs #disabled
#disability #mecfs #disabled
Disability experts appointed to lead first ever full review of Personal Independence Payment
Twelve experts appointed to the steering group for the Timms Review of Personal Independence Payment (PIP).
www.gov.uk
February 4, 2026 at 7:43 AM
Be afraid. Be very afraid. Because these people will have been VERY cherry picked.
#disability #mecfs #disabled
#disability #mecfs #disabled
Reposted by Michiel
Labour is actively protecting the Epstein class and hiding their crimes from you
BREAKING: Keir Starmer has tabled an amendment to the Tory motion which would exempt "papers prejudicial to UK national security or international relations"
February 4, 2026 at 7:02 AM
Labour is actively protecting the Epstein class and hiding their crimes from you
Reposted by Michiel
Sharing images and videos of our Long Covid experiences help make our world a reality for others and spreads awareness.
Some of my favorites:
Some of my favorites:
February 4, 2026 at 3:01 AM
Sharing images and videos of our Long Covid experiences help make our world a reality for others and spreads awareness.
Some of my favorites:
Some of my favorites:
Reposted by Michiel
Reposted by Michiel
The thing about the moral corruption in the British Labour Party is that this chump is not the outlier. This is a political party, & government, removing human rights from trans ppl to appease the far right. It’s a govt that treats ppl with disabilities as lesser & treats protest as terrorism.
February 3, 2026 at 7:54 PM
The thing about the moral corruption in the British Labour Party is that this chump is not the outlier. This is a political party, & government, removing human rights from trans ppl to appease the far right. It’s a govt that treats ppl with disabilities as lesser & treats protest as terrorism.
Reposted by Michiel
Hey, #MedSky.
For reasons that elude comprehension, too many drs still wrongly believe #MyalgicEncephalomyelitis isn’t potentially fatal when it’s very much just that.
Four more of us dead just in the past week.
For the love of god, please read the research and listen to your patients.
#pwME
For reasons that elude comprehension, too many drs still wrongly believe #MyalgicEncephalomyelitis isn’t potentially fatal when it’s very much just that.
Four more of us dead just in the past week.
For the love of god, please read the research and listen to your patients.
#pwME
February 3, 2026 at 8:09 PM
Hey, #MedSky.
For reasons that elude comprehension, too many drs still wrongly believe #MyalgicEncephalomyelitis isn’t potentially fatal when it’s very much just that.
Four more of us dead just in the past week.
For the love of god, please read the research and listen to your patients.
#pwME
For reasons that elude comprehension, too many drs still wrongly believe #MyalgicEncephalomyelitis isn’t potentially fatal when it’s very much just that.
Four more of us dead just in the past week.
For the love of god, please read the research and listen to your patients.
#pwME
Reposted by Michiel
Just saw a video where Jon Stewart shredded Trump and his pedo pals in the Epstein files and all I could think was “damn, he’s good and fuck Jon Stewart for mocking people who are #stillmasking”.
If only he coulda just owned his shit and apologized, but no.
If only he coulda just owned his shit and apologized, but no.
February 3, 2026 at 5:13 PM
Just saw a video where Jon Stewart shredded Trump and his pedo pals in the Epstein files and all I could think was “damn, he’s good and fuck Jon Stewart for mocking people who are #stillmasking”.
If only he coulda just owned his shit and apologized, but no.
If only he coulda just owned his shit and apologized, but no.
Reposted by Michiel
Being an ME sufferer following a severe virus in 2008, I’d enough funds to support myself until retirement. Many folk suffering from ME/LongCovid are much younger and totally disabled. They’re scared of what a “Labour” government will do to their paltry benefits despite having paid tax previously
"Any of us could need help from social security at some point in our lives – and providing support for people who need help is the hallmark of a decent society."
www.thenational.scot/news/2581967...
www.thenational.scot/news/2581967...
John Swinney vows not to scrap disability benefits after 'despicable' Tory attack
John Swinney has vowed not to take away 'vital' cost-of-living support for disabled people amid calls for the welfare budget to be slashed
www.thenational.scot
February 3, 2026 at 3:12 PM
Being an ME sufferer following a severe virus in 2008, I’d enough funds to support myself until retirement. Many folk suffering from ME/LongCovid are much younger and totally disabled. They’re scared of what a “Labour” government will do to their paltry benefits despite having paid tax previously
Reposted by Michiel
A reminder that MEAction UK is looking for new trustees! This is an opportunity to use your skills to support the growth of a grassroots organisation fighting for awareness & care for people with ME. shorturl.at/tZTMG
#CharityTrustee #MyalgicEncephalomyelitis
#CharityTrustee #MyalgicEncephalomyelitis
February 3, 2026 at 11:21 AM
A reminder that MEAction UK is looking for new trustees! This is an opportunity to use your skills to support the growth of a grassroots organisation fighting for awareness & care for people with ME. shorturl.at/tZTMG
#CharityTrustee #MyalgicEncephalomyelitis
#CharityTrustee #MyalgicEncephalomyelitis
Reposted by Michiel
The thing is, that other party (Labour) is in power with a massive parliamentary majority. And yet what are they doing about these things?
They tried to remove disabled people's only source of income on the same week they bailed out Thames water to the tune of £3bn.
They tried to remove disabled people's only source of income on the same week they bailed out Thames water to the tune of £3bn.
February 3, 2026 at 9:59 AM
The thing is, that other party (Labour) is in power with a massive parliamentary majority. And yet what are they doing about these things?
They tried to remove disabled people's only source of income on the same week they bailed out Thames water to the tune of £3bn.
They tried to remove disabled people's only source of income on the same week they bailed out Thames water to the tune of £3bn.
Reposted by Michiel
Brexit costs the UK more than war. Failure to get Covid under control — the ongoing political choice not to — has caused and is causing more death and disability than any war in living memory. The war against the UK doesn't need guns, it needs information and to control the narrative. We let it.
February 2, 2026 at 11:10 PM
Brexit costs the UK more than war. Failure to get Covid under control — the ongoing political choice not to — has caused and is causing more death and disability than any war in living memory. The war against the UK doesn't need guns, it needs information and to control the narrative. We let it.
Reposted by Michiel
Action alert - We're co-sponsoring @meactnet.bsky.social's ICE Makes Me Sick campaign.
Use this easy tool to send a quick message to your House reps: makesmesick.org?source=direc...
Tell reps to stop bankrolling ICE violence while slashing our healthcare & homecare. Fund healthcare, not violence!
Use this easy tool to send a quick message to your House reps: makesmesick.org?source=direc...
Tell reps to stop bankrolling ICE violence while slashing our healthcare & homecare. Fund healthcare, not violence!
February 2, 2026 at 7:44 PM
Action alert - We're co-sponsoring @meactnet.bsky.social's ICE Makes Me Sick campaign.
Use this easy tool to send a quick message to your House reps: makesmesick.org?source=direc...
Tell reps to stop bankrolling ICE violence while slashing our healthcare & homecare. Fund healthcare, not violence!
Use this easy tool to send a quick message to your House reps: makesmesick.org?source=direc...
Tell reps to stop bankrolling ICE violence while slashing our healthcare & homecare. Fund healthcare, not violence!
Reposted by Michiel
And then they'll say you can only present your license to vote.
An extreme Kansas bill will invalidate the drivers license of every trans person in the state. It was passed alongside a particularly extreme bathroom bill, meaning that the implications of every trans Kansan losing legal ID overnight has largely been missed.
Kansas Bill Will Strip Driver’s Licenses from Every Trans Resident Who Changed Gender — Assigned
As Kansas passes a bathroom bill, another bill that will invalidate the driver’s license of every trans resident has been deemphasized in the coverage. Also, Trump’s Department of Education says San J...
www.assignedmedia.org
February 2, 2026 at 2:29 PM
And then they'll say you can only present your license to vote.
Reposted by Michiel
So I asked (by email, yesterday) if they could be more specific about what treatment they have available for Long Covid and whether it is curative.
They replied (so quick!):
"...if long COVID is a big worry for you personally, I would be cautious about enrolling in the study."
🙃
They replied (so quick!):
"...if long COVID is a big worry for you personally, I would be cautious about enrolling in the study."
🙃
February 2, 2026 at 12:45 PM
So I asked (by email, yesterday) if they could be more specific about what treatment they have available for Long Covid and whether it is curative.
They replied (so quick!):
"...if long COVID is a big worry for you personally, I would be cautious about enrolling in the study."
🙃
They replied (so quick!):
"...if long COVID is a big worry for you personally, I would be cautious about enrolling in the study."
🙃
Reposted by Michiel
Reposted by Michiel
Edwards being skeptical of anything against his own personal theories as usual. And also incorrect.
It was the vagal nerve branches that enervate the stomach, liver and bowel that were cut, and there were fairly substantial side-effects in some, including chronic vitamin B12 deficiency etc.
It was the vagal nerve branches that enervate the stomach, liver and bowel that were cut, and there were fairly substantial side-effects in some, including chronic vitamin B12 deficiency etc.
9) Some are skeptical about the theory. Prof. Emeritus. Jonathan Edwards writes: "Hundreds of thousands of people had their vagus nerves cut for treatment of peptic ulcer in the 1970s. Nobody noticed any dramatic effects beyond delayed gastric emptying as far as I remember..."
February 2, 2026 at 11:30 AM
Edwards being skeptical of anything against his own personal theories as usual. And also incorrect.
It was the vagal nerve branches that enervate the stomach, liver and bowel that were cut, and there were fairly substantial side-effects in some, including chronic vitamin B12 deficiency etc.
It was the vagal nerve branches that enervate the stomach, liver and bowel that were cut, and there were fairly substantial side-effects in some, including chronic vitamin B12 deficiency etc.
Reposted by Michiel
I'm really not sure that human challenge studies with highly pathogenic viruses in healthy individuals is a fantastically good idea. 🤨
Thoughts?
Thoughts?
University of Oxford are running a new covid infection study. You remember the one they did early in the pandemic where they infected people on purpose? They're doing it again. What. The. Fuck?
www.jenner.ac.uk/volunteer/re...
www.jenner.ac.uk/volunteer/re...
COVID-19 Challenge Study (COV-CHIM 02)
www.jenner.ac.uk
February 2, 2026 at 12:43 PM
I'm really not sure that human challenge studies with highly pathogenic viruses in healthy individuals is a fantastically good idea. 🤨
Thoughts?
Thoughts?
Please help save Savannah from the NHS if you can!
Fundraiser: www.gofundme.com/f/severemerg...
Email templates: www.reddit.com/r/cfs/commen...
#pwME #mecfs #GreatestMEdicalScandal
Fundraiser: www.gofundme.com/f/severemerg...
Email templates: www.reddit.com/r/cfs/commen...
#pwME #mecfs #GreatestMEdicalScandal
#ME #SevereME #EndMalnutritionInME
London hospital STILL starving severe ME patient, Savannah — biased medical approach to blame www.thecanary.co/uk/analysis/...
London hospital STILL starving severe ME patient, Savannah — biased medical approach to blame www.thecanary.co/uk/analysis/...
London hospital STILL starving severe ME patient, Savannah — biased medical approach to blame
A South London hospital is still putting severe ME patient Savannah's life at risk and a clinician who psychologises ME might be why.
www.thecanary.co
February 2, 2026 at 9:34 AM
Please help save Savannah from the NHS if you can!
Fundraiser: www.gofundme.com/f/severemerg...
Email templates: www.reddit.com/r/cfs/commen...
#pwME #mecfs #GreatestMEdicalScandal
Fundraiser: www.gofundme.com/f/severemerg...
Email templates: www.reddit.com/r/cfs/commen...
#pwME #mecfs #GreatestMEdicalScandal
Reposted by Michiel
I’ve just read again the aerosol study on C19 carried out in Nebraska, in 2020.
They showed RNA in the air, on surfaces that could only be contaminated by the airborne route, and they even showed cytopathic effect and intact virus particles in cultures…
And this wasn’t enough to change anything.
They showed RNA in the air, on surfaces that could only be contaminated by the airborne route, and they even showed cytopathic effect and intact virus particles in cultures…
And this wasn’t enough to change anything.
February 1, 2026 at 1:15 PM
I’ve just read again the aerosol study on C19 carried out in Nebraska, in 2020.
They showed RNA in the air, on surfaces that could only be contaminated by the airborne route, and they even showed cytopathic effect and intact virus particles in cultures…
And this wasn’t enough to change anything.
They showed RNA in the air, on surfaces that could only be contaminated by the airborne route, and they even showed cytopathic effect and intact virus particles in cultures…
And this wasn’t enough to change anything.
Reposted by Michiel
Reposted by Michiel
Humans, you are heading to an abyss of horrors. Corporate fascism, climate cataclysm, crops failure, hunger, genocides, wars, and a mother of all syndemics plaguing humans with transmissible slow and fast diseases.
(You can't chatgpt yourself out of it, you "intelligent" humans).
(You can't chatgpt yourself out of it, you "intelligent" humans).
AAAAAAAAAAAAAHH
February 1, 2026 at 9:51 AM
Humans, you are heading to an abyss of horrors. Corporate fascism, climate cataclysm, crops failure, hunger, genocides, wars, and a mother of all syndemics plaguing humans with transmissible slow and fast diseases.
(You can't chatgpt yourself out of it, you "intelligent" humans).
(You can't chatgpt yourself out of it, you "intelligent" humans).