Ash
@ash27.bsky.social
Reposted by Ash
When you have a better day, and you're scared to do anything with the energy/clarity because you know how fast you can lose it and it just feels so good to *feel* more alive, you're happy just thinking and feeling. You truly know how sacred life is, and how relentless ME/CFS is.
#MECFS
#MECFS
December 7, 2025 at 10:19 PM
When you have a better day, and you're scared to do anything with the energy/clarity because you know how fast you can lose it and it just feels so good to *feel* more alive, you're happy just thinking and feeling. You truly know how sacred life is, and how relentless ME/CFS is.
#MECFS
#MECFS
Reposted by Ash
TIL about a memorial ceremony in Iceland in 2019 to mark the end of a glacier, changing the place name from Okjökull to Ok (jökull = glacier). Uncompromising wording on the bronze plaque:
"This is to acknowledge that we know what is happening and what needs to be done. Only you know if we did it".
"This is to acknowledge that we know what is happening and what needs to be done. Only you know if we did it".
December 7, 2025 at 5:17 PM
TIL about a memorial ceremony in Iceland in 2019 to mark the end of a glacier, changing the place name from Okjökull to Ok (jökull = glacier). Uncompromising wording on the bronze plaque:
"This is to acknowledge that we know what is happening and what needs to be done. Only you know if we did it".
"This is to acknowledge that we know what is happening and what needs to be done. Only you know if we did it".
Reposted by Ash
Foot in mouth disease - in conjunction with ME/CFS
Yesterday I offended someone here, who then blocked me, due to crossed wires. When I'm crashed, I find it hard to communicate - nuance, tone, clarity. I hate this and do all I can to avoid it.
So, my apologies in advance, it's always accidental!
Yesterday I offended someone here, who then blocked me, due to crossed wires. When I'm crashed, I find it hard to communicate - nuance, tone, clarity. I hate this and do all I can to avoid it.
So, my apologies in advance, it's always accidental!
December 7, 2025 at 11:20 AM
Foot in mouth disease - in conjunction with ME/CFS
Yesterday I offended someone here, who then blocked me, due to crossed wires. When I'm crashed, I find it hard to communicate - nuance, tone, clarity. I hate this and do all I can to avoid it.
So, my apologies in advance, it's always accidental!
Yesterday I offended someone here, who then blocked me, due to crossed wires. When I'm crashed, I find it hard to communicate - nuance, tone, clarity. I hate this and do all I can to avoid it.
So, my apologies in advance, it's always accidental!
Reposted by Ash
Read this: www.wgbh.org/news/local/2...
December 7, 2025 at 12:22 AM
Read this: www.wgbh.org/news/local/2...
Reposted by Ash
Carney is looking more like Stephen Harper every day of this government.
NEW: Hundreds of public servants are being let go at federal agencies that monitor climate risks, @natashabulowski.bsky.social reports
Cuts at Natural Resources Canada ‘decimate’ wildfire and flood tracking capacity, unions warn
Carney's cuts have hit Natural Resources Canada, causing uproar from public sector unions warning the layoffs will hurt Canada's ability to respond to cliamte change and protect Canadians from wildfir...
www.nationalobserver.com
December 6, 2025 at 1:45 AM
Carney is looking more like Stephen Harper every day of this government.
Reposted by Ash
My latest -- the bigger story about the Canadian-built armoured vehicle purchase by ICE is actually how the war abroad and the war at home are, primarily, economic wars.
noraloreto.substack.com/p/canadian-b...
noraloreto.substack.com/p/canadian-b...
Canadian-built machines of war
“As we move from fighting the war to fighting the peace, I think we really have to see this as an opportunity for an economic renaissance" - Chrystia Freeland
noraloreto.substack.com
December 4, 2025 at 8:45 PM
My latest -- the bigger story about the Canadian-built armoured vehicle purchase by ICE is actually how the war abroad and the war at home are, primarily, economic wars.
noraloreto.substack.com/p/canadian-b...
noraloreto.substack.com/p/canadian-b...
Reposted by Ash
At the "kicking and screaming internally" state of a mild/moderate crash.
When you are bored and frustrated and a) need to do stuff; b) KNOW that doing stuff is something you will DEEPLY regret.
When you are bored and frustrated and a) need to do stuff; b) KNOW that doing stuff is something you will DEEPLY regret.
December 4, 2025 at 8:49 PM
At the "kicking and screaming internally" state of a mild/moderate crash.
When you are bored and frustrated and a) need to do stuff; b) KNOW that doing stuff is something you will DEEPLY regret.
When you are bored and frustrated and a) need to do stuff; b) KNOW that doing stuff is something you will DEEPLY regret.
Reposted by Ash
free advice: don't get mad at a sick person w/ an unreliable body for not being able to do something
the sick person is probs already pretty mad at themselves (really at their body, but internalized ableism is a helluva drug) and managing a mountain of grief from all the other things they can't do
the sick person is probs already pretty mad at themselves (really at their body, but internalized ableism is a helluva drug) and managing a mountain of grief from all the other things they can't do
December 3, 2025 at 9:00 PM
free advice: don't get mad at a sick person w/ an unreliable body for not being able to do something
the sick person is probs already pretty mad at themselves (really at their body, but internalized ableism is a helluva drug) and managing a mountain of grief from all the other things they can't do
the sick person is probs already pretty mad at themselves (really at their body, but internalized ableism is a helluva drug) and managing a mountain of grief from all the other things they can't do
Reposted by Ash
JFC. Some of us never forgot the sale of armoured vehicles to Saudi Arabia under Harper/Trudeau. Not much has changed.
Ladies and gentlemen, make sure to keep your elbows firmly up while inside the vehicles bound for a country that's going to use them to illegally kidnap innocent men, women, and children share.google/ANhrgIX5WcIm...
ICE ordering fleet of 20 armoured vehicles from Canadian firm
U.S. Immigration and Customs Enforcement has earmarked millions of dollars for a bulk order for 20 armoured vehicles from Canadian defence manufacturer Roshel that are built to resist bullets and bomb...
share.google
December 3, 2025 at 3:53 PM
JFC. Some of us never forgot the sale of armoured vehicles to Saudi Arabia under Harper/Trudeau. Not much has changed.
Reposted by Ash
Utterly heartbreaking to hear that 20yr old #pwME Ella Copley has died
Deepest condolences to her incredible Mother Jo who couldnt have fought harder for her
@tessamunt.bsky.social @joplatt.bsky.social @ashleydaltonmp.bsky.social unless measures are taken urgently this will continue to happen 2 pwME
Deepest condolences to her incredible Mother Jo who couldnt have fought harder for her
@tessamunt.bsky.social @joplatt.bsky.social @ashleydaltonmp.bsky.social unless measures are taken urgently this will continue to happen 2 pwME
December 2, 2025 at 4:11 PM
Utterly heartbreaking to hear that 20yr old #pwME Ella Copley has died
Deepest condolences to her incredible Mother Jo who couldnt have fought harder for her
@tessamunt.bsky.social @joplatt.bsky.social @ashleydaltonmp.bsky.social unless measures are taken urgently this will continue to happen 2 pwME
Deepest condolences to her incredible Mother Jo who couldnt have fought harder for her
@tessamunt.bsky.social @joplatt.bsky.social @ashleydaltonmp.bsky.social unless measures are taken urgently this will continue to happen 2 pwME
Reposted by Ash
Yes, Carney is better than Poilievre. Influenza is better than COVID. But that doesn't make influenza awesome.
December 1, 2025 at 10:43 PM
Yes, Carney is better than Poilievre. Influenza is better than COVID. But that doesn't make influenza awesome.
Reposted by Ash
It was so nice to really "talk" to my best friend & caregiver via this interview during the #PAISprotest yesterday.
He's in my house on a weekly basis, but I haven't properly spoken to him in a decade maybe? We also rarely "see" each other. Thankful! ❤️
youtu.be/3YVKu0s0r2s?...
He's in my house on a weekly basis, but I haven't properly spoken to him in a decade maybe? We also rarely "see" each other. Thankful! ❤️
youtu.be/3YVKu0s0r2s?...
December 1, 2025
YouTube video by Anil about ME
youtu.be
December 1, 2025 at 8:38 AM
It was so nice to really "talk" to my best friend & caregiver via this interview during the #PAISprotest yesterday.
He's in my house on a weekly basis, but I haven't properly spoken to him in a decade maybe? We also rarely "see" each other. Thankful! ❤️
youtu.be/3YVKu0s0r2s?...
He's in my house on a weekly basis, but I haven't properly spoken to him in a decade maybe? We also rarely "see" each other. Thankful! ❤️
youtu.be/3YVKu0s0r2s?...
Reposted by Ash
Today is #InternationalDayOfPalestinianSolidarity and for someone of us, solidarity is not just a word. It's seeing Palestinians as beloved members of our community, even family, regardless of our ancestry.
Share @monahijazi.bsky.social's post, you're already here.
Donate whatever you can. Now.
Share @monahijazi.bsky.social's post, you're already here.
Donate whatever you can. Now.
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
Donate ⏬️
Donate ⏬️
Donate ⏬️
chuffed.org/project/mona...
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
Donate ⏬️
Donate ⏬️
Donate ⏬️
chuffed.org/project/mona...
November 29, 2025 at 6:01 PM
Today is #InternationalDayOfPalestinianSolidarity and for someone of us, solidarity is not just a word. It's seeing Palestinians as beloved members of our community, even family, regardless of our ancestry.
Share @monahijazi.bsky.social's post, you're already here.
Donate whatever you can. Now.
Share @monahijazi.bsky.social's post, you're already here.
Donate whatever you can. Now.
Reposted by Ash
“UNRWA staff work with great commitment, serving as the first line of support in delivering services," says Najwa, an UNRWA Field Nursing Services Officer.
#UNRWAworks to prevent and respond to gender-based violence in the occupied West Bank including East Jerusalem.
#16Days
#UNRWAworks to prevent and respond to gender-based violence in the occupied West Bank including East Jerusalem.
#16Days
November 30, 2025 at 11:00 AM
“UNRWA staff work with great commitment, serving as the first line of support in delivering services," says Najwa, an UNRWA Field Nursing Services Officer.
#UNRWAworks to prevent and respond to gender-based violence in the occupied West Bank including East Jerusalem.
#16Days
#UNRWAworks to prevent and respond to gender-based violence in the occupied West Bank including East Jerusalem.
#16Days
Reposted by Ash
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
Donate ⏬️
Donate ⏬️
Donate ⏬️
chuffed.org/project/mona...
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
Donate ⏬️
Donate ⏬️
Donate ⏬️
chuffed.org/project/mona...
November 29, 2025 at 4:46 PM
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
Donate ⏬️
Donate ⏬️
Donate ⏬️
chuffed.org/project/mona...
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
𝙍𝙞𝙜𝙝𝙩 𝙣𝙤𝙬, 𝙖 𝙧𝙚𝙥𝙤𝙨𝙩 𝙞𝙨 𝙡𝙞𝙠𝙚 𝙖 𝙝𝙪𝙜 , 𝙖 𝙜𝙚𝙣𝙩𝙡𝙚 𝙝𝙖𝙣𝙙 𝙩𝙤 𝙡𝙞𝙛𝙩 𝙢𝙚 𝙪𝙥 🤍
Donate ⏬️
Donate ⏬️
Donate ⏬️
chuffed.org/project/mona...
Reposted by Ash
November 28, 2025 at 3:15 AM
Reposted by Ash
With the beginning of winter, at night, we feel cold.
We need to buy winter clothes. The prices, as you can see, are very high. I have 3 children.
I'm Mona Hjazi from Gaza , mother of 3 children...
To donate to me and my children on our Chuffed ⬇️
chuffed.org/project/mona...
We need to buy winter clothes. The prices, as you can see, are very high. I have 3 children.
I'm Mona Hjazi from Gaza , mother of 3 children...
To donate to me and my children on our Chuffed ⬇️
chuffed.org/project/mona...
November 28, 2025 at 2:56 AM
With the beginning of winter, at night, we feel cold.
We need to buy winter clothes. The prices, as you can see, are very high. I have 3 children.
I'm Mona Hjazi from Gaza , mother of 3 children...
To donate to me and my children on our Chuffed ⬇️
chuffed.org/project/mona...
We need to buy winter clothes. The prices, as you can see, are very high. I have 3 children.
I'm Mona Hjazi from Gaza , mother of 3 children...
To donate to me and my children on our Chuffed ⬇️
chuffed.org/project/mona...
Reposted by Ash
Stoppard's writing, often philosophical or scientific but consistently funny, gave rise to the term Stoppardian.
Tom Stoppard, celebrated British playwright, dies aged 88
Stoppard's writing, often philosophical or scientific but consistently funny, gave rise to the term Stoppardian.
bit.ly
November 29, 2025 at 7:30 PM
Stoppard's writing, often philosophical or scientific but consistently funny, gave rise to the term Stoppardian.
Reposted by Ash
All chess is 4D chess that's why they have that time clock thingy.
November 28, 2025 at 6:56 PM
All chess is 4D chess that's why they have that time clock thingy.
Reposted by Ash
I am speechless
November 28, 2025 at 1:47 PM
I am speechless
Reposted by Ash
"Study identified altered signal intensity, abnormal tissue microstructure, and imbalanced neurochemicals in long COVID and COVID-19 recovered healthy controls." [versus healthy controls who had not had COVID]. Published this week www.sciencedirect.com/science/arti...
Altered Brain Tissue Microstructure and Neurochemical Profiles in Long COVID and Recovered COVID-19 Individuals: A multimodal MRI Study
Diverse neurological symptoms are experienced by long COVID and COVID-19 recovered individuals. However, the long-term effects of SARS-CoV-2 in the br…
www.sciencedirect.com
November 28, 2025 at 8:47 PM
"Study identified altered signal intensity, abnormal tissue microstructure, and imbalanced neurochemicals in long COVID and COVID-19 recovered healthy controls." [versus healthy controls who had not had COVID]. Published this week www.sciencedirect.com/science/arti...
Reposted by Ash
Reposted by Ash
You know what, I'm just gonna re-up this post
November 24, 2025 at 3:04 PM
You know what, I'm just gonna re-up this post
Reposted by Ash
“Genetics pioneer Ron Davis says he’s hopeful that revelations from his and other scientists’ research on myalgic encephalomyelitis, or ME/CFS, will move treatments beyond trial-and-error solutions that manage symptoms to instead address the root cause.”
👉 ow.ly/igzM50XwzH2.
👉 ow.ly/igzM50XwzH2.
November 24, 2025 at 3:53 PM
“Genetics pioneer Ron Davis says he’s hopeful that revelations from his and other scientists’ research on myalgic encephalomyelitis, or ME/CFS, will move treatments beyond trial-and-error solutions that manage symptoms to instead address the root cause.”
👉 ow.ly/igzM50XwzH2.
👉 ow.ly/igzM50XwzH2.