LightNews LightNews
wamesmecfs.bsky.social
@wamesmecfs.bsky.social
110 followers 110 following 1K posts
Posts Replies Media Videos
wamesmecfs.bsky.social
A blog outlines the enduring challenges that people face when navigating the welfare system. Forum conversations show consistent difficulties in how people relate to the welfare state. "It is possible to have a welfare system which treats people with dignity, compassion & care."
tinyurl.com/mvnnxjd7
Putting humanity at the heart of welfare
Demos is Britain’s leading cross-party think-tank. We produce original research, publish innovative thinkers and host thought-provoking events.
tinyurl.com
November 20, 2025 at 11:48 AM
wamesmecfs.bsky.social
A blog outlines the enduring challenges that people face when navigating the welfare system. Forum conversations show consistent difficulties in how people relate to the welfare state. "It is possible to have a welfare system which treats people with dignity, compassion & care."
tinyurl.com/mvnnxjd7
Putting humanity at the heart of welfare
Demos is Britain’s leading cross-party think-tank. We produce original research, publish innovative thinkers and host thought-provoking events.
tinyurl.com
November 20, 2025 at 11:13 AM
wamesmecfs.bsky.social
MERUK's Autumn Breakthrough magazine features updates on the charity's projects, recent research from around the world, fundraising activities etc.
tinyurl.com/38tyy3fw
Breakthrough magazine
ME Research UK publishes its own magazine, Breakthrough, featuring updates on projects funded by the charity, recent research from around the world, information about our supporters' fundraising activ...
tinyurl.com
November 20, 2025 at 11:07 AM
wamesmecfs.bsky.social
Photographer and film maker with ME, Jeremy Jeffs, explains how and why he photographs other people with ME and the ethics of doing so.
tinyurl.com/mptr5bcj
Jeremy Jeffs on Photographing ME and Ethical Collaboration
Jeremy Jeffs on Photographing ME and Ethical Collaboration
tinyurl.com
November 20, 2025 at 11:06 AM
wamesmecfs.bsky.social
#CarersRightsDay Help young carers recognise their role & get support. AiDi is an app for young carers in Wales with: digital identity card; way to ping yr school or college; contact list for support network; useful info etc Download AiDi & apply online.
www.aidi.cymru/en/
AiDi | An innovative app and service for young carers
www.aidi.cymru
November 20, 2025 at 11:01 AM
wamesmecfs.bsky.social
Dr Robert Naviaux talks about how instructions in the blood change mitochondrial function and cause the symptoms of ME/CFS [26 mins] +Transcript
tinyurl.com/5euxaadv
Robert Naviaux, MD, PhD | Mitochondrial signals and the emerging science of salugenesis
Robert Naviaux, MD, PhD, University of San Diego Mitochondrial signals and the emerging science of salugenesis – turning the tide for ME/CFS
tinyurl.com
November 20, 2025 at 10:55 AM
wamesmecfs.bsky.social
Know your rights, use your rights this #CarersRightsDay 2025! Find out how carers rights can help you to: Access support; Juggle care & work; Look after your health & wellbeing; When the person you care for is coming out of hospital.
shorturl.at/kXBxB
Carers Rights Day, Thurs 20 Nov 2025
Carers ‘Know your rights, use your rights.’  On Carers Rights day all unpaid carers are encouraged to find out what your rights are, so you can feel confident to ask for what you need, …
shorturl.at
November 20, 2025 at 10:53 AM
wamesmecfs.bsky.social
Read the transcript or listen to the Debate in Westminster Hall led by Tessa Munt. She covered multiple topics during her speech.
tinyurl.com/ykfe7chs
Debate begins at 4:30 tiny.cc/bidv001
tinyurl.com
November 20, 2025 at 10:48 AM
wamesmecfs.bsky.social
Watch a Debate on UK Government support for people with myalgic encephalomyelitis, led by Tessa Munt MP in Westminster Hall. Live on Parliament TV from 4.30pm today Wed 19 Nov.
tinyurl.com/yccmvvfz
Parliamentlive.tv
Westminster Hall
tinyurl.com
November 19, 2025 at 1:55 PM
wamesmecfs.bsky.social
Please vote for us. Help us be one of the 120 charities who win £1,000 over 12 days leading up to Christmas with Movement for Good. Please spread the word as the more nominations we have the more chance we have of winning. Thank you. Charity number 1144534
tinyurl.com/mrxmec9t
Nominate now! - Movement for Good awards
We could receive a £1,000 donation with your help throught the Movement for Good 12 Days Christmas Draw.
tinyurl.com
November 19, 2025 at 1:53 PM
wamesmecfs.bsky.social
"Medical Gaslighting" A light-hearted 3-minute song with a serious message, with which many may sadly be able to relate.
tinyurl.com/yc3rwrrd
Medical Gaslighting
For anyone sick and tired of being guilty (of hypochondria) until proven innocent
tinyurl.com
November 19, 2025 at 10:27 AM
wamesmecfs.bsky.social
The MEA's Ramsay Research Fund is providing further funding to Dr Karl Morten et al in Oxford to continue their research involving Raman spectroscopy to find a diagnostic biomarker for ME/CFS.
tinyurl.com/2xmvhz77
Raman research set to continue thanks to Ramsay Research funding from the ME Association - The ME Association
The ME Association (MEA) is pleased to announce that the […]
tinyurl.com
November 19, 2025 at 10:26 AM
wamesmecfs.bsky.social
Dr Baldomero Olivera discusses new strategies for developing drug leads for ME/CFS. [27 mins] +Transcript
tinyurl.com/55xatjm4
Baldomero Olivera, PhD | New Strategies for Developing Drug Leads for ME/CFS
Baldomero Olivera, PhD, University of Utah New Strategies for Developing Drug Leads for ME/CFS
tinyurl.com
November 19, 2025 at 10:25 AM
wamesmecfs.bsky.social
Dr Jarred Younger says it is time to fight brain inflammation. He is going to develop dextro-naltrexone to treat it! [8 mins] +Transcript
tinyurl.com/bdvvs495
078 - How I am going to fight brain inflammation
It is time to develop dextro-naltrexone for the treatment of brain inflammation! Lab donation page: https://go.uab.edu/younger Large Donations and Questions: Julia Ann Starke (Senior Director of Development at UAB) Email: jastarke@uab.edu - Jarred Younger
tinyurl.com
November 19, 2025 at 10:24 AM
wamesmecfs.bsky.social
A new MEA booklet on ME/CFS prevalence summarises the latest research and historic estimates, how many people in the UK have ME/CFS, and the impact of Covid-19 on these estimates. Including COVID triggered ME there could be 63,000 in Wales and 1.35million in the UK.
tinyurl.com/39bzxbb3
New Booklet: Prevalence of ME/CFS in the UK - The ME Association
In July 2025, the ME Association updated the estimates it […]
tinyurl.com
November 19, 2025 at 10:22 AM
wamesmecfs.bsky.social
Yanto Evans from S. Wales assesses impact of long COVID on Wales. "There are currently no efforts to count those living with Long Covid (or indeed ME) in Wales. In last Winter Covid Infection Study by ONS in March 2024 Wales opted not to take part..."
www.thereforme.uk/p/still-here
Still here
An update on the Covid pandemic from across the bridge
www.thereforme.uk
November 18, 2025 at 12:48 PM
wamesmecfs.bsky.social
Dr Vanessa Velasco talks about Neutrophils, a group of white blood cells, and their behaviour in ME/CFS [18 mins] +Transcript
www.youtube.com/watch?v=n0PX...
www.youtube.com
November 18, 2025 at 12:38 PM
wamesmecfs.bsky.social
A new research report finds current UC sanctions system fails on its own terms, is disproportionately severe & doesn't prevent inappropriate sanctions. Also >4 in 5 cases (86%) supported to appeal were decided in favour of person sanctioned. www.disabilityrightsuk.org/news/sanctio...
Sanctionable Failures: Universal Credit’s Failing Sanctions Regime
www.disabilityrightsuk.org
November 18, 2025 at 12:37 PM
wamesmecfs.bsky.social
MERUK reports on 500mil Euro research boost for post-infectious diseases in Germany. They're seen as “one of greatest public health challenges of 21st century.” Goal must be... that they (ME/CFS and Long-COVID) can be cured by the mid-2030s at the latest."
www.meresearch.org.uk/german-500-m...
German 500 million Euro research boost fpr post-infectiuous diseases
German ME/CFS research funding half billion euros
www.meresearch.org.uk
November 18, 2025 at 12:31 PM
wamesmecfs.bsky.social
Welsh Senedd Debate on ME/CFS is postponed again! Now 10 Dec. Debate on Motion 8884 to be led by Adam Price, MS. With Senedd elections approaching fast, now is a good time to enlist your MS's support – because they also want yours! More info
tinyurl.com/bddfphe4 severeme.cymru@gmail.com
Motion - NDM8884 - Welsh Parliament
The Welsh Parliament is the democratically elected body that represents the interests of Wales and its people.
tinyurl.com
November 17, 2025 at 3:05 PM
wamesmecfs.bsky.social
Komaroff at the IACFSME conference: “40 years ago we knew nothing about the underlying biology of ME/CFS. Today, multiple abnormalities involving the CNS and ANS, immune system, energy metabolism, vascular system and gut microbiome have been identified and replicated."
tinyurl.com/43rf4rbz
My Reflections on the 2025 IACFSME Conference
From October 22 through October 25, I attended the 2025 IACFSME 17th Research and Clinical Conference (International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis)…
tinyurl.com
November 17, 2025 at 3:04 PM
wamesmecfs.bsky.social
International art project, One Red Leaf at a Time, invites contributions from chronically ill artists in any format for a 2026 exhibition. The aim is to use messages of hope from the research community as inspiration for creative expressions. Closing date 30 Dec 2025
tinyurl.com/y2wa9ydt
One Red Leaf at a Time: an international art project
As we approach the end of ME Awareness month, The Red Leaf Creative Collaborative is excited to launch One Red Leaf at a Time: an international art project.
tinyurl.com
November 17, 2025 at 3:00 PM
wamesmecfs.bsky.social
1 in 4 of the working-age population are Disabled.
Disabled people are twice as likely to be unemployed.
Almost two-thirds of all people living in extreme poverty are Disabled.
CDJ suggests how to close the employment gap.
tinyurl.com/2wyzstdy
Closing the disability employment gap
Disabled people want to be able to trust that the system is working for not against us. If we can be confident that engaging in the system will lead to employment with no financial threat, we will.
tinyurl.com
November 17, 2025 at 2:59 PM
wamesmecfs.bsky.social
Dr Michelle James speaks about uncovering inflammation and mitochondrial dysfunction in ME/CFS using whole body PET/MR imaging. [31 mins] +Transcript
tinyurl.com/348k2h3b
Michelle James, PhD | Inflammation and mitochondrial dysfunction in ME/CFS using whole body PET/MRI
Michelle James, PhD, Stanford University Uncovering inflammation and mitochondrial dysfunction in ME/CFS using whole body PET/MR imaging
tinyurl.com
November 17, 2025 at 2:58 PM
wamesmecfs.bsky.social
The UK gov needs to change its “extremely damaging” narrative that suggests disabled people are an “economic burden” & move away from threats & sanctions, if it wants to increase disability employment, MPs have been told by Disabled people’s organisations (DPOs).
tinyurl.com/d9954wjx
Government must drop ‘economic burden’ narrative and sanctions, MPs are told
The government needs to change its “extremely damaging” narrative that suggests disabled people are an “economic burden”, and move away from threats and sanctions, if it wants to increase disabilit…
tinyurl.com
November 17, 2025 at 2:56 PM