Phil Youngs
@chronicallyphil.bsky.social
Silly smeepy squeaky husband. ME and Chronic Lyme.
🎮
🎮
3 fucking billion of tax payers money going to fund the precious commodity of rich peoples bonuses
38d.gs/dlqc
38d.gs/dlqc
Sign the petition: Block Thames Water bonuses
Thames Water bosses are cashing in on a £3bn emergency bailout - while pipes leak and bills rise. Stop bonuses for failure. Sign the petition now to get the Government to step in: 👇
38d.gs
May 14, 2025 at 11:54 AM
3 fucking billion of tax payers money going to fund the precious commodity of rich peoples bonuses
38d.gs/dlqc
38d.gs/dlqc
Happy Mother's Day to all the mothers who are grieving the loss of their child ❤️ 💔
May 11, 2025 at 1:51 PM
Happy Mother's Day to all the mothers who are grieving the loss of their child ❤️ 💔
Just the UK government casually changing the FUCKING TERMS OF WHAT A DISABILITY IS
Hidden behind the small sentence of needing 4 points on PIP now means you could need assistance to be able to get in or out of a bath or shower and still not qualify as disabled enough for this gov to help you with the increased cost of being disabled.
March 19, 2025 at 9:31 AM
Just the UK government casually changing the FUCKING TERMS OF WHAT A DISABILITY IS
Fuck this fucking government and their inability to understand disability. Labour are going to proudly kill thousands of people with diseases such as Long Covid and M.E.
Today is #longcovidawarenessday
If you’re not aware, LC, like ME/CFS, devastates lives. And the medical profession has almost entirely abandoned sufferers.
And now in the U.K., it sounds as if most will now lose their PIP.
💔
If you’re not aware, LC, like ME/CFS, devastates lives. And the medical profession has almost entirely abandoned sufferers.
And now in the U.K., it sounds as if most will now lose their PIP.
💔
March 15, 2025 at 2:16 PM
Fuck this fucking government and their inability to understand disability. Labour are going to proudly kill thousands of people with diseases such as Long Covid and M.E.
"Tackling" benefits; not in the Labour manifesto, but going ahead with £6 BILLION in cuts.
Raising money for the NHS by taxing NonDoms; in the manifesto, but now not happening after lobbying.
Once again, the poor are propping up the wealthy, but with Labour instead of the Tories.
Raising money for the NHS by taxing NonDoms; in the manifesto, but now not happening after lobbying.
Once again, the poor are propping up the wealthy, but with Labour instead of the Tories.
The actual fraud isn’t people faking disability. It’s politicians pretending to care about disabled people, then slashing the support that keeps us alive.
March 8, 2025 at 5:49 PM
"Tackling" benefits; not in the Labour manifesto, but going ahead with £6 BILLION in cuts.
Raising money for the NHS by taxing NonDoms; in the manifesto, but now not happening after lobbying.
Once again, the poor are propping up the wealthy, but with Labour instead of the Tories.
Raising money for the NHS by taxing NonDoms; in the manifesto, but now not happening after lobbying.
Once again, the poor are propping up the wealthy, but with Labour instead of the Tories.
My fiancées marriage visa is officially APPROVED!
homer simpson dressed as a bride holding a bouquet of flowers
Alt: homer simpson dressed as a bride holding a bouquet of flowers
media.tenor.com
February 20, 2025 at 2:12 PM
My fiancées marriage visa is officially APPROVED!
"We want to help disabled people back to work by reducing their ability to have government help to do so"
I genuinely loved Sir Stephen Timms's original appointment, but fuck me, I've done a 180 after this.
Also, don't see much difference between the last government and this on disability.
I genuinely loved Sir Stephen Timms's original appointment, but fuck me, I've done a 180 after this.
Also, don't see much difference between the last government and this on disability.
#DWP
So the government are looking to cut the access to work scheme that supports disabled people with equipment at work. They expect the employer to meet disabled worker’s access needs.
This is a huge concern and a huge mistake by the government
So the government are looking to cut the access to work scheme that supports disabled people with equipment at work. They expect the employer to meet disabled worker’s access needs.
This is a huge concern and a huge mistake by the government
February 14, 2025 at 5:04 PM
"We want to help disabled people back to work by reducing their ability to have government help to do so"
I genuinely loved Sir Stephen Timms's original appointment, but fuck me, I've done a 180 after this.
Also, don't see much difference between the last government and this on disability.
I genuinely loved Sir Stephen Timms's original appointment, but fuck me, I've done a 180 after this.
Also, don't see much difference between the last government and this on disability.
This.
The lack of understanding makes medical professionals simply pass the buck, which then ends up with a lunatic prescribing fresh air, yoga and positive thinking.
The lack of understanding makes medical professionals simply pass the buck, which then ends up with a lunatic prescribing fresh air, yoga and positive thinking.
COVID-related conditions should be integrated into medical education rather than being left to so-called ‘Long COVID clinics.’ When those in charge lack a real understanding of the condition, these clinics end up becoming gaslighting centers. Physician education must come first.
February 13, 2025 at 10:56 AM
This.
The lack of understanding makes medical professionals simply pass the buck, which then ends up with a lunatic prescribing fresh air, yoga and positive thinking.
The lack of understanding makes medical professionals simply pass the buck, which then ends up with a lunatic prescribing fresh air, yoga and positive thinking.
Reposted by Phil Youngs
February 11, 2025 at 5:59 PM
Mutual Aid post!
If anyone can spare something, please do so.
If anyone can spare something, please do so.
February 11, 2025 at 6:29 PM
Mutual Aid post!
If anyone can spare something, please do so.
If anyone can spare something, please do so.
The Cochrane cluster fuck continues...
Seems like they never had any intention of updating anything for ME/CFS patients. Big thanks to Jonathon Edwards (not the triple jumper. I assume) for his letter exposing them further to the BMJ. Shame they haven't published it, so read it here
Seems like they never had any intention of updating anything for ME/CFS patients. Big thanks to Jonathon Edwards (not the triple jumper. I assume) for his letter exposing them further to the BMJ. Shame they haven't published it, so read it here
A short recap of the latest developments concerning Cochrane's decision to abandon its update of their review on exercise therapy for ME/CFS. Also a repost of Jonathan Edwards' letter to BMJ about the same issue.
#MEcfs #CFS
#MEcfs #CFS
A letter to @bmj.com from Professor Jonathan Edwards of UCL about Cochrane's indefensible decision to abandon a long-promised update of its very flawed 2019 review of exercise therapy for ME/CFS: virology.ws/2025/02/03/t...
February 11, 2025 at 6:26 PM
The Cochrane cluster fuck continues...
Seems like they never had any intention of updating anything for ME/CFS patients. Big thanks to Jonathon Edwards (not the triple jumper. I assume) for his letter exposing them further to the BMJ. Shame they haven't published it, so read it here
Seems like they never had any intention of updating anything for ME/CFS patients. Big thanks to Jonathon Edwards (not the triple jumper. I assume) for his letter exposing them further to the BMJ. Shame they haven't published it, so read it here
In case you were wondering what's happening in the United States of Dumpster Fire...
States are suing the government so they can *checks notes* legally discriminate against disabled people.
States are suing the government so they can *checks notes* legally discriminate against disabled people.
Some context about the 17 states suing in full-throated support of disability discrimination
February 11, 2025 at 8:47 AM
In case you were wondering what's happening in the United States of Dumpster Fire...
States are suing the government so they can *checks notes* legally discriminate against disabled people.
States are suing the government so they can *checks notes* legally discriminate against disabled people.
Happy birthday Ben!
Pass it on
Pass it on
Happy Birthday, Ben!
Proud of you.
Proud of you.
- Today is my Birthday!
I have autism and I officially
turn 28 years old. I would like
to receive lots of birthday wishes
from people around the world!
please Share/Like! to help
make my birthday
wish come true! ❤️
I have autism and I officially
turn 28 years old. I would like
to receive lots of birthday wishes
from people around the world!
please Share/Like! to help
make my birthday
wish come true! ❤️
February 10, 2025 at 4:48 PM
Happy birthday Ben!
Pass it on
Pass it on
Who would have thought it?!
Other than allllllllll the patients
Other than allllllllll the patients
Confirmed: The Conclusion by NICE that CBT is not an Effective Treatment for ME/CFS; Re-Analysis of a Systematic Review
www.scibasejournals.org/neurology/10...
Image is from free AMMES February 2025 e-newsletter
#MEcfs #CFS
www.scibasejournals.org/neurology/10...
Image is from free AMMES February 2025 e-newsletter
#MEcfs #CFS
February 7, 2025 at 6:19 PM
Who would have thought it?!
Other than allllllllll the patients
Other than allllllllll the patients
Reposted by Phil Youngs
every day we see more and more evidence of society descending into utter lawlessness and chaos
February 6, 2025 at 12:32 PM
every day we see more and more evidence of society descending into utter lawlessness and chaos
199-fucking-2. And STILL #pwME and #pwLongCovid are being told we are depressed.
Medical world playing the long game with us and letting us die a horrible slow death
Medical world playing the long game with us and letting us die a horrible slow death
February 5, 2025 at 12:52 PM
199-fucking-2. And STILL #pwME and #pwLongCovid are being told we are depressed.
Medical world playing the long game with us and letting us die a horrible slow death
Medical world playing the long game with us and letting us die a horrible slow death
It would seem the UK governments approach to benefits is "let's take it away", regardless of Red or Blue.
They don't want to talk about Brexit, so why the fuck are they going to talk about an ongoing pandemic?
They don't want to talk about Brexit, so why the fuck are they going to talk about an ongoing pandemic?
What should happen:
“The number of people unable to work due to disability is increasing, so let’s try to get to the root causes and see what preventative and curative measures we can implement to help & support people”
Not
“Let’s take people’s benefits away”
“The number of people unable to work due to disability is increasing, so let’s try to get to the root causes and see what preventative and curative measures we can implement to help & support people”
Not
“Let’s take people’s benefits away”
February 1, 2025 at 9:30 PM
It would seem the UK governments approach to benefits is "let's take it away", regardless of Red or Blue.
They don't want to talk about Brexit, so why the fuck are they going to talk about an ongoing pandemic?
They don't want to talk about Brexit, so why the fuck are they going to talk about an ongoing pandemic?
Fran is an outstanding human being and member of the #ME and #LongCovid community. This is a snippet of her life from well, to mild ME (a horrible term for something debilitating as ME) to severe ME with Long Covid
Highlights from yesterday's ITV News Calendar segment on #LongCovid on the 5 year anniversary of the first case of Covid in the UK. Fran Haddock talks about how her life has been "decimated" by the condition.
February 1, 2025 at 12:36 PM
Fran is an outstanding human being and member of the #ME and #LongCovid community. This is a snippet of her life from well, to mild ME (a horrible term for something debilitating as ME) to severe ME with Long Covid
To anyone wondering why more people are claiming benefits in the UK...
Remember the global pandemic? Well, it's still happening and has had consequences that most of you are not wanting to see.
Long Covid is real. People with Long Covid need your support. Wear a mask.
Remember the global pandemic? Well, it's still happening and has had consequences that most of you are not wanting to see.
Long Covid is real. People with Long Covid need your support. Wear a mask.
If only there was some data or clear explanation about why that could be…. Oh wait. There is.
Long Covid.
People aren’t gaming the system. It’s so incredibly difficult to get “sickness benefits”. The reality is there are more people who are sick and disabled now.
www.bbc.co.uk/news/article...
Long Covid.
People aren’t gaming the system. It’s so incredibly difficult to get “sickness benefits”. The reality is there are more people who are sick and disabled now.
www.bbc.co.uk/news/article...
February 1, 2025 at 12:15 PM
To anyone wondering why more people are claiming benefits in the UK...
Remember the global pandemic? Well, it's still happening and has had consequences that most of you are not wanting to see.
Long Covid is real. People with Long Covid need your support. Wear a mask.
Remember the global pandemic? Well, it's still happening and has had consequences that most of you are not wanting to see.
Long Covid is real. People with Long Covid need your support. Wear a mask.
Another bastion in the ME community @whitneydafoe.bsky.social
✏️ My ME/CFS Blog:
www.whitneydafoe.com/mecfs
❓What is ME/CFS?
www.whitneydafoe.com/mecfs/whatis...
👤 My Story:
www.whitneydafoe.com/mecfs/mystory
📄 ME/CFS Resources:
www.whitneydafoe.com/mecfs/resour...
🙏 Donate to ME/CFS Research:
www.whitneydafoe.com/donate
www.whitneydafoe.com/mecfs
❓What is ME/CFS?
www.whitneydafoe.com/mecfs/whatis...
👤 My Story:
www.whitneydafoe.com/mecfs/mystory
📄 ME/CFS Resources:
www.whitneydafoe.com/mecfs/resour...
🙏 Donate to ME/CFS Research:
www.whitneydafoe.com/donate
January 29, 2025 at 4:37 PM
Another bastion in the ME community @whitneydafoe.bsky.social
@franhaddock.bsky.social is one of the most outstanding human beings. I was going to say outstanding #ME advocates, but she is so much more than that.
Please give her a follow
Please give her a follow
I don’t want my friends to keep getting sicker
🖤❤️🩹🖤
Words on existing in the severe ME community, TW severe illness ⬇️
🖤❤️🩹🖤
Words on existing in the severe ME community, TW severe illness ⬇️
January 29, 2025 at 1:51 PM
@franhaddock.bsky.social is one of the most outstanding human beings. I was going to say outstanding #ME advocates, but she is so much more than that.
Please give her a follow
Please give her a follow
Just a study proving that we know FOR FACT that the supposed ways of recovering from #ME and #LongCovid are harmful. Patients know it. Here's hoping practitioners listen to us for once
*UPDATE*
1.Extended version of
CBT and graded exercise therapy studies have proven that #ME and #LongCovid are physical diseases, yet no one is aware of that
is now available online.
2. PDF is now also available. Open access, so free of charge.
www.frontiersin.org/journals/hum...
1.Extended version of
CBT and graded exercise therapy studies have proven that #ME and #LongCovid are physical diseases, yet no one is aware of that
is now available online.
2. PDF is now also available. Open access, so free of charge.
www.frontiersin.org/journals/hum...
Frontiers | CBT and graded exercise therapy studies have proven that ME/CFS and long COVID are physical diseases, yet no one is aware of that
The cognitive behavioral model (CBmodel) (1,2) has dominated the world of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since the 1990s. Accord...
www.frontiersin.org
January 29, 2025 at 1:47 PM
Just a study proving that we know FOR FACT that the supposed ways of recovering from #ME and #LongCovid are harmful. Patients know it. Here's hoping practitioners listen to us for once
Reposted by Phil Youngs
‘Odd’ is one word for it, yes….
@natashadevon.bsky.social
It's odd that GB News and Reform UK never mentions white child abusers like these ones.
www.independent.co.uk/news/uk/crim...
It's odd that GB News and Reform UK never mentions white child abusers like these ones.
www.independent.co.uk/news/uk/crim...
Glasgow child abuse ring tried to murder girl by trapping her in microwave
Three children were abused in crimes between 2012 and 2019
www.independent.co.uk
January 27, 2025 at 6:21 PM
‘Odd’ is one word for it, yes….
@hankgreen.bsky.social @johngreensbluesky.bsky.social, two brilliant science and disease commentators WE NEED YOUR HELP
When we talk about #GreatestMEdicalScandal, this is an important and horrific part of it @hankgreen.bsky.social @johngreensbluesky.bsky.social. Echoes of 19th century hysteria treatment for multiple sclerosis or epilepsy. It leads to further worsening/suffering and death. #ExposeMENow #DontLetMEDie
Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they can’t get out of bed.
bit.ly/linepetition
bit.ly/linepetition
January 21, 2025 at 1:15 PM
@hankgreen.bsky.social @johngreensbluesky.bsky.social, two brilliant science and disease commentators WE NEED YOUR HELP