Erin Lee
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erinmarilee.bsky.social
Erin Lee
@erinmarilee.bsky.social
230 followers 240 following 170 posts
ME/CFS since 2001 | Passionate about improving med ed, increasing access to care, and finding a cure | Faith, Hope, Love
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erinmarilee.bsky.social
I’m on Day 4 of a migraine, but that’s nothing compared to what people are suffering from USAID cuts, unconstitutional deportations, illegal military actions, and the loss of healthcare access. Thanks to @meactnet.bsky.social for the perfect #MECFS protest shirt. #NoKings Douglasville, Georgia
A woman with a tired smile stands behind a protest crowd of a couple hundred people. She is wearing noise cancelling headphones, migraine glasses, and a teal shirt that says “I saved my spoons for this. #MEAction”. She is holding American flags in each hand.
October 18, 2025 at 4:18 PM
erinmarilee.bsky.social
I am leading a discussion tomorrow with a politically diverse group and I am feeling the weight of that task.

So we went to a reservoir to watch birds and feel peace. AND WE SAW MUTE SWANS!!!!!

They don’t live here. This is our first errant bird sighting! Take that, big scary universe!
A pair of mute swans float gracefully on the dark blue reservoir waters with gentle ripples. The swan in the foreground is nibbling lime green algae while the swan in the background watches.
September 13, 2025 at 7:28 PM
erinmarilee.bsky.social
The news is bleak, but months ago I planted native spotted bee balm in my yard and this week the flowers finally bloomed and now they’re crawling with giant baby native carpenter bees! So yay! One tiny step towards restoring a healthy ecosystem.
There is what looks like a giant fuzzy bumblebee, but it is in fact a giant baby eastern carpenter bee, having a nice snack on one of two spotted bee balm blooms. The blooms look like a 3 tiered Dr. Seuss flower cake with three tiers of lavender petals. Between the bottom and middle tier of lavender flowers are white petals with tiny brown spots. Between the middle and top tier is what looks like a tiny lime green pineapple. On top of the third tier is what looks like a tiny lime green crown. Both the bee and the flowers look very happy.
September 6, 2025 at 11:34 PM
erinmarilee.bsky.social
A friend alerted me that @bluegeorgia.bsky.social posted this pic from my #HandsOff speech on the other place.

Huge thanks to @wilhelminaj.bsky.social for allowing me to tell her story, to @exceedhergrasp1.bsky.social and #MEActionGA for aiding me, and to Atlanta for your roaring support.
A frail woman stands on a stage between her wheelchair in the foreground and a crowd of thousands of protestors in the background, delivering her protest speech. She is wearing a red MEAction t-shirt. A sign language interpreter stands to her right interpreting her speech.
April 6, 2025 at 3:56 PM
erinmarilee.bsky.social
I’m #StillSickStillFighting and I #StandUpForScience2025 in Atlanta, Georgia. Millions of people are missing from their lives because of infection-associated chronic conditions like #MECFS. We need thriving scientific institutions if we’re ever going to find effective treatments.
A white man with dark brown hair wears a blue t shirt that says “2024 Millions Missing”. He’s pushing a wheelchair that a white woman is sitting in. She wears a red shirt that says “Still Sick Still Fighting” and a pink ball cap that says “can you like, cure ME/CFS already?” Behind them a crowd of protestors hold signs supporting the sciences and cheering on passing cars who honk for science.
March 7, 2025 at 9:03 PM
erinmarilee.bsky.social
My goal for 2025 is to meditate and create. Any day where there is enough space in my energy envelope I will prioritize taking time for stillness and making something. I hope this will help me feel more peace and joy.

I might share my creations here, so here’s today’s cute sensory bin
A large bin full of black and pinto beans with scattered hazelnuts, earth-toned fuzzy balls, and Christmas tree remnants, and a toy apatosaurus, stegosaurus, iguanodon, and t-rex.
January 1, 2025 at 11:53 PM
erinmarilee.bsky.social
Hey, me too! I got red, yellow, and green ones to help my toddlers understand my fluctuating #MECFS disability. But it’s an excellent reminder to me to #StopRestPace. I love the messages on yours!
A close up image of a wrist wearing a yellow bead bracelet with letter beads that spell out the word “slow”.
November 23, 2024 at 2:33 PM