Trish Davis
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ozfish.bsky.social
Trish Davis
@ozfish.bsky.social
1.1K followers 300 following 57 posts
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
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ozfish.bsky.social
I doubt any of them are really following NICE. The BACME documents are not NICE compliant, as they recommend pacing up and claim it leads to improvement.
January 5, 2026 at 6:17 PM
Reposted by Trish Davis
scienceforme.bsky.social
Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Dec. 29 - Jan. 4.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...
News in Brief - January 2026
This thread has a Science for ME 'News in Brief' post for each week in January 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
January 4, 2026 at 10:36 PM
ozfish.bsky.social
Where is the published clinical trial and scan evidence?
December 9, 2025 at 7:58 AM
Reposted by Trish Davis
scienceforme.bsky.social
Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Nov. 17 - 23.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...
News in Brief - November 2025
This thread has a Science for ME 'News in Brief' post for each week in November 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
November 24, 2025 at 12:02 AM
Reposted by Trish Davis
emergencybod.medsky.social
I came to this country as a child refugee. No English, no certainty, no idea what my life could become. Britain gave me refuge.

Not on a timer, not with conditions attached, but with a chance to grow roots.

A thread 🧵 1/8
www.bbc.co.uk/news/article...
UK set to limit refugees to temporary stays
Shabana Mahmood is expected to say the era of permanent protection for refugees is over, in major changes to the UK's asylum and immigration system.
www.bbc.co.uk
November 15, 2025 at 10:29 AM
Reposted by Trish Davis
scienceforme.bsky.social
Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Nov. 3 - 9.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...
News in Brief - November 2025
This thread has a Science for ME 'News in Brief' post for each week in November 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
November 9, 2025 at 7:59 PM
Reposted by Trish Davis
nickyproctor.bsky.social
From people who did LP:

“Then they tell you that it’s your own fault for having ME, because you’re doing ME. I became physically exhausted and unwell, and felt guilty because you would have to be pretty stupid when you’re making yourself ill.”
ninasteinkopf.bsky.social Nina Steinkopf @ninasteinkopf.bsky.social · Nov 2
More than 40 ME patients share their experience with the Lightning Process: lp-fortellinger.no/en/lp-stories/
November 2, 2025 at 10:54 AM
Reposted by Trish Davis
scienceforme.bsky.social
Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Oct. 20 - 26.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...
News in Brief - October 2025
This thread has a Science for ME 'News in Brief' post for each week in October 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
October 26, 2025 at 9:03 PM
Reposted by Trish Davis
georgemonbiot.bsky.social
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
October 8, 2025 at 6:09 AM
Reposted by Trish Davis
scienceforme.bsky.social
Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 8-14.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...
News in Brief - September 2025
This thread has a Science for ME 'News in Brief' post for each week in September 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
September 14, 2025 at 9:12 PM
Reposted by Trish Davis
decodemestudy.bsky.social
(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.

These findings reflect the lived experience of thousands of #pwME.

Thanks to all our participants & supporters who made this possible!

Read a summary of our results: shorturl.at/pgsjk
Graphic 1 of 4. DecodeME: The Results graphic. At the top in bold lettering, it says ‘Main Findings’. Beneath this it says ‘Your genes contribute to your chances of developing ME/CFS. Other key findings are on the following slides. Graphic 2 of 4. DecodeME: The Results graphic. The slide says ‘People with an ME/CFS diagnosis have significant genetic differences in their DNA compared to the general population’. Beneath this is an image of a DNA helix and a magnifying glass. Graphic 3 of 4. DecodeME: The Results graphic. The slide says ‘These lie in many places across the genome, and do not impact just one gene’. Beneath this is an image of a DNA helix and graphs. Graphic 4 of 4. DecodeME: The Results graphic. The slide says ‘Eight genetic signals have been identified. As DNA doesn’t change with ME/CFS onset, these findings reflect causes rather than effects of ME/CFS’. Beneath this is a blue magnifying glass with a DNA helix.
August 6, 2025 at 7:03 PM
ozfish.bsky.social
Very good. Thank you Hilda.
July 26, 2025 at 7:37 AM
Reposted by Trish Davis
hildabast.bsky.social
My rapid response at BMJ is online now. I joined the chorus of protest about an opinion piece claiming people with severe ME/CFS can recover by "reframing their beliefs" &c. People with ME/CFS deserve so much better than that:

www.bmj.com/content/389/...

#MECFS
Patients with severe ME/CFS deserve better than unproven theories
www.bmj.com
July 25, 2025 at 1:03 PM
Reposted by Trish Davis
binitakane.bsky.social
I did my safeguarding level 3 mandatory training this week on FII (Fabricated or induced illness - seen as a form of child abuse) and PP (perplexing presentations) i.e. symptoms that don’t make sense to paediatricians.

Look at the symptoms that these ‘abusive’ parents may report.
A slide showing boxes with multiple symptoms and traits commonly seen in post-viral conditions eg allergies, ADHD, sleep problems.
July 15, 2025 at 8:13 AM
Reposted by Trish Davis
scienceforme.bsky.social
Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 9 - 15.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...
News in Brief - June 2025
This thread has a Science for ME 'News in Brief' post for each week in June 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
June 15, 2025 at 9:41 PM
Reposted by Trish Davis
tomkindlon.bsky.social
🧵
I thought this was good (as I'd expect from @oonaghcousins.bsky.social & @thereforme.bsky.social team):

"The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient"

www.thereforme.uk/p/the-import...

#MEcfs #LongCovid

1/
The importance of understanding rest How my experience of rest as an athlete clashed with my experience of rest as a patient Oonagh Cousins Jun 10, 2025 Today’s post is from our very own Oonagh Cousins, a member of the #ThereForME HQ team. Oonagh is a former professional athlete with the British Rowing team and was pre-selected for the Tokyo Olympics before her career was cut short by Long Covid, which she contracted in March 2020. After nearly three years of attempting to recover and return to elite sport, she made the decision to retire at the end of 2022. Since then, she has focused her efforts in the Long Covid and ME space – working at the charity Long Covid Support, as part of a social science research team at the University of Oxford, and in the #ThereForME team.
June 13, 2025 at 6:38 PM
Reposted by Trish Davis
davetuller1.bsky.social
The BMJ has a long history of publishing stuff promoting the "biopsychosocial" approach to ME and ME/CFS: virology.ws/2025/05/24/t...
Trial By Error: More on the BMJ Opinion Piece from the Psychobabblers | Virology Blog
By David Tuller, DrPH When it comes to ME and ME/CFS, The BMJ—formerly called The British Medical Journal but now, like the food franchise once known as Ken ...
virology.ws
May 25, 2025 at 1:42 PM
Reposted by Trish Davis
cabruce.bsky.social
The BMJ have published Dom Salisbury’s rapid response to Miller et al’s Opinion piece. He mentions PEM as the definitive symptom. #ME
Ignorance about post-exertional malaise and continued conflation of ME/CFS with chronic fatigue harms patients and stymies research progress
www.bmj.com
May 18, 2025 at 4:47 PM
Reposted by Trish Davis
scienceforme.bsky.social
The Science for ME forum has published a fact sheet on PEM, post-exertional malaise.

This fact sheet may be copied and used freely by individuals and organizations.

Forum version:

www.s4me.info/threads/scie...

PDF version:

www.s4me.info/docs/PEM_Fac...

#MEcfs #PwME
Science for ME Fact Sheets
The Science for ME committee and members are running a project to develop fact sheets about aspects of ME/CFS. These are being developed in...
www.s4me.info
May 13, 2025 at 8:41 PM
Reposted by Trish Davis
bmhughes.bsky.social
It is sad to see @bmj.com platforming quack therapies in 2025

The mind-over-matter approach to #MECFS has been debunked for years, but a cadre of psych devotees in the UK persist in peddling evidence-free miracle cures

Pure and utter pseudoscience

#pwME #LongCovid @georgemonbiot.bsky.social
bmj.com The BMJ @bmj.com · May 14
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affects around 250 000 people in the UK.

Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, @paulgarnerwoof.bsky.social and colleagues
www.bmj.com/content/389/...
May 14, 2025 at 4:32 PM
Reposted by Trish Davis
kacheston.bsky.social
The BMJ has now published my rapid response to Miller et al's Opinion piece.

www.bmj.com/content/389/...
May 16, 2025 at 8:58 AM
ozfish.bsky.social
Thank you Katharine. That's a really helpful response to a dreadful article.
May 16, 2025 at 10:38 AM
ozfish.bsky.social
The Science for ME international forum has published the second of our series of fact sheets. This one is about post-exertional malaise (PEM). Please share in ME/CFS and Long Covid and medical communities. #me/cfs, #longcovid
www.s4me.info/docs/PEM_Fac...
www.s4me.info/threads/scie...
www.s4me.info
May 8, 2025 at 9:06 AM