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notunpackedyet.bsky.social
Firstname Lastname #FuckTrump
@notunpackedyet.bsky.social
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
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Social justice and environmental justice are one and the same thing.
November 17, 2025 at 12:59 PM
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When you go to Auschwitz they have piles of jewellery and watches which were confiscated from those arriving.
The Sun has been told Home Secretary Shabana Mahmood will on Monday propose confiscating jewellery, watches, necklaces from asylum seekers to meet asylum costs

This reflects the most controversial aspect of the Danish scheme - the Jewellery Law. The toughest Labour MPs thought this was OTT
November 17, 2025 at 8:34 AM
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The hardest working man in the politics business. www.pbump.net/o/an-officia...
November 16, 2025 at 6:27 PM
Please, go, now, don't even pack, just go.
Donald Trump’s administration is considering offering political asylum to British “thought criminals”, The Telegraph understands.

Read more here ⬇️
www.telegraph.co.uk/bluesky-tmg/trump-thought-criminals/
November 16, 2025 at 5:37 PM
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If only our shit President could find his way to one of these sponges 🤨 All joking aside, this is so fascinating and humbling. We still know so little about our world. www.bbc.com/news/article...
Carnivorous 'death-ball' sponge is team's oddest deep-sea find
The unusual creature lurks more than two miles (3.2km) deep in a trench in the Southern Ocean.
www.bbc.com
November 16, 2025 at 11:55 AM
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Even if we ignore the depravity of the policy for a moment, the messaging is frightening.

Labour are trying to push the "We must restore ᴏʀᴅᴇʀ ᴀɴᴅ ᴄᴏɴᴛʀᴏʟ" narrative as progressive.

Quoting Orwell is cringe, I know, but... "The party told you to reject the evidence of your eyes and ears."
November 16, 2025 at 11:06 AM
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COP30 is being flooded by fossil fuel lobbyists — more than any country delegation except Brazil. While other parties take their money, we never will.

Help us stand up to dirty fossil fuel money and demand real climate leadership. Donate today.
November 16, 2025 at 11:00 AM
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This is the logical consequence of Labour’s appeasement of the far right - this is an arms race Labour should never seek to win
Not everyone is unhappy about the Government's descent into anti-refugee politics
November 16, 2025 at 10:27 AM
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The Labour Government reeling off the same far-right talking points on immigration. And look who is celebrating. The far-right.

There is a political alternative that won’t ever scapegoat those fleeing war, persecution and torture

join.greenparty.org.uk
November 16, 2025 at 10:28 AM
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The emails have Summers reporting to Epstein about his attempts to date a Harvard economics student & to hit on her during a seminar she was giving.
November 15, 2025 at 9:48 PM
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On a personal note, I just set up a monthly donation to Crips for eSims for Gaza in Alice's memory. chuffed.org/project/crip...
Crips for eSims for Gaza
Crips for eSims for Gaza is a collaboration between Jane Shi, Leah Lakshmi Piepzna-Samarasinha, and Alice Wong.
chuffed.org
November 16, 2025 at 12:18 AM
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"Alice supported and took many people with Long COVID under her wing — I was honored to call her a colleague and friend."

@mileswgriffis.bsky.social in @thesicktimes.org's obituary for the great Alice Wong: thesicktimes.org/2025/11/15/a...
Alice Wong, disability activist and luminary, dies at 51 - The Sick Times
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
thesicktimes.org
November 16, 2025 at 12:09 AM
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web.archive.org/web/20241122...

Alice Wong's Teen Vogue articles were archived before their removal, for anyone looking.
Disability Visibility - Latest
Get the latest on Disability Visibility from Teen Vogue. Find articles, slideshows and more.
web.archive.org
November 15, 2025 at 9:01 AM
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Please help my friend @talmandaniel.bsky.social help his friend Rich who needs life-saving help with his highly unusual combination of medical conditions. www.gofundme.com/f/Help-Me-Ge...
This is OVER SEVENTY PERCENT FUNDED! Your dollar could really save a life here
November 15, 2025 at 8:26 PM
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"I insist on resisting with joy and finding pleasure where I can such as with my friends and two cats, Bert and Ernie. Yes, life is a complete dumpster fire, but I am reminded that I am not alone, that I am in this with many others." — Alice Wong, January 2025: www.theguardian.com/society/2025...
Disability advocate Alice Wong on resistance in the new year: ‘Life is a dumpster fire, but I’m not alone’
The activist, who received a 2024 MacArthur ‘genius’ grant, reflects on a moment that changed her life – and why she finds hope in sci-fi
www.theguardian.com
November 15, 2025 at 7:42 PM
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Another study, currently posted as a pre-print, linking long COVID and Ehlers-Danlos Syndrome/connective tissue disorders.

People with EDS are 4x as likely to develop LC. COVID is not good for connective tissue, and connective tissue is found throughout the body!

www.medrxiv.org/content/10.1...
Understanding Comorbidities in Hypermobile Ehlers-Danlos Syndrome: Could a Viral Infection Lead to a Diagnosis?
Hypermobile Ehlers-Danlos Syndrome (hEDS) is a complex, underdiagnosed connective tissue disorder characterized by widespread symptoms affecting multiple organ systems. Recent clinical observations su...
www.medrxiv.org
November 15, 2025 at 6:25 PM
Look at the palms, what looks like a Spanish flag in the midground between the buildings to the right, signs spelled in real letters. Yup, I think this might be real footage. What disgusting slime Britain has created.
Just some British patriots in Benidorm, taking over a street in Spain to shout in their own language about unwanted foreigners. It’s a blessing that they are too thick to understand irony.
November 15, 2025 at 5:31 PM
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Funny how that works, huh? www.nytimes.com/2025/11/14/u...
Justice Department to Investigate Epstein Ties, but Not to Trump
www.nytimes.com
November 15, 2025 at 12:14 PM
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I came to this country as a child refugee. No English, no certainty, no idea what my life could become. Britain gave me refuge.

Not on a timer, not with conditions attached, but with a chance to grow roots.

A thread 🧵 1/8
www.bbc.co.uk/news/article...
UK set to limit refugees to temporary stays
Shabana Mahmood is expected to say the era of permanent protection for refugees is over, in major changes to the UK's asylum and immigration system.
www.bbc.co.uk
November 15, 2025 at 10:29 AM
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When Massachusetts passed a "millionaires tax" in 2023, conservatives claimed the rich would flee.

But two years later, they haven't — and MA has collected $5.7B for infrastructure and public education.

A reminder that positive change can still happen at the state level.
November 14, 2025 at 4:13 PM
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New from the Maureen Hanson team in the US

Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion

www.mcponline.org/article/S153...

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

1/
November 14, 2025 at 12:47 PM
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As usual, @thesicktimes.org is live blogging today's PolyBio Fall 2025 Symposium, where leading Long COVID and IACC researchers will share updates on their work. Check this article throughout the day for our summaries of the presentations. thesicktimes.org/2025/11/14/l...
Live blog: PolyBio’s Fall 2025 Symposium shares Long COVID and related disease research updates - The Sick Times
Leading Long COVID and related disease researchers are set to present updates to their work today at the PolyBio Research Foundation’s Fall 2025 Symposium. PolyBio supports some of the most highly-ant...
thesicktimes.org
November 14, 2025 at 4:42 PM
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The Scripps tirzepatide trial is in @wired.com today! Thanks so much for covering this @emilymullin.bsky.social!

The signup link for the trial: longcovid.scripps.edu/locitt-t/?ut...
Weight-Loss Drug Zepbound Is Being Tested as a Treatment for Long Covid
GLP-1s are being studied for a wide range of conditions. Now, scientists will test whether their anti-inflammatory properties can help alleviate symptoms of long Covid.
www.wired.com
November 14, 2025 at 7:30 PM
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November 14, 2025 at 6:39 PM