@wamesmecfs.bsky.social
MERUK gives a guide to microclots and how they may contribute to the pathology of long COVID. They are more than 'tiny clumps that block blood vessels and cause symptoms'.
t.ly/zdCpj
t.ly/zdCpj
November 15, 2025 at 11:47 AM
MERUK gives a guide to microclots and how they may contribute to the pathology of long COVID. They are more than 'tiny clumps that block blood vessels and cause symptoms'.
t.ly/zdCpj
t.ly/zdCpj
MERUK highlights researcher Caroline Kingdon's talk about the precautions and adaptations she makes when visiting people with severe ME to avoid making them more ill.
tinyurl.com/4pe6kjk6
tinyurl.com/4pe6kjk6
November 13, 2025 at 10:00 AM
MERUK highlights researcher Caroline Kingdon's talk about the precautions and adaptations she makes when visiting people with severe ME to avoid making them more ill.
tinyurl.com/4pe6kjk6
tinyurl.com/4pe6kjk6
Book the date - ME Voices Wales zoom event 28 Nov 2025 to discuss ME/CFS Self-Management. Spread the word! More info to follow.
tinyurl.com/2uf5ukt2
tinyurl.com/2uf5ukt2
October 31, 2025 at 1:44 PM
Book the date - ME Voices Wales zoom event 28 Nov 2025 to discuss ME/CFS Self-Management. Spread the word! More info to follow.
tinyurl.com/2uf5ukt2
tinyurl.com/2uf5ukt2
MERUK highlights the link between Dysautonomia and the gastrointestinal system and ME/CFS. Disruption of control over gut function, leads to symptoms like nausea, abdominal pain, bloating, constipation, and diarrhoea.
tinyurl.com/2yxjaewk
tinyurl.com/2yxjaewk
October 31, 2025 at 1:43 PM
MERUK highlights the link between Dysautonomia and the gastrointestinal system and ME/CFS. Disruption of control over gut function, leads to symptoms like nausea, abdominal pain, bloating, constipation, and diarrhoea.
tinyurl.com/2yxjaewk
tinyurl.com/2yxjaewk
New study finds gender-based differences in ME: women show faster heart rates & reduced blood flow when standing, while men have higher blood pressure & more oxidative stress, pointing to distinct cardiovascular patterns.
tinyurl.com/5bevv8sm
tinyurl.com/5bevv8sm
October 31, 2025 at 1:40 PM
New study finds gender-based differences in ME: women show faster heart rates & reduced blood flow when standing, while men have higher blood pressure & more oxidative stress, pointing to distinct cardiovascular patterns.
tinyurl.com/5bevv8sm
tinyurl.com/5bevv8sm
Carers UK are calling for a fairer settlement for carers: a new National Carers Strategy, sustainable social care investment, improved financial support, statutory paid Carer’s Leave, and recognition of caring under the Equality Act.
tinyurl.com/396ysa4z
tinyurl.com/396ysa4z
October 28, 2025 at 10:21 AM
Carers UK are calling for a fairer settlement for carers: a new National Carers Strategy, sustainable social care investment, improved financial support, statutory paid Carer’s Leave, and recognition of caring under the Equality Act.
tinyurl.com/396ysa4z
tinyurl.com/396ysa4z
A new Cost of Caring report reveals a system stretched to its limit – & its carers who are paying price.
• 52% caring for longer hours
• 49% have cut back on essentials like food & heating
• 42% say their health has worsened
tinyurl.com/36avsewb
• 52% caring for longer hours
• 49% have cut back on essentials like food & heating
• 42% say their health has worsened
tinyurl.com/36avsewb
October 27, 2025 at 3:08 PM
A new Cost of Caring report reveals a system stretched to its limit – & its carers who are paying price.
• 52% caring for longer hours
• 49% have cut back on essentials like food & heating
• 42% say their health has worsened
tinyurl.com/36avsewb
• 52% caring for longer hours
• 49% have cut back on essentials like food & heating
• 42% say their health has worsened
tinyurl.com/36avsewb
MERUK explains the ongoing debate around 'altered effort preference and deconditioning' in ME/CFS proposed by Walitt et al last year. A group of senior ME researchers have challenged this.
tinyurl.com/p24j3yds
tinyurl.com/p24j3yds
October 24, 2025 at 9:10 AM
MERUK explains the ongoing debate around 'altered effort preference and deconditioning' in ME/CFS proposed by Walitt et al last year. A group of senior ME researchers have challenged this.
tinyurl.com/p24j3yds
tinyurl.com/p24j3yds
Dewis Cymru - a wellbeing directory giving information and advice about people & services in your area about issues that concern you i.e. health, where you live, how safe and secure you feel, getting out and about, and keeping in touch with family and friends.
www.dewis.wales
www.dewis.wales
October 23, 2025 at 10:31 AM
Dewis Cymru - a wellbeing directory giving information and advice about people & services in your area about issues that concern you i.e. health, where you live, how safe and secure you feel, getting out and about, and keeping in touch with family and friends.
www.dewis.wales
www.dewis.wales
MERUK says there could be a higher proportion of EDS in the ME/CFS community compared with the general population, but that many with EDS are misdiagnosed with ME/CFS prior to an EDS diagnosis, likely because of the debilitating fatigue that accompanies symptoms.
tinyurl.com/yecdsza6
tinyurl.com/yecdsza6
October 23, 2025 at 10:26 AM
MERUK says there could be a higher proportion of EDS in the ME/CFS community compared with the general population, but that many with EDS are misdiagnosed with ME/CFS prior to an EDS diagnosis, likely because of the debilitating fatigue that accompanies symptoms.
tinyurl.com/yecdsza6
tinyurl.com/yecdsza6
MERUK highlights debate on POTS in Westm Public Health Min said: "developing formal NICE guidelines is difficult becos of limited available evidence, overlap w/conditions such as long COVID & ME/CFS & fact that PoTS is often managed with lifestyle changes”
tinyurl.com/4ajvn2u9
tinyurl.com/4ajvn2u9
October 22, 2025 at 11:45 AM
MERUK highlights debate on POTS in Westm Public Health Min said: "developing formal NICE guidelines is difficult becos of limited available evidence, overlap w/conditions such as long COVID & ME/CFS & fact that PoTS is often managed with lifestyle changes”
tinyurl.com/4ajvn2u9
tinyurl.com/4ajvn2u9
Working on wellbeing is an employment training & support programme for disabled people aged 16+ in Wales, including people with ME & FM. Bilingual Scope project officers work with you to develop a path to your career goals.
tinyurl.com/yabuk459
tinyurl.com/yabuk459
October 20, 2025 at 11:49 AM
Working on wellbeing is an employment training & support programme for disabled people aged 16+ in Wales, including people with ME & FM. Bilingual Scope project officers work with you to develop a path to your career goals.
tinyurl.com/yabuk459
tinyurl.com/yabuk459
MERUK gives an overview of Orthostatic intolerance - a common issue for pwme - when the body fails to properly compensate for moving to an upright position. This is thought to result in reduced blood flow to the brain & symptoms like light headedness, fatigue & weakness.
tinyurl.com/hbxatbdz
tinyurl.com/hbxatbdz
October 20, 2025 at 11:48 AM
MERUK gives an overview of Orthostatic intolerance - a common issue for pwme - when the body fails to properly compensate for moving to an upright position. This is thought to result in reduced blood flow to the brain & symptoms like light headedness, fatigue & weakness.
tinyurl.com/hbxatbdz
tinyurl.com/hbxatbdz
Pregnancy and Parenting with ME FB group: provides support to people with Myalgic Encephalomyelitis who are parents or are considering becoming a parent.
tinyurl.com/ypy9ha2n
tinyurl.com/ypy9ha2n
October 17, 2025 at 9:51 AM
Pregnancy and Parenting with ME FB group: provides support to people with Myalgic Encephalomyelitis who are parents or are considering becoming a parent.
tinyurl.com/ypy9ha2n
tinyurl.com/ypy9ha2n
Unhide: The unified platform, advancing research across ME/CFS, Long COVID and other chronic conditions. Introduces the Solve Together research Platform, a participant-led continuous digital data collection. Tues 14 Oct, 11:00 PM UK
tinyurl.com/yf8was3j
tinyurl.com/yf8was3j
October 13, 2025 at 10:13 AM
Unhide: The unified platform, advancing research across ME/CFS, Long COVID and other chronic conditions. Introduces the Solve Together research Platform, a participant-led continuous digital data collection. Tues 14 Oct, 11:00 PM UK
tinyurl.com/yf8was3j
tinyurl.com/yf8was3j
Small fibre neuropathy (SFN) affects nerves outside of brain and spinal cord. Research suggests SFN occurs more frequently in ME/CFS and other conditions associated with dysautonomia. MERUK explains.
tinyurl.com/44jcdjv8
tinyurl.com/44jcdjv8
October 13, 2025 at 10:12 AM
Small fibre neuropathy (SFN) affects nerves outside of brain and spinal cord. Research suggests SFN occurs more frequently in ME/CFS and other conditions associated with dysautonomia. MERUK explains.
tinyurl.com/44jcdjv8
tinyurl.com/44jcdjv8
MERUK gives an introduction to Mast Cell Activation Syndrome (MCAS) and says its possible that MCAS is underdiagnosed, since its symptoms are broad and often mistaken for other conditions. There is also an overlap in symptoms with ME.
www.meresearch.org.uk/what-is-mcas/
www.meresearch.org.uk/what-is-mcas/
October 6, 2025 at 1:19 PM
MERUK gives an introduction to Mast Cell Activation Syndrome (MCAS) and says its possible that MCAS is underdiagnosed, since its symptoms are broad and often mistaken for other conditions. There is also an overlap in symptoms with ME.
www.meresearch.org.uk/what-is-mcas/
www.meresearch.org.uk/what-is-mcas/
MERUK explains dysautonomia and the conditions that fall under this umbrella, as many people with ME experience symptoms of light headedness, temperature dysregulation, palpitations, breathlessness etc.
tinyurl.com/4ub52tk2
tinyurl.com/4ub52tk2
October 2, 2025 at 10:17 AM
MERUK explains dysautonomia and the conditions that fall under this umbrella, as many people with ME experience symptoms of light headedness, temperature dysregulation, palpitations, breathlessness etc.
tinyurl.com/4ub52tk2
tinyurl.com/4ub52tk2
MERUK highlights a small study that found that skeletal muscle oxygen diffusion, an important process in the body which ensures the delivery of oxygen to muscle cells for energy production, may be impaired in both people with ME/CFS and in those with long COVID.
tinyurl.com/mw4zzr97
tinyurl.com/mw4zzr97
September 25, 2025 at 11:34 AM
MERUK highlights a small study that found that skeletal muscle oxygen diffusion, an important process in the body which ensures the delivery of oxygen to muscle cells for energy production, may be impaired in both people with ME/CFS and in those with long COVID.
tinyurl.com/mw4zzr97
tinyurl.com/mw4zzr97
Draft minutes of the recent APPG meeting show a discussion around the English Delivery plan and its shortcomings. MPs heard evidence virtually about severe ME. They hope their report will highlight the plight of people with severe ME and identify tangible actions.
tinyurl.com/3mhuzab2
tinyurl.com/3mhuzab2
September 22, 2025 at 10:29 AM
Draft minutes of the recent APPG meeting show a discussion around the English Delivery plan and its shortcomings. MPs heard evidence virtually about severe ME. They hope their report will highlight the plight of people with severe ME and identify tangible actions.
tinyurl.com/3mhuzab2
tinyurl.com/3mhuzab2
Nominate WAMES to win £1,000 before 22 September. All previous 2025 nominations are carried forward. Please spread the word to help us win! Charity no. 1144534
tinyurl.com/mrxmec9t
tinyurl.com/mrxmec9t
September 15, 2025 at 9:57 AM
Nominate WAMES to win £1,000 before 22 September. All previous 2025 nominations are carried forward. Please spread the word to help us win! Charity no. 1144534
tinyurl.com/mrxmec9t
tinyurl.com/mrxmec9t
MERUK comments on the study by Cho, Bateman, Vernon etc into the usefulness of AI to identify disease biomarkers in ME/CFS. The study found changes in gut bacteria, metabolism & immune system that correlate with symptoms, &. and a more active immune system than normal.
tinyurl.com/2x4pbb7y
tinyurl.com/2x4pbb7y
September 15, 2025 at 9:47 AM
MERUK comments on the study by Cho, Bateman, Vernon etc into the usefulness of AI to identify disease biomarkers in ME/CFS. The study found changes in gut bacteria, metabolism & immune system that correlate with symptoms, &. and a more active immune system than normal.
tinyurl.com/2x4pbb7y
tinyurl.com/2x4pbb7y
The European ME/CFS Research Foundation’s lemon challenge is well on the way to reaching its target of 100,000 euros to fund research 'to take the bitterness out of life'. 95,685 euros raised. Help them get over the finishing line.
tinyurl.com/46ef9u8y
tinyurl.com/46ef9u8y
September 10, 2025 at 8:46 AM
The European ME/CFS Research Foundation’s lemon challenge is well on the way to reaching its target of 100,000 euros to fund research 'to take the bitterness out of life'. 95,685 euros raised. Help them get over the finishing line.
tinyurl.com/46ef9u8y
tinyurl.com/46ef9u8y
B&W highlights what is known about the new DWP boss’s attitudes to welfare.
tinyurl.com/nhzt7nd2
tinyurl.com/nhzt7nd2
September 10, 2025 at 8:41 AM
B&W highlights what is known about the new DWP boss’s attitudes to welfare.
tinyurl.com/nhzt7nd2
tinyurl.com/nhzt7nd2