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thereforme.bsky.social
ThereForME
@thereforme.bsky.social
1.6K followers 65 following 320 posts
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
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thereforme.bsky.social
ThereForME @thereforme.bsky.social · Jul 23
Today we’re celebrating a year to the day since @karenlhargrave.bsky.social & @emmagl.bsky.social launched #ThereForME!

We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
One year ago we launched #ThereForME, calling for an NHS that’s there for people with ME & Long Covid. What have we done so far?
thereforme.bsky.social
December 24th. Thank you for being #ThereForME, Rosie Barrett!

Rosie is a carer to her sister Alice and was featured this year by BBC Spotlight championing our #FundThePlan campaign. Nominated by Lauren. ✨
Photo of a smiling lady wearing a Santa hat in a polaroid-style frame on a starry background, marked with a bright star labelled ‘24’. Text says: ‘Thank you for being #ThereForME, Rosie Barrett!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “You are a carer for your sister, Alice, & you still find time to be an incredible advocate for her & the ME community. You have spoken on the news, you have started petitions & you have raised awareness of ME charities. Thank you ❤️” Hashtag #ThereForME at the bottom.
December 24, 2025 at 9:00 AM
thereforme.bsky.social
Bonus points if you noticed our post for Dec 21 was missing! Here it is now:

Thank you for being #ThereForME, Dr @binitakane.bsky.social ! Binita is a private consultant w a special interest in ME & Long Covid, a #ThereForME Ambassador + fierce advocate for pwME.
Nom'ed by @alexisme.bsky.social. ✨
Photo of a smiling woman in a polaroid-style frame on a starry background, marked with a bright star labelled ‘21’. Text says: ‘Thank you for being #ThereForME, Dr Binita Kane!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Your advocacy and care have made the world of difference to my experience of having ME, while your compassion and skill continue to improve the lives of so many people with ME and Long Covid. Thank you for all that you do for the community. Alexis.”
December 23, 2025 at 5:00 PM
thereforme.bsky.social
December 23rd. Thank you for being #ThereForME, Jenny Wilson!

Jenny is a long-standing advocate for people with ME and plays a pivotal role organising Dr Weir’s ME clinic. Nominated by Phoebe. ✨
Photo of a smiling lady in a polaroid-style frame on a starry background, marked with a bright star labelled ‘23’. Text says: ‘Thank you for being #ThereForME, Jenny Wilson!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “No one will believe the RESISTANCE; the quiet front, the charming little lady who goes nowhere, writes and speaks beautifully, belying a force of nature ten thousand hearts strong. Linking, doctoring, remembering, writing, saving hearts with ME.” Hashtag #ThereForME at the bottom.
December 23, 2025 at 9:00 AM
Reposted by ThereForME
tessamunt.bsky.social
The decades long neglect of #pwME is a great injustice and we are all poorer for it. I’m proud to be one of the 72 LibDem MPs who have fought to address this. And I know that I’m not alone in committing to continuing the fight to see real change in 2026.
thereforme.bsky.social ThereForME @thereforme.bsky.social · 7d
December 22nd. Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems @libdems.org.uk!

This year the LibDems have been key players championing the need for improved support for people with ME in parliament. Nominated by Jonah Weisz @weiszguy.bsky.social ✨
Photo of a smiling man wearing a pink shirt in a polaroid-style frame on a starry background, marked with a bright star labelled ‘22’. Text says: ‘Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Thank you Ed Davey & the Lib Dems for being #ThereForME! We were overwhelmed, but not surprised, to see how quickly all 72 MPs signed Tessa Munt's letter on the Delivery Plan. Thank you, Sir Ed, for encouraging a supportive culture that has enabled the party to stand so firmly with people with ME.” Hashtag #ThereForME at the bottom.
December 22, 2025 at 11:56 PM
Reposted by ThereForME
weiszguy.bsky.social
I nominated Sir Ed because the support ME and Long Covid communities have received from the Lib Dems has been exemplary. This ‘eMEy’ award is a testament to the culture of the party and its parliamentarians
thereforme.bsky.social ThereForME @thereforme.bsky.social · 7d
December 22nd. Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems @libdems.org.uk!

This year the LibDems have been key players championing the need for improved support for people with ME in parliament. Nominated by Jonah Weisz @weiszguy.bsky.social ✨
Photo of a smiling man wearing a pink shirt in a polaroid-style frame on a starry background, marked with a bright star labelled ‘22’. Text says: ‘Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Thank you Ed Davey & the Lib Dems for being #ThereForME! We were overwhelmed, but not surprised, to see how quickly all 72 MPs signed Tessa Munt's letter on the Delivery Plan. Thank you, Sir Ed, for encouraging a supportive culture that has enabled the party to stand so firmly with people with ME.” Hashtag #ThereForME at the bottom.
December 22, 2025 at 10:54 AM
Reposted by ThereForME
medidier.bsky.social
When coming down with #ME 4y ago I felt betrayed and dissapointed by all parties in the UK like never before in my life. I have never been a 'one-issue' voter but the treatment of #pwME/LC is so scandalous and criminal, so disabling, that everything, including politics, reduced to that...

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thereforme.bsky.social ThereForME @thereforme.bsky.social · 7d
December 22nd. Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems @libdems.org.uk!

This year the LibDems have been key players championing the need for improved support for people with ME in parliament. Nominated by Jonah Weisz @weiszguy.bsky.social ✨
Photo of a smiling man wearing a pink shirt in a polaroid-style frame on a starry background, marked with a bright star labelled ‘22’. Text says: ‘Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Thank you Ed Davey & the Lib Dems for being #ThereForME! We were overwhelmed, but not surprised, to see how quickly all 72 MPs signed Tessa Munt's letter on the Delivery Plan. Thank you, Sir Ed, for encouraging a supportive culture that has enabled the party to stand so firmly with people with ME.” Hashtag #ThereForME at the bottom.
December 22, 2025 at 10:52 AM
thereforme.bsky.social
December 22nd. Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems @libdems.org.uk!

This year the LibDems have been key players championing the need for improved support for people with ME in parliament. Nominated by Jonah Weisz @weiszguy.bsky.social ✨
Photo of a smiling man wearing a pink shirt in a polaroid-style frame on a starry background, marked with a bright star labelled ‘22’. Text says: ‘Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Thank you Ed Davey & the Lib Dems for being #ThereForME! We were overwhelmed, but not surprised, to see how quickly all 72 MPs signed Tessa Munt's letter on the Delivery Plan. Thank you, Sir Ed, for encouraging a supportive culture that has enabled the party to stand so firmly with people with ME.” Hashtag #ThereForME at the bottom.
December 22, 2025 at 9:00 AM
thereforme.bsky.social
December 20th. Thank you for being #ThereForME, Dr Jo Greer!

Jo is the founder of the Red Leaf Creative Collaborative, a group of creatives that shares artistic expressions of hope for #PwME. Nominated by Shirley (and everyone at The Red Leaf Creative Collaborative). ✨
The Red Tree and ME logo in a polaroid-style frame on a starry background, marked with a bright star labelled ‘20’. Text says: ‘Thank you for being #ThereForME, Dr Jo Greer!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Thank you Jo for all your work through The Red Tree and M.E , for the awareness and inspiration it provides, creating hope, solidarity, strength and a driving force for action “one red leaf at a time” 🍂 ” Hashtag #ThereForME at the bottom.
December 20, 2025 at 9:00 AM
thereforme.bsky.social
December 19th. Thank you for being #ThereForME, Joan McParland MBE!

Joan is the founder and coordinator of Hope 4 ME & Fibro Northern Ireland. Nominated by Rebecca. ✨
Photo of a smiling lady in a polaroid-style frame on a starry background, marked with a bright star labelled ‘19’. Text says: ‘Thank you for being #ThereForME, Joan McParland!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Joan, You are an inspiration to me & many ME sufferers across NI & beyond. You've founded an amazing charity in Hope 4 ME & Fibro NI & campaigned tirelessly for decades to raise awareness despite living with ME yourself. Lots of love, Rebecca” Hashtag #ThereForME at the bottom.
December 19, 2025 at 9:00 AM
thereforme.bsky.social
December 18th. Thank you for being #ThereForME, Alice @smileformeuk.bsky.social!

Alice is the founder of Smile for ME, a charity that sends personalised presents (“Smiles”) to people with ME and their carers. Nominated by Team SalShirl ✨
Photo of a smiley lady in a polaroid-style frame on a starry background, marked with a bright star labelled ‘18’. Text says: ‘Thank you for being #ThereForME, Alice@SmileForME!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Alice, Thank you for bringing so many smiles to people with M.E. 😊 Your generosity, compassion and kindness shines through your beautifully chosen gifts. Thank you for everything you bring to the M.E community through Smile for ME. X💙🩵x” Hashtag #ThereForME at the bottom.
December 18, 2025 at 9:00 AM
thereforme.bsky.social
December 17th. Thank you for being #ThereForME, @georgemonbiot.bsky.social!

George is a well-known journalist who has focused on uncovering the reality of the “greatest medical scandal of the 21st Century”. Nominated by Carole B @cabruce.bsky.social. ✨
Photo of a man in a scarf in a polaroid-style frame on a starry background, marked with a bright star labelled ‘17’. Text says: ‘Thank you for being #ThereForME, George Monbiot!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Dear George, Your writing, your videos and your interest in the plight of ME sufferers is unsurpassed. You have all the facts coupled with understanding and humanity that makes us all feel really seen and safer with your backing. Thank you. ” Hashtag #ThereForME at the bottom.
December 17, 2025 at 9:00 AM
thereforme.bsky.social
December 16th. Thank you for being #ThereForME, Fran Haddock!

Fran lives with severe ME and is a tireless advocate for the community. Nominated by Wren. ✨
Photo of a lady dressed in purple in a polaroid-style frame on a starry background, marked with a bright star labelled ‘16’. Text says: ‘Thank you for being #ThereForME, Fran Haddock!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Dear Fran, Through absolutely everything, I’ve been amazed at your constant effort to show up for your friends and your community. You care more than anybody I’ve ever met, and you motivate me to be so much braver, kinder and louder. Love you xx” Hashtag #ThereForME at the bottom.
December 16, 2025 at 9:01 AM
thereforme.bsky.social
December 15th. Thank you for being #ThereForME, Nicky Proctor!

Nicky is an advocate for people with ME, who volunteers with various ME organisations - including #ThereForMe. Nominated by Odette & the York ME Community slow-lane.bsky.social. ✨
Photo of a smiling long-haired lady in a polaroid-style frame on a starry background, marked with a bright star labelled ‘15’. Text says: ‘Thank you for being #ThereForME, Nicky Proctor!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Nicky, you're a supreme advocate for pwME - continuously striving to educate, inform & instigate change across every sector & level, be it friend/peer groups to healthcare providers & their management plus local MPs. You are amazing in every way. ” Hashtag #ThereForME at the bottom.
December 15, 2025 at 9:00 AM
thereforme.bsky.social
December 14th. Thank you for being #ThereForME, Marlene!

Marlene was nominated by her son Gav, who is affected by ME. ✨
Photo of a smiley lady in a polaroid-style frame on a starry background, marked with a bright star labelled ‘14’. Text says: ‘Thank you for being #ThereForME, Marlene!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Mum - thank you for supporting me unconditionally, for looking after my pets and for cleaning my house when I couldn’t. Your unwavering support when I was finding it hard to shine makes you being my Mum sublime. X ” Hashtag #ThereForME at the bottom.
December 14, 2025 at 9:00 AM
Reposted by ThereForME
deemontague.bsky.social
Jan and the @wamesmecfs.bsky.social team are amazing and do so much for #PwME across #Wales 💙
Thank you so much! 🥰
thereforme.bsky.social ThereForME @thereforme.bsky.social · 16d
December 13th. Thank you for being #ThereForME, Jan Russell @wamesmecfs.bsky.social!

Jan is Chair of the Welsh Association of ME and CFS Support (WAMES). Nominated by @deemontague.bsky.social ✨
Photo of a smiling lady wearing glasses in a polaroid-style frame on a starry background, marked with a bright star labelled ‘13’. Text says: ‘Thank you for being #ThereForME, Jan Russell!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Diolch o galon for all you and WAMES do for people living with ME across Wales! We'd be lost without you, and we wouldn't have ME in the NHS Wales Women's Health Plan without the work of your tiny but mighty charity. Thank you all for everything. ” Hashtag #ThereForME at the bottom.
December 13, 2025 at 10:59 AM
thereforme.bsky.social
December 13th. Thank you for being #ThereForME, Jan Russell @wamesmecfs.bsky.social!

Jan is Chair of the Welsh Association of ME and CFS Support (WAMES). Nominated by @deemontague.bsky.social ✨
Photo of a smiling lady wearing glasses in a polaroid-style frame on a starry background, marked with a bright star labelled ‘13’. Text says: ‘Thank you for being #ThereForME, Jan Russell!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Diolch o galon for all you and WAMES do for people living with ME across Wales! We'd be lost without you, and we wouldn't have ME in the NHS Wales Women's Health Plan without the work of your tiny but mighty charity. Thank you all for everything. ” Hashtag #ThereForME at the bottom.
December 13, 2025 at 9:00 AM
thereforme.bsky.social
December 12th. Thank you for being #ThereForME, Rowan Wyatt!

Rowan was nominated by his partner Keren. ✨
Photo of a hairy man wearing a Santa hat in a polaroid-style frame on a starry background, marked with a bright star labelled ‘11’. Text says: ‘Thank you for being #ThereForME, DecodeME team!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Dear Rowan, you have loved and taken care of me through all the downs and downs (there haven't been many ups) of this illness. More than that, seen past it for who I really am. You mean the absolute world to me and I love you. Thank you, Keren xx ” Hashtag #ThereForME at the bottom.
December 12, 2025 at 9:00 AM
thereforme.bsky.social
December 11th. Thank you for being #ThereForME, @decodemestudy.bsky.social !

Earlier this year the team, based at the University of Edinburgh, released groundbreaking research findings, revealing distinct genetic signals in people with ME. Nominated by Michael. ✨
The DecodME logo (with a Santa hat) in a polaroid-style frame on a starry background, marked with a bright star labelled ‘11’. Text says: ‘Thank you for being #ThereForME, DecodeME team!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Dear Chris Ponting & the DecodeME team, Your DecodeME findings are a huge scientific and emotional milestone for people with ME. Thank you for driving research and hope — we’re grateful you’re #ThereForME.” Hashtag #ThereForME at the bottom.
December 11, 2025 at 9:01 AM
thereforme.bsky.social
Tessa & team asked us to provide a briefing for the APPG meeting yesterday on gaps in the delivery plan for people with severe & very severe ME.

Big thanks to Tessa for stepping up to lead on this issue 🙏

We agree, Tessa. After decades of neglect, let’s get on with it!
tessamunt.bsky.social Tessa Munt MP 🔶 @tessamunt.bsky.social · 19d
My reflections after today’s APPG ME meeting….

‘As we look to 2026, it’s clear that there’s plenty that needs MPs’ engagement. Across the ME community there’s so much shared lived experience and analysis to inform the work that we do. So, let’s get on with it! Let’s all work together next year!
December 11, 2025 at 8:36 AM
Reposted by ThereForME
inclusivenew.bsky.social
Delighted to see our founder @salwitcher.bsky.social
in the #ThereForME advent calendar, nominated by @murtoz.bsky.social, a member of our INN the Benefits System group. Many thanks to Social Security Scotland &
for listening to us & Edel Harris for including our input in her ADP review report.
thereforme.bsky.social ThereForME @thereforme.bsky.social · 19d
December 10th. Thank you for being #ThereForME, Dr Sally Witcher @inclusivenew.bsky.social!

Sally is the founder of Inclusive New Normal, a social enterprise aiming to drive forward learning from the pandemic, towards a safe, inclusive new normal. Nominated by Michiel. ✨
Photo of a lady with a lovely smile in a polaroid-style frame on a starry background, marked with a bright star labelled ‘10’. Text says: ‘Thank you for being #ThereForME, Dr Sally Witcher!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Dear Sally, Thank you for representing pandemic disabled people at Inclusive New Normal, inc. those with Long Covid and ME. Your invaluable experience and connections have made sure our voices are heard by the Scottish government & ADP review! 🩵” Hashtag #ThereForME at the bottom.
December 10, 2025 at 4:45 PM
Reposted by ThereForME
salwitcher.bsky.social
Honoured to be featured in the #ThereForME advent calendar! Huge thanks to @murtoz.bsky.social for the nomination🙏. Inspiring to work with people like you, with lived experience of ME & pandemic disability, via
@inclusivenew.bsky.social & we're so grateful to those who've listened.
thereforme.bsky.social ThereForME @thereforme.bsky.social · 19d
December 10th. Thank you for being #ThereForME, Dr Sally Witcher @inclusivenew.bsky.social!

Sally is the founder of Inclusive New Normal, a social enterprise aiming to drive forward learning from the pandemic, towards a safe, inclusive new normal. Nominated by Michiel. ✨
Photo of a lady with a lovely smile in a polaroid-style frame on a starry background, marked with a bright star labelled ‘10’. Text says: ‘Thank you for being #ThereForME, Dr Sally Witcher!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Dear Sally, Thank you for representing pandemic disabled people at Inclusive New Normal, inc. those with Long Covid and ME. Your invaluable experience and connections have made sure our voices are heard by the Scottish government & ADP review! 🩵” Hashtag #ThereForME at the bottom.
December 10, 2025 at 4:38 PM
Reposted by ThereForME
johnthejack.bsky.social
This will be available to watch here
www.senedd.tv/Meeting/Live...

We are hoping that the response from the Welsh government will benefit all patients in Wales and may serve as model for rest of UK.

#MEcfs #LongCovid

@actionforme.bsky.social @meassociation.org.uk @thereforme.bsky.social
December 10, 2025 at 11:36 AM
thereforme.bsky.social
December 10th. Thank you for being #ThereForME, Dr Sally Witcher @inclusivenew.bsky.social!

Sally is the founder of Inclusive New Normal, a social enterprise aiming to drive forward learning from the pandemic, towards a safe, inclusive new normal. Nominated by Michiel. ✨
Photo of a lady with a lovely smile in a polaroid-style frame on a starry background, marked with a bright star labelled ‘10’. Text says: ‘Thank you for being #ThereForME, Dr Sally Witcher!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Dear Sally, Thank you for representing pandemic disabled people at Inclusive New Normal, inc. those with Long Covid and ME. Your invaluable experience and connections have made sure our voices are heard by the Scottish government & ADP review! 🩵” Hashtag #ThereForME at the bottom.
December 10, 2025 at 9:00 AM
thereforme.bsky.social
Been struggling to keep up with our advent calendar?

You can read our recap of the past week’s advent calendar stars 👇

www.thereforme.uk/p/2025-adven...
2025 Advent Calendar: Week #2
We're opening a week's worth of doors in our #ThereForME Advent Calendar!
www.thereforme.uk
December 9, 2025 at 9:19 AM
thereforme.bsky.social
December 9th. Thank you for being #ThereForME, Frank Docherty!

Frank was nominated by his wife Susan for his invaluable support since she developed ME. ✨
Photo of a smiling man wearing an apron that says “Fun Time Frankie: The man, the myth, the legend” in a polaroid-style frame on a starry background, marked with a bright star labelled ‘9’. Text says: ‘Thank you for being #ThereForME, Frank Docherty!’ and ‘Advent Calendar 2025’. Graphic of a letter on a starry blue background. The letter says “Francis, Thank you for all you do for me, especially since M E changed our lives. Thank you for your endless patience, for every cancelled plan, every meal, every chore. You show what "in sickness and in health" truly means. I'm so lucky to have you” Hashtag #ThereForME at the bottom.
December 9, 2025 at 9:00 AM