Reposted
I plan to share results publicly and will reflect the findings in my meetings, but i find it super interesting that the responses are showing Physician Training as the highest ranked for legislative priorities, even over trials. Maybe bc there is such a lack of information about ME compared to LC.
If you have ME/CFS (even without a formal diagnosis) & live in California, I would love if you could fill out & share this survey with your friends. I am trying to prepare for a few legislative meetings I have in January w/ some old colleagues.
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Responses are anonymous!
cryptpad.fr/form/#/2/for...
Encrypted Form
CryptPad: end-to-end encrypted collaboration suite
cryptpad.fr
December 13, 2025 at 12:10 AM
I plan to share results publicly and will reflect the findings in my meetings, but i find it super interesting that the responses are showing Physician Training as the highest ranked for legislative priorities, even over trials. Maybe bc there is such a lack of information about ME compared to LC.
Reposted
THIS
I still remember when I tried to explain to a nurse how little I can be active per day and she said “but you’re not active right now you’re sitting down”
No it doesn’t work like that, for me not being active is lying on my bed in the dark
I still remember when I tried to explain to a nurse how little I can be active per day and she said “but you’re not active right now you’re sitting down”
No it doesn’t work like that, for me not being active is lying on my bed in the dark
December 10, 2025 at 9:37 AM
THIS
I still remember when I tried to explain to a nurse how little I can be active per day and she said “but you’re not active right now you’re sitting down”
No it doesn’t work like that, for me not being active is lying on my bed in the dark
I still remember when I tried to explain to a nurse how little I can be active per day and she said “but you’re not active right now you’re sitting down”
No it doesn’t work like that, for me not being active is lying on my bed in the dark
Reposted
If you’re struggling to live with a person without autism, you’re not alone. We’ve gathered advice from family members of not-autism sufferers on how to make life easier for your relative without autism – but most importantly, for you.
How to live with a person without autism
Living with a person who’s living without autism can be a unique challenge. It’s not their fault that they suffer from not having autism — but that doesn’t reduce the impact their condition has on…
thedailytism.com
December 11, 2025 at 2:30 PM
If you’re struggling to live with a person without autism, you’re not alone. We’ve gathered advice from family members of not-autism sufferers on how to make life easier for your relative without autism – but most importantly, for you.
Reposted
Something I have to reiterate is that you are being straight up lied to about trans people and our healthcare on an unfathomable scale, this instance reporting is already being torn to shreds by other people commenting, but the frequency of this kind of reporting is astonishing, it's neverending.
You might think from the headline that this is a story about a trans kid suffering medical consequences from a large drug dose but nope! It is just an interview with an estranged father who is angry that his child happily transitioned.
archive.ph/Tmthz
archive.ph/Tmthz
December 11, 2025 at 1:17 AM
Something I have to reiterate is that you are being straight up lied to about trans people and our healthcare on an unfathomable scale, this instance reporting is already being torn to shreds by other people commenting, but the frequency of this kind of reporting is astonishing, it's neverending.
Reposted
Oh hell yeah
December 11, 2025 at 4:43 AM
Oh hell yeah
Reposted
I’m in a bad flare but still anxiously trying to raise what i need to stay housed this winter
The deadline has been missed but I’m not giving up!
$1160/2210 raised! We’re more than halfway there!
$maelee21
V: @ Maelee-Johnson
PayPal.me/maeleeJ
ko-fi.com/maedaej
#EmergencyCrowdfund
The deadline has been missed but I’m not giving up!
$1160/2210 raised! We’re more than halfway there!
$maelee21
V: @ Maelee-Johnson
PayPal.me/maeleeJ
ko-fi.com/maedaej
#EmergencyCrowdfund
December 11, 2025 at 12:14 PM
I’m in a bad flare but still anxiously trying to raise what i need to stay housed this winter
The deadline has been missed but I’m not giving up!
$1160/2210 raised! We’re more than halfway there!
$maelee21
V: @ Maelee-Johnson
PayPal.me/maeleeJ
ko-fi.com/maedaej
#EmergencyCrowdfund
The deadline has been missed but I’m not giving up!
$1160/2210 raised! We’re more than halfway there!
$maelee21
V: @ Maelee-Johnson
PayPal.me/maeleeJ
ko-fi.com/maedaej
#EmergencyCrowdfund
Reposted
Yah sno is good
December 11, 2025 at 12:10 PM
Yah sno is good
Reposted
I've said this before, but transphobia and ableism are so deeply intertwined, they're sometimes indistinguishable. Both are about eradicating non-normative bodies and minds from public life.
December 7, 2025 at 10:42 PM
I've said this before, but transphobia and ableism are so deeply intertwined, they're sometimes indistinguishable. Both are about eradicating non-normative bodies and minds from public life.
Reposted
Reposted
Transition is a matter of free will and freedom. Trans people are going to do it anyway and you cannot stop them.
We are full human beings with the right to decide our lives for ourselves and no one has a right to stand in the way of that.
We are full human beings with the right to decide our lives for ourselves and no one has a right to stand in the way of that.
one of the main reasons trans healthcare moved away from strict gatekeeping and toward informed consent & GAC is that trans ppl who were denied the means to transition would simply seek it out elsewhere
What did you think would happen when you restricted access to care?
December 8, 2025 at 8:36 PM
Transition is a matter of free will and freedom. Trans people are going to do it anyway and you cannot stop them.
We are full human beings with the right to decide our lives for ourselves and no one has a right to stand in the way of that.
We are full human beings with the right to decide our lives for ourselves and no one has a right to stand in the way of that.
Reposted
They cannot be given authority to forcibly remove anyone from their vehicle this way. Think about how bad actors would abuse this power.
December 6, 2025 at 1:15 AM
They cannot be given authority to forcibly remove anyone from their vehicle this way. Think about how bad actors would abuse this power.
Reposted
December 10, 2025 at 12:00 PM
Reposted
The ME Association is investing £1.1m in the largest charity-funded biomedical study in ME/CFS. Imperial College London, co-led by Professor Danny Altmann, will compare immune and metabolic pathways in ME/CFS and Long Covid to uncover shared mechanisms.
meassociation.org.uk/2025/12/driv...
meassociation.org.uk/2025/12/driv...
Driving discovery: The ME Association invests £1.1m into pioneering research programme! - The ME Association
Today, we are incredibly proud to unveil news of our […]
meassociation.org.uk
December 10, 2025 at 11:37 AM
The ME Association is investing £1.1m in the largest charity-funded biomedical study in ME/CFS. Imperial College London, co-led by Professor Danny Altmann, will compare immune and metabolic pathways in ME/CFS and Long Covid to uncover shared mechanisms.
meassociation.org.uk/2025/12/driv...
meassociation.org.uk/2025/12/driv...
Reposted
If you don't know anyone there, let me introduce Adham, who can't post his own fundraiser these days because he keeps getting deleted. He is a good, kind, clever man whose friendship I value and he deserves so much better than to live amid a genocide and being unhoused.
www.gofundme.com/f/adhammadi
www.gofundme.com/f/adhammadi
December 10, 2025 at 12:25 PM
If you don't know anyone there, let me introduce Adham, who can't post his own fundraiser these days because he keeps getting deleted. He is a good, kind, clever man whose friendship I value and he deserves so much better than to live amid a genocide and being unhoused.
www.gofundme.com/f/adhammadi
www.gofundme.com/f/adhammadi
Reposted
Just heard disappointing news that @warren.senate.gov will co-sponsor the Kids Online Safety Act again despite overwhelming opposition from LGBTQ, human rights, abortion rights, and racial justice groups.
This is a horrific betrayal of her constituents, particularly trans youth and their families.
This is a horrific betrayal of her constituents, particularly trans youth and their families.
Why Are Some Democrats Backing MAGA's Anti-LGBTQ+ Censorship?
From late-night host cancellations to removing LGBTQ+ history from government sites, politicians in both parties are contributing to the overwriting of the internet — a place where lots of queer and t...
www.teenvogue.com
December 9, 2025 at 10:34 PM
Just heard disappointing news that @warren.senate.gov will co-sponsor the Kids Online Safety Act again despite overwhelming opposition from LGBTQ, human rights, abortion rights, and racial justice groups.
This is a horrific betrayal of her constituents, particularly trans youth and their families.
This is a horrific betrayal of her constituents, particularly trans youth and their families.
All politics is now just that one parks and rec episode where they rename fluoride tdizzle
There's a post over on Twitter that I've been laughing to myself about. Some right-wing guy is celebrating that a school took down "All-Gender" bathroom signs and replaced them with "Single Occupancy Restroom" signs. And like... it's the same thing, man. You're celebrating a pointless relabeling.
December 10, 2025 at 1:06 PM
All politics is now just that one parks and rec episode where they rename fluoride tdizzle
Reposted
What’s that saying, hit dog holler
December 10, 2025 at 5:18 AM
What’s that saying, hit dog holler
Reposted
"The platform stripped me of my right to say no. … yet the thought of being replaced by a machine that could do it 'better' wasn’t comforting either. I wasn’t just exploited, I was also disposable. … I was reduced to a voice without a will, a presence without consent."
Now imagine sharing your private fantasies with what you believe is a bot that cannot judge or remember. Just that, on the other side, is a man in a one-room home in Nairobi, pretending to be an AI companion.
That man is Michael, and this is his story: data-workers.org/michael/
That man is Michael, and this is his story: data-workers.org/michael/
The Emotional Labor Behind AI Intimacy, by Michael Geoffrey Asia.
Imagine confiding your most private fantasies to what you believe is an unfeeling algorithm that cannot judge or remember. Now imagine that on the other side of that conversation is a man sitting in a...
data-workers.org
December 10, 2025 at 6:49 AM
"The platform stripped me of my right to say no. … yet the thought of being replaced by a machine that could do it 'better' wasn’t comforting either. I wasn’t just exploited, I was also disposable. … I was reduced to a voice without a will, a presence without consent."
Reposted
I really appreciate Davenport et al pushing back.
They’re responding to a proposed protocol that will purposefully mislead #LongCovid patients about the aims of the study👇
Source: bmjopen.bmj.com/content/15/1...
#MECFS #PEM
1/
They’re responding to a proposed protocol that will purposefully mislead #LongCovid patients about the aims of the study👇
Source: bmjopen.bmj.com/content/15/1...
#MECFS #PEM
1/
December 10, 2025 at 4:37 AM
I really appreciate Davenport et al pushing back.
They’re responding to a proposed protocol that will purposefully mislead #LongCovid patients about the aims of the study👇
Source: bmjopen.bmj.com/content/15/1...
#MECFS #PEM
1/
They’re responding to a proposed protocol that will purposefully mislead #LongCovid patients about the aims of the study👇
Source: bmjopen.bmj.com/content/15/1...
#MECFS #PEM
1/
Reposted
I agree that we should not judge Farage solely on the racist things he said when he was a kid. We should also judge him on the racist things he has done with the entire rest of his life.
December 8, 2025 at 12:54 PM
I agree that we should not judge Farage solely on the racist things he said when he was a kid. We should also judge him on the racist things he has done with the entire rest of his life.
Reposted
The real relevance of all of this is that precisely the same systems for running state agents engaged in violence & terror is ongoing. The state's protection of those actively involved in terror is ongoing. Attacks, intimidation & harm by the British Government's agents is ongoing. [1/n]
MI5 impeded inquiry into Stakeknife agent who murdered for IRA, says official report
Nine-year investigation paints highly critical picture of MI5’s handling of double agent
www.theguardian.com
December 9, 2025 at 12:36 PM
The real relevance of all of this is that precisely the same systems for running state agents engaged in violence & terror is ongoing. The state's protection of those actively involved in terror is ongoing. Attacks, intimidation & harm by the British Government's agents is ongoing. [1/n]
Reposted
RSF’s control of the Heglig oilfield means government has lost the most important oil facility in the country.
What’s changed in Sudan after the Rapid Support Forces’ control of Heglig?
RSF’s control of the Heglig oilfield means government has lost the most important oil facility in the country.
bit.ly
December 9, 2025 at 1:30 PM
RSF’s control of the Heglig oilfield means government has lost the most important oil facility in the country.
Reposted
It’s just after midnight on day 1 of the social media ban. Checking out recent posts on TikTok
December 9, 2025 at 1:30 PM
It’s just after midnight on day 1 of the social media ban. Checking out recent posts on TikTok
Reposted
this other one from that "The Cost of Living" series. really complicated image. those guys back there. full three dimensional space with two apertures playing against each other. that rainbow sweater, the flowers, forlorn young parents and look out here comes a baby head
December 8, 2025 at 12:49 PM
this other one from that "The Cost of Living" series. really complicated image. those guys back there. full three dimensional space with two apertures playing against each other. that rainbow sweater, the flowers, forlorn young parents and look out here comes a baby head
Reposted
can't stop watching this clip of a tesla Optimus teleoperator taking his headset off before properly logging out the robot
December 8, 2025 at 9:29 AM
can't stop watching this clip of a tesla Optimus teleoperator taking his headset off before properly logging out the robot