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longcovidsupport.bsky.social
Long Covid Support
@longcovidsupport.bsky.social
5.3K followers 210 following 1.1K posts
UK charity dedicated to supporting people with Long Covid

• Support • Research • Advocacy • Education •

www.longcovid.org
https://linktr.ee/longcovidsupport
📧info@longcovid.org
Posts Replies Media Videos
longcovidsupport.bsky.social
As we begin 2026, we wanted to pause and look back on 2025 and the work we’ve done alongside the Long Covid community. Our work spans Research, Influence and Support.

Thank you so much to everyone who supported us in 2025. We’re heading into 2026 with the same determination to drive change.
January 27, 2026 at 6:20 PM
Reposted by Long Covid Support
nigelrothband.bsky.social
So encouraging to see in-person Long Covid support growing. If you’re nearby, the next group is on 5 February. Huge thanks to Fleur for leading.
longcovidsupport.bsky.social Long Covid Support @longcovidsupport.bsky.social · 1d
We had such a lovely first in-person Long Covid support group in West Cheshire 💛 Thank you so much to everyone who came along.

Next group will be on 5th February (details via link below.

The sessions are led by Fleur Roberts, a former NHS Wellbeing Coordinator - we are so grateful for Fleur!
Three people wearing face masks stand smiling in front of a colourful artwork, with “Long Covid Support” badges and clothing visible. A group of people sit around tables in a bright meeting room, listening to a speaker standing at the front during a support group session.
January 26, 2026 at 6:02 PM
longcovidsupport.bsky.social
We had such a lovely first in-person Long Covid support group in West Cheshire 💛 Thank you so much to everyone who came along.

Next group will be on 5th February (details via link below.

The sessions are led by Fleur Roberts, a former NHS Wellbeing Coordinator - we are so grateful for Fleur!
Three people wearing face masks stand smiling in front of a colourful artwork, with “Long Covid Support” badges and clothing visible. A group of people sit around tables in a bright meeting room, listening to a speaker standing at the front during a support group session.
January 26, 2026 at 1:54 PM
longcovidsupport.bsky.social
Reminder!
Happening today at 8pm GMT.

It will be recorded if you cannot join the live session.

@binitakane.bsky.social
longcovidsupport.bsky.social Long Covid Support @longcovidsupport.bsky.social · 8d
1/ Episode 28: Long COVID Clinic Fireside Chat Series

⭐ Navigating the health-info minefield

📅 Wed 21 Jan
⏰ 20:00 UK time
🎥 YouTube Live
🔗 youtube.com/live/W3fKUyl...

#LongCOVID #MECFS
January 21, 2026 at 9:35 AM
longcovidsupport.bsky.social
1/ Episode 28: Long COVID Clinic Fireside Chat Series

⭐ Navigating the health-info minefield

📅 Wed 21 Jan
⏰ 20:00 UK time
🎥 YouTube Live
🔗 youtube.com/live/W3fKUyl...

#LongCOVID #MECFS
January 19, 2026 at 4:55 PM
Reposted by Long Covid Support
nigelrothband.bsky.social
Today we’re launching #ForThoseWhoCant, a new community fundraising campaign from Long Covid Support.
Many people living with Long Covid can’t fundraise themselves. This campaign is about making it easier for friends, families and allies to step in and show solidarity.

#ForThoseWhoCant #LongCovid
longcovidsupport.bsky.social Long Covid Support @longcovidsupport.bsky.social · 12d
Today we’re launching #ForThoseWhoCant, our new fundraising campaign.

It’s about making fundraising more accessible, with ideas and guidance for friends, family, and loved ones who want to support our work.

Email fundraise@longcovid.org or click here for more: www.longcovid.org/get-involved...
January 17, 2026 at 4:49 PM
longcovidsupport.bsky.social
Today we’re launching #ForThoseWhoCant, our new fundraising campaign.

It’s about making fundraising more accessible, with ideas and guidance for friends, family, and loved ones who want to support our work.

Email fundraise@longcovid.org or click here for more: www.longcovid.org/get-involved...
January 16, 2026 at 11:01 AM
longcovidsupport.bsky.social
"The short answer is that the Treasury took no action at all."

At the UK Covid Inquiry (Module 9), the Long Covid Groups were clear: the economic impact of Long Covid was foreseeable and ignored, leaving many people without support.

Watch our closing statement: www.youtube.com/watch?si=ikR...

🧵 👇
Blue graphic with silhouettes of people along the top. Text reads: “COVID-19 Inquiry. Our closing submissions for Module 9: Economic response.” Long Covid Support logo at the bottom.
January 12, 2026 at 4:26 PM
longcovidsupport.bsky.social
1/ ✍️💫 Introducing: Long Covid Stories

We’re really pleased to launch a new series, Long Covid Stories, sharing experiences from people living with Long Covid.

We’re kicking things off with a powerful piece by Matt Alton, now live here: www.longcovid.org/impact/news/...
Long Covid Support
To learn more visit LongCovid.org
www.longcovid.org
January 12, 2026 at 4:10 PM
longcovidsupport.bsky.social
Reminder that our new in-person support group (in West Cheshire) is holding it's first session tomorrow! 🩵

All the details here 👇🏼
longcovidsupport.bsky.social Long Covid Support @longcovidsupport.bsky.social · Dec 22
1/ Join us for our new In-Person Long Covid Support Group in West Cheshire

Free monthly sessions for people with Long Covid to connect and support each other.

📅 Thursday 8 January 2026
⏰ 10.30 - 12.30
📍 Blacon Enterprise Centre, CH1 5HN
“Event flyer for a support group. At the top is a colourful strip of repeated people silhouettes. Large text reads ‘Join our new support group’. Below, smaller text says ‘First session: 8 January, 10:30–12:00’. Location listed as ‘Blacon Enterprise Centre, Cheshire’. Further down it says ‘Further sessions: 5 February, 12 March, 9 April, 14 May, 11 June’. At the bottom is the Long Covid Support logo.”
January 7, 2026 at 11:58 AM
longcovidsupport.bsky.social
Reminder that we’re opening a new in-person support group in West Cheshire

Then first session is ✨ 8th of January ✨

All the information in the thread below 👇🏼
longcovidsupport.bsky.social Long Covid Support @longcovidsupport.bsky.social · Dec 22
1/ Join us for our new In-Person Long Covid Support Group in West Cheshire

Free monthly sessions for people with Long Covid to connect and support each other.

📅 Thursday 8 January 2026
⏰ 10.30 - 12.30
📍 Blacon Enterprise Centre, CH1 5HN
“Event flyer for a support group. At the top is a colourful strip of repeated people silhouettes. Large text reads ‘Join our new support group’. Below, smaller text says ‘First session: 8 January, 10:30–12:00’. Location listed as ‘Blacon Enterprise Centre, Cheshire’. Further down it says ‘Further sessions: 5 February, 12 March, 9 April, 14 May, 11 June’. At the bottom is the Long Covid Support logo.”
January 4, 2026 at 11:45 AM
longcovidsupport.bsky.social
1/ ✨ Happy New Year from the team at Long Covid Support ✨

The New Year can bring a wide range of emotions. For some, it may feel like an opportunity for a fresh start. For others, it can bring uncertainty or concern about what lies ahead.
Blue background with gold stars and the text ‘Wishing you a Happy New Year’ in green and light blue.
January 1, 2026 at 2:39 PM
Reposted by Long Covid Support
nigelrothband.bsky.social
Delighted we’re launching an in-person Long Covid Support Group in West Cheshire, creating a safe, supportive space for people to connect, share experiences & feel less alone.

Free and open to anyone living with Long Covid. Please do retweet and help us reach those who may really need this support.
longcovidsupport.bsky.social Long Covid Support @longcovidsupport.bsky.social · Dec 22
1/ Join us for our new In-Person Long Covid Support Group in West Cheshire

Free monthly sessions for people with Long Covid to connect and support each other.

📅 Thursday 8 January 2026
⏰ 10.30 - 12.30
📍 Blacon Enterprise Centre, CH1 5HN
“Event flyer for a support group. At the top is a colourful strip of repeated people silhouettes. Large text reads ‘Join our new support group’. Below, smaller text says ‘First session: 8 January, 10:30–12:00’. Location listed as ‘Blacon Enterprise Centre, Cheshire’. Further down it says ‘Further sessions: 5 February, 12 March, 9 April, 14 May, 11 June’. At the bottom is the Long Covid Support logo.”
December 23, 2025 at 6:13 PM
longcovidsupport.bsky.social
1/ Season’s greetings from the team at Long Covid Support 🎄

Thank you for being part of our community in 2025. We know it’s been another challenging year for many, and we’re truly grateful for your continued support.
Festive version of the Long Covid Support logo. The logo shows a circular virus shape with four human silhouettes inside, some wearing Santa hats. The words ‘Long Covid Support’ appear in green to the right, framed by a red rectangular border. Small snowflakes and festive details are scattered around the logo on a light background.
December 23, 2025 at 1:54 PM
longcovidsupport.bsky.social
1/ On 3 December, the APPG on Long Covid met in Parliament.

An APPG (All-Party Parliamentary Group) is a cross-party group of MPs and peers who come together regularly to focus on specific issues.
“Graphic announcing that minutes are available from the All-Party Parliamentary Group on Long Covid. The APPG on Long Covid logo appears at the top. Large text in the centre reads ‘Minutes Available’. At the bottom, smaller text reads ‘3rd December meeting’. The background is light grey with subtle geometric shapes and a thin black border.”
December 22, 2025 at 7:02 PM
longcovidsupport.bsky.social
1/ Join us for our new In-Person Long Covid Support Group in West Cheshire

Free monthly sessions for people with Long Covid to connect and support each other.

📅 Thursday 8 January 2026
⏰ 10.30 - 12.30
📍 Blacon Enterprise Centre, CH1 5HN
“Event flyer for a support group. At the top is a colourful strip of repeated people silhouettes. Large text reads ‘Join our new support group’. Below, smaller text says ‘First session: 8 January, 10:30–12:00’. Location listed as ‘Blacon Enterprise Centre, Cheshire’. Further down it says ‘Further sessions: 5 February, 12 March, 9 April, 14 May, 11 June’. At the bottom is the Long Covid Support logo.”
December 22, 2025 at 6:03 PM
longcovidsupport.bsky.social
1/ Episode 27: Long Covid Clinic Fireside Chat ⭐ Underlying causes of ME: a unifying hypothesis?

📆 Wed 17 Dec
🎥 YouTube Live
⏰ 18:00 GMT

#LongCovid #MECFS
Promotional graphic for a live talk titled “Underlying Causes of ME: A Unifying Hypothesis?” featuring portraits of Dr Binita Kane on the left and Prof Klaus Wirth on the right. Text states “Dr Kane talks with Prof Klaus Wirth, MD PhD.” Event details read “LIVE: Wednesday 17th December 2025, 18:00 (GMT).” Logos for The Long Covid Clinic and Long Covid Support appear on the image, with YouTube handle “@LCCWYCD” at the bottom.
December 15, 2025 at 7:00 PM
longcovidsupport.bsky.social
Part 2: More quotes from Mike Ormerod’s powerful testimony to
UK Covid-19 Inquiry.

Mike lives with Long Covid and volunteers with Long Covid Support.

He gave evidence for Long Covid groups at the Module 9 public hearing (Economic Response) and honoured those we’ve lost. 🧵👇
Title card on a blue background: “COVID-19 Inquiry — Key moments from Mike Ormerod’s testimony — Part 2.” Long Covid Support logo at the bottom.
December 7, 2025 at 11:32 PM
Reposted by Long Covid Support
nigelrothband.bsky.social
Great energy at this week’s Long Covid APPG meeting, in Parliament, for @longcovidsupport.bsky.social constructive discussion, powerful lived experience, and real commitment to driving change. Grateful to everyone pushing for better care, research, and recognition. #LongCovid #APPG
December 4, 2025 at 10:30 PM
longcovidsupport.bsky.social
Yesterday the APPG on Long Covid met to continue work on improving recognition, strengthening care pathways and accelerating research.

Thank you to everyone involved, especially Jo Platt MP for your leadership and commitment. Minutes to follow. 📝

#LongCovid #APPG
Five people wearing face masks sit around a conference table with papers and notebooks, with a large microphone in the center and tall windows with blinds behind them.
December 4, 2025 at 11:27 PM
longcovidsupport.bsky.social
Did you catch Mike Ormerod’s powerful testimony at the Covid Inquiry last week?

Mike has Long Covid and volunteers with Long Covid Support. He gave evidence on behalf of Long Covid groups at Module 9 “Economic Response”.

Standout quotes (there are many!) Part 1 🧵👇
Blue graphic with a strip of silhouetted heads along the top. Text reads “COVID-19 INQUIRY” and “KEY MOMENTS FROM MIKE ORMEROD’S TESTIMONY – Part 1”. Long Covid Support logo at the bottom.
December 3, 2025 at 9:34 PM
longcovidsupport.bsky.social
1/ We were thrilled to see 50+ MPs and Peers at the Overlapping Illness Alliance drop-in last week.

Thanks to your emails, nearly 80% of MPs got an invite, one even said it was the most letters they'd ever had about an event. Your support genuinely made a difference.
A group of eight people stand together in a meeting room beside a tall banner for the Overlapping Illness Alliance. The banner displays the Alliance logo and partner organisation logos. The group are smiling for the photo, and several are wearing visitor lanyards. A table in the foreground holds leaflets, and the room has large windows and modern wooden paneling.
December 1, 2025 at 4:56 PM
longcovidsupport.bsky.social
Have you emailed your MP to join the APPG on Long Covid meeting on 3 December?

If not, please do send them a reminder email including your name, address/postcode of course.

Your voice matters.

#LongCovid
longcovidsupport.bsky.social Long Covid Support @longcovidsupport.bsky.social · Nov 13
1/ The next APPG on Long Covid will meet on 3rd December 2025 at 10am.

The meeting will look back at the past year’s work and set plans for the year ahead.

If Long Covid affects you or those around you, ask your MP to be there.
Black background with a light-coloured inner frame. At the top is the logo of the APPG on Long Covid. Text reads Meeting Wednesday 3rd December 2025 10:00am to 11:30am Please ask your MP to attend. At the bottom is a sketch of part of the River Thames, Westminster Bridge and part of the Houses of Parliament.
November 28, 2025 at 6:23 PM
longcovidsupport.bsky.social
Yesterday our Chair of Trustees Nigel Rothband joined partners from the Overlapping Illness Alliance in Parliament, urging MPs to take urgent action on the research and support needed to meet the Long Covid crisis.

#LongCovid
A group of six people stand and smile in front of the Houses of Parliament in London, with the Elizabeth Tower (Big Ben) visible behind them. One person is seated in a wheelchair at the centre. They are dressed in winter clothing and appear to have just come from a meeting or event. The sky is overcast.
November 26, 2025 at 11:56 PM
longcovidsupport.bsky.social
Thank you to our Chair @nigelrothband.bsky.social & Trustee @joda.bsky.social for attending @ukcovid-19inquiry.bsky.social on this important day.
Even bigger thanks to our Member Mike Ormerod for all his work and all the effort it will take giving evidence this afternoon. 🙏
#LongCovid
#CovidInquiry
Photograph of our Founding Trustee Jo Dainow and Chair Nigel Rothband standing either side of a sign that says UK Covid-19 Inquiry Hearing Centre. Both are wearing face masks, ready to go in to the Inquiry building.
November 26, 2025 at 2:15 PM