Erin Lee
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erinmarilee.bsky.social
Erin Lee
@erinmarilee.bsky.social
230 followers 240 following 170 posts
ME/CFS since 2001 | Passionate about improving med ed, increasing access to care, and finding a cure | Faith, Hope, Love
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Reposted by Erin Lee
altcdc.altgov.info
While SNAP is in limbo between politics and courts, grocery stores and apps have offers for both SNAP recipients and people who want to donate food (e.g. Instacart Community Carts).

Would’ve been great if these businesses had advocated against politicizing SNAP with the shutdown, but here we are.
Instacart Offers Support for SNAP Recipients, Food Banks
Online platform 1 of several companies stepping into breach as government shutdown threatens benefits
progressivegrocer.com
November 2, 2025 at 3:37 PM
Reposted by Erin Lee
tomkindlon.bsky.social
How much my providers know about my condition: Photo of tiny book (possibly the smallest in the world) How much I have to know to keep them from harming me: Photo of huge book (possibly the largest in the world)
October 29, 2025 at 5:57 PM
Reposted by Erin Lee
dcapto.bsky.social
😭💔 😷 #CovidIsNotMild

Reposting with alt text
Social post by Rebecca O'Connor @rebeccaoco Replying to @Saffiya_Khant @TrudiG and 2 others I actively hated lockdowns, cried my way through them and felt I was neglecting my children while they were stuck at home and I tried to work. Would have that again forever, compared to what I have now, which is two chronically ill children with long covid who can't function 9:31 PM - 21 Oct 25
October 29, 2025 at 1:14 AM
Reposted by Erin Lee
shematologist.medsky.social
Woman in my buy nothing group posted this morning. “I’m looking for a grocery buddy who’s going to. I can afford to take on one person or single mom with kids. These are the places I shop at so it would be best if your needs could be fulfilled at the same locations.” She found someone and now Moore are volunteering to take one person on snap and pay for their needs for the month of November. This is community care. If you have the funds, please consider doing the same.
October 28, 2025 at 10:19 PM
Reposted by Erin Lee
juliametraux.bsky.social
I get these fact-checks re tylenol/Autism lawsuit but what is very much needed is messaging of "If you think your kids' autism diagnosis is that devastating, please seek help before your child feels the effect of your anti-autism views."
October 28, 2025 at 4:45 PM
Reposted by Erin Lee
newdisabledsouth.org
We are offering one time payments to disabled folks in the South who will not receive their SNAP benefits this month. If you need help, please find more information and details at ndsdj.org/snaphelp.

If you’d like to donate to the fund, go to ndsdj.org/snapdonate

We take care of each other ❤️
Graphic with a light background and the New Disabled South logo in the top right corner. Large bold text reads: ‘Apply: Food Assistance for Disabled People in the South.’ Text below explains that due to the government shutdown, people in the South will not receive their November SNAP (Supplemental Nutrition Assistance Program) payments. New Disabled South is offering one-time payments to help people impacted by not receiving SNAP — $100 for individuals and $250 for households with two or more people. It notes that funding is first-come, first-served and that SSI or Medicaid recipients should read a disclaimer before applying. A call-to-action at the bottom reads: ‘Apply at ndsdj.org/snaphelp.’ There are small illustrations of a grocery bag and a grocery list. Graphic with a light background and the New Disabled South logo in the top right corner. Large bold text reads: ‘Donate to Support Food Assistance for Disabled People in the South.’ The message says that New Disabled South is raising money to provide direct payments to people impacted by loss of SNAP funds, and invites donations. A black banner at the bottom reads: ‘Donate at ndsdj.org/snapdonate.’ A small illustration of a grocery bag with food items is on the left. Graphic in Spanish with a light background and the New Disabled South logo in the top right corner. Large bold text reads: ‘Solicitar: Asistencia Alimentaria para Personas con Discapacidad en el Sur.’ The text explains that due to the government shutdown, people will not receive November SNAP payments and that New Disabled South offers one-time payments of $100 for individuals and $250 for households with two or more people, first-come, first-served. It also includes a note for SSI or Medicaid recipients. A black banner at the bottom reads: ‘Solicitar en ndsdj.org/snaphelp.’ A small illustration of a grocery bag and grocery list appears on the left. Graphic in Spanish with a light background and the New Disabled South logo in the top right corner. Large bold text reads: ‘Dona para apoyar la asistencia alimentaria para personas con discapacidad en el Sur.’ The text explains that New Disabled South is raising funds to make direct payments to people affected by the loss of SNAP funds and provides information on how to donate. A black banner at the bottom reads: ‘Dona en ndsdj.org/snapdonate.’ A small illustration of a grocery bag with food items appears on the left.
October 28, 2025 at 3:11 AM
Reposted by Erin Lee
hankgreen.bsky.social
“Leaders not Tweeters” is the rebrand America needs.
October 28, 2025 at 2:06 PM
Reposted by Erin Lee
juliametraux.bsky.social
If you're going to volunteer at a food bank because of the current times, please consider wearing a mask when helping distributing food. Even if they're not wearing a mask themselves, poor people have enough to deal with right now, getting an infectious disease just adds to the burden.
October 27, 2025 at 3:47 PM
Reposted by Erin Lee
beebrookshire.bsky.social
I know a lot of people (cough Millennials) feel like they need to START a thing, START a food bank, build a little free food pantry.

My friends, my loves, my dears.

Don't start.

JOIN.

These exist. They have community ties! They have some funding! Accountability! Regulations!
October 27, 2025 at 1:25 PM
Reposted by Erin Lee
castawayfarm.bsky.social
Feeding America has a page where you can input your zip code and it'll show you all of the food banks near you overlaid on a map. If you need it, it's there. If you don't need it, think about donating money if you have it and your time if you don't.

www.feedingamerica.org/find-your-lo...
Find Your Local Food Bank | Feeding America
Find the Feeding America member food bank nearest you. Over 200 member food banks can connect you with free food, food pantries, soup kitchens, and mobile pantries in your community.
www.feedingamerica.org
October 26, 2025 at 7:16 PM
erinmarilee.bsky.social
I love this whole thread that looks at how things associated with femininity (like decorating the front porch) are important for relationship building which is vital for community organizing.
annacarey.ca Anna Carey @annacarey.ca · 26d
But nobody takes the Pinterest moms seriously when they're doing front porch decorations not recognizing that a decorated front porch is a welcome mat that invites local connections better than just about anything I've ever tried.
October 26, 2025 at 3:55 PM
Reposted by Erin Lee
juliametraux.bsky.social
What if all the rich members of Congress donated their salary to their local food banks....
October 23, 2025 at 10:21 PM
Reposted by Erin Lee
oregoncapitalchronicle.com
Sen. Jeff Merkley is still speaking on the Senate floor, continuing a marathon speech he began last night. oregoncapitalchronicle.com/2025/10/22/r...
Oregon's Merkley holds US Senate floor overnight in Trump protest • Oregon Capital Chronicle
U.S. Sen. Jeff Merkley began speaking on the Senate floor just before 6:30 p.m. Tuesday against what he called President Donald Trump’s authoritarian actions.
oregoncapitalchronicle.com
October 22, 2025 at 5:14 PM
Reposted by Erin Lee
exceedhergrasp1.bsky.social
Actual @lastweektonight.com is here?

Resharing an advocacy thread from last year! :D
exceedhergrasp1.bsky.social It's ME(Jaime) @exceedhergrasp1.bsky.social · Jun 1
Tonight, we parody a great, recurring sketch from Last Week Tonight:

How is This Still a Thing?

@lastweektonight1.bsky.social
@thedailyshow.bsky.social
#TheGreatestMEdicalScandal #JohnVsJonVsME
A cream background with a black vertical line dividing it in half. On the left-hand side, it says "the Lightning Process" in small, Garamond font with a little image of blue ball lightning. On the right-hand side is block lettering which reads, "How is this still a thing?"
October 21, 2025 at 12:19 PM
Reposted by Erin Lee
jillybobww.bsky.social
Brb just writing a screenplay about a struggling inflatable costume factory in a wholesome but dying American small town that unexpectedly helps save democracy, and democracy saves it right back.
October 18, 2025 at 6:28 PM
Reposted by Erin Lee
meactnet.bsky.social
We know a lot of people are wanting to participate in actions or protests right now.

#MEAction has a Protest Guide for those with ME or other energy-limiting chronic disease to help!

Find it here: www.meaction.net/_files/ugd/b...

#pwME #MECFS #ChronicIllness #protest #spoonie
October 18, 2025 at 3:51 PM
erinmarilee.bsky.social
I’m on Day 4 of a migraine, but that’s nothing compared to what people are suffering from USAID cuts, unconstitutional deportations, illegal military actions, and the loss of healthcare access. Thanks to @meactnet.bsky.social for the perfect #MECFS protest shirt. #NoKings Douglasville, Georgia
A woman with a tired smile stands behind a protest crowd of a couple hundred people. She is wearing noise cancelling headphones, migraine glasses, and a teal shirt that says “I saved my spoons for this. #MEAction”. She is holding American flags in each hand.
October 18, 2025 at 4:18 PM
Reposted by Erin Lee
dynamicsymmetry.bsky.social
Block. Do not engage.

They are here ONLY to get engagement, why the fuck would you give them the one thing they came here to get
October 17, 2025 at 10:12 PM
Reposted by Erin Lee
broadwaybabyto.bsky.social
US Government accounts have arrived on Bluesky.

Block on sight.

Protect your digital space.

Be aware that the DHS account in particular is known to quote dunk on regular people to encourage their followers to harass them.

The detach quote function will come in very handy here…
October 17, 2025 at 11:05 PM
Reposted by Erin Lee
jokar.bsky.social
Here’s a list: bsky.app/profile/did:...
October 17, 2025 at 10:21 PM
Reposted by Erin Lee
melbuer.bsky.social
I see protest discourse is hitting the feed again ahead of No Kings—idk man, go, don’t go,

…but if you do go make sure to link up with an org that’ll help you get into longterm organizing and if you don’t go, make sure to link up with an org that’ll help you get into longterm organizing
October 16, 2025 at 2:06 AM
Reposted by Erin Lee
effies.bsky.social
Wanna to go to a virtual No Kings rally that focuses on healthcare (with a side of "vaccines are good, actually" and "eugenics is bad, actually")?

Organized by disabled folks who can't go to an in-person event.

Join Saturday at 2:30pm Pacific time, zoom link: us06web.zoom.us/j/8467741742...
Join our Cloud HD Video Meeting
Zoom is the leader in modern enterprise cloud communications.
us06web.zoom.us
October 14, 2025 at 7:38 PM
erinmarilee.bsky.social
You know when your symptoms and the adrenaline spike together, so you text a family member everything you know about joro spiders and read 30 different smoothie recipes, because you don’t want to sit with the symptoms, or doomscroll, and you shouldn’t move a muscle? #MECFS
October 15, 2025 at 12:47 AM
erinmarilee.bsky.social
This made me tear up. What wonderful news!
batemanhornecenter.bsky.social Bateman Horne Center @batemanhornecenter.bsky.social · Oct 14
Milestone moment for ME/CFS awareness!
The American College of Sports Medicine has added a section on ME/CFS to its Exercise Guidelines for the first time ever, thanks to @workwellfoundation.bsky.social and collaborators.

Read more: https://bit.ly/46P31vP
#MECFS #ACSM @acsm1954.bsky.social
"History Made! The American College of Sports Medicine includes ME/CFS in global exercise guidelines for the first time."
October 14, 2025 at 9:00 PM
Reposted by Erin Lee
exceedhergrasp1.bsky.social
You simply cannot do as bad a job by accident as these ppl do on purpose

Start an advocacy campaign, run for something-- you have something they don't

An earnest desire to help, to change things for the better. Compassion and integrity
angryblacklady.blacksky.app Imani Gandied Yams @angryblacklady.blacksky.app · Oct 6
you are no longer allowed to have imposter syndrome.

not after this bari omgwtf weiss situation.

you're literally not allowed to feel imposter syndrome ANYMORE
October 6, 2025 at 8:45 PM