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somethingchronic.bsky.social
Something Chronic
@somethingchronic.bsky.social
1.1K followers 1.9K following 970 posts
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
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somethingchronic.bsky.social
Something Chronic @somethingchronic.bsky.social · Dec 25
1 of 9

My #SevereME Christmas

* All day mostly alone
* No TV, music or twinkly lights due to extreme sensory sensitivities
* I won’t be able to see anyone except my husband (also my caregiver) as I don’t have enough energy to interact with them. We’ll mostly sign for the things I need …
Reposted by Something Chronic
halcionandon.bsky.social
Safe housing needed asap. Situation here is worse everyday.

Someone must have a spare room & some kindness?
Can pay $250wk board.
Can provide
meals.

My Story:
#SevereME patient Anna is still trapped in life-threatening #domesticabuse

#UrgentNeed #MutualAid

www.thecanary.co/global/world...
Australia's state and services are trapping a woman living with severe ME/CFS in domestic abuse
Woman living with severe ME/CFS in Australia trapped in a cycle of violence from domestic abusers to the punitive state & medical services.
www.thecanary.co
January 31, 2026 at 9:18 PM
Reposted by Something Chronic
phillyhart4.bsky.social
Please consider helping Anna, who is going through some pretty horrific stuff. She's provided details of how to help in her post, below.

www.thecanary.co/global/world...
January 22, 2026 at 2:43 PM
Reposted by Something Chronic
noh8campaign.bsky.social
"Freedom is having the right to live as you choose, not the right to choose how everyone else lives." - James Van Der Beek, Rest In Peace #NOH8
February 11, 2026 at 8:52 PM
Reposted by Something Chronic
rachelcdailey.bsky.social
Reform's Gorton and Denton hopeful Matt Goodwin thinks people who don't have children should pay extra tax.

As an infertile woman, that shows me how much Reform really hates women

Me for @thecanaryuk.bsky.social www.thecanary.co/uk/analysis/...
As an infertile woman Matt Goodwin's childess tax shows how much Reform hates women
It sounds like something out of The Handmaid's Tale, but Reform's Matt Goodwin wants people who don't have kids to pay more tax
www.thecanary.co
February 9, 2026 at 6:19 PM
Reposted by Something Chronic
emilyesfraser.bsky.social
Go submit your testimony to the House right now! And again (or if you miss today’s House deadline) to the Senate on Tuesday! You don’t need to live in Maryland—the idea is to show this is a global problem/global market. Here’s how to submit:

docs.google.com/document/d/1...
February 6, 2026 at 7:32 PM
Reposted by Something Chronic
goodlawproject.org
The transphobic barrister Sarah Phillimore is threatening to sue me for defamation - and we've published our response to her Letter Before Action.
Barrister accused of transphobia threatens Jolyon Maugham for defamation
Last summer, Good Law Project accused barrister Sarah Phillimore of harassment and transphobia. Now, the barrister is suing its founder over the allegations
goodlawproject.org
January 30, 2026 at 3:01 PM
Reposted by Something Chronic
esqueer.net
Kansas just passed a monstrous bill enabling criminal penalties and vigilante lawsuits for trans people using the bathroom according to their gender identity and requires them to surrender their current drivers licenses and birth certificates if it does not match their sex assigned at birth.
January 28, 2026 at 11:44 PM
Reposted by Something Chronic
georgemonbiot.bsky.social
Please spread this far and wide, as stories don't get much bigger than this. When the government blocks even the intelligence services from telling us we're heading for environmental catastrophe, you know we have a problem. A very big problem.
Thank you.
www.theguardian.com/commentisfre...
The UK government didn't want you to see this report on ecosystem collapse. I'm not surprised | George Monbiot
It took an FOI request to bring this national security assessment to light. For ‘doomsayers’ like us, it is the ultimate vindication, says Guardian columnist George Monbiot
www.theguardian.com
January 28, 2026 at 7:18 AM
Reposted by Something Chronic
lucibee.bsky.social
Latest update from the Gordon family about Karen Gordon - 15 October 2025

Karen has been in Conquest Hospital for nearly 2 years now.

All because the NHS do not have a scooby about how to treat very severe ME. 😩

#Justice4ME #SevereME

www.change.org/p/save-karen...
Karen update: Mental capacity assessment & response from East Sussex NHS Trust’s solicitors.
Photo: August 2025 - Karen with her new PICC line 4 days after it had been put in. Hello Everyone Karen has now been in Conquest hospital for 1 year and 9 months. Karen is continuing to have TPN (IV f...
www.change.org
October 27, 2025 at 9:56 AM
Reposted by Something Chronic
murtoz.bsky.social
This is your reminder Savannah needs our help to stop the NHS starving her to death.

Please email the hospital she is in. Details in post below

www.thecanary.co/uk/analysis/...

#mecfs #pwME #GreatestMEdicalScandal
January 25, 2026 at 10:52 AM
somethingchronic.bsky.social
TW:
More deaths of #pwME 💙

@ashleydaltonmp.bsky.social
@wesstreeting.bsky.social
What are you doing about the decades-long human rights crisis of #SevereME? Why are we expendable?

@tessamunt.bsky.social
@davetuller1.bsky.social
@georgemonbiot.bsky.social
#JusticeForME #GreatestMEdicalScandal
chromatowski.bsky.social C.H. Romatowski @chromatowski.bsky.social · 25d
Learned of another death of a friend with ME/CFS, this time someone I’d known for six years.

Very grateful to all of you who support work to relieve this terrible suffering.
Over the last months and particularly one week Paula deteriorated very quickly. Talking became harder ...and Paula loved to talk.Feeding more difficult. Eating tiring needing longer breaks between each teaspoon. It took 3 hours to finish a small bowel of puree. We stopped watching short funny shows together. Forced into a bent over position, no longer getting to a window. She had loved standing with support briefly at the window, smelling fresh air, watching Hurley play in the garden.
January 28, 2026 at 10:22 PM
Reposted by Something Chronic
chromatowski.bsky.social
Learned of another death of a friend with ME/CFS, this time someone I’d known for six years.

Very grateful to all of you who support work to relieve this terrible suffering.
Over the last months and particularly one week Paula deteriorated very quickly. Talking became harder ...and Paula loved to talk.Feeding more difficult. Eating tiring needing longer breaks between each teaspoon. It took 3 hours to finish a small bowel of puree. We stopped watching short funny shows together. Forced into a bent over position, no longer getting to a window. She had loved standing with support briefly at the window, smelling fresh air, watching Hurley play in the garden.
January 20, 2026 at 12:57 AM
Reposted by Something Chronic
halcionandon.bsky.social
‼️Who has big following?
Please tweet me to them!

I need a safe place to live in #Melbourne
🚨Please help me escape #abuse/ #neglect / #CoerciveControl / #DV

#MutualAidMonday
#MutualAidAustralia
#HelpFolksLive #HelpSky #FundSky #MutualAidVoid #PWD #MARequest
💕💸🏡🏠🥺

See below 👇
phonakins.com 💜 phonakins 🍉 @phonakins.com · 28d
Anna needs funds to escape her abusive home. First goal of $5k was met but will need more

she also needs a room in MELBOURNE AUSTRALIA and advocacy down there

chuffed.org/project/1619...
### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out!
🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!
chuffed.org
January 19, 2026 at 6:09 AM
Reposted by Something Chronic
halcionandon.bsky.social
Please help me escape abuse.
Anything helps.
Info in Chuffed link.

💸Crowdfund: www.chuffed.org/project/1619...
☕️BMaC: buymeacoffee.com/Halcionandon
🎁Amazon: www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon

Please share.

#MutualAidAustralia
#MutualAid #HelpSky #MutualAidMonday
### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out!
🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!
chuffed.org
January 5, 2026 at 1:12 AM
Reposted by Something Chronic
rachelcdailey.bsky.social
The DWP has a secret team planting benefit fraud propaganda in the mainstream media

EXCELLENT investigation by my @thecanaryuk.bsky.social
colleague Hannah Sharland www.thecanary.co/uk/analysis/...
EXCLUSIVE: the DWP has a secret team planting benefit fraud propaganda in the mainstream media
In an exclusive report, the Canary reveals that the DWP has internal guidance on placing propaganda in the MSM - including doxing claimants
www.thecanary.co
January 26, 2026 at 7:44 PM
Reposted by Something Chronic
katybrc.bsky.social
"An NHS hospital is starving a severe #ME patient and has now stopped giving her fluids"
@georgemonbiot.bsky.social @tessamunt.bsky.social @joplatt.bsky.social @ashleydaltonmp.bsky.social @wesstreeting-mp.bsky.social

#ME #pwME #MedSky #MEAwareness
www.thecanary.co/uk/analysis/...
An NHS hospital is starving a severe ME patient and has now stopped giving her fluids
Savannah has now lived with severe ME for several years - but the Queen Elizabeth Hospital in South London is putting her life at risk
www.thecanary.co
January 23, 2026 at 12:01 PM
Reposted by Something Chronic
richardvallee.bsky.social
Governments, public health and medical authorities know much of this is caused by COVID & other infections, that a lot of this is Long Covid, which they choose to do nothing about and cover up.

They know it. They're lying about not knowing why. They're doing what the tobacco industry did.
January 26, 2026 at 4:00 PM
Reposted by Something Chronic
nelehelena.bsky.social
Two years today since my friend @dutchlauren.bsky.social passed away 🕯💙

Going to eat some nuggets (which she loved) and will try to watch one of her favorite movies.

#severeME
#reMEmberLauren
January 27, 2026 at 6:55 AM
Reposted by Something Chronic
anilvanderzee.bsky.social
Savannah is asking for anyone who can to email the chief medical director at the hospital. The Canary has drafted a template email, which can be sent as is, or adapted.

Send an email to stop this abuse & improve care for Savannah before it's too late!

#severeME

www.thecanary.co/uk/analysis/...
An NHS hospital is starving a severe ME patient and has now stopped giving her fluids
Savannah has now lived with severe ME for several years - but the Queen Elizabeth Hospital in South London is putting her life at risk
www.thecanary.co
January 23, 2026 at 2:21 PM
Reposted by Something Chronic
cvcev.bsky.social
🚨'Can You Keep a Secret?'. The BBC response is below in full.

In short, it essentially says:
“It’s farcical, sorry we offended you, we’ve noted your complaint.”

BUT if you (like us) aren't unhappy with this response, here is our next move... 🧵

1/
Thank you for contacting us regarding episode one of 'Can You Keep a Secret?' 'Can You Keep a Secret?' is an adult, farcical and offbeat comedy that follows a couple, William and Debbie, who commit insurance fraud after William takes too much of his medication, is left unconscious, and is mistakenly declared dead. There was never any intention to make light of infection control or to trivialise the real challenges faced by those affected by Covid-19, including those who are clinically vulnerable. In the scene in question, their son Harry has just learned that his father is still alive, and William and Debbie explain how a series of mishaps and misunderstandings led to this predicament. One such misunderstanding involves a GP with severe health anxiety who mistakenly declares William dead after he fails to respond to her calling his name - a moment intended to serve the exaggerated, farcical tone of the series. That said we're sorry for any offence this may have caused you. We have shared your complaint with those responsible for the programme. Your comments have also been included in our complaints report and shared with senior BBC management. Thanks again for getting in touch.
January 21, 2026 at 10:47 PM
Reposted by Something Chronic
suey2y.bsky.social
Today's Post "Tell Your Story"
open.substack.com/pub/undercla...
Uncovered scandals, injustices, unlikely breakthroughs. I want to hear about them all.
Pls read RT and subscribe
Tell Your Story
A chance to be heard
open.substack.com
January 16, 2026 at 10:17 AM
Reposted by Something Chronic
rummlie.bsky.social
Also, I fucking hate the way Starmer only values 'working people', and everyone else is disposable.

Quite the choice when he's fence-sitting in the face of US fascist aggression, never mind the homegrown variety.
January 19, 2026 at 10:15 AM
Reposted by Something Chronic
drelke.bsky.social
@georgemonbiot.bsky.social
@davetuller1.bsky.social

An academic has been intimidated into downplaying her views on CBT and GET by Wessely threatening to sue. The book is out in the world and will influence readers. We need this story to be more widely known.

Can you help?

#LongCovid
#ME
emilyesfraser.bsky.social emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 26d
The journalist who coined the phrase “the #GreatestMEdicalScandal of the 21st century” got interested in ME after this same psych lobby accused him of spreading Long Covid by writing about it. He was so taken aback by their absurdity that he investigated further:

www.theguardian.com/commentisfre...
January 19, 2026 at 7:56 AM
Reposted by Something Chronic
me-cfs.bsky.social
Apparently Wessely threatening to sue people writing on ME/CFS.

I imagine this is the tip of the iceberg.
I hope people who this happens to come out.

Because this is exactly the kind of behind the scenes stuff we know happens but are difficult to gather evidence on.
emendenhall.bsky.social Emily Mendenhall @emendenhall.bsky.social · 26d
I don't think the PACE trial was robust and don't argue that. I'm so sorry you are reading the book this way. I have several people with ME read the book. Let's connect off line; Wessely read a version of the writing & threatened to sue me if it didn't include the other side. Happy to talk offline.
January 18, 2026 at 7:09 PM
Reposted by Something Chronic
batemanhornecenter.bsky.social
Today, the CEOs of @solveme.bsky.social, @meactnet.bsky.social, @openmedf.bsky.social, and @batemanhornecenter.bsky.social met to align, collaborate, and strengthen how we support one another’s work.

Progress isn’t always visible, but it is happening. And we’re doing it together.

#UnitedForME
Six individuals in a virtual meeting. Text reads: "Strong leadership creates strong results." Logos of Bateman Horne Center, OMF, Solve M.E., and #MEAction displayed below.
January 14, 2026 at 10:42 PM