ThereForME
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
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ThereForME
@thereforme.bsky.social
· Jul 23
Today we’re celebrating a year to the day since @karenlhargrave.bsky.social & @emmagl.bsky.social launched #ThereForME!
We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
Reposted by ThereForME
(2/2) Please write to your MP and ask them to attend! You can find your local MP here: members.parliament.uk/FindYourMP
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
Find your MP - MPs and Lords - UK Parliament
Enter your postcode, location, MPs name or job title to find the name and contact details of your local MP.
members.parliament.uk
November 14, 2025 at 9:52 AM
(2/2) Please write to your MP and ask them to attend! You can find your local MP here: members.parliament.uk/FindYourMP
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
Reposted by ThereForME
(1/2) 📢 Westminster Hall debate on government support for ME
Tessa Munt MP has tabled a debate on government support for people with ME next week in Westminster. This is an important opportunity to make sure the voices of people with ME are heard in Parliament.
Tessa Munt MP has tabled a debate on government support for people with ME next week in Westminster. This is an important opportunity to make sure the voices of people with ME are heard in Parliament.
November 14, 2025 at 9:51 AM
(1/2) 📢 Westminster Hall debate on government support for ME
Tessa Munt MP has tabled a debate on government support for people with ME next week in Westminster. This is an important opportunity to make sure the voices of people with ME are heard in Parliament.
Tessa Munt MP has tabled a debate on government support for people with ME next week in Westminster. This is an important opportunity to make sure the voices of people with ME are heard in Parliament.
Reposted by ThereForME
Delighted that I’ve secured a debate in Parliament on ‘Government support for ME’ next Wednesday 19 November. This provides a valuable opportunity for MPs to share views - the first in years. I hope that many MPs will join me. Do encourage yours! #pwME
November 13, 2025 at 5:59 PM
Delighted that I’ve secured a debate in Parliament on ‘Government support for ME’ next Wednesday 19 November. This provides a valuable opportunity for MPs to share views - the first in years. I hope that many MPs will join me. Do encourage yours! #pwME
Reposted by ThereForME
Done. Please do take a few moments to help #pwME.
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
November 13, 2025 at 7:20 PM
Done. Please do take a few moments to help #pwME.
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
November 13, 2025 at 9:48 AM
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
Reposted by ThereForME
1️⃣ 🧵 NEW: The government’s Keep Britain Working report claims to tackle the UK’s crisis of ill health & economic inactivity.
But it never mentions Long Covid.
Not once.
Not the pandemic either.
That’s not a small oversight — it’s a fundamental flaw. Let’s unpack why 👇
🔗 www.gov.uk/government/p...
But it never mentions Long Covid.
Not once.
Not the pandemic either.
That’s not a small oversight — it’s a fundamental flaw. Let’s unpack why 👇
🔗 www.gov.uk/government/p...
Keep Britain Working Review: Final report
Keep Britain Working is an independent review of the role of employers in tackling health based economic inactivity and promoting healthy and inclusive workplaces.
www.gov.uk
November 5, 2025 at 1:22 PM
1️⃣ 🧵 NEW: The government’s Keep Britain Working report claims to tackle the UK’s crisis of ill health & economic inactivity.
But it never mentions Long Covid.
Not once.
Not the pandemic either.
That’s not a small oversight — it’s a fundamental flaw. Let’s unpack why 👇
🔗 www.gov.uk/government/p...
But it never mentions Long Covid.
Not once.
Not the pandemic either.
That’s not a small oversight — it’s a fundamental flaw. Let’s unpack why 👇
🔗 www.gov.uk/government/p...
Reposted by ThereForME
For too long, ME has been underfunded, under-researched, and poorly understood. Patients deserve better.
You can read more in my guest blog for @thereforme.bsky.social below:
You can read more in my guest blog for @thereforme.bsky.social below:
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
November 4, 2025 at 11:21 AM
For too long, ME has been underfunded, under-researched, and poorly understood. Patients deserve better.
You can read more in my guest blog for @thereforme.bsky.social below:
You can read more in my guest blog for @thereforme.bsky.social below:
Reposted by ThereForME
Great piece explaining so clearly the situation faced by people affected by ME in her constituency from my @libdems.org.uk colleague @wendychambld.bsky.social. 🙏🏽
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
November 4, 2025 at 10:37 AM
Great piece explaining so clearly the situation faced by people affected by ME in her constituency from my @libdems.org.uk colleague @wendychambld.bsky.social. 🙏🏽
Reposted by ThereForME
👍 @wendychambld.bsky.social without muddling the issue: "there are currently no specialist doctors and nurses [for ME] across the whole of Scotland".
Applies to basically worldwide... despite millions more since 2020.
www.thereforme.uk/p/scotland-m...
Applies to basically worldwide... despite millions more since 2020.
www.thereforme.uk/p/scotland-m...
Scotland must step up on ME care and research
An opinion piece from Wendy Chamberlain MP
www.thereforme.uk
November 4, 2025 at 10:31 AM
👍 @wendychambld.bsky.social without muddling the issue: "there are currently no specialist doctors and nurses [for ME] across the whole of Scotland".
Applies to basically worldwide... despite millions more since 2020.
www.thereforme.uk/p/scotland-m...
Applies to basically worldwide... despite millions more since 2020.
www.thereforme.uk/p/scotland-m...
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
November 4, 2025 at 9:25 AM
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Update from the APPG on ME 👇
October 29, 2025 at 10:22 AM
Update from the APPG on ME 👇
In today's Substack post we share news about what steps are currently being taken to support those with ME and Long Covid.
Link in next post 👇
Link in next post 👇
October 28, 2025 at 11:41 AM
In today's Substack post we share news about what steps are currently being taken to support those with ME and Long Covid.
Link in next post 👇
Link in next post 👇
Reposted by ThereForME
Latest campaign update from @thereforme.bsky.social ⤵️
To follow closely: six conferences coming up on ME/LC in nov 💪
Though, as always, what "really matters is not the meetings, talk and words - but whether they lead to action"
www.thereforme.uk/p/campaign-u...
To follow closely: six conferences coming up on ME/LC in nov 💪
Though, as always, what "really matters is not the meetings, talk and words - but whether they lead to action"
www.thereforme.uk/p/campaign-u...
Campaign Update #27: What’s next?
Today we’re sharing an update on actions from the Final Delivery Plan and how you can help inform future insights on ME.
www.thereforme.uk
October 28, 2025 at 9:28 AM
Latest campaign update from @thereforme.bsky.social ⤵️
To follow closely: six conferences coming up on ME/LC in nov 💪
Though, as always, what "really matters is not the meetings, talk and words - but whether they lead to action"
www.thereforme.uk/p/campaign-u...
To follow closely: six conferences coming up on ME/LC in nov 💪
Though, as always, what "really matters is not the meetings, talk and words - but whether they lead to action"
www.thereforme.uk/p/campaign-u...
It’s your last chance to get your nominations in for the #ThereForME 2025 advent calendar!
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
October 26, 2025 at 8:58 AM
It’s your last chance to get your nominations in for the #ThereForME 2025 advent calendar!
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
Reposted by ThereForME
This is happening everyday, everywhere.
Read the story of Rosie and Alice.
Everyone who has been hospitalised with ME, knows it.
"Hospitals should be places of healing – but for people with severe ME, they are often sources of harm".
#GreatestMEdicalScandal
www.thereforme.uk/p/sensory-he...
Read the story of Rosie and Alice.
Everyone who has been hospitalised with ME, knows it.
"Hospitals should be places of healing – but for people with severe ME, they are often sources of harm".
#GreatestMEdicalScandal
www.thereforme.uk/p/sensory-he...
Sensory hell and medical harm
My sister’s experience of very severe ME in the NHS
www.thereforme.uk
October 21, 2025 at 8:57 AM
This is happening everyday, everywhere.
Read the story of Rosie and Alice.
Everyone who has been hospitalised with ME, knows it.
"Hospitals should be places of healing – but for people with severe ME, they are often sources of harm".
#GreatestMEdicalScandal
www.thereforme.uk/p/sensory-he...
Read the story of Rosie and Alice.
Everyone who has been hospitalised with ME, knows it.
"Hospitals should be places of healing – but for people with severe ME, they are often sources of harm".
#GreatestMEdicalScandal
www.thereforme.uk/p/sensory-he...
Today's guest blog is from Rosie Barrett, who writes about her sister Alice's experiences.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
October 21, 2025 at 8:29 AM
Today's guest blog is from Rosie Barrett, who writes about her sister Alice's experiences.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
It would be lovely to celebrate some of the journalists in print and broadcast media who have told our stories and raised awareness.
October 20, 2025 at 6:32 PM
It would be lovely to celebrate some of the journalists in print and broadcast media who have told our stories and raised awareness.
Which researchers do you think deserve to feature in the #ThereForME advent calendar this year?
October 19, 2025 at 4:06 PM
Which researchers do you think deserve to feature in the #ThereForME advent calendar this year?
We'd love to be able to thank some MPs for being #ThereForME!
October 19, 2025 at 7:52 AM
We'd love to be able to thank some MPs for being #ThereForME!
Reposted by ThereForME
Clip from yesterday’s Westminster debate on PoTS, Tessa Munt MP @tessamunt.bsky.social raised the case of a constituent’s daughter with #MECFS who believes she also has PoTS. After finally seeing a consultant in Bristol, she was told PoTS was “a TikTok fashion” and refused any testing.
October 15, 2025 at 10:16 AM
Clip from yesterday’s Westminster debate on PoTS, Tessa Munt MP @tessamunt.bsky.social raised the case of a constituent’s daughter with #MECFS who believes she also has PoTS. After finally seeing a consultant in Bristol, she was told PoTS was “a TikTok fashion” and refused any testing.
We've already had some lovely nominations! Keep 'em coming!
October 14, 2025 at 4:23 PM
We've already had some lovely nominations! Keep 'em coming!
We know that support for people with ME isn't anywhere near as good as it should be - & we're working hard to change that.
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
October 11, 2025 at 2:32 PM
We know that support for people with ME isn't anywhere near as good as it should be - & we're working hard to change that.
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?