Sage
@sagetoko.bsky.social
Applied Physics PhD working in industry. Chronically ill maker of things. Fiber arts, cooking, dogs. she/her. Exceedingly fond of heffalumps. 🐘❤️
#LongCovid #MECFS #EDS #POTS
#LongCovid #MECFS #EDS #POTS
Reposted by Sage
I genuinely cannot believe the degree to which we are pissing away this generational breakthrough, even given the fuckmuppets who are involved www.nbcnews.com/health/healt...
FDA declines to review Moderna's mRNA flu shot
Under Health Secretary Robert F. Kennedy Jr., the Food and Drug Administration has taken an aggressive stance against mRNA technology.
www.nbcnews.com
February 10, 2026 at 11:32 PM
I genuinely cannot believe the degree to which we are pissing away this generational breakthrough, even given the fuckmuppets who are involved www.nbcnews.com/health/healt...
Reposted by Sage
WEARING A MASK IS NOT FUCKING EXTREME YOU FUCKING ABLEIST DISEASE LOVING PIECES OF SHIT
For most people, the pandemic days of masking are behind us. In certain corners of the Winter Olympics, though, things still look a lot like they did in Covid times. Some athletes are taking extreme measures to stay healthy. n.pr/4akK70l
Olympic Covid restrictions are gone, but some athletes still self-quarantining
For most people, the pandemic days of masking are behind us. In certain corners of the Winter Olympics, though, things still look a lot like they did in Covid times. Some athletes are taking extreme measures to stay healthy.
n.pr
February 10, 2026 at 3:28 AM
WEARING A MASK IS NOT FUCKING EXTREME YOU FUCKING ABLEIST DISEASE LOVING PIECES OF SHIT
Reposted by Sage
Alright, where are my gifted kids at? You were smart and you never had to study and then you went to college and suddenly had to learn a new skillset overnight, that everybody else had years to learn, or flame out spectacularly?
That’s what talent is like.
That’s what talent is like.
In my experience, talent is a *detriment* to learning.
I didn't have to practice early on so I *didn't know how*. I didn't start to learn how to practice until my 30s! (When much of my life was taken up with parenting, so I didn't have time!)
I didn't start to improve as a musician until my 40s!
I didn't have to practice early on so I *didn't know how*. I didn't start to learn how to practice until my 30s! (When much of my life was taken up with parenting, so I didn't have time!)
I didn't start to improve as a musician until my 40s!
I'm going to say this again in case you haven't heard this one: I was a talented writer and it did *nothing whatsoever* because I hadn't put in the work, and I put in the work for ten years (subtracting the bit where I had to quit for my mental health) to write Witchmark
talent alone could *never*
talent alone could *never*
February 7, 2026 at 6:37 PM
Alright, where are my gifted kids at? You were smart and you never had to study and then you went to college and suddenly had to learn a new skillset overnight, that everybody else had years to learn, or flame out spectacularly?
That’s what talent is like.
That’s what talent is like.
Reposted by Sage
#pwme and #pwlc - tried hyperbaric oxygen /oxygen therapy at a specialist centre? Please could you fill in this questionnaire. Positive and negative experiences are all important to share. As always the survey can be saved and continued at another time. Thanks @physiosforme.bsky.social
New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy.
Please share widely.
For all the info and survey link, head on over to
www.physiosforme.com/o2survey
Please share widely.
For all the info and survey link, head on over to
www.physiosforme.com/o2survey
02 Chamber survey | Physiosforme
www.physiosforme.com
February 5, 2026 at 9:30 PM
#pwme and #pwlc - tried hyperbaric oxygen /oxygen therapy at a specialist centre? Please could you fill in this questionnaire. Positive and negative experiences are all important to share. As always the survey can be saved and continued at another time. Thanks @physiosforme.bsky.social
Reposted by Sage
NEW: The unfathomable Minnesota transcript that must be read, as it tells the reality of America today.
"I am not white, as you can see," Julie Le — a government lawyer — told a federal judge on Tuesday. "And my family's at risk as any other people that might get picked up too ..."
Law Dork:
"I am not white, as you can see," Julie Le — a government lawyer — told a federal judge on Tuesday. "And my family's at risk as any other people that might get picked up too ..."
Law Dork:
The unfathomable Minnesota transcript that must be read, as it tells the reality of America today
"I am not white, as you can see," Julie Le — a government lawyer — told a federal judge on Tuesday. "And my family's at risk as any other people that might get picked up too ..."
www.lawdork.com
February 5, 2026 at 4:59 AM
NEW: The unfathomable Minnesota transcript that must be read, as it tells the reality of America today.
"I am not white, as you can see," Julie Le — a government lawyer — told a federal judge on Tuesday. "And my family's at risk as any other people that might get picked up too ..."
Law Dork:
"I am not white, as you can see," Julie Le — a government lawyer — told a federal judge on Tuesday. "And my family's at risk as any other people that might get picked up too ..."
Law Dork:
Reposted by Sage
Fascism wants you to believe that you are alone. That you are isolated. That the feelings you have are yours and nobody else has them because everybody is too afraid to speak.
But love is stronger than fascism. Community is stronger than fascism.
But love is stronger than fascism. Community is stronger than fascism.
February 4, 2026 at 2:51 AM
Fascism wants you to believe that you are alone. That you are isolated. That the feelings you have are yours and nobody else has them because everybody is too afraid to speak.
But love is stronger than fascism. Community is stronger than fascism.
But love is stronger than fascism. Community is stronger than fascism.
Reposted by Sage
New review highlights growing evidence that diabetes drug metformin can prevent long COVID https://www.cidrap.umn.edu/covid-19/new-review-highlights-growing-evidence-diabetes-drug-metformin-can-prevent-long-covid
⤷ canadahealthwatch.ca/featured 🍁
⤷ canadahealthwatch.ca/featured 🍁
February 3, 2026 at 6:03 PM
New review highlights growing evidence that diabetes drug metformin can prevent long COVID https://www.cidrap.umn.edu/covid-19/new-review-highlights-growing-evidence-diabetes-drug-metformin-can-prevent-long-covid
⤷ canadahealthwatch.ca/featured 🍁
⤷ canadahealthwatch.ca/featured 🍁
Reposted by Sage
Shared this on insta & will share here too. If you’re not in the ME or Long Covid communities you’re likely unaware of just how often we have to watch young people die.
February 2, 2026 at 5:08 PM
Shared this on insta & will share here too. If you’re not in the ME or Long Covid communities you’re likely unaware of just how often we have to watch young people die.
Reposted by Sage
We had eradicated this disease.
And now because of targeted disinformation, children, immunocompromised people, elderly folks, and so many others become victims in this proxy war and we have a new avoidable pandemic.
And now because of targeted disinformation, children, immunocompromised people, elderly folks, and so many others become victims in this proxy war and we have a new avoidable pandemic.
Holy moly this chart: Cumulative US measles cases
January 28, 2026 at 2:03 PM
We had eradicated this disease.
And now because of targeted disinformation, children, immunocompromised people, elderly folks, and so many others become victims in this proxy war and we have a new avoidable pandemic.
And now because of targeted disinformation, children, immunocompromised people, elderly folks, and so many others become victims in this proxy war and we have a new avoidable pandemic.
Reposted by Sage
Reposted by Sage
The most important thing I've read today.
Into the abyss
The correct response to Dachau was not better training for the guards.
degenerateart.beehiiv.com
January 20, 2026 at 6:57 PM
The most important thing I've read today.
Reposted by Sage
What is hope, if not spite persevering?
January 19, 2026 at 10:35 PM
What is hope, if not spite persevering?
Reposted by Sage
“I’m sick of feeling pressured to read things not bc I expect to learn anything helpful, but so I’ll be able to defend myself when it’s inevitably used against me.”
🔥🔥🔥
🔥🔥🔥
I’m sick of all the emotional grenades lobbed at people w/ ME—the articles/studies/books/guides w/ harmful information or both sidesing. I’m sick of feeling pressured to read things not bc I expect to learn anything helpful, but so I’ll be able to defend myself when it’s inevitably used against me.
January 14, 2026 at 6:47 AM
“I’m sick of feeling pressured to read things not bc I expect to learn anything helpful, but so I’ll be able to defend myself when it’s inevitably used against me.”
🔥🔥🔥
🔥🔥🔥
Reposted by Sage
"If we truly want to understand this disease, it is these patients, the ones most severely affected, whom we cannot afford to leave behind.
They are not beyond the reach of science; they are where real progress begins."
1/2
They are not beyond the reach of science; they are where real progress begins."
1/2
"The future of Long COVID research will be measured not by how many trials are launched, but by how many lives they truly represent."
A new op-ed in @thesicktimes.org by Sevda Sarikaya
thesicktimes.org/2026/01/13/s...
A new op-ed in @thesicktimes.org by Sevda Sarikaya
thesicktimes.org/2026/01/13/s...
Severe people may hold answers to Long COVID. They must be included in research. - The Sick Times
People with the most severe symptoms represent the most clinically urgent population, yet they remain absent from the evidence base that guides care. Their exclusion is not a procedural oversight but ...
thesicktimes.org
January 13, 2026 at 7:56 PM
"If we truly want to understand this disease, it is these patients, the ones most severely affected, whom we cannot afford to leave behind.
They are not beyond the reach of science; they are where real progress begins."
1/2
They are not beyond the reach of science; they are where real progress begins."
1/2
Reposted by Sage
About that new “Invisible Illness” book 🤮
January 9, 2026 at 8:28 PM
About that new “Invisible Illness” book 🤮
Reposted by Sage
Discworld QOTD, from Snuff
January 7, 2026 at 7:14 PM
Discworld QOTD, from Snuff
Reposted by Sage
"Being physically able to walk a 5k should not be a prerequisite to be able to travel by air." THIS!
Also even more people have POTS, MECFS and new disabilities now thanks to long covid.
Also even more people have POTS, MECFS and new disabilities now thanks to long covid.
We're back — and our first feature of the year is a meticulous dissection of "Jetway Jesus", the "airport wheelchair miracle", and the people who perpetuate this insidious and persistent myth.
theupfront.media/disabled-pas...
theupfront.media/disabled-pas...
Disabled passengers, airport wheelchairs and the pernicious myth of “Jetway Jesus”
Clickbait hacks aside, perpetuating inaccuracies about disabled passengers and wheelchair users is wrong — and counterproductive for aviation
theupfront.media
January 6, 2026 at 6:11 AM
"Being physically able to walk a 5k should not be a prerequisite to be able to travel by air." THIS!
Also even more people have POTS, MECFS and new disabilities now thanks to long covid.
Also even more people have POTS, MECFS and new disabilities now thanks to long covid.
Reposted by Sage
With RFK Jr again further reducing access to vaccines, your regular reminder that now would be a good time to restart wearing a high quality mask regularly again for an added layer of protection from airborne diseases.
January 6, 2026 at 6:07 AM
With RFK Jr again further reducing access to vaccines, your regular reminder that now would be a good time to restart wearing a high quality mask regularly again for an added layer of protection from airborne diseases.
Reposted by Sage
Amazing that this review paper from 2021 just became my most cited paper of my 30+ yr career. I am honored to have been the lead first co-corresponding author with @ChiaWang8. COVID is indeed airborne--as are most other respiratory viruses. @ucsandiego.bsky.social
www.science.org/doi/full/10....
www.science.org/doi/full/10....
Airborne transmission of respiratory viruses
A Review discusses the scientific basis of and factors controlling airborne transmission of respiratory viruses including coronavirus.
www.science.org
December 27, 2025 at 11:51 PM
Amazing that this review paper from 2021 just became my most cited paper of my 30+ yr career. I am honored to have been the lead first co-corresponding author with @ChiaWang8. COVID is indeed airborne--as are most other respiratory viruses. @ucsandiego.bsky.social
www.science.org/doi/full/10....
www.science.org/doi/full/10....
Does anyone have particularly good/recommendable resources on #LongCovid and menstrual cycle issues? This is not an area that I’m as familiar with as some. Thanks!
December 28, 2025 at 2:09 AM
Does anyone have particularly good/recommendable resources on #LongCovid and menstrual cycle issues? This is not an area that I’m as familiar with as some. Thanks!
Reposted by Sage
J*F*C
This is *exactly* the sort of thing I've been screaming about for decades: anti-science lofted to the level of a government-funded colossal waste of money, as well as more eroding of public confidence in science. RFK Jr. is an immense danger to this country.
This is *exactly* the sort of thing I've been screaming about for decades: anti-science lofted to the level of a government-funded colossal waste of money, as well as more eroding of public confidence in science. RFK Jr. is an immense danger to this country.
RFK, Jr.–Backed Lyme Disease Conspiracy Theory May Be Probed under New Bill
www.scientificamerican.com/article/rfk-...
President Donald Trump is expected to sign a defense bill this week that orders an investigation into whether the U.S. military bioengineered Lyme disease
www.scientificamerican.com/article/rfk-...
President Donald Trump is expected to sign a defense bill this week that orders an investigation into whether the U.S. military bioengineered Lyme disease
RFK, Jr.–Backed Lyme Disease Conspiracy Theory May Be Probed under New Bill
President Donald Trump is expected to sign a defense bill this week that orders an investigation into whether the U.S. military bioengineered Lyme disease
www.scientificamerican.com
December 16, 2025 at 7:12 PM
J*F*C
This is *exactly* the sort of thing I've been screaming about for decades: anti-science lofted to the level of a government-funded colossal waste of money, as well as more eroding of public confidence in science. RFK Jr. is an immense danger to this country.
This is *exactly* the sort of thing I've been screaming about for decades: anti-science lofted to the level of a government-funded colossal waste of money, as well as more eroding of public confidence in science. RFK Jr. is an immense danger to this country.
Reposted by Sage
Rival CDC in Avignon
Breaking: Gov. Gavin Newsom plans to announce on Monday that California has hired two former CDC leaders who accused the Trump administration of abandoning scientific standards.
Gift link: www.nytimes.com/2025/12/14/u...
Gift link: www.nytimes.com/2025/12/14/u...
California Hires Former C.D.C. Officials Who Criticized Trump Administration
www.nytimes.com
December 15, 2025 at 1:57 AM
Rival CDC in Avignon
Reposted by Sage
This is one of the best synopses of Symptoms Syndrome I've ever read 😭
December 11, 2025 at 8:44 PM
This is one of the best synopses of Symptoms Syndrome I've ever read 😭
Reposted by Sage
Case series of 3 more people with long COVID found rapid, dramatic recovery after monoclonal antibodies, though a 36-person trial showed no overall benefit, suggesting potential in select patients.
www.healthrising.org/blog/2025/12...
www.healthrising.org/blog/2025/12...
Three Long-term Long COVID Patients - Three Rapid Recoveries: The Monoclonal Antibodies Strike Again! - Health Rising
Check out 3 long COVID patients who recovered after receiving a monoclonal antibody (mAB) and the state of the mAB field today in long COVID and ME/CFS.
www.healthrising.org
December 12, 2025 at 11:24 PM
Case series of 3 more people with long COVID found rapid, dramatic recovery after monoclonal antibodies, though a 36-person trial showed no overall benefit, suggesting potential in select patients.
www.healthrising.org/blog/2025/12...
www.healthrising.org/blog/2025/12...
The Sick Times does extremely important work reporting on studies and news relevant to the #ME/CFS #pwME and #LongCovid communities. I have become a monthly supporter, and encourage you to do the same if you can.
We’re over halfway through our end-of-year fundraiser, and we’re not where we need to be to keep our vital work going. We have three weeks left to hit our goals of $60,000 and 200 monthly supporters.
The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/
The #LongCOVID community needs us — we need you! the-sick-times.fundjournalism.org/donate/
December 12, 2025 at 8:02 PM
The Sick Times does extremely important work reporting on studies and news relevant to the #ME/CFS #pwME and #LongCovid communities. I have become a monthly supporter, and encourage you to do the same if you can.