Scribbler Pen
@scribblerpen.bsky.social
Writer, editor, analyst. Disability employment rights advocate.
Trade union disability rep. Arts, science and languages nerd, internationalist, hiker, nature lover. Could really do without Long Covid
Trade union disability rep. Arts, science and languages nerd, internationalist, hiker, nature lover. Could really do without Long Covid
Pinned
Scribbler Pen
@scribblerpen.bsky.social
· Nov 16
Pack 4 for #Covid aware and #LongCovid
community to help us find each other and connect with researchers on Bluesky.
go.bsky.app/SFsSVSc
Additions welcome. If you're on it and don't wish to be, please let me know. Previous packs:
1. go.bsky.app/JvVAoFt
2. go.bsky.app/MjGuFEe
3. go.bsky.app/Q9FoCjK
community to help us find each other and connect with researchers on Bluesky.
go.bsky.app/SFsSVSc
Additions welcome. If you're on it and don't wish to be, please let me know. Previous packs:
1. go.bsky.app/JvVAoFt
2. go.bsky.app/MjGuFEe
3. go.bsky.app/Q9FoCjK
Happy Christmas!
From @northwestbylines.co.uk
From @northwestbylines.co.uk
The light of a single star guided us | Polina Sparks
The Mass
The light of a single star guided us
northwestbylines.co.uk
December 24, 2025 at 2:34 PM
Happy Christmas!
From @northwestbylines.co.uk
From @northwestbylines.co.uk
Reposted by Scribbler Pen
A Very Bylines Christmas
A Bylines twist on the classic Jingle Bells | Gemma Gould
@gemmagould.bsky.social @centralbylines.co.uk
A Bylines twist on the classic Jingle Bells | Gemma Gould
@gemmagould.bsky.social @centralbylines.co.uk
A Very Bylines Christmas
A bylines twist on the classic Jingle Bells
centralbylines.co.uk
December 24, 2025 at 12:51 PM
A Very Bylines Christmas
A Bylines twist on the classic Jingle Bells | Gemma Gould
@gemmagould.bsky.social @centralbylines.co.uk
A Bylines twist on the classic Jingle Bells | Gemma Gould
@gemmagould.bsky.social @centralbylines.co.uk
Reposted by Scribbler Pen
A bylines twist on the classic Jingle Bells | Gemma Gould
A Very Bylines Christmas
A bylines twist on the classic Jingle Bells
centralbylines.co.uk
December 24, 2025 at 9:12 AM
A bylines twist on the classic Jingle Bells | Gemma Gould
Reposted by Scribbler Pen
1/ We have now exceeded over 4 million reads of our Powerful Citizen journalism in 2025 and rising. Help us look forward to a brilliant 2026 by supporting citizen voices and becoming a friend of Bylines Network
bylinesnetwork.co.uk/friends-of-b...
bylinesnetwork.co.uk/friends-of-b...
Friends of Bylines Network - Bylines Network
Stand with us – sign up. now to become a Friend of Bylines Network
bylinesnetwork.co.uk
December 21, 2025 at 5:46 PM
1/ We have now exceeded over 4 million reads of our Powerful Citizen journalism in 2025 and rising. Help us look forward to a brilliant 2026 by supporting citizen voices and becoming a friend of Bylines Network
bylinesnetwork.co.uk/friends-of-b...
bylinesnetwork.co.uk/friends-of-b...
Germany gives €500m funding boost to research for Long Covid and other post-viral conditions
www.nature.com/articles/d41...
www.nature.com/articles/d41...
Long-COVID research just got a big funding boost: will it find new treatments?
The German government has committed half a billion euros for research on long COVID and other post-infection syndromes.
www.nature.com
December 8, 2025 at 5:24 PM
Germany gives €500m funding boost to research for Long Covid and other post-viral conditions
www.nature.com/articles/d41...
www.nature.com/articles/d41...
Please support this call to reinstate #NHS workers' eligibility for NHS Covid vaccinations. #SafetyAtWork
petition.parliament.uk/petitions/74...
petition.parliament.uk/petitions/74...
Petition: Fund a COVID-19 Booster Vaccination for All NHS Healthcare Workers
We call on the Government to fund routine COVID-19 booster vaccinations for all NHS healthcare workers, regardless of age or underlying conditions.
petition.parliament.uk
December 8, 2025 at 11:02 AM
Please support this call to reinstate #NHS workers' eligibility for NHS Covid vaccinations. #SafetyAtWork
petition.parliament.uk/petitions/74...
petition.parliament.uk/petitions/74...
Until *9th December* your donation to #LongCovidKids
@longcovidkids.bsky.social can be doubled when you donate via #BigGive @biggive.bsky.social Here: donate.biggive.org/campaign/a05...
A great way to #help this #Christmas 🌟🎄❤️
@longcovidkids.bsky.social can be doubled when you donate via #BigGive @biggive.bsky.social Here: donate.biggive.org/campaign/a05...
A great way to #help this #Christmas 🌟🎄❤️
December 5, 2025 at 1:40 PM
Until *9th December* your donation to #LongCovidKids
@longcovidkids.bsky.social can be doubled when you donate via #BigGive @biggive.bsky.social Here: donate.biggive.org/campaign/a05...
A great way to #help this #Christmas 🌟🎄❤️
@longcovidkids.bsky.social can be doubled when you donate via #BigGive @biggive.bsky.social Here: donate.biggive.org/campaign/a05...
A great way to #help this #Christmas 🌟🎄❤️
This needs to be read by everyone #Covid 👇
Open letter by CATA (COVID-19 Aerosol Transmission Alliance) to Baroness Hallett, #CovidInquiry chair.
(Shockingly, NHS England stated in *July 2024* that trying to halt Covid transmission would be a "waste of public health resources"⁉️ #FFP😷? #CleanAir?)
Open letter by CATA (COVID-19 Aerosol Transmission Alliance) to Baroness Hallett, #CovidInquiry chair.
(Shockingly, NHS England stated in *July 2024* that trying to halt Covid transmission would be a "waste of public health resources"⁉️ #FFP😷? #CleanAir?)
December 5, 2025 at 12:53 PM
This needs to be read by everyone #Covid 👇
Open letter by CATA (COVID-19 Aerosol Transmission Alliance) to Baroness Hallett, #CovidInquiry chair.
(Shockingly, NHS England stated in *July 2024* that trying to halt Covid transmission would be a "waste of public health resources"⁉️ #FFP😷? #CleanAir?)
Open letter by CATA (COVID-19 Aerosol Transmission Alliance) to Baroness Hallett, #CovidInquiry chair.
(Shockingly, NHS England stated in *July 2024* that trying to halt Covid transmission would be a "waste of public health resources"⁉️ #FFP😷? #CleanAir?)
Reposted by Scribbler Pen
Natasha Hirst, NEC Disabled Members’ rep, said:
“Disabled people’s human rights have been consistently under attack in the UK. Disabled people are told they must return to the workforce in greater numbers. Yet the government makes policy decisions that remove the very tools required to do so.”
“Disabled people’s human rights have been consistently under attack in the UK. Disabled people are told they must return to the workforce in greater numbers. Yet the government makes policy decisions that remove the very tools required to do so.”
December 3, 2025 at 12:35 PM
Natasha Hirst, NEC Disabled Members’ rep, said:
“Disabled people’s human rights have been consistently under attack in the UK. Disabled people are told they must return to the workforce in greater numbers. Yet the government makes policy decisions that remove the very tools required to do so.”
“Disabled people’s human rights have been consistently under attack in the UK. Disabled people are told they must return to the workforce in greater numbers. Yet the government makes policy decisions that remove the very tools required to do so.”
Reposted by Scribbler Pen
Today marks International Day of Disabled People.
The NUJ Disabled Members’ Council urges journalists to challenge harmful portrayals about disabled people and calls on government to reverse plans to impose VAT on Motability.
www.nuj.org.uk/resource/nuj...
The NUJ Disabled Members’ Council urges journalists to challenge harmful portrayals about disabled people and calls on government to reverse plans to impose VAT on Motability.
www.nuj.org.uk/resource/nuj...
NUJ statement on International Day of Disabled People
Today (3 December) marks International Day of Disabled People, with this year’s theme focusing on fostering disability-inclusive societies.
www.nuj.org.uk
December 3, 2025 at 12:35 PM
Today marks International Day of Disabled People.
The NUJ Disabled Members’ Council urges journalists to challenge harmful portrayals about disabled people and calls on government to reverse plans to impose VAT on Motability.
www.nuj.org.uk/resource/nuj...
The NUJ Disabled Members’ Council urges journalists to challenge harmful portrayals about disabled people and calls on government to reverse plans to impose VAT on Motability.
www.nuj.org.uk/resource/nuj...
Work ability trajectories and sick leave in individuals with post COVID-19 condition: 3-year follow-up of a population-based cohort The Lancet Regional Health Europe
#LongCovid #Work #SicknessLeave #Employment #Covid
www.thelancet.com/journals/lan...
#LongCovid #Work #SicknessLeave #Employment #Covid
www.thelancet.com/journals/lan...
Work ability trajectories and sick leave in individuals with post COVID-19 condition: 3-year follow-up of a population-based cohort
The study highlights the prolonged impact of PCC on work-related functioning and underscores
the need for targeted occupational, clinical and social measures for those affected.
www.thelancet.com
December 3, 2025 at 12:35 PM
Work ability trajectories and sick leave in individuals with post COVID-19 condition: 3-year follow-up of a population-based cohort The Lancet Regional Health Europe
#LongCovid #Work #SicknessLeave #Employment #Covid
www.thelancet.com/journals/lan...
#LongCovid #Work #SicknessLeave #Employment #Covid
www.thelancet.com/journals/lan...
"The NUJ Disabled Members’ Council calls on journalists to challenge harmful portrayals about disabled people and shift the narrative from blame to one centred on rights, access and inclusion."
The NUJ statement on the #InternationalDayOfDisabledPeople
www.nuj.org.uk/resource/nuj...
The NUJ statement on the #InternationalDayOfDisabledPeople
www.nuj.org.uk/resource/nuj...
NUJ statement on International Day of Disabled People
Today (3 December) marks International Day of Disabled People, with this year’s theme focusing on fostering disability-inclusive societies.
www.nuj.org.uk
December 3, 2025 at 12:19 PM
"The NUJ Disabled Members’ Council calls on journalists to challenge harmful portrayals about disabled people and shift the narrative from blame to one centred on rights, access and inclusion."
The NUJ statement on the #InternationalDayOfDisabledPeople
www.nuj.org.uk/resource/nuj...
The NUJ statement on the #InternationalDayOfDisabledPeople
www.nuj.org.uk/resource/nuj...
Together Alliance against the far right, backed by disabled people's organisations and trade unions, among others.
The pushback just when it's needed. Follow them at
@togetheralliance.bsky.social
www.togetheralliance.org.uk?s=09
The pushback just when it's needed. Follow them at
@togetheralliance.bsky.social
www.togetheralliance.org.uk?s=09
December 2, 2025 at 2:52 PM
Together Alliance against the far right, backed by disabled people's organisations and trade unions, among others.
The pushback just when it's needed. Follow them at
@togetheralliance.bsky.social
www.togetheralliance.org.uk?s=09
The pushback just when it's needed. Follow them at
@togetheralliance.bsky.social
www.togetheralliance.org.uk?s=09
The most misleading thing about Rachel Reeves’s budget? Who it was really for | Aditya Chakrabortty www.theguardian.com/commentisfre...
The most misleading thing about Rachel Reeves’s budget? Who it was really for | Aditya Chakrabortty
Labour backbenchers have been cheering it as a win for the most vulnerable in society. In fact it was aimed at the bond markets, says Guardian columnist Aditya Chakrabortty
www.theguardian.com
December 2, 2025 at 8:58 AM
The most misleading thing about Rachel Reeves’s budget? Who it was really for | Aditya Chakrabortty www.theguardian.com/commentisfre...
Where does the X #Disability hate campaign end and #RachelReeves begin?
How #Motability cuts went from a rightwing online campaign to Rachel Reeves’s #Budget. www.theguardian.com/world/2025/n...
How #Motability cuts went from a rightwing online campaign to Rachel Reeves’s #Budget. www.theguardian.com/world/2025/n...
How Motability cuts went from a rightwing online campaign to Rachel Reeves’s budget
Car lease scheme for people with mobility problems portrayed as ‘free’ but is funded by benefits and their own contributions
www.theguardian.com
November 29, 2025 at 9:57 AM
Where does the X #Disability hate campaign end and #RachelReeves begin?
How #Motability cuts went from a rightwing online campaign to Rachel Reeves’s #Budget. www.theguardian.com/world/2025/n...
How #Motability cuts went from a rightwing online campaign to Rachel Reeves’s #Budget. www.theguardian.com/world/2025/n...
#TheRedTreeandME are collecting finds for #MECFS research. 🎄 They have a Christmas tree at Chester Cathedral decorated with red leaves 🍂, each beating a message of hope from #ME researchers. Please consider donating, one red 🍁 at a time ❤️
www.justgiving.com/page/one-red...
www.justgiving.com/page/one-red...
One Red Leaf at a Time: Fundraising for ME/CFS Research
Help One Red Leaf at a Time raise money to support The University of Edinburgh
www.justgiving.com
November 28, 2025 at 1:42 PM
#TheRedTreeandME are collecting finds for #MECFS research. 🎄 They have a Christmas tree at Chester Cathedral decorated with red leaves 🍂, each beating a message of hope from #ME researchers. Please consider donating, one red 🍁 at a time ❤️
www.justgiving.com/page/one-red...
www.justgiving.com/page/one-red...
#LongCovid has a significant impact in #workplaces. Policymakers and employers should be listening to those who still work with Long Covid.
Key point: LC is preventable by cutting Covid infections. The best thing to do as a policymaker or an employer is to create Covid-safe workplaces.
#CleanAir 😷
Key point: LC is preventable by cutting Covid infections. The best thing to do as a policymaker or an employer is to create Covid-safe workplaces.
#CleanAir 😷
Proud to have co-authored this paper on experiences of #LongCovid and work:
“I've done my job for 30 years and I'm very competent at it, but I couldn't understand what some of the words were meaning… It's almost having to recognise things again and relearn things”
“I've done my job for 30 years and I'm very competent at it, but I couldn't understand what some of the words were meaning… It's almost having to recognise things again and relearn things”
New article exploring how Long COVID affects people at work, highlighting the need for adaptable work accommodations to support employment and well‐being.
onlinelibrary.wiley.com/doi/epdf/10....
@longcovidsupport.bsky.social @nikki-s.bsky.social @imperialperc.bsky.social @imperialbrc.bsky.social
onlinelibrary.wiley.com/doi/epdf/10....
@longcovidsupport.bsky.social @nikki-s.bsky.social @imperialperc.bsky.social @imperialbrc.bsky.social
November 27, 2025 at 5:10 PM
#LongCovid has a significant impact in #workplaces. Policymakers and employers should be listening to those who still work with Long Covid.
Key point: LC is preventable by cutting Covid infections. The best thing to do as a policymaker or an employer is to create Covid-safe workplaces.
#CleanAir 😷
Key point: LC is preventable by cutting Covid infections. The best thing to do as a policymaker or an employer is to create Covid-safe workplaces.
#CleanAir 😷
An alternative viewpoint to Boris Johnson's self-exonerating conspiracy theory ramblings in the Mail
🔴Met Police Urged to Launch Investigation Into Boris Johnson For Covid Misconduct
Eminent lawyer Michael Mansfield KC tells the Byline Podcast that police should "look again" at the former Prime Minister's handling of the pandemic
www.bylinesupplement.com/p/met-police...
Eminent lawyer Michael Mansfield KC tells the Byline Podcast that police should "look again" at the former Prime Minister's handling of the pandemic
www.bylinesupplement.com/p/met-police...
Met Police Urged to Launch Investigation Into Boris Johnson For Covid Misconduct
Eminent lawyer Michael Mansfield KC tells the Byline Podcast that police should "look again" at the former Prime Minister's handling of the pandemic
www.bylinesupplement.com
November 27, 2025 at 10:40 AM
An alternative viewpoint to Boris Johnson's self-exonerating conspiracy theory ramblings in the Mail
Reposted by Scribbler Pen
Ex Dresdner Kleinwort investment banker Tim Horlick, who was previously married to City Superwoman Nicola Horlick (née Gayford), bought an £8.5m Pimlico flat after supplying 50 million faulty PPE masks. He has now had a criminal restraint order imposed on the property. Ben Ellery in @thetimes.com
Financier’s £8.5m flat frozen amid tax investigation over PPE deal
Tim Horlick bought the Pimlico property shortly after his company was awarded the now-contentious £255m contract by the government
www.thetimes.com
November 26, 2025 at 9:31 PM
Ex Dresdner Kleinwort investment banker Tim Horlick, who was previously married to City Superwoman Nicola Horlick (née Gayford), bought an £8.5m Pimlico flat after supplying 50 million faulty PPE masks. He has now had a criminal restraint order imposed on the property. Ben Ellery in @thetimes.com
The not-at-all racist man to address a not-at-all racist German far right rally at the invitation of Hitler's finance minister's granddaughter.
And people only claim he said racist things because they don't like his not-at-all racist politics. Got it.
www.independent.co.uk/news/world/e...
And people only claim he said racist things because they don't like his not-at-all racist politics. Got it.
www.independent.co.uk/news/world/e...
Nigel Farage to address far-right rally in Germany
Former Ukip leader accepts invitation by the granddaughter of Hitler's finance minister, Beatrix von Storch, to speak at Spandau Citadel in Berlin
www.independent.co.uk
November 27, 2025 at 9:52 AM
The not-at-all racist man to address a not-at-all racist German far right rally at the invitation of Hitler's finance minister's granddaughter.
And people only claim he said racist things because they don't like his not-at-all racist politics. Got it.
www.independent.co.uk/news/world/e...
And people only claim he said racist things because they don't like his not-at-all racist politics. Got it.
www.independent.co.uk/news/world/e...
Reposted by Scribbler Pen
Serious howls of outrage in the media this morning at what is a relatively modest Budget from Labour that does nothing more than fiddle around the margins.
It does highlight the missed opportunity. If you’re going to get this reaction anyway, why not at least get it for attempting a big swing?
It does highlight the missed opportunity. If you’re going to get this reaction anyway, why not at least get it for attempting a big swing?
November 27, 2025 at 7:41 AM
Serious howls of outrage in the media this morning at what is a relatively modest Budget from Labour that does nothing more than fiddle around the margins.
It does highlight the missed opportunity. If you’re going to get this reaction anyway, why not at least get it for attempting a big swing?
It does highlight the missed opportunity. If you’re going to get this reaction anyway, why not at least get it for attempting a big swing?
Reposted by Scribbler Pen
Our conversation about immigration is framed entirely on Nigel Farage’s terms.
Labour has completely capitulated the ground to the far right, the racism & the hate.
We no longer have a conversation AT ALL about how we need immigration & when we cut it, we pay the price. #r4today
Labour has completely capitulated the ground to the far right, the racism & the hate.
We no longer have a conversation AT ALL about how we need immigration & when we cut it, we pay the price. #r4today
November 27, 2025 at 8:41 AM
Our conversation about immigration is framed entirely on Nigel Farage’s terms.
Labour has completely capitulated the ground to the far right, the racism & the hate.
We no longer have a conversation AT ALL about how we need immigration & when we cut it, we pay the price. #r4today
Labour has completely capitulated the ground to the far right, the racism & the hate.
We no longer have a conversation AT ALL about how we need immigration & when we cut it, we pay the price. #r4today
Reposted by Scribbler Pen
Today we’ll get latest net immigration figures - They’ll show immigration for work is plummeting.
Why is this not part of the discussion on Rachel Reeves balancing her books & stalled growth?
For every 100,000 drop in net immigration, the OBR adds £7bn to the deficit. #r4today
Why is this not part of the discussion on Rachel Reeves balancing her books & stalled growth?
For every 100,000 drop in net immigration, the OBR adds £7bn to the deficit. #r4today
November 27, 2025 at 8:41 AM
Today we’ll get latest net immigration figures - They’ll show immigration for work is plummeting.
Why is this not part of the discussion on Rachel Reeves balancing her books & stalled growth?
For every 100,000 drop in net immigration, the OBR adds £7bn to the deficit. #r4today
Why is this not part of the discussion on Rachel Reeves balancing her books & stalled growth?
For every 100,000 drop in net immigration, the OBR adds £7bn to the deficit. #r4today
Byline Networks starter pack 2. Follow for good regional.and national citizen journalism and just some nice folk
go.bsky.app/L5nN6tD
go.bsky.app/L5nN6tD
November 26, 2025 at 4:56 PM
Byline Networks starter pack 2. Follow for good regional.and national citizen journalism and just some nice folk
go.bsky.app/L5nN6tD
go.bsky.app/L5nN6tD
Patients shouldn't be risking their lives and health when going *into hospitals* for diagnosis or treatment.
#Petition: Review #NHS policy on #masks, safe air & ventilation to protect vulnerable.
Please sign and share.
petition.parliament.uk/petitions/74...
#Covid #CEV #CovidIsAirborne #CleanAir
#Petition: Review #NHS policy on #masks, safe air & ventilation to protect vulnerable.
Please sign and share.
petition.parliament.uk/petitions/74...
#Covid #CEV #CovidIsAirborne #CleanAir
Petition: Review NHS policy on masks, safe air & ventilation to protect vulnerable
Vulnerable people — those with cancer, immune compromise, or chronic illness — should feel safe in NHS settings, not fearful. We’re calling for a 'do no harm' standard: an automatic right to treatment...
petition.parliament.uk
November 26, 2025 at 11:18 AM
Patients shouldn't be risking their lives and health when going *into hospitals* for diagnosis or treatment.
#Petition: Review #NHS policy on #masks, safe air & ventilation to protect vulnerable.
Please sign and share.
petition.parliament.uk/petitions/74...
#Covid #CEV #CovidIsAirborne #CleanAir
#Petition: Review #NHS policy on #masks, safe air & ventilation to protect vulnerable.
Please sign and share.
petition.parliament.uk/petitions/74...
#Covid #CEV #CovidIsAirborne #CleanAir