Trish Davis
@ozfish.bsky.social
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
Reposted by Trish Davis
Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Nov. 3 - 9.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
News in Brief - November 2025
This thread has a Science for ME 'News in Brief' post for each week in November 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
November 9, 2025 at 7:59 PM
Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Nov. 3 - 9.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Reposted by Trish Davis
From people who did LP:
“Then they tell you that it’s your own fault for having ME, because you’re doing ME. I became physically exhausted and unwell, and felt guilty because you would have to be pretty stupid when you’re making yourself ill.”
“Then they tell you that it’s your own fault for having ME, because you’re doing ME. I became physically exhausted and unwell, and felt guilty because you would have to be pretty stupid when you’re making yourself ill.”
More than 40 ME patients share their experience with the Lightning Process: lp-fortellinger.no/en/lp-stories/
November 2, 2025 at 10:54 AM
From people who did LP:
“Then they tell you that it’s your own fault for having ME, because you’re doing ME. I became physically exhausted and unwell, and felt guilty because you would have to be pretty stupid when you’re making yourself ill.”
“Then they tell you that it’s your own fault for having ME, because you’re doing ME. I became physically exhausted and unwell, and felt guilty because you would have to be pretty stupid when you’re making yourself ill.”
Reposted by Trish Davis
Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Oct. 20 - 26.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
News in Brief - October 2025
This thread has a Science for ME 'News in Brief' post for each week in October 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
October 26, 2025 at 9:03 PM
Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Oct. 20 - 26.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Reposted by Trish Davis
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
October 8, 2025 at 6:09 AM
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Reposted by Trish Davis
Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 8-14.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
News in Brief - September 2025
This thread has a Science for ME 'News in Brief' post for each week in September 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
September 14, 2025 at 9:12 PM
Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 8-14.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Reposted by Trish Davis
(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
August 6, 2025 at 7:03 PM
(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
Reposted by Trish Davis
My rapid response at BMJ is online now. I joined the chorus of protest about an opinion piece claiming people with severe ME/CFS can recover by "reframing their beliefs" &c. People with ME/CFS deserve so much better than that:
www.bmj.com/content/389/...
#MECFS
www.bmj.com/content/389/...
#MECFS
Patients with severe ME/CFS deserve better than unproven theories
www.bmj.com
July 25, 2025 at 1:03 PM
My rapid response at BMJ is online now. I joined the chorus of protest about an opinion piece claiming people with severe ME/CFS can recover by "reframing their beliefs" &c. People with ME/CFS deserve so much better than that:
www.bmj.com/content/389/...
#MECFS
www.bmj.com/content/389/...
#MECFS
Reposted by Trish Davis
I did my safeguarding level 3 mandatory training this week on FII (Fabricated or induced illness - seen as a form of child abuse) and PP (perplexing presentations) i.e. symptoms that don’t make sense to paediatricians.
Look at the symptoms that these ‘abusive’ parents may report.
Look at the symptoms that these ‘abusive’ parents may report.
July 15, 2025 at 8:13 AM
I did my safeguarding level 3 mandatory training this week on FII (Fabricated or induced illness - seen as a form of child abuse) and PP (perplexing presentations) i.e. symptoms that don’t make sense to paediatricians.
Look at the symptoms that these ‘abusive’ parents may report.
Look at the symptoms that these ‘abusive’ parents may report.
Reposted by Trish Davis
Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 9 - 15.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
News in Brief - June 2025
This thread has a Science for ME 'News in Brief' post for each week in June 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
June 15, 2025 at 9:41 PM
Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 9 - 15.
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research
www.s4me.info/threads/news...
Reposted by Trish Davis
🧵
I thought this was good (as I'd expect from @oonaghcousins.bsky.social & @thereforme.bsky.social team):
"The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient"
www.thereforme.uk/p/the-import...
#MEcfs #LongCovid
1/
I thought this was good (as I'd expect from @oonaghcousins.bsky.social & @thereforme.bsky.social team):
"The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient"
www.thereforme.uk/p/the-import...
#MEcfs #LongCovid
1/
June 13, 2025 at 6:38 PM
🧵
I thought this was good (as I'd expect from @oonaghcousins.bsky.social & @thereforme.bsky.social team):
"The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient"
www.thereforme.uk/p/the-import...
#MEcfs #LongCovid
1/
I thought this was good (as I'd expect from @oonaghcousins.bsky.social & @thereforme.bsky.social team):
"The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient"
www.thereforme.uk/p/the-import...
#MEcfs #LongCovid
1/
Reposted by Trish Davis
The BMJ has a long history of publishing stuff promoting the "biopsychosocial" approach to ME and ME/CFS: virology.ws/2025/05/24/t...
Trial By Error: More on the BMJ Opinion Piece from the Psychobabblers | Virology Blog
By David Tuller, DrPH When it comes to ME and ME/CFS, The BMJ—formerly called The British Medical Journal but now, like the food franchise once known as Ken ...
virology.ws
May 25, 2025 at 1:42 PM
The BMJ has a long history of publishing stuff promoting the "biopsychosocial" approach to ME and ME/CFS: virology.ws/2025/05/24/t...
Reposted by Trish Davis
The BMJ have published Dom Salisbury’s rapid response to Miller et al’s Opinion piece. He mentions PEM as the definitive symptom. #ME
Ignorance about post-exertional malaise and continued conflation of ME/CFS with chronic fatigue harms patients and stymies research progress
www.bmj.com
May 18, 2025 at 4:47 PM
The BMJ have published Dom Salisbury’s rapid response to Miller et al’s Opinion piece. He mentions PEM as the definitive symptom. #ME
Reposted by Trish Davis
The Science for ME forum has published a fact sheet on PEM, post-exertional malaise.
This fact sheet may be copied and used freely by individuals and organizations.
Forum version:
www.s4me.info/threads/scie...
PDF version:
www.s4me.info/docs/PEM_Fac...
#MEcfs #PwME
This fact sheet may be copied and used freely by individuals and organizations.
Forum version:
www.s4me.info/threads/scie...
PDF version:
www.s4me.info/docs/PEM_Fac...
#MEcfs #PwME
Science for ME Fact Sheets
The Science for ME committee and members are running a project to develop fact sheets about aspects of ME/CFS. These are being developed in...
www.s4me.info
May 13, 2025 at 8:41 PM
The Science for ME forum has published a fact sheet on PEM, post-exertional malaise.
This fact sheet may be copied and used freely by individuals and organizations.
Forum version:
www.s4me.info/threads/scie...
PDF version:
www.s4me.info/docs/PEM_Fac...
#MEcfs #PwME
This fact sheet may be copied and used freely by individuals and organizations.
Forum version:
www.s4me.info/threads/scie...
PDF version:
www.s4me.info/docs/PEM_Fac...
#MEcfs #PwME
Reposted by Trish Davis
It is sad to see @bmj.com platforming quack therapies in 2025
The mind-over-matter approach to #MECFS has been debunked for years, but a cadre of psych devotees in the UK persist in peddling evidence-free miracle cures
Pure and utter pseudoscience
#pwME #LongCovid @georgemonbiot.bsky.social
The mind-over-matter approach to #MECFS has been debunked for years, but a cadre of psych devotees in the UK persist in peddling evidence-free miracle cures
Pure and utter pseudoscience
#pwME #LongCovid @georgemonbiot.bsky.social
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affects around 250 000 people in the UK.
Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, @paulgarnerwoof.bsky.social and colleagues
www.bmj.com/content/389/...
Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, @paulgarnerwoof.bsky.social and colleagues
www.bmj.com/content/389/...
May 14, 2025 at 4:32 PM
It is sad to see @bmj.com platforming quack therapies in 2025
The mind-over-matter approach to #MECFS has been debunked for years, but a cadre of psych devotees in the UK persist in peddling evidence-free miracle cures
Pure and utter pseudoscience
#pwME #LongCovid @georgemonbiot.bsky.social
The mind-over-matter approach to #MECFS has been debunked for years, but a cadre of psych devotees in the UK persist in peddling evidence-free miracle cures
Pure and utter pseudoscience
#pwME #LongCovid @georgemonbiot.bsky.social
Reposted by Trish Davis
The BMJ has now published my rapid response to Miller et al's Opinion piece.
www.bmj.com/content/389/...
www.bmj.com/content/389/...
May 16, 2025 at 8:58 AM
The BMJ has now published my rapid response to Miller et al's Opinion piece.
www.bmj.com/content/389/...
www.bmj.com/content/389/...
The Science for ME international forum has published the second of our series of fact sheets. This one is about post-exertional malaise (PEM). Please share in ME/CFS and Long Covid and medical communities. #me/cfs, #longcovid
www.s4me.info/docs/PEM_Fac...
www.s4me.info/threads/scie...
www.s4me.info/docs/PEM_Fac...
www.s4me.info/threads/scie...
www.s4me.info
May 8, 2025 at 9:06 AM
The Science for ME international forum has published the second of our series of fact sheets. This one is about post-exertional malaise (PEM). Please share in ME/CFS and Long Covid and medical communities. #me/cfs, #longcovid
www.s4me.info/docs/PEM_Fac...
www.s4me.info/threads/scie...
www.s4me.info/docs/PEM_Fac...
www.s4me.info/threads/scie...
Reposted by Trish Davis
#MECFSAwarenessMonth – Day 5
1991, the Oxford criteria for CFS were published. Vague and overly broad, they effectively identified people with unexplained fatigue. Despite being seriously flawed, they became popular in UK research and distorted understanding of ME for decades.
1991, the Oxford criteria for CFS were published. Vague and overly broad, they effectively identified people with unexplained fatigue. Despite being seriously flawed, they became popular in UK research and distorted understanding of ME for decades.
May 5, 2025 at 6:20 AM
#MECFSAwarenessMonth – Day 5
1991, the Oxford criteria for CFS were published. Vague and overly broad, they effectively identified people with unexplained fatigue. Despite being seriously flawed, they became popular in UK research and distorted understanding of ME for decades.
1991, the Oxford criteria for CFS were published. Vague and overly broad, they effectively identified people with unexplained fatigue. Despite being seriously flawed, they became popular in UK research and distorted understanding of ME for decades.
Reposted by Trish Davis
Amazing video 🙌
It's striking how it takes lived experience for many Drs to understand how people with neglected infection associated chronic conditions are treated.
That's the extent of the medical silencing 🧪
It's striking how it takes lived experience for many Drs to understand how people with neglected infection associated chronic conditions are treated.
That's the extent of the medical silencing 🧪
1) OMG we did it‼️‼️
In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before.
They speak candidly about their experiences
youtu.be/J0ywwLIfH_w?...
In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before.
They speak candidly about their experiences
youtu.be/J0ywwLIfH_w?...
Doctors as Patients (with subtitles)
YouTube video by Anil about ME
youtu.be
May 1, 2025 at 6:36 PM
Amazing video 🙌
It's striking how it takes lived experience for many Drs to understand how people with neglected infection associated chronic conditions are treated.
That's the extent of the medical silencing 🧪
It's striking how it takes lived experience for many Drs to understand how people with neglected infection associated chronic conditions are treated.
That's the extent of the medical silencing 🧪
Reposted by Trish Davis
1) In the past weeks I’ve helped to develop the first factsheet for the Science for ME forum.
The goal was to summarise what is known about ME/CFS in a brief text and in easy to understand language.
The goal was to summarise what is known about ME/CFS in a brief text and in easy to understand language.
March 27, 2025 at 9:42 AM
1) In the past weeks I’ve helped to develop the first factsheet for the Science for ME forum.
The goal was to summarise what is known about ME/CFS in a brief text and in easy to understand language.
The goal was to summarise what is known about ME/CFS in a brief text and in easy to understand language.
Reposted by Trish Davis
My 27-minute #MECFS Medical Scandal Explainer video has just hit 100,000 views on YouTube.
Given that I've only got a small channel, I think this shows there is a strong interest in the scandal.
Thank you to everyone who shared it!
Given that I've only got a small channel, I think this shows there is a strong interest in the scandal.
Thank you to everyone who shared it!
New Trailer for the #MECFS #GreatestMedicalScandal Explainer Video.
Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.
Includes clips from the full video that highlights the Stigma, Abuse, Bad Science and Harm.
March 16, 2025 at 9:07 AM
My 27-minute #MECFS Medical Scandal Explainer video has just hit 100,000 views on YouTube.
Given that I've only got a small channel, I think this shows there is a strong interest in the scandal.
Thank you to everyone who shared it!
Given that I've only got a small channel, I think this shows there is a strong interest in the scandal.
Thank you to everyone who shared it!
Reposted by Trish Davis
Find #MECFS, #LongCovid, and related news, advocacy and research from w/c 17th Feb in our latest News in Brief post.
Headlines and links to further reading for;
News, advocacy and articles
Research news and commentary
and Published research
www.s4me.info/threads/news...
Headlines and links to further reading for;
News, advocacy and articles
Research news and commentary
and Published research
www.s4me.info/threads/news...
News in Brief - February 2025
This thread has a Science for ME 'News in Brief' post for each week in February 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman....
www.s4me.info
February 23, 2025 at 9:50 AM
Find #MECFS, #LongCovid, and related news, advocacy and research from w/c 17th Feb in our latest News in Brief post.
Headlines and links to further reading for;
News, advocacy and articles
Research news and commentary
and Published research
www.s4me.info/threads/news...
Headlines and links to further reading for;
News, advocacy and articles
Research news and commentary
and Published research
www.s4me.info/threads/news...
Reposted by Trish Davis
A letter to Cochrane requesting withdrawal of its flawed, outdated 2019 review of exercise therapy for chronic fatigue syndrome, in the wake of the organization's abrupt Christmas decision to abandon a planned update. virology.ws/2025/02/20/t...
Trial By Error: A Letter to Cochrane's Editor-in-Chief | Virology Blog
By David Tuller, DrPH This morning, I e-mailed the following letter to Dr Karla Soares-Weiser, Cochrane’s editor-in-chief, about the decision to abandon a p ...
virology.ws
February 20, 2025 at 7:05 PM
A letter to Cochrane requesting withdrawal of its flawed, outdated 2019 review of exercise therapy for chronic fatigue syndrome, in the wake of the organization's abrupt Christmas decision to abandon a planned update. virology.ws/2025/02/20/t...
Reposted by Trish Davis
Me last night: Maybe this week’s column was a bit harsh on Labour. Perhaps they’ll start to see disability benefits in a more nuanced way and respect the people relying on them.
Labour this morning:
Labour this morning:
February 7, 2025 at 10:09 AM
Me last night: Maybe this week’s column was a bit harsh on Labour. Perhaps they’ll start to see disability benefits in a more nuanced way and respect the people relying on them.
Labour this morning:
Labour this morning: