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notunpackedyet.bsky.social
Firstname Lastname #FuckTrump
@notunpackedyet.bsky.social
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
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My takeaway from every new Epstein revelation is that some powerful people victimized many powerless young women, many more knew, some actively enabled it--and we're still being told that MeToo and accountability for sexual violence have gone too far
November 12, 2025 at 5:05 PM
"The study suggests that Epstein-Barr virus (EBV), which for most people is harmless..." Yes, apart from the 69000 with Lupus, ppl w MS, ppl w certain cancers, ppl with RA, and all the other life-wrecking shit we don't know about yet because medicine didn't bother to look because meh.
November 12, 2025 at 10:48 PM
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🌟
November 12, 2025 at 9:40 PM
See whole thread
November 12, 2025 at 6:29 PM
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ME Research UK is delighted to announce that we have awarded funding to Prof. Bhupesh Prusty at Riga Stradins University in Latvia for a project investigating the role of autoimmunity in ME/CFS. bit.ly/prusty070

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
November 12, 2025 at 3:58 PM
Urg. So sick of being sick, exhausted and in pain...and still having to work. It's like having to get up and choose to self-harm, by making myself sicker as the week goes on, until I collapse at the weekend. #MEcfs
November 12, 2025 at 11:46 AM
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Jeffries: "It's unbelievable that for 7 plus weeks Rep.-elect Adelita Grijalva has been denied the ability to serve more than 800,000 people in Arizona because Republicans are running a pedophile protection program."
November 11, 2025 at 11:31 PM
Place your bets! Did they assess for PEM? Let's find out.... #MEcfs
November 11, 2025 at 7:15 PM
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November 8, 2025 at 1:08 PM
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Greg Bovino, everybody.
November 9, 2025 at 9:49 AM
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Drax still burning 250-year-old trees sourced from forests in Canada, experts say www.theguardian.com/business/202...
Drax still burning 250-year-old trees sourced from forests in Canada, experts say
Exclusive: report by Stand.earth says subsidiary of power plant received truckloads of whole logs at biomass pellet sites
www.theguardian.com
November 9, 2025 at 9:49 AM
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The CURRENT sitting MP for Clacton earns £511,000 as a presenter for GB News and took £281,000 as a brand ambassador for Direct Bullion.

So maybe sit this one out, you rancid herring.
November 10, 2025 at 5:44 PM
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This is a must read. How British justice system fails victims from those with power and money.

“In such circumstances, accountability can become politically inconvenient.”

Via @sussexbylines.co.uk
When power is untouchable: the legal abyss facing Harrods survivors
Survivors of abuse connected to Mohamed Al Fayed’s Harrods empire are discovering what “no one is above the law” really means
sussexbylines.co.uk
November 9, 2025 at 8:09 PM
This article is poorly written, which is a shame for such an important issue. But taking away blockers from someone with natural male hormones who's already been through female puberty, and never a male puberty, is sick and twisted. How often is this happening?
"The ban on puberty blockers has affected Laura’s child deeply
Following the ban, no pharmacy in the UK is allowed to fill private prescriptions to under 18s for gender affirming medications."
MP fails to support suicidal constituent
A mother pleaded with her MP to help her suicidal15-year-old daughter who said she ‘wanted to take her own life’
northwestbylines.co.uk
November 11, 2025 at 10:29 AM
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Study: Circulating Microclots Are Structurally Associated With Neutrophil Extracellular Traps and Their Amounts Are Elevated in Long COVID Patients.

Published: 02 October 2025

onlinelibrary.wiley.com/doi/10.1002/...
Circulating Microclots Are Structurally Associated With Neutrophil Extracellular Traps and Their Amounts Are Elevated in Long COVID Patients
The persistence of vasculo-thrombotic complications has been put forward as a possible contributing factor in the Long COVID (LC) syndrome. Given the recently reported separate demonstration of the a...
onlinelibrary.wiley.com
November 11, 2025 at 1:04 AM
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Scientists reveal another piece in Long COVID puzzle.

"New study reveals a structural association between circulating microclots and neutrophil extracellular traps (NETs) in patients with Long COVID. When dysregulated, this interaction may become pathogenic"

Source: archive.li/GJl3l
November 11, 2025 at 1:04 AM
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💙Continuing Nevra's advocacy work💙

Weakness and paralysis are not the same.
In Severe ME/CFS, paralysis isn’t just “feeling weak” — it’s the body’s loss of nerve control over the muscles.

Patients describe moments when the brain sends signals to move… but the body simply can’t.
November 10, 2025 at 7:53 PM
Only a decade too late (how has it taken this long??)
November 8, 2025 at 6:18 PM
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📈 The Green surge is real - and it’s shaking up politics.

💚 Join the movement that’s breaking the old parties: Join.greenparty.org.uk
November 8, 2025 at 12:12 PM
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When I found out that I'm intersex I knew, statistically, there were lots of other people like me out there, but only about a dozen were publicly visible. It has been a great joy to me to watch this movement grow over the decades and begin to exert real pressure for our human rights to be respected.
November 8, 2025 at 12:10 PM
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Brilliant new ad campaign I just spotted at the Southwark tube station in London.
November 8, 2025 at 12:39 PM
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Any decent historian reads European decline in this statement. Tightening Russian visa rules for Europe while relying on Russian resources, underfunding Ukraine, and inviting Putin to visit the EU is like decorating a bucket with a hole in it.
Starting a war and expecting to move freely in Europe is hard to justify.

The EU is tightening visa rules for Russian nationals amid continued drone disruptions and sabotage on European soil.

Travelling to the EU is a privilege, not a given.
November 8, 2025 at 1:09 PM
Ppl were prudish in the old days. Matters of the body were kept behind closed doors.....
have y'all ever seen the classical statue of theseus low-key 𝘳𝘪𝘥𝘪𝘯𝘨 the minotaur like a bucking bronco
November 8, 2025 at 11:41 AM