Long Covid Support
@longcovidsupport.bsky.social
UK charity dedicated to supporting people with Long Covid
• Support • Research • Advocacy • Education •
www.longcovid.org
https://linktr.ee/longcovidsupport
📧info@longcovid.org
• Support • Research • Advocacy • Education •
www.longcovid.org
https://linktr.ee/longcovidsupport
📧info@longcovid.org
If you’ve already emailed your MP - thank you! 🙌 Now’s the time to remind them to come along and hear why this matters.
📩 Haven’t emailed yet? It only takes a few minutes: actionforme.eaction.org.uk/dropin
📩 Haven’t emailed yet? It only takes a few minutes: actionforme.eaction.org.uk/dropin
Overlapping Illness Alliance drop-in
actionforme.eaction.org.uk
November 7, 2025 at 8:14 PM
If you’ve already emailed your MP - thank you! 🙌 Now’s the time to remind them to come along and hear why this matters.
📩 Haven’t emailed yet? It only takes a few minutes: actionforme.eaction.org.uk/dropin
📩 Haven’t emailed yet? It only takes a few minutes: actionforme.eaction.org.uk/dropin
4/4. …..This is just the beginning!! The Alliance will grow over time, and we look forward to welcoming more organisations who share our aims.
Check out our Long Covid Support page on the OIA website:
#LongCovid #LongCovidSupport
www.overlappingillnessalliance.org.uk/long-covid/
Check out our Long Covid Support page on the OIA website:
#LongCovid #LongCovidSupport
www.overlappingillnessalliance.org.uk/long-covid/
Long Covid
www.overlappingillnessalliance.org.uk
November 4, 2025 at 2:51 PM
4/4. …..This is just the beginning!! The Alliance will grow over time, and we look forward to welcoming more organisations who share our aims.
Check out our Long Covid Support page on the OIA website:
#LongCovid #LongCovidSupport
www.overlappingillnessalliance.org.uk/long-covid/
Check out our Long Covid Support page on the OIA website:
#LongCovid #LongCovidSupport
www.overlappingillnessalliance.org.uk/long-covid/
3/4. We’ve launched as a small founding group to turn collaboration into action, creating one voice for joined-up progress our communities need, but……
#OIA #OneVoice #UnitedForChange
www.overlappingillnessalliance.org.uk
#OIA #OneVoice #UnitedForChange
www.overlappingillnessalliance.org.uk
Overlapping Illness Alliance
Join the Overlapping Illness Alliance for effective advocacy and support for those with overlapping health conditions.
www.overlappingillnessalliance.org.uk
November 4, 2025 at 2:51 PM
3/4. We’ve launched as a small founding group to turn collaboration into action, creating one voice for joined-up progress our communities need, but……
#OIA #OneVoice #UnitedForChange
www.overlappingillnessalliance.org.uk
#OIA #OneVoice #UnitedForChange
www.overlappingillnessalliance.org.uk
2/4. We are hosting a drop-in session at the Houses of Parliament on Tuesday 25 November to inform MPs about these illnesses, and what they can do to support.
🌟 Ask your MP to attend using our simple form:
actionforme.eaction.org.uk/dropin
🌟 Ask your MP to attend using our simple form:
actionforme.eaction.org.uk/dropin
Overlapping Illness Alliance drop-in
actionforme.eaction.org.uk
November 4, 2025 at 2:51 PM
2/4. We are hosting a drop-in session at the Houses of Parliament on Tuesday 25 November to inform MPs about these illnesses, and what they can do to support.
🌟 Ask your MP to attend using our simple form:
actionforme.eaction.org.uk/dropin
🌟 Ask your MP to attend using our simple form:
actionforme.eaction.org.uk/dropin
Link to watch: www.youtube.com/live/Ar0X_N3...
Hydration, Appetite, and Blood Sugar in POTS | #longCOVID
YouTube video by The Long Covid Clinic: What You CAN Do
www.youtube.com
October 31, 2025 at 11:42 AM
Link to watch: www.youtube.com/live/Ar0X_N3...
October 6, 2025 at 6:47 PM
3/3. Link:
NB Educational content only; not medical advice. If unwell, stop and seek medical help.
youtube.com/live/w3pfdd6...
NB Educational content only; not medical advice. If unwell, stop and seek medical help.
youtube.com/live/w3pfdd6...
Updates from the Santa Fe Long COVID Symposium with Professor Danny Altmann
YouTube video by The Long Covid Clinic: What You CAN Do
youtube.com
October 4, 2025 at 2:50 PM
3/3. Link:
NB Educational content only; not medical advice. If unwell, stop and seek medical help.
youtube.com/live/w3pfdd6...
NB Educational content only; not medical advice. If unwell, stop and seek medical help.
youtube.com/live/w3pfdd6...
2/3.The Santa Fe #LongCovid Symposium convened world leading scientists, physicians &
researchers to advance diagnosis, pathophysiology & treatment of post-acute infection syndromes. Join this conversation highlighting significant developments from around the world.
#PAIS
Link below ⬇️
researchers to advance diagnosis, pathophysiology & treatment of post-acute infection syndromes. Join this conversation highlighting significant developments from around the world.
#PAIS
Link below ⬇️
October 4, 2025 at 2:50 PM
2/3.The Santa Fe #LongCovid Symposium convened world leading scientists, physicians &
researchers to advance diagnosis, pathophysiology & treatment of post-acute infection syndromes. Join this conversation highlighting significant developments from around the world.
#PAIS
Link below ⬇️
researchers to advance diagnosis, pathophysiology & treatment of post-acute infection syndromes. Join this conversation highlighting significant developments from around the world.
#PAIS
Link below ⬇️
3/4. The paper continues:
“…This is supported by recent linkage of self-reported #LongCovid to primary care records, which found that as few as 5.4% of patients with self-reported long Covid had a recorded long Covid diagnosis.”
Link ⬇️
“…This is supported by recent linkage of self-reported #LongCovid to primary care records, which found that as few as 5.4% of patients with self-reported long Covid had a recorded long Covid diagnosis.”
Link ⬇️
September 30, 2025 at 12:10 PM
3/4. The paper continues:
“…This is supported by recent linkage of self-reported #LongCovid to primary care records, which found that as few as 5.4% of patients with self-reported long Covid had a recorded long Covid diagnosis.”
Link ⬇️
“…This is supported by recent linkage of self-reported #LongCovid to primary care records, which found that as few as 5.4% of patients with self-reported long Covid had a recorded long Covid diagnosis.”
Link ⬇️
2/4. Authors say:
“We find far lower prevalence of recorded #LongCovid diagnoses (0.33%) than expected based on self-reported survey data from the UK ONS (3.3%) and from a nationwide Scottish survey (6.6%–10.3%), suggesting significant undercoding in primary care…”
Link ⬇️
“We find far lower prevalence of recorded #LongCovid diagnoses (0.33%) than expected based on self-reported survey data from the UK ONS (3.3%) and from a nationwide Scottish survey (6.6%–10.3%), suggesting significant undercoding in primary care…”
Link ⬇️
September 30, 2025 at 12:10 PM
2/4. Authors say:
“We find far lower prevalence of recorded #LongCovid diagnoses (0.33%) than expected based on self-reported survey data from the UK ONS (3.3%) and from a nationwide Scottish survey (6.6%–10.3%), suggesting significant undercoding in primary care…”
Link ⬇️
“We find far lower prevalence of recorded #LongCovid diagnoses (0.33%) than expected based on self-reported survey data from the UK ONS (3.3%) and from a nationwide Scottish survey (6.6%–10.3%), suggesting significant undercoding in primary care…”
Link ⬇️