Ahimsa
@ahimsa-pdx.bsky.social
Vegetarian, book lover📚
ME/CFS since 1990 ♿️
She/Her
What's ME/CFS? = https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527
Mastodon = https://disabled.social/@ahimsa_pdx
Profile: Tabby cat w/white chest & paws
Banner: Green trees
ME/CFS since 1990 ♿️
She/Her
What's ME/CFS? = https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527
Mastodon = https://disabled.social/@ahimsa_pdx
Profile: Tabby cat w/white chest & paws
Banner: Green trees
Pinned
Reposted by Ahimsa
15 years ago yesterday I'd hiked the 30 mile horseshoe route to up Pen y Fan in Wales. I really really really miss being active.
December 13, 2025 at 11:10 AM
15 years ago yesterday I'd hiked the 30 mile horseshoe route to up Pen y Fan in Wales. I really really really miss being active.
Reposted by Ahimsa
A message from #MEAction:
We are facing an unprecedented crisis for disability & chronic illness communities. People are at the precipice of losing their access to healthcare, home and community-based services, & the promise of new research.
Learn more & support: www.meaction.net/lantern-in-t...
We are facing an unprecedented crisis for disability & chronic illness communities. People are at the precipice of losing their access to healthcare, home and community-based services, & the promise of new research.
Learn more & support: www.meaction.net/lantern-in-t...
December 12, 2025 at 6:44 PM
A message from #MEAction:
We are facing an unprecedented crisis for disability & chronic illness communities. People are at the precipice of losing their access to healthcare, home and community-based services, & the promise of new research.
Learn more & support: www.meaction.net/lantern-in-t...
We are facing an unprecedented crisis for disability & chronic illness communities. People are at the precipice of losing their access to healthcare, home and community-based services, & the promise of new research.
Learn more & support: www.meaction.net/lantern-in-t...
Reposted by Ahimsa
I'm giving a talk next week and you're invited!
✨Improving Quality of Life in ME/CFS and Infection-Associated Chronic Conditions✨
The talk is donate-as-you're-able, and 20% will support #MEAction.
You can sign up to attend here: us06web.zoom.us/meeting/regi...
✨Improving Quality of Life in ME/CFS and Infection-Associated Chronic Conditions✨
The talk is donate-as-you're-able, and 20% will support #MEAction.
You can sign up to attend here: us06web.zoom.us/meeting/regi...
December 12, 2025 at 6:23 PM
I'm giving a talk next week and you're invited!
✨Improving Quality of Life in ME/CFS and Infection-Associated Chronic Conditions✨
The talk is donate-as-you're-able, and 20% will support #MEAction.
You can sign up to attend here: us06web.zoom.us/meeting/regi...
✨Improving Quality of Life in ME/CFS and Infection-Associated Chronic Conditions✨
The talk is donate-as-you're-able, and 20% will support #MEAction.
You can sign up to attend here: us06web.zoom.us/meeting/regi...
Reposted by Ahimsa
THIS
I still remember when I tried to explain to a nurse how little I can be active per day and she said “but you’re not active right now you’re sitting down”
No it doesn’t work like that, for me not being active is lying on my bed in the dark
I still remember when I tried to explain to a nurse how little I can be active per day and she said “but you’re not active right now you’re sitting down”
No it doesn’t work like that, for me not being active is lying on my bed in the dark
December 10, 2025 at 9:37 AM
THIS
I still remember when I tried to explain to a nurse how little I can be active per day and she said “but you’re not active right now you’re sitting down”
No it doesn’t work like that, for me not being active is lying on my bed in the dark
I still remember when I tried to explain to a nurse how little I can be active per day and she said “but you’re not active right now you’re sitting down”
No it doesn’t work like that, for me not being active is lying on my bed in the dark
Reposted by Ahimsa
HSAs are NOT the answer.
And, seeding it with $1000 is nowhere near close to the subsidy amount that most people receive to offset the premium costs.
And let's not even mention, the *massive* administrative burden of managing one of these things is.
www.foxnews.com/politics/sen...
And, seeding it with $1000 is nowhere near close to the subsidy amount that most people receive to offset the premium costs.
And let's not even mention, the *massive* administrative burden of managing one of these things is.
www.foxnews.com/politics/sen...
Senate Republicans land on Obamacare fix, tee up dueling vote with Dems
Senate Majority Leader John Thune, R-S.D., announced that Republicans would back Sens. Bill Cassidy, R-La, and Mike Crapo's, R-Idaho, plan to convert Obamacare subsidies to HSAs.
www.foxnews.com
December 9, 2025 at 9:16 PM
HSAs are NOT the answer.
And, seeding it with $1000 is nowhere near close to the subsidy amount that most people receive to offset the premium costs.
And let's not even mention, the *massive* administrative burden of managing one of these things is.
www.foxnews.com/politics/sen...
And, seeding it with $1000 is nowhere near close to the subsidy amount that most people receive to offset the premium costs.
And let's not even mention, the *massive* administrative burden of managing one of these things is.
www.foxnews.com/politics/sen...
Reposted by Ahimsa
We need YOUR signature to protect Medicaid for our community!!
Our Exec. Director, Laurie Jones, explains why we are sending a letter to HHS Secretary calling on him to protect Medicaid for people with #MECFS and #LongCovid.
SIGN THE LETTER HERE: actionnetwork.org/petitions/fr...
Our Exec. Director, Laurie Jones, explains why we are sending a letter to HHS Secretary calling on him to protect Medicaid for people with #MECFS and #LongCovid.
SIGN THE LETTER HERE: actionnetwork.org/petitions/fr...
December 9, 2025 at 6:59 PM
We need YOUR signature to protect Medicaid for our community!!
Our Exec. Director, Laurie Jones, explains why we are sending a letter to HHS Secretary calling on him to protect Medicaid for people with #MECFS and #LongCovid.
SIGN THE LETTER HERE: actionnetwork.org/petitions/fr...
Our Exec. Director, Laurie Jones, explains why we are sending a letter to HHS Secretary calling on him to protect Medicaid for people with #MECFS and #LongCovid.
SIGN THE LETTER HERE: actionnetwork.org/petitions/fr...
Reposted by Ahimsa
The holidays can be challenging when energy is limited.
Join us Dec 10 at 10:00 am MST for “Coffee” with a Clinician as we explore practical pacing strategies for holidays and special events 💙
🔗 Register: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #IACCs #Pacing
Join us Dec 10 at 10:00 am MST for “Coffee” with a Clinician as we explore practical pacing strategies for holidays and special events 💙
🔗 Register: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #IACCs #Pacing
December 9, 2025 at 7:30 PM
The holidays can be challenging when energy is limited.
Join us Dec 10 at 10:00 am MST for “Coffee” with a Clinician as we explore practical pacing strategies for holidays and special events 💙
🔗 Register: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #IACCs #Pacing
Join us Dec 10 at 10:00 am MST for “Coffee” with a Clinician as we explore practical pacing strategies for holidays and special events 💙
🔗 Register: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #IACCs #Pacing
Reposted by Ahimsa
The "upgraded" Age Assurance system has essentially locked everyone out of the @ddosecrets.com account while we wait for @support.bsky.team to explain what a "birthdate" is for an organization, and whether we're supposed to submit made-up information or have the organization's account restricted.
v1.111 is live today!
We've upgraded our Age Assurance system to comply with upcoming laws in Australia and other regions, and to restore access to people over 18 in Mississippi.
Plus, we fixed some bugs and laid the groundwork for improved "who to follow" suggestions in the near future.
We've upgraded our Age Assurance system to comply with upcoming laws in Australia and other regions, and to restore access to people over 18 in Mississippi.
Plus, we fixed some bugs and laid the groundwork for improved "who to follow" suggestions in the near future.
December 9, 2025 at 5:33 PM
The "upgraded" Age Assurance system has essentially locked everyone out of the @ddosecrets.com account while we wait for @support.bsky.team to explain what a "birthdate" is for an organization, and whether we're supposed to submit made-up information or have the organization's account restricted.
RE: age assurance
Whose birth date should be used for group accounts?
The person creating the account? The youngest person in the group? What happens when new folks start running the account?
But seriously, why not simply have the user attest that they are over the age limit? (whatever that is)
Whose birth date should be used for group accounts?
The person creating the account? The youngest person in the group? What happens when new folks start running the account?
But seriously, why not simply have the user attest that they are over the age limit? (whatever that is)
December 9, 2025 at 9:41 PM
RE: age assurance
Whose birth date should be used for group accounts?
The person creating the account? The youngest person in the group? What happens when new folks start running the account?
But seriously, why not simply have the user attest that they are over the age limit? (whatever that is)
Whose birth date should be used for group accounts?
The person creating the account? The youngest person in the group? What happens when new folks start running the account?
But seriously, why not simply have the user attest that they are over the age limit? (whatever that is)
Reposted by Ahimsa
Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail,” or risk losing their Medicaid.
Attempting to meet an 80‑hour work requirement for most people with ME/CFS and Long COVID will only worsen their illness.
Attempting to meet an 80‑hour work requirement for most people with ME/CFS and Long COVID will only worsen their illness.
December 8, 2025 at 6:37 PM
Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail,” or risk losing their Medicaid.
Attempting to meet an 80‑hour work requirement for most people with ME/CFS and Long COVID will only worsen their illness.
Attempting to meet an 80‑hour work requirement for most people with ME/CFS and Long COVID will only worsen their illness.
Reposted by Ahimsa
New Medicaid work requirements will take effect at the end of 2026 - it will FAIL sick people and cut off their care.
Tell HHS to recognize people with #MECFS and #LongCOVID as “medically frail” so our access to Medicaid is protected.
SIGN THE LETTER: actionnetwork.org/petitions/fr...
Tell HHS to recognize people with #MECFS and #LongCOVID as “medically frail” so our access to Medicaid is protected.
SIGN THE LETTER: actionnetwork.org/petitions/fr...
December 8, 2025 at 6:37 PM
New Medicaid work requirements will take effect at the end of 2026 - it will FAIL sick people and cut off their care.
Tell HHS to recognize people with #MECFS and #LongCOVID as “medically frail” so our access to Medicaid is protected.
SIGN THE LETTER: actionnetwork.org/petitions/fr...
Tell HHS to recognize people with #MECFS and #LongCOVID as “medically frail” so our access to Medicaid is protected.
SIGN THE LETTER: actionnetwork.org/petitions/fr...
Reposted by Ahimsa
Reposted by Ahimsa
I had a joke about cthulhu but it was incomprehensible to human understanding
I had a joke about Sisyphus that made me pretty happy. Rbuthl (roll boulder up the hill laughing.)
I thought I had 3 jokes about Cerberus, but I was getting ahead (and ahead and ahead) of myself.
December 8, 2025 at 3:30 PM
I had a joke about cthulhu but it was incomprehensible to human understanding
Reposted by Ahimsa
Day 8 #ArtAdventCalendar • Everyone seems to love this #SciArt #anatomy #embroidery, she breathed (2018). It appears on the cover of the anthology Sharp Notions arsenalpulp.com/Books/S/Shar...
December 8, 2025 at 4:02 PM
Day 8 #ArtAdventCalendar • Everyone seems to love this #SciArt #anatomy #embroidery, she breathed (2018). It appears on the cover of the anthology Sharp Notions arsenalpulp.com/Books/S/Shar...
Reposted by Ahimsa
Nature: 'Long-COVID research just got a big funding boost: will it find new treatments?'
'The German government has committed half a billion euros for research on long COVID and other post-infection syndromes.'
By Michael Marshall
www.nature.com/articles/d41...
'The German government has committed half a billion euros for research on long COVID and other post-infection syndromes.'
By Michael Marshall
www.nature.com/articles/d41...
Long-COVID research just got a big funding boost: will it find new treatments?
The German government has committed half a billion euros for research on long COVID and other post-infection syndromes.
www.nature.com
December 8, 2025 at 4:35 PM
Nature: 'Long-COVID research just got a big funding boost: will it find new treatments?'
'The German government has committed half a billion euros for research on long COVID and other post-infection syndromes.'
By Michael Marshall
www.nature.com/articles/d41...
'The German government has committed half a billion euros for research on long COVID and other post-infection syndromes.'
By Michael Marshall
www.nature.com/articles/d41...
Reposted by Ahimsa
Feeling extra pressure to push yourself past your limit? Wondering how to explain those limits to those around you? Wanting to join in the seasonal joy but not sure how to make it a SAFE reality for you? We've got you! www.meaction.net/post/facets-...
#holidays #spoonie #pwME #spoonie
#holidays #spoonie #pwME #spoonie
December 4, 2025 at 11:51 PM
Feeling extra pressure to push yourself past your limit? Wondering how to explain those limits to those around you? Wanting to join in the seasonal joy but not sure how to make it a SAFE reality for you? We've got you! www.meaction.net/post/facets-...
#holidays #spoonie #pwME #spoonie
#holidays #spoonie #pwME #spoonie
Reposted by Ahimsa
Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Dec. 1 - 7.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
News in Brief - December 2025
This thread has a Science for ME 'News in Brief' post for each week in December 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
December 8, 2025 at 1:56 AM
Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Dec. 1 - 7.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Reposted by Ahimsa
Don't forget transcripts for video and audio. Transcripts help many, including blind users and low-vision users, deaf and hard-of-hearing users, people with ADHD, and people with audio-processing disorders. Transcripts also benefit search engines, people in quiet spaces, and people in a hurry.
December 2, 2025 at 11:40 PM
Don't forget transcripts for video and audio. Transcripts help many, including blind users and low-vision users, deaf and hard-of-hearing users, people with ADHD, and people with audio-processing disorders. Transcripts also benefit search engines, people in quiet spaces, and people in a hurry.
Reposted by Ahimsa
this is the thing.
I DONT CARE if *some* students have managed to get accommodations by allegedly "gaming the system" or "doctor shopping"
I DON'T CARE.
Because my experience tells me how hard it is to be disabled in higher ed, as both a disabled student, and disabled faculty member now.
I DONT CARE if *some* students have managed to get accommodations by allegedly "gaming the system" or "doctor shopping"
I DON'T CARE.
Because my experience tells me how hard it is to be disabled in higher ed, as both a disabled student, and disabled faculty member now.
How about we worry less, as a society, about whether individuals might be cheating to get a disability accommodation or some help buying food, and more about whether extremely wealthy people and corporations are paying their fair share of taxes?
December 2, 2025 at 11:54 PM
this is the thing.
I DONT CARE if *some* students have managed to get accommodations by allegedly "gaming the system" or "doctor shopping"
I DON'T CARE.
Because my experience tells me how hard it is to be disabled in higher ed, as both a disabled student, and disabled faculty member now.
I DONT CARE if *some* students have managed to get accommodations by allegedly "gaming the system" or "doctor shopping"
I DON'T CARE.
Because my experience tells me how hard it is to be disabled in higher ed, as both a disabled student, and disabled faculty member now.
Reposted by Ahimsa
Society: *treats disabled people like shit*
Also society: People just wanna be disabled so they can feel SPECIAL!
Also society: People just wanna be disabled so they can feel SPECIAL!
December 2, 2025 at 9:50 PM
Society: *treats disabled people like shit*
Also society: People just wanna be disabled so they can feel SPECIAL!
Also society: People just wanna be disabled so they can feel SPECIAL!
Reposted by Ahimsa
This.
For much of my schooling, I didn’t have any formal accommodations.
For my undergrad and grad degrees I was too scared to register with disability services as I was an international student so I relied on informal requests.
Which are far from ideal.
For much of my schooling, I didn’t have any formal accommodations.
For my undergrad and grad degrees I was too scared to register with disability services as I was an international student so I relied on informal requests.
Which are far from ideal.
It's also hilarious that there's this belief that people who qualify for accommodations automatically pursue them. There's a lot of stigma behind asking for one + figuring out the process for requesting one.
We need to be able to see that the line "accommodations have gone too far" is an expression of the ableist notion that disabled students do not belong in higher ed. Its fundamentally an anxiety about the fact that disabled students get an "advantage" over abled students.
December 2, 2025 at 11:31 PM
This.
For much of my schooling, I didn’t have any formal accommodations.
For my undergrad and grad degrees I was too scared to register with disability services as I was an international student so I relied on informal requests.
Which are far from ideal.
For much of my schooling, I didn’t have any formal accommodations.
For my undergrad and grad degrees I was too scared to register with disability services as I was an international student so I relied on informal requests.
Which are far from ideal.
Reposted by Ahimsa
Celebrate radical generosity today, Giving Tuesday, with a gift to Solve! With our $321,000 matching challenge, your gift today will be matched – meaning double the amount of funding for ME/CFS and Long Covid research!
ow.ly/cWbq50XAqnk
ow.ly/cWbq50XAqnk
December 2, 2025 at 7:38 PM
Celebrate radical generosity today, Giving Tuesday, with a gift to Solve! With our $321,000 matching challenge, your gift today will be matched – meaning double the amount of funding for ME/CFS and Long Covid research!
ow.ly/cWbq50XAqnk
ow.ly/cWbq50XAqnk
Reposted by Ahimsa
⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign!
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
December 2, 2025 at 3:39 PM
⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign!
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
Reposted by Ahimsa
Today is Giving Tuesday! All Donations tripled!
We simply cannot continue without your support. We need your help to raise $150,000 by Dec. 31, or #MEAction will not be able to do the work we do.
Donate now and be a lantern for all of us! meaction.net/donate
We simply cannot continue without your support. We need your help to raise $150,000 by Dec. 31, or #MEAction will not be able to do the work we do.
Donate now and be a lantern for all of us! meaction.net/donate
December 2, 2025 at 9:06 PM
Today is Giving Tuesday! All Donations tripled!
We simply cannot continue without your support. We need your help to raise $150,000 by Dec. 31, or #MEAction will not be able to do the work we do.
Donate now and be a lantern for all of us! meaction.net/donate
We simply cannot continue without your support. We need your help to raise $150,000 by Dec. 31, or #MEAction will not be able to do the work we do.
Donate now and be a lantern for all of us! meaction.net/donate