Ashley Hultman
@ashleyhultman.bsky.social
#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her
Pinned
Ashley Hultman
@ashleyhultman.bsky.social
· Nov 12
Frontiers | Female reproductive health impacts of Long COVID and associated illnesses including ME/CFS, POTS, and connective tissue disorders: a literature review
Long COVID disproportionately affects premenopausal women, but relatively few studies have examined Long COVID's impact on female reproductive health. We con...
www.frontiersin.org
Some of you may know me from Twitter, IRL, or from editing this paper. Hi! ::waves::
I will be transitioning away from Twitter and am excited that this platform exists. Grateful that BlueSky is an option for us all.
www.frontiersin.org/journals/reh...
I will be transitioning away from Twitter and am excited that this platform exists. Grateful that BlueSky is an option for us all.
www.frontiersin.org/journals/reh...
Reposted by Ashley Hultman
‼️Germany allocates 500 million Euros to research on #MECFS #LongCovid #PAIS from 2026-2036‼️
“We are opening a new chapter in researching these diseases.”
"The National Decade Against Post-Infectious Diseases is coming."
- German Federal Research Minister Dorothee Bär
@dorobaer.bsky.social
“We are opening a new chapter in researching these diseases.”
"The National Decade Against Post-Infectious Diseases is coming."
- German Federal Research Minister Dorothee Bär
@dorobaer.bsky.social
Nationale Dekade gegen Postinfektiöse Erkrankungen: Insgesamt eine halbe Milliarde Euro für weitergehende Forschung - BMFTR
Nationale Dekade gegen Postinfektiöse Erkrankungen: 500 Millionen Euro für Forschung
https://www.bmftr.bund.de/SharedDocs/Kurzmeldungen/DE/2025/11/nationale-dekade-postinfektiöse-erkrankungen.html
November 14, 2025 at 1:31 AM
‼️Germany allocates 500 million Euros to research on #MECFS #LongCovid #PAIS from 2026-2036‼️
“We are opening a new chapter in researching these diseases.”
"The National Decade Against Post-Infectious Diseases is coming."
- German Federal Research Minister Dorothee Bär
@dorobaer.bsky.social
“We are opening a new chapter in researching these diseases.”
"The National Decade Against Post-Infectious Diseases is coming."
- German Federal Research Minister Dorothee Bär
@dorobaer.bsky.social
Reposted by Ashley Hultman
🪩 Excellent news from Germany.
€50 million a yr available from 2026-36.
€50 million a yr available from 2026-36.
November 14, 2025 at 12:52 PM
🪩 Excellent news from Germany.
€50 million a yr available from 2026-36.
€50 million a yr available from 2026-36.
Reposted by Ashley Hultman
Germany pledges €500 million for research through the “National Decade Against Post-Infectious Diseases” (2026-2036), including #MECFS and #LongCOVID.
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Chronic Fatigue Syndrome: Bundesregierung will Erforschung von ME/CFS stärker fördern
Die Zahl der Long-Covid- und ME/CFS-Erkrankungen hat seit der Pandemie stark zugenommen. Bis 2036 sollen deswegen 500 Millionen Euro in die Forschung investiert werden.
www.zeit.de
November 14, 2025 at 6:50 AM
Germany pledges €500 million for research through the “National Decade Against Post-Infectious Diseases” (2026-2036), including #MECFS and #LongCOVID.
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Addressing what they call “one of the greatest public health challenges of the 21st century.”
www.zeit.de/politik/deut...
Reposted by Ashley Hultman
Donald Trump and Elon Musk pushed out thousands of experienced, dedicated Social Security staff.
Now, the Social Security Administration is in crisis — and Americans can't access their hard earned benefits.
Now, the Social Security Administration is in crisis — and Americans can't access their hard earned benefits.
Callers to Social Security wait for hours to get help. Hear their ordeals.
Millions of seniors and disabled people call Social Security’s 1-800 number every month. What they experience is often maddening.
wapo.st
October 28, 2025 at 8:16 PM
Donald Trump and Elon Musk pushed out thousands of experienced, dedicated Social Security staff.
Now, the Social Security Administration is in crisis — and Americans can't access their hard earned benefits.
Now, the Social Security Administration is in crisis — and Americans can't access their hard earned benefits.
Reposted by Ashley Hultman
A Cornell University researcher has been developing an artificial heart for children for more than 20 years. Now, his research is on hold and his lab is shut down.
This 4-year-old's heart is failing. A federal grant that might help him was canceled
A Cornell University researcher has been developing an artificial heart for children for more than 20 years. Now, his research is on hold and his lab is shut down.
n.pr
October 12, 2025 at 9:59 PM
A Cornell University researcher has been developing an artificial heart for children for more than 20 years. Now, his research is on hold and his lab is shut down.
Reposted by Ashley Hultman
🔥🔥CMS UPDATE ON TELEHEALTH FOR MEDICARE DURING SHUTDOWN🔥🔥
BEGINNING: 10/1/2025, MANY of the statutory limitations that were in place for Medicare TELEHEALTH services prior to the COVID-19 Public Health Emergency will take effect AGAIN for services that are NOT behavioral and mental health services.
BEGINNING: 10/1/2025, MANY of the statutory limitations that were in place for Medicare TELEHEALTH services prior to the COVID-19 Public Health Emergency will take effect AGAIN for services that are NOT behavioral and mental health services.
October 2, 2025 at 4:52 PM
🔥🔥CMS UPDATE ON TELEHEALTH FOR MEDICARE DURING SHUTDOWN🔥🔥
BEGINNING: 10/1/2025, MANY of the statutory limitations that were in place for Medicare TELEHEALTH services prior to the COVID-19 Public Health Emergency will take effect AGAIN for services that are NOT behavioral and mental health services.
BEGINNING: 10/1/2025, MANY of the statutory limitations that were in place for Medicare TELEHEALTH services prior to the COVID-19 Public Health Emergency will take effect AGAIN for services that are NOT behavioral and mental health services.
Reposted by Ashley Hultman
New Lancet Study: 2x Risk of Long COVID After Reinfection
Risks of other serious outcomes also rise sharply.
This is not a “mild” illness when it rewrites a child’s future. We need research, medical care, and school protections that match the scale of the problem.
#LongCOVID
Risks of other serious outcomes also rise sharply.
This is not a “mild” illness when it rewrites a child’s future. We need research, medical care, and school protections that match the scale of the problem.
#LongCOVID
Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective cohort study
Children and adolescents face a significantly higher risk of various PASC outcomes
after reinfection with SARS-CoV-2. These findings add to previous evidence linking
paediatric long COVID to multisyst...
www.thelancet.com
October 1, 2025 at 1:43 PM
New Lancet Study: 2x Risk of Long COVID After Reinfection
Risks of other serious outcomes also rise sharply.
This is not a “mild” illness when it rewrites a child’s future. We need research, medical care, and school protections that match the scale of the problem.
#LongCOVID
Risks of other serious outcomes also rise sharply.
This is not a “mild” illness when it rewrites a child’s future. We need research, medical care, and school protections that match the scale of the problem.
#LongCOVID
Reposted by Ashley Hultman
Ebola has a sixty-something percent mortality rate and costs a great deal to treat just one patient.
With vaccination this low and treatment this expensive, this is a human rights disaster in the making.
This is a problem only money can solve right now.
With vaccination this low and treatment this expensive, this is a human rights disaster in the making.
This is a problem only money can solve right now.
September 26, 2025 at 9:02 PM
Ebola has a sixty-something percent mortality rate and costs a great deal to treat just one patient.
With vaccination this low and treatment this expensive, this is a human rights disaster in the making.
This is a problem only money can solve right now.
With vaccination this low and treatment this expensive, this is a human rights disaster in the making.
This is a problem only money can solve right now.
Reposted by Ashley Hultman
This is extremely bad. In the past, the Congo would have leaned heavily on USAID. That's no longer possible.
"...Just 1,740 people in three health zones of Kasai province have been vaccinated as of Sept. 21. The Bulape zone alone has a population of more than 212,000."
"...Just 1,740 people in three health zones of Kasai province have been vaccinated as of Sept. 21. The Bulape zone alone has a population of more than 212,000."
A new Ebola outbreak in Congo kills dozens as health officials warn of lack of funds. WHO says 57 cases and 35 deaths have been reported since outbreak was announced this month.
www.statnews.com/2025/09/25/e...
www.statnews.com/2025/09/25/e...
A new Ebola outbreak in Congo kills dozens as health officials warn of lack of funds
As a deadly new Ebola outbreak kills dozens in southern Congo, health officials are warning that they lack the funds and resources to mount an effective response.
www.statnews.com
September 26, 2025 at 9:02 PM
This is extremely bad. In the past, the Congo would have leaned heavily on USAID. That's no longer possible.
"...Just 1,740 people in three health zones of Kasai province have been vaccinated as of Sept. 21. The Bulape zone alone has a population of more than 212,000."
"...Just 1,740 people in three health zones of Kasai province have been vaccinated as of Sept. 21. The Bulape zone alone has a population of more than 212,000."
Reposted by Ashley Hultman
If you're getting ready for SCOTUS season, you need to add this webinar to your calendar! 9/30 discussion with experts about the Roberts Court www.americanprogress.org/events/twent...
20 Years of the Roberts Court: The Chief Justice’s Legacy and the Coming Term
Please join the Center for American Progress for a virtual event that will dive into 20 years of the Roberts court and the upcoming Supreme Court term.
www.americanprogress.org
September 26, 2025 at 3:26 PM
If you're getting ready for SCOTUS season, you need to add this webinar to your calendar! 9/30 discussion with experts about the Roberts Court www.americanprogress.org/events/twent...
Reposted by Ashley Hultman
From Nevra's Instagram drafts:
Young heart for love
Not heartache
Dark hair for catching the wind
Not to veil the sight of a cold world
Please keep sharing!
We are looking at VERY Severe #pwME now going back to #DV or homelessness
💙gofundme.com/f/save-nevra
#VerySevereME
Young heart for love
Not heartache
Dark hair for catching the wind
Not to veil the sight of a cold world
Please keep sharing!
We are looking at VERY Severe #pwME now going back to #DV or homelessness
💙gofundme.com/f/save-nevra
#VerySevereME
September 24, 2025 at 7:16 PM
From Nevra's Instagram drafts:
Young heart for love
Not heartache
Dark hair for catching the wind
Not to veil the sight of a cold world
Please keep sharing!
We are looking at VERY Severe #pwME now going back to #DV or homelessness
💙gofundme.com/f/save-nevra
#VerySevereME
Young heart for love
Not heartache
Dark hair for catching the wind
Not to veil the sight of a cold world
Please keep sharing!
We are looking at VERY Severe #pwME now going back to #DV or homelessness
💙gofundme.com/f/save-nevra
#VerySevereME
Reposted by Ashley Hultman
FACT: When the 1st Trump administration cut the budget for ACA Open Enrollment information by 90%, Jimmy Kimmel used his platform to make sure that everyone on the marketplace in America knew that you needed to sign up or change your marketplace plan. That speaks for itself. Miss you, Jimmy Kimmel.🙏
September 20, 2025 at 8:10 PM
FACT: When the 1st Trump administration cut the budget for ACA Open Enrollment information by 90%, Jimmy Kimmel used his platform to make sure that everyone on the marketplace in America knew that you needed to sign up or change your marketplace plan. That speaks for itself. Miss you, Jimmy Kimmel.🙏
Reposted by Ashley Hultman
I’m not an epidemiologist, but a cognitive scientist & biomedical researcher (PhD, Education) with expertise in digital health, health literacy, and behavior change. Not a credential drop—just context to establish perspective & credibility.
September 16, 2025 at 12:13 AM
I’m not an epidemiologist, but a cognitive scientist & biomedical researcher (PhD, Education) with expertise in digital health, health literacy, and behavior change. Not a credential drop—just context to establish perspective & credibility.
Reposted by Ashley Hultman
Try taking the COVID competency exam yourself, and share it around! Great way to bust myths (and the person who wrote it is an epidemiologist, and well-informed, so it really does).
seanmullen.com/covidcompete...
seanmullen.com/covidcompete...
September 15, 2025 at 8:37 PM
Try taking the COVID competency exam yourself, and share it around! Great way to bust myths (and the person who wrote it is an epidemiologist, and well-informed, so it really does).
seanmullen.com/covidcompete...
seanmullen.com/covidcompete...
Reposted by Ashley Hultman
Ayrshire Post and Troon Herald, Scotland, 12th September 1986. Thirty-nine years ago today.
"Exercise should never be undertaken where M.E. is suspected as this worsens all symptoms". #myalgicencephalomyelitis
"Exercise should never be undertaken where M.E. is suspected as this worsens all symptoms". #myalgicencephalomyelitis
September 12, 2025 at 7:25 PM
Ayrshire Post and Troon Herald, Scotland, 12th September 1986. Thirty-nine years ago today.
"Exercise should never be undertaken where M.E. is suspected as this worsens all symptoms". #myalgicencephalomyelitis
"Exercise should never be undertaken where M.E. is suspected as this worsens all symptoms". #myalgicencephalomyelitis
Reposted by Ashley Hultman
Review September 11, 2025
A Perspective on the Role of Metformin in Treating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID
David FinebergAlain MoreauElena K. Schneider-Futschik*Christopher W. Armstrong
#ME/CFS #Metformin
A Perspective on the Role of Metformin in Treating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID
David FinebergAlain MoreauElena K. Schneider-Futschik*Christopher W. Armstrong
#ME/CFS #Metformin
A Perspective on the Role of Metformin in Treating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID (LC) are increasingly recognized as debilitating postinfectious conditions that impact both individuals and society. Recent r...
pubs.acs.org
September 13, 2025 at 12:30 PM
Review September 11, 2025
A Perspective on the Role of Metformin in Treating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID
David FinebergAlain MoreauElena K. Schneider-Futschik*Christopher W. Armstrong
#ME/CFS #Metformin
A Perspective on the Role of Metformin in Treating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID
David FinebergAlain MoreauElena K. Schneider-Futschik*Christopher W. Armstrong
#ME/CFS #Metformin
Reposted by Ashley Hultman
Turns out that "Ableism is greater in the medical profession than in wider society," as "a lack of disability and neurodiversity awareness, coupled with discrimination & stigma, can significantly impact disabled doctors' lives and careers." New research:
www.healthcare-management.uk/medical-prof...
www.healthcare-management.uk/medical-prof...
Medical profession 'more ableist' than wider society
Interim results from a BMA survey, of more than 800 disabled and neurodivergent doctors and medical students, shows that a lack of support has driven 53% of respondents...
www.healthcare-management.uk
September 12, 2025 at 11:11 PM
Turns out that "Ableism is greater in the medical profession than in wider society," as "a lack of disability and neurodiversity awareness, coupled with discrimination & stigma, can significantly impact disabled doctors' lives and careers." New research:
www.healthcare-management.uk/medical-prof...
www.healthcare-management.uk/medical-prof...
Reposted by Ashley Hultman
UW Medicine: 'Long COVID has impact on Latino communities'
'Researchers found nearly half of Latino patients surveyed reported chronic symptoms, with women and middle-age people most affected'
'“We need more research. Clearly, we need better treatment'
newsroom.uw.edu/video-librar...
'Researchers found nearly half of Latino patients surveyed reported chronic symptoms, with women and middle-age people most affected'
'“We need more research. Clearly, we need better treatment'
newsroom.uw.edu/video-librar...
Long COVID has impact on Latino communities - UW Medicine | Newsroom
newsroom.uw.edu
September 8, 2025 at 9:13 PM
UW Medicine: 'Long COVID has impact on Latino communities'
'Researchers found nearly half of Latino patients surveyed reported chronic symptoms, with women and middle-age people most affected'
'“We need more research. Clearly, we need better treatment'
newsroom.uw.edu/video-librar...
'Researchers found nearly half of Latino patients surveyed reported chronic symptoms, with women and middle-age people most affected'
'“We need more research. Clearly, we need better treatment'
newsroom.uw.edu/video-librar...
Reposted by Ashley Hultman
From the US:
The Role of Neuroinflammation in Post-Exertional Malaise Among Chronic Multisymptom Illness
asset.library.wisc.edu/1711.dl/MPB4...
Screenshot from latest Science for ME weekly update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid
The Role of Neuroinflammation in Post-Exertional Malaise Among Chronic Multisymptom Illness
asset.library.wisc.edu/1711.dl/MPB4...
Screenshot from latest Science for ME weekly update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid
September 9, 2025 at 12:54 AM
From the US:
The Role of Neuroinflammation in Post-Exertional Malaise Among Chronic Multisymptom Illness
asset.library.wisc.edu/1711.dl/MPB4...
Screenshot from latest Science for ME weekly update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid
The Role of Neuroinflammation in Post-Exertional Malaise Among Chronic Multisymptom Illness
asset.library.wisc.edu/1711.dl/MPB4...
Screenshot from latest Science for ME weekly update
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid
Reposted by Ashley Hultman
These numbers are horrifying. And this makes me wonder how bad it has to get before we do something about this.
“Outside the US, a systematic review of long COVID’s impact on the National Health System out of the UK found that 18% of healthcare workers were out of work due to the condition. “
“Outside the US, a systematic review of long COVID’s impact on the National Health System out of the UK found that 18% of healthcare workers were out of work due to the condition. “
September 7, 2025 at 3:08 PM
These numbers are horrifying. And this makes me wonder how bad it has to get before we do something about this.
“Outside the US, a systematic review of long COVID’s impact on the National Health System out of the UK found that 18% of healthcare workers were out of work due to the condition. “
“Outside the US, a systematic review of long COVID’s impact on the National Health System out of the UK found that 18% of healthcare workers were out of work due to the condition. “
Reposted by Ashley Hultman
Like so many of RFK Jr's claims, this is so breathtakingly, provably false that your brain short-circuits trying to counter.
Fields with enormous progress in the past 40 years:
The Human Genome Project
AIDS/HIV treatments
mRNA vaccines
MRI & other imaging tech
Minimally-invasive surgeries
Fields with enormous progress in the past 40 years:
The Human Genome Project
AIDS/HIV treatments
mRNA vaccines
MRI & other imaging tech
Minimally-invasive surgeries
RFK Jr. claimed that there have been no successes coming from HHS in the past 40 years.
I beg to differ.
Do wr have more work to do? ABSOLUTELY.
But everything RFK Jr. is doing will halt that progress.
I beg to differ.
Do wr have more work to do? ABSOLUTELY.
But everything RFK Jr. is doing will halt that progress.
September 7, 2025 at 5:55 PM
Like so many of RFK Jr's claims, this is so breathtakingly, provably false that your brain short-circuits trying to counter.
Fields with enormous progress in the past 40 years:
The Human Genome Project
AIDS/HIV treatments
mRNA vaccines
MRI & other imaging tech
Minimally-invasive surgeries
Fields with enormous progress in the past 40 years:
The Human Genome Project
AIDS/HIV treatments
mRNA vaccines
MRI & other imaging tech
Minimally-invasive surgeries
Reposted by Ashley Hultman
WelcoME to my PEMTalk where I try to walk you through the basics of #PEM, first and foremost, that it is not equal to fatigue.
#ME/CFS #PEM #pwME #PEM≠fatigue
#ME/CFS #PEM #pwME #PEM≠fatigue
#PEM is a very specific physiological abnormal reaction to exertion of any kind, not only physical. The difficulty in recognizing and defining it is due to a longstanding misconception that equals it to fatigue. The core difference between the two is qualitative & quantitative.
September 7, 2025 at 4:15 AM
WelcoME to my PEMTalk where I try to walk you through the basics of #PEM, first and foremost, that it is not equal to fatigue.
#ME/CFS #PEM #pwME #PEM≠fatigue
#ME/CFS #PEM #pwME #PEM≠fatigue
Reposted by Ashley Hultman
LIFT Trial - here's the preprint for the trial www.researchsquare.com/article/rs-5...
September 5, 2025 at 6:55 PM
LIFT Trial - here's the preprint for the trial www.researchsquare.com/article/rs-5...
Reposted by Ashley Hultman
Systrom is now up:
"Everything we have found in ME we have found in Long COVID, so we may slip up and use them interchangeably."
"Everything we have found in ME we have found in Long COVID, so we may slip up and use them interchangeably."
September 5, 2025 at 6:38 PM
Systrom is now up:
"Everything we have found in ME we have found in Long COVID, so we may slip up and use them interchangeably."
"Everything we have found in ME we have found in Long COVID, so we may slip up and use them interchangeably."