Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Whilst it is tempting to break the world into simplistic black and white views, it really isn't that easy
Let’s begin with Gaza. Starmer’s complicity is one of the major reasons so many people are disillusioned.
rethinkingsecurityorguk.wpcomstaging.com/2025/10/07/i...
🧵
A voluntary e-learning course was never going to cut it.
33/611000 doctors & nurses in NHS = 0.005% of NHS staff now with basic awareness of severe #ME/CFS.
It's farcical.
Today, I received their answer. This is the data table they sent me, of the number of people who have completed each of the 3 modules up to 20 January 2026:
A voluntary e-learning course was never going to cut it.
33/611000 doctors & nurses in NHS = 0.005% of NHS staff now with basic awareness of severe #ME/CFS.
It's farcical.
• Intro: 371
• Community care: 101
• Severe ME: <50
From a workforce of ~188k doctors & ~423k nurses
This is the problem when training is “promoted” and not mandatory.
🧵 1/n
• Intro: 371
• Community care: 101
• Severe ME: <50
From a workforce of ~188k doctors & ~423k nurses
This is the problem when training is “promoted” and not mandatory.
🧵 1/n
🧵 1/n
Please email the CEO of the hospital she is in, ben.travis@nhs.net, with just the title “Restore pain relief to Savannah NOW”
Also please keep donating to and sharing her fundraiser.
There's an update on Savannah's fundraiser and it is fucking grim.
The hospital have not changed course. Continuing to reduce pain meds. Still not reinstated antihistamine meaning Savannah's had no meaningful nutrition in 7 fucking weeks.
This is MURDER.
All 3 updates are from today.
Please email the CEO of the hospital she is in, ben.travis@nhs.net, with just the title “Restore pain relief to Savannah NOW”
Also please keep donating to and sharing her fundraiser.
There's an update on Savannah's fundraiser and it is fucking grim.
The hospital have not changed course. Continuing to reduce pain meds. Still not reinstated antihistamine meaning Savannah's had no meaningful nutrition in 7 fucking weeks.
This is MURDER.
All 3 updates are from today.
Are you aware of the below? NHS is slowly starving a severe #ME/CFS patient to death. Ofc it's a woman.
Very similar to how Maeve Boothby died 5 years ago, and despite a prevention of future deaths report, nothing has changed.
Can you help in any way?
There's an update on Savannah's fundraiser and it is fucking grim.
The hospital have not changed course. Continuing to reduce pain meds. Still not reinstated antihistamine meaning Savannah's had no meaningful nutrition in 7 fucking weeks.
This is MURDER.
All 3 updates are from today.
Are you aware of the below? NHS is slowly starving a severe #ME/CFS patient to death. Ofc it's a woman.
Very similar to how Maeve Boothby died 5 years ago, and despite a prevention of future deaths report, nothing has changed.
Can you help in any way?
Robbie Gibb was an editorial advisor for GB News prior to its launch in 2021 & is now on the BBC board & a member of the BBC's editorial guidelines and standard committee
So Farage is their guy!
#BBC #Reform
The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?
The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?
www.theguardian.com/uk-news/2026...
www.theguardian.com/uk-news/2026...
This thread explains what I saw, and reaches a startling conclusion.🧵
www.monbiot.com/2009/05/04/m...
This thread explains what I saw, and reaches a startling conclusion.🧵
www.monbiot.com/2009/05/04/m...
This thread explains what I saw, and reaches a startling conclusion.🧵
www.monbiot.com/2009/05/04/m...
Reform UK Ltd. are basically a front for foreign and offshore wealth and oligarchy.
Britain would become nothing more than an ATM.
Reform UK Ltd. are basically a front for foreign and offshore wealth and oligarchy.
Britain would become nothing more than an ATM.
4. Despite the demand for proportional representation from Labour members, Starmer won't change
our ridiculous First Past the Post system. So he's in no position to blame anyone for "splitting the vote".
share.google/buxD1tZ5BfKk...
4. Despite the demand for proportional representation from Labour members, Starmer won't change
our ridiculous First Past the Post system. So he's in no position to blame anyone for "splitting the vote".
share.google/buxD1tZ5BfKk...
This is likely to be the big detention story of 2026 — literal warehousing of people.
www.bloomberg.com/news/feature...
This is likely to be the big detention story of 2026 — literal warehousing of people.
www.bloomberg.com/news/feature...
Stay free
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