Carole Bruce
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cabruce.bsky.social
Carole Bruce
@cabruce.bsky.social
Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Pinned
#ME is a violent, turbulent condition. Words like brain fog, tiredness, aching, mood disturbance, interrupted sleep patterns, do not begin to describe the turmoil of #MECFS bodies. It’s like being attacked by a malevolent being, often for decades and without help or understanding.
Reposted by Carole Bruce
Labour front benchers scratch their heads and wonder why their base has collapsed, why so many people are disillusioned, frustrated, furious. I mean, what is it about pissing on every value and principle your party once upheld that alienates the electorate? Beats me. 🤔
February 13, 2026 at 10:32 AM
Reposted by Carole Bruce
Ah yes, that age-old justification for crimes against humanity. My bingo card is filling up already.
We are not bemused. We fully understand that in a complex world, leaders have to take unpalatable decisions at times, especially when dealing with megalomaniacs with more power.

Whilst it is tempting to break the world into simplistic black and white views, it really isn't that easy
February 10, 2026 at 7:42 AM
Reposted by Carole Bruce
When people say “but what about the good policies” they fail to understand the anger these things produce. As someone living on benefits due to disability & *still trying* to get PIP, the attack on disability alone was so personal, so cruel, literally nothing they do now would make me trust them
February 10, 2026 at 7:41 AM
‘Let me blunt: everything about how the NHS handles ME is broken. From the perspective of a patient and carer, everything is on fire.’
February 10, 2026 at 9:35 AM
Reposted by Carole Bruce
@ashleydaltonmp.bsky.social @tessamunt.bsky.social this is why Savannah is starving to death inside an NHS hospital right now.

A voluntary e-learning course was never going to cut it.
33/611000 doctors & nurses in NHS = 0.005% of NHS staff now with basic awareness of severe #ME/CFS.

It's farcical.
5/n

Today, I received their answer. This is the data table they sent me, of the number of people who have completed each of the 3 modules up to 20 January 2026:
February 9, 2026 at 5:05 PM
Reposted by Carole Bruce
FOI response shows uptake of ME/CFS e-learning from the government delivery plan:

• Intro: 371
• Community care: 101
• Severe ME: <50

From a workforce of ~188k doctors & ~423k nurses

This is the problem when training is “promoted” and not mandatory.
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...

🧵 1/n
February 9, 2026 at 5:30 PM
Reposted by Carole Bruce
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS...

🧵 1/n
February 9, 2026 at 3:57 PM
Reposted by Carole Bruce
🧵In all the media chat around No 10, missing are disabled people against whom this government declared war within weeks of coming to power. Ministers and No 10 comms whipped up bigotry to justify welfare cuts that weren't in Labour's manifesto. Ableism is normalised now in a way not seen in decades.
February 9, 2026 at 12:47 PM
Reposted by Carole Bruce
#pwME reminder that Savannah needs our help.

Please email the CEO of the hospital she is in, ben.travis@nhs.net, with just the title “Restore pain relief to Savannah NOW”

Also please keep donating to and sharing her fundraiser.
#mecfs #pwME

There's an update on Savannah's fundraiser and it is fucking grim.
The hospital have not changed course. Continuing to reduce pain meds. Still not reinstated antihistamine meaning Savannah's had no meaningful nutrition in 7 fucking weeks.

This is MURDER.

All 3 updates are from today.
Donate to #SevereMErgency:Save Savannah from dying inside NHS hospital, organized by Sam Pearce
Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital
www.gofundme.com
February 8, 2026 at 6:23 PM
This is so important. Savannah is on her own in the most terrible circumstances. So far the consultants (not specialists in #ME as there are non) are determinedly ignoring advice from Drs who do understand what treatment she should have. Spread the word. It’s literally a life and death situation.
#mecfs #pwME

There's an update on Savannah's fundraiser and it is fucking grim.
The hospital have not changed course. Continuing to reduce pain meds. Still not reinstated antihistamine meaning Savannah's had no meaningful nutrition in 7 fucking weeks.

This is MURDER.

All 3 updates are from today.
Donate to #SevereMErgency:Save Savannah from dying inside NHS hospital, organized by Sam Pearce
Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital
www.gofundme.com
February 8, 2026 at 10:33 AM
Reposted by Carole Bruce
@francesryan.bsky.social @goodlawproject.org
Are you aware of the below? NHS is slowly starving a severe #ME/CFS patient to death. Ofc it's a woman.

Very similar to how Maeve Boothby died 5 years ago, and despite a prevention of future deaths report, nothing has changed.

Can you help in any way?
#mecfs #pwME

There's an update on Savannah's fundraiser and it is fucking grim.
The hospital have not changed course. Continuing to reduce pain meds. Still not reinstated antihistamine meaning Savannah's had no meaningful nutrition in 7 fucking weeks.

This is MURDER.

All 3 updates are from today.
Donate to #SevereMErgency:Save Savannah from dying inside NHS hospital, organized by Sam Pearce
Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital
www.gofundme.com
February 8, 2026 at 9:56 AM
Ex GB News editorial director John McAndrew now the BBC Director of News Programmes
Robbie Gibb was an editorial advisor for GB News prior to its launch in 2021 & is now on the BBC board & a member of the BBC's editorial guidelines and standard committee
So Farage is their guy!
#BBC #Reform
February 7, 2026 at 1:18 PM
Reposted by Carole Bruce
Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation.

The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?
February 5, 2026 at 5:37 PM
Reposted by Carole Bruce
Reposted by Carole Bruce
1. In 2009 I wrote this. I argued that Peter Mandelson's department “functions as a fifth column within government, working for corporations to undermine democracy and the public interest.”
This thread explains what I saw, and reaches a startling conclusion.🧵
www.monbiot.com/2009/05/04/m...
Mandelson’s Fifth Column
The British government’s business department exists to undermine democracy.
www.monbiot.com
February 3, 2026 at 7:32 AM
Reposted by Carole Bruce
The thing is, you didn't have to be Nostradamus to see it. You just had to be independent of the ultra-rich. Unfortunately, the great majority of the media is in the plutocrats' pockets. So the people pointing it out are shunned. In 2009 I tried and tried to get the BBC to pick this up. But ...⛔🤐
1. In 2009 I wrote this. I argued that Peter Mandelson's department “functions as a fifth column within government, working for corporations to undermine democracy and the public interest.”
This thread explains what I saw, and reaches a startling conclusion.🧵
www.monbiot.com/2009/05/04/m...
Mandelson’s Fifth Column
The British government’s business department exists to undermine democracy.
www.monbiot.com
February 3, 2026 at 9:28 AM
Reposted by Carole Bruce
If this is what's going on now, just imagine the levels of corruption we'd descend into if the Farage cult got anywhere near Number 10.

Reform UK Ltd. are basically a front for foreign and offshore wealth and oligarchy.

Britain would become nothing more than an ATM.
It's rare to see how lobbyists operate. But the Epstein-Mandelson correspondence shows us what happens all the time: plutocrats and government ministers conspiring against the public interest. This is why all lobbying should be in the public domain, but despite Labour and Con promises, it's not. 🧵
February 2, 2026 at 9:12 AM
Reposted by Carole Bruce
It's rare to see how lobbyists operate. But the Epstein-Mandelson correspondence shows us what happens all the time: plutocrats and government ministers conspiring against the public interest. This is why all lobbying should be in the public domain, but despite Labour and Con promises, it's not. 🧵
February 2, 2026 at 8:20 AM
Reposted by Carole Bruce
A Green victory in the Gorton and Denton by-election would feel like divine justice.
January 30, 2026 at 12:42 PM
Reposted by Carole Bruce
Oh, and
4. Despite the demand for proportional representation from Labour members, Starmer won't change
our ridiculous First Past the Post system. So he's in no position to blame anyone for "splitting the vote".
share.google/buxD1tZ5BfKk...
January 30, 2026 at 3:55 PM
Reposted by Carole Bruce
BIG news from @bloomberg.com, which confirms that ICE has gone ahead and *purchased* multiple commercial warehouses with the aim of converting them into mass detention camps.

This is likely to be the big detention story of 2026 — literal warehousing of people.
www.bloomberg.com/news/feature...
ICE Begins Buying ‘Mega’ Warehouse Detention Centers Across US
Plans for such centers and jails in nearly two dozen communities have sparked protests over suitability, proximity to homes and schools.
www.bloomberg.com
January 30, 2026 at 4:47 PM
Reposted by Carole Bruce
I wrote this song on Saturday, recorded it yesterday and released it to you today in response to the state terror being visited on the city of Minneapolis. It’s dedicated to the people of Minneapolis, our innocent immigrant neighbors and in memory of Alex Pretti and Renee Good.

Stay free
Bruce Springsteen - Streets Of Minneapolis (Official Audio)
YouTube video by Bruce Springsteen
youtu.be
January 28, 2026 at 5:02 PM
Reposted by Carole Bruce
🧪New research from Marshall-Gradisnik and team in Australia that shows altered brain connectivity in Long Covid and ME patients. Subjects were scanned using Tesla-7 MRI whilst doing mental tasks.
January 28, 2026 at 9:10 PM
Forensic dive into the workings of the Labour Party. It’s not pretty!
For the record: “the Green Party don’t accept donations from multimillionaires or billionaires or oil/gas companies or private healthcare.” Zack Polanski, #BoldPolitics Who Bought the Labour Party
Why Keir Starmer Has No Power | Zack Polanski
YouTube video by Bold Politics with Zack Polanski
youtu.be
January 30, 2026 at 8:31 AM
Reposted by Carole Bruce
1/ A new study from Brigham and Women’s Faulkner Hospital, led by prominent researchers Peter Novak, David Systrom, and colleagues, compared 143 Long Covid, 170 ME/CFS, 73 healthy controls, and 290 hEDS patients to map shared autonomic and neurovascular dysfunction. 🧵
January 27, 2026 at 5:46 PM