Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
This week's column argues that we cannot fight the climate crisis without also fighting the epistemic crisis.
www.theguardian.com/commentisfre...
This week's column argues that we cannot fight the climate crisis without also fighting the epistemic crisis.
www.theguardian.com/commentisfre...
Genocide is bad actually.
Genocide is bad actually.
This Govenrment need to stop standing on the side of polluters and instead tackle the cost of living crisis.
Some of my thoughts on COP 30 👇🏼
bestforbritain.substack.com/p/cop30-must...
This Govenrment need to stop standing on the side of polluters and instead tackle the cost of living crisis.
Some of my thoughts on COP 30 👇🏼
bestforbritain.substack.com/p/cop30-must...
This is not an institutional scandal in any meaningful sense of the word. It is an attack on public service broadcasting.
iandunt.substack.com/p/extra-edit...
This is not an institutional scandal in any meaningful sense of the word. It is an attack on public service broadcasting.
iandunt.substack.com/p/extra-edit...
Rainer Maria Rilka. Austrian 1875-1926.
Rainer Maria Rilka. Austrian 1875-1926.
youtube.com/@brokenbattery
youtube.com/@brokenbattery
“Roll over and play dead. Allow the Republicans to crumble beneath their own weight and make the American people miss us.”
www.nytimes.com/2025/02/25/o...
🧵
“Roll over and play dead. Allow the Republicans to crumble beneath their own weight and make the American people miss us.”
www.nytimes.com/2025/02/25/o...
🧵
Today, we are proud to launch the Overlapping Illness Alliance, a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions.
Today, we are proud to launch the Overlapping Illness Alliance, a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions.
It has been such a privilege to get to work on this with such a wonderful, inspiring team at @actionforme.bsky.social, including our brilliant Patient and Public Involvement Group, made up of people with lived experience of ME and Long Covid.
For more information, our FAQs, and to take part, head to our web page: www.actionforme.org.uk/research-campaigns/our-research-work/big-survey/
Thank you for supporting our research💙
🤝in collaboration with
@durhamimh.bsky.social @kacheston.bsky.social
It has been such a privilege to get to work on this with such a wonderful, inspiring team at @actionforme.bsky.social, including our brilliant Patient and Public Involvement Group, made up of people with lived experience of ME and Long Covid.
www.scripps.edu/news-and-eve...
www.scripps.edu/news-and-eve...
Want to do a PhD with @aryback.bsky.social, @avakhamseh.bsky.social, @sjoerdvbeentjes.bsky.social & @cgatist.bsky.social?
Then apply for a *funded* Future Medicine PhD Fellowship.
See: www.findaphd.com/phds/project...
Please contact us to discuss before applying.
@robgmacfarlane.bsky.social
@robgmacfarlane.bsky.social
twitter-thread.com/t/1981309222...
twitter-thread.com/t/1981309222...
"By telling me that, you've made ME sad."
It centers the listener, and even sounds accusative: you've burdened them. By existing
"By telling me that, you've made ME sad."
It centers the listener, and even sounds accusative: you've burdened them. By existing
"Hope from social justice to the environment. Hope for a fairer society and cleaner natural world. Hope for equality and opportunity whilst living side by side with nature."
swindonlink.com/news/greenco...
"Hope from social justice to the environment. Hope for a fairer society and cleaner natural world. Hope for equality and opportunity whilst living side by side with nature."
swindonlink.com/news/greenco...
It’s shameful how society is gaslighting people who are experiencing chronic illness and ignoring an ongoing public health crisis.
This article by Kenneth Friedman compares the histories of ME/CFS and HIV/AIDS
pmc.ncbi.nlm.nih.gov/articles/PMC...
This article by Kenneth Friedman compares the histories of ME/CFS and HIV/AIDS
pmc.ncbi.nlm.nih.gov/articles/PMC...
Body bags depicting the unseen, imprisoned lives in the tiniest, darkest spaces in which ME patients live their half lives.
Also a memorial for those that have died from this appallingly neglected illness.
Body bags depicting the unseen, imprisoned lives in the tiniest, darkest spaces in which ME patients live their half lives.
Also a memorial for those that have died from this appallingly neglected illness.
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...