Llama Zoo
@llamazoo.bsky.social
Definitely not a zoo and hardly any llamas.
Reposted by Llama Zoo
Set up by a friend of a friend to bring Palestinian children to London for treatment.
www.justgiving.com/page/project...
www.justgiving.com/page/project...
Project Pure Hope fundraiser with University College London Hospitals Charity UK
Help Omar Din raise money to support University College London Hospitals Charity UK
www.justgiving.com
July 26, 2025 at 10:22 AM
Set up by a friend of a friend to bring Palestinian children to London for treatment.
www.justgiving.com/page/project...
www.justgiving.com/page/project...
Reposted by Llama Zoo
Highlights from Prof Chris Ponting’s presentation to the joint APPG on ME & Long Covid: He made clear that graded exercise is harmful, and warned that despite rising numbers, there’s still no research strategy, no effective treatments, and almost no funding. #MECFS #LongCovid
June 18, 2025 at 5:31 AM
Highlights from Prof Chris Ponting’s presentation to the joint APPG on ME & Long Covid: He made clear that graded exercise is harmful, and warned that despite rising numbers, there’s still no research strategy, no effective treatments, and almost no funding. #MECFS #LongCovid
Reposted by Llama Zoo
From India:
Executive Function Decline and Its Association With TNF-α in the Later Stages of Post-Acute Sequelae of COVID
onlinelibrary.wiley.com/doi/abs/10.1...
Image is from the latest Science for ME weekly update
#NeuroPASC #LongCovid #COVIDBrain #novid #PASC
Executive Function Decline and Its Association With TNF-α in the Later Stages of Post-Acute Sequelae of COVID
onlinelibrary.wiley.com/doi/abs/10.1...
Image is from the latest Science for ME weekly update
#NeuroPASC #LongCovid #COVIDBrain #novid #PASC
June 18, 2025 at 1:54 AM
From India:
Executive Function Decline and Its Association With TNF-α in the Later Stages of Post-Acute Sequelae of COVID
onlinelibrary.wiley.com/doi/abs/10.1...
Image is from the latest Science for ME weekly update
#NeuroPASC #LongCovid #COVIDBrain #novid #PASC
Executive Function Decline and Its Association With TNF-α in the Later Stages of Post-Acute Sequelae of COVID
onlinelibrary.wiley.com/doi/abs/10.1...
Image is from the latest Science for ME weekly update
#NeuroPASC #LongCovid #COVIDBrain #novid #PASC
Reposted by Llama Zoo
(UK) “Light-sensitive people need safe non-LED lightbulbs, say health charities”
lightaware.org/lightaware-u...
Image is screenshot from the MCS-Aware June email bulletin
lightaware.org/lightaware-u...
Image is screenshot from the MCS-Aware June email bulletin
June 14, 2025 at 5:53 PM
(UK) “Light-sensitive people need safe non-LED lightbulbs, say health charities”
lightaware.org/lightaware-u...
Image is screenshot from the MCS-Aware June email bulletin
lightaware.org/lightaware-u...
Image is screenshot from the MCS-Aware June email bulletin
Reposted by Llama Zoo
British people tell their MPs why they've joined the Global Match to Gaza
As the Global March to Gaza begins, British people taking part have condemned their MPs and government inaction over Israel
www.thecanary.co/global/world...
As the Global March to Gaza begins, British people taking part have condemned their MPs and government inaction over Israel
www.thecanary.co/global/world...
British people tell their MPs why they've joined the Global Match to Gaza
As the Global March to Gaza begins, British people taking part have condemned their MPs and government inaction over Israel
www.thecanary.co
June 12, 2025 at 7:20 PM
British people tell their MPs why they've joined the Global Match to Gaza
As the Global March to Gaza begins, British people taking part have condemned their MPs and government inaction over Israel
www.thecanary.co/global/world...
As the Global March to Gaza begins, British people taking part have condemned their MPs and government inaction over Israel
www.thecanary.co/global/world...
Reposted by Llama Zoo
🧵
Medscape (widely read by health professionals):
‘Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms
www.medscape.com/viewarticle/...
(may require free registration)
Thought this was good & interesting.
#lupus #chronicillness #MEcfs #IBS #POTS #FMS
1/
Medscape (widely read by health professionals):
‘Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms
www.medscape.com/viewarticle/...
(may require free registration)
Thought this was good & interesting.
#lupus #chronicillness #MEcfs #IBS #POTS #FMS
1/
June 8, 2025 at 4:58 PM
🧵
Medscape (widely read by health professionals):
‘Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms
www.medscape.com/viewarticle/...
(may require free registration)
Thought this was good & interesting.
#lupus #chronicillness #MEcfs #IBS #POTS #FMS
1/
Medscape (widely read by health professionals):
‘Symptom Invalidation’ in Clinically Uncertain Diagnoses Can Leave Lasting Mental Health Harms
www.medscape.com/viewarticle/...
(may require free registration)
Thought this was good & interesting.
#lupus #chronicillness #MEcfs #IBS #POTS #FMS
1/
Reposted by Llama Zoo
Irreversible tipping points in the climate system — like the melting of Arctic ice sheets or the wide-scale collapse of coral reefs — are closer than scientists previously believed.
Earth is likely to cross a key climate threshold in two years
A new World Meteorological Organization report spells the end of the world’s most famous climate goal.
www.washingtonpost.com
May 29, 2025 at 5:24 PM
Irreversible tipping points in the climate system — like the melting of Arctic ice sheets or the wide-scale collapse of coral reefs — are closer than scientists previously believed.
Reposted by Llama Zoo
Important new research from the Netherlands:
Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest
www.medrxiv.org/content/10.1...
#LongCovid #MEcfs
Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest
www.medrxiv.org/content/10.1...
#LongCovid #MEcfs
May 6, 2025 at 5:07 PM
Important new research from the Netherlands:
Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest
www.medrxiv.org/content/10.1...
#LongCovid #MEcfs
Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest
www.medrxiv.org/content/10.1...
#LongCovid #MEcfs
Reposted by Llama Zoo
Announcing #MillionsMissing 2025 on May 12th!
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2024, #MEAction is sending out an SOS.
www.meaction.net
April 3, 2025 at 4:37 PM
Announcing #MillionsMissing 2025 on May 12th!
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
#MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m...
#pwME #MECFS #LongCovid #disability
Reposted by Llama Zoo
Good old Rosemary! This one’s doing the rounds and (soz) I’ve lost whom to credit.
April 5, 2025 at 6:15 PM
Good old Rosemary! This one’s doing the rounds and (soz) I’ve lost whom to credit.
Buffalo Springfield - For What It's Worth (Official Audio)
YouTube video by RHINO
youtu.be
April 5, 2025 at 11:20 PM
Reposted by Llama Zoo
La chat tra JD Vance e Pete Hegseth:
#Vance: "Odio dover aiutare l'Europa".
#Hegseth: "Condivido, è disgustoso".
Cosa dicono #Meloni, #Salvini, #Tajani che fanno a gara tra di loro per aggiudicarsi la leadership nei rapporti con la presidenza #Trump? Muti e a capo chino come sempre?
#Vance: "Odio dover aiutare l'Europa".
#Hegseth: "Condivido, è disgustoso".
Cosa dicono #Meloni, #Salvini, #Tajani che fanno a gara tra di loro per aggiudicarsi la leadership nei rapporti con la presidenza #Trump? Muti e a capo chino come sempre?
March 25, 2025 at 10:16 AM
Reposted by Llama Zoo
Millions of lives on hold around the world with this dreadful illness. Decades of neglect. The UK has the opportunity to be a leader.
Please #FundThePlan
Please #FundThePlan
We’ve been so moved seeing the #FundThePlan videos over the past few weeks.
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
March 12, 2025 at 3:11 PM
Millions of lives on hold around the world with this dreadful illness. Decades of neglect. The UK has the opportunity to be a leader.
Please #FundThePlan
Please #FundThePlan
Reposted by Llama Zoo
Word of the day is ‘huff-snuff’ (16th century): a hectoring bully or braggart.
February 28, 2025 at 6:05 PM
Word of the day is ‘huff-snuff’ (16th century): a hectoring bully or braggart.
Reposted by Llama Zoo
100%. We're looking down the barrel of the Fourth Reich.
America’s growing darkness: a timely warning to the UK
"Living amidst chaos in the US, I fear a creeping regime reminiscent of 1930s Germany. Project 2025 echoes a history threatening democracy"
"Living amidst chaos in the US, I fear a creeping regime reminiscent of 1930s Germany. Project 2025 echoes a history threatening democracy"
America’s growing darkness: a timely warning to the UK
Living amidst chaos in the US, I fear a creeping regime reminiscent of 1930s Germany. Project 2025 echoes a history threatening democracy
eastangliabylines.co.uk
February 24, 2025 at 4:43 PM
100%. We're looking down the barrel of the Fourth Reich.
Reposted by Llama Zoo
Are you bored tonight? Send your five accomplishments, maybe your shopping list, or your five thoughts on Elon from the past week to OPM at HR@opm.gov.
February 23, 2025 at 1:03 AM
Are you bored tonight? Send your five accomplishments, maybe your shopping list, or your five thoughts on Elon from the past week to OPM at HR@opm.gov.
Reposted by Llama Zoo
🦠The full text of the #LongCovid roadmap:
'Targeting the SARS-CoV-2 reservoir in Long Covid' in The Lancet
Written by 36 global experts incl: Ely, Pretorius, Proal, Yonker, Griffin, Van Elzakker, Putrino, Iwsaki
'Targeting the SARS-CoV-2 reservoir in Long Covid' in The Lancet
Written by 36 global experts incl: Ely, Pretorius, Proal, Yonker, Griffin, Van Elzakker, Putrino, Iwsaki
February 12, 2025 at 12:29 PM
🦠The full text of the #LongCovid roadmap:
'Targeting the SARS-CoV-2 reservoir in Long Covid' in The Lancet
Written by 36 global experts incl: Ely, Pretorius, Proal, Yonker, Griffin, Van Elzakker, Putrino, Iwsaki
'Targeting the SARS-CoV-2 reservoir in Long Covid' in The Lancet
Written by 36 global experts incl: Ely, Pretorius, Proal, Yonker, Griffin, Van Elzakker, Putrino, Iwsaki
Reposted by Llama Zoo
I finally found a chart I'd been looking for in prep for @johnvsjonvsme.bsky.social Scary Science!
'Replicated Findings in ME/CFS and Long Covid' by German Association for #MECFS. Reduced cerebral blood flow seen in '92, autoantibodies '03, hypometabolism of CNS '98, etc. #GreatestMEdicalScandal
'Replicated Findings in ME/CFS and Long Covid' by German Association for #MECFS. Reduced cerebral blood flow seen in '92, autoantibodies '03, hypometabolism of CNS '98, etc. #GreatestMEdicalScandal
November 15, 2024 at 1:53 AM
I finally found a chart I'd been looking for in prep for @johnvsjonvsme.bsky.social Scary Science!
'Replicated Findings in ME/CFS and Long Covid' by German Association for #MECFS. Reduced cerebral blood flow seen in '92, autoantibodies '03, hypometabolism of CNS '98, etc. #GreatestMEdicalScandal
'Replicated Findings in ME/CFS and Long Covid' by German Association for #MECFS. Reduced cerebral blood flow seen in '92, autoantibodies '03, hypometabolism of CNS '98, etc. #GreatestMEdicalScandal
Reposted by Llama Zoo
“Globally, accepted estimates have suggested between 65m & 200m people have #LongCovid… between 19.5m & 60m people face years of impairment”
Let’s compare with recent global figures from the WHO:
🟠 Dementia: 55m+
🟠 Rheumatoid arthritis: 18m
🟠 Parkinson’s disease: 8.5m+
🟠 MS: 1.8m+
#CureLongCovid
Let’s compare with recent global figures from the WHO:
🟠 Dementia: 55m+
🟠 Rheumatoid arthritis: 18m
🟠 Parkinson’s disease: 8.5m+
🟠 MS: 1.8m+
#CureLongCovid
People have been terrifically, universally kind. But today I finally got my first unhelpful "Hope you're feeling better," as she describes in the piece. Nah, long Covid doesn't work that way. @longcovidsupport.bsky.social www.theglobeandmail.com/gift/3c039b8...
Many long COVID patients adjust to slim recovery odds as the rest of the world moves on
Recent scientific studies suggest the longer someone is sick, the lower their chances of making a full recovery
www.theglobeandmail.com
November 15, 2024 at 6:39 AM
“Globally, accepted estimates have suggested between 65m & 200m people have #LongCovid… between 19.5m & 60m people face years of impairment”
Let’s compare with recent global figures from the WHO:
🟠 Dementia: 55m+
🟠 Rheumatoid arthritis: 18m
🟠 Parkinson’s disease: 8.5m+
🟠 MS: 1.8m+
#CureLongCovid
Let’s compare with recent global figures from the WHO:
🟠 Dementia: 55m+
🟠 Rheumatoid arthritis: 18m
🟠 Parkinson’s disease: 8.5m+
🟠 MS: 1.8m+
#CureLongCovid
Reposted by Llama Zoo
🥡Long Covid Takeaways
- Quality of life same as those with advanced cancers
-46% had mod severe or worse function at 6m
- cost 🇬🇧 £5.7 Billion 2022-23
-£931 lost through work
The cost is likely to be much higher & QoL lower as this was people who could get to clinic & were still able to work 😕
- Quality of life same as those with advanced cancers
-46% had mod severe or worse function at 6m
- cost 🇬🇧 £5.7 Billion 2022-23
-£931 lost through work
The cost is likely to be much higher & QoL lower as this was people who could get to clinic & were still able to work 😕
Economic burden of Long Covid in the UK estimated to be >$20 billion per year from real cohort data
bmjopen.bmj.com/content/14/1...
bmjopen.bmj.com/content/14/1...
November 15, 2024 at 8:59 AM
🥡Long Covid Takeaways
- Quality of life same as those with advanced cancers
-46% had mod severe or worse function at 6m
- cost 🇬🇧 £5.7 Billion 2022-23
-£931 lost through work
The cost is likely to be much higher & QoL lower as this was people who could get to clinic & were still able to work 😕
- Quality of life same as those with advanced cancers
-46% had mod severe or worse function at 6m
- cost 🇬🇧 £5.7 Billion 2022-23
-£931 lost through work
The cost is likely to be much higher & QoL lower as this was people who could get to clinic & were still able to work 😕
Reposted by Llama Zoo
I saw a patient last week with ME who in 2023 was told by the MECFS service to ‘get back to the gym’. She did 20 minutes, collapsed and hasn’t walked since. The advice is still out there, still wrong and the harm is real.
Cochrane is stubbornly refusing to withdraw the 2019 review recommending exercise therapy for ME/CFS despite being supplied with ample evidence that it doesn't work and causes harm for #pwME with post exertional malaise.
Please sign the petition:
chng.it/zTZ7vX9Czd
Please sign the petition:
chng.it/zTZ7vX9Czd
Can you spare a minute to help this campaign?
Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review
chng.it
November 11, 2024 at 9:25 AM
I saw a patient last week with ME who in 2023 was told by the MECFS service to ‘get back to the gym’. She did 20 minutes, collapsed and hasn’t walked since. The advice is still out there, still wrong and the harm is real.