Something Chronic
@somethingchronic.bsky.social
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Pinned
1 of 9
My #SevereME Christmas
* All day mostly alone
* No TV, music or twinkly lights due to extreme sensory sensitivities
* I won’t be able to see anyone except my husband (also my caregiver) as I don’t have enough energy to interact with them. We’ll mostly sign for the things I need …
My #SevereME Christmas
* All day mostly alone
* No TV, music or twinkly lights due to extreme sensory sensitivities
* I won’t be able to see anyone except my husband (also my caregiver) as I don’t have enough energy to interact with them. We’ll mostly sign for the things I need …
Reposted by Something Chronic
German public radio station Deutschlandfunk has published a 3700-word article & radio piece on how #MECFS & #LongCovid impact life & autonomy. Article is titled: "Die Grenzen der Autonomie Wie Post-Covid & ME/CFS das Leben verändern”
Translation
www-deutschlandfunk-de.translate.goog/wie-postcovi...
Translation
www-deutschlandfunk-de.translate.goog/wie-postcovi...
Leben mit Post-Covid und ME/CFS: Wie sich der Umgang mit Trauer, Verlusten und Grenzen wandelt
Schmerzen und Reizüberflutung: ME/CFS ist eine Ansammlung trauriger Superlative - ein Leben in einem permanenten Krankheitsgefühl.
www-deutschlandfunk-de.translate.goog
December 29, 2025 at 1:15 PM
German public radio station Deutschlandfunk has published a 3700-word article & radio piece on how #MECFS & #LongCovid impact life & autonomy. Article is titled: "Die Grenzen der Autonomie Wie Post-Covid & ME/CFS das Leben verändern”
Translation
www-deutschlandfunk-de.translate.goog/wie-postcovi...
Translation
www-deutschlandfunk-de.translate.goog/wie-postcovi...
Reposted by Something Chronic
December 29, 2025 at 1:16 PM
Reposted by Something Chronic
Next time you see an article quoting a transphobe from one of the fauxminist ‘gender critical’ transphobic hate groups - email/ tag the journalist and ask them why they’ve not asked @nionwomen.bsky.social for a quote - as they’re MUCH more representative of UK women!
notinourname.org.uk
notinourname.org.uk
Home - Not in our name
Not In our Name: Women in support of the trans+community
notinourname.org.uk
December 29, 2025 at 11:03 AM
Next time you see an article quoting a transphobe from one of the fauxminist ‘gender critical’ transphobic hate groups - email/ tag the journalist and ask them why they’ve not asked @nionwomen.bsky.social for a quote - as they’re MUCH more representative of UK women!
notinourname.org.uk
notinourname.org.uk
Reposted by Something Chronic
Peter Thiel’s Christmas party had an odd theme this year: “all things Britain.” (per NYT)
As Trump sunsets and backlash builds, expect a focus shift to the UK—where some see brighter possibilities for fascism,network states, and monarchies.
As Trump sunsets and backlash builds, expect a focus shift to the UK—where some see brighter possibilities for fascism,network states, and monarchies.
December 29, 2025 at 4:02 AM
Peter Thiel’s Christmas party had an odd theme this year: “all things Britain.” (per NYT)
As Trump sunsets and backlash builds, expect a focus shift to the UK—where some see brighter possibilities for fascism,network states, and monarchies.
As Trump sunsets and backlash builds, expect a focus shift to the UK—where some see brighter possibilities for fascism,network states, and monarchies.
Reposted by Something Chronic
GOOD NEWS! Researchers have shown Alzheimer’s disease can be REVERSED- not just prevented. Using a potent neuroprotective compound called P7C3-A20, they found RESTORING balance to a central cellular energy molecule (NAD+) not only PREVENTED disease features but REVERSED them, EVEN at late stages.
December 28, 2025 at 5:00 PM
GOOD NEWS! Researchers have shown Alzheimer’s disease can be REVERSED- not just prevented. Using a potent neuroprotective compound called P7C3-A20, they found RESTORING balance to a central cellular energy molecule (NAD+) not only PREVENTED disease features but REVERSED them, EVEN at late stages.
Reposted by Something Chronic
Day #395
Non-stop pro-Euro #protests in #Tbilisi #Georgia
#Regime continues to silence us, but... here we are!
#GeorgiaProtests
#terrorinGeorgia
Non-stop pro-Euro #protests in #Tbilisi #Georgia
#Regime continues to silence us, but... here we are!
#GeorgiaProtests
#terrorinGeorgia
December 27, 2025 at 5:17 PM
Day #395
Non-stop pro-Euro #protests in #Tbilisi #Georgia
#Regime continues to silence us, but... here we are!
#GeorgiaProtests
#terrorinGeorgia
Non-stop pro-Euro #protests in #Tbilisi #Georgia
#Regime continues to silence us, but... here we are!
#GeorgiaProtests
#terrorinGeorgia
Reposted by Something Chronic
I have worn a mask in public for over 5 years. My husband has had profound, life-changing long Covid for over 4 years, and now our kid does as well. I can’t imagine I will stop masking unless their circumstances change. And for what it’s worth I haven’t had even a cold for the last four+ years.
always strange to talk about but when i see everyone around me accepting sickness when i have been doing just one thing different while attending movies parties bars concerts flights…….i feel morally obligated to occasionally mention that wearing a mask has been a game changer. simple as that
December 28, 2025 at 1:23 AM
I have worn a mask in public for over 5 years. My husband has had profound, life-changing long Covid for over 4 years, and now our kid does as well. I can’t imagine I will stop masking unless their circumstances change. And for what it’s worth I haven’t had even a cold for the last four+ years.
Reposted by Something Chronic
Zuckerberg settles $8 billion lawsuit over Cambridge Analytica scandal, avoids testifying www.france24.com/en/americas/... @carolecadwalla.bsky.social
Zuckerberg settles $8 billion lawsuit over Cambridge Analytica scandal, avoids testifying
Mark Zuckerberg and current and former Meta executives agreed on Thursday to settle a $8 billion shareholder lawsuit alleging the company’s directors failed to prevent billions of dollars in fines and...
www.france24.com
December 27, 2025 at 10:31 PM
Zuckerberg settles $8 billion lawsuit over Cambridge Analytica scandal, avoids testifying www.france24.com/en/americas/... @carolecadwalla.bsky.social
Reposted by Something Chronic
Oh my goodness, this is such a lovely story www.bbc.com/news/article...
Cardiff couple invited man in for Christmas, he stayed for 45 years
An arrangement Rob and Dianne Parsons thought would last a few days ended up changing their lives.
www.bbc.com
December 25, 2025 at 10:12 PM
Oh my goodness, this is such a lovely story www.bbc.com/news/article...
Reposted by Something Chronic
📝 The one from Substack I’m most pleased with from 2025.
Primarily because people rarely make the comparison between Farage and Johnson, despite the fact they share the same brand of elitist, chaotic, egomaniac politics 👇🏻
Primarily because people rarely make the comparison between Farage and Johnson, despite the fact they share the same brand of elitist, chaotic, egomaniac politics 👇🏻
Farage will fall into the same trap as Boris Johnson
Farage’s populist insurgency will unravel, and it will bear the hallmarks of Johnson’s demise.
open.substack.com
December 27, 2025 at 11:03 AM
📝 The one from Substack I’m most pleased with from 2025.
Primarily because people rarely make the comparison between Farage and Johnson, despite the fact they share the same brand of elitist, chaotic, egomaniac politics 👇🏻
Primarily because people rarely make the comparison between Farage and Johnson, despite the fact they share the same brand of elitist, chaotic, egomaniac politics 👇🏻
Reposted by Something Chronic
Rhys ab Owen MS shares the story of a woman with #MECFS who spent decades housebound & bedbound. Her mother describes >30 years of neglect, abuse & being ignored because professionals would not set aside their beliefs, e.g. a child protection referral that caused years of stress.
December 12, 2025 at 7:35 AM
Rhys ab Owen MS shares the story of a woman with #MECFS who spent decades housebound & bedbound. Her mother describes >30 years of neglect, abuse & being ignored because professionals would not set aside their beliefs, e.g. a child protection referral that caused years of stress.
Reposted by Something Chronic
Highlights — Adam Price warns that the failures in Maeve Boothby O’Neill’s case could happen in Wales, and asks the Cabinet Secretary to respond to the Prevention of Future Deaths Report and implement lessons learned from the Devon Trust into an all-Wales protocol.
December 11, 2025 at 6:37 AM
Highlights — Adam Price warns that the failures in Maeve Boothby O’Neill’s case could happen in Wales, and asks the Cabinet Secretary to respond to the Prevention of Future Deaths Report and implement lessons learned from the Devon Trust into an all-Wales protocol.
Reposted by Something Chronic
A quick plug for The Hope Projects: a charity that houses refugees made absolutely destitute by Britain’s brutal asylum polices. Every time you give them some money somebody eats and Farage cries.
hope-projects.org.uk/about-hope/
Donate here: cafdonate.cafonline.org/9696#!/Donat...
hope-projects.org.uk/about-hope/
Donate here: cafdonate.cafonline.org/9696#!/Donat...
About Hope - The Hope Projects
Why does Hope exist?
Imagine fleeing persecution and having to seek protection in another land. You’d hope for welcome, sympathy and for your rights to be respected. Sadly the British asylum system i...
hope-projects.org.uk
December 24, 2025 at 3:37 PM
A quick plug for The Hope Projects: a charity that houses refugees made absolutely destitute by Britain’s brutal asylum polices. Every time you give them some money somebody eats and Farage cries.
hope-projects.org.uk/about-hope/
Donate here: cafdonate.cafonline.org/9696#!/Donat...
hope-projects.org.uk/about-hope/
Donate here: cafdonate.cafonline.org/9696#!/Donat...
Reposted by Something Chronic
8) "The sheer magnitude of the unmet needs is devastating: this population live with disabling and life-limiting symptoms, yet they feel alone and abandoned, receiving little to no institutional support, care or recognition of their suffering."
December 24, 2025 at 9:16 AM
8) "The sheer magnitude of the unmet needs is devastating: this population live with disabling and life-limiting symptoms, yet they feel alone and abandoned, receiving little to no institutional support, care or recognition of their suffering."
Reposted by Something Chronic
Is the government going to sit and watch while the #PalestineAction hunger strikers die? Is most of the media going to carry on ignoring them? Just how callous has the Establishment become?
www.theguardian.com/uk-news/2025...
www.theguardian.com/uk-news/2025...
Families of Palestine Action hunger strikers seek urgent meeting with Lammy
Justice secretary urged to ‘show a bit of humanity’ with protesters severely ill after refusing food for weeks
www.theguardian.com
December 23, 2025 at 7:58 AM
Is the government going to sit and watch while the #PalestineAction hunger strikers die? Is most of the media going to carry on ignoring them? Just how callous has the Establishment become?
www.theguardian.com/uk-news/2025...
www.theguardian.com/uk-news/2025...
Reposted by Something Chronic
2) After a virus I was unable to eat because of MCAS complaints and lost a lot of weight. I was also unable to speak properly for a couple of years. I could only manage a few words, mostly whispering. Speaking would make me crash because I could not push the air out of my lungs or properly use
December 20, 2025 at 2:44 PM
2) After a virus I was unable to eat because of MCAS complaints and lost a lot of weight. I was also unable to speak properly for a couple of years. I could only manage a few words, mostly whispering. Speaking would make me crash because I could not push the air out of my lungs or properly use
Reposted by Something Chronic
If you'd like to support Swedish ME, post-covid, and PANS patients, please sign and share this petition. It's to retract the unscientific knowledge support from the social services to health care, that supports CBT and GET, and ignores experts' warnings and high quality studies. More info in link.
Dra tillbaka kunskapsstödet för postinfektiösa tillstånd nu!
Sverige har antagit en nationell handlingsplan för patientsäkerhet. Där framgår att ”ingen patient ska behöva drabbas av en vårdskada”. Denna nollvision måste självklart även omfatta personer med post...
www.mittskifte.org
December 21, 2025 at 2:33 PM
Reposted by Something Chronic
#Urgent Appeal: Help Anna Escape #Abuse – Time is Running Out!
@phonakins.com kindly helped make a Chuffed ♥️
Please help: 🔄SHARE, 💬 COMMENT, 📝QUOTE &💸 GIVE if you can. Share on all social media platforms.
chuffed.org/project/1619...
#SevereME #MutualAid
#Disability #MECFS #ChronicIllness
@phonakins.com kindly helped make a Chuffed ♥️
Please help: 🔄SHARE, 💬 COMMENT, 📝QUOTE &💸 GIVE if you can. Share on all social media platforms.
chuffed.org/project/1619...
#SevereME #MutualAid
#Disability #MECFS #ChronicIllness
### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out!
🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect!
chuffed.org
December 24, 2025 at 1:53 PM
#Urgent Appeal: Help Anna Escape #Abuse – Time is Running Out!
@phonakins.com kindly helped make a Chuffed ♥️
Please help: 🔄SHARE, 💬 COMMENT, 📝QUOTE &💸 GIVE if you can. Share on all social media platforms.
chuffed.org/project/1619...
#SevereME #MutualAid
#Disability #MECFS #ChronicIllness
@phonakins.com kindly helped make a Chuffed ♥️
Please help: 🔄SHARE, 💬 COMMENT, 📝QUOTE &💸 GIVE if you can. Share on all social media platforms.
chuffed.org/project/1619...
#SevereME #MutualAid
#Disability #MECFS #ChronicIllness
1 of 9
My #SevereME Christmas
* All day mostly alone
* No TV, music or twinkly lights due to extreme sensory sensitivities
* I won’t be able to see anyone except my husband (also my caregiver) as I don’t have enough energy to interact with them. We’ll mostly sign for the things I need …
My #SevereME Christmas
* All day mostly alone
* No TV, music or twinkly lights due to extreme sensory sensitivities
* I won’t be able to see anyone except my husband (also my caregiver) as I don’t have enough energy to interact with them. We’ll mostly sign for the things I need …
December 25, 2025 at 1:51 PM
1 of 9
My #SevereME Christmas
* All day mostly alone
* No TV, music or twinkly lights due to extreme sensory sensitivities
* I won’t be able to see anyone except my husband (also my caregiver) as I don’t have enough energy to interact with them. We’ll mostly sign for the things I need …
My #SevereME Christmas
* All day mostly alone
* No TV, music or twinkly lights due to extreme sensory sensitivities
* I won’t be able to see anyone except my husband (also my caregiver) as I don’t have enough energy to interact with them. We’ll mostly sign for the things I need …
Reposted by Something Chronic
Christmas can be a difficult time for people with chronic illness. Thinking of everyone with severe #MECFS and #LongCovid, particularly those who are living alone or isolated in darkened rooms.
December 25, 2025 at 10:17 AM
Christmas can be a difficult time for people with chronic illness. Thinking of everyone with severe #MECFS and #LongCovid, particularly those who are living alone or isolated in darkened rooms.
Reposted by Something Chronic
Gutted to get 2 messages from kids in my family telling me I need to try harder to socialize at the holidays & “get over” being sick
I do so much disability advocacy to try and help people understand that it’s not our fault
We can’t “try harder”
Yet I can’t get my family to understand
Crushed
I do so much disability advocacy to try and help people understand that it’s not our fault
We can’t “try harder”
Yet I can’t get my family to understand
Crushed
December 25, 2025 at 4:42 AM
Gutted to get 2 messages from kids in my family telling me I need to try harder to socialize at the holidays & “get over” being sick
I do so much disability advocacy to try and help people understand that it’s not our fault
We can’t “try harder”
Yet I can’t get my family to understand
Crushed
I do so much disability advocacy to try and help people understand that it’s not our fault
We can’t “try harder”
Yet I can’t get my family to understand
Crushed
Reposted by Something Chronic
Just a reminder: you are NOT unusual, weird, or unlovable if you have:
- no one to see on Christmas Day,
- no presents, or
- no contactable relatives.
Very few people live the idealised version on TV. Those of us who live differently—whether by choice or trauma—matter as much.
- no one to see on Christmas Day,
- no presents, or
- no contactable relatives.
Very few people live the idealised version on TV. Those of us who live differently—whether by choice or trauma—matter as much.
December 25, 2025 at 9:03 AM
Just a reminder: you are NOT unusual, weird, or unlovable if you have:
- no one to see on Christmas Day,
- no presents, or
- no contactable relatives.
Very few people live the idealised version on TV. Those of us who live differently—whether by choice or trauma—matter as much.
- no one to see on Christmas Day,
- no presents, or
- no contactable relatives.
Very few people live the idealised version on TV. Those of us who live differently—whether by choice or trauma—matter as much.
Reposted by Something Chronic
UK residents can use this template letter from @pscupdates.bsky.social to write to David Lammy: palestinecampaign.eaction.org.uk/LammyHungerS...
Demand David Lammy act now to preserve the lives of the hunger strikers
palestinecampaign.eaction.org.uk
December 22, 2025 at 7:48 AM
UK residents can use this template letter from @pscupdates.bsky.social to write to David Lammy: palestinecampaign.eaction.org.uk/LammyHungerS...