@wamesmecfs.bsky.social
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The first of our drop-in stakeholder sessions to discuss the Women’s Health Hubs project within Betsi Cadwaladr took place today, but don't worry if you missed out! Three more sessions are due to take place - find out more on our website:
ftww.org.uk/2025/07/16/b...
#WomensHealth
ftww.org.uk/2025/07/16/b...
#WomensHealth
July 16, 2025 at 1:53 PM
The first of our drop-in stakeholder sessions to discuss the Women’s Health Hubs project within Betsi Cadwaladr took place today, but don't worry if you missed out! Three more sessions are due to take place - find out more on our website:
ftww.org.uk/2025/07/16/b...
#WomensHealth
ftww.org.uk/2025/07/16/b...
#WomensHealth
Credu Carers are hosting a session on ME/CFS and FM both in Aberystwyth and virtually. Dr Nigel Speight and Jan Russell from WAMES will speak. 27 Feb,10:00 – 13:00. Book free tickets in advance online
tinyurl.com/3pha5b4p
tinyurl.com/3pha5b4p
ME-CFS-Covid Hir-Ffibromyalgia / ME-CFS-Long Covid-Fibromyalgia | Ceredigion Carers
gyda/with Dr Nigel Speight, Jan Russell o/from WAMES, a/and Fibromyalgia Action UK
tinyurl.com
February 12, 2026 at 2:17 PM
Credu Carers are hosting a session on ME/CFS and FM both in Aberystwyth and virtually. Dr Nigel Speight and Jan Russell from WAMES will speak. 27 Feb,10:00 – 13:00. Book free tickets in advance online
tinyurl.com/3pha5b4p
tinyurl.com/3pha5b4p
Dr. Anthony Komaroff examines the history of ME/CFS research, the cause & triggers of ME/CFS & other post-infectious chronic illnesses & the abnormalities observed in the brain & autonomic nervous system among patients with ME/CFS and long COVID. [37 mins] +Transcript +Chapters
tinyurl.com/2jzffkc8
tinyurl.com/2jzffkc8
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February 12, 2026 at 2:14 PM
Dr. Anthony Komaroff examines the history of ME/CFS research, the cause & triggers of ME/CFS & other post-infectious chronic illnesses & the abnormalities observed in the brain & autonomic nervous system among patients with ME/CFS and long COVID. [37 mins] +Transcript +Chapters
tinyurl.com/2jzffkc8
tinyurl.com/2jzffkc8
Module 9 of the Covid Inquiry exposed hard truths about Disabled people’s financial situation. Many Disabled people were dragged into debt, which takes a long time to climb out of in normal circumstances, let alone in a struggling economy hindered by a pandemic.
tinyurl.com/bd8ra5rs
tinyurl.com/bd8ra5rs
Opinion: The Government Intentionally Left Disabled People to Suffer
tinyurl.com
February 12, 2026 at 2:11 PM
Module 9 of the Covid Inquiry exposed hard truths about Disabled people’s financial situation. Many Disabled people were dragged into debt, which takes a long time to climb out of in normal circumstances, let alone in a struggling economy hindered by a pandemic.
tinyurl.com/bd8ra5rs
tinyurl.com/bd8ra5rs
Online support group: A US group invites people with ME/CFS, FM & Long COVID to join. Topic: Coping with Depression and Emotional Overload. Tues 17 Feb @ 8pm UK time. Register in advance
tinyurl.com/2dwcsad6
tinyurl.com/2dwcsad6
Online Support Group
These support groups are tailored for individuals living with ME/CFS, FM, Long COVID, and co-existing conditions. Supporters and loved ones are also welcome to join.
tinyurl.com
February 12, 2026 at 2:09 PM
Online support group: A US group invites people with ME/CFS, FM & Long COVID to join. Topic: Coping with Depression and Emotional Overload. Tues 17 Feb @ 8pm UK time. Register in advance
tinyurl.com/2dwcsad6
tinyurl.com/2dwcsad6
Maximus, a company employed by the DWP, is reportedly telling employers their staff living with myalgic encephalomyelitis (ME) need to exercise more to “boost energy” and “get more done”.
tinyurl.com/s93he7mk
tinyurl.com/s93he7mk
Notorious Maximus is advising employers that staff with ME need to exercise more
Maximus is recklessly advising employers workers with ME need more exercise to “boost energy,” despite guidance warning exercise causes harm!
tinyurl.com
February 12, 2026 at 2:07 PM
Maximus, a company employed by the DWP, is reportedly telling employers their staff living with myalgic encephalomyelitis (ME) need to exercise more to “boost energy” and “get more done”.
tinyurl.com/s93he7mk
tinyurl.com/s93he7mk
OMF explains that a phenotype is an observable characteristic determined by the interaction of a person’s genotype (genetic makeup) & their environment. People with ME/CFS have different phenotypes than healthy people, but there are also differences within the disease, too.
tinyurl.com/256tcws2
tinyurl.com/256tcws2
Phenotype - Open Medicine Foundation
Learn what phenotype means and how ME/CFS phenotypes differ, explore findings from OMF’s DOMINO-ME study.
tinyurl.com
February 12, 2026 at 2:05 PM
OMF explains that a phenotype is an observable characteristic determined by the interaction of a person’s genotype (genetic makeup) & their environment. People with ME/CFS have different phenotypes than healthy people, but there are also differences within the disease, too.
tinyurl.com/256tcws2
tinyurl.com/256tcws2
Dr Rebecca Ryan presents about gastrointestinal manifestations in ME, highlighting the role of MCAS and POTS in affecting the gut. [37 mins] begins 2h 33 +Transcript
tinyurl.com/7965mzbt
tinyurl.com/7965mzbt
#ICanCME2025 Conference - Day 2
tinyurl.com
February 12, 2026 at 2:01 PM
Dr Rebecca Ryan presents about gastrointestinal manifestations in ME, highlighting the role of MCAS and POTS in affecting the gut. [37 mins] begins 2h 33 +Transcript
tinyurl.com/7965mzbt
tinyurl.com/7965mzbt
Information obtained by B&W suggests that WCA reassessments will be at their height in 2031 & that over half of the £1.9 billion welfare savings set out in the last budget will come from assessment companies or DWP administrative costs, rather than claimants.
tinyurl.com/55bx64f4
tinyurl.com/55bx64f4
WCA still going in 2031, over half of welfare savings not from claimants
Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...
tinyurl.com
February 11, 2026 at 5:26 PM
Information obtained by B&W suggests that WCA reassessments will be at their height in 2031 & that over half of the £1.9 billion welfare savings set out in the last budget will come from assessment companies or DWP administrative costs, rather than claimants.
tinyurl.com/55bx64f4
tinyurl.com/55bx64f4
Dr Jarred Younger introduces his team's new study: A precision approach to understanding ME/CFS. They believe an individualized framework will help them understand factors in subgroups of ME/CFS, previously obscured by a variety of experience. [8 mins]+Transcript
tinyurl.com/yjb22am7
tinyurl.com/yjb22am7
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February 11, 2026 at 5:23 PM
Dr Jarred Younger introduces his team's new study: A precision approach to understanding ME/CFS. They believe an individualized framework will help them understand factors in subgroups of ME/CFS, previously obscured by a variety of experience. [8 mins]+Transcript
tinyurl.com/yjb22am7
tinyurl.com/yjb22am7
Update on Savannah's campaign: Hospice that agreed 2 accept her changed its mind once they understood full extent of her needs. "We're trapped in a Catch22 situation: 2 sick 2 endure hospitals without deterioration & 2 unlikely to die quick enough for hospices to take us in..."
tinyurl.com/3rprfrdc
tinyurl.com/3rprfrdc
Donate to #SevereMErgency:Save Savannah from dying inside NHS hospital, organized by Sam Pearce
Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital
tinyurl.com
February 11, 2026 at 5:18 PM
Update on Savannah's campaign: Hospice that agreed 2 accept her changed its mind once they understood full extent of her needs. "We're trapped in a Catch22 situation: 2 sick 2 endure hospitals without deterioration & 2 unlikely to die quick enough for hospices to take us in..."
tinyurl.com/3rprfrdc
tinyurl.com/3rprfrdc
The Disabled Persons Railcard gives 1/3 off rail fares across Britain for the cardholder & one accompanying adult, if you are in receipt of e.g. PIP or DLA. From 1 March additional people can apply: those who can demonstrate need through existing documentation e.g. Blue Badge.
tinyurl.com/347743be
tinyurl.com/347743be
Rail industry announces expansion of the application process for the
tinyurl.com
February 11, 2026 at 5:12 PM
The Disabled Persons Railcard gives 1/3 off rail fares across Britain for the cardholder & one accompanying adult, if you are in receipt of e.g. PIP or DLA. From 1 March additional people can apply: those who can demonstrate need through existing documentation e.g. Blue Badge.
tinyurl.com/347743be
tinyurl.com/347743be
Dan Wyke, a counsellor & person with ME, discusses his experiences as a therapist & chronically ill person. He says there’s very little training available 4 counsellors on working with chronic illness tho NHS workers can attend a training module about long-term health conditions
tinyurl.com/yuyvsn6v
tinyurl.com/yuyvsn6v
Therapist Perspective: Dan Wyke - Chronic Living Therapy
Interview with Dan Wyke, Counsellor in the UK, about his work and experience of living with M.E. and supporting others with the condition.
tinyurl.com
February 11, 2026 at 5:09 PM
Dan Wyke, a counsellor & person with ME, discusses his experiences as a therapist & chronically ill person. He says there’s very little training available 4 counsellors on working with chronic illness tho NHS workers can attend a training module about long-term health conditions
tinyurl.com/yuyvsn6v
tinyurl.com/yuyvsn6v
Sammie McFarland speaks about supporting and advocating for children. She and her child have Long COVID and PoTS, and she is the founder of Long COVID kids [25 mins] begins 2h 17 +Transcript
tinyurl.com/bd5xa75x
tinyurl.com/bd5xa75x
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February 11, 2026 at 5:06 PM
Sammie McFarland speaks about supporting and advocating for children. She and her child have Long COVID and PoTS, and she is the founder of Long COVID kids [25 mins] begins 2h 17 +Transcript
tinyurl.com/bd5xa75x
tinyurl.com/bd5xa75x
Following the recent findings of bacterium in people with ME/CFS in the US, MERUK looks at the questions and studies surrounding Lyme Disease and ME/CFS
tinyurl.com/bddy4jz3
tinyurl.com/bddy4jz3
Lyme disease and ME/CFS – our articles
Lyme disease is a tick-borne illness caused by the bacteria Borrelia burgdorferi, which can usually be treated with a course of antibiotics. However, it is thought that a number of cases do not resolv...
tinyurl.com
February 10, 2026 at 12:14 PM
Following the recent findings of bacterium in people with ME/CFS in the US, MERUK looks at the questions and studies surrounding Lyme Disease and ME/CFS
tinyurl.com/bddy4jz3
tinyurl.com/bddy4jz3
Mikey Erhardt, a campaigner for Disability Rights UK, expresses concern about what the Timms Review will mean for personal independence payment (PIP) in the future - that it could be used as a cover for PIP cuts.
tinyurl.com/4eb3nkce
tinyurl.com/3nxy586u
tinyurl.com/4eb3nkce
tinyurl.com/3nxy586u
Disabled people are worried the Timms Review could be used as a cover for PIP cuts
Mikey Erhardt, a campaigner for Disability Rights UK, expresses concern about what the Timms Review will mean for personal independence payment (PIP) in the future.
tinyurl.com
February 10, 2026 at 12:13 PM
Mikey Erhardt, a campaigner for Disability Rights UK, expresses concern about what the Timms Review will mean for personal independence payment (PIP) in the future - that it could be used as a cover for PIP cuts.
tinyurl.com/4eb3nkce
tinyurl.com/3nxy586u
tinyurl.com/4eb3nkce
tinyurl.com/3nxy586u
OMF briefly explains the difference between retrospective and prospective studies and the value of both.
tinyurl.com/yradtw32
tinyurl.com/yradtw32
Retrospective vs prospective study - Open Medicine Foundation
Understand retrospective vs prospective studies and their role in ME/CFS research.
tinyurl.com
February 10, 2026 at 12:09 PM
OMF briefly explains the difference between retrospective and prospective studies and the value of both.
tinyurl.com/yradtw32
tinyurl.com/yradtw32
Cort explains how in the US Solve ME joined with other organisations to launch The unhide® Solve Together Unified Platform, a partnership to accelerate research on ME/CFS, Long Covid and Infection Associated Complex, Chronic Illnesses (IACCI’s).
tinyurl.com/3bez7ap2
tinyurl.com/3bez7ap2
"Unhiding" ME/CFS, Long COVID, POTS, etc. The Brain Inflammation / Solve Together Unified unhide® Platform - Health Rising
Health Rising’s Recent Hiatus The blogs stopped for quite a spell. This is not because of health problems or my taking a break. Instead, I’ve been immersed in what’s turned out to be a large DIY pro...
tinyurl.com
February 10, 2026 at 12:07 PM
Cort explains how in the US Solve ME joined with other organisations to launch The unhide® Solve Together Unified Platform, a partnership to accelerate research on ME/CFS, Long Covid and Infection Associated Complex, Chronic Illnesses (IACCI’s).
tinyurl.com/3bez7ap2
tinyurl.com/3bez7ap2
With growing numbers of Disabled people having their employment put at risk by delays and cuts to Access to Work, the National Audit Office (NAO) has published a report that finds that delays and backlogs have dramatically increased.
tinyurl.com/bdun7mv4
tinyurl.com/bdun7mv4
Report highlights flaws In the Access to Work scheme
tinyurl.com
February 10, 2026 at 12:05 PM
With growing numbers of Disabled people having their employment put at risk by delays and cuts to Access to Work, the National Audit Office (NAO) has published a report that finds that delays and backlogs have dramatically increased.
tinyurl.com/bdun7mv4
tinyurl.com/bdun7mv4
Dr Anne Maitland talks about Mast Cell Activation Disease, which can co-exist with ME/CFS. [25 mins] starts 1h51 +Transcript
tinyurl.com/2u4sbtr7
tinyurl.com/2u4sbtr7
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February 10, 2026 at 12:03 PM
Dr Anne Maitland talks about Mast Cell Activation Disease, which can co-exist with ME/CFS. [25 mins] starts 1h51 +Transcript
tinyurl.com/2u4sbtr7
tinyurl.com/2u4sbtr7
The UK Gov recently brought together tech giants (Google, Meta, Microsoft & Amazon) and disability charities to discuss how to improve workplace accessibility and how emerging technologies can create new job opportunities for disabled people.
tinyurl.com/3uw69kxh
tinyurl.com/3uw69kxh
Tech giants meet disability sector to break down barriers at work
Disabled people are set to benefit from the expertise of some of the world's tech giants to help make the workplace more accessible to them.
tinyurl.com
February 9, 2026 at 10:26 AM
The UK Gov recently brought together tech giants (Google, Meta, Microsoft & Amazon) and disability charities to discuss how to improve workplace accessibility and how emerging technologies can create new job opportunities for disabled people.
tinyurl.com/3uw69kxh
tinyurl.com/3uw69kxh
Hypothesis paper. "This paper reviews current knowledge on neurotransmitter systems implicated in ME/CFS and Long COVID, focusing on potential mechanisms of dysregulation and their roles in disease pathology and symptom generation, as well as implications for treatment."
tinyurl.com/5a3mhvm8
tinyurl.com/5a3mhvm8
tinyurl.com
February 9, 2026 at 10:24 AM
Hypothesis paper. "This paper reviews current knowledge on neurotransmitter systems implicated in ME/CFS and Long COVID, focusing on potential mechanisms of dysregulation and their roles in disease pathology and symptom generation, as well as implications for treatment."
tinyurl.com/5a3mhvm8
tinyurl.com/5a3mhvm8
A look at how researchers aim to take into account menstrual cycles and daily hormone fluctuations in exploratory research on the role of autoantibodies in women with long COVID and ME.
tinyurl.com/2p9unb6b
tinyurl.com/2p9unb6b
Verkennend onderzoek naar de rol van autoantistoffen bij vrouwen met long COVID en ME
Voor vandaag stond het derde deel van ‘De noten in de doppen’ gepland. Door onverwachte omstandigheden is het niet gelukt dit op tijd af te ronden. Deel 3 volgt daarom maandag 26 januar…
tinyurl.com
February 9, 2026 at 10:22 AM
A look at how researchers aim to take into account menstrual cycles and daily hormone fluctuations in exploratory research on the role of autoantibodies in women with long COVID and ME.
tinyurl.com/2p9unb6b
tinyurl.com/2p9unb6b
MERUK highlights a study that reinforces previous findings that ME/CFS is associated with heightened antibody responses to multiple herpesviruses. However, interpretation is limited by the study exclusively being females and the use of Fukuda criteria.
tinyurl.com/2ujek8f9
tinyurl.com/2ujek8f9
Heightened antibody responses to herpesviruses in females with ME/CFS
A recent study analysed over 800 blood samples from 40 females with ME/CFS compared to 16 healthy controls. The study primarily examined differences in antibodies to human herpesvirus proteins, and it...
tinyurl.com
February 9, 2026 at 10:20 AM
MERUK highlights a study that reinforces previous findings that ME/CFS is associated with heightened antibody responses to multiple herpesviruses. However, interpretation is limited by the study exclusively being females and the use of Fukuda criteria.
tinyurl.com/2ujek8f9
tinyurl.com/2ujek8f9
US researchers have found evidence of Bartonella or Babesia infection in 46% of people with ME/CFS in a small study. Both are transmitted primarily through ticks, fleas and lice, but also blood transfusions and organ transplants. This warrants further investigation.
tinyurl.com/379b5h5h
tinyurl.com/379b5h5h
Study uncovers hidden Bartonella and Babesia infections in ME/CFS patients | LymeDisease.org
A new pilot study from North Carolina State University has found molecular evidence of Bartonella or Babesia infection in nearly half of 50 people
tinyurl.com
February 5, 2026 at 4:40 PM
US researchers have found evidence of Bartonella or Babesia infection in 46% of people with ME/CFS in a small study. Both are transmitted primarily through ticks, fleas and lice, but also blood transfusions and organ transplants. This warrants further investigation.
tinyurl.com/379b5h5h
tinyurl.com/379b5h5h