ThereForME
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
Today we've got a blog from Yanto Evans, focused on Long Covid in Wales and why the Welsh government should prioritise the unfolding health crisis.
His guest blog is also available in Welsh translation.
Link in next post 👇
His guest blog is also available in Welsh translation.
Link in next post 👇
!["In December 2024 [...] the Welsh Cabinet Secretary for Health and Social Care, Jeremy Miles, proclaimed the population was deveoping 'natural immunity' to Covid-19. This is misleading and dangerous." Yanto Evans. New #ThereForME Substack post.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreibzujbi2sfy4zeqyk3mxnbjy6t6bkw23xrpipqr4hquf67cvpxd5y@jpeg)
November 18, 2025 at 9:29 AM
Today we've got a blog from Yanto Evans, focused on Long Covid in Wales and why the Welsh government should prioritise the unfolding health crisis.
His guest blog is also available in Welsh translation.
Link in next post 👇
His guest blog is also available in Welsh translation.
Link in next post 👇
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
November 4, 2025 at 9:25 AM
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
In today's Substack post we share news about what steps are currently being taken to support those with ME and Long Covid.
Link in next post 👇
Link in next post 👇
October 28, 2025 at 11:41 AM
In today's Substack post we share news about what steps are currently being taken to support those with ME and Long Covid.
Link in next post 👇
Link in next post 👇
It’s your last chance to get your nominations in for the #ThereForME 2025 advent calendar!
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
October 26, 2025 at 8:58 AM
It’s your last chance to get your nominations in for the #ThereForME 2025 advent calendar!
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
⏱️ Today is the last day before nominations close
You can add your nomination here: docs.google.com/forms/d/e/1F...
Today's guest blog is from Rosie Barrett, who writes about her sister Alice's experiences.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
October 21, 2025 at 8:29 AM
Today's guest blog is from Rosie Barrett, who writes about her sister Alice's experiences.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
Rosie outlines the challenges people with v. severe ME face navigating sensory sensitivities, at home and in hospital - and the creativity & flexibility needed to provide safe care.
It would be lovely to celebrate some of the journalists in print and broadcast media who have told our stories and raised awareness.
October 20, 2025 at 6:32 PM
It would be lovely to celebrate some of the journalists in print and broadcast media who have told our stories and raised awareness.
Which researchers do you think deserve to feature in the #ThereForME advent calendar this year?
October 19, 2025 at 4:06 PM
Which researchers do you think deserve to feature in the #ThereForME advent calendar this year?
We'd love to be able to thank some MPs for being #ThereForME!
October 19, 2025 at 7:52 AM
We'd love to be able to thank some MPs for being #ThereForME!
We've already had some lovely nominations! Keep 'em coming!
October 14, 2025 at 4:23 PM
We've already had some lovely nominations! Keep 'em coming!
We know that support for people with ME isn't anywhere near as good as it should be - & we're working hard to change that.
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
October 11, 2025 at 2:32 PM
We know that support for people with ME isn't anywhere near as good as it should be - & we're working hard to change that.
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
But this Christmas we wanted to take a moment to celebrate those in the UK who are in our corner.
Can you help us find our #ThereForME advent calendar stars?
From Lib Dem conference to Washington DC - today's #ThereForME campaign update shares an update from advocacy in the UK and overseas.
Read on to find out more 👇
(Link in next post)
Read on to find out more 👇
(Link in next post)
October 7, 2025 at 8:23 AM
From Lib Dem conference to Washington DC - today's #ThereForME campaign update shares an update from advocacy in the UK and overseas.
Read on to find out more 👇
(Link in next post)
Read on to find out more 👇
(Link in next post)
Today's #ThereForME blog shares findings from a mini survey.
We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.
Link in next post 👇
We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.
Link in next post 👇
September 23, 2025 at 8:20 AM
Today's #ThereForME blog shares findings from a mini survey.
We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.
Link in next post 👇
We asked carers and clinicians with experience supporting people with v severe ME whether the Health Secretary should commission a service for v severe ME - and if so, what it should look like.
Link in next post 👇
Our #ThereForMe blog is back!
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
September 2, 2025 at 8:25 AM
Our #ThereForMe blog is back!
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
Our team took a month off in August but we’re back in action. Today we’re sharing three burning questions on our mind as we look to the months ahead.
Link in next post 👇
Today’s #ThereForME blog is our last update before a short pause (we’ll be back in September 😎).
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
July 29, 2025 at 8:24 AM
Today’s #ThereForME blog is our last update before a short pause (we’ll be back in September 😎).
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
So that is Year 1 of #ThereForME Wrapped!
A huge thank you to everyone who has helped along the way. From support and encouragement on social media, to our gang of helpful volunteers - we couldn’t have done it without you 💙
A huge thank you to everyone who has helped along the way. From support and encouragement on social media, to our gang of helpful volunteers - we couldn’t have done it without you 💙
July 23, 2025 at 8:43 AM
So that is Year 1 of #ThereForME Wrapped!
A huge thank you to everyone who has helped along the way. From support and encouragement on social media, to our gang of helpful volunteers - we couldn’t have done it without you 💙
A huge thank you to everyone who has helped along the way. From support and encouragement on social media, to our gang of helpful volunteers - we couldn’t have done it without you 💙
We’ve also been working to bring lived experience to the heart of policymaking.
We believe it’s essential to get lived experience in front of people with the power to influence policy and practice.
👇
We believe it’s essential to get lived experience in front of people with the power to influence policy and practice.
👇
July 23, 2025 at 8:43 AM
We’ve also been working to bring lived experience to the heart of policymaking.
We believe it’s essential to get lived experience in front of people with the power to influence policy and practice.
👇
We believe it’s essential to get lived experience in front of people with the power to influence policy and practice.
👇
We’ve been working to change narratives around ME and Long Covid.
Narratives can be notoriously difficult to shift but we’ve been chipping away at them over the past year. Part of this has been getting our team out in the media. We’ve also supported others to tell their stories 📣
Narratives can be notoriously difficult to shift but we’ve been chipping away at them over the past year. Part of this has been getting our team out in the media. We’ve also supported others to tell their stories 📣
July 23, 2025 at 8:42 AM
We’ve been working to change narratives around ME and Long Covid.
Narratives can be notoriously difficult to shift but we’ve been chipping away at them over the past year. Part of this has been getting our team out in the media. We’ve also supported others to tell their stories 📣
Narratives can be notoriously difficult to shift but we’ve been chipping away at them over the past year. Part of this has been getting our team out in the media. We’ve also supported others to tell their stories 📣
A lot of work (and support from volunteers!) has gone into some of our bigger campaigns.
From our #ThereForME advent calendar to #FundThePlan the past year has kept us busy 👇
From our #ThereForME advent calendar to #FundThePlan the past year has kept us busy 👇
July 23, 2025 at 8:41 AM
A lot of work (and support from volunteers!) has gone into some of our bigger campaigns.
From our #ThereForME advent calendar to #FundThePlan the past year has kept us busy 👇
From our #ThereForME advent calendar to #FundThePlan the past year has kept us busy 👇
We’re a small team and we can’t do it all. That’s why building a coalition is part of our strategy.
We think change for people with ME and Long Covid will be the result of a diverse coalition calling for action from many directions.
Some of our allies so far 👇
We think change for people with ME and Long Covid will be the result of a diverse coalition calling for action from many directions.
Some of our allies so far 👇
July 23, 2025 at 8:41 AM
We’re a small team and we can’t do it all. That’s why building a coalition is part of our strategy.
We think change for people with ME and Long Covid will be the result of a diverse coalition calling for action from many directions.
Some of our allies so far 👇
We think change for people with ME and Long Covid will be the result of a diverse coalition calling for action from many directions.
Some of our allies so far 👇
Today we’re celebrating a year to the day since @karenlhargrave.bsky.social & @emmagl.bsky.social launched #ThereForME!
We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
July 23, 2025 at 8:40 AM
Today we’re celebrating a year to the day since @karenlhargrave.bsky.social & @emmagl.bsky.social launched #ThereForME!
We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
“I honestly just did not realise that it was possible, in the UK in 2025, to be as sick as my husband is & for there to be basically no specialist NHS services to provide any kind of support”
Our co-founder @karenlhargrave.bsky.social on Radio 4 WATO 👇
(Recording via @abrokenbattery.bsky.social)
Our co-founder @karenlhargrave.bsky.social on Radio 4 WATO 👇
(Recording via @abrokenbattery.bsky.social)
July 22, 2025 at 4:32 PM
“I honestly just did not realise that it was possible, in the UK in 2025, to be as sick as my husband is & for there to be basically no specialist NHS services to provide any kind of support”
Our co-founder @karenlhargrave.bsky.social on Radio 4 WATO 👇
(Recording via @abrokenbattery.bsky.social)
Our co-founder @karenlhargrave.bsky.social on Radio 4 WATO 👇
(Recording via @abrokenbattery.bsky.social)
After 3+ years of waiting the Final Delivery Plan for ME is being released today.
Our comment 👇
Our comment 👇
July 22, 2025 at 8:09 AM
After 3+ years of waiting the Final Delivery Plan for ME is being released today.
Our comment 👇
Our comment 👇