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batemanhornecenter.bsky.social
Bateman Horne Center
@batemanhornecenter.bsky.social
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
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The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF
Join us Tues, Nov 18 | 1 PM MST for BHC’s Online Support Group-
Acquainted with Grief: Growing through Ambiguous Loss

We’ll reflect on what we’ve lost, how we heal, and what helps us move forward.

Register now: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #ChronicIllness #IACCs
November 17, 2025 at 6:39 PM
"I came away from the conference feeling hope."
In a new blog, Dr. Bateman reflects on the #IACFSME2025 Conference, sharing about 40 years of research and progress. 
🔗 https://bit.ly/4hS9YjF
#MECFS #LongCOVID
November 14, 2025 at 5:19 PM
Fatigue & cognition are linked in #MECFS & #LongCOVID.

At #IACFSME2025, Dr. Suzanne Vernon (BHC Research Director) shared how oxaloacetate may restore energy metabolism & cognitive clarity by strengthening the fatigue-cognition axis.

Watch:
IACFSME 2025 Conference Susan Vernon, PhD
In this IACFSME 2025 conference highlight, Suzanne D. Vernon, PhD, Research Director at Bateman Horne Center, explains how oxaloacetate may strengthen the fa...
youtu.be
November 13, 2025 at 7:36 PM
ME/CFS caregiving often requires navigating many logistics. Last year, we partnered with caregiver Galen Warden @galen2.bsky.social to share a practical guide covering medical proxy, disability, transport, clinic accommodations, and more: https://bit.ly/4hCSpDP
#CaregiverAwarenessMonth #UnitedForME
November 12, 2025 at 9:11 PM
☕ Join us Wed. Nov 12 at 10 AM MST for “Coffee” with a Clinician: Navigating Clinical Uncertainty Pt 2.

Hear patients, caregivers & clinicians share ways to bridge communication in complex care.

Free | $5 optional donation.
🔗 https://bit.ly/3JCHAFq

#MECFS #LongCOVID #IACCs
November 11, 2025 at 11:10 PM
Join us Tues, Nov 11 | 1 PM MST for BHC’s Online Support Group:
Denial, Resistance & Gaslighting — Coping with Others’ Unhelpful Reactions

Let’s talk about communication, boundaries & advocacy in chronic illness.

🔗 Learn more: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #IACCs
November 10, 2025 at 8:37 PM
Caring for someone with ME/CFS or Long COVID takes compassion & strength. 💙
This #CaregiverAwarenessMonth, we honor caregivers everywhere, and highlight @emergeaustralia.bsky.social's  Carer Resource Hub, a valuable guide to those who give so much: https://bit.ly/4nzChVk

#MECFS #LongCOVID
November 6, 2025 at 5:36 PM
This November, for National Family Caregivers Month, we’re joining forces with @solveme.bsky.social, @openmedf.bsky.social & @meactnet.bsky.social to highlight caregiver resources, events & support.

Together, we’re stronger, and united in care. 💙
Follow and share using #UnitedForME
November 5, 2025 at 5:48 PM
It’s National Family Caregiver Appreciation Month 💙 We’re sharing resources from @meactnet.bsky.social , @openmedf.bsky.social & @solveme.bsky.social — all supporting families caring for those with ME/CFS, Long COVID & other IACCs. #UnitedForME
November is National Family Caregiver Appreciation Month.

#MEAction is bringing you two powerful webinars with Kim Moy and Denise Lopez-Majano to honor and support caregivers in our community. Caregiver Wisdom and #MEAction will be sharing more resources throughout the month as well!

#caregiver
November 4, 2025 at 6:12 PM
Join BHC’s November events on gaslighting, grief & uncertainty:
💙 Nov 11 | Denial & Resistance
☕ Nov 12 | Navigating Uncertainty: Part 2
💙 Nov 18 | Acquainted with Grief

🔗 https://batemanhornecenter.org/events
#MECFS #LongCOVID
November 3, 2025 at 6:33 PM
October is POTS Awareness Month, a time to spotlight BHC resources. Our Clinical Care Guide includes a full chapter on orthostatic intolerance (OI) & dysautonomia, core features of #POTS.
Download ➡️ https://batemanhornecenter.org/clinical-care-guide/ (navigate to chapter 7 for info on POTS & OI)
November 1, 2025 at 12:11 AM
Pelvic pain & dysfunction can be part of post-infectious conditions like #LongCOVID & #MECFS.
In our latest ECHO session, Katie Woolf, DPT, PRPC, shares how gentle pelvic floor therapy can help improve comfort, stability, & daily function.
Watch: https://youtu.be/sA-ue_B1uZk
@uofuhealth.bsky.social
Pelvic Health Considerations: Physical Therapy Perspective
Long COVID and Post-Infectious Syndromes ECHOA Practical Approach to Complex Long COVID & ME/CFS Patient CasesBateman Horne Center and the University of Utah...
youtu.be
October 30, 2025 at 5:16 PM
It’s POTS Awareness Month!
#OrthostaticIntolerance (OI) includes #POTS, orthostatic hypotension & more. Our OI Overview covers evaluation (Passive Standing Test, EKG), lifestyle approaches, meds, and further resources.
🔗 https://bit.ly/4pCeOoA
#POTSAwarenessMonth #Dysautonomia #MERC
October 29, 2025 at 5:23 PM
Exciting News!
Dr. Melanie Hoppers will be an expert panelist at the first-ever Infection-Associated Chronic Conditions (IACC) Case Competition hosted by the @umisr.bsky.social 
A major step toward innovation in #LongCOVID, #MECFS & #POTS care.

Learn more: https://bit.ly/3KXI3T7
#IACC2025
October 27, 2025 at 3:02 PM
Today is POTS Awareness Day.

We’re raising visibility for POTS and orthostatic intolerance (OI), common in ME/CFS and Long COVID.

Look back at this month’s posts & next week for more.

#POTSAwarenessDay #POTS #MECFS #LongCOVID #OI
October 25, 2025 at 3:57 PM
Following high community interest, we’ve published a deeper look at the Oxaloacetate (OAA) study in ME/CFS.
Learn how targeting cellular energy may support both fatigue and cognition.

🔗 Read the full blog: https://bit.ly/4opeqbw
#MECFS #Oxaloacetate #Research #BatemanHorneCenter
October 24, 2025 at 9:22 PM
Dr. Lucinda Bateman presented “Orthostatic Intolerance: Clinic Assessment and Treatment” for the INIM Clinicians’ Meeting Research Series, part of the Dr. Kiran C. Patel College of Osteopathic Medicine at Nova Southeastern University.

Watch here ➡️
Orthostatic Intolerance: Clinic Assessment and Treatment
This presentation is part of the Institute for Neuro-Immune Medicine (INIM) Clinicians' Meeting Research Series. INIM is part of the Dr. Kiran C. Patel Colle...
youtu.be
October 23, 2025 at 5:52 PM
Orthostatic intolerance is an umbrella term for conditions where being upright can trigger disabling symptoms. One of the most common forms is Postural Orthostatic Tachycardia Syndrome (POTS).
Clayton Powers, DPT explains in this video: https://bit.ly/3J5Bcq3
#POTSAwarenessMonth
Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.
bit.ly
October 22, 2025 at 7:39 PM
The Fall 2025 BHC Newsletter is out!

Highlights: 10 years of BHC, new research insights, “Coffee with a Clinician,” and our Platinum Transparency Seal.

📖 Read now: https://bit.ly/4onikSe
#MECFS #LongCOVID #BatemanHorneCenter
October 21, 2025 at 2:33 PM
Oct 21 | 1:00 pm MDT
Support Group: Parenting w/ Chronic Illness 💙

We’ll share challenges, strengths, & what we hope our kids learn as they watch us face disease.

Free & open to all → https://bit.ly/4nJnk3o

#MECFS #LongCOVID #Parenting #SupportGroups
October 20, 2025 at 5:02 PM
New guest blog!
Writer & advocate Kim Moy reflects on our first Coffee with a Clinician, how patients & providers can navigate uncertainty together.

Read ➡️ https://bit.ly/3KNC0QW
Watch: https://youtu.be/3D8EUOVmTjE

Join us Nov 12 @ 10 AM MDT
#MEcfs #LongCOVID
"Coffee" with a Clinician, Octover 8: Navigating Clinical Uncertainty
In this discussion, clinicians from the Bateman Horne Center explore how to navigate the challenges of caring for people with complex chronic illnesses like ...
youtu.be
October 17, 2025 at 11:12 PM
Want a deep dive into the science + management of POTS & orthostatic intolerance? 
Dr. Brayden Yellman covers triggers, treatment strategies, PEM, and more in this Project ECHO session.
🔗 Watch: https://bit.ly/4oe3xcr
#POTSAwarenessMonth 💙 #POTS #OI #Dysautonomia
Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.
bit.ly
October 15, 2025 at 5:38 PM
Milestone moment for ME/CFS awareness!
The American College of Sports Medicine has added a section on ME/CFS to its Exercise Guidelines for the first time ever, thanks to @workwellfoundation.bsky.social and collaborators.

Read more: https://bit.ly/46P31vP
#MECFS #ACSM @acsm1954.bsky.social
October 14, 2025 at 8:30 PM
Reposted by Bateman Horne Center
Registration is now open for our 2025 Annual Meeting with MIT Research Scientist, Beth Pollack!
massmecfs.org/events/annua...

#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicfatigue #longcovid #invisibleillness
October 6, 2025 at 7:16 PM
Reposted by Bateman Horne Center
Register for our free Oct. 14 webinar, “The Unified Platform: Advancing Research Across #MECFS, #LongCovid, & Other Chronic Conditions" w/ Christy Jagdfeld & Megan L. Fitzgerald PhD (BIC) & Chris Nowak to learn how you can get involved.
Sign up: ow.ly/luTT50WGMXV
September 4, 2025 at 6:43 PM