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Bateman Horne Center
@batemanhornecenter.bsky.social
1.3K followers 610 following 310 posts
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
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batemanhornecenter.bsky.social
1 in 4 people with #MECFS are housebound or bedbound. 💙 @emergeaustralia.bsky.social’s evidence-based guide offers strategies for daily care, communication, & managing sensitivity, while protecting both patient & caregiver wellbeing.

Read more: https://bit.ly/4nD2Add
#UnitedForME
November 19, 2025 at 5:14 PM
batemanhornecenter.bsky.social
Join us Tues, Nov 18 | 1 PM MST for BHC’s Online Support Group-
Acquainted with Grief: Growing through Ambiguous Loss

We’ll reflect on what we’ve lost, how we heal, and what helps us move forward.

Register now: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #ChronicIllness #IACCs
A person using a laptop displaying "Online Support Group". Event details: "Tuesday, Nov 18 | 1:00 pm MST. Acquainted with Grief: Growing through Ambiguous Loss". Bateman Horne Center logo at the top.
November 17, 2025 at 6:39 PM
batemanhornecenter.bsky.social
"I came away from the conference feeling hope."
In a new blog, Dr. Bateman reflects on the #IACFSME2025 Conference, sharing about 40 years of research and progress. 
🔗 https://bit.ly/4hS9YjF
#MECFS #LongCOVID
Quote from Anthony Komaroff, MD, at the 2025 IACFSME Conference, urging people to read the extensive literature on ME/CFS and Long COVID. Quote by Anthony Komaroff, MD: "Every month brings new progress toward the goal of preventing and curing this disease." 2025 IACFSME Conference.
November 14, 2025 at 5:19 PM
batemanhornecenter.bsky.social
ME/CFS caregiving often requires navigating many logistics. Last year, we partnered with caregiver Galen Warden @galen2.bsky.social to share a practical guide covering medical proxy, disability, transport, clinic accommodations, and more: https://bit.ly/4hCSpDP
#CaregiverAwarenessMonth #UnitedForME
November 12, 2025 at 9:11 PM
batemanhornecenter.bsky.social
☕ Join us Wed. Nov 12 at 10 AM MST for “Coffee” with a Clinician: Navigating Clinical Uncertainty Pt 2.

Hear patients, caregivers & clinicians share ways to bridge communication in complex care.

Free | $5 optional donation.
🔗 https://bit.ly/3JCHAFq

#MECFS #LongCOVID #IACCs
Invitation to "Coffee with a Clinician" online event on Nov 11, 2025, at 10:00am MST about "Navigating Clinical Uncertainty: Part 2". Flyer for "Coffee with a Clinician: Navigating Clinical Uncertainty: Part 2," discussing patient-caregiver-clinician communication.
November 11, 2025 at 11:10 PM
batemanhornecenter.bsky.social
Join us Tues, Nov 11 | 1 PM MST for BHC’s Online Support Group:
Denial, Resistance & Gaslighting — Coping with Others’ Unhelpful Reactions

Let’s talk about communication, boundaries & advocacy in chronic illness.

🔗 Learn more: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #IACCs
Woman sitting on a couch using a laptop showing "Online Support Group." Text below: "Tuesday, Nov 11 | 1:00 pm MST. Denial, Resistance and Gaslighting: Coping with Others' Unhelpful Reactions to Our Illness." Bateman Horne Center logo at the top.
November 10, 2025 at 8:37 PM
batemanhornecenter.bsky.social
Caring for someone with ME/CFS or Long COVID takes compassion & strength. 💙
This #CaregiverAwarenessMonth, we honor caregivers everywhere, and highlight @emergeaustralia.bsky.social's  Carer Resource Hub, a valuable guide to those who give so much: https://bit.ly/4nzChVk

#MECFS #LongCOVID
A woman tending to a patient in a bright room. Text reads: "For the carers making a difference. Carer Resource Hub." Emerge Australia logo.
November 6, 2025 at 5:36 PM
batemanhornecenter.bsky.social
This November, for National Family Caregivers Month, we’re joining forces with @solveme.bsky.social, @openmedf.bsky.social & @meactnet.bsky.social to highlight caregiver resources, events & support.

Together, we’re stronger, and united in care. 💙
Follow and share using #UnitedForME
Logos of organizations above the text: "Together, we’re highlighting Caregiver resources & events with one united hashtag: #UnitedForME" for National Family Caregivers Month.
November 5, 2025 at 5:48 PM
batemanhornecenter.bsky.social
Join BHC’s November events on gaslighting, grief & uncertainty:
💙 Nov 11 | Denial & Resistance
☕ Nov 12 | Navigating Uncertainty: Part 2
💙 Nov 18 | Acquainted with Grief

🔗 https://batemanhornecenter.org/events
#MECFS #LongCOVID
Upcoming events for November 2025: Support groups on Nov 11 and 18 at 1:00 pm MST, and a clinician session on Nov 12 at 10:00 am MST.
November 3, 2025 at 6:33 PM
batemanhornecenter.bsky.social
October is POTS Awareness Month, a time to spotlight BHC resources. Our Clinical Care Guide includes a full chapter on orthostatic intolerance (OI) & dysautonomia, core features of #POTS.
Download ➡️ https://batemanhornecenter.org/clinical-care-guide/ (navigate to chapter 7 for info on POTS & OI)
Clinical Care Guide on a tablet screen, highlighting Chapter 7 on managing orthostatic intolerance in ME/CFS and Long COVID.
November 1, 2025 at 12:11 AM
batemanhornecenter.bsky.social
It’s POTS Awareness Month!
#OrthostaticIntolerance (OI) includes #POTS, orthostatic hypotension & more. Our OI Overview covers evaluation (Passive Standing Test, EKG), lifestyle approaches, meds, and further resources.
🔗 https://bit.ly/4pCeOoA
#POTSAwarenessMonth #Dysautonomia #MERC
Orthostatic Intolerance Overview with resources for individuals, caregivers, and healthcare providers. Download at BatemanHorneCenter.org.
October 29, 2025 at 5:23 PM
batemanhornecenter.bsky.social
Exciting News!
Dr. Melanie Hoppers will be an expert panelist at the first-ever Infection-Associated Chronic Conditions (IACC) Case Competition hosted by the @umisr.bsky.social 
A major step toward innovation in #LongCOVID, #MECFS & #POTS care.

Learn more: https://bit.ly/3KXI3T7
#IACC2025
Inaugural 2025 IACC Long COVID Case Competition at UMich Ross School of Business, October 31, 2025, from 9 AM to 5 PM ET.
October 27, 2025 at 3:02 PM
batemanhornecenter.bsky.social
Today is POTS Awareness Day.

We’re raising visibility for POTS and orthostatic intolerance (OI), common in ME/CFS and Long COVID.

Look back at this month’s posts & next week for more.

#POTSAwarenessDay #POTS #MECFS #LongCOVID #OI
White ribbon on teal background with the text "Today is POTS Awareness Day" in bold white letters.
October 25, 2025 at 3:57 PM
batemanhornecenter.bsky.social
Following high community interest, we’ve published a deeper look at the Oxaloacetate (OAA) study in ME/CFS.
Learn how targeting cellular energy may support both fatigue and cognition.

🔗 Read the full blog: https://bit.ly/4opeqbw
#MECFS #Oxaloacetate #Research #BatemanHorneCenter
White pills on a blue background with the text: "New Blog Post: Deep Dive into the research behind Oxaloacetate (OAA) and its potential role in ME/CFS."
October 24, 2025 at 9:22 PM
batemanhornecenter.bsky.social
The Fall 2025 BHC Newsletter is out!

Highlights: 10 years of BHC, new research insights, “Coffee with a Clinician,” and our Platinum Transparency Seal.

📖 Read now: https://bit.ly/4onikSe
#MECFS #LongCOVID #BatemanHorneCenter
Fall 2025 Newsletter announcement by Bateman Horne Center, highlighting updates in care, research, and education.
October 21, 2025 at 2:33 PM
batemanhornecenter.bsky.social
Oct 21 | 1:00 pm MDT
Support Group: Parenting w/ Chronic Illness 💙

We’ll share challenges, strengths, & what we hope our kids learn as they watch us face disease.

Free & open to all → https://bit.ly/4nJnk3o

#MECFS #LongCOVID #Parenting #SupportGroups
A person viewing a laptop screen displaying "Online Support Group." Text below: "Tuesday, Oct 21 | 1:00 pm MDT. Parenting with Chronic Illness: Challenges and Triumphs."
October 20, 2025 at 5:02 PM
batemanhornecenter.bsky.social
Milestone moment for ME/CFS awareness!
The American College of Sports Medicine has added a section on ME/CFS to its Exercise Guidelines for the first time ever, thanks to @workwellfoundation.bsky.social and collaborators.

Read more: https://bit.ly/46P31vP
#MECFS #ACSM @acsm1954.bsky.social
"History Made! The American College of Sports Medicine includes ME/CFS in global exercise guidelines for the first time."
October 14, 2025 at 8:30 PM
batemanhornecenter.bsky.social
Oct 14 | 1:00 pm MDT
Support Group: Navigating Healthcare w/ Self-Advocacy

We’ll discuss: lessons learned, recognizing patterns, & stories of advocating for care.
Free & open to all: https://bit.ly/46BdTMo

#MECFS #LongCOVID #SupportGroups
Woman sitting on a couch holding a laptop displaying "Online Support Group" screen. Event details: Oct 14, 1:00 pm MDT, hosted by Bateman Horne Center, focuses on navigating healthcare with self-advocacy skills.
October 13, 2025 at 6:17 PM
batemanhornecenter.bsky.social
Free, virtual ME conference (Nov 4–6, 1–5 pm ET).
BHC's Dr. Brayden Yellman speaks on dysautonomia & connective tissue disorders and joins the comorbidities Q&A panel.
Register: https://forms.gle/R8tJgR2x3WBNr9pF8

#ICanCME2025 #MECFS #LongCOVID #MedEdMatters #MedicalEducation
ICANCME Canadian Conference on Myalgic Encephalomyelitis, Nov 4-6, 2025, 1-5 PM Eastern. Virtual, free, and open to all. Register now.
October 9, 2025 at 4:35 PM
batemanhornecenter.bsky.social
“If everyday tasks like standing in line or taking a shower leave you dizzy, exhausted, or foggy, you’re not alone.”
— Melanie Hoppers, MD

OI & #POTS is common in #MECFS & #LongCOVID. Learn signs + management tips: https://bit.ly/4eLc3eY

#POTSAwarenessMonth #UnitedForME
Woman leaning against a wall with her hand on her forehead, appearing fatigued. Text reads: "Living with Orthostatic Intolerance (OI)."
October 8, 2025 at 6:26 PM
batemanhornecenter.bsky.social
A new way to connect is here: Coffee with a Clinician ☕
Monthly live webinars start tomorrow, Oct 8, free & open to all.

💙 An optional $5 donation supports education and outreach programs.

➡️ Register: https://bit.ly/3IxgCP6

#CoffeeWithAClinician #MECFS #LongCOVID
Invitation to "Coffee with a Clinician" on navigating clinical uncertainty, October 8, 2025, 10:00 AM MDT, online event. Register at batemanhornecenter.org/events.
October 8, 2025 at 1:23 AM
batemanhornecenter.bsky.social
Big news in fibromyalgia care:
The FDA just approved Tonmya, the first new treatment for fibromyalgia in 15+ years.

What it is, what trials showed, and what it means for patients: https://bit.ly/3WiAo3R

#Fibromyalgia #ChronicIllness #NewTreatment
October 3, 2025 at 7:14 PM
batemanhornecenter.bsky.social
Upcoming in Oct! 💙
☕ Oct 8 – Coffee with a Clinician: Navigating Clinical Uncertainty
💬 Oct 14 – Support Group: Healthcare & Self-Advocacy
💬 Oct 21 – Support Group: Parenting w/ Chronic Illness

Free & open to all. Register: https://bit.ly/48DiM7Q
Upcoming events in October 2025 by Bateman Horne Center: Coffee with a Clinician on Oct 8, and Support Groups on Oct 14 & 21.
October 2, 2025 at 9:20 PM
batemanhornecenter.bsky.social
October is #POTS Awareness Month!
POTS is a serious condition where simply standing can cause rapid heart rate, dizziness, fainting, and crushing fatigue. It often strikes those with #MECFS & #LongCOVID. All month we’re sharing resources & raising visibility. Stay tuned!
White ribbon on teal background with text: "October is POTS Awareness Month."
October 1, 2025 at 6:01 PM
batemanhornecenter.bsky.social
September at BHC:
Support Groups: humility & purpose
Final Peer Perspectives: Favorite Things

PPC has closed, but connection continues with new events ahead. 💙
📬 Subscribe: https://bit.ly/3rnvhjq
📖 Access past recaps: https://bit.ly/4pKFYth

#MECFS #LongCOVID
Hands of diverse individuals joined in unity; text reads "September Recap" with a note about outreach events, under tabs "BHC," "Support Group," and "Peer Perspectives."
October 1, 2025 at 1:01 AM