ThereForME
@thereforme.bsky.social
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
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ThereForME
@thereforme.bsky.social
· Jul 23
Today we’re celebrating a year to the day since @karenlhargrave.bsky.social & @emmagl.bsky.social launched #ThereForME!
We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far
Reposted by ThereForME
A week ago the Westminster Hall debate on ME was held.
Thank you to all those who have watched the debate and sent messages of encouragement.
I’ve now written to the minister, Ashley Dalton, about the meeting she promised. And I have sent her the questions in my speech. 👇🏽
I’ll keep you posted.
Thank you to all those who have watched the debate and sent messages of encouragement.
I’ve now written to the minister, Ashley Dalton, about the meeting she promised. And I have sent her the questions in my speech. 👇🏽
I’ll keep you posted.
November 26, 2025 at 5:26 PM
A week ago the Westminster Hall debate on ME was held.
Thank you to all those who have watched the debate and sent messages of encouragement.
I’ve now written to the minister, Ashley Dalton, about the meeting she promised. And I have sent her the questions in my speech. 👇🏽
I’ll keep you posted.
Thank you to all those who have watched the debate and sent messages of encouragement.
I’ve now written to the minister, Ashley Dalton, about the meeting she promised. And I have sent her the questions in my speech. 👇🏽
I’ll keep you posted.
🚨 The APPG evidence session on severe ME has been rescheduled to 10 December 👇
1/3
📢 Rescheduled: APPG on ME severe ME enquiry evidence session
📆 Wednesday, 10 December
⏰ 3.30pm – 5.30pm
Invite your local MP to attend 👇
actionforme.eaction.org.uk/appg-severem...
#pwME #SevereME #APPG
⬇️
📢 Rescheduled: APPG on ME severe ME enquiry evidence session
📆 Wednesday, 10 December
⏰ 3.30pm – 5.30pm
Invite your local MP to attend 👇
actionforme.eaction.org.uk/appg-severem...
#pwME #SevereME #APPG
⬇️
November 25, 2025 at 11:39 AM
🚨 The APPG evidence session on severe ME has been rescheduled to 10 December 👇
Reposted by ThereForME
I'll say it again: what @thereforme.bsky.social continue to do in just 1 year for #pwME is astonishing. It is giving us so much dignity back.
Huge milestone last week with @tessamunt.bsky.social and other MPs (& a *little* push coming from Germany...)
⤵️⤵️
www.thereforme.uk/p/campaign-u...
Huge milestone last week with @tessamunt.bsky.social and other MPs (& a *little* push coming from Germany...)
⤵️⤵️
www.thereforme.uk/p/campaign-u...
Campaign Update #28: Five takeaways from Westminster Hall
Today’s update is focused on parliament, where last Wednesday MPs met in Westminster Hall for a debate focused on support for ME.
www.thereforme.uk
November 25, 2025 at 11:08 AM
I'll say it again: what @thereforme.bsky.social continue to do in just 1 year for #pwME is astonishing. It is giving us so much dignity back.
Huge milestone last week with @tessamunt.bsky.social and other MPs (& a *little* push coming from Germany...)
⤵️⤵️
www.thereforme.uk/p/campaign-u...
Huge milestone last week with @tessamunt.bsky.social and other MPs (& a *little* push coming from Germany...)
⤵️⤵️
www.thereforme.uk/p/campaign-u...
Today's #ThereForME blog shares our takeaways from last week's Westminster Hall debate, tabled by @tessamunt.bsky.social
👇
👇
November 25, 2025 at 9:45 AM
Today's #ThereForME blog shares our takeaways from last week's Westminster Hall debate, tabled by @tessamunt.bsky.social
👇
👇
Reposted by ThereForME
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
youtu.be
November 19, 2025 at 8:35 PM
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
📺 Westminster Hall Debate on ME today at 16:30
#ThereForMP @tessamunt.bsky.social will be leading the debate today focused on government support for #PwME
You can tune in here 👇
www.parliamentlive.tv/Event/Index/...
#ThereForMP @tessamunt.bsky.social will be leading the debate today focused on government support for #PwME
You can tune in here 👇
www.parliamentlive.tv/Event/Index/...
Parliamentlive.tv
Westminster Hall
www.parliamentlive.tv
November 19, 2025 at 3:27 PM
📺 Westminster Hall Debate on ME today at 16:30
#ThereForMP @tessamunt.bsky.social will be leading the debate today focused on government support for #PwME
You can tune in here 👇
www.parliamentlive.tv/Event/Index/...
#ThereForMP @tessamunt.bsky.social will be leading the debate today focused on government support for #PwME
You can tune in here 👇
www.parliamentlive.tv/Event/Index/...
Reposted by ThereForME
Reposted by ThereForME
Reposted by ThereForME
Reminder ⤵️👏
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
November 18, 2025 at 1:39 PM
Reminder ⤵️👏
Reposted by ThereForME
MP Tessa Munt has tabled a debate on UK Gov support for ME/CFS in Westminster Hall on Wed 19 Nov 2025. #ThereForMe have further information and a template letter people can use to ask their MP to attend.
tinyurl.com/4x9sp6jp
tinyurl.com/4x9sp6jp
Westminster Hall Debate on ME: Wednesday 19 November
Help us pack Westminster Hall!
tinyurl.com
November 17, 2025 at 2:53 PM
MP Tessa Munt has tabled a debate on UK Gov support for ME/CFS in Westminster Hall on Wed 19 Nov 2025. #ThereForMe have further information and a template letter people can use to ask their MP to attend.
tinyurl.com/4x9sp6jp
tinyurl.com/4x9sp6jp
Reposted by ThereForME
3/3
If you haven’t already, please contact your MP and urge them to be there. Every voice matters, and attendance is crucial for driving real change for #pwME!
Template letter (via #ThereForME) 👇
docs.google.com/document/d/1...
If you haven’t already, please contact your MP and urge them to be there. Every voice matters, and attendance is crucial for driving real change for #pwME!
Template letter (via #ThereForME) 👇
docs.google.com/document/d/1...
Write to your MP
Write to your MP Substack: https://www.thereforme.uk/ Linktree: https://linktr.ee/ThereForME About #ThereForME #ThereForME is a campaign led by patients and carers, calling for an NHS that’s ther...
docs.google.com
November 18, 2025 at 12:30 PM
3/3
If you haven’t already, please contact your MP and urge them to be there. Every voice matters, and attendance is crucial for driving real change for #pwME!
Template letter (via #ThereForME) 👇
docs.google.com/document/d/1...
If you haven’t already, please contact your MP and urge them to be there. Every voice matters, and attendance is crucial for driving real change for #pwME!
Template letter (via #ThereForME) 👇
docs.google.com/document/d/1...
Reposted by ThereForME
1/4
📢 Reminder: Invite your MP to attend tomorrow’s ME debate!
A Westminster Hall debate on ME, tabled by @tessamunt.bsky.social, takes place tomorrow at 4.30pm.
#pwME #MECFS #MyalgicEncephalomyelitis
⬇️
📢 Reminder: Invite your MP to attend tomorrow’s ME debate!
A Westminster Hall debate on ME, tabled by @tessamunt.bsky.social, takes place tomorrow at 4.30pm.
#pwME #MECFS #MyalgicEncephalomyelitis
⬇️
November 18, 2025 at 12:30 PM
1/4
📢 Reminder: Invite your MP to attend tomorrow’s ME debate!
A Westminster Hall debate on ME, tabled by @tessamunt.bsky.social, takes place tomorrow at 4.30pm.
#pwME #MECFS #MyalgicEncephalomyelitis
⬇️
📢 Reminder: Invite your MP to attend tomorrow’s ME debate!
A Westminster Hall debate on ME, tabled by @tessamunt.bsky.social, takes place tomorrow at 4.30pm.
#pwME #MECFS #MyalgicEncephalomyelitis
⬇️
Today we've got a blog from Yanto Evans, focused on Long Covid in Wales and why the Welsh government should prioritise the unfolding health crisis.
His guest blog is also available in Welsh translation.
Link in next post 👇
His guest blog is also available in Welsh translation.
Link in next post 👇
!["In December 2024 [...] the Welsh Cabinet Secretary for Health and Social Care, Jeremy Miles, proclaimed the population was deveoping 'natural immunity' to Covid-19. This is misleading and dangerous." Yanto Evans. New #ThereForME Substack post.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreibzujbi2sfy4zeqyk3mxnbjy6t6bkw23xrpipqr4hquf67cvpxd5y@jpeg)
November 18, 2025 at 9:29 AM
Today we've got a blog from Yanto Evans, focused on Long Covid in Wales and why the Welsh government should prioritise the unfolding health crisis.
His guest blog is also available in Welsh translation.
Link in next post 👇
His guest blog is also available in Welsh translation.
Link in next post 👇
Reposted by ThereForME
UK: Debate on Government support for ME/CFS in Westminster Hall on 19 November 2025
Links:
www.thereforme.uk/p/westminste...
www.parliament.uk/about/how/bu...
Screenshot from latest Science for ME update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @thereforme.bsky.social
Links:
www.thereforme.uk/p/westminste...
www.parliament.uk/about/how/bu...
Screenshot from latest Science for ME update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @thereforme.bsky.social
November 17, 2025 at 2:05 AM
UK: Debate on Government support for ME/CFS in Westminster Hall on 19 November 2025
Links:
www.thereforme.uk/p/westminste...
www.parliament.uk/about/how/bu...
Screenshot from latest Science for ME update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @thereforme.bsky.social
Links:
www.thereforme.uk/p/westminste...
www.parliament.uk/about/how/bu...
Screenshot from latest Science for ME update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @thereforme.bsky.social
Reposted by ThereForME
(2/2) Please write to your MP and ask them to attend! You can find your local MP here: members.parliament.uk/FindYourMP
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
Find your MP - MPs and Lords - UK Parliament
Enter your postcode, location, MPs name or job title to find the name and contact details of your local MP.
members.parliament.uk
November 14, 2025 at 9:52 AM
(2/2) Please write to your MP and ask them to attend! You can find your local MP here: members.parliament.uk/FindYourMP
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
@thereforme.bsky.social have produced a template letter to help: www.thereforme.uk/p/westminste...
🔗https://whatson.parliament.uk/event/cal53589
Reposted by ThereForME
(1/2) 📢 Westminster Hall debate on government support for ME
Tessa Munt MP has tabled a debate on government support for people with ME next week in Westminster. This is an important opportunity to make sure the voices of people with ME are heard in Parliament.
Tessa Munt MP has tabled a debate on government support for people with ME next week in Westminster. This is an important opportunity to make sure the voices of people with ME are heard in Parliament.
November 14, 2025 at 9:51 AM
(1/2) 📢 Westminster Hall debate on government support for ME
Tessa Munt MP has tabled a debate on government support for people with ME next week in Westminster. This is an important opportunity to make sure the voices of people with ME are heard in Parliament.
Tessa Munt MP has tabled a debate on government support for people with ME next week in Westminster. This is an important opportunity to make sure the voices of people with ME are heard in Parliament.
Reposted by ThereForME
Delighted that I’ve secured a debate in Parliament on ‘Government support for ME’ next Wednesday 19 November. This provides a valuable opportunity for MPs to share views - the first in years. I hope that many MPs will join me. Do encourage yours! #pwME
November 13, 2025 at 5:59 PM
Delighted that I’ve secured a debate in Parliament on ‘Government support for ME’ next Wednesday 19 November. This provides a valuable opportunity for MPs to share views - the first in years. I hope that many MPs will join me. Do encourage yours! #pwME
Reposted by ThereForME
Done. Please do take a few moments to help #pwME.
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
November 13, 2025 at 7:20 PM
Done. Please do take a few moments to help #pwME.
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
November 13, 2025 at 9:48 AM
🚨 NEXT WEDNESDAY 19 NOVEMBER
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
We’ve been made aware of an upcoming Westminster Hall debate, tabled by @tessamunt.bsky.social, focused on government support for people with ME.
If you have the energy - an email to your MP asking them to attend can go a long way 🙏
Template in next post👇
Reposted by ThereForME
1️⃣ 🧵 NEW: The government’s Keep Britain Working report claims to tackle the UK’s crisis of ill health & economic inactivity.
But it never mentions Long Covid.
Not once.
Not the pandemic either.
That’s not a small oversight — it’s a fundamental flaw. Let’s unpack why 👇
🔗 www.gov.uk/government/p...
But it never mentions Long Covid.
Not once.
Not the pandemic either.
That’s not a small oversight — it’s a fundamental flaw. Let’s unpack why 👇
🔗 www.gov.uk/government/p...
Keep Britain Working Review: Final report
Keep Britain Working is an independent review of the role of employers in tackling health based economic inactivity and promoting healthy and inclusive workplaces.
www.gov.uk
November 5, 2025 at 1:22 PM
1️⃣ 🧵 NEW: The government’s Keep Britain Working report claims to tackle the UK’s crisis of ill health & economic inactivity.
But it never mentions Long Covid.
Not once.
Not the pandemic either.
That’s not a small oversight — it’s a fundamental flaw. Let’s unpack why 👇
🔗 www.gov.uk/government/p...
But it never mentions Long Covid.
Not once.
Not the pandemic either.
That’s not a small oversight — it’s a fundamental flaw. Let’s unpack why 👇
🔗 www.gov.uk/government/p...
Reposted by ThereForME
For too long, ME has been underfunded, under-researched, and poorly understood. Patients deserve better.
You can read more in my guest blog for @thereforme.bsky.social below:
You can read more in my guest blog for @thereforme.bsky.social below:
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
November 4, 2025 at 11:21 AM
For too long, ME has been underfunded, under-researched, and poorly understood. Patients deserve better.
You can read more in my guest blog for @thereforme.bsky.social below:
You can read more in my guest blog for @thereforme.bsky.social below:
Reposted by ThereForME
Great piece explaining so clearly the situation faced by people affected by ME in her constituency from my @libdems.org.uk colleague @wendychambld.bsky.social. 🙏🏽
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
November 4, 2025 at 10:37 AM
Great piece explaining so clearly the situation faced by people affected by ME in her constituency from my @libdems.org.uk colleague @wendychambld.bsky.social. 🙏🏽
Reposted by ThereForME
👍 @wendychambld.bsky.social without muddling the issue: "there are currently no specialist doctors and nurses [for ME] across the whole of Scotland".
Applies to basically worldwide... despite millions more since 2020.
www.thereforme.uk/p/scotland-m...
Applies to basically worldwide... despite millions more since 2020.
www.thereforme.uk/p/scotland-m...
Scotland must step up on ME care and research
An opinion piece from Wendy Chamberlain MP
www.thereforme.uk
November 4, 2025 at 10:31 AM
👍 @wendychambld.bsky.social without muddling the issue: "there are currently no specialist doctors and nurses [for ME] across the whole of Scotland".
Applies to basically worldwide... despite millions more since 2020.
www.thereforme.uk/p/scotland-m...
Applies to basically worldwide... despite millions more since 2020.
www.thereforme.uk/p/scotland-m...
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
November 4, 2025 at 9:25 AM
We’re absolutely delighted that today’s #ThereForME blog is a guest piece from @wendychambld.bsky.social!
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Wendy writes about the situation facing her constituents in North East Fife, calling for the Scottish government to step up.
Link in next post 👇
Update from the APPG on ME 👇
October 29, 2025 at 10:22 AM
Update from the APPG on ME 👇